Re: Options

[Guest guest]

Hi,

I just read through the article in the attached link. From that

reading, it's more obviously there is less options for most of us.

Finally most of us have to rely on RAI for thorough solution. I

really don't want to struggle for years then go to RAI again. Any

suggestions are appreicated.

Best luck to all,

remote

> " It is important to remember that you do have choices. To

> paraphrase Dr. C. Everett Koop, " the best prescription is

knowledge? Know your options. Research the effects and side effects.

Discuss it with your healthcare provider. Then, take the time to

weigh the risk verses the benefit. Hyperthyroidism is rarely a crisis

situation. Most of us have had the disease for many years before we

start showing symptoms. Don't be rushed into a decision that you

might regret. If necessary, seek a second opinion. Find a healthcare

provider that you feel comfortable with and can trust to help you

make the right decision. "

>

> See the treatment options mentioned at

>

> http://www.suite101.com/article.cfm/4614/29430

[Guest guest]

In a message dated 5/16/2003 8:06:07 PM Eastern Daylight Time,

winMoreLess@... writes:

> most of us have to rely on RAI for thorough solution.

RAI is not a solution, as it does not address the problem, which some kind of

imbalance in our systems. Please go to iThyroid.com to explore the use of

nutrition and supplements, which addresses the actual cause of the illness.

Most people who have RAI become quite ill within a 2 year period, and they

then can't turn to another option, as it is too late. It would make more

sense to me to explore every possible option that is less drastic and

addresses the real problem.

AntJoan

[Guest guest]

In a message dated 5/17/2003 5:11:45 PM Eastern Daylight Time,

par99b@... writes:

> " Most people become sick within two years " is a lot of hogwash

Pam, from what I understand, most people become hypoT w/in 2 years of RAI.

This is what the doctors and all the research says, and why I rejected RAI.

When you are hypoT you are sick, just like hyperT is a sickness. However, as

long as you still have your thyroid, there are lots of options--once it is

killed off, you are a patient for life, with a reliance on Synthroid.

I have been on this list since the beginning, and cannot recall one success

story long-term after RAI. Recently this board has attracted several new

members who underwend RAI, and I have asked them to please stay with us and

keep us informed as to their progress. If patients feel good, and don't

become hypoT after 2 years, it will be good for us to know.

On this board, we all speak the truth as we know it, from what we have

experienced, learned from others, etc. We have managed to respect each

others' points of view for all the years I have been on this board and

maintain a civil discourse. I was very sick when I had Graves, and am

grateful I resisted the advice of all the " experts " to undergo RAI, as I am

now cured. I was well by the time I joined this board, but hoped to help

others to save their thyroids and to explore all options, including nutrition

and supplements, rather than undergo a " treatment " that does not treat

anything that I can understand.

I wish us all the best of health,

AntJoan

[Guest guest]

Just have to comment on your remark that half of the world is hypo or hyper.

That's hardly the number the CDC uses. And considering that only 8% of the

population has an autoimmune disorder, and most thyroid disorders are

autoimmune, it's a considerable exaggeration. Best, Elaine

[Guest guest]

I agree 100%. You state the case much better than I do. I believe in keeping

my friends close and my enemies even closer. I retain memberships in many

organizations I don't believe in. If NAMI for example, says vote for house bill

xxx, then I know there is a good chance I want to vote against the bill. The

significant aspect of being thrown out of the church is the elder in doing so

said I must have a " personality disorder " . Not bad for trying to get a label to

stick when she has not even met me. Plus having a law firm write me a letter

and putting our situation in the hands of the state is clearly forbidden by

Christian principles.

Keep up the good work.

I assume you don't object to more of the public seeing this email.

Barrysturn@... wrote:

In case anyone has forgotten what ASPIRE is about, a quick reminder

ASPIRE was established by the then Dawn Rider as an organistion to resist the

ever encroaching influence of the modern perverison of medicine known as

biopsychiatry into education and religion, two areas that had clearly been

identified by Dawn as their target Cassandra Dawn because of terrible tragedy,

may for the time being not be at the helm but ASPIRE is not drifting, everyone

should be assurred that the message is being broadcast and will continue to be

so

I was proud to have been involved in ASPIRE from the start and still am. I am

particularly proud that the group began with a spectrum of beliefs and indeed

with people such as me who have no specific belief in organised religion.

It is a fundamental strength of ASPIRE that belief in god or gods is not a

requirement of membership, all that is required is a belief in others rights to

believe and a conviction that biopsychiatry represents the biggest threat to

belief, health, and societal well being presently facing us. ASPIRE is not a

belief system however and its members do not have to agree slavishly to any

doctrine, it is our diversity that is our strength. It is diversity that is

under threat from psychiatry, a creed or belief system that would have everyone

coerced into conformity and drugged into submission. Anyone who disagrees is a

heretic or dissident or in their view disorderd, imbalanced. It is our view

that the human ability to disagree and to be a dissident is a quality not a

defect

As to solutions...

I am actively involved in undermining this hideous attempt to subvert humanity.

While I spend a lot of time engaged in ranting on the internet to those I know

have similar convictions I also am actively engaged in research and attend

numerous conferences a year at which I make the same statements I make in email

announcements. I do not just go to the conferences and seminars where I expect

to meet fellow travellers I purposely visit the enemy camp so that they can hear

the message also.

I know that this is working. Not only am I listened to I frequently speak in

private to individuals who, to all intents and purposes are in the enemy camp.

I used to be amazed how many of the enemy themselves express doubt about this

evil creed known as biopsychiatry, now it happens so regularly that I know their

arguments are disintegrating from within. When the drug companies henious

influence is finally undermined, as it will be the whole edifice of

biopsychiatry will come tumbling down

I am frequently approached by other University researchers who are involved in

scientific and sociological research on PD, ADHD and other such syndromes. I am

both proud and happy to be asked to assist in their research because that is how

to get the message across.

ASPIRE is multi faith and no faith. ASPIRE does not discriminate against gays

or ethnic minorities or those with differing religious beliefs. If individuals

within ASPIRE do they need to search their conciences because discrimination and

bigotry, labelling and marginalising are the hallmarks of our enemies. Those

who talk of disordered personalities and of attention disorders have their own

bigotted views of what order looks like and would force all others to conform.

Conformity is not a requirement for membership of ASPIRE commitment to the

defeat of inhuman biospychiatry and a conviction that human personalities are a

part of humanity itself and not a production batch with some rejects in it

Give me disorder and give me freedom everytime.

Barry

F. Prior

Mental Health Advocate

Chicago, IL 60656-1639

T: 773/774-6696 or 800/654-1215 F: 801/848-3451

E: jprior@... W: www.lgln.com (under construction)

[Guest guest]

On 12/15/2005 at 3:45:02 A.M. Central Standard Time you wrote:

Any other surgical option besides a colonic interposition? (Gastric Pull-up is not possible). I'm going to USC University again, and five years ago, a colonic interposition is all that they could offer me.

Steve, please explain to us why gastric pull-up is not possible.

What is difference about your achalasia or what other problems

do you have which makes this impossible for you. I know that

surely you do not mean that "gastric pull-up is not possible" for

anyone, because a number of our members have had it. Also

it was being used in the 1990's because I have read articles

about it by some of the best doctors in this field. This is one:

PII: S0002-9270(99)00698-X

or

http://66.102.7.104/search?q=cache:_lUjO0ylb8cJ:www.acg.gi.org/physicians/guidelines/DiagnosisofAchalasia.pdf+gastric+pullup+and+colonic+interposition+in+1990%27s+achalasia & hl=en & ie=UTF-8

I would not want newer members to misunderstand this

statement. Thanks for whatever explanation you can give

us.

Maggie

Alabama

[Guest guest]

, I was not saying this was an odd operation. I believe both

are used...I just wanted to know why Steve used the term "gastric

pull-up was not possible".

Maggie

[Guest guest]

I was also offered an odd operation for

the next time I have to have a major surgery. They talked about using

part of my intestines for a new E.

in Indiana

From:

achalasia [mailto:achalasia ] On Behalf Of LunaIam2@...

Sent: Thursday, December 15, 2005

9:25 AM

achalasia

Subject: Re: Options

On

12/15/2005 at 3:45:02 A.M. Central Standard Time you wrote:

Any other surgical option besides a colonic

interposition? (Gastric Pull-up is not possible). I'm going to USC University

again, and five years ago, a colonic interposition is all that they could offer

me.

Steve,

please explain to us why gastric pull-up is not possible.

What is

difference about your achalasia or what other problems

do you

have which makes this impossible for you. I know that

surely

you do not mean that " gastric pull-up is not possible " for

anyone,

because a number of our members have had it. Also

it was

being used in the 1990's because I have read articles

about it

by some of the best doctors in this field. This is one:

PII:

S0002-9270(99)00698-X

or

http://66.102.7.104/search?q=cache:_lUjO0ylb8cJ:www.acg.gi.org/physicians/guidelines/DiagnosisofAchalasia.pdf+gastric+pullup+and+colonic+interposition+in+1990%27s+achalasia & hl=en & ie=UTF-8

I would

not want newer members to misunderstand this

statement.

Thanks for whatever explanation you can give

us.

Maggie

Alabama

[Guest guest]

Maggie,

It just sounds odd to me. LOL. That’s

all. I can’t imagine having part of my intestines in my throat

area!!! I know I could have the gastric pull up done, I don’t know

why Steve said that…guess we will just have to wait for his

response.

From:

achalasia [mailto:achalasia ] On Behalf Of LunaIam2@...

Sent: Thursday, December 15, 2005

9:57 AM

achalasia

Subject: Re: Options

, I

was not saying this was an odd operation. I believe both

are

used...I just wanted to know why Steve used the term " gastric

pull-up

was not possible " .

Maggie

[Guest guest]

Hi ... if the doctor says that you need surgery, he or she will

be quite sincere. This is not a surgery that a doctor recommends

unless the need is there.

As far as communicating with your parents about surgery, I would

mention to them that right now you're covered under their insurance

policy and that this is your window in which to get the surgery over

and done with. You will not be missing all that much school,

especially if they wait until the beginning of summer. As you age, the

insurance will become your responsibility. You will also have to wait

for another window of opportunity. You won't be able to start a career

and then expect to take out 3 or 4 months for surgery then. Or be in

college and have to miss a semester (when your health insurance would

stop and that would be bad). Once you're in college, it won't be easy

to take off from school. Once you're on your own, it becomes more and

more difficult logistically to accomplish something like the surgery,

in addition to being so financially. This is a pragmatic discussion

for your parents to have, but very necessary.

My daughter needed a surgery to correct a birth defect and we didn't

discover the birth defect until she was almost 18. She had the surgery

to correct the birth defect between her freshman and sophomore years,

and we absolutely had to have it done then because she couldn't take

off from college classes. Also, we had to consider when the insurance

was in effect. It would have been a great inconvenience to her to have

put it off until she was out on her own.

Mention this to your parents.

As for you, I can't speak conclusively for your situation, but my

experience was that my situation improved far beyond what I ever

imagined could be done for me surgically. Much of my pain resolved and

I was able to lead a normal life. It will be hard to go job hunting if

you have anything that speaks to deformity. Employers do

discriminate. After I had my surgery, people in my office who never

talked to be before now became friendly. It was astounding how

different people treated me when I no longer looked different.

Jeanne

>

> If the doctor tells me that I need surgery, what are my options? Do I

> have any? Do you know of any good sites for information about

> scoliosis? Thanks and have a nice day.

>

[Guest guest]

Chris. My son is a college freshman and having his

surgery 5/5 and hopes to return to school at the end

of august.same situation he is on our insurance now.

he made the final decision to have it done. We got

two scoliosis surgeon's opinions and then our family

doctor and I talked to the head of the scoliosis

research society chapter local to us. My son made the

ultimate decision. He wanted to have a straighter

spine and is hoping he might get an additional inch or

two in height. Good luck. Gail

--- jeanneswims <jeanneswims@...> wrote:

>

> Hi ... if the doctor says that you need

> surgery, he or she will

> be quite sincere. This is not a surgery that a

> doctor recommends

> unless the need is there.

>

> As far as communicating with your parents about

> surgery, I would

> mention to them that right now you're covered under

> their insurance

> policy and that this is your window in which to get

> the surgery over

> and done with. You will not be missing all that

> much school,

> especially if they wait until the beginning of

> summer. As you age, the

> insurance will become your responsibility. You will

> also have to wait

> for another window of opportunity. You won't be

> able to start a career

> and then expect to take out 3 or 4 months for

> surgery then. Or be in

> college and have to miss a semester (when your

> health insurance would

> stop and that would be bad). Once you're in

> college, it won't be easy

> to take off from school. Once you're on your own,

> it becomes more and

> more difficult logistically to accomplish something

> like the surgery,

> in addition to being so financially. This is a

> pragmatic discussion

> for your parents to have, but very necessary.

>

> My daughter needed a surgery to correct a birth

> defect and we didn't

> discover the birth defect until she was almost 18.

> She had the surgery

> to correct the birth defect between her freshman and

> sophomore years,

> and we absolutely had to have it done then because

> she couldn't take

> off from college classes. Also, we had to consider

> when the insurance

> was in effect. It would have been a great

> inconvenience to her to have

> put it off until she was out on her own.

>

> Mention this to your parents.

>

> As for you, I can't speak conclusively for your

> situation, but my

> experience was that my situation improved far beyond

> what I ever

> imagined could be done for me surgically. Much of

> my pain resolved and

> I was able to lead a normal life. It will be hard

> to go job hunting if

> you have anything that speaks to deformity.

> Employers do

> discriminate. After I had my surgery, people in my

> office who never

> talked to be before now became friendly. It was

> astounding how

> different people treated me when I no longer looked

> different.

>

> Jeanne

>

>

> >

> > If the doctor tells me that I need surgery, what

> are my options? Do I

> > have any? Do you know of any good sites for

> information about

> > scoliosis? Thanks and have a nice day.

> >

>

>

>

________________________________________________________________________________\

____

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[Guest guest]

Hi,

Something that has helped me a lot is two products made by Forces of Nature.

You can find them at: www.fonoils.com

Buy

1) Yeast Infection No More liquid

And

2) Fungal Cleanse Spray

Also, I use SCDAcidophilus made by Gi Prohealth. www.giprohealth.com I use

the 10bg capsules as I find it worked better for me than the 3bg. Also, their

other product to take is " Saciromyces Boulardi " it a special strain to aid with

candida and regulating the flora. It's also great to take during and after a

course of anti-biotics or if you over do it and eat too many carbs and get

digestive problems and/or yeast over growth feels out of control.

Sitting by the sauna or excercising to sweat has helped me too.

The most important thing to do is follow a strict diet of anti-carb foods and

when u feel you are close to or back to normal always watch out not to do

overdue specific carbs and carbs in general that affect candida the most.

Hope this helps.

Take care,

Dan

Sent from my BlackBerry® by Boost Mobile

Options

hi-

I have had systemic candida many years and am well-versed in the disease. I am

looking into what is the latest which is why I joined this group. I believe

there is a strong emotional angle to this that I am also working on. Money is

tight in terms of offering suggestions

I have few questions:

1. Has anyone had any luck with Dr Whitings H2O2 program. It makes sense to use

oxygen. I bought some food grade H2O2 because I could not afford his program but

then upon further reading I decided to wait. Apparently he uses some stabilized

method that allows the peroxide to release over a 20 minute period rather than

releasing immediately into the stomach and perhaps causing free radicals. I

would try this if I knew how to stabilize the peroxide and slow its release a

bit. Any ideas on this?

2. Anyone with success using apple cider vinegar? Anything else where there has

been substantial testimonial success? Again, I need to go cheap.

What makes my situation worse is that the overgrowth has created stomach pushing

up a bit due to the ileocecal valve not closing. Not fun. Thanks for your ideas

Sam

[Guest guest]

Hi Sam,

I never tried this oxygen therapy but I would like to bring to you attention

that candida will not be eradicated by just using some anti-fungal method

because you will always have candida in you gut and just killing the excess of

candida will not get rid of what is causing the candida overgrowth.

What you need is to attack the cause of this candida overgrowth. Nobody seems to

know exactly what causes that, but mercury seems to be a big player in this

disease. Maybe you could consider this option too and it is a cheap way to go!

Dan

>

> hi-

> I have had systemic candida many years and am well-versed in the disease. I am

looking into what is the latest which is why I joined this group. I believe

there is a strong emotional angle to this that I am also working on. Money is

tight in terms of offering suggestions

> I have few questions:

> 1. Has anyone had any luck with Dr Whitings H2O2 program. It makes sense to

use oxygen. I bought some food grade H2O2 because I could not afford his program

but then upon further reading I decided to wait. Apparently he uses some

stabilized method that allows the peroxide to release over a 20 minute period

rather than releasing immediately into the stomach and perhaps causing free

radicals. I would try this if I knew how to stabilize the peroxide and slow its

release a bit. Any ideas on this?

> 2. Anyone with success using apple cider vinegar? Anything else where there

has been substantial testimonial success? Again, I need to go cheap.

> What makes my situation worse is that the overgrowth has created stomach

pushing up a bit due to the ileocecal valve not closing. Not fun. Thanks for

your ideas

> Sam

>