Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 ...where are you having pain? Sending soft hugs your way. Kay ----- Original Message ----- From: carina063@... Sent: Saturday, April 14, 2001 2:01 PM Subject: where is everyone I am so in need of support......I am in a lot of pain these days, it is so bad. It is ironic that I always thought if I could get rid of the head thing the pain I could live with now I am getting rid of the head thing the pain is awful. When will it end?Oh well, hanging tough as always. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 I'm sorry you're having so much pain. Where is the pain? Is it all the time? Tell us more about it. Sending healing hugs your way. Jackie ----- Original Message ----- From: carina063@... Sent: Saturday, April 14, 2001 12:01 PM Subject: where is everyone I am so in need of support......I am in a lot of pain these days, it is so bad. It is ironic that I always thought if I could get rid of the head thing the pain I could live with now I am getting rid of the head thing the pain is awful. When will it end?Oh well, hanging tough as always. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 Hi , None of this ever goes away forever, considering my 7-year experience. You simply have to accept the fact that you will have several good days, the a day or 2, that's not so great. Hundreds of thousands of us have to deal with our lives this way, and you might as well accept it! You must simply 'chalk it up to, this is the price you paid , for trying to make your body into something it was never intended to be"! Please, let it go........, and get on with your life! We love you, and will help in any way we can, yet, now it's time to 'let go'! Much love, MM / NSIF Martha Murdock, DirectorNational Silicone Implant FoundationDallas, Texas Headquarters ----- Original Message ----- From: swampfox Sent: Saturday, April 14, 2001 3:13 PM Subject: Re: where is everyone ...where are you having pain? Sending soft hugs your way. Kay ----- Original Message ----- From: carina063@... Sent: Saturday, April 14, 2001 2:01 PM Subject: where is everyone I am so in need of support......I am in a lot of pain these days, it is so bad. It is ironic that I always thought if I could get rid of the head thing the pain I could live with now I am getting rid of the head thing the pain is awful. When will it end?Oh well, hanging tough as always. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Thanks Kay, the pain is mainly where it has been for a year and a half now, hands and feet, but today it is better, I am just up and down. I had a great Easter though, as far as my head goes, felt good to not feel spaced out. Thanks Kay @y..., " swampfox " <swampfox@p...> wrote: > ...where are you having pain? Sending soft hugs your way. Kay > ----- Original Message ----- > From: carina063@h... > @y... > Sent: Saturday, April 14, 2001 2:01 PM > Subject: where is everyone > > > I am so in need of support......I am in a lot of pain these days, it > is so bad. It is ironic that I always thought if I could get rid of > the head thing the pain I could live with now I am getting rid of the > head thing the pain is awful. When will it end? > > Oh well, hanging tough as always. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Martha I know your being realiztic with your experience, however I do believe that we can get well, I am going to beat this thing, I am a fighter and I got up and did a nice 6 mile walk Sat and Sun and my pain is substantially reduced. I don't think that it is something we accept, it is something we deal with, but I will fight and try to overcome. Compared to last year I have at least 10-15 good days a month, last year I had none, so that is a big time improvement. Thanks, godbless you In @y..., " MARTHA " <MAM-NSIF@P...> wrote: > Hi , > > None of this ever goes away forever, considering my 7-year experience. You simply have to accept the fact that you will have several good days, the a day or 2, that's not so great. Hundreds of thousands of us have to deal with our lives this way, and you might as well accept it! You must simply 'chalk it up to, this is the price you paid , for trying to make your body into something it was never intended to be " ! > > Please, let it go........, and get on with your life! > > We love you, and will help in any way we can, yet, now it's time to 'let go'! > > Much love, > MM / NSIF > > Martha Murdock, Director > National Silicone Implant Foundation > Dallas, Texas Headquarters > > ----- Original Message ----- > From: swampfox > @y... > Sent: Saturday, April 14, 2001 3:13 PM > Subject: Re: where is everyone > > > ...where are you having pain? Sending soft hugs your way. Kay > ----- Original Message ----- > From: carina063@h... > @y... > Sent: Saturday, April 14, 2001 2:01 PM > Subject: where is everyone > > > I am so in need of support......I am in a lot of pain these days, it > is so bad. It is ironic that I always thought if I could get rid of > the head thing the pain I could live with now I am getting rid of the > head thing the pain is awful. When will it end? > > Oh well, hanging tough as always. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Hi , I hope you are not in as much pain now. I never had the pain, but I do have the head thing and it is still here. I just keep hoping it is some kind of healing crisis and that it is the " storm before the calm " . I was feeling so good before, and now I am having a hard time. Have you checked out the supplement Super Malic Acid? There is an article on Dr. Kolb's website about it here: http://www.plastikos.com/art-sprmalic.htm It is supposed to help with fibromyalgia pain. I also started taking Transfer Factor Plus. Dr. Kolb has an article on that supplement on her website as well. I am hoping it will help with these feelings of inflammation in my head. That is what it feels like. I know this sucks. But, we will beat it. We have the power in us, and the faith to pull us through. That is what keeps me going, anyway. Take care, and let us know when you get moved! Patty ----- Original Message ----- From: <carina063@...> < > Sent: Saturday, April 14, 2001 12:01 PM Subject: where is everyone > I am so in need of support......I am in a lot of pain these days, it > is so bad. It is ironic that I always thought if I could get rid of > the head thing the pain I could live with now I am getting rid of the > head thing the pain is awful. When will it end? > > Oh well, hanging tough as always. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 I am actually doing better right now, but I don't seem to get much results from the malic acid or the msm I had been on them for the last 4 months with no real improvement. I feel confident I do not have fibromyalgia, and fear I have lupus, but if I do have lupus I am thinking it might be more like drug induced lupus, therefore it will ease up when the ANA goes down, which I know it will. I am taking the noni juice and eating a low proteing diet and mostly raw food etc seeing how that goes. People with lupus do get the inflammation in the brain so that could be similiar to our head thing, but my head thing has really improved, the pain thing is still lingering. Blah In @y..., " Patty " <faussettdp@m...> wrote: > Hi , > I hope you are not in as much pain now. I never had the pain, but I do > have the head thing and it is still here. I just keep hoping it is some > kind of healing crisis and that it is the " storm before the calm " . I was > feeling so good before, and now I am having a hard time. > > Have you checked out the supplement Super Malic Acid? There is an article > on Dr. Kolb's website about it here: > http://www.plastikos.com/art-sprmalic.htm > > It is supposed to help with fibromyalgia pain. > > I also started taking Transfer Factor Plus. Dr. Kolb has an article on that > supplement on her website as well. I am hoping it will help with these > feelings of inflammation in my head. That is what it feels like. > > I know this sucks. But, we will beat it. We have the power in us, and the > faith to pull us through. That is what keeps me going, anyway. > Take care, and let us know when you get moved! > Patty > ----- Original Message ----- > From: <carina063@h...> > < @y...> > Sent: Saturday, April 14, 2001 12:01 PM > Subject: where is everyone > > > > I am so in need of support......I am in a lot of pain these days, it > > is so bad. It is ironic that I always thought if I could get rid of > > the head thing the pain I could live with now I am getting rid of the > > head thing the pain is awful. When will it end? > > > > Oh well, hanging tough as always. Quote Link to comment Share on other sites More sharing options...
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