Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Hope that diet helps you . I might just give it a try. I do have a cousin with MS and I forwarded the info about the book to her. Sounds like you have found a good man!! I'm excited that you are excited!!!!!! Love, Phyllis:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 No, , I'm the one unfortunately with the high white count. Diagnosed in July of l998 with Chronic Lymphocytic Leukemia -- now diagnosis is white blood count disease --??-- doctor says "something" in my system has over-excited my immune system. ANA also l:320 at time of saline explant this past Sept. White count at that time was 29,800. I had silicone implants in l978--rupture in l994 and replaced with saline like a dumba--. Should have done my homework years ago!!!!! I don't do bloodwork again until the first part of June. We'll see what is happening then. In the mean time, I started walking in March--about 3 miles almost every day and I joined a fitness club the first of April. Now I'm trying to go there 5 days a week. Started with some light weights on the machines and I'm still walking outside or on the treadmill at least 3 miles-- I'm feeling much better and I am sure it was my implants that made me sick. I am determined to get better. My ears are still ringing but not as bad and I still get that spacey head thing but not as often. My burning skin and creepy crawling feeling is gone. I do have arthritis--but I'm also old--56! I have finally forgiven myself for doing such harm to my own self but I am still angry. Hope some day soon I can get over that or at least channel it in the right direction. Keep your spirits up---we can beat this. I work out to the ten count of ___"I am not gonna' let those #@(*^+ & %$#*)* kill me. Seems to help!! Chuckle, Chuckle!! Love, Phyllis:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 i was talking to a friend of my sisters who has had lupus for years and years, really bad at one time and in the hospital a few times (no implants) but she did tell me that what has helped her the most was a diet that she follows and it is a book called " the muliple sclerosis diet " by Dr.Roy Swank. I just ordered it off amazon.com and plan to get started on it asap. It seems that it would work for any of us with autoimmune stuff. Thought I would pass on the info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Phyllis, are you the one who runs the low white count? just wondering cause this girl I know with the lupus that says she is in remission with the diet told me that she also runs a low white count along with her other issues. She feels great so this diet must really work. She also takes the plaquenil and she said it made her hair stop falling out In @y..., Filisann@c... wrote: > Hope that diet helps you . I might just give it a try. > > I do have a cousin with MS and I forwarded the info about the book to her. > > Sounds like you have found a good man!! I'm excited that you are > excited!!!!!! > > Love, Phyllis:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Diet makes all the difference in the world to me. That, and my herbal supplements. I posted about the MS diet on here once before. Message number 1498, please look at it, . (Just go to the bottom of this email, and look for the link for archives. Once you get there, just enter the message number in the search box.) I have found that there are certain foods that my body just doesn't like me to eat anymore. Chocolate, corn tortilla chips, sugar, some breads, foods with red food coloring, lots of meats, lots of saturated fats. I must continually watch what I put in my mouth. I have been back on my herbs and other supplements like clockwork since I got back from Tucson, and my head is clear again. I know it is something that I am taking that is working, but I do not know what that " something " is. I have a few clues, but I can't say for sure. I think the molybdenum supplements have been very helpful. I take 250 mcg three times a day of that. I also take gingko biloba three times a day along with all my other many herbs. But I won't go without my gingko, milk thistle, olive leaf extract, siberian gingseng or Vitamin C anymore. I am also taking large doses of caprylic acid three times a day in case this is a candida issue. I drink a quart of ozonated water upon rising every morning, more later whenever I think about it and have an empty stomach! I also do ozone insufflation in my ear, funnel over my liver, and vaginal and rectal insufflations. Unfortunately, I have not been as consistent with those as I need to be. I am truly thankful for my ozone machine, though. The ONE and ONLY prescription drug I allow myself to take that I think has made a big difference is Hydergine (ergoloid mesylates). These are supposed to be extremely safe, a vasodilator. I got these off the Internet through Hong Kong, so I don't need a doctor to prescribe them for me. These are in the class of drugs called nootropics, or " smart drugs " and include vinpocetine, pirecetam or pramiracetam. If I understand it correctly, they are supposed to protect your brain from the effects of aging. I can say that since taking them, I have noticed a difference. Yup, it's a lifestyle change. What a ride. Patty ----- Original Message ----- From: <carina063@...> < > Sent: Thursday, April 19, 2001 1:13 PM Subject: Diet for Lupus and MS > i was talking to a friend of my sisters who has had lupus for years > and years, really bad at one time and in the hospital a few times (no > implants) but she did tell me that what has helped her the most was a > diet that she follows and it is a book called " the muliple sclerosis > diet " by Dr.Roy Swank. I just ordered it off amazon.com and plan to > get started on it asap. It seems that it would work for any of us > with autoimmune stuff. Thought I would pass on the info. Quote Link to comment Share on other sites More sharing options...
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