new person

[Guest guest]

Check with your local Vocational Rehabilitation office, they help in areas of

schooling, van customize and wheelchairs and more. I get help with school

fiances and books and supplies. Check with your state VR office for help for

her

[Guest guest]

Your local Vocational Rehabilitation unit will most likely purchase either

a scooter or wheelchair for nne so that she can go to college. If

she's from Honduras, she probably doesn't qualify for SSI and the

accompanying Medicaid unless she's been in the U.S. for a certain number of

years, but perhaps you can check on this for her to make sure.

At 04:11 PM 8/28/1999 -0700, you wrote:

>From: " Karin Redston " <kitties@...>

>

>Today, when I was out scooting on my electric scooter I went past a young

>woman sitting on the sidewalk.

>She said " hi there, are you in a hurry? " I said no and stopped to talk to

>her.

>Her name is nne, she is 3 feet exactly and is from Honduras. She has

>lived in Oregon City for three months. I am the first short person she has

>met here.

>She knew nothing about LPA so I told her I would get her some information.

>Folks, nne needs a wheelchair, she's not well off financially but she

>wants to go to school at Clackamas Community College.

>So, for you OREGON people who can help....please e-mail me privately for

>more information.

>

>Thanks,

>Karin Redston

>

>

>---------------------------

[Guest guest]

The lions club {nationally} redistributes donated used wheelchairs. possibility?

[Guest guest]

OOps.... I also forgot to mention that she's 21 and I was hoping there were

some people around her age around the Portland area. :-)

karin

[Guest guest]

Well what do you want to know?

At 02:47 PM 7/29/00 EDT, brwmb@... wrote:

>new person wanting more information on this

>

>

>

>

>

>

>

[Guest guest]

In a message dated 10/10/00 6:02:11 PM !!!First Boot!!!, DHigg76532@...

writes:

<< Hi I am new to your list, since coming across Eat Right 4 Your Type thru

the

essential oils list I have been so engrossed in this blood type thing. I am

O

and since I have cut wheat out of my diet most of my digestion problems I

have had for years are gone. I am hooked. What I need to know now is about

vegetable juices.... Is V8 a no no because of the tomato juice? If I

understand right Tomatoes are not good for any type but vegetable juices

are?

I would appreciate if someone could help me here. Also my husband is type B

and am I understanding right, that he can have wheat if he wants to GAIN

weight? He could use a little extra weight he lost because of stress. Thanks

in advance for any help.

Deb

>>

Tomatoes agglutinate every blood type but O and AB can have them. Some sort

of weird blood chemistry thing. And yes, you are right on certain kinds of

wheat, your B hubby can have if he wants to gain weight, but some B's like my

hubby find they can't tolerate wheat whether it's allowed or not.

Tabitha

See all my recipes at:

/

Click on TABITHA'S ER FOLDER

[Guest guest]

Hi Mike,

Welcome to the group! I don't have c-toma either but my husband

does. He's getting ready for surgery soon as are a few of our other

members. My husband is also shy but I'm working on him.

Welcome!

Michele

> hiya everyone,

>

> i don't suffer from c-toma but a friend of mine does, she's pretty

> shy so i don't expect her to post anytime soon. that's ok though, i

> talk enough for both of us anyway, looks like you could use

> another member to boost this group into the DOUBLE DIGITS yeah!

> thanks.

> take care all,

> mike

[Guest guest]

Hey, Mike! Sorry to hear your friend suffers from this strange

ailment. How long has it been since she was diagnosed? What

procedures has she had? We are always interested in the experiences

of others who are going through this. It's the best way to learn

what to expect.

Welcome to the group - we made double digits in less than a month!

How about that! I really am suprised to find so many other people

with c-toma. I had never heard of it until five months ago! Wow, I

can't believe what all has happened since February. Well, I wouldn't

have met all you wonderful people and I wouldn't have heard about

sucker fish!

> hiya everyone,

>

> i don't suffer from c-toma but a friend of mine does, she's pretty

> shy so i don't expect her to post anytime soon. that's ok though, i

> talk enough for both of us anyway, looks like you could use

> another member to boost this group into the DOUBLE DIGITS yeah!

> thanks.

> take care all,

> mike

[Guest guest]

Again, I welcome you to our group Janet! As Sheri has said, too many of our

colleagues are not entirely open to the information on vaccine injuries or

risks.

I give my special thanks to Ian Wishart's Investigate magazine (

http://www.investigatemagazine.com/ ) for swimming against the tide of media

silence on vaccine injuries and for daring to discuss the side-effects,

dangers and risks.

Had I read such a publication, had such articles been available to me, I

would not now be severely disabled from the work related vaccine I received.

I had the hepatitis B vaccine to ensure my income earning potential and

health was maintained and achieved. Instead I live in abject poverty,

because of a crippling autoimmune polyarthritis which occured within 14 days

of vaccination with Engerix B.

My once promising nursing career and independence in tatters.

Sadly, for some of us health professionals, it's not until the spectre of

vaccine injury impacts directly, that our perspectives on vaccination are

modified. Hence the groups of vaccine injured health professionals and their

class-action law suits.

I am also in email contact with 41 other vaccine injured health

professionals. Many of these colleagues (nurses, doctors, physios, OT's,

social workers, dietitions, MPH's etc) were senior in their careers, one a

former vaccine researcher who worked in his sister's lab. Each severely

disabled victim is similarly injured by hepatitis B vaccine.

Never, never, EVER again.

Hi, I just recently started as a Public Health Nurse in Arkansas and one of

my main duties is giving immunizations. I have been a nurse for 12 years in

Critical Care so this is totally new to me. I have a lot to learn and

probably little to contribute for a while. Thanks, Janet RN

--------------------------------------------------------

[Guest guest]

Hi Judy,

No you are not alone and there are some good people here in this group. I have noticed that it has been quieter than usual. Lots of info here to.

My Husband was diagnosed with Hep-C 2 1/2 years ago. He went to the ER for a prostate problem and low and behold they found this. His prostate is fine

He is one of many where treatment is not an option. He is progressively getting worse. One thing after another wrong, medically and more than not mentally too.

I come in here now and then to see how everyone else is and pray for all.

Many different situations and changes for each one here. The disease may be the same but the stories are different.

Welcome and Happy New Year, Irish

[Guest guest]

Hi, I've had HepC for maybe 15 years or more. I was not diagnosed until 1990. I was tested for many things except Hep C for about four years.

I learn that you have a take one step at a time. Keep an open mind. Learn all that you can about the dragon. Have a strong will to live? Most of all learn to share your troubles. This is a good place to do that. Thing were quiet during the holiday but people will be back on.

The best part of this support group beside the people is everyone is in different phase and different circumstance. There are people who are honest about what we are feeling. They are people here who are angry with the dragon. Look, Listen, and Learn would be my advice. I hope this New Year brings us more hope and peace. God bless. Ladonna

[Guest guest]

judy please feel free to e-mail me at redrosepetal@.... i'll chat with

you anytime you need to talk. i was a nurses aide. before the illness hit

me. now i'm home and taking it one second at a time. and i've found a new

outlet of writing poems. strange how things have worked out so far. please

hang in there. a follow friend with hep c. my name is barbara. hope to hear

from you.

[Guest guest]

thanks for the support. i was giving up on the support system. barbara here.

it's been a year and a half with hep c. and i'm finding at times it's real

rough to go on. i worry about leaving my 2 young dauthers without a mother.

guess these feelings are normal. thanks for sharing with all of us.

[Guest guest]

I am so glad to see these e-mails. I signed up on the list several days ago in desperate need for info but I had forgotten and then today, to see the e-mails...hey there really is someone out there, huh?

I'm Judy, a 53 year old disabled RN and I got the news (along with the loss of my brother) for a Christmas present.....I knew what hepatitis was but had never really studied into it and never dreamed I would get it. I have had all the symptoms for the past 4 or more months while the doctors put me through many other tests.

Please guys, talk to me, share with me how you came about finding you had hepatitis and what you went through in the beginning.....thank you all so much for just being there and allow me to see I'm not alone.....judy

[Guest guest]

Hi Judy!

I too got the bad news this past summer, giving blood for the red cross. You are not alone, and there are alot of people out here that have good information for people like us....who really do not understand everything. I just continue to ask questions, and I know some one out there will read and e-mail back. When we are face to face with the doctor, we try to remember everything that we want to ask, but we never do. I think this web-site helps, it reminds us, gives us suggestions, atlernatives, and someone to talk too, which I think is probably the most important thing, communication.

Good Luck Judy!

Terri

MD

RE: New person

I am so glad to see these e-mails. I signed up on the list several days ago in desperate need for info but I had forgotten and then today, to see the e-mails...hey there really is someone out there, huh?

I'm Judy, a 53 year old disabled RN and I got the news (along with the loss of my brother) for a Christmas present.....I knew what hepatitis was but had never really studied into it and never dreamed I would get it. I have had all the symptoms for the past 4 or more months while the doctors put me through many other tests.

Please guys, talk to me, share with me how you came about finding you had hepatitis and what you went through in the beginning.....thank you all so much for just being there and allow me to see I'm not alone.....judy

[Guest guest]

Hi Judy: I am almost 49.5 years old and have not lost hardly a step

and I figure I could have had the virus for 15 to 20 years. They have

only had reliable tests for 6 or 8 years and my doctor says that most

people with the virus would have never had known they had it and I

also read that even though a person is exposed and has the virus it

only becomes active in a minority of cases or after you have had it

for a long time. There is still an awful lot they dont know about the

virus. I am so glad to see this forum being used in a positive way.

Find out what your genotype is and how likely the cure is to work on

your genotype. For people in the early stages of the disease the cure

is tougher than the disease but the cure is worth it if it cures. And

as you will find out if you check out forum archives there are

alternatives to interferon that make a lot of sense.

I'm so sorry about your brother. Stay in touch with us. Tim

-- In Hepatitis C@y..., " Judy A. McKee " <tmckee@g...> wrote:

> I am so glad to see these e-mails. I signed up on the list several

days ago

> in desperate need for info but I had forgotten and then today, to

see the

> e-mails...hey there really is someone out there, huh?

> I'm Judy, a 53 year old disabled RN and I got the news (along with

the loss

> of my brother) for a Christmas present.....I knew what hepatitis

was but had

> never really studied into it and never dreamed I would get it. I

have had

> all the symptoms for the past 4 or more months while the doctors

put me

> through many other tests.

> Please guys, talk to me, share with me how you came about finding

you had

> hepatitis and what you went through in the beginning.....thank you

all so

> much for just being there and allow me to see I'm not alone.....judy

[Guest guest]

Welcome to our little group...just post whatever you feel that you need and we

will try to help and support you.

---------------------------------

[Guest guest]

In a message dated 5/20/2003 12:05:37 PM Eastern Daylight Time,

honiholo@... writes:

<< I guess my biggest question right now is about the secretor thing. How

important is it to know what you are? >>

Welcome to the group. The secretor thing was important to me. I think it is

more important if you turn out to be a non-secretor because it is more

restrictive. I couldn't figure out why I wasn't losing weight and why Spelt

Bread

and soy did nasty things to my body. If you're a non-secretor, your body is

more insulin resistant and will stop the weight loss cycle immediately after you

suck down that bowl of ice cream or piece of cake etc. I'll also become a

ssleeping bloatboy when I eat grains. Now that I've adjusted to the proper

foods I'm losing weight, as well as, feeling great.

As far as food, I eat very simply. Routinely red meat and O friendly

vegetables. Green tea, eggs and meat for breakfast with a piece of EZ bread.

Hope

this helps.

Max

[Guest guest]

In a message dated 5/20/2003 3:11:28 PM Eastern Daylight Time,

S@... writes:

<< Do you use any sweet stuff like stevia or splenda in your tea? >>

All of these are avoids for me so I experimented and found out what had the

least affect on me. There are some teas that are a little too bitter,

especially in restaurants, so there are times when I really want a little

sweet taste. Basically, I'll use sugar if it's a small amount and early in

the day. I will use splenda if I'm going to use more sweetener. I also have

an occasional diet soda but usually I just drink unsweetened green tea or ice

water and occasional fruit juices. I make my green tea in my old coffee

maker. I use a coffee filter with 3 bags of tea with the string removed. If

I use loose tea, it floats out and gets all over everything. Green tea

steeps much quicker than black tea and my coffee maker makes it just right

for me with very little bitterness. The only sweetener I really look out for

is corn syrup and it's in nearly everything sweetened including some meats.

[Guest guest]

Hi Pat,

Welcome to the group. If you have any questions or need suggestions, be sure

to ask. Most of us have been there before and don't mind answering

questions. There aren't any that pertain to this way of eating that we

wouldn't try to help you with.

Don't get upset with your self if you find yourself a little off the diet or

not quite dropping everything that is an avoid. Each person has to find what

is best for them to get all the avoids dropped, and we still will give way

to temptation at times. Just keep in mind that Avoids are avoids, and get

yourself off of them at your own pace, whether it is all at once or

gradually over a period of time.

New person

> Hi

>

> I am Pat (Patti to my DH) in Wisconsin... " Damma Potty " my 2 yo grandson

> calls me. Right now he is my " favorite " of my 20 grandkids because he

> doesn't even notice how fat I am. <G>

>

> I have been following ER for O for a few weeks, making lots of mistakes

and

> corrections. I honestly do best when I'm told just exactly what to eat.

> When I make my own decisions, I confuse myself. Too many years of too

many

> diets and too many diet books...its all become a jumble in my head. I

love

> it when you guys list what you eat.

>

> I guess my biggest question right now is about the secretor thing. How

> important is it to know what you are? If it is pretty important, is the

> place D Adamo notes on his website the most reasonably priced way to find

> out?

>

> I appreciate this list. Thanks. Pat

>

>

>

>

>

[Guest guest]

Dear Max: Do you use any sweet stuff like stevia or splenda in your tea?

I'm still trying to indulge my sweet tooth, LOL.

Richmond, Virginia

As far as food, I eat very simply. Routinely red meat and O friendly

vegetables. Green tea, eggs and meat for breakfast with a piece of EZ

bread. Hope

this helps.

Max

[Guest guest]

Thanks. I haven't tried stevia yet, so I'll observe what it does to me (if

anything) I can take splenda with (no observed) side effects. I understand

about corn syrup and corn products; they are a nightmare for me, too. I

especially miss cornbread (yumm, sigh).

Richmond, Virginia

All of these are avoids for me so I experimented and found out what had the

least affect on me.

[Guest guest]

Hi Pat - e mail me privately about the secretor test kit and a

personalized diet plan.

Love

info@...

New person

Hi

I am Pat (Patti to my DH) in Wisconsin... " Damma Potty " my 2 yo grandson

calls me. Right now he is my " favorite " of my 20 grandkids because he

doesn't even notice how fat I am. <G>

I have been following ER for O for a few weeks, making lots of mistakes

and

corrections. I honestly do best when I'm told just exactly what to eat.

When I make my own decisions, I confuse myself. Too many years of too

many

diets and too many diet books...its all become a jumble in my head. I

love

it when you guys list what you eat.

I guess my biggest question right now is about the secretor thing. How

important is it to know what you are? If it is pretty important, is the

place D Adamo notes on his website the most reasonably priced way to

find

out?

I appreciate this list. Thanks. Pat

[Guest guest]

---Hi,

Are you going to the University of Miami med. center at ?

I live in Miami. You can reply to me at twoseknauf@... if you

wish. I have researched the entire Miami, Florida area for the best

GI, surgeons, etc., I've already had the heller and am doing well.

Jo from South Florida

Miami area

In achalasia , " pattyandgarygolden "

<pandggolden@c...> wrote:

> Thought I had Gerd. Turned out to be Achalasia. Evaluation appt.

at

> U of M Medical Center on Friday. What questions are must ask?

> Symptoms are getting worse quick enough that I don't have the time

to

> mess around much.

>

> What experiences have people had with the mytomy and partial

fundo?

> I am 53 and otherwise in pretty good health. It seems better to

have

> the surgery now than deal with the dilation and approach surgery in

5-

> 10 years.

>

> Any input would be appreciated.

[Guest guest]

Hi Patty and/or (not sure which one of you is the Achalasian) -- welcome to the group!My name is Debbi, I'm 35yo, and I live in SW Michigan. When you say U of M, do you mean University of Michigan Medical Center in Ann Arbor? If so, from my personal experience, I'd cancel that appt and instead make one at The Cleveland Clinic, if you're able to make the drive there (not sure how far you're coming to get to Ann Arbor, or from what direction).

I've had achalasia symptoms since 1992 and was finally diagnosed in 1996, and at first I was using UMMC for my achalasia care, driving over from this side of the state. The GI that I saw here told me that you want to go somewhere where they see a LOT of these cases, b/c it's such a rare disorder that most GI docs don't have much/any experience with it.

I was NOT pleased with the care that I got at UMMC, although I've seen at least one other person here who was satisfied with their care there (they had a different doctor than I did). I was lied to by my doctor on more than one occasion, and I was used as his personal "guinea pig" for a research project.

Since that time, I learned about The Cleveland Clinic (aka TCC around this board) from others here on this board, and I now go there for treatment and followup care. (I had never even heard of TCC before, and here it turns out that they probably treat more achalasia patients every year than any other clinic in the country, and probably in the world!) Yes, it's a bit of a drive from the west side of Michigan to get to Cleveland, but in my opinion it's worth it to get the RIGHT care.

Since joining this board, I've heard from a couple other people who weren't pleased with their achalasia care at UMMC, to the point that they also advise people against going there, but I don't think I've ever seen anyone in this group who advised against going to TCC for achalasia treatment, and a LOT of people from this board have been there (probably 10 times more than have been to UMMC), so that speaks volumes to me. TCC has people who fly in from the West Coast just to have their achalasia treated there, just because of the experience level of the doctors in their Swallowing Disorders Clinic. (There is a separate Swallowing Disorders specialty department that is within the regular Gastroenterology department -- the last time I checked, UMMC did NOT have anyone who specializes in swallowing disorders separately from other issues.)

Okay, I'll get down off my TCC soapbox now (I really oughta get a commission from them or something!) -- I just can't recommend strongly enough that if you're within a day's drive of Cleveland, Ohio, that you at least check them out; the experience level there is unbelievable!

Questions that I would ask a doctor:

How many other achalasia patients have you treated? And how long have you been treating achalasia patients? When was your last patient?

What types of treatments do you suggest and why?

What are the success rates you've found with the various treatments?

What criteria did you use to determine "success"? (I've seen studies that considered the treatment "successful" if it lasted six months, and didn't do any followup beyond that -- if they fail completely at nine months but were successful when they stopped tracking at six months, that patient's treatment would be considered a "success" -- personally, less than a year of beneficial outcome is NOT what I would consider a successful treatment, so make sure you know what they use to define something as "successful".)

If you're talking to a surgeon about the Heller Myotomy, I would also ask:

Do you do it Open or Laparoscopic?

If Laparoscopic, how many have you had to end up "opening up" once you got in there? (Keep in mind that an open HM is at least 2x as long in the hospital and 2-3x as long recovery period.)

How many HMs have you done? (should be 100+ if at all possible)

Do you do the "wrap" (fundoplication) and which kind (Nissen, Toupet) and why/why not?

If you do a wrap, how many of them have had to be "loosened" down the road?

What percentage of your patients need a Dilation within 5 years? In those patients, is the dilation successful?

What is your success rate are in general (make sure you define "success"!) and also a breakdown of success rates with and without a "wrap"?

Do you have any past patients that I can talk to about this surgery?That's about all I can think of right now... if you have any questions, please feel free to post them or email me!Debbi in Michigan, aka Pepto Pink Debbi

New Person

Thought I had Gerd. Turned out to be Achalasia. Evaluation appt. at U of M Medical Center on Friday. What questions are must ask? Symptoms are getting worse quick enough that I don't have the time to mess around much.What experiences have people had with the mytomy and partial fundo? I am 53 and otherwise in pretty good health. It seems better to have the surgery now than deal with the dilation and approach surgery in 5-10 years.Any input would be appreciated.