Re: Re: [ - Teri

[Guest guest]

Thanks so much Teri. Sorry did not get to you earlier. What he gave me what the Cyclobenzaprine/ Flexeril 10 MG and I can take up to three or four of them. Last night I had one of two of them and two tramadols 50 mg a melatonin. I also had a benedryl. Also the two Topiramate 25 MG. I did not hurt all night. I did not feel anything. I did not hear anything. I did not get up at all. I was knocked out. If it works I don't want to fix it. I don't want knocked out at work that is for sure.

I have been a zombie all day. I am a light weight now. I guess all the AA and NA did me some good. I respect drugs and have not misused them since the early 80's. So I am now easier to take care of if they give me something to take care of the pain with. They have been trying at least. They are doing better than my GP doc. She gave me a tramadol and the generic flexeril at a very low dose. It was not cutting the pain. She would not up my prescription so If I took them too fast I would be out of them for days. I don't have that trouble now.

Wow that was a heck of a lot of bandana's.

Well gonna go check some more email and watch some tv I think maybe.

Love Cinder

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From: Teri Gottlieb <theresagottlieb@...>Subject: [ ] Re: [ - Questions for Cinder... while she's still venting. Date: Friday, April 9, 2010, 3:40 PM

Okay, Cinder honey... I just got to this I just woke up.... I tried to go to bed last night but finally fell asleep at 6 this morning and here it is 3:15. I have a couple of questions... . actually they are not all questions... But my biggest one is about your Flexiril. Is it Generic or Regular good old Flexiril? There are a few drugs out there that the generic is nowhere near as good as the brand... Flexiril is one of them. I have been on Flexiril many many times throughout the past 20 some odd years and when they came out with the generic it was crap. Regular Flexiril is a 5 sided pill and it's usually yellow and flat. It's also very expensive which is why people wind up on the generic. One REAL Flexiril should knock your butt out for at least 6 hours... 2 would have you sleeping all darn day.

There are only a few drugs that I have found the major difference in but this is one of them. You looking for your phone... and it was in your purse and you don't remember putting it there.... I called that pregnancy brain when I was going thru treatment... now I call it brain fog. It's yet another sign of Fibromyalgia. I was pretty forward with that new doctor yesterday. The first question I asked him was "Do you believe in FIbromyalgia? " If he'd have said no, I'd have left to find someone that does. He said yes and he believes whole heartedly that I have it. The silly phlebotomist with the finger cut off the top of her glove. Working in that field for a long time I have seen many people do that... they say it's so they can feel the veins... YOU CAN FEEL A VEIN THRU A GLOVE... it just means she's not real good at it. I would have reported the blood all over

the place to someone so it could have been cleaned up correctly. There are BioHazard precautions that need to be taken in a lab, I took them seriously for all the years I worked in Medical Labs.... many people don't. As far as your hair goes, honey, you may or may not lose it. some people don't. If your hair is on the shorter side instead of long your chances are better of keeping it because the weight of your hair isn't helping for it to fall out. If it does fall out (mine did twice) I rocked a scarf or a bandana and put on some make up and I OWNED IT. When the hair started falling out I noticed it at night because i move around a lot and I'd roll over and have a face full of hair in my mouth, all laying right there on the pillow. When it was really bad and patchy I had the rest of it shaved off and my husband popped in the chair after me and said "If she has to lose hers.. take mine off

too" A lot of people in that salon cried that day. I was one of them. He liked the whole bald thing... My hair has been back for years but he keeps his either bald are really really short. I really think you have Fibro. Just from what you are saying it makes sense. If you do, I hope you can find a doctor that will diagnose it quickly and get you some relief. About losing your hair... please don't sweat it... If you do I promise to start a bandana drive for you, like I did with a young 16 year old who went thru a bout of ovarian cancer last year.. she was on chemo for almost a year and I managed to send her over 100 bandana's... . People who didn't know her were sending them. I think we can get everyone on this website to send you one. You'll have a ton of them. So please, that's the least of your worries and there is no guarantee that you're even gonna lose your

hair. I thought it was going to be traumatic... and it was for about 30 seconds... I lost my hair in November, 2 days before Thanksgiving. And I walked out of that salon bald headed without a hat. HOLY CRAP MY HEAD WAS COLD! I slept in fuzzy warm winter hats! My head was always cold. But my hair grew back. I have one little spot about the size of a dime where it didn't come back.... kind of reminds me what I went thru. It's my badge of courage. Cinder, you are going to be fine.... right now you have all the worry of the getting to the starting line. You're going to get there, you're going to start treatment, the hubs will soften up a bit and all will be okay. I promise. Been there done that, remember? And I had a really rough time of treatment and it was okay. I got thru it. You will too. And we will all be here to

hold your hands while you're having a rough patch. Just hang in there sweetie, we have your back.Teri

From: Cinder <datagrey (DOT) com> Sent: Fri, April 9, 2010 3:34:25 AMSubject: Re: [ ] Re my wonderful day- Venting a bit

He is a doc that treats RA but he also treats other kinds of arthritis. I have three kinds of arthritis so far that he has found and maybe more. I don't know the names. He is looking at Fibromyalgia also. So you are right on on that also. I did not want to suggest it to him so he would not tell me I was a hyprocondriac. lol. For heavens sake we don't know ourselves as well as they do. hmmmmm. Anyway. He is good he just is so far far far a way and so slow at getting to you in a decent time. I am calling in today to let them know they prescribed that flexeril to give me better help for night when it is the same thing that wasn't working already. lol. I already tried up to three pills at a time on my own out of desparation.

I have had maybe just a couple of hours of sleep in the last few days due to headaches and pain in my body. As soon as the Hep doc sees me I am addressing the moodiness and ups and downs. I have already knowticed it at work. Yesterday the ups and downs were crazy. I was sitting in the waiting room and a lady was sitting in there with my husband and he touched my hair and I looked at her she had a head wrap on and no hair from radiation therapy. I start bawling and whispered to him that may be me soon with no hair. Then I tell him for Gods sake tell me some jokes. He knows I am going through wierd moods because I filled him in and told him how I feel I can be helped not to set me off but to help pull me out of it and it is working. He is doing great so far. I may ask the neurologist tomorrow too. I know Help would be nice. I just got to be careful I am getting a lot of pills in my system. A lot. The intern even said so. My Doc said she wanted me

on them. They keep loading them on knowing I have hep C.

Oh another thing about yesterday. When I had my labs. The lab tech. I don't know if I mentioned this or not already. I have a habit of repeating myself so if I do I am sorry. She had drawn my blood. One of her fingers had the glove off the finger. Then she goes to wipe my blood off the stick site. She I knowtice has blood on the side of her finger and just goes on about her business touching all sorts of stuff in the lab with that hand those fingers not washing. I right then tell her You know I have Hep C. Probably ought to wash your hands and I would call that a blood borne pathagen and I call that exposure and I hope you did not touch anything that will spread this awful disease to someone else with another needle or something else that will give it to them. Made me mad.

Anyway reported. That is stupidity. I work in health care and never expose my pts to my blood or fluids ever. Not ever. I am so so so careful. You would think a lab tech would know more than I would about that.

I am on 50 mg Tramadol 4 times to 8 times a day. I am on Flexiril 10 mg at night. I am on Naproxen 500 mg 2 to 4 times a day. I am starting back on (Hydroxychloroquine 200 MG tabs 2 tabs a day Plaquenil 200 mg. )That will be taken with Sulfasalazine 500 mg. Those will be worked up till I am taking 6 pills a day. Those are used to treat RA or autoimmune disease pain. Also disease of connective tissure as in Fibro too.

So we are going to give it a try.

I am seeing Fergason. I kind of like seeing a woman. Both my husband and I are seeing the same doc which works well for us. Then when I want her to help get him to do something for his health she usually will. lol. I am just tired and I think running out of putt in my putter here. I am okay though. I sure do love you guys for the ideas. It does help. I am definitly going to try to get something for my ups and downs. I cannot stand all this moodiness. You guys are so great. You have not even called me a nut case. Not even when I am being crazy crackers. I feel so out of control lately. When we got into the car to go. We got to the interstate here we make it to the next town and I remember oh man forgot my phone. I panic and he says you should have remembered it you always forget it. Bla bla bla. Then I reach down to feel in my purse and it was in there. I don't remember putting it there. See crazy crackers. But then I manage to get us to Kansas City

and to the hospital and find the right building and the right docs office too and even get us back home with my directions. But I can't do the simple stuff. WHY???????

I love you guys. I really do. I depend on this group and my friends here to keep screwing my head back on when I lose it. My husband always puts it back on wrong.

He tries honest he does but lol.

Later my Hepper Huggers Cinder

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