vew459

[Guest guest]

Hello everyone! My name is Vera aka vew459. I am 51 yrs old and live in Calif.I

found out I have hepC in 03 b/c I was having really bad joint problems and just

feeling very bad. I did a short round of tx Peg/Rib for (9wks) in o4, and had to

be taken off tx b/c I was going blind, I experienced all the ordinary sides with

tx. flu like symtoms, hair loss, weight loss, became very anemic (covered in

bruises) etc..I had severe psyhiactric reaction b/c those meds were stopped too,

and I am bi-polar so I was put in the psy- ward for a bit, till I was

stabilized, I was so scared that the head meds were messing my liver up that I

refused to take any more which eventually I had to get back on b/c I am

bi-polar. In 05 I developed fibromyalgia, not sure if tx brought it on or having

HCV brought it on.My doctor says I have cryglobulinemia, which is mixed proteins

in the blood which makes my blood thicken up and adds to the fibro pain..My doc

will not give me pain meds b/c they are addicting and also hard on the liver.

Believe me it gets very hard,I have flareups all the time, I use hot baths,

heating pad, massager, stretching. My doc says the best thing is exercise which

does help but when you are so fatiqued and hurting it is challanging to make

yourself get up and get going.I wait and pray for a new tx that I can tolerate,

I think the DNA vaccine will be the big break through.I am on several groups, I

only post every so often but I try to read all the digest.I try very hard to

remain optimistic and realize perfectly healthy people pass everday, and there

are worse diseases and disabilities that others have to deal with that I don't.

In all I feel very blessed that I have made it thus far.I could be living in

another country in a mudd hut stricken with extreme poverty or drought.I thank

the Good Lord for everyday, it could always be worse or better we just never

know! I pray for us all to be cured. I miss my old life before the hcv started

to take it's toll.I was such a very bizzy person, I owned a hair salon, worked

out, volunteered, just was happy and loved life.I have 3 grown daughters 24,

26,33 ~2 grnd sons! I get very bored and use to volunteer there for awhile but

just can't be counted on to have a scheduled routine. I never know how good I

will feel on a day to day basis.I just gave away my 8month old dog 2 wks ago b/c

I did not have the energy to walk her as much as she needed (she was very hyper)

and also the expense was killing me. I got her for companionship and to get more

exercise, but boy every extra penny, pet deposit, shots, spaying,flea meds,

shampoo, toys, treats. leashes oh it just goes on and on. I do miss her but she

is in a good home, my landlords took her! My over extended muscle in my arm that

I got in dog traing class is still healing since November.I had it xrayed

yesterday at ER the doc said to take 2 ibprofen 3x's a day and to exercise it

b/c I was baby ing it and that could cause it to get worse.OK! I know this is

getting so long, but I want you all to know your not alone, I feel ya! thanks

for listening.I met Don on another site and he sure is helpful,

caring,un-biased, informed. He invited me to this group! so Hello! here I be!!

Blessings Always, vew459