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Re: Hello Everyone!

I'm very confused about this message...I have never read or heard

anything about milk thistle having adverse reactions with interferon and

I believe that everyone on the list has been taking milk thistle since

learning of it's benefits for the liver. It is the chinese herb

bupleurum that has adverse effects with interferon.

I took milk thistle all through tx and never had a problem. Now that I

have joined the ranks of the unemployed and have not had money to buy

milk thistle, I have noticed a distinct difference in my fatigue level.

Enough of a difference that I am considering putting down my

hyperthyroid cat whose meds are so expensive so I can get back on milk

thistle and my hopefully my vitamins too.

Tatezi.

sylvati wrote:

> Hi Dhava

>

> After seeing some info on this list about milk thistle having an

> adverse

> effect with interferon I decided to stop taking it until after I

> completed

> treatment. I saved myself some money by doing so.

--

" ... democracy means simply the bludgeoning of the people by the people

for the people. " ~ Wilde~

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Tat,

My doc asked me not to do milk thistle during treatment. He said he

wasn't sure if it would screw with it, but he wanted to be sure and I

agreed. Besides, for me with normal alts, it doesn't have much

benefit.

alley

>

> > Hi Dhava

> >

> > After seeing some info on this list about milk thistle having an

> > adverse

> > effect with interferon I decided to stop taking it until after I

> > completed

> > treatment. I saved myself some money by doing so.

>

> --

> " ... democracy means simply the bludgeoning of the people by the

people

> for the people. " ~ Wilde~

>

>

>

>

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Alley....

Guess the difference is that I have little to no faith in western

medicine and always question doctors. (Obviously I am not a good patient

when needing western medicine.)

Western doctors are so anti herbs of any type. Gee, if people started

taking herbs instead of medicines the pharacuetical companies would lose

money, the doctors would lose their kickbacks so they would be losing

money and hospitals would lose money. If they can't make money from it,

they don't want us taking it.

Oops, better go before I get on my soapbox about the western medical

profession.....

>

> My doc asked me not to do milk thistle during treatment. He said he

> wasn't sure if it would screw with it, but he wanted to be sure and I

> agreed.

--

" ... democracy means simply the bludgeoning of the people by the people

for the people. " ~ Wilde~

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Alley....

Guess the difference is that I have little to no faith in western

medicine and always question doctors. (Obviously I am not a good patient

when needing western medicine.)

Western doctors are so anti herbs of any type. Gee, if people started

taking herbs instead of medicines the pharacuetical companies would lose

money, the doctors would lose their kickbacks so they would be losing

money and hospitals would lose money. If they can't make money from it,

they don't want us taking it.

Oops, better go before I get on my soapbox about the western medical

profession.....

>

> My doc asked me not to do milk thistle during treatment. He said he

> wasn't sure if it would screw with it, but he wanted to be sure and I

> agreed.

--

" ... democracy means simply the bludgeoning of the people by the people

for the people. " ~ Wilde~

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  • 8 months later...

Dear Jeanne,

Please go to iThyroid.com for answers to your questions. Welcome to the

group--we've all been there, and will be there for you. I would advise going

to iThyroid.com first to get some kind of overview of your illness, then come

back here with specific questions (the two sites are run by the same person).

Good luck,

AntJoan

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  • 1 year later...
  • 1 year later...

>> I just went for a preadmission clinic yesterday, and my surgery is

> scheduled for next Thursday, the 18th. Now I'm second guessing

> myself about whether I'm really in enough pain to go through all

> this, and after reading some of your most recent posts I'm even

more

> concerned about my decision.

>

Wow , my first tought is amazement is that you are getting in

so quickly. Most of us wait months for the surgery date after the

decision is made.

I am 52 and had THR in April. IT IS WORTH IT!! The activity at

Curves...only your doctor can advise you of that. But I ride my

bike again, I walked 3 miles for a breast cancer fund raiser. There

are aches and pains, but I would venture to say almost everyone is

happy about the reults. Of course, there is always someone who has

complications. The anastheia (sp?), there are different choices.

That is something again you need to discuss with your doctor. The

first few days are uncomfortable, you will need help, but the

surgery gives you a quality of life back. You will benefit from it

and have your life back.

Good luck,

Valeri

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Hi ,

I am 47 and had my LTHR in December 2003. I too was very active, but the

last 2 years before surgery the pain caused me to give up the many physical

things I loved. Among them, horseback riding (American Saddlebreds) and

tennis. I felt old before my time. Now, I forget I ever had the surgery

because I have NO pain and can do those things I love. I have no

restrictions and outting on tight panthose and socks is no problem and I do

NOT live in fear of dislocation. My surgeon says he manipulates my leg

around before closing the incision to make sure it is virtually impossible

to dislocate. I cross my legs without fear and do all the things I love. I

WISH I had done it sooner. You will be back to your old self in a month and

will be glad for it. I returned to work in a month and drove a car 10 days

after surgery. My home has 3 stories and I climbed them from the first day

at home. DO IT (if Nike allows me to steal their slogan).

I had regular anesthesia after talking to the anesthesiologist before

surgery because he said the sounds themselves can be alarming. I had just

as soon not hear anything.

Good Luck!

Beth

>From: " Murray " <dgmurray@...>

>Reply-Joint Replacement

>Joint Replacement

>Subject: Hello Everyone!

>Date: Fri, 12 Nov 2004 14:21:22 -0000

>

_________________________________________________________________

Express yourself instantly with MSN Messenger! Download today - it's FREE!

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

Just joined a few minutes ago and have read the last 30 or so

messages. Thought I'd take a minute and introduce myself and start

with some questions I'm sure you've heard over and over. ;o)

My name is , and I live outside Knoxville in east Tennessee.

I'm 52 years old and have been having hip discomfort (actually more

localized in my groin, but they tell me it's my hip) for about 3

years. My internist put me through a bunch of tests (nerve

conductivity, etc.) before _I_ finally suggested an exam by an

orthopedic surgeon. It took him about 5 minutes to tell me I needed

THR (See? I'm already picking up on the lingo! LOL)

I just went for a preadmission clinic yesterday, and my surgery is

scheduled for next Thursday, the 18th. Now I'm second guessing

myself about whether I'm really in enough pain to go through all

this, and after reading some of your most recent posts I'm even more

concerned about my decision.

Dislocation after _7_ years and/or living with constant fear of

dislocation?! Unable to put on your own socks without an assistance

device after several months or maybe ever?! Terrible leg cramps?!

Lordy, PLEASE tell me there's good news, too! :-(

I'm a pretty active person. I own two businesses (both " Curves "

franchises), and I want to be able to work out with my members

again; I want to be able to straddle a motorcycle and ride with my

husband (I used to ride my own, but the hip discomfort forced me to

stop); and I want to ride my horses. My surgeon says I should be

able to do these things, but it sounds like I'd be putting my hip in

some pretty serious jeopardy if I did. So, what's the scoop on

physical activity? Is it or is it _not_ a realistic outcome from

this surgery?

My last question is about anesthesia during surgery. I met with the

anesthesiologist yesterday, and he offered me a choice between

general and epidural. He told me that most medical professionals he

knows would take the epidural if given that option. Did any of you

go that route? If so, what was your experience with it?

Thanks for being here!

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I agree wholeheartedly with Beth. I was 40 for my first THR. 41 for

the second, which was revised June 7, 2004 thanks to an auto accident

that caused it to loosen. I try to keep in shape to keep the hip

muscle strong to avoid dislocation. I also have no restictions.

I was out and unaware of any of my surgeries. Was in 9 days for the

first. The new THR dislocated in recovery and the doc redid right

away, that is why I was in so long. But I was moving to our new

house in 6 weeks! The second I was in 2 nights and for the revision

overnight. For me, and not everyone, I felt best with as few pain

meds as possible. Tylenol worked wonders. I did get a killer cramp

the night of the revision. A muscle relaxant and an anti anxiety

pill did the trick.

Go for it! Life has risks, but to me getting a THR is worth it.

Sue

> Hi ,

>

> I am 47 and had my LTHR in December 2003. I too was very active,

but the

> last 2 years before surgery the pain caused me to give up the many

physical

> things I loved. Among them, horseback riding (American

Saddlebreds) and

> tennis. I felt old before my time. Now, I forget I ever had the

surgery

> because I have NO pain and can do those things I love. I have no

> restrictions and outting on tight panthose and socks is no problem

and I do

> NOT live in fear of dislocation. My surgeon says he manipulates my

leg

> around before closing the incision to make sure it is virtually

impossible

> to dislocate. I cross my legs without fear and do all the things I

love. I

> WISH I had done it sooner. You will be back to your old self in a

month and

> will be glad for it. I returned to work in a month and drove a car

10 days

> after surgery. My home has 3 stories and I climbed them from the

first day

> at home. DO IT (if Nike allows me to steal their slogan).

>

> I had regular anesthesia after talking to the anesthesiologist

before

> surgery because he said the sounds themselves can be alarming. I

had just

> as soon not hear anything.

>

> Good Luck!

>

> Beth

>

> >From: " Murray " <dgmurray@b...>

> >Reply-Joint Replacement

> >Joint Replacement

> >Subject: Hello Everyone!

> >Date: Fri, 12 Nov 2004 14:21:22 -0000

> >

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today -

it's FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

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//my first tought is amazement is that you are getting in so

quickly. Most of us wait months for the surgery date after the

decision is made.//

Just wanted to clarify this point. I've actually had my appointment

for surgery for almost 2 months. The preadmission clinic is

conducted by the hospital a week or two before surgery just to let

you know what to expect before, during, and after surgery. ;o)

And let me take this opportunity to thank everyone who responded to

my introduction, both here and by private e-mail. You guys are a

great group!

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//Among them, horseback riding (American Saddlebreds) and tennis.//

That's _wonderful_ news! So, I guess this THR " thing " isn't as

fragile as all that after all! :)

BTW, " my " breeds run the gamut from QH to to Paso Fino to

Tennessee s. They (along with my dogs) are what makes my

world go 'round! ;o)

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Hi ,

Every experience seems to be a little different. I'm 52 and had a THR two weeks ago (10/28) and am in no pain and walking with a cane. The surgeon said he expected I could do most sports except for singles tennis and running.

The surgeon recommended an epidural, but the anesthesiologist said I'd be uncomfortable if I woke up (a three hour procedure) and suggested I get a general anesthetic too. I took her advice.

From my own experience, I'd say the pain is only going to get worse. I postponed surgery for almost a year. Partly because I needed to change insurance plans, but also out of fear.

I think my recovery was quick, because I was in pretty good shape, exercising regularly before surgery. You don't want to wait to the point where you can't exercise, and then go in for surgery, since your recovery might be prolonged.

Best of luck,

Carol

Murray <dgmurray@...> wrote:

Just joined a few minutes ago and have read the last 30 or so messages. Thought I'd take a minute and introduce myself and start with some questions I'm sure you've heard over and over. ;o)My name is , and I live outside Knoxville in east Tennessee. I'm 52 years old and have been having hip discomfort (actually more localized in my groin, but they tell me it's my hip) for about 3 years. My internist put me through a bunch of tests (nerve conductivity, etc.) before _I_ finally suggested an exam by an orthopedic surgeon. It took him about 5 minutes to tell me I needed THR (See? I'm already picking up on the lingo! LOL)I just went for a preadmission clinic yesterday, and my surgery is scheduled for next Thursday, the 18th. Now I'm second guessing myself about whether I'm really

in enough pain to go through all this, and after reading some of your most recent posts I'm even more concerned about my decision.Dislocation after _7_ years and/or living with constant fear of dislocation?! Unable to put on your own socks without an assistance device after several months or maybe ever?! Terrible leg cramps?! Lordy, PLEASE tell me there's good news, too! :-(I'm a pretty active person. I own two businesses (both "Curves" franchises), and I want to be able to work out with my members again; I want to be able to straddle a motorcycle and ride with my husband (I used to ride my own, but the hip discomfort forced me to stop); and I want to ride my horses. My surgeon says I should be able to do these things, but it sounds like I'd be putting my hip in some pretty serious jeopardy if I did. So, what's the scoop on physical activity? Is it or is it _not_ a realistic

outcome from this surgery?My last question is about anesthesia during surgery. I met with the anesthesiologist yesterday, and he offered me a choice between general and epidural. He told me that most medical professionals he knows would take the epidural if given that option. Did any of you go that route? If so, what was your experience with it?Thanks for being here!

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: you are asking some really good questions, and it sounds like

you have done some good homework. First off, I lived in Nashville for

several years, and have been to Knoxville for a UT football game....I

won't discuss that any further: and loved hiking in the Appalachians!

Yes, you should be able to ride horses and the motorcycle after

rehab'ing, and being cleared by your orthopedic surgeon!

You will be very pleased with your new hip, and painfree life after

the first few weeks post-op. The first week can be a bit challenging.

Don't be frightened by the threat of dislocation. Yes, that is always a

possibility. But, very rare! Use common sense, and do those pesky

exercises for ever!

We will be here for you and all of your questions post-op!

Marilyn

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Hi ,

I'm 5 weeks post THR and remember that the pre-op appointment does

make you think hard-is my hip really that bad? I had every emotion

under the sun that week-the waiting is worse than the THR!Its just

the normal nerves setting in and just think in about 3 weeks you

will be without any pain.

The overall risk of dislocation is tiny-1%. I have precautions for 8

weeks and then I will be able to carry on as before and my PT even

says that I can return to going to the gym and yoga when I feel up

to it. After the surgery I discussed my dislocation fears with the

surgeon who said 'you will not dislocate!' with such conviction that

I can only think he put the hip through its paces before stitching

me up which would be standard proceedure.

I've met hippies who ride horses and motorbikes. I'd say it was

pretty realistic in the longer term. I was told its turning the hip

inwards not outwards thats generally the cause of disocation. I do

not live in fear of dislocation, and you should get plenty of advice

in the days after surgery when you are being rehabilitated.

I asked the aneathetist about what she recommended for me and went

with her decision. I had an epidural and general anaesthetic. The

advantage of both being that I was numb not sore when I awoke after

surgery. The people that had epidural only when I was in were older

(I'm 31) they were in 70's when a general is not such a great idea.

I did have a previous surgery with epidural alone and some sedation

but they talked to me during the surgery saying 'we are just about

to stictch you up!! so I prefer to be asleep!

All the best for your thursday surgery, hope the waiting isnt to

stressful!

Best wishes

Leigh

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Hi ,

I was wondering do you get pains in your legs when your sleeping ? My Sister was having Pains in her legs when she was laying down trying to sleep her dr said she had Bursitous in her hips so he gave her some pills to take . Well when I went for my Hip replacement I didn't know anything what was going to happen to me he just show me the part he put in me I'm hard of hearing so I don't remember what kind of part he put in me he handy me a booklet about the hip operation but it didn't tell me everything Thats way its nice that we have this group and they help a lot ..After the operation he said My Hip bone wasn't that bad .Then he said for the rest of my life I have to sit on a high toilet I have to use a reacher and I can't squat thats a big no no . My Hip still bothers me after four years he says it bad scar tissures .I was 56 when I had my right hip done and 58 I had my right knee replacement done at least my knees better just numb

it will be three years on 11-23 The only thing I can say is its up to the person and the dr . I wish you the best of luck and a speedy recovery .

Susie Murray <dgmurray@...> wrote:

Just joined a few minutes ago and have read the last 30 or so messages. Thought I'd take a minute and introduce myself and start with some questions I'm sure you've heard over and over. ;o)My name is , and I live outside Knoxville in east Tennessee. I'm 52 years old and have been having hip discomfort (actually more localized in my groin, but they tell me it's my hip) for about 3 years. My internist put me through a bunch of tests (nerve conductivity, etc.) before _I_ finally suggested an exam by an orthopedic surgeon. It took him about 5 minutes to tell me I needed THR (See? I'm already picking up on the lingo! LOL)I just went for a preadmission clinic yesterday, and my surgery is scheduled for next Thursday, the 18th. Now I'm second guessing myself about whether I'm really in enough pain to go through all

this, and after reading some of your most recent posts I'm even more concerned about my decision.Dislocation after _7_ years and/or living with constant fear of dislocation?! Unable to put on your own socks without an assistance device after several months or maybe ever?! Terrible leg cramps?! Lordy, PLEASE tell me there's good news, too! :-(I'm a pretty active person. I own two businesses (both "Curves" franchises), and I want to be able to work out with my members again; I want to be able to straddle a motorcycle and ride with my husband (I used to ride my own, but the hip discomfort forced me to stop); and I want to ride my horses. My surgeon says I should be able to do these things, but it sounds like I'd be putting my hip in some pretty serious jeopardy if I did. So, what's the scoop on physical activity? Is it or is it _not_ a realistic outcome from this surgery?My last question is about anesthesia

during surgery. I met with the anesthesiologist yesterday, and he offered me a choice between general and epidural. He told me that most medical professionals he knows would take the epidural if given that option. Did any of you go that route? If so, what was your experience with it?Thanks for being here!

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//I was wondering do you get pains in your legs when your sleeping?//

Hi, Susie! No, I don't particularly get pains in my _legs_ when I'm

sleeping. I do, however, have a dull aching pain in my _hip_ after

I've slept on that side for an hour or two. It wakes me up, and I

have to turn to the other side.

I was just laughing with my husband yesterday about how messed up my

sleeping positions are with all the aches and pains. A few years

ago I fell off a horse trailer and dislocated my right shoulder so I

have pain on that side after a few hours' sleep; I have lower back

problems so sleeping on my stomach aggravates that; now my hip makes

it a problem to sleep on my left side; and I think I'd have to be

(literally) _dead_ to be able to sleep on my back!

Ahhhh, the joys of getting older! LOL

Wishing you the best, too, Susie!

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Thanks for this posting. I had both of my hips replaced in 2001 and was really becoming concerned when I read all of the dislocation problems and lifetime restrictions. My doctor did not place any restrictions on me and, although I do not run, jump, lift heavy items, etc., I do pretty much everything else. It's been over 3 years since both replacements and I have had no problems. The replacements really did give me my life back.

Sally

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Hi ,

That was a bummer falling like that . I fell once not to long ago down this little hill I was with my Son and his friend and they couldn't stop my fall where I had the scar from my hip replacement turn all black and blue and I hurt my hand its still sore. Sometimes my new hip hurts when I'm trying to sleep my dr said its bad scar tissues I'm looking for a new dr .. Well today for the first time I used one of those motor carts they had in this Wal-Mart it was easy to use and I felt a lot better when we got done shopping.Well you have a nice

day.

Susie

//I was wondering do you get pains in your legs when your sleeping?//Hi, Susie! No, I don't particularly get pains in my _legs_ when I'm sleeping. I do, however, have a dull aching pain in my _hip_ after I've slept on that side for an hour or two. It wakes me up, and I have to turn to the other side.I was just laughing with my husband yesterday about how messed up my sleeping positions are with all the aches and pains. A few years ago I fell off a horse trailer and dislocated my right shoulder so I have pain on that side after a few hours' sleep; I have lower back problems so sleeping on my stomach aggravates that; now my hip makes it a problem to sleep on my left side; and I think I'd have to be (literally) _dead_ to be able to sleep on my back!Ahhhh, the joys of getting older! LOLWishing you the best, too,

Susie!

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  • 7 months later...
Guest guest

Hi, It's good to hear from you again. It's good to hear that you are doing as good as you are.Hope that you will continue to have good fortune with your back and will not need anymore surgery.

MAY YOU HAVE NOTHING BUT GOOD DAYS AND NO PAIN.

TAKE AS BEST CARE AS YOU CAN AND BE SAFE.

LARRY,GROUP MODERATORsegreto_forza <cozy@...> wrote:

Hi everybody, I haven't written in sooo long and I'm sorry. I've bben busy finally able to live my life again. I do still receive the current postings and I do read them to see how everyone is going. After my surgery I tried to sue my dr for using the BMP without my permission but failed miserably with a large bill from the lawyer. But I'm doing better now and even though I have more nerve pain than I did before surgery I'm definitely not looking into any more surgery any time soon. Now I just deal with it and hope that I'm doing everything to keep my back healthy.Hope everybody is having some good days between the bad.Take care and I'll write again soon.REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

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  • 8 months later...
Guest guest

Hello . I am a 19 year old with Autoimmune Hepatitis.

>

> Hi everyone, my name is and I'm eighteen years old. I have a

> liver transplant when I was two years old.

>

> is there anyone around my age here also?

>

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  • 1 year later...
Guest guest

Hi ! I am sorry to hear of your lil ones diagnosis but oh so glad you

found this site. It is full of extremely caring and compassionate folks with

a lot of empathy for the travels you are embarking upon. Many have

methotrexate experience and I am sure will send their thoughts soon...

Welcome aboard!!!!!!!!

Donna Fox-Keidel, Arthritis Foundation Volunteer

Juvenile Arthritis Alliance - KY Chapter, Chairperson

Arthritis EXPO, Vice Chairperson

ajaoky@...

************************************** See what's free at http://www.aol.com.

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Guest guest

MTX has been a miracle med for us. My daughter was diagnosed 10yrs ago and

the mtx did the trick on the joints, unfortunately not her eyes so we are

now doing remacaid. Good Luck

_____

From: [mailto: ] On Behalf

Of Rae

Sent: Thursday, April 05, 2007 9:16 PM

Subject: Hello Everyone!

Hi my name is and I live in Omaha, Ne. My son (we call him

Bubba!)is 15mo. and was recently diagnosed with systemic Jra. After

every possible cell in his little body was tested they came up with

this.we have been in and out of the hospital since August.His Rheumy

just prescribed Methotrexate and my question to everyone is have any of

your children been on this med. and did it help? Thank you,

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Guest guest

Hi ,

My daughter was diagnosed systemic when she was 12mo, and she started

methotrexate within 2 weeks. It took some time (about 4 months)until

it kicked in, but it seemed to help her for a while. Unfortunately

she needs something more now, so we are looking at Enbrel and

Remicade. Methotrexate seems to work well for a lot of kids and

that's all they need-hopefully this will be your son's case.

((Hugs))

Tracey and Madi 2yr systemic

>

> Hi my name is and I live in Omaha, Ne. My son (we call him

> Bubba!)is 15mo. and was recently diagnosed with systemic Jra. After

> every possible cell in his little body was tested they came up with

> this.we have been in and out of the hospital since August.His Rheumy

> just prescribed Methotrexate and my question to everyone is have any

of

> your children been on this med. and did it help? Thank you,

>

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Guest guest

Yes it has. We went in a medicated remission from Metx we take oral 20mg......

IT is worth trying it.

Terri

Hello Everyone!

Hi my name is and I live in Omaha, Ne. My son (we call him

Bubba!)is 15mo. and was recently diagnosed with systemic Jra. After

every possible cell in his little body was tested they came up with

this.we have been in and out of the hospital since August.His Rheumy

just prescribed Methotrexate and my question to everyone is have any of

your children been on this med. and did it help? Thank you,

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