Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Hello Angie, Nice to meet you My name is georgina and my son's had JRA (systemic type) since he was 6. I also have an almost 9 yr old daugter named kayla. We live in maui, hawaii. josh hasn't had eye involvement with his JRA but he still sees the eye doctor regularly because the steroids he takes have caused some slight cataracts and he needs to be monitored because he also takes plaquinel. I know what you mean, about the children sometimes handling things better than their parents! They just go with the flow, while we sometimes get so worried and stressed out over every little thing. Well, a lot of the issues aren't really so little, are they?!? They will make the best of it, though. So, best to let them know we love them lots, with lots of unconditional love, support and encouragement. Keep their confidence and self-esteem level up, so they can more easily handle any of the difficulties they may face. Yes, it sounds like your daughter's doctor has her on the standard therapy to try to control the disease. How's it working, so far? Does she have any joints that are particularly bothersome or is the worst part of it the uveitis/iritis? Well, I'll hope to hear more from you again. Let us know how Allie is doing, okay? Sometimes I don't get to spend so much time online as I'd like to but I do always read the messages here and eventually I get to replying. Maybe it has something to do with our time zone Hawaii is way behind most others. Me too, sometimes! Angie Silver wrote: > Hello everyone. I guess I should introduce myself. I just subscribed > yesterday. > > My name is Angie. I am from North Carolina. I have two children, andra > (Allie) and Dylan. Dylan just turned 3 months and Allie is 29 months old. > She was diagnosed with JRA @ 17 months. She is on Naprosyn twice a day and > Methatrexate once weekly. She also has the iritis with the JRA. She is > currently in a battle with that. We give her 6 prednisone drops daily. She > is handling everything quite well, probably better than mommy is!:0) > > I hope everyone has a wonderful Holiday! I look forward to getting to know > all of you! > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2000 Report Share Posted January 8, 2000 Hi Georgina. How are you? Hope you and your family are well! Allie is doing ok now. She sees the eye doctor on Tuesday. Sedation will be involved:0( He has to check her pressures. He is now talking steroid intervention....I don't know what this involves. Anyone else have experience with the steroid use for uveitis???? Angie Re: [ ] Hello everyone! > From: Georgina <gmckin@...> > > Hello Angie, > > Nice to meet you My name is georgina and my son's had JRA (systemic > type) since he was 6. I also have an almost 9 yr old daugter named > kayla. We live in maui, hawaii. josh hasn't had eye involvement with his > JRA but he still sees the eye doctor regularly because the steroids he > takes have caused some slight cataracts and he needs to be monitored > because he also takes plaquinel. > > I know what you mean, about the children sometimes handling things > better than their parents! They just go with the flow, while we > sometimes get so worried and stressed out over every little thing. Well, > a lot of the issues aren't really so little, are they?!? They will make > the best of it, though. So, best to let them know we love them lots, > with lots of unconditional love, support and encouragement. Keep their > confidence and self-esteem level up, so they can more easily handle any > of the difficulties they may face. > > Yes, it sounds like your daughter's doctor has her on the standard > therapy to try to control the disease. How's it working, so far? Does > she have any joints that are particularly bothersome or is the worst > part of it the uveitis/iritis? > > Well, I'll hope to hear more from you again. Let us know how Allie is > doing, okay? Sometimes I don't get to spend so much time online as I'd > like to but I do always read the messages here and eventually I get to > replying. Maybe it has something to do with our time zone Hawaii is > way behind most others. Me too, sometimes! > > > Angie Silver wrote: > > > Hello everyone. I guess I should introduce myself. I just subscribed > > yesterday. > > > > My name is Angie. I am from North Carolina. I have two children, andra > > (Allie) and Dylan. Dylan just turned 3 months and Allie is 29 months old. > > She was diagnosed with JRA @ 17 months. She is on Naprosyn twice a day and > > Methatrexate once weekly. She also has the iritis with the JRA. She is > > currently in a battle with that. We give her 6 prednisone drops daily. She > > is handling everything quite well, probably better than mommy is!:0) > > > > I hope everyone has a wonderful Holiday! I look forward to getting to know > > all of you! > > > > Angie > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2000 Report Share Posted January 8, 2000 Hi Angie, The children are still enjoying their winter break here, but will be heading back to school on Monday. We're all doing pretty well. Josh's arthritis seems to be pretty inactive right now So happy about that!!!! Good luck at the eye doctor. I guess they'll sedate because Allie's so young? I think Josh gets that test done too, when he goes in every 6 months. He sits in the special chair, they have him rest his chin on the, hmmm .... chinrest thing, and then the doctor brings the little thing up close to his eye and measures the pressure there. That, the slit lamp test, the turning through pages of a special book to see if he can distinguish the colors of hidden shapes, and the peripheral vision test. He dislikes when they put in the drops to dilate his pupils. Makes his eyes very sensitive to light for several hours afterwards. If they plan on doing that, you should probably bring along a pair of allie's sunglasses. The paper/plastic ones they use here seem made to fit adults only and they constantly, annoyingly, fall off. Better that the kids have their own pair that fits well and stays on. Let us know how it goes, okay? Aloha, Georgina Angie Silver wrote: > > Hi Georgina. How are you? Hope you and your family are well! > > Allie is doing ok now. She sees the eye doctor on Tuesday. Sedation will be > involved:0( He has to check her pressures. He is now talking steroid > intervention....I don't know what this involves. Anyone else have experience > with the steroid use for uveitis???? > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 , Glad you are back. Keep us up to date on your PS journey. Manda > Well, I think I MAY be back in business after several computer > glitches! Turns out, I have to delete all my mail TWICE (yes TWICE) > or I won't recieve any mail and start bouncing! > > Haven't caught up yet, hope everyone has been fine. > > As for myself, I am doing great. Just had my Halloween party and it > went great and our local group continues to do well with their losses > and our last two preops now have dates and will soon be post ops! > (they are RNY and using local Drs.). > > I'm now 185lbs., getting very close to my original goal of 180lbs. I > have decided that 160lb. will be my new goal, as that is less than > half of my original weight and small enough for me. > > Went to see a PS last week. He said I need a full body lift and > recommended me to a guy in Kansas City who is the " guru " of " major " > reconstruction (told ya all I have skin and then some!) and that this > guy also CAN get insurance to pay for it !!! So that is good news. > Will check this guy out more and make an appt. with him soon. HOpe > to have surgery next year some time but want to line my ducks up NOW! > > Hope you all have a safe and happy Halloween and are doing well too! > HUGS > in Ark > 3-08-01 > 322-185 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 So glad to hear that your second injection wasn't as bad as the first. I don't know about the three month marker but I'm sure Claudine or Doc can help answer that question. It will also depend on your genotype. Being a 1B, they didn't even re-run my PCR until the 6 month marker. Again, I'm sure someone else can answer that question. I never stopped taking my herbs or vitamins while on treatment and would continue taking the milk thistle but don't know anything about Szchandra berries. I'll have to do some research on them. I also have very minimal faith in western medicine and all through treatment I continued my chinese medicine and herbs. The only thing I know of for sure that you can't take while on any interferon is Bupleurum (Xiao Chai Hu). It has toxic effects when combined with interferon. Another thing that those of us with liver damage need to be careful of is Ginseng. I've read many articles about it not being good for people with liver damage even though it is excellent for everyone else. Hope some of this helps. Good luck and hang in there! Blessings Tatezi Uddhava Saradadasa wrote: > ...My 2nd injection wasn't half as bad, though I did start taking > aspirin earlier on and that seemed to help a lot.... Up till now I've > treated myself with Milk Thistle and Szchandra berries. I wonder if > there's any point to continue taking them as long as I'm on the > peg-intron. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 So glad to hear that your second injection wasn't as bad as the first. I don't know about the three month marker but I'm sure Claudine or Doc can help answer that question. It will also depend on your genotype. Being a 1B, they didn't even re-run my PCR until the 6 month marker. Again, I'm sure someone else can answer that question. I never stopped taking my herbs or vitamins while on treatment and would continue taking the milk thistle but don't know anything about Szchandra berries. I'll have to do some research on them. I also have very minimal faith in western medicine and all through treatment I continued my chinese medicine and herbs. The only thing I know of for sure that you can't take while on any interferon is Bupleurum (Xiao Chai Hu). It has toxic effects when combined with interferon. Another thing that those of us with liver damage need to be careful of is Ginseng. I've read many articles about it not being good for people with liver damage even though it is excellent for everyone else. Hope some of this helps. Good luck and hang in there! Blessings Tatezi Uddhava Saradadasa wrote: > ...My 2nd injection wasn't half as bad, though I did start taking > aspirin earlier on and that seemed to help a lot.... Up till now I've > treated myself with Milk Thistle and Szchandra berries. I wonder if > there's any point to continue taking them as long as I'm on the > peg-intron. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 You should actually see a viral load reduction after one month, if you are responding to therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 You should actually see a viral load reduction after one month, if you are responding to therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Dhava, I'm glad your second injection was not as bad! Hopefully each will get easier. Yes, you should see a viral response by 3 months! In fact, a significant drop should be expected by 1 month, although most doctors don't check. One lady in my local support group went undetectable at one WEEK. Her PCP accidentally included a PCR while doing other blood work or she would never have known. Of course, she was a genotype 3, and realistically, I don't think this could be expected of a genotype 1 or 4, or even of all 2s or 3s. I would continue with the milk thistle and Szchandra, and would also take vitamin E and C, and Selenium. Also a good B-complex. NO iron. There are some risks to interferon and ribavirin, but they tend to be greatly over stated often at various internet web sites I've seen. Treatment is not fun, but it is rarely truly dangerous for most people, especially if you have a good doctor who is monitoring you, and treating your side effects. The benefits greatly outweigh the risks! Good luck! Claudine > I wanted to thank everyone for your support this > last week. My 2nd injection > wasn't half as bad, though I did start taking > aspirin earlier on and that > seemed to help a lot. I've got a rash at the first > injection site and on the > middle and index finger knuckles of both hands, > but it's not too bad. > > I was wondering if it was realistic to expect some > reduced viral load by > three months. I am always suspicious of the AMA > and " western medicine " in > general and regard Interferon and Riboviran as > extremely dangerous. I > believe clearing the virus is worth the danger of > the peg-intron; but if > they're not working I'd like to cut 'em lose ASAP. > I worry about any > permanent damage they may cause. Up till now I've > treated myself with Milk > Thistle and Szchandra berries. I wonder if there's > any point to continue > taking them as long as I'm on the peg-intron. > > I believe that I contracted hepc in 1956 or 58 > during two heart surgeries I > had at those times. I've grown up with rashes > (sensitive skin), degenerative > joint disease, flu symptoms and fatigue, all of > which seem to be linked to > hepc. I was diagnosed in '97. > > My best wishes to all, Dhava > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Dhava, I'm glad your second injection was not as bad! Hopefully each will get easier. Yes, you should see a viral response by 3 months! In fact, a significant drop should be expected by 1 month, although most doctors don't check. One lady in my local support group went undetectable at one WEEK. Her PCP accidentally included a PCR while doing other blood work or she would never have known. Of course, she was a genotype 3, and realistically, I don't think this could be expected of a genotype 1 or 4, or even of all 2s or 3s. I would continue with the milk thistle and Szchandra, and would also take vitamin E and C, and Selenium. Also a good B-complex. NO iron. There are some risks to interferon and ribavirin, but they tend to be greatly over stated often at various internet web sites I've seen. Treatment is not fun, but it is rarely truly dangerous for most people, especially if you have a good doctor who is monitoring you, and treating your side effects. The benefits greatly outweigh the risks! Good luck! Claudine > I wanted to thank everyone for your support this > last week. My 2nd injection > wasn't half as bad, though I did start taking > aspirin earlier on and that > seemed to help a lot. I've got a rash at the first > injection site and on the > middle and index finger knuckles of both hands, > but it's not too bad. > > I was wondering if it was realistic to expect some > reduced viral load by > three months. I am always suspicious of the AMA > and " western medicine " in > general and regard Interferon and Riboviran as > extremely dangerous. I > believe clearing the virus is worth the danger of > the peg-intron; but if > they're not working I'd like to cut 'em lose ASAP. > I worry about any > permanent damage they may cause. Up till now I've > treated myself with Milk > Thistle and Szchandra berries. I wonder if there's > any point to continue > taking them as long as I'm on the peg-intron. > > I believe that I contracted hepc in 1956 or 58 > during two heart surgeries I > had at those times. I've grown up with rashes > (sensitive skin), degenerative > joint disease, flu symptoms and fatigue, all of > which seem to be linked to > hepc. I was diagnosed in '97. > > My best wishes to all, Dhava > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Dhava, I'm glad your second injection was not as bad! Hopefully each will get easier. Yes, you should see a viral response by 3 months! In fact, a significant drop should be expected by 1 month, although most doctors don't check. One lady in my local support group went undetectable at one WEEK. Her PCP accidentally included a PCR while doing other blood work or she would never have known. Of course, she was a genotype 3, and realistically, I don't think this could be expected of a genotype 1 or 4, or even of all 2s or 3s. I would continue with the milk thistle and Szchandra, and would also take vitamin E and C, and Selenium. Also a good B-complex. NO iron. There are some risks to interferon and ribavirin, but they tend to be greatly over stated often at various internet web sites I've seen. Treatment is not fun, but it is rarely truly dangerous for most people, especially if you have a good doctor who is monitoring you, and treating your side effects. The benefits greatly outweigh the risks! Good luck! Claudine > I wanted to thank everyone for your support this > last week. My 2nd injection > wasn't half as bad, though I did start taking > aspirin earlier on and that > seemed to help a lot. I've got a rash at the first > injection site and on the > middle and index finger knuckles of both hands, > but it's not too bad. > > I was wondering if it was realistic to expect some > reduced viral load by > three months. I am always suspicious of the AMA > and " western medicine " in > general and regard Interferon and Riboviran as > extremely dangerous. I > believe clearing the virus is worth the danger of > the peg-intron; but if > they're not working I'd like to cut 'em lose ASAP. > I worry about any > permanent damage they may cause. Up till now I've > treated myself with Milk > Thistle and Szchandra berries. I wonder if there's > any point to continue > taking them as long as I'm on the peg-intron. > > I believe that I contracted hepc in 1956 or 58 > during two heart surgeries I > had at those times. I've grown up with rashes > (sensitive skin), degenerative > joint disease, flu symptoms and fatigue, all of > which seem to be linked to > hepc. I was diagnosed in '97. > > My best wishes to all, Dhava > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Dhava, I'm glad your second injection was not as bad! Hopefully each will get easier. Yes, you should see a viral response by 3 months! In fact, a significant drop should be expected by 1 month, although most doctors don't check. One lady in my local support group went undetectable at one WEEK. Her PCP accidentally included a PCR while doing other blood work or she would never have known. Of course, she was a genotype 3, and realistically, I don't think this could be expected of a genotype 1 or 4, or even of all 2s or 3s. I would continue with the milk thistle and Szchandra, and would also take vitamin E and C, and Selenium. Also a good B-complex. NO iron. There are some risks to interferon and ribavirin, but they tend to be greatly over stated often at various internet web sites I've seen. Treatment is not fun, but it is rarely truly dangerous for most people, especially if you have a good doctor who is monitoring you, and treating your side effects. The benefits greatly outweigh the risks! Good luck! Claudine > I wanted to thank everyone for your support this > last week. My 2nd injection > wasn't half as bad, though I did start taking > aspirin earlier on and that > seemed to help a lot. I've got a rash at the first > injection site and on the > middle and index finger knuckles of both hands, > but it's not too bad. > > I was wondering if it was realistic to expect some > reduced viral load by > three months. I am always suspicious of the AMA > and " western medicine " in > general and regard Interferon and Riboviran as > extremely dangerous. I > believe clearing the virus is worth the danger of > the peg-intron; but if > they're not working I'd like to cut 'em lose ASAP. > I worry about any > permanent damage they may cause. Up till now I've > treated myself with Milk > Thistle and Szchandra berries. I wonder if there's > any point to continue > taking them as long as I'm on the peg-intron. > > I believe that I contracted hepc in 1956 or 58 > during two heart surgeries I > had at those times. I've grown up with rashes > (sensitive skin), degenerative > joint disease, flu symptoms and fatigue, all of > which seem to be linked to > hepc. I was diagnosed in '97. > > My best wishes to all, Dhava > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Dhava, That's a long damn time to have hep C! Yeah I'd say a lot of those symptoms are hep c related. It's possible to have an undetected viral load by the 3rd month, but if it isn't undetected then it doesn't mean it won't be nor that it won't stay undetected if and when you go. I know one lady who was so determined to get and stay undetected, she took interferon for 2 years and didn't go undetected till after the first year (she discontinued the ribavirin after the required 48 weeks) and she has been undetected for hep c now 3 years post treatment. So never say never! I don't blame you not wanting to get permanent damage from the treatment and a lot of people do get some kind of problems that continue after treatment. I know the medical brochures don't say that, but I talk to a lot of heppers online and at support groups and you're right, it's not an easy treatment. My thinking is that we each have to evaluate our situation and weigh the pros and cons and just hope we make the right decision. If, like me, you don't have a lot of liver damage, treatment might be something you don't want to do yet. Sometimes it is better to treat the symptoms and just watch the progress of the disease. I got the " riba rash " the last month of my treatment and it went away about a month after I finished. Then I got THIS rash which nobody knows what it is or why, so I'm doing another round of medications for weird stuff like scabies and a cortisone shot and some steriod medication. I have to admit, I didn't scratch once today so something is finally working after 5 miserable months of itching. Dhava I wish you the best. We'll support whatever decision you make about your treatment. Best to discuss it with your doc too. Let him/her know your thoughts and how it affects your health. Good luck! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Dhava, That's a long damn time to have hep C! Yeah I'd say a lot of those symptoms are hep c related. It's possible to have an undetected viral load by the 3rd month, but if it isn't undetected then it doesn't mean it won't be nor that it won't stay undetected if and when you go. I know one lady who was so determined to get and stay undetected, she took interferon for 2 years and didn't go undetected till after the first year (she discontinued the ribavirin after the required 48 weeks) and she has been undetected for hep c now 3 years post treatment. So never say never! I don't blame you not wanting to get permanent damage from the treatment and a lot of people do get some kind of problems that continue after treatment. I know the medical brochures don't say that, but I talk to a lot of heppers online and at support groups and you're right, it's not an easy treatment. My thinking is that we each have to evaluate our situation and weigh the pros and cons and just hope we make the right decision. If, like me, you don't have a lot of liver damage, treatment might be something you don't want to do yet. Sometimes it is better to treat the symptoms and just watch the progress of the disease. I got the " riba rash " the last month of my treatment and it went away about a month after I finished. Then I got THIS rash which nobody knows what it is or why, so I'm doing another round of medications for weird stuff like scabies and a cortisone shot and some steriod medication. I have to admit, I didn't scratch once today so something is finally working after 5 miserable months of itching. Dhava I wish you the best. We'll support whatever decision you make about your treatment. Best to discuss it with your doc too. Let him/her know your thoughts and how it affects your health. Good luck! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Dhava, That's a long damn time to have hep C! Yeah I'd say a lot of those symptoms are hep c related. It's possible to have an undetected viral load by the 3rd month, but if it isn't undetected then it doesn't mean it won't be nor that it won't stay undetected if and when you go. I know one lady who was so determined to get and stay undetected, she took interferon for 2 years and didn't go undetected till after the first year (she discontinued the ribavirin after the required 48 weeks) and she has been undetected for hep c now 3 years post treatment. So never say never! I don't blame you not wanting to get permanent damage from the treatment and a lot of people do get some kind of problems that continue after treatment. I know the medical brochures don't say that, but I talk to a lot of heppers online and at support groups and you're right, it's not an easy treatment. My thinking is that we each have to evaluate our situation and weigh the pros and cons and just hope we make the right decision. If, like me, you don't have a lot of liver damage, treatment might be something you don't want to do yet. Sometimes it is better to treat the symptoms and just watch the progress of the disease. I got the " riba rash " the last month of my treatment and it went away about a month after I finished. Then I got THIS rash which nobody knows what it is or why, so I'm doing another round of medications for weird stuff like scabies and a cortisone shot and some steriod medication. I have to admit, I didn't scratch once today so something is finally working after 5 miserable months of itching. Dhava I wish you the best. We'll support whatever decision you make about your treatment. Best to discuss it with your doc too. Let him/her know your thoughts and how it affects your health. Good luck! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Dhava, That's a long damn time to have hep C! Yeah I'd say a lot of those symptoms are hep c related. It's possible to have an undetected viral load by the 3rd month, but if it isn't undetected then it doesn't mean it won't be nor that it won't stay undetected if and when you go. I know one lady who was so determined to get and stay undetected, she took interferon for 2 years and didn't go undetected till after the first year (she discontinued the ribavirin after the required 48 weeks) and she has been undetected for hep c now 3 years post treatment. So never say never! I don't blame you not wanting to get permanent damage from the treatment and a lot of people do get some kind of problems that continue after treatment. I know the medical brochures don't say that, but I talk to a lot of heppers online and at support groups and you're right, it's not an easy treatment. My thinking is that we each have to evaluate our situation and weigh the pros and cons and just hope we make the right decision. If, like me, you don't have a lot of liver damage, treatment might be something you don't want to do yet. Sometimes it is better to treat the symptoms and just watch the progress of the disease. I got the " riba rash " the last month of my treatment and it went away about a month after I finished. Then I got THIS rash which nobody knows what it is or why, so I'm doing another round of medications for weird stuff like scabies and a cortisone shot and some steriod medication. I have to admit, I didn't scratch once today so something is finally working after 5 miserable months of itching. Dhava I wish you the best. We'll support whatever decision you make about your treatment. Best to discuss it with your doc too. Let him/her know your thoughts and how it affects your health. Good luck! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Tat said <<Another thing that those of us with liver damage need to be careful of is Ginseng. I've read many articles about it not being good for people with liver damage even though it is excellent for everyone else.>> I haven't read anything too negative on ginseng except that it is a blood thinner. What info do you have? I ask cuz I take a lot of ginseng, gingko and mah huang (sp) so I can work. Otherwise I'm just a tired blob of human blubber lol. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Tat said <<Another thing that those of us with liver damage need to be careful of is Ginseng. I've read many articles about it not being good for people with liver damage even though it is excellent for everyone else.>> I haven't read anything too negative on ginseng except that it is a blood thinner. What info do you have? I ask cuz I take a lot of ginseng, gingko and mah huang (sp) so I can work. Otherwise I'm just a tired blob of human blubber lol. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Tat said <<Another thing that those of us with liver damage need to be careful of is Ginseng. I've read many articles about it not being good for people with liver damage even though it is excellent for everyone else.>> I haven't read anything too negative on ginseng except that it is a blood thinner. What info do you have? I ask cuz I take a lot of ginseng, gingko and mah huang (sp) so I can work. Otherwise I'm just a tired blob of human blubber lol. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Tat said <<Another thing that those of us with liver damage need to be careful of is Ginseng. I've read many articles about it not being good for people with liver damage even though it is excellent for everyone else.>> I haven't read anything too negative on ginseng except that it is a blood thinner. What info do you have? I ask cuz I take a lot of ginseng, gingko and mah huang (sp) so I can work. Otherwise I'm just a tired blob of human blubber lol. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Alley... I'll have to go through my books to get the sources and probably can't get to that for a few days. I too have been laid off but the company got us this outplace thing. Not headhunters, but a series of seminars on identifying your skills, resume writing and fine tuning, marketing yourself and interview techniques. The have an online workbook and I'm one module behind which means I go into tomorrow's session unprepared again. I'd be okay except Tuesday I spent the day doing a brochure and sample web page for my dentist...had an emergency after my layoff and am trying to work the bartering system out with him. So even though I'm unemployed, I'm swampped. Tomorrow I interview with a them/perm job placement place in the am and the outplacement center in the afternoon. And this weekend I have to get the two modules I'll be behind by then done. BTW, gingseng is also excellent for building immune systems and also creates natural interferon. Don't remember why it's bad for damaged livers just made a note not to take it because of that. You know....that was back in the rebetron/thyroid gone brain fog days. Gotta scoot....want to finish mail and get to bed because I have an early morning and a busy day. Blessings Tatezi ....AI haven't read anything too negative on ginseng except that it is a blood thinner. What info do you have?... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 Hi Dhava After seeing some info on this list about milk thistle having an adverse effect with interferon I decided to stop taking it until after I completed treatment. I saved myself some money by doing so. love Sylv Hello Everyone! > I wanted to thank everyone for your support this last week. My 2nd injection > wasn't half as bad, though I did start taking aspirin earlier on and that > seemed to help a lot. I've got a rash at the first injection site and on the > middle and index finger knuckles of both hands, but it's not too bad. > > I was wondering if it was realistic to expect some reduced viral load by > three months. I am always suspicious of the AMA and " western medicine " in > general and regard Interferon and Riboviran as extremely dangerous. I > believe clearing the virus is worth the danger of the peg-intron; but if > they're not working I'd like to cut 'em lose ASAP. I worry about any > permanent damage they may cause. Up till now I've treated myself with Milk > Thistle and Szchandra berries. I wonder if there's any point to continue > taking them as long as I'm on the peg-intron. > > I believe that I contracted hepc in 1956 or 58 during two heart surgeries I > had at those times. I've grown up with rashes (sensitive skin), degenerative > joint disease, flu symptoms and fatigue, all of which seem to be linked to > hepc. I was diagnosed in '97. > > My best wishes to all, Dhava > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 Hi Dhava After seeing some info on this list about milk thistle having an adverse effect with interferon I decided to stop taking it until after I completed treatment. I saved myself some money by doing so. love Sylv Hello Everyone! > I wanted to thank everyone for your support this last week. My 2nd injection > wasn't half as bad, though I did start taking aspirin earlier on and that > seemed to help a lot. I've got a rash at the first injection site and on the > middle and index finger knuckles of both hands, but it's not too bad. > > I was wondering if it was realistic to expect some reduced viral load by > three months. I am always suspicious of the AMA and " western medicine " in > general and regard Interferon and Riboviran as extremely dangerous. I > believe clearing the virus is worth the danger of the peg-intron; but if > they're not working I'd like to cut 'em lose ASAP. I worry about any > permanent damage they may cause. Up till now I've treated myself with Milk > Thistle and Szchandra berries. I wonder if there's any point to continue > taking them as long as I'm on the peg-intron. > > I believe that I contracted hepc in 1956 or 58 during two heart surgeries I > had at those times. I've grown up with rashes (sensitive skin), degenerative > joint disease, flu symptoms and fatigue, all of which seem to be linked to > hepc. I was diagnosed in '97. > > My best wishes to all, Dhava > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 I'm very confused about this message...I have never read or heard anything about milk thistle having adverse reactions with interferon and I believe that everyone on the list has been taking milk thistle since learning of it's benefits for the liver. It is the chinese herb bupleurum that has adverse effects with interferon. I took milk thistle all through tx and never had a problem. Now that I have joined the ranks of the unemployed and have not had money to buy milk thistle, I have noticed a distinct difference in my fatigue level. Enough of a difference that I am considering putting down my hyperthyroid cat whose meds are so expensive so I can get back on milk thistle and my hopefully my vitamins too. Tatezi. sylvati wrote: > Hi Dhava > > After seeing some info on this list about milk thistle having an > adverse > effect with interferon I decided to stop taking it until after I > completed > treatment. I saved myself some money by doing so. -- " ... democracy means simply the bludgeoning of the people by the people for the people. " ~ Wilde~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 I'm very confused about this message...I have never read or heard anything about milk thistle having adverse reactions with interferon and I believe that everyone on the list has been taking milk thistle since learning of it's benefits for the liver. It is the chinese herb bupleurum that has adverse effects with interferon. I took milk thistle all through tx and never had a problem. Now that I have joined the ranks of the unemployed and have not had money to buy milk thistle, I have noticed a distinct difference in my fatigue level. Enough of a difference that I am considering putting down my hyperthyroid cat whose meds are so expensive so I can get back on milk thistle and my hopefully my vitamins too. Tatezi. sylvati wrote: > Hi Dhava > > After seeing some info on this list about milk thistle having an > adverse > effect with interferon I decided to stop taking it until after I > completed > treatment. I saved myself some money by doing so. -- " ... democracy means simply the bludgeoning of the people by the people for the people. " ~ Wilde~ Quote Link to comment Share on other sites More sharing options...
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