Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Sue, depending on your doctor there is a level where they will neeed to transfuse to help with your platelet count, when my son was down to 13,000 they transfused him a few units. WHat is your level NOw? Are you bruising easy or do you have petechia? THats those little red blotchy rash on your skin? YOur platelet count may be low , but your doctor wont step in , until its dangeroulsy low....... HAng in there, its not really that serious...JUst one more thing for you to worry about.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Sue, so far as a family we have chosent not to treat at this point. I truthfully feel the options just arent there to warrant putting my son through therapy , knowing chances are it will not work. Hes 18 disabled, he had a massive stroke at age 7,. he suffered from HEmolytic Uremic Syndrome. Its a blood and kideny disease. He required deveral weeks of transfusions of packed red blood cells, and platelets. THat is how he contracted hep c, some 11 yrs ago. Hes very frail, and I dont think he could handle the regimen of therapy availabel today. SO we hope and pray something new will become available in the years. He is seen by a heptologist and we agreee. Hes had a liver biopsy and is stage 2. HIs viral load is about 1 million, his LFT's are within the mornal range. SO for now we wait..... LInda best of luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Thanks for everyones input. I would also like to ask how many people were treated with low platelets? I am really hoping to be treated, and waiting between appointments drives me crazy. No patience, and my family would tell you, It has nothing to do with hep, just my personality. Thanks for your support. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Thanks for everyones input. I would also like to ask how many people were treated with low platelets? I am really hoping to be treated, and waiting between appointments drives me crazy. No patience, and my family would tell you, It has nothing to do with hep, just my personality. Thanks for your support. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Thanks for everyones input. I would also like to ask how many people were treated with low platelets? I am really hoping to be treated, and waiting between appointments drives me crazy. No patience, and my family would tell you, It has nothing to do with hep, just my personality. Thanks for your support. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Thanks for everyones input. I would also like to ask how many people were treated with low platelets? I am really hoping to be treated, and waiting between appointments drives me crazy. No patience, and my family would tell you, It has nothing to do with hep, just my personality. Thanks for your support. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Hi , I am no where near your sons level, my platelets this month are 56, but they do fluctuate. My concern was for being treated for hep. The hemotologist thought I should be treated, because unless we improve the liver and spleen, things would only get worse. I am hoping my hepotologist agrees. He told me previously that his cut off point was 70,000. Was your son treated for hep? If he was did he improve? Thanks for your concern. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 Is that what the little dots and/or blotchy red marks are called. I have this, is comes and goes and some of my medical people are concerned and others are not. The new hepatologist thought they should be kept track of. Right at the moment I can't think of anything more about them but that particular name and I';m too tired tonight to look it up. Keep well, Dianne > In a message dated 7/17/03 4:24:00 PM Pacific Daylight Time, > writes: > > > a lot of little red pin prick marks on my ankles and lower legs . . . > > Jackie > > Jackie, I wish you'd talk to a doctor right away. Do the little marks fade > out, temporarily, under pressure? I can't remember the name this minute, but > someone else probably will. They are a result of liver disease. My doctor > didn't have any interest in them, but I think you should mention them to your > doctor. They could indicate a change in your situation. > > Sometimes, swelling on a leg can indicate a blocked vein. Sometimes it > doesn't mean anything significant. However, you need to let a doctor decide > whether it's important. It could be very serious. > > I'm sorry to hear you haven't been feeling well. I hope you've found the > right medication to treat your depression. > Harp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 Dianne....Petechiae.... small broken blood vessels that bleed under the skin.... they appear as tiny red dots.....common in liver disease (I believe due to hormone imbalance), also common in autoimmune diseases. Thrombocytepenia is another name for low platelet count. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 The red dots could possibly be petechiae- a problem with blood-clotting(the platelets).. Thrombocytopenia is a decrease in platelets. It is necessary to have the platelets checked. Good Luck!! Sue(from Ohio) slinnd wrote: Is that what the little dots and/or blotchy red marks are called. I have this, is comes and goes and some of my medical people are concerned and others are not. The new hepatologist thought they should be kept track of. Right at the moment I can't think of anything more about them but that particular name and I';m too tired tonight to look it up. Keep well, Dianne > In a message dated 7/17/03 4:24:00 PM Pacific Daylight Time, > writes: > > > a lot of little red pin prick marks on my ankles and lower legs .. . . > > Jackie > > Jackie, I wish you'd talk to a doctor right away. Do the little marks fade > out, temporarily, under pressure? I can't remember the name this minute, but > someone else probably will. They are a result of liver disease. My doctor > didn't have any interest in them, but I think you should mention them to your > doctor. They could indicate a change in your situation. > > Sometimes, swelling on a leg can indicate a blocked vein. Sometimes it > doesn't mean anything significant. However, you need to let a doctor decide > whether it's important. It could be very serious. > > I'm sorry to hear you haven't been feeling well. I hope you've found the > right medication to treat your depression. > Harp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 My husband had red dots like measels when we saw his doctor last week. He said it was an allergic drug reaction. He stop taking one of his pills and it went away. He took the medicine last night and had the red polka dots again today. Now we know what it is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Thanks to all who replied to my e-mail. The swelling on my leg has gone down now, but the red dots are still there. Someone asked if they fade under pressure but they don`t. I have a lot of aches and pains in my legs, but it is the first time i`ve noticed swelling there. I wondered if it could be due to long term steroid use. I still feel the doctors havn`t quite got my diagnoses right. 4 years ago i was diagnosed with aih, then more recently i have been diagnosed with lupus, reynauds and endometriosis. But after treatment i still feel ill and allergic to many things. I`m still hoping there is an answer out there. I don`t feel well enough to work, but feel a fraud for not working. Anyway i`ve had a little moan, now i jusst want to say thanks again, and i wish everyone the best. Lots of love. jackie -- In , The Mauks <tmauk@w...> wrote: > The red dots could possibly be petechiae- a problem with > blood-clotting(the platelets).. Thrombocytopenia is a decrease in > platelets. It is necessary to have the platelets checked. Good Luck!! > Sue(from Ohio) > > slinnd wrote: > > > Is that what the little dots and/or blotchy red marks are called. I > > have this, is comes and goes and some of my > > medical people are concerned and others are not. The new hepatologist > > thought they should be kept track of. > > > > Right at the moment I can't think of anything more about them but that > > particular name and I';m too tired tonight to > > look it up. > > > > Keep well, > > Dianne > > > > > > > > > > > In a message dated 7/17/03 4:24:00 PM Pacific Daylight Time, > > > writes: > > > > > > > a lot of little red pin prick marks on my ankles and lower legs . > > . . > > > > Jackie > > > > > > Jackie, I wish you'd talk to a doctor right away. Do the little > > marks fade > > > out, temporarily, under pressure? I can't remember the name this > > minute, but > > > someone else probably will. They are a result of liver disease. My > > doctor > > > didn't have any interest in them, but I think you should mention > > them to your > > > doctor. They could indicate a change in your situation. > > > > > > Sometimes, swelling on a leg can indicate a blocked vein. Sometimes it > > > doesn't mean anything significant. However, you need to let a > > doctor decide > > > whether it's important. It could be very serious. > > > > > > I'm sorry to hear you haven't been feeling well. I hope you've > > found the > > > right medication to treat your depression. > > > Harp > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Thank you, Carol - my friend has also tried Rituxan, the theory being that it is the B-cells attacking the platelets. I do not think she has been on IVIG, I will mention this to her when I see her later this week. Your input is very useful to all who have had a struggle with ITP. My other onc says it is a " tough problem " . PS: They though about a spleenectomy, but right now she would bleed to death. And I think she's too old for a transplant (late 70s). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 Thrombocytopenia Definition: This means you don't have enough platelets in your blood. The word is a combination of thrombocyte, which means "platelet," and penia, a word ending that means "deficiency." Platelets are one of three main types of blood cells. The overwhelming majority of these cells are the red blood cells (erythrocyte), which bind to oxygen. The least common types are the white blood cells (leukocytes), which are essential to the body's immune system. The last type are thrombocytes, which is better known as the platelet. These cells form in the bone marrow and then enter the blood circulation, where they are essential in clotting the blood. They do this by binding together and literally forming a "plug" in to the blood vessel opening to stop the bleeding. When you don't have enough platelets, you are prone to bleeding, especially in the capillaries (the smallest of your blood vessels). Since this type of bleeding is internal, someone with thrombocytopenia must be observed closely. There are many causes of thrombocytopenia. One cause is viral infection. It's also a common side effect from taking certain medications. For example, peginterferon and ribavirin sometimes cause thrombocytopenia in people treating chronic hepatitis C. Treatment for thrombocytopenia depends on its cause, but can include blood transfusions or taking additional medications. Pronunciation: Throm-bo-sigh-toe-pee-nee-a Also Known As: Low Platelet Count http://hepatitis.about.com/od/stu/g/Thrombo.htm Quote Link to comment Share on other sites More sharing options...
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