Support Groups

[Guest guest]

I really don't have any idea about starting a support group!! The hepC nurses spoke to me last fall about joining them to get one started. Like they said, they have the book learning and I have the actual experience.However, I think it was put off and that could be because of my liver cancer diagnosis, I don't know.I find that most people that I know, that have been diagnosed, simply don't want others to know. Even those that have addressed their addiction problems, still don't have the courage to do the same with their HepC. They definitely shy away from the stigmatization more so than their addiction. Go figure!!Far as I'm concerned, I don't care how anyone contracted this awful disease and in fact, most of us will never really know

anyway. The governments and health systems have left everyone believing that it was mostly from drug addiction; but, I don't buy that. Even the few times I tried intravenous drugs 35 yrs ago, we knew better than to share needles. That was away before HIV/AIDS and definitely HepC!!! Then, there are the whole group that actually contracted the dragon from blood or blood products. I'm amongst those that were even outside those two windows. I 100% believe that mine was as a result of an ear piercing that my X did on me, right after he'd pierced his own ear.Anyway, I might try again to get a group started in our area, in the fall. I have to wait and see.Gloria

Gloria,I know of more than a handful of people who are dealing with Hep C just in the small town I live in... maybe like 12. I would love to start a real live in person support group, I actually talked to my Gastro about it when I was on treatment... any ideas on how to go about starting one? I have to make an appointment to see the Gastro anyway and I could talk to him, I know his old nurse said she'd help as well.... But how do you even start something like that?Teri