Re: Hep C Stage 3

[Guest guest]

>

> Hi you all,

> I need some encouraging words if that's possible. I'll never get the straight

info from my doc I know. I am stage 3 hep c with scarring and fatty liver. Can

anyone relate and if they come out with a new treatment might it stop my

progression and make me feel more normal>> i failed 2 tx's and I feel like the

pac-man is winning and I'm running out of time.

> Thank you all,

>

>

PS: i am 57 and I know that may affect my future with this stuff. thanx

[Guest guest]

I did standard combo 1st time and then peg combo 2nd time. The 1st time was 7

months and it ate my lunch. The 2nd time they could tell in 15 weeks i was not

responding so it did not drag out. You know the crap the drug companies inform

you about the treatment is bull. They say you will adapt to it and it gets

better as you continue to use the drugs. Maybe some people react better, but it

just beat the hell out of me and got worse as tx continued. I personally feel i

have permenant affects from interferon+ribavirin. Before and after tx is a

whole different world. But can one do. You almost have to give it a try..i hear

it has worked for some and that is a good thing i think. i have heard for last

few years bout new tx in the pipeline but nothing seem to make it beyond trials.

i realize my age might have something to do with the side effects. I will take

it one day at a time. It could be a lot worse..of all the nasty diseases out

there maybe hep c is not that terrible. I must have tollerance for it cause i

have had for 40 years and i am still kicking. I get relief from talking with

people like you who know what i am probably experiencing. My wife does not

understand at all how I can have this and at times seem somehat normal.

Sometimes the subtlness of this virus can be frustrating. What the hell is

normal anymore? Do I feel tired, apathetic because of it or is it just an

excuse for something else? Is in mental or physical? My brain works in

mysterious ways so I try to get a reality check from other heppers.

Thanks for the info and keep in touch,

> >

> > Hi you all,

> > I need some encouraging words if that's possible.  I'll never get the

straight info from my doc I know.  I am stage 3 hep c with scarring and fatty

liver.  Can anyone relate and if they come out with a new treatment might  it

stop my progression and make me feel more normal>> i failed 2 tx's and I feel

like the pac-man is winning and I'm running out of time.

> > Thank you all,

> >

> >

> PS: i am 57 and I know that may affect my future with this stuff.  thanx

>

>

>

> ------------------------------------

>

>

[Guest guest]

I understand where you are coming from very easily. Obviously, you are also a geno type 1!! When I first found out that I even had Hep C, I was already in stage 3 and failed the first treatment. Then, I felt like I was wandering around out here totally in the dark because I wasn't finding much information on what happens next. Of course, I realize now that it's because medical science does not really know!! Even cirrhosis can progress so slowly that a person could honestly die of something else than cirrhosis. Don't know about you; but, that wasn't good enough for me. I didn't want to just waste away, not knowing what tomorrow might bring.Shortly after the Non-Responder diagnosis, I was able to find, what is now an almost defunct group on

here. What I did begin to learn was there was another treatment in early research and trial stages, that might only be 3 - 5 years away. However, in very early 2009, I received a shock, when I was actually invited to join a Clinical Trial of that particular treatment. That's when it was learned that my liver was in early stages of cirrhosis as well.It was simply awful, going through treatment the 2nd time, as I reacted a whole lot different than the first. The only change was the addition of the Protease Inhibitor and I still do not see that it could have caused my emotions to get twisted, since a person only takes it for 3 months. However, happily, I can report that although we are not yet, ready for the party, I've been virus negative and told, by October last year.Probably Don here will have already put you in touch with links to other possible trials going on as well.Come back and ask us or

share your own questions and answers anytime.Gloria

Hi you all,

I need some encouraging words if that's possible. I'll never get the straight info from my doc I know. I am stage 3 hep c with scarring and fatty liver. Can anyone relate and if they come out with a new treatment might it stop my progression and make me feel more normal>> i failed 2 tx's and I feel like the pac-man is winning and I'm running out of time.

Thank you all,

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[Guest guest]

Hi , I have Hep C stage grade 1 stage 2. I am waiting for the newer drug that will hopefully stop mine too and Don is waiting for the same also. First of all relax a bit. I know it is scary but you do have a little time to think things out and do what you feel is right. You are in my heart and prayers. Don will have a lot of information for you and there are others on here who are real familiar with all this and can help you understand all of it. You are in the right place for help. Hang in there. Hugs

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From: Cole <pcole49319@...>Subject: [ ] Hep C Stage 3 Date: Saturday, March 20, 2010, 7:18 AM

Hi you all,I need some encouraging words if that's possible. I'll never get the straight info from my doc I know. I am stage 3 hep c with scarring and fatty liver. Can anyone relate and if they come out with a new treatment might it stop my progression and make me feel more normal>> i failed 2 tx's and I feel like the pac-man is winning and I'm running out of time.Thank you all,

[Guest guest]

Hi ,I have been on the medicine twice now. I think the most important thing while on the tx is fluid,,the medicine dehydrates you something terrible...take in a lot of liquid and eating is really important. The other thing I suggest (and pay attention to yourself and when you need it,,say so) is depression medicine. It brought me down worse the second time around,,I was one unhappy camper, lol. Anything you want to ask, please do...there is never a dumb question!Sheila From: Cinder <datagrey@...> Sent: Sat, March 20, 2010 6:51:31 PMSubject: Re: [ ] Hep C Stage 3

Hi , I have Hep C stage grade 1 stage 2. I am waiting for the newer drug that will hopefully stop mine too and Don is waiting for the same also. First of all relax a bit. I know it is scary but you do have a little time to think things out and do what you feel is right. You are in my heart and prayers. Don will have a lot of information for you and there are others on here who are real familiar with all this and can help you understand all of it. You are in the right place for help. Hang in there. Hugs

Check out datagrey's photos and profile!

http://community. webshots. com/user/ datagrey

Find me on MySpace and be my friend.

http://www.myspace. com/datagrey

From: Cole <pcole49319charter (DOT) net>Subject: [ ] Hep C Stage 3 Date: Saturday, March 20, 2010, 7:18 AM

Hi you all,I need some encouraging words if that's possible. I'll never get the straight info from my doc I know. I am stage 3 hep c with scarring and fatty liver. Can anyone relate and if they come out with a new treatment might it stop my progression and make me feel more normal>> i failed 2 tx's and I feel like the pac-man is winning and I'm running out of time.Thank you all,

[Guest guest]

SheilaI agree!!! This 2nd time around was absolute hell on my emotions. Last spring, I had my GP up my anti-d's to help with the dumps. By the fall, I thought I was having a total breakdown and finally ran to my GP again and she put me on "happy" pills.I always believed that I would ween off them as soon as treatment was over. However, obviously I'm not interested in doing that now - because of the cancer.I still resent the fact, that those around me, still can't acknowledge that my behaviour for awhile there, was totally out of my control. Now, I'm finally seeing the adage - what other people think of me, is none of my business!! I know who I am and I know my heart.. If they can't, then it's none of my concern. They have to work on

their own reasons for feeling the way they do.GloriaHi ,I have been on the medicine twice now. I think the most important thing while on the tx is fluid,,the medicine dehydrates you something terrible...take in a lot of liquid and eating is really important. The other thing I suggest (and pay attention to yourself and when you need it,,say so) is depression medicine. It brought me down worse the second time around,,I was one unhappy camper, lol. Anything

you want to ask, please do...there is never a dumb question!Sheila From: Cinder <datagrey (DOT) com> Sent: Sat, March 20, 2010 6:51:31 PMSubject: Re: [ ] Hep C Stage 3

Hi , I have Hep C stage grade 1 stage 2. I am waiting for the newer drug that will hopefully stop mine too and Don is waiting for the same also. First of all relax a bit. I know it is scary but you do have a little time to think things out and do what you feel is right. You are in my heart and prayers. Don will have a lot of information for you and there are others on here who are real familiar with all this and can help you understand all of it. You are in the right place for help. Hang in there. Hugs

Check out datagrey's photos and profile!

http://community. webshots. com/user/ datagrey

Find me on MySpace and be my friend.

http://www.myspace. com/datagrey

From: Cole <pcole49319charter (DOT) net>Subject: [ ] Hep C Stage 3 Date: Saturday, March 20, 2010, 7:18 AM

Hi you all,I need some encouraging words if that's possible. I'll never get the straight info from my doc I know. I am stage 3 hep c with scarring and fatty liver. Can anyone relate and if they come out with a new treatment might it stop my progression and make me feel more normal>> i failed 2 tx's and I feel like the pac-man is winning and I'm running out of time.Thank you all,

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