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Teri - Cinder vent and guys hair

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Teri,It's so good to hear your input! I didn't really have much input, being a guy and all...But I did have something for the guys!In treatment I lost probably 2/3rds of my hair. I've kept it fairly short most of my life, so when I lost that much of it I just changed my drivers license hair color to "clear".Weirdly enough, the rest of my hair pretty much stood up straight for the second half of treatment. Arms, legs, head,ummm....It was enough that I pretty much sported a ballcap the second half every day all day.The good thing was about 2 months after meds stopped so did the standing-up hair. And about 4 months after that my scalp hair was pretty much back to it's normal stately coiffure.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Re: [ - Questions for Cinder... while she's still venting.Okay, Cinder honey... I just got to this I just woke up.... I tried to go to bed last night but finally fell asleep at 6 this morning and here it is 3:15. I have a couple of questions.... actually they are not all questions... But my biggest one is about your Flexiril. Is it Generic or Regular good old Flexiril? There are a few drugs out there that the generic is nowhere near as good as the brand... Flexiril is one of them. I have been on Flexiril many many times throughout the past 20 some odd years and when they came out with the generic it was crap. Regular Flexiril is a 5 sided pill and it's usually yellow and flat. It's also very expensive which is why people wind up on the generic. One REAL Flexiril should knock your butt out for at least 6 hours... 2 would have you sleeping all darn day. There are only a few drugs that I have found the major difference in but this is one of them. You looking for your phone... and it was in your purse and you don't remember putting it there.... I called that pregnancy brain when I was going thru treatment... now I call it brain fog. It's yet another sign of Fibromyalgia. I was pretty forward with that new doctor yesterday. The first question I asked him was "Do you believe in FIbromyalgia?" If he'd have said no, I'd have left to find someone that does. He said yes and he believes whole heartedly that I have it. The silly phlebotomist with the finger cut off the top of her glove. Working in that field for a long time I have seen many people do that... they say it's so they can feel the veins... YOU CAN FEEL A VEIN THRU A GLOVE... it just means she's not real good at it. I would have reported the blood all over the place to someone so it could have been cleaned up correctly. There are BioHazard precautions that need to be taken in a lab, I took them seriously for all the years I worked in Medical Labs.... many people don't. As far as your hair goes, honey, you may or may not lose it. some people don't. If your hair is on the shorter side instead of long your chances are better of keeping it because the weight of your hair isn't helping for it to fall out. If it does fall out (mine did twice) I rocked a scarf or a bandana and put on some make up and I OWNED IT. When the hair started falling out I noticed it at night because i move around a lot and I'd roll over and have a face full of hair in my mouth, all laying right there on the pillow. When it was really bad and patchy I had the rest of it shaved off and my husband popped in the chair after me and said "If she has to lose hers.. take mine off too" A lot of people in that salon cried that day. I was one of them. He liked the whole bald thing... My hair has been back for years but he keeps his either bald are really really short. I really think you have Fibro. Just from what you are saying it makes sense. If you do, I hope you can find a doctor that will diagnose it quickly and get you some relief. About losing your hair... please don't sweat it... If you do I promise to start a bandana drive for you, like I did with a young 16 year old who went thru a bout of ovarian cancer last year.. she was on chemo for almost a year and I managed to send her over 100 bandana's.... People who didn't know her were sending them. I think we can get everyone on this website to send you one. You'll have a ton of them. So please, that's the least of your worries and there is no guarantee that you're even gonna lose your hair. I thought it was going to be traumatic... and it was for about 30 seconds... I lost my hair in November, 2 days before Thanksgiving. And I walked out of that salon bald headed without a hat. HOLY CRAP MY HEAD WAS COLD! I slept in fuzzy warm winter hats! My head was always cold. But my hair grew back. I have one little spot about the size of a dime where it didn't come back.... kind of reminds me what I went thru. It's my badge of courage. Cinder, you are going to be fine.... right now you have all the worry of the getting to the starting line. You're going to get there, you're going to start treatment, the hubs will soften up a bit and all will be okay. I promise. Been there done that, remember? And I had a really rough time of treatment and it was okay. I got thru it. You will too. And we will all be here to hold your hands while you're having a rough patch. Just hang in there sweetie, we have your back.Teri

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