Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he still sucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease. Debbie in Wa. state > > Dave, > Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us. > Teri in Chicago > > > > > > ____________ _________ _________ __ > From: Culp <dculp50@... > > > Sent: Wed, April 21, 2010 5:02:49 PM > Subject: Re: [ ] Welcome New Member > > > Hi Don and Everyone, > I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011. > Good luck to all fighting this killer. > Regards, > Dave > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Deb and DaveThe surgeon told my husband that he had actually blasted my small tumour with alcohol to shrink it and then probably decided to just take it out, along with the larger one.Yes, there is also what they call chemolation (spelling??) It is a procedure where they do contain the chemo. But, it seems that the Radio Frequency Ablation is a lot more widely used now.Gloria That's a really interesting procedure for liver tumors. I've often wondered why they couldn't bag our whole liver and heat it to kill the virus. I read somewhere where they did contain the liver for chemo treatment so the drugs didn't have to go through the body. Thanks for sending that link. Love, Deb > > Hi Deb, > Here is a link that describes it in detail, it was very effective for me but > you are awake throughout the proceedure and have to breathe and stop at > intervals. They inseted the probe just above my belly button and as the > probe got closer to my liver, the pain was overwhelming. I started to > convulse so they flooded me with morphin and had 8 people holding me down > so I don't remember the rest of it. A transplant specialist reviewed the > operation with me from his computer and we had a laugh after the fact. The > probe probably is not bad if your inserting it into prime rib but I am > mostly grizzle > in the liver. Hope this helps. > > http://www.radiolog yinfo.org/ en/info.cfm? pg=rfa > > Regards, > Dave > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Gloria, I truly am lucky. This is my and my husbands second marriage and we know what doesn't work. He is a rock. And as far as your thought process goes... GOOD FOR YOU! You don't need any crap after what you've been thru. Tell him to shape up or ship out. Sometimes (oh I'm gonna get slammed for this... crap) sometimes, men just don't get it... NOT ALL MEN.. Don, Steve, you other guys on here, I don't mean you.. really I don't. But when it's the woman that is sick, I think they have a hard time realizing that we cant perform all our wifely duties and hold down a full time job and go thru this too. Going thru Hep C treatment and it's complications is a full time job in itself. Maybe he'll come around. Talk to him. If he's talkable that is. Sometimes they just aren't. Okay, let the slamming begin... I'm ready guys... LOL!TeriFrom: Gloria <gadamscan@...> Sent: Thu, April 22, 2010 10:59:29 PMSubject: Re: [ ] Re: Welcome New Member DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he still sucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease. Debbie in Wa. state > > Dave, > Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us. > Teri in Chicago > > > > > > ____________ _________ _________ __ > From: Culp <dculp50@... > > > Sent: Wed, April 21, 2010 5:02:49 PM > Subject: Re: [ ] Welcome New Member > > > Hi Don and Everyone, > I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011. > Good luck to all fighting this killer. > Regards, > Dave > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Hi Teri No slamming. I just want to share again what I have said so many times. People who are NOT sick, have a hard time relating to those who are. The understanding just isnt there until it falls in your own shoes, and its not really anyones fault. We are all like that to some extent. So we must understand for those who arent in our shoes, and apply lots of forgiveness. This wont help them, but it will help us so very much. If you catch my drift. When we forgive, we release the burden on our own shoulders. This has 3 effects. [1] We stop stressing and are healthier. [2] We arent blasting another with negative energy. [Life is already hard enough for all.] [3] The whole Earth breaths a sigh of relief. [My hair told me this. LMAO] :-) love don in ks From: Teri Gottlieb <theresagottlieb@...>Subject: Re: [ ] Re: Welcome New Member Date: Friday, April 23, 2010, 1:16 AM Gloria, I truly am lucky. This is my and my husbands second marriage and we know what doesn't work. He is a rock. And as far as your thought process goes... GOOD FOR YOU! You don't need any crap after what you've been thru. Tell him to shape up or ship out. Sometimes (oh I'm gonna get slammed for this... crap) sometimes, men just don't get it... NOT ALL MEN.. Don, Steve, you other guys on here, I don't mean you.. really I don't. But when it's the woman that is sick, I think they have a hard time realizing that we cant perform all our wifely duties and hold down a full time job and go thru this too. Going thru Hep C treatment and it's complications is a full time job in itself. Maybe he'll come around. Talk to him. If he's talkable that is. Sometimes they just aren't. Okay, let the slamming begin... I'm ready guys... LOL! Teri From: Gloria <gadamscan@...> Sent: Thu, April 22, 2010 10:59:29 PMSubject: Re: [ ] Re: Welcome New Member DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he still sucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease.Debbie in Wa. state>> Dave,> Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us.> Teri in Chicago> > > > > > ____________ _________ _________ __> From: Culp <dculp50@... >> > Sent: Wed, April 21, 2010 5:02:49 PM> Subject: Re: [ ] Welcome New Member> > > Hi Don and Everyone,> I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.> Good luck to all fighting this killer.> Regards,> Dave> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Well said Don. TeriFrom: Christ <ludichrist2000@...> Sent: Fri, April 23, 2010 1:33:09 AMSubject: Re: [ ] Re: Welcome New Member Hi Teri No slamming. I just want to share again what I have said so many times. People who are NOT sick, have a hard time relating to those who are. The understanding just isnt there until it falls in your own shoes, and its not really anyones fault. We are all like that to some extent. So we must understand for those who arent in our shoes, and apply lots of forgiveness. This wont help them, but it will help us so very much. If you catch my drift. When we forgive, we release the burden on our own shoulders. This has 3 effects. [1] We stop stressing and are healthier. [2] We arent blasting another with negative energy. [Life is already hard enough for all.] [3] The whole Earth breaths a sigh of relief. [My hair told me this. LMAO] :-) love don in ks From: Teri Gottlieb <theresagottlieb>Subject: Re: [ ] Re: Welcome New Member Date: Friday, April 23, 2010, 1:16 AM Gloria, I truly am lucky. This is my and my husbands second marriage and we know what doesn't work. He is a rock. And as far as your thought process goes... GOOD FOR YOU! You don't need any crap after what you've been thru. Tell him to shape up or ship out. Sometimes (oh I'm gonna get slammed for this... crap) sometimes, men just don't get it... NOT ALL MEN.. Don, Steve, you other guys on here, I don't mean you.. really I don't. But when it's the woman that is sick, I think they have a hard time realizing that we cant perform all our wifely duties and hold down a full time job and go thru this too. Going thru Hep C treatment and it's complications is a full time job in itself. Maybe he'll come around. Talk to him. If he's talkable that is. Sometimes they just aren't. Okay, let the slamming begin... I'm ready guys... LOL! Teri From: Gloria <gadamscan (DOT) ca> Sent: Thu, April 22, 2010 10:59:29 PMSubject: Re: [ ] Re: Welcome New Member DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he still sucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease.Debbie in Wa. state>> Dave,> Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us.> Teri in Chicago> > > > > > ____________ _________ _________ __> From: Culp <dculp50@... >> > Sent: Wed, April 21, 2010 5:02:49 PM> Subject: Re: [ ] Welcome New Member> > > Hi Don and Everyone,> I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.> Good luck to all fighting this killer.> Regards,> Dave> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 FYI : I emailed the Brain Fog letter to my wonderful Hubby ( tries too hard but doesn't understand- love him for it even more) . Told him No Hurry Read when able... He got it ! He is even more understanding. Just sayin'. Those two letters( also Letter To Anyone Without HCV ) can makea difference.From Trudy from my iPhone On Apr 23, 2010, at 1:33 AM, Christ <ludichrist2000@...> wrote: Hi Teri No slamming. I just want to share again what I have said so many times. People who are NOT sick, have a hard time relating to those who are. The understanding just isnt there until it falls in your own shoes, and its not really anyones fault. We are all like that to some extent. So we must understand for those who arent in our shoes, and apply lots of forgiveness. This wont help them, but it will help us so very much. If you catch my drift. When we forgive, we release the burden on our own shoulders. This has 3 effects. [1] We stop stressing and are healthier. [2] We arent blasting another with negative energy. [Life is already hard enough for all.] [3] The whole Earth breaths a sigh of relief. [My hair told me this. LMAO] :-) love don in ks From: Teri Gottlieb <theresagottlieb >Subject: Re: [ ] Re: Welcome New Member Date: Friday, April 23, 2010, 1:16 AM Gloria, I truly am lucky. This is my and my husbands second marriage and we know what doesn't work. He is a rock. And as far as your thought process goes... GOOD FOR YOU! You don't need any crap after what you've been thru. Tell him to shape up or ship out. Sometimes (oh I'm gonna get slammed for this... crap) sometimes, men just don't get it... NOT ALL MEN.. Don, Steve, you other guys on here, I don't mean you.. really I don't. But when it's the woman that is sick, I think they have a hard time realizing that we cant perform all our wifely duties and hold down a full time job and go thru this too. Going thru Hep C treatment and it's complications is a full time job in itself. Maybe he'll come around. Talk to him. If he's talkable that is. Sometimes they just aren't. Okay, let the slamming begin... I'm ready guys... LOL! Teri From: Gloria <gadamscan (DOT) ca> Sent: Thu, April 22, 2010 10:59:29 PMSubject: Re: [ ] Re: Welcome New Member DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he still sucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease.Debbie in Wa. state>> Dave,> Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us.> Teri in Chicago> > > > > > ____________ _________ _________ __> From: Culp <dculp50@... >> > Sent: Wed, April 21, 2010 5:02:49 PM> Subject: Re: [ ] Welcome New Member> > > Hi Don and Everyone,> I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.> Good luck to all fighting this killer.> Regards,> Dave> Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (374) MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 FYI : I emailed the Brain Fog letter to my wonderful Hubby ( tries too hard but doesn't understand- love him for it even more) . Told him No Hurry Read when able... He got it ! He is even more understanding. Just sayin'. Those two letters( also Letter To Anyone Without HCV ) can makea difference.From Trudy from my iPhone On Apr 23, 2010, at 1:33 AM, Christ <ludichrist2000@...> wrote: Hi Teri No slamming. I just want to share again what I have said so many times. People who are NOT sick, have a hard time relating to those who are. The understanding just isnt there until it falls in your own shoes, and its not really anyones fault. We are all like that to some extent. So we must understand for those who arent in our shoes, and apply lots of forgiveness. This wont help them, but it will help us so very much. If you catch my drift. When we forgive, we release the burden on our own shoulders. This has 3 effects. [1] We stop stressing and are healthier. [2] We arent blasting another with negative energy. [Life is already hard enough for all.] [3] The whole Earth breaths a sigh of relief. [My hair told me this. LMAO] :-) love don in ks From: Teri Gottlieb <theresagottlieb >Subject: Re: [ ] Re: Welcome New Member Date: Friday, April 23, 2010, 1:16 AM Gloria, I truly am lucky. This is my and my husbands second marriage and we know what doesn't work. He is a rock. And as far as your thought process goes... GOOD FOR YOU! You don't need any crap after what you've been thru. Tell him to shape up or ship out. Sometimes (oh I'm gonna get slammed for this... crap) sometimes, men just don't get it... NOT ALL MEN.. Don, Steve, you other guys on here, I don't mean you.. really I don't. But when it's the woman that is sick, I think they have a hard time realizing that we cant perform all our wifely duties and hold down a full time job and go thru this too. Going thru Hep C treatment and it's complications is a full time job in itself. Maybe he'll come around. Talk to him. If he's talkable that is. Sometimes they just aren't. Okay, let the slamming begin... I'm ready guys... LOL! Teri From: Gloria <gadamscan (DOT) ca> Sent: Thu, April 22, 2010 10:59:29 PMSubject: Re: [ ] Re: Welcome New Member DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he still sucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease.Debbie in Wa. state>> Dave,> Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us.> Teri in Chicago> > > > > > ____________ _________ _________ __> From: Culp <dculp50@... >> > Sent: Wed, April 21, 2010 5:02:49 PM> Subject: Re: [ ] Welcome New Member> > > Hi Don and Everyone,> I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.> Good luck to all fighting this killer.> Regards,> Dave> Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (374) MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 I am so glad those helped. I swear they mean well but unless they are in our shoes they just won't get it.Sent from my Verizon Wireless BlackBerryFrom: Trudy <trudykinsey@...>Date: Fri, 23 Apr 2010 08:29:46 -0700 (PDT) < >Subject: Re: [ ] Re: Welcome New Member FYI : I emailed the Brain Fog letter to my wonderful Hubby ( tries too hard but doesn't understand- love him for it even more) . Told him No Hurry Read when able... He got it ! He is even more understanding. Just sayin'. Those two letters( also Letter To Anyone Without HCV ) can makea difference.From Trudy from my iPhone On Apr 23, 2010, at 1:33 AM, Christ <ludichrist2000 > wrote: Hi TeriNo slamming.I just want to share again what I have said so many times. People who are NOT sick, have a hard time relating to those who are.The understanding just isnt there until it falls in your own shoes, and its not really anyones fault.We are all like that to some extent.So we must understand for those who arent in our shoes, and apply lots of forgiveness.This wont help them, but it will help us so very much.If you catch my drift. When we forgive, we release the burden on our own shoulders.This has 3 effects.[1] We stop stressing and are healthier.[2] We arent blasting another with negative energy. [Life is already hard enough for all.][3] The whole Earth breaths a sigh of relief. [My hair told me this. LMAO] :-) lovedon in ksFrom: Teri Gottlieb <theresagottlieb >Subject: Re: [ ] Re: Welcome New Member Date: Friday, April 23, 2010, 1:16 AMGloria, I truly am lucky. This is my and my husbands second marriage and we know what doesn't work. He is a rock. And as far as your thought process goes... GOOD FOR YOU! You don't need any crap after what you've been thru. Tell him to shape up or ship out. Sometimes (oh I'm gonna get slammed for this... crap) sometimes, men just don't get it... NOT ALL MEN.. Don, Steve, you other guys on here, I don't mean you.. really I don't. But when it's the woman that is sick, I think they have a hard time realizing that we cant perform all our wifely duties and hold down a full time job and go thru this too. Going thru Hep C treatment and it'scomplications is afull time job in itself. Maybe he'll come around. Talk to him. If he's talkable that is. Sometimes they just aren't. Okay, let the slamming begin... I'm ready guys... LOL!TeriFrom: Gloria <gadamscan (DOT) ca> Sent: Thu, April 22, 2010 10:59:29 PMSubject: Re: [ ] Re: Welcome New Member DebbieGive that husband of yours a great huge hug every day! He deserves it!! Teri, you do the same. We women who have contracted this and the fibro etc. are really lucky if the husband sticks!! I'm still not so sure my marriage will stay together, even though it appears that I'm I'm going to get a big break from the illness. As far as I'm concerned, the reason it may end, actually has nothing to do with my being sick. He was truly wonderful for the two weeks he sat with me in the hospital after the cancer surgery. However, it takes almost nothing for him to cross over and be his horrible twin... I definitely do not plan to live with that kind of negativity in my life for very much longer!!Likely we will continue to share a house together; but, not a life!! Truthfully, at his age now (68) he should just be grateful he stillsucks wind; but, instead he just wants to win some kind of factitious war against me. Well, I've decided to take myself totally out of the fight and refuse to buy into any more of his ridiculous accusations. It's too stupid to even talk about....Gloria When I found out June of 2008 and went thru all the labwork etc. I told my husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a at the time I was diagnosed the biopsy showed only minimal damage so I have not gone thru treatment yet , but my husband told me he has not regretted one moment of our marriage. I recently had surgery to repair a herniated disk in my neck so I went thru spinal fusion two plates and six screws . I put a picture of the last xray . My husband was so good to me. He'd work all day then have to come home and do what I normally did. I consider myself very lucky to have him by my side. I also have fibro, restless leg syndrome and hypothyroid due to grave's disease.Debbie in Wa. state>> Dave,> Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thruhell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. > > You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. > > Glad to have you here with us.> Teri in Chicago> > > > > > ____________ _________ _________ __> From: Culp<dculp50@... >> > Sent: Wed, April 21, 2010 5:02:49 PM> Subject: Re: [ ] Welcome New Member> > > Hi Don and Everyone,> I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and myrelationship. Isaw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.> Good luck to all fighting this killer.> Regards,> Dave>Reply to sender |Reply to group |Reply via web post |Start a New TopicMessages in this topic(374) MARKETPLACEStay on top of your group activity without leaving the page you're on - Get the Toolbar now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Boy Don you're slow today... Sophie has already posted and it looks like I was the first to welcome her! Okay guys, send her some love.. she needs it right now. We've all been right where she is. Teri From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Fri, May 21, 2010 8:23:11 PMSubject: [ ] Welcome New Member I would like to welcome our newest member to the group: sophiesworld3 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Hello I have been reading this sight for years now I just never wanted to talk about it I just could not face what is happening to me but it is real so I think I need to see if there is any support groups in California in the Inland Empire Riverside Lake Elsinore. I have a lot of questions to ask does anyone else cough day and night? Vickie In a message dated 5/25/2010 5:11:03 P.M. Pacific Daylight Time, ludichrist2000@... writes: You chose to allow even though this message failed authentication Click to disallow | I would like to welcome our newest member to the group: brandostella Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years ago which was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed. I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don. Jan xx From: ludichrist2000@...Date: Tue, 25 May 2010 16:07:11 -0700Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hi Vickie, I'm glad you introduced yourself!! I think everyone on this list has gone through the shock and denial phase. Some just take longer to make a decision than others. I'm Debora, 53 year old Mom to 5, Nana to 7. I've had HCV for 38 years. I am genotype 2b. I am in pretty good overall health, which is amazing! I am just about to start treatment, just waiting to hear about Roche free meds. I have typical fatigue, some brain fog, and low grade pain in my right side. Tell the group more about your diagnosis, Genotype, viral count, symptoms, how long do you think you've had it, when were you told. On the cough, I've never heard that with HCV. But my aunt, who is around 70 has had a cough, night and day for 30 years. She is a health nut and has tried many things to help herself. She has found some relief with diet. If you want to talk with her, email me off list and I'll give her your address. She's online. Check in about yourself on this list. You know, by reading so long, that there are alot of good people sharing their stories and information. Love, Deb > > Hello I have been reading this sight for years now I just never wanted to > talk about it I just could not face what is happening to me but it is real > so I think I need to see if there is any support groups in California in the > Inland Empire Riverside Lake Elsinore. I have a lot of questions to ask > does anyone else cough day and night? > > Vickie > > > In a message dated 5/25/2010 5:11:03 P.M. Pacific Daylight Time, > ludichrist2000@... writes: > > You chose to allow even though this > message failed authentication > _Click to disallow_ > (https://www.boxbe.com/anno?tc=2936309858_1863481536 & action=authfail & set=false) | (https://www.boxbe.com/overview) > > > > > > > I would like to welcome our newest member to the group: > > > _brandostella_ (brandostella) > > Thank you for joining us. > Please say hi so we can all say hi back. > > love > don in ks > > To post on forum: > _ @HepCWebWarriHep_ > (http://us.mc505.mail./mc/compose?to= ) <--- click here > > Links Library: > _http://health.http://healhttp://heahttp://health.<Whttp://heal_ > (http://health.dir./group/ /links) <--- click here > > Our Sponcer: > _http://www.healthyhhttp://www_ (http://www.healthyhepper.com/) <--- > click here > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hi, I hope I am replying to the correct place as a new member. I am very grateful to have come across this group as it seems like a very nice forum. I recently found out about my Hep C status and to date have had a biopsy. The Dr said I have type 1 and that on a scale of 1-4 my liver status is 2. I am scheduled to start interferon and ribavirin treatments Sept 1. I'm kind of scared about that as I understand the side effects can be harsh. Brando in Houston From: truthseeker103 <truthseeker103@...> Sent: Wed, May 26, 2010 8:29:27 AMSubject: [ ] Re: Welcome New Member Hi Vickie, I'm glad you introduced yourself!! I think everyone on this list has gone through the shock and denial phase. Some just take longer to make a decision than others. I'm Debora, 53 year old Mom to 5, Nana to 7. I've had HCV for 38 years. I am genotype 2b. I am in pretty good overall health, which is amazing! I am just about to start treatment, just waiting to hear about Roche free meds. I have typical fatigue, some brain fog, and low grade pain in my right side. Tell the group more about your diagnosis, Genotype, viral count, symptoms, how long do you think you've had it, when were you told. On the cough, I've never heard that with HCV. But my aunt, who is around 70 has had a cough, night and day for 30 years. She is a health nut and has tried many things to help herself. She has found some relief with diet. If you want to talk with her, email me off list and I'll give her your address. She's online. Check in about yourself on this list. You know, by reading so long, that there are alot of good people sharing their stories and information. Love, Deb>> Hello I have been reading this sight for years now I just never wanted to > talk about it I just could not face what is happening to me but it is real > so I think I need to see if there is any support groups in California in the > Inland Empire Riverside Lake Elsinore. I have a lot of questions to ask > does anyone else cough day and night?> > Vickie> > > In a message dated 5/25/2010 5:11:03 P.M. Pacific Daylight Time, > ludichrist2000@... writes:> > You chose to allow even though this > message failed authentication > _Click to disallow_ > (https://www.boxbe.com/anno?tc=2936309858_1863481536 & action=authfail & set=false) | (https://www.boxbe.com/overview) > > > > > > > I would like to welcome our newest member to the group:> > > _brandostella_ (brandostella) > > Thank you for joining us.> Please say hi so we can all say hi back.> > love> don in ks> > To post on forum:> _ @HepCWebWarriHep_ > (http://us.mc505.mail./mc/compose?to= ) <--- click here> > Links Library:> _http://health.http://healhttp://heahttp://health.<Whttp://heal_ > (http://health.dir./group/ /links) <--- click here> > Our Sponcer:> _http://www.healthyhhttp://www_ (http://www.healthyhepper.com/) <--- > click here> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Welcome ,I was diagnosed in September 09 had my biopsy in January and am still waiting to see the liver specialist. I am hoping to start treatments soon.marie in CA"Life isn't about how to survive the storm, but how to dance in the rain" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hi Jan Whoever told you one shot is it, I dont think told you the truth. Several folks in the group have done treatment at least twice. This winter a Protease Inhibitor is being added to the I/R TX, and is supposed to double SVR rates in #1's. Im not sure the stats for #2-4's. They are even saying that it might cut TX time in half, but alot depends on that I think. Different people, genotypes = different protocals, and all that. I suggest that you get back to see a H-doc, and get retested, and move forward again. Change H-docs too. A lot of people have beat the Hep C, so theres no reason you shouldnt try to also. love don in ks From: Terri Gean <terrigean@...>Subject: RE: [ ] Welcome New Memberhepatitis Date: Wednesday, May 26, 2010, 2:15 AM Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years agowhich was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed.I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don.Jan xx From: ludichrist2000@...Date: Tue, 25 May 2010 16:07:11 -0700Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hello again all, I would like to tell you all that my 23 yr. old daughter’s blood work came back today with a thumbs up! I am not sure If I have this right but her readings went from a staggering 56,000 to 26. The doctors said this kind of result from taking treatment is rare and they are amazed that after only a short time these numbers have been drastically reduced. My prayer is that she stays on the right path and regains her health back. She will continue with the meds for a remainder of time needed but her prognosis is excellent. God was listening! Again You all are in my prayers and thoughts each day. Tina From: [mailto: ] On Behalf Of Christ Sent: Wednesday, May 26, 2010 11:30 AM Subject: RE: [ ] Welcome New Member Hi Jan Whoever told you one shot is it, I dont think told you the truth. Several folks in the group have done treatment at least twice. This winter a Protease Inhibitor is being added to the I/R TX, and is supposed to double SVR rates in #1's. Im not sure the stats for #2-4's. They are even saying that it might cut TX time in half, but alot depends on that I think. Different people, genotypes = different protocals, and all that. I suggest that you get back to see a H-doc, and get retested, and move forward again. Change H-docs too. A lot of people have beat the Hep C, so theres no reason you shouldnt try to also. love don in ks From: Terri Gean <terrigean@...> Subject: RE: [ ] Welcome New Member hepatitis Date: Wednesday, May 26, 2010, 2:15 AM Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years ago which was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed. I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don. Jan xx From: ludichrist2000@... Date: Tue, 25 May 2010 16:07:11 -0700 Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: @ groups. com <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hi Stella, Glad you found the group. It sounds like you're right on track with your tests and treatment scheduled. Some people who are in pretty good health are waiting for the triple combo which includes a new drug Teleprevir. That doubles the odds for type 1 SRV {sustained viral response.)I'm not sure when the FDA will approve that for the standard treatment. A year or something. Gloria, Genotype 1 from Vancouver, was on a trial with the triple tx and cleared the virus on her second round of treatment. There is info on the group files about diet and treatment and such. Everyone has a little different side effects journey through treatment. Fatigue, depression, flu like symptoms, nausea, headache, hair thinning, joint pain, and some have more serious sides. Look in the files for that information. And read the back posts, there are alot of personal stories. I called Roche Patient Assistance today to check on the status of my application. I am approved and they are sending my meds out this Friday. I'm starting Monday. So, I'll post my adventure with Pegasys to the group. A new girl, le, started treatment 8 weeks ago or so. She also posts her progress. Read, read, read and eat nutritious whole foods. Avoid the junk food and alcohol. You probably know already that drinking alcohol is the worst possible thing you can do having HCV. Keep posting. Love, Deb > > > > Hello I have been reading this sight for years now I just never wanted to > > talk about it I just could not face what is happening to me but it is real > > so I think I need to see if there is any support groups in California in the > > Inland Empire Riverside Lake Elsinore. I have a lot of questions to ask > > does anyone else cough day and night? > > > > Vickie > > > > > > In a message dated 5/25/2010 5:11:03 P.M. Pacific Daylight Time, > > ludichrist2000@ writes: > > > > You chose to allow even though this > > message failed authentication > > _Click to disallow_ > > (https://www.boxbe.com/anno?tc=2936309858_1863481536 & action=authfail & set=false) | (https://www.boxbe.com/overview) > > > > > > > > > > > > > > I would like to welcome our newest member to the group: > > > > > > _brandostella_ (brandostella) > > > > Thank you for joining us. > > Please say hi so we can all say hi back. > > > > love > > don in ks > > > > To post on forum: > > _ @HepCWebWarriHep_ > > (http://us.mc505.mail./mc/compose?to= ) <--- click here > > > > Links Library: > > _http://health.http://healhttp://heahttp://health.<Whttp://heal_ > > (http://health.dir./group/ /links) <--- click here > > > > Our Sponcer: > > _http://www.healthyhhttp://www_ (http://www.healthyhepper.com/) <--- > > click here > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hi Don, Thanks again for replying, At the time I had the best geno type they said that would probably work with treatment.Anyway I was very depressed when I found out it was still there and they said even if I paid for it, they wouldnt give it too me...I am alot better now no depression and feeling good so I probably could go back and see what they say.Yes I had heard that people where getting 2nd treatments.My Geno type is 3. Its great having this site anyway to see whats happening, Thanks everyone......Jan xxxxx And I really would love to get rid of it. From: ludichrist2000@...Date: Wed, 26 May 2010 08:30:15 -0700Subject: RE: [ ] Welcome New Member Hi Jan Whoever told you one shot is it, I dont think told you the truth. Several folks in the group have done treatment at least twice. This winter a Protease Inhibitor is being added to the I/R TX, and is supposed to double SVR rates in #1's. Im not sure the stats for #2-4's. They are even saying that it might cut TX time in half, but alot depends on that I think. Different people, genotypes = different protocals, and all that. I suggest that you get back to see a H-doc, and get retested, and move forward again. Change H-docs too. A lot of people have beat the Hep C, so theres no reason you shouldnt try to also. love don in ks From: Terri Gean <terrigeanhotmail>Subject: RE: [ ] Welcome New Memberhepatitis Date: Wednesday, May 26, 2010, 2:15 AM Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years agowhich was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed.I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don.Jan xx From: ludichrist2000 Date: Tue, 25 May 2010 16:07:11 -0700Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Meet local singles online. Browse profiles for FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 JanWelcome to the group!! Guess what?? Things have changed and there is an addition to the interferon/riba coming out on the market probably early next year!!The same thing happened to me 5 years ago, only I was on tx for the full 48 weeks. Yes, at 3 mos I was negative as well; but, at 48 weeks - it was back!! They figure now that the damn little dragon mutated itself and hid from the medication. My specialist also told me there was nothing else; but, maybe I'd live to a ripe old age!! Ya right!! It sure did push me into a lot of research on the subject, so I actually knew about the Inhibitor about 3 years.However, in early 2009, I was asked to participate in a Clinical Trial with the Protease Inhibitor. That biopsy came back showing that I was already in early stages of cirrhosis, so I was enormously grateful for the offer. So far I have been RNA negative since at least last October. I finished treatment on January 14th, so by July I will get the sorta/kinda last word.Gloria Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years ago which was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed. I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don. Jan xx From: ludichrist2000Date: Tue, 25 May 2010 16:07:11 -0700Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 BrandoActually, there is good news in here, believe it or not. Genotype 1's (so am I) may be the toughest of the geno types to conquer; but, folks are doing it constantly. The liver status means that the dragon has not chewed up most of your liver yet and in fact, could be fought back to very minor damage.Don't know if this helps; but, shortly after I first learned about my HepC, I was told that I was a 1b and already stage 3 (full bridging fibrosis). Now, I was a naive as a newborn when it came to anything about this treatment. Looking back now, I can see how I'm glad I didn't know because my brain couldn't be fooled into believing something that wasn't true.Absolutely everybody goes through treatment differently. I have yet to hear the same story twice. The only two side effects that I've heard the most often is the mind numbing fatigue and the itch. My nurses suggested that I pick a night, when the next couple of days could be unproductive days. Of course, for me that was a Friday night. Sure, I spent most every weekend in bed or at least living in my jammies; but, I was usually able to work for at least a few hours on the Monday and then the rest of the week.Remember, we are all here and honestly will hold your hand through the whole thing! Don't even think about sides, think to yourself - I'll beat this damn dragon right out of my body, it's not going to take me down!!!!Gloria Hi, I hope I am replying to the correct place as a new member. I am very grateful to have come across this group as it seems like a very nice forum. I recently found out about my Hep C status and to date have had a biopsy. The Dr said I have type 1 and that on a scale of 1-4 my liver status is 2. I am scheduled to start interferon and ribavirin treatments Sept 1. I'm kind of scared about that as I understand the side effects can be harsh. Brando in Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 TinaThat is absolutely excellent news!! How far into treatment is she??I hate to say; but, 56,000 is not really a staggering number. I was over 3,000,000 the first go around and up to something like 8,000,000 on the 2nd. However, today I am a 0!!Gloria Hello again all, I would like to tell you all that my 23 yr. old daughter’s blood work came back today with a thumbs up! I am not sure If I have this right but her readings went from a staggering 56,000 to 26. The doctors said this kind of result from taking treatment is rare and they are amazed that after only a short time these numbers have been drastically reduced. My prayer is that she stays on the right path and regains her health back. She will continue with the meds for a remainder of time needed but her prognosis is excellent. God was listening! Again You all are in my prayers and thoughts each day. Tina From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Christ Sent: Wednesday, May 26, 2010 11:30 AM Subject: RE: [ ] Welcome New Member Hi Jan Whoever told you one shot is it, I dont think told you the truth. Several folks in the group have done treatment at least twice. This winter a Protease Inhibitor is being added to the I/R TX, and is supposed to double SVR rates in #1's. Im not sure the stats for #2-4's. They are even saying that it might cut TX time in half, but alot depends on that I think. Different people, genotypes = different protocals, and all that. I suggest that you get back to see a H-doc, and get retested, and move forward again. Change H-docs too. A lot of people have beat the Hep C, so theres no reason you shouldnt try to also. love don in ks From: Terri Gean <terrigeanhotmail (DOT) com> Subject: RE: [ ] Welcome New Member hepatitis Date: Wednesday, May 26, 2010, 2:15 AM Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years ago which was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed. I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don. Jan xx From: ludichrist2000 Date: Tue, 25 May 2010 16:07:11 -0700 Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: @ groups. com <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 Yes sounds simmilar, but it hasnt got that bad yet I think. Well I hope you do hear good news. Boy, its a bloody pain. Thanks Cya Love Jan xxxxx From: gadamscan@...Date: Wed, 26 May 2010 21:27:18 -0700Subject: Re: [ ] Welcome New Member JanWelcome to the group!! Guess what?? Things have changed and there is an addition to the interferon/riba coming out on the market probably early next year!!The same thing happened to me 5 years ago, only I was on tx for the full 48 weeks. Yes, at 3 mos I was negative as well; but, at 48 weeks - it was back!! They figure now that the damn little dragon mutated itself and hid from the medication. My specialist also told me there was nothing else; but, maybe I'd live to a ripe old age!! Ya right!! It sure did push me into a lot of research on the subject, so I actually knew about the Inhibitor about 3 years.However, in early 2009, I was asked to participate in a Clinical Trial with the Protease Inhibitor. That biopsy came back showing that I was already in early stages of cirrhosis, so I was enormously grateful for the offer. So far I have been RNA negative since at least last October. I finished treatment on January 14th, so by July I will get the sorta/kinda last word. Gloria Thankyou Don for welcoming me to the group. My name is Jan and I have had the interferon treatment about 5 years agowhich was pretty awful. They told me it had gone and then the last test it was there..I was pretty upset, I wanted to have another try but they said I am only to have this one treatment. I havent been back so maybe things may have changed.I was only on it for 24 weeks, maybe they might have better treatments ...I dont know....Anyway thanks Don.Jan xx From: ludichrist2000Date: Tue, 25 May 2010 16:07:11 -0700Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: terrimelb2001 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Find it on Domain.com.au Need a new place to live? Australia's #1 job site If It Exists, You'll Find it on SEEK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Hi karensexy71,welcome to the group.maybe you can tell a little about yourself,a nd about your condition`-`glad to see you join us`-`I am ny and I live in Hawaii, I have been doing treatment for a little over 2 months.ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 I would like to welcome our newest member to the group: linda.ruth Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
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