Welcome New Member

[Guest guest]

A very warm Welcome, Dave!!Sounds like you have been able to get comfortable with your diagnosis and that is fantastic!! I was already a recovering alcoholic for over 15 yrs before I learned about my infection. So, as I always say, if the Higher Power had not seen fit to pave the path in recovery, I'd very likely not have even been here long enough for a diagnosis.I'm certainly not positive where my infection came from and fought my Dr's when they automatically used the crap garbage about, "even if you only used IV drugs once". I only tried that stupid activity about 6 times back when I was 21 or so and remember that we never shared needles, even back then. In fact, I remember getting a clean, unused needle from a

female friend (that was in her purse) and could TASTE the perfume that had spilled on it, for days. Instead, I believe that I contracted it from my ex-partner, simply because he had pierced his own ear (with the gun) and promptly turned around and pierced mine as well. I do remember getting extremely ill not long after that; but, who knew about Hep C back then???Actually, I just finished 48 weeks of a Clinical Trial on the new Trio that is probably due to be realeased later this fall. So far, I am HepC negative now. Just that the powers to be will not pronounce me SVR until probably this June. Also, I've become a little pet project of my Gastro's and his clinic now!! I'll probably be followed regarding my health status for many many years to come. Unfortunately, I finished off the trial meds and 2 weeks later was confirmed for liver cancer. So, we're on the path for a slightly different

battle.I'm fighting the smoking really hard. Quit on Valentine's Day and was feeling pretty proud that I could go days with just maybe a bummed drag on one. LOL can you tell that my smoking friends don't seem to have any difficulty sharing with me??? Anyway, I have to get back to that battle for sure tomorrow because I have slipped due to 2 heavy emotional happenings within less than a week. Plus, the only pain I suffer from is certainly not from my liver, since it has no nerves and thus can't hurt, but is from the Fibromyalgia. Crossed-fingers and all, I have not had a really bad flair up for some times now. However, I say that in whispered breath because we know that it can change in a click of the finers.So, keep your head up and keep the good attitude. By the way, I'm in Canada and away across the country, close to where the 2010 Olympics were just held. In fact, there is a

fairly large island off the coast of Vancouver and I live about 1/2 - 3/4 the way up.Gloria

Hi folks , was with HepC for a while so been around for a bit , am 55 now , am English & UK resident .

Diagnosed in '92 , when blood donor testing included HepC , probably infected pre '84 but how & when unknown .

Try to keep fit & eat well , want to prolong active lifestyle as much as poss , although I will drink on occassion , and I still smoke .

I feel I'm doing quite well in myself , despite bits of brain fog , fatigue , fibromyalgia , oh chuck in arthritis , broken ribs , knee & back problems [ broken ribs 2yrs ago , told they won't mend ] .

Use public access PC so only online 5hrs a week .

All the best , Dave .

From: Christ <ludichrist2000>WebWarriors grp < >Sent: Fri, 5 March, 2010 19:30:56Subject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

davethecamera

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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my hubby has HCV-1a and has just been diagnosed but it already is affecting our relationship!!! any thoughts for the partner, it's devastating to read all that go wrong, i fear the treatment will take him down. what can i do?

wifey

From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Tue, March 23, 2010 1:15:56 AMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

janarida

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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Good morning Wifey,He needs you more then anything now. My advice is to read as much as you can concerning HepC (Don post some really good information and people like Gloria who has been through so much..she has good advice) so you can try to understand how he is feeling and be there to assist him when he needs you most. Put yourself in his shoes, say you need him more then anything for you just found out you have a serious illness and yet you notice the relationship is breaking apart, you are starting to feel more alone then ever, you have to admit, that is a sad thought to even imagine!I also have Geno Type 1a and my husband has been wonderful and I am very thankful to have him with me in this journey. I have

learned that we need to forget the past,,it is done, can't do nothing about it but we need to pay attention to the present and future and be there for our loved ones when they need us most.I have a note here that I wish to share with you and everyone else here for that matter for it is so true,,,we always think of the worst and all of us need to have gratitude for what we have. Enjoy this message and all I can say is try your hardest to be his friend and lover and do remember, don't put someone down unless you have been there..we all do it and yet we really have no idea how they feel:Be as simple as a child: always see the best in everyone and with good intention, excuse the one who hurts you, seeing whatever harm he does as the result of some temptation.Never let evil talk pass your lips; say only the good things

people need to hear, things that will really help them. Do nothing that will sadden the Holy Spirit with whom you were sealed against the day of redemption. Get rid of all bitterness, all passion and anger, harsh words, slander, and malice of every kind. In place of these, be kind to one another, compassionate and mutually forgiving, just as God has forgiven you in Christ.Love,SheilaFrom: loren banducci <rwshiver@...> Sent: Tue, March 23, 2010 7:46:08 AMSubject: Re: [ ] Welcome New Member

my hubby has HCV-1a and has just been diagnosed but it already is affecting our relationship! !! any thoughts for the partner, it's devastating to read all that go wrong, i fear the treatment will take him down. what can i do?

wifey

From: Christ <ludichrist2000>WebWarriors grp < >Sent: Tue, March 23, 2010 1:15:56 AMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

janarida

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Loren This disease is equal in it's destruction in a relationship. It is just as hard on the partner, as it is on the sick person. I certainly know this from too many years of experience. I have nothing but huge admiration for any spouse that has the stamina to stay through the virus' numerous emotional twists, if not the physical. If your husband is the type of man, like my husband, he'd rather push you right out of his life because he's afraid that you will leave him anyway. He's very scared that he can not hold up his end of your lives together - such as being the bread winner. He's very scared that he's going to become a burden on you and that is very frightening.Even though my hubby is actually the care giver, he's having an awful

time accepting the next leg of my liver disease. It has brought out all his character defects and then some. He'd rather push me, to tell him to get out of this home, so that he can run from all of this and yet make it my fault. Slowly, oh so slowly, he's trying to understand himself, so that he can best deal with me. It has pushed us to a counsellor and we will have one more appointment next week, before I go for the first procedure on my cancer. However, I need him to understand clearly, that I do not have the emotional strength to do my magic and make everything that is uncomfortable in his life, all better!!!Please, your husband actually needs you more right now than at any other period of your relationship. If you were to link into this site livercirrhosissupport there are a number of women there than are just beyond imagination for what they have

learned about care giving a husband. Don't let the name scare you off either, most of them are just there about liver disease of any type.Gloria my hubby has HCV-1a and has just been diagnosed but it already is affecting our relationship! !! any thoughts for the partner, it's devastating to read all that go

wrong, i fear the treatment will take him down. what can i do? wifey From: Christ <ludichrist2000>WebWarriors grp < >Sent: Tue, March 23, 2010 1:15:56 AMSubject: [ ] Welcome New Member I would like to welcome our newest member to the

group: janarida Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here

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[Guest guest]

LorenYou continue to be heard also!!! This will be every bit as bad on you. Hopefully, you got my earlier e-mail.GloriaFrom: loren banducci <rwshiver@...> Sent: Tue, March 23, 2010 4:15:12 PMSubject: Re: [ ] Welcome New

Member

i think you miss understand my concerns im there 10000% but i do see the chances of problems because we ar both scared. im studying everything i can. he won't need for a moment i love this man and i don't want to see him suffer. i was asking about help for the partner

thank

wifey

From: sheila slater <a_nc_female> Sent: Tue, March 23, 2010 7:44:06 AMSubject: Re: [ ] Welcome New Member

Good morning Wifey,He needs you more then anything now. My advice is to read as much as you can concerning HepC (Don post some really good information and people like Gloria who has been through so much..she has good advice) so you can try to understand how he is feeling and be there to assist him when he needs you most. Put yourself in his shoes, say you need him more then anything for you just found out you have a serious illness and yet you notice the relationship is breaking apart, you are starting to feel more alone then ever, you have to admit, that is a sad thought to even imagine!I also have Geno Type 1a and my husband has been wonderful and I am very thankful to have him with me in this journey. I have learned that we need to forget the past,,it is done, can't do nothing about it

but

we need to pay attention to the present and future and be there for our loved ones when they need us most.I have a note here that I wish to share with you and everyone else here for that matter for it is so true,,,we always think of the worst and all of us need to have gratitude for what we have. Enjoy this message and all I can say is try your hardest to be his friend and lover and do remember, don't put someone down unless you have been there..we all do it and yet we really have no idea how they feel:Be as simple as a child: always see the best in everyone and with good intention, excuse the one who hurts you, seeing whatever harm he does as the result of some temptation.Never let evil talk pass your lips; say only the good things people need to hear, things that will really help them. Do nothing that will

sadden the

Holy Spirit with whom you were sealed against the day of redemption. Get rid of all bitterness, all passion and anger, harsh words, slander, and malice of every kind. In place of these, be kind to one another, compassionate and mutually forgiving, just as God has forgiven you in Christ.Love,Sheila

From: loren banducci <rwshiver (DOT) com> Sent: Tue, March 23, 2010 7:46:08 AMSubject: Re: [ ] Welcome New Member

my hubby has HCV-1a and has just been diagnosed but it already is affecting our relationship! !! any thoughts for the partner, it's devastating to read all that go wrong, i fear the treatment will take him down. what can i do?

wifey

From: Christ <ludichrist2000>WebWarriors grp < >Sent: Tue, March 23, 2010 1:15:56 AMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

janarida

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

JimThe tests are pretty reliable and likely if you tried a new Gastro, he'd be using the same lab anyway.Big suggestion, make sure that you get a copy of that lab report and continue to do so from now on. I just responded to le about it, so you'll see why.Gastro will likely want you to go for a liver biopsy if your labs indicate anything at this point. Whether treatment is suggested or not, go for that biopsy. It's the most important test of them all!! Likely, you have not been referred to a Gastro, if it was not already thought it could be time.If at all possible, take the most important person in your life to those appointments from now on.... They can help to hear what is being said,

as well as yourself, so that not much can be missed. Sometimes it's just hard to take in all of the Dr. talk. I did it alone during my 1st treatment; but, I had the awesome help of HepC Nurses in my area that could decipher anything I needed. All my labs went to them as well, so I had three professional set of eyes on the labs, as well as my own inexperienced set at that time.Definitely you are not alone!!! You are one of millions in the United States alone and over a billion in the world. But, this group will help you every step of the way.Ask absolutely anything you wish - there is nothing stupid about any question, except if you don't ask.Luv Gloria in Canada

Hi Everybody

I'm brand new to the club, so new, I still have a week, before I see my gastro for the first time.

I'm total at awe that this club exists and there are so many members, that are willing to share and help.

We're never alone, are we.

Anybody have any thoughts or suggestions, on my first gastro appointment.

Wondering if a second opinion is good in this situation or is the test pretty reliable.

peace

jc

[ ] Welcome New Member

I would like to welcome our newest member to the group:

jcmealey

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Huge welcome from me as well - Gloria I love your phrase at the end. Just gotta copy that down and put it up here close to my computer!!!

Hi all! Hope I can bring some perspective and insights that are new to the group!SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

Hi Steve, Glad to meet you. I am from Kansas. I have had Hep C for around 30 years from a Tattoo or two or three or four. I just found out a month or two ago that I have this. I am genotype 1 stage 2. I have been waiting for a new drug my doctor was wanting me to wait for. I am pretty sure it was the Protease Inhibitor. Anyway welcome to the family. Glad to have you here with all of us.

nbsp;

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From: schandler21@... <schandler21@...>Subject: [ ] Re: Welcome New Member Date: Friday, March 26, 2010, 3:18 PM

Hi all! Hope I can bring some perspective and insights that are new to the group!SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett

[Guest guest]

Welcome Jim,

I am from Kansas. Matter a fact I live real close to Don. I wish you luck in your new adventure. I am Geno Type 1 stage 2. I have been waiting on a med my doc wanted me to wait for. I was pretty scared when I first found out and still am to a certain amount. This group has been wonderful for me. They have taught me so much and been so loving and kind to me and are always here for everyone. So know that we are here all the time anytime for you and any questions we don't know we will sure try to come up with info on for you. Don and Pam and lots of the others are just very experienced at getting this information. They also know how to sort the not so good info from the info that we need to know about. That is important. So the best thing from the beginning is to have a positive attitude and relax. I know it sounds hard but it will be easier for you if you can. Hugs

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From: jim mealey <jmealeycitlink (DOT) net>Subject: Re: [ ] Welcome New Member Date: Friday, March 26, 2010, 12:58 PM

Hi Everybody

I'm brand new to the club, so new, I still have a week, before I see my gastro for the first time.

I'm total at awe that this club exists and there are so many members, that are willing to share and help.

We're never alone, are we.

Anybody have any thoughts or suggestions, on my first gastro appointment.

Wondering if a second opinion is good in this situation or is the test pretty reliable.

peace

jc

[ ] Welcome New Member

I would like to welcome our newest member to the group:

jcmealey

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Jim,Yes, I agree with Gloria, bring a copy of your lab work home each time and you honestly do have everyone from this group on your side..we have eyes to read your messages and fingers to type a response. If you need to speak to someone verbally,,just ask.SheilaFrom: Gloria <gadamscan@...> Sent: Fri, March 26, 2010 11:42:58 PMSubject: Re: [ ] Welcome New Member

JimThe tests are pretty reliable and likely if you tried a new Gastro, he'd be using the same lab anyway.Big suggestion, make sure that you get a copy of that lab report and continue to do so from now on. I just responded to le about it, so you'll see why.Gastro will likely want you to go for a liver biopsy if your labs indicate anything at this point. Whether treatment is suggested or not, go for that biopsy. It's the most important test of them all!! Likely, you have not been referred to a Gastro, if it was not already thought it could be time.If at all possible, take the most important person in your life to those appointments from now on.... They can help to hear what is being said,

as well as yourself, so that not much can be missed. Sometimes it's just hard to take in all of the Dr. talk. I did it alone during my 1st treatment; but, I had the awesome help of HepC Nurses in my area that could decipher anything I needed. All my labs went to them as well, so I had three professional set of eyes on the labs, as well as my own inexperienced set at that time.Definitely you are not alone!!! You are one of millions in the United States alone and over a billion in the world. But, this group will help you every step of the way.Ask absolutely anything you wish - there is nothing stupid about any question, except if you don't ask.Luv Gloria in Canada

Hi Everybody

I'm brand new to the club, so new, I still have a week, before I see my gastro for the first time.

I'm total at awe that this club exists and there are so many members, that are willing to share and help.

We're never alone, are we.

Anybody have any thoughts or suggestions, on my first gastro appointment.

Wondering if a second opinion is good in this situation or is the test pretty reliable.

peace

jc

[ ] Welcome New Member

I would like to welcome our newest member to the group:

jcmealey

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Hey Teri, Cinder here. Glad to see you here. Hugs Getting ready for sleep. Just got off work. Ready for long trip to Kansas City tomorrow for Rhematoid arthritis doctor to see me. 4 hour drive there one way and 4 hour back. They said about 3 hours appt. Glad to get it over. Well good night. Better do my vampire thing and turn in since it is daylight. Cinder

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From: Teri Gottlieb <theresagottlieb@...>Subject: Re: [ ] Welcome New Member Date: Tuesday, April 6, 2010, 5:43 PM

Hi everyone! My name is Teri, I was diagnosed with Hep C in 2004. By the time they found it I had been living with that virus for 25 years. Got infected thru a blood transfusion when I had my son in 1980. I went thru treatment with Peg-Interfuron and Ribavirin for 48 weeks 2005-2006 and am currently still SVR. Treatment was rough but I came out on the other side. So HI everybody! Teri

From: Christ <ludichrist2000>WebWarriors grp < >Sent: Tue, April 6, 2010 9:28:03 AMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

theresagottlieb

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Cinder you sound like me.... awake when it's dark and asleep when it's light! I was glad to see your posts when I signed on... Good luck tomorrow and let me know how it goes! Sending you hugs!TeriFrom: Cinder <datagrey@...> Sent: Wed, April 7, 2010 9:25:46

AMSubject: Re: [ ] Welcome New Member

Hey Teri, Cinder here. Glad to see you here. Hugs Getting ready for sleep. Just got off work. Ready for long trip to Kansas City tomorrow for Rhematoid arthritis doctor to see me. 4 hour drive there one way and 4 hour back. They said about 3 hours appt. Glad to get it over. Well good night. Better do my vampire thing and turn in since it is daylight. Cinder

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From: Teri Gottlieb <theresagottlieb>Subject: Re: [ ] Welcome New Member Date: Tuesday, April 6, 2010, 5:43 PM

Hi everyone! My name is Teri, I was diagnosed with Hep C in 2004. By the time they found it I had been living with that virus for 25 years. Got infected thru a blood transfusion when I had my son in 1980. I went thru treatment with Peg-Interfuron and Ribavirin for 48 weeks 2005-2006 and am currently still SVR. Treatment was rough but I came out on the other side. So HI everybody! Teri

From: Christ <ludichrist2000>WebWarriors grp < >Sent: Tue, April 6, 2010 9:28:03 AMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

theresagottlieb

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

I sure will. I dread the long car trip. I am doing it all without pain meds. I want to be good and hurting by the time I get there. So no pain meds tonight or tomorrow till I get done with appt. Then I will take some in the car and zonk out on the way home maybe. My hubby is back on track with mental supporting me again it looks like. I had a talk with him and he kind of blew then appollogised this morning when I was ready to tell him not to worry I would just do tx alone and he could do his thing. I told him I had been doing what the doctor told me to do. Get a support system. She wanted my husband to know what the heck was going on. He did not want to know really. He said he did not understand it so he did not need to know. I told him he needed to hear it from them so when I pay this or that or buy this or that he knows why. Or when I show certain

symptoms he can help if needed. He may find me in a coma and not know what to do. I will have to train him ahead. Call my hep doc if you find me like this. Get me to the emergency room even if your step brother is the doctor manning it. If he wants me to live he may have to. Well got to run to town quick and get a hard copy of dr. referral and pick up dinner. Hugs Glad to see you here Terri. Your the bomb. Cinder

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From: Teri Gottlieb <theresagottlieb>Subject: Re: [ ] Welcome New Member Date: Tuesday, April 6, 2010, 5:43 PM

Hi everyone! My name is Teri, I was diagnosed with Hep C in 2004. By the time they found it I had been living with that virus for 25 years. Got infected thru a blood transfusion when I had my son in 1980. I went thru treatment with Peg-Interfuron and Ribavirin for 48 weeks 2005-2006 and am currently still SVR. Treatment was rough but I came out on the other side. So HI everybody! Teri

From: Christ <ludichrist2000>WebWarriors grp < >Sent: Tue, April 6, 2010 9:28:03 AMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

theresagottlieb

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Hi ,

I would like to unsubscribe but when I click on the link, it is going thru my daughters email for some reason. Can you please unscubscribe me please?

Thanks

[ ] Welcome New Member

I would like to welcome our newest member to the group:

alyssakadow

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

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[Guest guest]

Hello everyone my name is marie and I am new here found out I have hepatitis

c and am trying to get as much support and information I can thank you...

>

> I would like to welcome our newest member to the group:

>  

>

>

>

>

> annamariestitt

>  

> Thank you for joining us.

> Please say hi so we can all say hi back.

>  

> love

> don in ks

>  

> To post on forum:

>   <--- click here

>  

> Links Library:

> http://health.dir./group/ /links  <--- click

here

>  

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>  

>  

>

[Guest guest]

Hi Marie

Welcome welcome

Good to meet you.

This is a great group of folks.

Ask any questions you have, and we will try to provide you with answers and support.

No question is trivial or dumb.

No problem cannot be addressed.

We have folks in all stages of HCV, and a bunch of experiance to share.

I found out 2 years ago I have HCV. I am a genotype 1B.

I havent done treatment yet.

Others here are now in treatment, or have finished treatment.

Some like me are facing TX, or dont want to do TX.

We discuss conventional and alternative treatments, and much more.

We have a Links Library chock full of HCV websites and info.

http://health.dir./group/ /links <--- click here

I post the Daily HCV News Updates and Articles for everyone to keep current.

Please, ask away, and tell us a bit about yourself.

We all share whatever we can and feel to, because info is our best tool to fight this Dragon.

This way we can help each other.

Marie, your not alone, we have your back.

love

don in ks

From: Rain <annamariestitt@...>Subject: [ ] Re: Welcome New Member Date: Friday, April 16, 2010, 11:39 PM

Hello everyone my name is marie and I am new here found out I have hepatitis c and am trying to get as much support and information I can thank you...>> I would like to welcome our newest member to the group:> > > > > > annamariestitt> > Thank you for joining us.> Please say hi so we can all say hi back.> > love> don in ks> > To post on forum:> <--- click here>

> Links Library:> http://health.dir./group/ /links <--- click here> > Our Sponcer:> http://www.healthyhepper.com/ <--- click here> > >------------------------------------

[Guest guest]

Hi Don and Everyone,

I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.

Good luck to all fighting this killer.

Regards,

Dave

 

On Wed, Apr 21, 2010 at 3:19 PM, Christ <ludichrist2000@...> wrote:

 

I would like to welcome our newest member to the group:

 

jaydeecee

 

Thank you for joining us.

Please say hi so we can all say hi back.

 

love

don in ks

 

To post on forum:

  <--- click here

 

Links Library:

http://health.dir./group/ /links  <--- click here

 

Our Sponcer:

http://www.healthyhepper.com/  <--- click here

 

 

[Guest guest]

Dave,Welcome to the group. I am so sorry to hear that this awful dragon has cost you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this monster inside me for 25 years stirring up commotion and causing damage before I was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on the other side and am still SVR but, I lost my home, 2 cars, my ability to earn a lucrative income. I gained a sense of guilt, depression and Fibromyalgia. Luckily my husband

stuck by me thru this whole endeavor but I can tell he is not pleased with the way things turned out. Granted he will never tell me that nor do I think he will leave me. But the poor man got in sickness, for worse and for poorer. We had just been married a short 3 years when I was diagnosed. He's gone thru hell and back with me. For the better part of our marriage, I have been sick. Not what I expected either. You are in a great place for support and information. Let us know what you need, questions you might have or if you just feel like venting, have at it. We've all done it. This is truly a safe place where everyone is

supportive. Don is amazing and finds a lot of answers for us. Some of us have medical backgrounds, I am a former laboratory technologist so I understand the labs. The parts I can remember anyway! I do have current lab books for lab values here as well. We are all here to help each other and we do a pretty good job of it. We also tend to get a little off topic on occasion and crack each other up. Sometimes we just need to laugh. Glad to have you here with us.Teri in ChicagoFrom: Culp <dculp50@...> Sent: Wed, April 21, 2010 5:02:49 PMSubject: Re: [ ] Welcome New Member

Hi Don and Everyone,

I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.

Good luck to all fighting this killer.

Regards,

Dave

[Guest guest]

Good luck to you too Dave and Welcome to the group! I am Cheryl, my daughter and I were both diagnosed last year. I have had it over 25 years and she has had it from birth almost 17 years. We are both 1a and are waiting for the new tx to come out with the added inhibitor. You will find much support and information here.

Again, it's wonderful to meet you!

Cheryl

Re: [ ] Welcome New Member

Hi Don and Everyone,

I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.

Good luck to all fighting this killer.

Regards,

Dave

On Wed, Apr 21, 2010 at 3:19 PM, Christ <ludichrist2000 > wrote:

I would like to welcome our newest member to the group:

jaydeecee

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

To post on forum:

<--- click here

Links Library:

http://health.dir./group/ /links <--- click here

Our Sponcer:

http://www.healthyhepper.com/ <--- click here

[Guest guest]

Hey Dave,

Im a non-responder 3a, what trial is it? I go to Hopkins and ready to restart tx they're bumping riba and throwing in a cholestrol med that's supposed to help, but if your doing something better please share. ummm 11 mos of maybe. pam

Re: [ ] Welcome New Member

Hi Don and Everyone,

I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was diagnosed with liver cancer 18 months ago and was treated with radio frequency abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin last June but became a non responder week 12 and needed a hemoglobin transfusion during which I caught c-diff in the hospital. just getting over that now and can see the HCV is getting worse and I have had episodes of varaces lately. So far it only cost me my business, my house and my relationship. I saw another hepatologist that will get me into a clinical trial for 3a that with a supplemental shot can reduce treatment to 12 weeks but not starting until 2011.

Good luck to all fighting this killer.

Regards,

Dave

On Wed, Apr 21, 2010 at 3:19 PM, Christ <ludichrist2000 > wrote:

I would like to welcome our newest member to the group:

jaydeecee

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

To post on forum:

<--- click here

Links Library:

http://health.dir./group/ /links <--- click here

Our Sponcer:

http://www.healthyhepper.com/ <--- click here

[Guest guest]

Hi Dave,

Welcome to the best HCV group:) So sorry to hear of your progression.

But do tell about the radio frequency abolation. That is so fascinating.

Love, Deb

>

> >

> >

> > I would like to welcome our newest member to the group:

> >

> > jaydeecee <jaydeecee>

> >

> > Thank you for joining us.

> > Please say hi so we can all say hi back.

> >

> > love

> > don in ks

> >

> > To post on forum:

> >

<http://mc/compose?to= @groups\

..com>

> > <--- click here

> >

> > Links Library:

> > http://health.dir./group/ /links <--- click

> > here

> >

> > Our Sponcer:

> > http://www.healthyhepper.com/ <--- click here

> >

> >

> >

> >

> >

>

[Guest guest]

Hi Deb,

Here is a link that describes it in detail, it was very effective for me but you are awake throughout the proceedure and have to breathe and stop at intervals. They inseted the probe just above my belly button and as the probe got closer to my liver, the pain was overwhelming. I started to convulse so they flooded me with morphin and had 8 people holding me down so I don't remember the rest of it. A transplant specialist reviewed the operation with me from his computer and we had a laugh after the fact. The probe probably is not bad if your inserting it into prime rib but I am mostly grizzle

in the liver. Hope this helps.http://www.radiologyinfo.org/en/info.cfm?pg=rfa

 

Regards,

Dave

 

On Thu, Apr 22, 2010 at 11:43 AM, truthseeker103 <truthseeker103@...> wrote:

 

Hi Dave, Welcome to the best HCV group:) So sorry to hear of your progression.But do tell about the radio frequency abolation. That is so fascinating. Love, Deb > > >> >> > I would like to welcome our newest member to the group:> >> > jaydeecee <jaydeecee> > >> > Thank you for joining us.> > Please say hi so we can all say hi back.> >> > love> > don in ks> >> > To post on forum:

> > <http://mc/compose?to= > > > <--- click here> >> > Links Library:> > http://health.dir./group/ /links <--- click

> > here> >> > Our Sponcer:> > http://www.healthyhepper.com/ <--- click here> >> >> >> >

> >>

[Guest guest]

When I found out June of 2008 and went thru all the labwork etc. I told my

husband of 25 yrs that I was sorry I was costing him so much . I am genotype 1a

at the time I was diagnosed the biopsy showed only minimal damage so I have not

gone thru treatment yet , but my husband told me he has not regretted one moment

of our marriage. I recently had surgery to repair a herniated disk in my neck so

I went thru spinal fusion two plates and six screws . I put a picture of the

last xray . My husband was so good to me. He'd work all day then have to come

home and do what I normally did. I consider myself very lucky to have him by my

side. I also have fibro, restless leg syndrome and hypothyroid due to grave's

disease.

Debbie in Wa. state

>

> Dave,

> Welcome to the group. I am so sorry to hear that this awful dragon has cost

you so much. I can relate. I was diagnosed in 2004 with type 1A. I had this

monster inside me for 25 years stirring up commotion and causing damage before I

was diagnosed. I started treatment in 2005 for 48 weeks. Luckily I came out on

the other side and am still SVR but, I lost my home, 2 cars, my ability to earn

a lucrative income. I gained a sense of guilt, depression and Fibromyalgia.

Luckily my husband stuck by me thru this whole endeavor but I can tell he is not

pleased with the way things turned out. Granted he will never tell me that nor

do I think he will leave me. But the poor man got in sickness, for worse and

for poorer. We had just been married a short 3 years when I was diagnosed.

He's gone thru hell and back with me. For the better part of our marriage, I

have been sick. Not what I expected either.

>

> You are in a great place for support and information. Let us know what you

need, questions you might have or if you just feel like venting, have at it.

We've all done it. This is truly a safe place where everyone is supportive.

Don is amazing and finds a lot of answers for us. Some of us have medical

backgrounds, I am a former laboratory technologist so I understand the labs.

The parts I can remember anyway! I do have current lab books for lab values

here as well. We are all here to help each other and we do a pretty good job of

it. We also tend to get a little off topic on occasion and crack each other up.

Sometimes we just need to laugh.

>

> Glad to have you here with us.

> Teri in Chicago

>

>

>

>

>

> ________________________________

> From: Culp <dculp50@...>

>

> Sent: Wed, April 21, 2010 5:02:49 PM

> Subject: Re: [ ] Welcome New Member

>

>

> Hi Don and Everyone,

> I am a 3a genotype diagnosed in the mid 1990's and am level 4 cirrhosis. I was

diagnosed with liver cancer 18 months ago and was treated with radio frequency

abolation that cured it within 2 months of diagnosis. I tried pegatron/rbavirin

last June but became a non responder week 12 and needed a hemoglobin transfusion

during which I caught c-diff in the hospital. just getting over that now and can

see the HCV is getting worse and I have had episodes of varaces lately. So far

it only cost me my business, my house and my relationship. I saw another

hepatologist that will get me into a clinical trial for 3a that with a

supplemental shot can reduce treatment to 12 weeks but not starting until 2011.

> Good luck to all fighting this killer.

> Regards,

> Dave

>

[Guest guest]

That's a really interesting procedure for liver tumors. I've often wondered why

they couldn't bag our whole liver and heat it to kill the virus. I read

somewhere where they did contain the liver for chemo treatment so the drugs

didn't have to go through the body.

Thanks for sending that link.

Love, Deb

>

> Hi Deb,

> Here is a link that describes it in detail, it was very effective for me but

> you are awake throughout the proceedure and have to breathe and stop at

> intervals. They inseted the probe just above my belly button and as the

> probe got closer to my liver, the pain was overwhelming. I started to

> convulse so they flooded me with morphin and had 8 people holding me down

> so I don't remember the rest of it. A transplant specialist reviewed the

> operation with me from his computer and we had a laugh after the fact. The

> probe probably is not bad if your inserting it into prime rib but I am

> mostly grizzle

> in the liver. Hope this helps.

>

> http://www.radiologyinfo.org/en/info.cfm?pg=rfa

>

> Regards,

> Dave

>

[Guest guest]

Welcome lisakg49. This website is a wonderful place to be associated with. Everyone is very dear and we are all here for the same reason. Any questions, there are many here to answer. Once again...welcome!SheilaFrom: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Thu, April 22, 2010 5:20:06 PMSubject: [ ] Welcome New Member

I would like to welcome our newest member to the group:

lisakg49

Thank you for joining us.

Please say hi so we can all say hi back.

love

don in ks

To post on forum:

<--- click here

Links Library:

http://health.dir./group/ /links <--- click here

Our Sponcer:

http://www.healthyhepper.com/ <--- click here