Lois

[Guest guest]

Lois, you are a kind, loving sister, and a funny and helpful email friend. Love and blessings, Pat K

Re: -- Good weekend!

Pat,

My Parents were good county folk. I know they would have wanted me to do what I could for her. I took her a pocketbook up to her...... She loves to hod them. Lois

Re: -- Good weekend!

Get ready to win! You could score awesome prizes all summer long on AOL.

[Guest guest]

Thanks Pat! She is eating at the Hosp! I am going to see her tomorow and hopefully will know more about where she will go tomorow. We have a place in mind.

I stopped by the "other" place that she was at for 4 hours. The head lady wouldn't even look at me and when I asked For Betty's clothers she got on the phone and said "Betty's daugther is here to get her clothes!!!!!!!!! I said "She is NOT my mother-she is my sister! And you all are in big trouble for not being prepaired for Betty but saying that you was! Then I stromed out beofre I went off worst. Lois

Re: Lois

[Guest guest]

Good for you Lois!! I pray you find a good place for your sister; it is not easy.

How was JJ today? Love and blessings, Pat K

Re: Lois

Thanks Pat! She is eating at the Hosp! I am going to see her tomorow and hopefully will know more about where she will go tomorow. We have a place in mind.

I stopped by the "other" place that she was at for 4 hours. The head lady wouldn't even look at me and when I asked For Betty's clothers she got on the phone and said "Betty's daugther is here to get her clothes!!!!!!!!! I said "She is NOT my mother-she is my sister! And you all are in big trouble for not being prepaired for Betty but saying that you was! Then I stromed out beofre I went off worst. Lois

Re: Lois

Get ready to win! You could score awesome prizes all summer long on AOL.

[Guest guest]

Pat,

J has been doing pretty good. J was suppose to start the day program on July 1st but they are having problems getting his money thing thru the DDA up and running. I went in there today and got "tough" with them and said Look! We have been working for 3 months to get J use to the new place he is going(Awakeings) and now you are delaying it! And I have to have J up and running before Aug 19th because I go back to work then. She said she will find out what is going on and get back this week. They called at the end of the day and left me a message telling me to call them tomorow.

Betty is still at the hosp......We are still waiting to find out were she will go. Lois

Re: Lois

[Guest guest]

I know that is so frustrating!! This is 20 days later and they haven't gotten

it done. Well, now that you have gotten "tough" hopefully they will get things

done before you have to go back to work. Is this upsetting J? Bless his heart.

Love and blessings, Pat K

Re: Lois

Pat,

J has been doing pretty good. J was suppose to start the day program on July 1st but they are having problems getting his money thing thru the DDA up and running. I went in there today and got "tough" with them and said Look! We have been working for 3 months to get J use to the new place he is going(Awakeings) and now you are delaying it! And I have to have J up and running before Aug 19th because I go back to work then. She said she will find out what is going on and get back this week. They called at the end of the day and left me a message telling me to call them tomorow.

Betty is still at the hosp......We are still waiting to find out were she will go. Lois

Re: Lois

Get ready to win! You could score awesome prizes all summer long on AOL.

[Guest guest]

Pat,

J LOVES being off! haha! I got a "call" today.......They have things "worked" out for J! haha! I was known as the "mom from Hell" at the BOE..........I guess I have to be like that for his adult planning now. They know I have a history of being tough. I ran the ASA here for 13 years. I see Senator Munson tomorow to talk about adults getting more services.

Betty will at least be in the Hosp for a few more days and the social worker there is working with me to try and get her at a place that will be best for her. Lois

Re: Lois

[Guest guest]

Pat,

J LOVES being off! haha! I got a "call" today.......They have things "worked" out for J! haha! I was known as the "mom from Hell" at the BOE..........I guess I have to be like that for his adult planning now. They know I have a history of being tough. I ran the ASA here for 13 years. I see Senator Munson tomorow to talk about adults getting more services.

Betty will at least be in the Hosp for a few more days and the social worker there is working with me to try and get her at a place that will be best for her. Lois

Re: Lois

[Guest guest]

love it, "Mom from Hell". When I was the "Grandmother from Hell" they wouldn't let me come back in the school building. LOL, LOL. I have prayed for a good place for Betty. Love and blessings, Pat K

Re: Lois

Pat,

J LOVES being off! haha! I got a "call" today.......They have things "worked" out for J! haha! I was known as the "mom from Hell" at the BOE..........I guess I have to be like that for his adult planning now. They know I have a history of being tough. I ran the ASA here for 13 years. I see Senator Munson tomorow to talk about adults getting more services.

Betty will at least be in the Hosp for a few more days and the social worker there is working with me to try and get her at a place that will be best for her. Lois

Re: Lois

Get ready to win! You could score awesome prizes all summer long on AOL.

[Guest guest]

Pat,

We are 2 of a kind! haha! I saw the senator today. J has gotten his day program and senator munson is going to call and find out about getting me respite hours. He said they will call me on Monday.

Still waiting to hear about Betty. Thanks for praying for her. They said she had a good night. Lois

Re: Lois

[Guest guest]

That's great; thank you God for giving Lois so much tenacity!! LOL, Pat K

Re: Lois

Pat,

We are 2 of a kind! haha! I saw the senator today. J has gotten his day program and senator munson is going to call and find out about getting me respite hours. He said they will call me on Monday.

Still waiting to hear about Betty. Thanks for praying for her. They said she had a good night. Lois

Re: Lois

[Guest guest]

We had to take her back to the place she was at today BUT when I got there they had put "pigtails" in her hair and she was eating!!! She saw me and said "Look at you"!! hahaha!! I told her "no-Look at you"!! When they got her back today I called them and told them they had Better keep feeding her food! The Dr. up here wrote a paper telling them what to do. I hate that she is about 2 hours from me. It makes it hard to get there.

J and my grandson and I went bike riding tonight. J LOVES to bike ride. Lois

Re: Lois

[Guest guest]

Lois...you're so strong Good sister, good mom --- and obviously a really fun Granmom!!!!!

e

From: lois noland <jlois@...>autism Sent: Friday, July 24, 2009 8:22:14 PMSubject: Re: Lois

We had to take her back to the place she was at today BUT when I got there they had put "pigtails" in her hair and she was eating!!! She saw me and said "Look at you"!! hahaha!! I told her "no-Look at you"!! When they got her back today I called them and told them they had Better keep feeding her food! The Dr. up here wrote a paper telling them what to do. I hate that she is about 2 hours from me. It makes it hard to get there.

J and my grandson and I went bike riding tonight. J LOVES to bike ride.. Lois

Re: Lois

[Guest guest]

e,

thank you so much!We are going to Ocean City Aug 8th and we are taking our Boxer..........I am "working" on getting him to walk on a leash.........Yeh right! He is a Boxer with ADHD! haha! He pulls on the leash all the time! I have to get him to slow down before we get to the Beach. Between him and JJ I don't know whats worst! haha!

((HUGS)) Lois

Re: Lois

[Guest guest]

Oh, that is so precious that they put pigtails in her hair and that she was eating.

She is so blessed to have you take care of her.

I know, my sister was about that far away from me, and I was only able to see her

once a week. I was always concerned that they were not feeding her.

It was too hot for karac and I to ride bikes today. What is the weather where

you live?

Re: Lois

We had to take her back to the place she was at today BUT when I got there they had put "pigtails" in her hair and she was eating!!! She saw me and said "Look at you"!! hahaha!! I told her "no-Look at you"!! When they got her back today I called them and told them they had Better keep feeding her food! The Dr. up here wrote a paper telling them what to do. I hate that she is about 2 hours from me. It makes it hard to get there.

J and my grandson and I went bike riding tonight. J LOVES to bike ride. Lois

Re: Lois

[Guest guest]

We have been about 85 degrees here. J and I wait until about 6-7 in the evening to ride bikes. Diamond comes over Mondays and Fridays and rides with us. he is very good with J.

I wish I could go once a week to see Betty. the cost of gas won't let me. I am going to be on that phone Monday morning tho. Lois

Re: Lois

[Guest guest]

Wow, what great weather!! We have been having over 100 degrees here is Dallas. We will just have to enjoy swimming until the Fall.

Our gas prices have been coming down a little; I paid 2:15 the last time I filled up. What are you paying. Got to run Ayden (grandbaby) is

crying. Love and blessings, Pat K

Re: Lois

We have been about 85 degrees here. J and I wait until about 6-7 in the evening to ride bikes. Diamond comes over Mondays and Fridays and rides with us. he is very good with J.

I wish I could go once a week to see Betty. the cost of gas won't let me. I am going to be on that phone Monday morning tho. Lois

Re: Lois

[Guest guest]

Pat,

Gas is running about 2.45 here. Sometimes a dime more. We have a pool in the yard BUT J likes a pool in the next town near us. It has a "Mushroom" waterfall and J loves it! He also likes to go down the slide. Lois

Re: Lois

[Guest guest]

Pat,

Gas is running about 2.45 here. Sometimes a dime more. We have a pool in the yard BUT J likes a pool in the next town near us. It has a "Mushroom" waterfall and J loves it! He also likes to go down the slide. Lois

Re: Lois

[Guest guest]

Pat,

Gas is running about 2.45 here. Sometimes a dime more. We have a pool in the yard BUT J likes a pool in the next town near us. It has a "Mushroom" waterfall and J loves it! He also likes to go down the slide. Lois

Re: Lois

[Guest guest]

Hi

So glad that the stimulator has helped you so much.

I disagree with you on one point. You are an inspiration. Just like you got

support from the group, you are now giving it back to the group. That's what

this group is all about. We are all here to support and encourage each other.

By telling your story, you give hope to others who might not otherwise go for

the implant. I feel like you. I'll tell my story a thousand times, no a million

times, to help others. I'll shout it from the rooftops if I have to. LOL.

I'm surprised that you didn't have a trial first. Here, they always do a trial

first They don't implant the trial, they tape it to your body. I guess different

places do things differently. I'm  just so glad that it worked for you so that

they didn't have to remove it.

Continue to have a speedy recovery. Remember to follow instructions. As you

start to feel stronger, and get better, it's easy to want to do to much.

Sue C

________________________________

From: velria <radiant.salubrity@...>

Stimulator

Sent: Monday, September 7, 2009 7:21:50 PM

Subject: Lois

 

Hi Lois,

You have every reason to feel nervous. It's a new procedure which they really

don't give alot of information out about. Until I found this group I was alot

like yourself.

I had severe pain in my hips, lower back. Sciatic pain down both legs and my

left leg was pins and needles from the foot to halfway up the shin.

I never had a trial. My doctor just implanted the permanent one straight up.

Because of all the back operations that I have already had done, he said if it's

going to work it will, and we don't have to take you back an re-operate. If it

doesn't work, we just take it out and it's like having the trial done anway. So

I was lucky that i have a doctor that was probably willing to take a punt. But

the I had also tried several other forms of medication as well.

Where as before I used to get about 2 hours sleep of a night time, mainly

because of the pain, I am now getting close to between 4 & 5 hours sleep. I

already feel a heap better. When I go for my walk now, my hips actually move

with me. And they are almost pain free. It's beautiful Lois. They'd have to

shoot me now to get the implant away from me!!

For the 1st 6 - 8 weeks of having the permanent one implanted. Yu aren't allowed

to do too much. This is because they want the leads to scar into place. No

stretching, bending, twisting, lifting anything over 3kg's. It's very important

that you follow what they tell you.

I'm allowed to drive short distances as well if I want to.

The trouble is Lois, what works for one person may not work for another. So I

can't honestly tell you it's going to work. But as my doctor said it works for

75% to 95% of all people. That's not bad stats when you think about it.

That sounds right only spending one night in hospital for a trial one to be

fitted. My Aunty has just had a trial one fitted. She has had no feeling at all

in her right leg for 18 months due to mining accident, within 5 hours of having

the trial one fitted, she was getting feeling back in that leg.

I certainly don't think I'm an inspiration Lois. If I can help someone like

yourself just by talking about it then that makes me happy. I'm more than

honoured that you let me help you.

I hope I've answered the questions you asked so you understand it from my side.

If not let me know and I'll give it another shot.

Warm Cheers

[Guest guest]

Hi to all and a question for ,

You have not written for some time so I am wondering how you are

doing? As you know I will be going on Monday and will let you know

what goes on with me. Now I realize everyone is different but I like

to gather information.

The weather is great today and I have been trying to get extra of

everything and a little house cleaning. I did say little.

Rememberin 9/11, Lois

On 9/7/09, Corn <butterfliesrfree309@...> wrote:

> Hi

>

> So glad that the stimulator has helped you so much.

>

> I disagree with you on one point. You are an inspiration. Just like you got

> support from the group, you are now giving it back to the group. That's what

> this group is all about. We are all here to support and encourage each

> other.

> By telling your story, you give hope to others who might not otherwise go

> for the implant. I feel like you. I'll tell my story a thousand times, no a

> million times, to help others. I'll shout it from the rooftops if I have to.

> LOL.

>

> I'm surprised that you didn't have a trial first. Here, they always do a

> trial first They don't implant the trial, they tape it to your body. I guess

> different places do things differently. I'm  just so glad that it worked for

> you so that they didn't have to remove it.

>

> Continue to have a speedy recovery. Remember to follow instructions. As you

> start to feel stronger, and get better, it's easy to want to do to much.

>

> Sue C

>

>

>

>

> ________________________________

> From: velria <radiant.salubrity@...>

> Stimulator

> Sent: Monday, September 7, 2009 7:21:50 PM

> Subject: Lois

>

>

>

> Hi Lois,

>

> You have every reason to feel nervous. It's a new procedure which they

> really don't give alot of information out about. Until I found this group I

> was alot like yourself.

>

> I had severe pain in my hips, lower back. Sciatic pain down both legs and my

> left leg was pins and needles from the foot to halfway up the shin.

>

> I never had a trial. My doctor just implanted the permanent one straight up.

> Because of all the back operations that I have already had done, he said if

> it's going to work it will, and we don't have to take you back an

> re-operate. If it doesn't work, we just take it out and it's like having the

> trial done anway. So I was lucky that i have a doctor that was probably

> willing to take a punt. But the I had also tried several other forms of

> medication as well.

>

> Where as before I used to get about 2 hours sleep of a night time, mainly

> because of the pain, I am now getting close to between 4 & 5 hours sleep. I

> already feel a heap better. When I go for my walk now, my hips actually move

> with me. And they are almost pain free. It's beautiful Lois. They'd have to

> shoot me now to get the implant away from me!!

>

> For the 1st 6 - 8 weeks of having the permanent one implanted. Yu aren't

> allowed to do too much. This is because they want the leads to scar into

> place. No stretching, bending, twisting, lifting anything over 3kg's. It's

> very important that you follow what they tell you.

>

> I'm allowed to drive short distances as well if I want to.

>

> The trouble is Lois, what works for one person may not work for another. So

> I can't honestly tell you it's going to work. But as my doctor said it works

> for 75% to 95% of all people. That's not bad stats when you think about it.

>

> That sounds right only spending one night in hospital for a trial one to be

> fitted. My Aunty has just had a trial one fitted. She has had no feeling at

> all in her right leg for 18 months due to mining accident, within 5 hours of

> having the trial one fitted, she was getting feeling back in that leg.

>

> I certainly don't think I'm an inspiration Lois. If I can help someone like

> yourself just by talking about it then that makes me happy. I'm more than

> honoured that you let me help you.

>

> I hope I've answered the questions you asked so you understand it from my

> side. If not let me know and I'll give it another shot.

>

> Warm Cheers

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Lois

Good luck on Monday. I'm sure everything will go fine. Keep us posted.

Sue

________________________________

From: Lois Churchill <mickyk13@...>

Stimulator

Sent: Friday, September 11, 2009 2:51:18 PM

Subject: Re: Lois

 

Hi to all and a question for ,

You have not written for some time so I am wondering how you are

doing? As you know I will be going on Monday and will let you know

what goes on with me. Now I realize everyone is different but I like

to gather information.

The weather is great today and I have been trying to get extra of

everything and a little house cleaning. I did say little.

Rememberin 9/11, Lois

On 9/7/09, Corn <butterfliesrfree309 @> wrote:

> Hi

>

> So glad that the stimulator has helped you so much.

>

> I disagree with you on one point. You are an inspiration. Just like you got

> support from the group, you are now giving it back to the group. That's what

> this group is all about. We are all here to support and encourage each

> other.

> By telling your story, you give hope to others who might not otherwise go

> for the implant. I feel like you. I'll tell my story a thousand times, no a

> million times, to help others. I'll shout it from the rooftops if I have to.

> LOL.

>

> I'm surprised that you didn't have a trial first. Here, they always do a

> trial first They don't implant the trial, they tape it to your body. I guess

> different places do things differently. I'm  just so glad that it worked for

> you so that they didn't have to remove it.

>

> Continue to have a speedy recovery. Remember to follow instructions. As you

> start to feel stronger, and get better, it's easy to want to do to much.

>

> Sue C

>

>

>

>

> ____________ _________ _________ __

> From: velria <radiant.salubrity@ bigpond.com>

> Stimulator@gro ups.com

> Sent: Monday, September 7, 2009 7:21:50 PM

> Subject: Lois

>

>

>

> Hi Lois,

>

> You have every reason to feel nervous. It's a new procedure which they

> really don't give alot of information out about. Until I found this group I

> was alot like yourself.

>

> I had severe pain in my hips, lower back. Sciatic pain down both legs and my

> left leg was pins and needles from the foot to halfway up the shin.

>

> I never had a trial. My doctor just implanted the permanent one straight up.

> Because of all the back operations that I have already had done, he said if

> it's going to work it will, and we don't have to take you back an

> re-operate. If it doesn't work, we just take it out and it's like having the

> trial done anway. So I was lucky that i have a doctor that was probably

> willing to take a punt. But the I had also tried several other forms of

> medication as well.

>

> Where as before I used to get about 2 hours sleep of a night time, mainly

> because of the pain, I am now getting close to between 4 & 5 hours sleep. I

> already feel a heap better. When I go for my walk now, my hips actually move

> with me. And they are almost pain free. It's beautiful Lois. They'd have to

> shoot me now to get the implant away from me!!

>

> For the 1st 6 - 8 weeks of having the permanent one implanted. Yu aren't

> allowed to do too much. This is because they want the leads to scar into

> place. No stretching, bending, twisting, lifting anything over 3kg's. It's

> very important that you follow what they tell you.

>

> I'm allowed to drive short distances as well if I want to.

>

> The trouble is Lois, what works for one person may not work for another. So

> I can't honestly tell you it's going to work. But as my doctor said it works

> for 75% to 95% of all people. That's not bad stats when you think about it.

>

> That sounds right only spending one night in hospital for a trial one to be

> fitted. My Aunty has just had a trial one fitted. She has had no feeling at

> all in her right leg for 18 months due to mining accident, within 5 hours of

> having the trial one fitted, she was getting feeling back in that leg.

>

> I certainly don't think I'm an inspiration Lois. If I can help someone like

> yourself just by talking about it then that makes me happy. I'm more than

> honoured that you let me help you.

>

> I hope I've answered the questions you asked so you understand it from my

> side. If not let me know and I'll give it another shot.

>

> Warm Cheers

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Lois,

I'm not sure how this works. But I worte an update here a few days ago and I see

it has only just come through now.

Sending you hugs and warm thought from me for you on Monday. Your going to do

just fine. Just keep thinking about the good things on the other side.

I'm off this morning for a larger car journey before heading home tomorrow

(Monday). I'll be checking in as soon as I get home to see how your going.

Warm Hugs

[Guest guest]

Sue, thank you for your support and trying to keep me calm.

Lois

On 9/12/09, Lois Churchill <mickyk13@...> wrote:

> , I feel so much better just hearing from you. I thought maybe

> you were having trouble and I was concerned.

>

> I think I am doing better(a little) but I worry about the little

> things like they called me to tell me what to do before coming in and

> said I would have some sedation which is great but then that the Dr.

> would be asking me some questions about when the pain was better.

> Here is my concern. If I am on a table or bed, sedated which means

> relaxed and there are times that the pain will let up especially if I

> am not up moving around, how will I be able to tell him that the pain

> is better in certain areas.

>

> Now I know that is something I just have to wait and see but if anyone

> that reads this has an answer I would love to hear it.

>

> I will let you know as soon as I can how I am doing and answer the

> above concern because it will be over.

>

> Thank you for your support and I thank Sue and anyone else that has helped.

>

> Take good care of yourself,

>

> Lois

>

> On 9/12/09, velria <radiant.salubrity@...> wrote:

>> Hi Lois,

>>

>> I'm not sure how this works. But I worte an update here a few days ago and

>> I

>> see it has only just come through now.

>>

>> Sending you hugs and warm thought from me for you on Monday. Your going

>> to

>> do just fine. Just keep thinking about the good things on the other side.

>>

>> I'm off this morning for a larger car journey before heading home

>> tomorrow

>> (Monday). I'll be checking in as soon as I get home to see how your

>> going.

>>

>> Warm Hugs

>>

>>

>>

>>

>>

>>

>>

>>

>>

>

>

> --

> Lois

>

--

Lois

[Guest guest]

Lois,You and J have been on my mind and in my heart and prayers. I know how hard that is.

I remember when we weaned Karac off of the Geodon; rather what I went through when DIL just jerked

him off of it cold turkey. Actually, Karac has done so much better without the meds. He still has

meltdowns, but really not that often. I had one scary one with him a year ago, but only one brief one since.

I think about meds sometimes for Karac when has a problem with him, but then I think that he is

a young man and I don't think any med is going to prevent him from getting upset sometimes.

Just know that I am praying for you every day. Love and blessings, Pat K

Re: Hard morning

e,

I hope he feels better soon. ((HUGS)) Lois

Hard morning