Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Welcome Mitzie! This is a great group, lots of information and support.Hope you're doing as well as possible, for the group where are you at in treatment, what's the duration, all that schtuff?Again, welcome!SteveOne patients perspective, after beating the dragon!... https://www.createspace.com/3421422----- Original Message -----From: " Christ" <ludichrist2000@...>"WebWarriors grp" < >Sent: Sunday, April 4, 2010 6:52:14 AM GMT -08:00 US/Canada PacificSubject: [ ] Welcome New Member I would like to welcome our newest member to the group: mitzie97 Thank you for joining us. love don in ks Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Rb,Thanks for joining us, think you'll enjoy the ride!Lots of support and information here with folks before, in and completed treatment. If you have a question, just ask!Good luck!SteveOne patients perspective, after beating the dragon!... https://www.createspace.com/3421422----- Original Message -----From: " Christ" <ludichrist2000@...>"WebWarriors grp" < >Sent: Sunday, April 4, 2010 5:30:49 PM GMT -08:00 US/Canada PacificSubject: [ ] Welcome New Member I would like to welcome our newest member to the group: rbaileyfl Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Here is a little about me. Was told in April 09 I had hep c and probly have had it all my life. I worried and thought this through and finally started my shot 10/1 sounded lke just a good date as any. 10/27 was told to stop my white count has droped to 1.2, just tired and weak and numb legs and feet 11/10 every thing has dropped (WBC, PLT, RBC, HGB) .No more treatments for me for a while guess since I missed my 2 wk window I will have to start over. 11/27 every thing is coming back up and now my thyriod is hyper TSH is .01. 12/15 & 16 Thyroid necular test wait for the dr to call 12/31 more blood work 1/7/10 went back to the dr today all my blood counts are back to normal. But the thyroid is still hyper. Still no more treatments. 2/4 Well my thryoid is 6.0 just a little high now, but now my viral load is 2.8 million I was afraid of that. This is one of the questions I asked before even starting treatment was would it come back with a vengance! 4/1 Thyroid went hypo at 74.38 high end is 5.47. Started thyroid meds.Synthoid From: "schandler21@..." <schandler21@...> Sent: Sun, April 4, 2010 8:26:56 PMSubject: Re: [ ] Welcome New Member Welcome Mitzie! This is a great group, lots of information and support.Hope you're doing as well as possible, for the group where are you at in treatment, what's the duration, all that schtuff?Again, welcome!Steve One patients perspective, after beating the dragon!... https://www. createspace. com/3421422 [ ] Welcome New Member I would like to welcome our newest member to the group: mitzie97 Thank you for joining us. love don in ks Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Hello & Happy Easter Everyone!Thanks for such a wonderful welcome! Here's my story: 1999:initial diagnosis of HepC,also diagnosed with fibromyalgia,osteoarthritis,DDD & probable HCV infection.(before they had tests). 2005:finally received Medicaid/SSI disability after added diagnosis of COPD,spinal stenosis,herniated discs neck/low back,recurring kidney infections,chronic pain. My P.C of three yrs. was a " Quack " !! Did limited testing.Never did referrals,etc.I live in a very small,remote town-(notta lotta choice) Have not had another P.C. until recently & have seen her once.After bloodwork returned she made appt.with Digestive Disease Clinic & 1st appt. is this Friday. I've been researching the bloodwork that is out of range in relation to HepC & I Have to be honest-I'm scared! So,all the support is welcomed,any input is graciously accepted. Hope I can give as much as I get! > > I would like to welcome our newest member to the group: > > rbaileyfl > > Thank you for joining us. > Please say hi so we can all say hi back. > > love > don in ks > > To post on forum: > <--- click here > > Links Library: > http://health.dir./group/ /links <--- click here > > Our Sponcer: > http://www.healthyhepper.com/ <--- click here > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Robin,Welcome again!This group is great, Don is THE MAN when it comes to questions. If he or someone here doesn't know the answer, he has a link that will!There's a book out there, recommend you read it, it may give you some insight into treatment, reactions, and how to deal with it. Just see the signature block, as Don's advised me that's the only place it can be advertised...SteveAuthor, Hepatitis C and the Working ManP.S. If you want a copy and can't afford the $8 plus shipping, shoot me an address and I'll mail one of my copies to you.Good Luck!One patients perspective, after beating the dragon!... https://www.createspace.com/3421422----- Original Message -----From: "robin" <rbaileyfl@...> Sent: Sunday, April 4, 2010 7:33:17 PM GMT -08:00 US/Canada PacificSubject: [ ] Re: Welcome New Member Hello & Happy Easter Everyone!Thanks for such a wonderful welcome! Here's my story: 1999:initial diagnosis of HepC,also diagnosed with fibromyalgia,osteoarthritis,DDD & probable HCV infection.(before they had tests). 2005:finally received Medicaid/SSI disability after added diagnosis of COPD,spinal stenosis,herniated discs neck/low back,recurring kidney infections,chronic pain. My P.C of three yrs. was a "Quack"!! Did limited testing.Never did referrals,etc.I live in a very small,remote town-(notta lotta choice) Have not had another P.C. until recently & have seen her once.After bloodwork returned she made appt.with Digestive Disease Clinic & 1st appt. is this Friday. I've been researching the bloodwork that is out of range in relation to HepC & I Have to be honest-I'm scared! So,all the support is welcomed,any input is graciously accepted. Hope I can give as much as I get! > > I would like to welcome our newest member to the group: > > rbaileyfl > > Thank you for joining us. > Please say hi so we can all say hi back. > > love > don in ks > > To post on forum: > <--- click here > > Links Library: > http://health.dir./group/ /links <--- click here > > Our Sponcer: > http://www.healthyhepper.com/ <--- click here > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Steve-you are too kind.Should be able to get a copy,though. Thanks for the suggestions! Robin > > > > I would like to welcome our newest member to the group: > > > > rbaileyfl > > > > Thank you for joining us. > > Please say hi so we can all say hi back. > > > > love > > don in ks > > > > To post on forum: > > <--- click here > > > > Links Library: > > http://health.dir./group/ /links <--- click here > > > > Our Sponcer: > > http://www.healthyhepper.com/ <--- click here > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Welcome Beth. I am Cinder and I am Geno type 1 grade 1 stage 2. I haven't started tx yet. Waiting on protease inhibitor. You have come to a great group. We are all like one big family. So sit back and enjoy. Feel free to ask any questions or just chat whenever. Somebody is usually one day and night. There is a lot of information given on here. Don and Pam and a few others are very good at posting very good accurate information on here. There are a lot of people who are going through tx and some who have been there and some who haven't yet to go there. So lots of help for everyone. Glad to have you here. Cinder Check out datagrey's photos and profile! http://community.webshots.com/user/datagrey Find me on MySpace and be my friend. http://www.myspace.com/datagrey From: Beth Frey <bethfrey42301@...>Subject: Re: [ ] Welcome New Member Date: Sunday, April 4, 2010, 8:46 PM Here is a little about me. Was told in April 09 I had hep c and probly have had it all my life. I worried and thought this through and finally started my shot 10/1 sounded lke just a good date as any. 10/27 was told to stop my white count has droped to 1.2, just tired and weak and numb legs and feet 11/10 every thing has dropped (WBC, PLT , RBC , HGB) .No more treatments for me for a while guess since I missed my 2 wk window I will have to start over. 11/27 every thing is coming back up and now my thyriod is hyper TSH is .01. 12/15 & 16 Thyroid necular test wait for the dr to call 12/31 more blood work 1/7/10 went back to the dr today all my blood counts are back to normal. But the thyroid is still hyper. Still no more treatments. 2/4 Well my thryoid is 6.0 just a little high now, but now my viral load is 2.8 million I was afraid of that. This is one of the questions I asked before even starting treatment was would it come back with a vengance! 4/1 Thyroid went hypo at 74.38 high end is 5.47. Started thyroid meds.Synthoid From: "schandler21@ comcast.net" <schandler21@ comcast.net> Sent: Sun, April 4, 2010 8:26:56 PMSubject: Re: [ ] Welcome New Member Welcome Mitzie! This is a great group, lots of information and support.Hope you're doing as well as possible, for the group where are you at in treatment, what's the duration, all that schtuff?Again, welcome!Steve One patients perspective, after beating the dragon!... https://www. createspace. com/3421422 [ ] Welcome New Member I would like to welcome our newest member to the group: mitzie97 Thank you for joining us. love don in ks Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 Hi everyone! My name is Teri, I was diagnosed with Hep C in 2004. By the time they found it I had been living with that virus for 25 years. Got infected thru a blood transfusion when I had my son in 1980. I went thru treatment with Peg-Interfuron and Ribavirin for 48 weeks 2005-2006 and am currently still SVR. Treatment was rough but I came out on the other side. So HI everybody! Teri From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Tue, April 6, 2010 9:28:03 AMSubject: [ ] Welcome New Member I would like to welcome our newest member to the group: theresagottlieb Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Teri,Hello and welcome!There are a few of us here who've made it through. Hopefully we can give those entering or in treatment some light at the end of the tunnel...I also did the interferon/ribavirin regimen. Fortunately, mine was only 26 weeks, even that was more than enough! 18 months later and the dragon remains slain...SteveGet one patients perspective on Pegasys/ribavirin treatment success... https://www.createspace.com/3421422----- Original Message -----From: "Teri Gottlieb" <theresagottlieb@...> Sent: Tuesday, April 6, 2010 3:43:49 PM GMT -08:00 US/Canada PacificSubject: Re: [ ] Welcome New Member Hi everyone! My name is Teri, I was diagnosed with Hep C in 2004. By the time they found it I had been living with that virus for 25 years. Got infected thru a blood transfusion when I had my son in 1980. I went thru treatment with Peg-Interfuron and Ribavirin for 48 weeks 2005-2006 and am currently still SVR. Treatment was rough but I came out on the other side. So HI everybody! Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Steve that is awesome! 48 weeks was tough... and I was so anemic at the end that my last two shots were taken within 72 hours of each other and then all treatment stopped. I had 2 blood transfusions during treatment and needed a third at the end but instead the doc just had me take that last shot... oh man I was sick after that second injection... and then let me rest and my body built up its blood supply again on its own. Congrats on the SVR!TeriFrom: "schandler21@..." <schandler21@...> Sent: Tue, April 6, 2010 8:49:58 PMSubject: Re: [ ] Welcome New Member Teri,Hello and welcome!There are a few of us here who've made it through. Hopefully we can give those entering or in treatment some light at the end of the tunnel...I also did the interferon/ribaviri n regimen. Fortunately, mine was only 26 weeks, even that was more than enough! 18 months later and the dragon remains slain...SteveGet one patients perspective on Pegasys/ribavirin treatment success... https://www. createspace. com/3421422 Re: [ ] Welcome New Member Hi everyone! My name is Teri, I was diagnosed with Hep C in 2004. By the time they found it I had been living with that virus for 25 years. Got infected thru a blood transfusion when I had my son in 1980. I went thru treatment with Peg-Interfuron and Ribavirin for 48 weeks 2005-2006 and am currently still SVR. Treatment was rough but I came out on the other side. So HI everybody! Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Sam! You made it! Don, this is my friend! She needs us!TeriSent from my Verizon Wireless BlackBerryFrom: Christ <ludichrist2000@...>Date: Mon, 26 Apr 2010 09:57:42 -0700 (PDT)WebWarriors grp< >Subject: [ ] Welcome New Member I would like to welcome our newest member to the group: little.sam30 Thank you for joining us.Please say hi so we can all say hi back. lovedon in ks To post on forum: <--- click here Links Library:http://health.dir./group/ /links <--- click here Our Sponcer:http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 I would like to welcome our newest member to the group: anthonyclarksmith54 Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 hello, and thanks for accepting me into your group.karlFrom: Christ <ludichrist2000@...>Subject: [ ] Welcome New Member"WebWarriors grp" < >Date: Tuesday, June 8, 2010, 5:14 PM I would like to welcome our newest member to the group: karlsiller Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health. dir.groups. / group/HepCWebWar riors/links <--- click here Our Sponcer: http://www.healthyh epper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
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