Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Hi I have been keeping an eye out for 'HCV related conditions', proven or not. Some websites list quite a few too. We all have heard of the fatigue, fog, nausea, lack of appetite, etc, in relation to having Hep C. The normal accepted symptoms. Then theres the possible side effects of treatment. But from what Ive read, and concidering the importance of the liver to our bodies, Ive got a wee feeling that when you have HCV, you could be affected with health problems from head to toe. Depending on the person and their health, age, race, sex, lifestyle, diet, etc, of course. Ive listed quite a few in the links library - all folders 011. http://health.dir./group/ /links <--- click here You might like to browse through them. These are physical related conditions, some with just HCV, some during treatment, and/or both. Then I have been also looking into the mental and social aspects of having a disease like HCV. I call it 'the dragon in our heads', and 'stigma'. http://health.dir./group/ /files/ <--- click here http://health.dir./group/ /links/004J___THE_STIGMA_001261041587/ Im not one to jump to conclusions, and freak out, but it seems to me, HCV or any medical condition could have many faces. It just makes sence. Proof? Medical science has a lot to discover yet. love don in ks From: <gkroberts@...>Subject: [ ] fibro and hep c Date: Sunday, February 14, 2010, 12:21 AM I am stunned at the amount of people who are talking about hep c and fibro.In NZ the professionals have not been able to confirm the connection for mebut i have come to this conclusion in spite of and have been looked atsideways a few times for suggesting that these illness might be connected.I have a few friends in recovery now who are hep c positive and are beingdiagnosed with odd auto immune diseases so i would ascertain from this thatits not just the liver it hurts.My alts are usually around 70 and i have minimal liver damage.........but iget so tired and easily run down and many annoying symptoms.Two liver biopsies that show minimal damage.I am not aware of enzyme tests. I am seeing my gastro specialist soon sowill ask. NZ------------------------------------MEMBERS WITH WEBSITES ABOUT HEP C:'s website: http://www.healthyhepper.comPam's website: http://www.HEALSoftheSouth.org and http://www.HEALSoftheSouth.comScarlet's website: http://www.youngliving.org/scarletADD Your Website, Support Group, Newsletter or HEP C LINKS to the Healthy Hepper Hepatitis Database-Directory: http://www.healthyhepper.com/db/dbsearch.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 ,I,m involved with a local HepC supprt group and the director is a former nurse that had a liver transplant. She offers the suggestion that we need a liver doctor, a hepatologist, iternal medicine, and so forth. But not a gastro. Their field is too diverse to for our needs, she says. Just a thought. I used to see a gastro and he was fairly naive. I later saw a specialist of Liver and Cancer Diseases and he was worlds apart. Much more knowledgeable. Anywho, lots of things start to go wrong when you mess with the liver.RandyFrom: <gkroberts@...> Sent: Sun, February 14, 2010 1:21:19 AMSubject: [ ] fibro and hep c I am stunned at the amount of people who are talking about hep c and fibro. In NZ the professionals have not been able to confirm the connection for me but i have come to this conclusion in spite of and have been looked at sideways a few times for suggesting that these illness might be connected. I have a few friends in recovery now who are hep c positive and are being diagnosed with odd auto immune diseases so i would ascertain from this that its not just the liver it hurts. My alts are usually around 70 and i have minimal liver damage...... ...but i get so tired and easily run down and many annoying symptoms. Two liver biopsies that show minimal damage. I am not aware of enzyme tests. I am seeing my gastro specialist soon so will ask. NZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Hi , The australiahepc forum has a lot of good info and one of the main members, , lives in NZ. He is on alternative supplements. You might like to look at it. , the moderator, is a really neat woman. I am on alternatives as well because I'm 75 and do not plan to treat. There is lots of info on alternatives there. I originally found out about alternatives on that forum. Whatever you do, supps help ease the side effects of Hep C--itching, right side pain, lowers alt and ast, less brain fog, more energy, etc. I really do not have any idea what to blame on what. I've had Hep C most of my life--back when it was just " You have something wrong with your liver. Stop drinking--use as few drugs as possible--and live a healthy lifestyle. " Apparently that has worked for me. I added supps in the last two years. When I die, maybe someone will post how long I lived with Hep C. Since I was told in 1966 that my liver had problems--it is going on 44 years of Hep C for me, but could be longer. SuziQ > > I am stunned at the amount of people who are talking about hep c and fibro. > > In NZ the professionals have not been able to confirm the connection for me > but i have come to this conclusion in spite of and have been looked at > sideways a few times for suggesting that these illness might be connected. > > > I have a few friends in recovery now who are hep c positive and are being > diagnosed with odd auto immune diseases so i would ascertain from this that > its not just the liver it hurts. > > My alts are usually around 70 and i have minimal liver damage.........but i > get so tired and easily run down and many annoying symptoms. > > Two liver biopsies that show minimal damage. > > I am not aware of enzyme tests. I am seeing my gastro specialist soon so > will ask. > > NZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 All.Just a quick note here. The nurse/director of our local HepC group has been fairly negative on Milk Thistle and advises us "to ask our Doctor" about other suppliments, which is good advice. Well, many Docs, like the AMA, don't put much faith in suppliments so they will usually say, "It hasn't been proven....."However, I have been taking Milk Thistle for about ten years and if it causes damage or impairs my liver then I haven't noticed it. It may be just a placebo, ok, I'm placated, but if there is a chance at all that it helps, then I'll take no matter what. I wish I could find the report I read once about a young girl whom had eaten poisionus mushrooms and was dying. The French doctors gave her a massive anmount of Milk thistle and almost immediatley the damage was stopped. It seems, and this is Milk Thistle's claim, that the herb had coated the hepatocyes in a protective covering and shielded her liver from damage.Anybody hear/see that report. please respond.Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 I have FM. I only have the Hep. C antibody, cleared the disease on my own. Very fortunate. But yea any form of physical and emotional trauma can cause FM. SO i am sure that Hep. c can cause FM. All the stress to the body is overwhelming and plus if you have had any sorta trauma such as rape, abuse, or have been beat it also can cause it. Bek. From: <gkroberts@...>Subject: [ ] fibro and hep c Date: Sunday, February 14, 2010, 12:21 AM I am stunned at the amount of people who are talking about hep c and fibro.In NZ the professionals have not been able to confirm the connection for mebut i have come to this conclusion in spite of and have been looked atsideways a few times for suggesting that these illness might be connected.I have a few friends in recovery now who are hep c positive and are beingdiagnosed with odd auto immune diseases so i would ascertain from this thatits not just the liver it hurts.My alts are usually around 70 and i have minimal liver damage...... ...but iget so tired and easily run down and many annoying symptoms.Two liver biopsies that show minimal damage.I am not aware of enzyme tests. I am seeing my gastro specialist soon sowill ask. NZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 First that I actually really put it together, was because a friend was going to see the Internist to find out if the flare ups with her Fibro had anything to do with the HepC. Came back that her liver was only very slightly damaged from the HepC and thus it was the Fibro that was causing the pain and fatigue.Enzyme tests are the ALT and AST.Wouldn't you know it!!! Someone here already suggested the Newsletter that comes out of Australia and I just can't find the link at the moment. It's really really chock full of information about the virus. Either, I'll be getting another newsletter or will find an old one and send the link.Gloria I am stunned at the amount of people who are talking about hep c and fibro. In NZ the professionals have not been able to confirm the connection for me but i have come to this conclusion in spite of and have been looked at sideways a few times for suggesting that these illness might be connected. I have a few friends in recovery now who are hep c positive and are being diagnosed with odd auto immune diseases so i would ascertain from this that its not just the liver it hurts. My alts are usually around 70 and i have minimal liver damage...... ...but i get so tired and easily run down and many annoying symptoms. Two liver biopsies that show minimal damage. I am not aware of enzyme tests. I am seeing my gastro specialist soon so will ask. NZ Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 RandyMy Gastro and the Clinic head up the treatment trials!!! Prior to that, we only had an Internist here; but, he was sure happy when the new Gastro hit town and turned as many patients as he could over to him. My file went as well, so he does know about me; however, I've never met him!! At the same time, I was accepted on the trial treatment with the protease inhibitor, so I actually go to Vancouver on a regular bases. For me, I am sooo pleased about all this because even now, with the HCC diagnosis - the surgeon is just a couple of doors down the hall. My point is, that Internal Medicine Dr. was the one that had such a diverse education!! He actually had been to our top University a few years before I met him, so that he could learn all he could about the liver disease.Gloria ,I,m involved with a local HepC supprt group and the director is a former nurse that had a liver transplant. She offers the suggestion that we need a liver doctor, a hepatologist, iternal medicine, and so forth. But not a gastro. Their field is too diverse to for our needs, she says. Just a thought. I used to see a gastro and he was fairly naive. I later saw a specialist of Liver and Cancer Diseases and he was worlds apart. Much more knowledgeable. Anywho, lots of things start to go wrong when you mess with the liver.RandyFrom: <gkrobertsxtra (DOT) co.nz> Sent: Sun, February 14, 2010 1:21:19 AMSubject: [ ] fibro and hep c I am stunned at the amount of people who are talking about hep c and fibro. In NZ the professionals have not been able to confirm the connection for me but i have come to this conclusion in spite of and have been looked at sideways a few times for suggesting that these illness might be connected. I have a few friends in recovery now who are hep c positive and are being diagnosed with odd auto immune diseases so i would ascertain from this that its not just the liver it hurts. My alts are usually around 70 and i have minimal liver damage...... ...but i get so tired and easily run down and many annoying symptoms. Two liver biopsies that show minimal damage. I am not aware of enzyme tests. I am seeing my gastro specialist soon so will ask. NZ Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 That's me too. FM causes all my pain and fatigue. My liver is not damaged. From: Gloria <gadamscan@...>Subject: Re: [ ] fibro and hep c Date: Sunday, February 14, 2010, 7:46 PM First that I actually really put it together, was because a friend was going to see the Internist to find out if the flare ups with her Fibro had anything to do with the HepC. Came back that her liver was only very slightly damaged from the HepC and thus it was the Fibro that was causing the pain and fatigue.Enzyme tests are the ALT and AST.Wouldn't you know it!!! Someone here already suggested the Newsletter that comes out of Australia and I just can't find the link at the moment. It's really really chock full of information about the virus. Either, I'll be getting another newsletter or will find an old one and send the link.Gloria I am stunned at the amount of people who are talking about hep c and fibro.In NZ the professionals have not been able to confirm the connection for mebut i have come to this conclusion in spite of and have been looked atsideways a few times for suggesting that these illness might be connected.I have a few friends in recovery now who are hep c positive and are beingdiagnosed with odd auto immune diseases so i would ascertain from this thatits not just the liver it hurts.My alts are usually around 70 and i have minimal liver damage...... ...but iget so tired and easily run down and many annoying symptoms.Two liver biopsies that show minimal damage.I am not aware of enzyme tests. I am seeing my gastro specialist soon sowill ask. NZ Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
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