Re: Milk Thistle - now 'stuff'

[Guest guest]

Thank you Sheila

Wow, twice doing TX, and I guess your saying you were a non-responder both times.

Thats hard, and what a letdown.

There is good news in the pipeline though.

The Pharm comanys have been doing a lot of research the last few years, and the Protease Inhibitors are supposed to come out for public use later this year, or early next year.

Theres talk of 80% SVR rates with the 3D TX.

Gloria is just finishing up a clinical trial of this, and I am watching her closely.

I am also shooting for this 3D TX if my body will hold out.

Theres also some Govt involvement happening lately.

Its about time, we need it.

I was diagnosed in 2008, so havent done even a biopsy yet.

My Hdoc says that I can wait a bit, as my labs are all close to normal.

My Viral Load is 500,000 or so as of Oct 2009.

I go get new bloodwork next month, so I will have a better idea where I stand.

I have been taking several sups/vitamins, and keeping an eye on my diet.

I have also been cutting back on Pmeds, soaps, tobacco, sugar, cleaning supplys, etc, to give my liver a break.

I am doing lots of research.

I hope I am doing myself some good.

I share what I find.

You mention the mental effects on you doing treatment.

Some of the group discussions we have been having are about how the HCV and TX affect our minds.

I call it 'the Dragon in our head'.

Things like attitude, stigma, emotions, etc.

I personally feel that this topic is almost as important as the physical things we go through.

That both the physical and mental effects of a disease can affect our lives.

Please feel free to comment or ask about anything you need to.

We all try to share as much as we can because it might help someone else.

love

don in ks

From: MELESIO RODRIGUEZ <tammyrod2verizon (DOT) net>Subject: [ ] Milk Thistle Date: Tuesday, January 12, 2010, 10:14 AM

Hi Walter and Don I have been taking Milk Thistle for 4 years and i notice a differents in my ALT and my all around health when i don't take it. God Bless,tammy

[Guest guest]

DonYou know that I entirely agree with you about the mental or emotional discussions. All men, it's OK to admit that you are simply sick and tired of being sick and tired!!!As I've been mentioning, this last treatment has destroyed my marriage; however, it simply comes down to - my husband has never had any idea how to communicate period. I've seen him in deep depression and can do absolutely nothing because he will just lash out at me. Finally, when I used to see him like that, I would just go by and say "I'm not coming to get you"!!! It means he's gone to his cave and the last person in the entire world that can do anything for him, is his wife.So, I think we have to use each other for support and no holds at all. It's not weakness to be depressed,

it's probably a lot of other things causing it, not just treatment. I've found in this last 48 weeks that almost no one that I ever counted as a friend, had the guts to see me through. As if that hasn't hurt me enough - hey Don - now that my hubby and I are calling it quits - most anyone left are abandoning ship!! All because none of them cared enough to get some knowledge, including my husband.But, as I've told Don - this only happened last Thursday night and already I'm getting stronger and stronger each day and looking forward to a new life!!! I've fought too hard to continue to try to deal with such a selfish person. I will continue my fight, whatever is coming down the pike - alone, with all my online friends that understand the shit we go through.Gloria

Thank you Sheila

Wow, twice doing TX, and I guess your saying you were a non-responder both times.

Thats hard, and what a letdown.

There is good news in the pipeline though.

The Pharm comanys have been doing a lot of research the last few years, and the Protease Inhibitors are supposed to come out for public use later this year, or early next year.

Theres talk of 80% SVR rates with the 3D TX.

Gloria is just finishing up a clinical trial of this, and I am watching her closely.

I am also shooting for this 3D TX if my body will hold out.

Theres also some Govt involvement happening lately.

Its about time, we need it.

I was diagnosed in 2008, so havent done even a biopsy yet.

My Hdoc says that I can wait a bit, as my labs are all close to normal.

My Viral Load is 500,000 or so as of Oct 2009.

I go get new bloodwork next month, so I will have a better idea where I stand.

I have been taking several sups/vitamins, and keeping an eye on my diet.

I have also been cutting back on Pmeds, soaps, tobacco, sugar, cleaning supplys, etc, to give my liver a break.

I am doing lots of research.

I hope I am doing myself some good.

I share what I find.

You mention the mental effects on you doing treatment.

Some of the group discussions we have been having are about how the HCV and TX affect our minds.

I call it 'the Dragon in our head'.

Things like attitude, stigma, emotions, etc.

I personally feel that this topic is almost as important as the physical things we go through.

That both the physical and mental effects of a disease can affect our lives.

Please feel free to comment or ask about anything you need to.

We all try to share as much as we can because it might help someone else.

love

don in ks

From: MELESIO RODRIGUEZ <tammyrod2verizon (DOT) net>Subject: [ ] Milk Thistle Date: Tuesday, January 12, 2010, 10:14 AM

Hi Walter and Don I have been taking Milk Thistle for 4 years and i notice a differents in my ALT and my all around health when i don't take it. God Bless,tammy

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[Guest guest]

I do not kow about your husband. But I love my wife so very much that it hurts and even gets me upset, when she is not happy. When she is sick or hurt,it makes me greatly up set and I may even/often with draw - for a period of time.I have admitted to her, anyone this fact. Now if she is hurting and I either cannot make it better or try to make it better and it gets worse...Well then I am really really upset.We have a friend who is in stage 4 breast cancer. Her husband we found out was physically and mentally abusiveI am not sharing this to make me seem like super husband, because I am not. My bride is the 2nd most important thing, in my life, period. Maybe your husband is having a very hard time dealing with your situation. Maybe he can not find a way to talk with you. I am not defending his actions or lack there of.. I

will keep you in our prayersFrom our home to your home, we speak a Blessings, and Success 2010.Walter L. Scheu, Sr. Th.D

[Guest guest]

Thank you, WalterI never imagined that my husband would pull something like this!! Sure, beginning about 5 years ago when I did my first treatment, it sure did change things in my life, so it would have had a great impact on him. This last round of treatment had me scared sometimes about my mental facilities. However, I wasn't a novice at it and knew that when I was lying in bed on a Saturday, after a shot, and truly considering that I was worthless to anyone - I'd better get my anti-depressants upped to help with that. Then, again in October something happened that totally rocked my world and I thought I was headed for a breakdown. That's when the Dr. gave me some "happy pills". A week later, my specialist is telling me that there is a high indication

that I have liver cancer. I was so calm that literally he dropped jaw when I said that I had no questions.My husband is not a communicator at all!! As much as I dislike it, I always have to guess when he's about to explode. This time came out of nowhere!! No, we are still in this home together and he still sees no reason that what he did was brutal. I cry every time I try to communicate with him!!However, tomorrow, I have to take my big trip to the clinic in Vancouver, BC. We are having very big winds at the moment, so I'm not really looking forward to the ferry trip; but, it certainly wouldn't be my first time on it in a wild storm. Then, I'm spending a couple of extra days over there and this will be my first break in about 2-1/2 yrs. It'll feel so good to visit and extra special friend and not have to swallow pills and poke a needle into me. Now, she may have to; but, then I'd be

there for her.Gloria

I do not kow about your husband. But I love my wife so very much that it hurts and even gets me upset, when she is not happy. When she is sick or hurt,it makes me greatly up set and I may even/often with draw - for a period of time.I have admitted to her, anyone this fact. Now if she is hurting and I either cannot make it better or try to make it better and it gets worse...Well then I am really really upset.We have a friend who is in stage 4 breast cancer. Her husband we found out was physically and mentally abusiveI am not sharing this to make me seem like super husband, because I am not. My bride is the 2nd most important thing, in my

life, period. Maybe your husband is having a very hard time dealing with your situation. Maybe he can not find a way to talk with you. I am not defending his actions or lack there of.. I

will keep you in our prayersFrom our home to your home, we speak a Blessings, and Success 2010.Walter L. Scheu, Sr. Th.D

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