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Hi,Our Irritable Bowel Syndrome web site, http://www.digestioninfo.com has been substantially updated. We are a couple living in Oregon and initially developed this site because my wife, who suffers from IBS, had such a difficult time finding information anywhere on the subject. Our purpose in developing this site was to bring as much information on IBS as possible into one easy to use site.Please review our site and if you find it appropriate feel free to link to it from your site. If you have already linked with our site, thank you very much. If you have any suggestions or comments you can email me at Digestfact@...Sincerely,Bill www.DigestionInfo.com

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  • 3 years later...

Absolutely. When I have an IBS episode, it is a " gimmie " that a flare will

occur. When I feel the need to " cheat " and have something dairy, I step back

and think twice because I know what will follow.

Vicky in Georgia

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Jeff: I have IBD (very similar symptoms to IBS) and usually a flare will

coincide with my back flaring up and my right eye becoming very senstive. It

all kind of flares up at the same time for me, and I will become extremely

fatigued and run a low-grade fever.

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Jeff,

Yes, yes, yes! This is one of my mysteries. If I have a flare of joint

inflammation, I get bad diarrhea in the mornings. This started happening

with a very severe flare a year and a half ago. When the flare subsides,

the diarrhea goes away. It is a complete mystery because my colonoscopy was

completely normal. But, there must be some inflammation that's happening

somewhere in my digestive tract. Or, somehow a flare of inflammation

triggers IBS. It's very disabling though and makes the getting to work to

problem even worse, when I have morning stiffness and joint inflammation and

to boot I can't get off the toilet! It's probably another undocumented

unrecognized aspect of our disease.

God Bless,

Janet in SF

ReA since 1973; diagnosed 1997; HLA-B27+

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I have the same situation, both flare at the same time. Just got over a

bout. If you figure out a way to fix it, PLEASE let me know. I really don't

need

both things at the same time.

Hope things work out for you. Kathy from WI

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If it is truely irritible bowel syndrome, and not inflammatory bowel

disease,sulfasalizine is not much help. Sulfasalazine is very effective for IBD

as is Mesalamine, which is similar but without the sulfa. If the IBS symptoms

are diarrhea as opposed to constipation and bloating, Immodium can be helpful.

My GI doc has me use it during a Crohn's flare (which, incidently, I am having

right now) in combo with the mesalamine.

Pawlaczyk <ppawlacz@...> wrote:In the information I have

read about AS, IBS is one of the symptoms. I

recently read that sulfasalazine is used to treat IBS.

Pat

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Janet - just a little info re: IBS...or IBD - My colonoscopy looked normal,

though several biopsies showed cell inflammation. I then had a capsule

endoscopy - very painless...you swallow a capsule containing a tiny camera and

it takes pictures of your entire digestive tract...easiest medical test I ever

had! It was the only way they could find the ulceration/inflammation in my

small intestines. The colonoscopy cannot get to that area.

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OK, that's really good to know. I've never had a capsule endoscopy, but it

sure sounds like I should. So even though my colonoscopy was normal, there

could be IBD causing diarrhea when I have a flare of arthritis. That makes

a lot of sense. Now, to find a doc. who will give me a capsule endoscopy.

I guess I'll wait until I have another flare with the diarrhea and harass my

rheumatologist to send me to a doctor who will do a capsule endoscopy.

Thanks a lot.

Janet in SF

ReA since 1973; diagnosed 1997; HLA-B27+

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Janet: What I did was go to my internal medicine doc (actually the

nurse practitioner) and she referred to immediately to a great

gastro guy. He is actually still a resident, I think, completing

his fellowship. My blood work was normal, nothing terribly unusual

about the colonoscopy, except the cell inflammation. However, that

capsule was wonderful :) You wear a little monitor for 8 or so

hours right after you swallow the capsule. Then you go back, and

they take the monitor and read the pictures. I believe it takes 8

photos per second so it literally films your whole digestive process

and is completely painless! We would not have know definitively that

I had Crohn's without it.

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  • 3 months later...
Guest guest

Cindi,

I have had the same experience. I too have symptoms of IBS (never officially diagnosed) that have completely disappeared since I discovered my allergy or food intolerance to wheat and some other grains. Since I have eliminated wheat and milk products from my diet the symptoms have gone and only reappear if I cheat and have some wheat based food.

Joan

Johannesburg South Africajpearse@...

IBS

I have never been diagnosed with IBS, although I have had many of the symptoms. We found about 2 years ago that I am severely allergic to dairy products & also have many other food allergies. My "IBS symptoms" have cleared up since I have eliminated problem foods.

One note on the allergies....there are 2 kinds of allergies (IgE- acute, sudden onset - such as peanuts causing anaphylactic shock and IgG - delayed symptoms). I have all IgG allergies and these often go undiagnosed because most physicians test for only IgE allergies. The test I had was the Great Smokies Diagnostic Allergy Test. You can read about it at www.gsdl.com. I'm very grateful my GI doc tested for these because otherwise, my "IBS symptoms" would have remained a mystery. Hope my experience helps someone!!!!!!! Cindi

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I'm wondering if anyone out there DOESN'T have IBS symptoms! lol! Cindi

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Joan - I really feel for you having both dairy & wheat. I have a lot of food allergies, but I can have wheat. My daughter has celiac disease (she & I were diagnosed within 2 months of each other! ACK!) & it seems anything I can eat, she can't & vice versa. It is a challenge cooking for a family of 8! On the upside, she & I have found some special foods we hide in the freezer just for us! lol!

I just wonder if my allergies aren't somehow related to the achalasia....they have worsened as the achalasia symptoms have worsened. I also understand there are suspicions that A is caused by an auto-immune problem.

I also want you to know that I always appreciate your posts...some because our situations are similar, but I guess mostly because you are knowledgeable & positive about this dilemma we are all in! Keep it up! Cindi

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Boston Pete wrote:

I can't count how many poopy diapers have I changed from my children when they were nursing for all of their nutritional needs.

Kudos to you, Pete -- my hubby changed a few poopy dipes a few years back, but somehow usually managed to "not notice" most of the time. His old school buddy literally NEVER ONCE changed a poopy dipe -- he can gut a dead deer with his bare hands, but can't wipe poop off a teeny butt with a wipe??? *sigh*Deb

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Thanks Cindi = it is so great to find someone with similar problems - one does not feel so different!

Joan

Johannesburg South Africajpearse@...

Re: IBS

Joan - I really feel for you having both dairy & wheat. I have a lot of food allergies, but I can have wheat. My daughter has celiac disease (she & I were diagnosed within 2 months of each other! ACK!) & it seems anything I can eat, she can't & vice versa. It is a challenge cooking for a family of 8! On the upside, she & I have found some special foods we hide in the freezer just for us! lol!

I just wonder if my allergies aren't somehow related to the achalasia....they have worsened as the achalasia symptoms have worsened. I also understand there are suspicions that A is caused by an auto-immune problem.

I also want you to know that I always appreciate your posts...some because our situations are similar, but I guess mostly because you are knowledgeable & positive about this dilemma we are all in! Keep it up! Cindi

-------Original Message-------

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Cindi I have also wondered about the auto-immune bit. But then not all the others in the group have such viscous allergies as you and I seem to have. I have also had chicken-pox and shingles so there is another link there. I must have had a milk allergy as a child because my teeth were rotten. Both my children had the same problem with crumbly teeth and the dentist suggested I take them off milk. When I did I discovered their snotty noses cleared up as well. Both their teeth are now reasonably strong. My son's children all have shown milk sensitivity as babies and were fed a substitute - the one who had the shortest time on the milk substitute has had problems with her teeth.

I started learning to cope without milk some 35 years ago - before there was soft, yellow margarine and I had to colour it myself with butter essence! When I finally realised I had a milk allergy it was not so difficult to cope with as I had been doing it for the children for ages.

Yes my allergies have got more/ worse with age - but how does one know for sure when achalasia started - it is such a slow starter and so silent you have no idea.

I was diagnosed with a hiatus hernia when I was 26 and then they did not see the achalasia - I saw the x-rays. So it all happened in the ensuing 20 odd years- a long time. The wheat sensitivity I discovered when I read D.Adamo's book - The Eat Right Diet, and when I recognised his description of the problems caused by an intolerance to wheat and milk, I tried cutting it out and what a difference it made.

It is amazing how much wheat and milk there is in convenience foods. I have become so lazy in my old age I would love to just open a packet !

It is all such a challenge to survive !

Keep going !

Joan

Johannesburg South Africajpearse@...

Re: IBS

Joan - I really feel for you having both dairy & wheat. I have a lot of food allergies, but I can have wheat. My daughter has celiac disease (she & I were diagnosed within 2 months of each other! ACK!) & it seems anything I can eat, she can't & vice versa. It is a challenge cooking for a family of 8! On the upside, she & I have found some special foods we hide in the freezer just for us! lol!

I just wonder if my allergies aren't somehow related to the achalasia....they have worsened as the achalasia symptoms have worsened. I also understand there are suspicions that A is caused by an auto-immune problem.

I also want you to know that I always appreciate your posts...some because our situations are similar, but I guess mostly because you are knowledgeable & positive about this dilemma we are all in! Keep it up! Cindi

-------Original Message-------

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This is so bizarre. I was also diagnosed with a hiatal hernia. The GI doc picked it up on an endoscopy. What is really weird, though, is that it has never shown up on a barium swallow (I have had 2 - one before & one after the hiatal hernia diagnosis).

I'm very much looking forward to getting through the consult with the surgeon at Hershey tomorrow. Whether or not I am satisfied with him, I am going to see if he knows of a GI doc in the area who has dealt with this. I still know of no one.

Cindi

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  • 1 year later...
Guest guest

Hi Doris

You can check China Off., Gelsemium S., Natrum

Muriaticum, Phosphorus, Arsenicum Album, Podophyllium

P., on Homeopathic Medical Materia, to choose which

one could be better.

With

Programs->Therapy ->Biofeedback->Large Intestine

Have a great day.

From Dr. Fuentes G. in Puebla, México

___________________________________________________________

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Hi Doris,

Check for Celiac's Crohn's or any other inflammatory condition of the bowel or small intestine. Check for food allergies or sensitivities, especially wheat. Check all the pathogens. Check for Leaky Gut. find the cause and balance it. Use healing herbs for this area such as Aloe Vera Juice Slippery Elm or Okra Pepsin. Get a good quality probiotic such as Acidolphilus/Bifidus to repopulate the bowel.

Phil

-----Original Message-----From: qxci-english [mailto:qxci-english ]On Behalf Of Land, DorisSent: Tuesday, February 28, 2006 5:37 AMqxci-english Subject: IBS

Hello All

I do not write to the group much, but I really enjoy this group it puts out a lot of important information.

I have been a QXCI user for about three years and my husbands daughter has a really sever problem as soon as she eats she has to go straight to the bath room.

If anyone has information on how to help her with this condition either with Protocals, vit., homopathic etc. please let us know, it is really a sad thing when you can't enjoy the food you eat.

Thanks

Doris G. Land

Ph: (864)-801-5922 Fax: (864)-801-2121 E-Mail: doris.land@...

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Hi Doris I have attached some info regarding gluten symptoms and

foods that are ok.

Cheers .

Gluten

Symptoms of gluten sensitivity:

For Adults; Diarrhea or constipation

;Tiredness and fatigue

; anemia

; mouth ulcers and sore tongue

; heartburn, abdominal pains bloating

; weight loss

; infertility

; bone pain from osteoporosis

; arthritis

; weak muscles ( myopathy )

; damaged nerve function ( neuropathy )

; dermatitis herpetiformis ( an itchy vescular rash)

; can cause migranes

For babies and children

; become listless, miserable and irritable

; go off their food and lose their appetite

; grow poorly (poor weight gain failure to thrive)

; have short stature (poor height gains)

; Get diarrhea (bulky, pale, smelly bowel motions)

; become constipated

; have enopresis (soiling and loss of bowel control)

; show muscle loss particularly around the buttocks

; have a pot belly due to abdominal distention

; develop nutritional deficiencies ( low iron, anemia)

; have immunodeficiency ( more illness and infections)

; poor muscle growth (weakness and developmental decay, muscle

wasting)

; poor bone growth ( osteoporosis)

Gluten free cereals

Rice ( flour, cakes, biscuits, pasta, bran, puffs, crackers)

Corn/maize (flour, cornmeal, puffs, pasta, crackers)

Sago, tapioca

Buckwheat flour (buckwheat is not wheat)

Legumes and soy, lentils (whole flour, or sprouts)

Sorghum

Millet

And

Oats for those that can tolerate it

What can I eat?

- All unprocessed fruits.

- All unprocessed vegetables and beans

- All unprocessed meats, poultry, fish and eggs

- All simple dairy products

- All unprocessed gluten-free cereals

- All unprocessed nuts

Food additives that contain gluten

Amylases:1100- these enzymes may have been

processed from malted cereals and

therefore may contain traces of gluten. They are

commonly used in commercial breads.

Glutamates: 620, 621, 622, 623, 624, 625- they

are generally gluten-free. But because some may be derived from

wheat, they are best avoided.

- Starch:1400's range

- Maltodextrin- if derived from wheat

- Malt extract

- Vinegar - if malt based

- Soy sauce – if wheat based.

- HVP – Hydrolised vegetable protein.

- HPP- Hydrolised plant protein

Contamination with gluten

When foods are manufactured on the same machinery that has

previously been used to make other gluten containing food. Then

these foods may accidentally contain gluten. This is called a cross

over contamination, oats can come under this category and so cause

problems. Contamination can also occur on cookware knives tins and

cutting boards.

Gluten can be found in lipsticks and toothpastes, supplements and

some medicines. The glue on some envelopes can contain gluten.

Remember one gram of gluten per day is enough to cause sustained

bowel damage.

All Purpose Gluten-Free Flour

1 cup maize cornflour or arrowroot

2 cups soya flour or chickpea flour

2 cups rice flour (white or brown)

3 cups of potato starch flour

Baking Powder

To make 1 teaspoon: use ½ teaspoon cream of tartar mixed

with ÂĽ teaspoon bicarbonate of soda

Vinegar Use lemon juice

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Guest guest

I love this answer. For any of you who have yet to take a class in

Homeopathy, please do so soon. The Homeopathic Medical Materia is an

extremely old and NOT outdated book. Centuries of study went into finding

out symptoms and the homeopathic which helps them. The book is designed as

a guide, look up a symptom, write down the items, go to the next symptom and

cross off anything which does not apply, go to the next symptom, and cross

off the items which do not apply (or make strike marks next to the items if

you like) at the end you will find you only have one or two items which are

common for all the symptoms...pretty cool.

Yours in Health,

Dr. Kathy

Re: IBS

> Hi Doris

>

> You can check China Off., Gelsemium S., Natrum

> Muriaticum, Phosphorus, Arsenicum Album, Podophyllium

> P., on Homeopathic Medical Materia, to choose which

> one could be better.

>

> With

> Programs->Therapy ->Biofeedback->Large Intestine

>

> Have a great day.

>

> From Dr. Fuentes G. in Puebla, México

>

>

>

>

>

> ___________________________________________________________

>

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Guest guest

peppermint capsules work great, too. For IBS, also check out the gall

bladder as that can cause a panoply of digestive ailments. is

Rotella, M.Ac., CNC

>

> IBSHi Doris,

> Check for Celiac's Crohn's or any other inflammatory condition of

the bowel

> or small intestine. Check for food allergies or sensitivities,

especially

> wheat. Check all the pathogens. Check for Leaky Gut. find the cause and

> balance it. Use healing herbs for this area such as Aloe Vera Juice

Slippery

> Elm or Okra Pepsin. Get a good quality probiotic such as

> Acidolphilus/Bifidus to repopulate the bowel.

> Phil

> IBS

>

>

> Hello All

>

> I do not write to the group much, but I really enjoy this group it

puts

> out a lot of important information.

>

> I have been a QXCI user for about three years and my husbands

daughter has

> a really sever problem as soon as she eats she has to go straight to the

> bath room.

>

> If anyone has information on how to help her with this condition

either

> with Protocals, vit., homopathic etc. please let us know, it is

really a sad

> thing when you can't enjoy the food you eat.

>

> Thanks

>

> Doris G. Land

>

>

> Ph: (864)-801-5922

> Fax: (864)-801-2121

> E-Mail: doris.land@...

>

>

>

>

> ............................................

>

>

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You might wish to check the bacteria level of the body, especially the intestine. This tends to be the main cause I have seen for this condition. Easily helped with bacteria auto zap and then get them on ionic silver to minimize the growth of the bad bacteria while the body kills it off. You may also wish to add a zapper (Hulda speaks often of them) and then when better get the acidophilus back into the body (since silver does not allow bacteria to multiply you can use it now, but it will not increase the good bowel flora as fast because of the silver, however it does put some in).

Yours in Health,

Kathy

IBS

Hello All

I do not write to the group much, but I really enjoy this group it puts out a lot of important information.

I have been a QXCI user for about three years and my husbands daughter has a really sever problem as soon as she eats she has to go straight to the bath room.

If anyone has information on how to help her with this condition either with Protocals, vit., homopathic etc. please let us know, it is really a sad thing when you can't enjoy the food you eat.

Thanks

Doris G. Land

Ph: (864)-801-5922 Fax: (864)-801-2121 E-Mail: doris.land@...

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