hi beth

[Guest guest]

Hi Robin,

Thanks for your response. My brother is 61. He was just diagnosed about 4

years ago. His progression has been quite fast. He is in a scooter. I think

his progression has been fast because he has numerous other health issues. He

is a type 2 diabetic. He is on dialysis for kidney failure. He has had 2

failed transplants. He has had brain surgery for a blood clot. Now- he also

has SMA. Sometimes I can't believe all that he has endured. If you wrote his

life story in a book, no one would believe it. He is adult onset and I am type

3. My progression began much sooner and has been much slower. He has breathing

problems. So far, I have not. I also enjoy my scooter. It really opens up a

whole new world that began to be quite small. Thanks for all your information.

Take care for now.

Peace to You,

Beth

Re: Accepting Your Disability

I am 47 (soon to be 48 on Christmas Day) I have the Adult Onset of SMA (Type

4) ...I am also married for 22 years to my wonderful husband who isn't

physically challenged..I was diagnosed with SMA 2 weeks before Our 2nd Wedding

Anniversary...

WE have been through everything together...

Be Blessed..

Tomlin <sjtomlin@...> wrote:

Well said, !

Every day is different. Some days when I am in more pain or weaker it's a

struggle and I feel more depressed and I worry about tomorrow and what that

will bring. It also seems the weaker I become the more they cut back the

Home Care Services. My worst fear is ending up in a nursing home while I'm

in my 40's!!

I suffer from anxiety, depression, low self-esteem and

poor self-image also.

Who is the oldest person on this List?

Take care

Bye for now

" All that I am or I hope to be I owe to My Mother & My Father "

Mar

---------------------------------

Want to start your own business? Learn how on Small Business.

[Guest guest]

Beth, Thanks for telling me your brother's story. It's amazing what he has

had to go through. He must be a really strong person to have endured all that

and still be going. Maybe he should write a book. I've always wanted to do that,

but I'm not sure what to write about.

Robin

Re: Accepting Your Disability

I am 47 (soon to be 48 on Christmas Day) I have the Adult Onset of SMA (Type

4) ...I am also married for 22 years to my wonderful husband who isn't

physically challenged..I was diagnosed with SMA 2 weeks before Our 2nd Wedding

Anniversary...

WE have been through everything together...

Be Blessed..

Tomlin <sjtomlin@...> wrote:

Well said, !

Every day is different. Some days when I am in more pain or weaker it's a

struggle and I feel more depressed and I worry about tomorrow and what that

will bring. It also seems the weaker I become the more they cut back the

Home Care Services. My worst fear is ending up in a nursing home while I'm

in my 40's!!

I suffer from anxiety, depression, low self-esteem and

poor self-image also.

Who is the oldest person on this List?

Take care

Bye for now

" All that I am or I hope to be I owe to My Mother & My Father "

Mar

---------------------------------

Want to start your own business? Learn how on Small Business.

[Guest guest]

Thanks for telling us whats going on.

Sorry its been so long with the moderation thing.

Scarlet and I are working hard to revive the WW.

We also are grabbing up any useful links and articles,

and bringing them to the group.

I love Pam too. She is really great.

Sorry to hear about you being on the TP list, and about you falling,

and breaking bones.

OUCH

If you have any links or articles we would love to hear them.

Thanks again.

love

don in ks