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June, so sorry about your night sweats. How long has it been going on?

Have you contacted your rheumatologist about this? I would.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] This and That

> First, welcome to all new members. It is great to see how many people

are recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and

change my pj's and get another pillow. At first, my head was so wet I

thought my water pillow was leaking. I spoke to my GP about it and he is

sending me for blood tests today to see if something is going on. He

mentioned a couple of things, which I was not impressed with, like

Lymphoma or neoplasia and other than that he says it may well be

something I just have to live with. Hard to explain to a male doc how

important my hair is to me and waking up with wet hair pretty well

confines me to staying home. I depend on my hairdresser every week to

keep my hair looking good and this is now getting too much when I go on

Sat to get it done and wake up Sunday with totally wet, yucky looking

hair. CBC called yesterday wanting to do another interview and I had to

refuse since that was no way I would appear on tv with ratty looking

hair.

> Vanity, thy name is woman.

>

> Hugs

> June

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June,

Have you had a TB test? Since night sweats is a primary symptom of TB and

Enbrel use has been linked to TB, the possibility exists. Hyperthyroidism

is another possibility. I can imagine you're pretty scared at the serious

possibilities, but try not to think that it's something like Lymphoma or

neoplasia.

I'd be hiding out from TV cameras too if I were having a bad hair day. I

hope your blood tests find out what is going on.

a

> First, welcome to all new members. It is great to see how many people are

> recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and change my

> pj's and get another pillow. At first, my head was so wet I thought my water

> pillow was leaking. I spoke to my GP about it and he is sending me for blood

> tests today to see if something is going on. He mentioned a couple of things,

> which I was not impressed with, like Lymphoma or neoplasia and other than that

> he says it may well be something I just have to live with. Hard to explain to

> a male doc how important my hair is to me and waking up with wet hair pretty

> well confines me to staying home. I depend on my hairdresser every week to

> keep my hair looking good and this is now getting too much when I go on Sat to

> get it done and wake up Sunday with totally wet, yucky looking hair. CBC

> called yesterday wanting to do another interview and I had to refuse since

> that was no way I would appear on tv with ratty looking hair.

> Vanity, thy name is woman.

>

> Hugs

> June

>

>

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I had a TB test before I started Enbrel but may be something I should be

mentioning to my doctor. Thanks.

Hugs

June

----- Original Message -----

From: a54

June,

Have you had a TB test? Since night sweats is a primary symptom of TB and

Enbrel use has been linked to TB, the possibility exists. Hyperthyroidism

is another possibility. I can imagine you're pretty scared at the serious

possibilities, but try not to think that it's something like Lymphoma or

neoplasia.

I'd be hiding out from TV cameras too if I were having a bad hair day. I

hope your blood tests find out what is going on.

a

> First, welcome to all new members. It is great to see how many people are

> recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and change

my

> pj's and get another pillow. At first, my head was so wet I thought my water

> pillow was leaking. I spoke to my GP about it and he is sending me for blood

> tests today to see if something is going on. He mentioned a couple of

things,

> which I was not impressed with, like Lymphoma or neoplasia and other than

that

> he says it may well be something I just have to live with. Hard to explain

to

> a male doc how important my hair is to me and waking up with wet hair pretty

> well confines me to staying home. I depend on my hairdresser every week to

> keep my hair looking good and this is now getting too much when I go on Sat

to

> get it done and wake up Sunday with totally wet, yucky looking hair. CBC

> called yesterday wanting to do another interview and I had to refuse since

> that was no way I would appear on tv with ratty looking hair.

> Vanity, thy name is woman.

>

> Hugs

> June

>

>

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, it has been on and off for about a month but recently has been every

night. I am emailing my rheumatologist today. Thanks.

Hugs

June

[ ] This and That

> First, welcome to all new members. It is great to see how many people

are recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and

change my pj's and get another pillow. At first, my head was so wet I

thought my water pillow was leaking. I spoke to my GP about it and he is

sending me for blood tests today to see if something is going on. He

mentioned a couple of things, which I was not impressed with, like

Lymphoma or neoplasia and other than that he says it may well be

something I just have to live with. Hard to explain to a male doc how

important my hair is to me and waking up with wet hair pretty well

confines me to staying home. I depend on my hairdresser every week to

keep my hair looking good and this is now getting too much when I go on

Sat to get it done and wake up Sunday with totally wet, yucky looking

hair. CBC called yesterday wanting to do another interview and I had to

refuse since that was no way I would appear on tv with ratty looking

hair.

> Vanity, thy name is woman.

>

> Hugs

> June

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  • 7 months later...
Guest guest

I have now lost about 30lbs and have 70 to go.

My male cat is the big one , he is all black except for a few whitle hairs. He loves any kind of food he can find. He even opens all my cabinets and the treat cans.

One of the females is his sister and very dainty the other is about 7 or 8 and is a Hymilain Persian. Flat face and long hair. I love all of them.

I wish I was still a size 6 but I am now out of my 24 and into 20 so that is good I guess. Why do women get fat and men get contented?

Well hope you have a good day

The hillbily

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  • 8 months later...

I also had s spot on my liver. It is still there and the doctors just keep an

eye on it. I also have a spot on my pancreas that they are watching.

The docs feel that it is probably fat but want to watch it just in case.

                                                                         

                                                           SPOT ON LIVER. Prior

to transplant I too had a spot.they continued to watch it carefully to see if it

got any bigger.it didn't.  I asked what they would do if it did.they said

transplant me immediately. But.as I said mine never got to cancer stage. I had

ultrasound and CT every 3 months.    I see we have more SPAM.  I think someone

did this out of nastiness..as this is much more then normal for a group. Joanne

Guess I will have to moderate new people again.although I hate to have to do

that.sigh.  Joanne

>

>

>Jj Cathcart

>jjcathcart@...

>EarthLink Revolves Around You.

>

>

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>

> I also had s spot on my liver. It is still there and the doctors

just keep an eye on it. I also have a spot on my pancreas that they

are watching.

> The docs feel that it is probably fat but want to watch it just in

case.

>

                                                               

                                                                     

SPOT ON LIVER. Prior to transplant I too had a spot.they continued to

watch it carefully to see if it got any bigger.it didn't.  I asked

what they would do if it did.they said transplant me immediately.

But.as I said mine never got to cancer stage. I had ultrasound and CT

every 3 months.    I see we have more SPAM.  I think someone did this

out of nastiness..as this is much more then normal for a group.

Joanne Guess I will have to moderate new people again.although I hate

to have to do that.sigh.  Joanne

> >

> >

> >Jj Cathcart

> >jjcathcart@e...

> >EarthLink Revolves Around You.

> >

> >

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  • 11 months later...

Jeanette, thanks for the information on autoimmune diseases. Over the past

few years, I've been increasingly confused about their origin.

Only about three years ago, the New York Times ran an article (which I have

in my computer files) stating that fetal and maternal cells crossing the

placental barrier were responsible for autoimmune diseases in mother and/or

child.

The problem might not show up for decades, if ever, and it could carry over

for another generation (I definitely don't understand this part). This

version was presented as fact, not theory. I wonder if this version is now

discredited, discarded, or if it fits into the new gene theory in some way. Do

you

know?

Harper

In a message dated 1/15/07 10:18:03 AM, jkwehr@... writes:

>

> Re: Drug Induced AIH

> The theory is that there is a gene on chromosone 11, location q23, that

> is responsible

> for most autoimmune diseases. You either have the gene or you don't.

> Something

> triggers it, and it could be many different things...... triggers it,

> contact of some kind

> (which includes drugs), an illness that causes inflammation,

> environment, etc. It is

> so individual to each person's makeup. Siblings may both have the gene

> and have

> similar life patterns, but only one will develop the condition. No one

> knows why, but

> research is working on it.

>

> Bar of soap thing: putting a bar of soap in your bed, either in an old

> sock or under

> the bottom sheet, helps with leg cramping and RLS (restless leg

> syndrome). Doesn't

> seem to matter what kind of soap is used, and sounds stupid, but it

> works for the

> majority of people who try it. Who knows why, it's a mystery!

>

> Itching: is thought to be caused by the buildup of excess bile in the

> skin layers, and is

> more common in PSC and PBC than in AIH, because the first 2 involve bile

> duct

> destruction. Ursodiol helps thin the bile so it can flow out of the

> liver more easily

> and not pool there, which causes damage to the liver tissue. One of the

> few benefits

> of prednisone is that it will kill the itch (that is NOT a good reason

> to take pred, lol)

>

> These are ultra simple explanations. Hope it's helped.

> Jeannette PBC/AIH OR dx 98 40 years in medical related work.

>

>

>

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Harper wrote: " Only about three years ago, the New York Times ran

an article (which I have in my computer files) stating that fetal and

maternal cells crossing the placental barrier were responsible for

autoimmune diseases in mother and/or child.

The problem might not show up for decades, if ever, and it could carry

over for another generation (I definitely don't understand this part). This

version was presented as fact, not theory. I wonder if this version is now

discredited, discarded, or if it fits into the new gene theory in some way.

Do you know? "

We get half our genes from each parent. If one doesn't 'print' well on

our new chromosomes, it is just a little different than before...a mutant.

If it's dominant, it will show itself early on. If it's a recessive

gene, it can

lie around for generations and not show up until something happens to

wake it up. There is some kind of trigger that activates it and research

now is concentrating on finding out what triggers many different diseases.

It can be as simple as a virus side effect or food allergy, or as complex

as the body's hormonal system. Why does one disease favor one gender

and a very similar one favor the other? (PBC- female, PSC- male, AIH-

pretty equal)

Cells cross the placental barrier all the time and it definitely causes

problems in dominant-recessive conditions when mother/child are on

opposite sides of the fence. Think Rh factor, mother negative, child

positive from father's dominant gene. Mother actually allergic to fetus

and her system tries to destroy the positive blood cells that are making

her 'sick'. This is not autoimmune, but it's logical that this exchange

could

be one of the triggers that IS responsible for autoimmune diseases.

Remember, the genes are set at conception. They don't change or mutate

after that. What we are we owe to good ol' mom and dad.

Jeannette

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With my mom having PBC, I am the only one of six children to have this. My mom

suspects that one her aunts who died when she was young, had it too.She was

young & died rather quickly and had ascites. No one seemed to know what it was

at the time, It's hard to say what causes this - I'm still amazed in the numbers

of people who are afflicted with autoimmune diseases.

Jeannette Ehrlich <jkwehr@...> wrote: Harper wrote: " Only

about three years ago, the New York Times ran

an article (which I have in my computer files) stating that fetal and

maternal cells crossing the placental barrier were responsible for

autoimmune diseases in mother and/or child.

The problem might not show up for decades, if ever, and it could carry

over for another generation (I definitely don't understand this part). This

version was presented as fact, not theory. I wonder if this version is now

discredited, discarded, or if it fits into the new gene theory in some way.

Do you know? "

We get half our genes from each parent. If one doesn't 'print' well on

our new chromosomes, it is just a little different than before...a mutant.

If it's dominant, it will show itself early on. If it's a recessive

gene, it can

lie around for generations and not show up until something happens to

wake it up. There is some kind of trigger that activates it and research

now is concentrating on finding out what triggers many different diseases.

It can be as simple as a virus side effect or food allergy, or as complex

as the body's hormonal system. Why does one disease favor one gender

and a very similar one favor the other? (PBC- female, PSC- male, AIH-

pretty equal)

Cells cross the placental barrier all the time and it definitely causes

problems in dominant-recessive conditions when mother/child are on

opposite sides of the fence. Think Rh factor, mother negative, child

positive from father's dominant gene. Mother actually allergic to fetus

and her system tries to destroy the positive blood cells that are making

her 'sick'. This is not autoimmune, but it's logical that this exchange

could

be one of the triggers that IS responsible for autoimmune diseases.

Remember, the genes are set at conception. They don't change or mutate

after that. What we are we owe to good ol' mom and dad.

Jeannette

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  • 1 month later...
Guest guest

Joanne, thanks so much for the encouragement,The rules said no religion, so I

was just trying to be compliant. Thanks again. Debi

Jj Cathcart <JJCATHCART@...> wrote:

First.we freely pray for each other here........... is a small close group.

also.whining is VERY acceptable here also.... we all need a safe place to whine

off and on. Joanne

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  • 1 year later...
Guest guest

It has been rather quiet...or perhaps it is just I have been too lazy to write

anything.

But I DO love to garden too. We are still hopeful that our home will sell

sometime this summer but if it doesn't, we will be content to stay.

SOOOOO, I have planted my garden in pots....I did that last year and it was OK.

I have a few little green tomatoes growing already. My orange and lemon trees

hae blossomed and I have a some nice little fruit growing! Then, I have two

artichoke plants that are producing like mad. I have two varities but no

names...one variety is the big round ones. Then, some little ones that are just

so very tasty. This is the third year that I have had the plants....they

literally take over!

But, I am still happy with my little garden...tomatoes, peppers, and herbs are

my favorites.

As for me, I am out of remission and back on the 6MP. I think I am going

through a flare because I feel so yucky. I am supposed to have labs every week,

but do them every 3 weeks.....I see the GI later this month. I just figure that

if the labs are bad enough, they will call me in. I receive copies and just

don't worry if they are off.

Anyway, the birds are singing, the cats are purring, my standard poodle puppy is

huge. Silly dog thinks our bed is hers....I get to take a little piece on MY

side.....she has decided that we get to share MY half! LOL.....for the love of

a dog!

Have a great week.

Debby

[ ] This and that

Yon can always tell when the nice weather has finally come .............. the

number of posts drastically drops off. But.I think it is wonderful that so many

of us feel good enough to get outdoors and enjoy life. Even those of you with no

yards can once again open up the windows and let in the nice warm breezes. Now

is a good time for some of you lurkers to start to post. Most people here always

read even when they have no time to do their usual posting so ask any questions

you have and someone will reply. Anyone here gardening? I do. Started all my

veggys inside and next week will transplamt outside. I even started my corn

inside as if I put the seed in the ground all our chippys and red squirrels

think I hid their food and dig it up and eat it all. The first time I planted

the corn and the sunflower seeds outside they ate it all! So.now all seeds are

started inside. I also start some flowers inside. It gives me a jump on the

season. We also bought more trees to plant around the property. My eye has

healed up nicely and I go back in 6 months for a checkup to see if all is still

well. I hope you are all as well as can be. Lets enjoy the moment to its

fullist. Blessings, Joanne

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Guest guest

How true and thanks for the reminder we need to keep each other going.

Sounds heavenly working outdoors.  We live in the desert and can't till the soil

but I can smell the good clean earth as you're speaking and remember the smell

of fresh cut grass and spring blooming.  How precious.  Enjoy that part of

nature - some of us miss it terribly.

Thanks for sharing.

Glad you're healing so well - keep up the good work.

Hugs.

Dee

[ ] This and that

Yon can always tell when the nice weather has finally come ............ .. the

number of posts drastically drops off. But.I think it is wonderful that so many

of us feel good enough to get outdoors and enjoy life. Even those of you with no

yards can once again open up the windows and let in the nice warm breezes. Now

is a good time for some of you lurkers to start to post. Most people here always

read even when they have no time to do their usual posting so ask any questions

you have and someone will reply. Anyone here gardening? I do. Started all my

veggys inside and next week will transplamt outside. I even started my corn

inside as if I put the seed in the ground all our chippys and red squirrels

think I hid their food and dig it up and eat it all. The first time I planted

the corn and the sunflower seeds outside they ate it all! So.now all seeds are

started inside. I also start some flowers inside. It gives me a jump on the

season. We also bought

more trees to plant around the property. My eye has healed up nicely and I go

back in 6 months for a checkup to see if all is still well. I hope you are all

as well as can be. Lets enjoy the moment to its fullist. Blessings, Joanne

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Guest guest

Yes, Joanne, it has been quiet online. Personally, I've been feeling

very tired and menopausal and not great company for a chat!

Nevertheless the weather is magnificent here in Cairns, Australia and

I always feel more cheerful when I've been out working in my tropical

garden.

We can only grow very water tolerant fruit and vegies here because of

the Wet Season rains. At the moment we have a lovely bunch of bananas

coming on, the occasional paw paw and our mango tree is huge. At

certain times of the year, we grow pumpkins, sweet potatoes and

chillies. We have a lemon tree and a passionfruit vine growing in

pots.

Mostly though, I just love all our beautiful tropical plants. We

don't have a huge yard, but it's fairly full of gardens.

Your squirrels sound delightful, but of course all these little

creatures can cause us some problems. We're occasionally visited by a

bandicoot or a tree snake (non-venomous). We also have green tree

frogs, gheckos and skinks. There are so many gheckos, some even live

IN our house. We don't mind them though. They keep the insects under

control for us!

Thanks for the reminder to seek out and enjoy the good things about

each day.

Sue

>

> Yon can always tell when the nice weather has finally

come .............. the number of posts drastically drops off.

But.I think it is wonderful that so many of us feel good enough to

get outdoors and enjoy life. Even those of you with no yards can

once again open up the windows and let in the nice warm

breezes. Now is a good time for some of you lurkers to start

to post. Most people here always read even when they have no time to

do their usual posting so ask any questions you have and someone will

reply. Anyone here gardening? I do. Started all my veggys inside

and next week will transplamt outside. I even started my corn inside

as if I put the seed in the ground all our chippys and red squirrels

think I hid their food and dig it up and eat it all. The first time

I planted the corn and the sunflower seeds outside they ate it all!

So.now all seeds are started inside. I also start some flowers

inside. It gives me a jump on the season. We also bought more trees

to plant around the property. My eye

has healed up nicely and I go back in 6 months for a checkup to see

if all is still well. I hope you are all as well as can be. Lets

enjoy the moment to its fullist. Blessings, Joanne

>

>

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  • 8 months later...

Trying to answer a few............ the alternative list Sharon referred to is at: jovo/ (Again.... one can be on more than one list :-) It is not as active as it used to be but a good place for research. If you join you have access to the archives and can put keywords into the message section and find all those articles. I wish I could take ALA but I break out in a rash. I do take a lot of herbs but I am also not kidding myself that they will kill my Hep C because nothing will do that except interferon and ribavirin. I just hope to feel a little better and perhaps slow my progression.......... who knows for sure!

Don't forget about GOOGLE! Just go to www.google.com and put in any key words about things you are asking questions about if others don't get back to you right away. A lot of information will come up.

There is a site at http://www.notmilk.com/ that is interesting. I didn't see anything specific about liver disease but I haven't been there in awhile and someone else might run across some info they can share.

I have a Juiceman Juicer that is about 14 years old but I still love it :-) I don't use it as often as I used to but it is a good product. You can probably find a place to buy it by googling.

Also you can probably find a lot of the recipes that way. Here's a couple:

http://www.ezjuicers.com/recipes.htm

http://www.juicingbook.com/

http://www.ezjuicers.com/juiceman.htm

I have a personal friend that did IV Vit C thinking he was going to kill his Hep C........... NOT! Not only did he not kill it but when he tried treatment about a year later his viral load went up during the first three months. That is the first time I ever heard of that! Could the C have caused that? Who knows....................

I know MANY people that are geno ones and fours that are MANY YEARS CLEAR now. It is a 50/50 shot. Hepatitis C is a carcinogen. My Vit C friend decided to try treatment rather than get liver cancer. He hopes to try the VX-950 when it comes out. He would have tried daily infergen but he got too busy with some business things. I know many nonresponders that cleared with the daily Infergen.

Keep your glasses half full........... do whatever it takes to feel better........... but please don't delude yourself about treatment. Interferon and antivirals are the only things that will kill hepatitis C if you don't clear it on your own.

Peace

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Pam and ; your cordyceps went on their way to your homes this morning : )))

Yeah, I agree about not killing the HepC; I take it to help my body fight....like I said, when the body de-fuels and do not have the supplies it needs to fight is when the liver begins to fail. I've seen it in the blood chemistries over and over again. The liver is an incredible organ and will regenerate..no other organ in the body can do this, feed it and it will keep pluggin' away. toodles...I"m off to work.

-- [ ] This and that

Trying to answer a few............ the alternative list Sharon referred to is at: jovo/ (Again.... one can be on more than one list :-) It is not as active as it used to be but a good place for research. If you join you have access to the archives and can put keywords into the message section and find all those articles. I wish I could take ALA but I break out in a rash. I do take a lot of herbs but I am also not kidding myself that they will kill my Hep C because nothing will do that except interferon and ribavirin. I just hope to feel a little better and perhaps slow my progression.......... who knows for sure!

Don't forget about GOOGLE! Just go to www.google.com and put in any key words about things you are asking questions about if others don't get back to you right away. A lot of information will come up.

There is a site at http://www.notmilk.com/ that is interesting. I didn't see anything specific about liver disease but I haven't been there in awhile and someone else might run across some info they can share.

I have a Juiceman Juicer that is about 14 years old but I still love it :-) I don't use it as often as I used to but it is a good product. You can probably find a place to buy it by googling.

Also you can probably find a lot of the recipes that way. Here's a couple:

http://www.ezjuicers.com/recipes.htm

http://www.juicingbook.com/

http://www.ezjuicers.com/juiceman.htm

I have a personal friend that did IV Vit C thinking he was going to kill his Hep C........... NOT! Not only did he not kill it but when he tried treatment about a year later his viral load went up during the first three months. That is the first time I ever heard of that! Could the C have caused that? Who knows....................

I know MANY people that are geno ones and fours that are MANY YEARS CLEAR now. It is a 50/50 shot. Hepatitis C is a carcinogen. My Vit C friend decided to try treatment rather than get liver cancer. He hopes to try the VX-950 when it comes out. He would have tried daily infergen but he got too busy with some business things. I know many nonresponders that cleared with the daily Infergen.

Keep your glasses half full........... do whatever it takes to feel better........... but please don't delude yourself about treatment. Interferon and antivirals are the only things that will kill hepatitis C if you don't clear it on your own.

Peace

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  • 7 months later...

:-) way more than that!!!

Hugs

_____

From: [mailto: ]

On Behalf Of jjcathcart

Sent: August 23, 2009 1:49 PM

Subject: [ ] This and That

I friend of mine just emailed me asking if she could help with

LiverSupport. WOW........ So.I sent her an invite to group. She is a PBCer

and a long time member .........she knows a lot about all this stuff.

PLUS.she is a wonderful gal.........her name is Claudette....... I am happy

right now. We have this front now that is happily

keeping hurricane Bill off the coast so we are fine..........Same sort of

front we have had most of the summer ....we are calling this the year of no

summer. Soon it will be fall........sigh. My green bean now have a fungus

so will have to pull and burn.........One of my fav veggies too. So far my

cukes and squashes are ok.they have more air around them. The red

squirrel and chippys are madly stashing away seed for winter....we love to

feed them .along with the birds. I always miss my hummingbirds after they

leave but I will have them until end of Sept. I make their food sweeter

from now on to give them more energy for their long flight to come.

I have been happily painting these past few days .actually I use pen and ink

and add a bit of water color. I love to do mixed media. Need to

order another Unkers now as I gave my last jar to my neighbor when she

injured her hand...... I hope all are doing as well as possible and if

anyone has questions to please post them. Also, anyone want to just post

about their days feel free. We ARE more then a walking liver disease.

Joanne

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http://thirdpartyof

<http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYb0jSO1ndxNYAawT1PD6g2

0xhxCjGLeXqhu4UsxpuRPJ3cJSAO0bW/>

fers.netzero.net/TGL2241/fc/BLSrjpYb0jSO1ndxNYAawT1PD6g20xhxCjGLeXqhu4UsxpuR

PJ3cJSAO0bW/

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