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Welcome, Elma; first off, prednisone has the unpleasant and dangerous

side effect of bowel perforation, at a time when leaky gut syndrome

and inflammation is already perforating the bowel lining.

I've seen asthma and it's close relative COPD reverse or reduce in

just days with an increase of glutathione and other antioxidants. The

research has supported the low glutathione=high lung damage link for

years and the damage and restriction can be reduced.

Duncan

>

> Hi,

> I have recently joined this group because I wanted to get some

answers

> from people that have experienced clearing yeast from the gut. Is

it

> possible to do? I asked my doctor and she said she has cured

thousands-

> -well, I am not sure I believe that.

>

> I have asthma/chronic bronchitis. Probably the antibiotics and

> prednisone have let the yeast take over. I have stayed on the diet

for

> foods that I am allergic to which is just about everything--wheat,

> gluten, eggs, milk, yeast among a few others. The Nystatin really

does

> good for me but my body could not take it more than 4 weeks. Then

she

> gave me something like SF22 and it did the same thing. I am now

> starting 1/2 dose of each and bulk for the stool.

>

> I am getting discouraged and wonder if I have to be on this diet for

> life. That's why I would like to hear from someone that has

actually

> been successful. Thanks for your time. Elma

>

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Guest guest

Hello I am new How bad is transplant

> >

> > Hello, my name is Lori Cummins. I was diagnosed with Chronic Active

> Autoimmune Hepatitis on July 29, 1996. Not before it was too late to

> help me in any other way but a Liver transplant. I was transplanted

> on 3~11~97 at the Mayo Clinic In Rochester, MN.

> > I have been watching the group now for a couple of days trying to

> get to know everyone a little before I jump in. Any questions you

> have you can direct them to the group or feel free to E~mail me

> directly at tlknj@ I read Barbara's post on the thrush. Nystatin

> is what I have bben given for the thrush, I have had it 2 times since

> transplant. It works very well. Hello everyone!!!

> > Remember " No one should go throught his alone " TTFN

> >

> hello lori my name is becky i am 51 years old, i have been diagnosed

> with primary billiary cirrhosis about 2 years ago ,i go to a very

> good dr, in jackson tn .i have a husband and 3 children 2 which are

> married 2 s, 1 boy, my son and oldest daughter are married and

> have children i have 5 grandchildren and 2 which i claim but are not

> my own so i guess that makes me having 7 gradchildren my youngest

> daughter is 15 and still lives at home ,i am a member of a great

> pentecostal church nearby my strength comes from my jesus my best

> friend thank you becky

>

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Hi Cortnie

 

I think you will find lots of support here. We all know that its a long hard

slog to get rid of candida, and unfortunately diet probably isnt enough to get

rid of it. The alternative practitioner who advises on this site advocates the

use of selenium, inulin and whey aswell as diet, but I'll leave it to duncan to

expalin that.

 

Helen

From: silver.renaissance <silver.renaissance@...>

Subject: New to Group

candidiasis

Received: Tuesday, 23 December, 2008, 8:04 PM

Hi, I'm Cortnie. and I've been having candida problems off and on for

nearly a year (our anniversary will be this January).

I don't really have the money to see a doctor, so its been a struggle.

I'd visited a free clinic every couple months until September when I

finally found a naturalistic clinic that I could afford, and that was

my first experience with the anti-candida diet. I had eliminated sugar

and alcohol until then, but no one had told me about the carbohydrate

aspect, and after a month of the diet there is no improvement.

Different sources online have confused me about what is and is not

acceptable to eat. What are some opinions on the following?: nuts,

coconut milk, grapefruit/cranberr ies, brown rice, oats, dairy. Some

sites indicate that these contain too much sugar, others recommend them.

I have also heard that some people can have candida related reactions

to condoms (due to a latex allergy), or an allergen in lubricant. As

far as I know I'm not allergic, but does anyone know anything about this?

So confused. Thank you

Stay connected to the people that matter most with a smarter inbox. Take a

look http://au.docs./mail/smarterinbox

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Guest guest

Hi Courtnie; when you read the details you'll see that the people who

advocate carbohydrate foods are wrong; all of them will feed candida

and foster a bad bowel ecology (dysbiosis). So, you'll have to reduce

or eliminate the whole grains, coconut milk, most fruit, some veggies,

that contain sugar or starch.

As luck would have it pure alcohol is OK; it does not feed candida, so

you can have it straight up or mix it with sugar-free mix and enjoy a

few with your friends and family :) ...just watch for the hidden

sugars.

The inulin with few exceptions will restore good bowel culture in a

few weeks, depending on severity of the dysbiosis/candida. The

selenium and cold-extracted whey reduces pathogen adhesion as well as

heals leaky gut, escorts heavy metals from the body and breaks down

toxins you might react to during your treatment, plus it fortifies

every cell, including the white blood cells of your immune system.

Duncan Crow

http://members.shaw.ca/duncancrow

>

>

> From: silver.renaissance <silver.renaissance@...>

> Subject: New to Group

> candidiasis

> Received: Tuesday, 23 December, 2008, 8:04 PM

>

>

>

>

>

>

> Hi, I'm Cortnie. and I've been having candida problems off and on

for

> nearly a year (our anniversary will be this January).

> I don't really have the money to see a doctor, so its been a

struggle.

> I'd visited a free clinic every couple months until September when I

> finally found a naturalistic clinic that I could afford, and that

was

> my first experience with the anti-candida diet. I had eliminated

sugar

> and alcohol until then, but no one had told me about the

carbohydrate

> aspect, and after a month of the diet there is no improvement.

>

> Different sources online have confused me about what is and is not

> acceptable to eat. What are some opinions on the following?: nuts,

> coconut milk, grapefruit/cranberr ies, brown rice, oats, dairy. Some

> sites indicate that these contain too much sugar, others recommend

them.

>

> I have also heard that some people can have candida related

reactions

> to condoms (due to a latex allergy), or an allergen in lubricant. As

> far as I know I'm not allergic, but does anyone know anything about

this?

>

> So confused. Thank you

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Stay connected to the people that matter most with a smarter

inbox. Take a look http://au.docs./mail/smarterinbox

>

>

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Guest guest

Oh my god!  If I am understanding you correctly, we are allowed to drink vodka

with water and lime???  If this is true, my Christmas just got a whole lot

better!....lol

From: Duncan Crow <duncancrow@...>

Subject: Re: New to Group

candidiasis

Received: Wednesday, December 24, 2008, 1:53 PM

Hi Courtnie; when you read the details you'll see that the people who

advocate carbohydrate foods are wrong; all of them will feed candida

and foster a bad bowel ecology (dysbiosis). So, you'll have to reduce

or eliminate the whole grains, coconut milk, most fruit, some veggies,

that contain sugar or starch.

As luck would have it pure alcohol is OK; it does not feed candida, so

you can have it straight up or mix it with sugar-free mix and enjoy a

few with your friends and family :) ...just watch for the hidden

sugars.

The inulin with few exceptions will restore good bowel culture in a

few weeks, depending on severity of the dysbiosis/candida. The

selenium and cold-extracted whey reduces pathogen adhesion as well as

heals leaky gut, escorts heavy metals from the body and breaks down

toxins you might react to during your treatment, plus it fortifies

every cell, including the white blood cells of your immune system.

Duncan Crow

http://members. shaw.ca/duncancr ow

>

>

> From: silver.renaissance <silver.renaissance @...>

> Subject: New to Group

> candidiasis

> Received: Tuesday, 23 December, 2008, 8:04 PM

>

>

>

>

>

>

> Hi, I'm Cortnie. and I've been having candida problems off and on

for

> nearly a year (our anniversary will be this January).

> I don't really have the money to see a doctor, so its been a

struggle.

> I'd visited a free clinic every couple months until September when I

> finally found a naturalistic clinic that I could afford, and that

was

> my first experience with the anti-candida diet. I had eliminated

sugar

> and alcohol until then, but no one had told me about the

carbohydrate

> aspect, and after a month of the diet there is no improvement.

>

> Different sources online have confused me about what is and is not

> acceptable to eat. What are some opinions on the following?: nuts,

> coconut milk, grapefruit/cranberr ies, brown rice, oats, dairy. Some

> sites indicate that these contain too much sugar, others recommend

them.

>

> I have also heard that some people can have candida related

reactions

> to condoms (due to a latex allergy), or an allergen in lubricant. As

> far as I know I'm not allergic, but does anyone know anything about

this?

>

> So confused. Thank you

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Stay connected to the people that matter most with a smarter

inbox. Take a look http://au.docs. / mail/smarterinbo x

>

>

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Guest guest

Hi Duncan,

 

Would you consider pure alcohol, rum and vodka?  And is mineral water ok?

From: Duncan Crow <duncancrow@...>

Subject: Re: New to Group

candidiasis

Received: Wednesday, December 24, 2008, 1:53 PM

Hi Courtnie; when you read the details you'll see that the people who

advocate carbohydrate foods are wrong; all of them will feed candida

and foster a bad bowel ecology (dysbiosis). So, you'll have to reduce

or eliminate the whole grains, coconut milk, most fruit, some veggies,

that contain sugar or starch.

As luck would have it pure alcohol is OK; it does not feed candida, so

you can have it straight up or mix it with sugar-free mix and enjoy a

few with your friends and family :) ...just watch for the hidden

sugars.

The inulin with few exceptions will restore good bowel culture in a

few weeks, depending on severity of the dysbiosis/candida. The

selenium and cold-extracted whey reduces pathogen adhesion as well as

heals leaky gut, escorts heavy metals from the body and breaks down

toxins you might react to during your treatment, plus it fortifies

every cell, including the white blood cells of your immune system.

Duncan Crow

http://members. shaw.ca/duncancr ow

>

>

> From: silver.renaissance <silver.renaissance @...>

> Subject: New to Group

> candidiasis

> Received: Tuesday, 23 December, 2008, 8:04 PM

>

>

>

>

>

>

> Hi, I'm Cortnie. and I've been having candida problems off and on

for

> nearly a year (our anniversary will be this January).

> I don't really have the money to see a doctor, so its been a

struggle.

> I'd visited a free clinic every couple months until September when I

> finally found a naturalistic clinic that I could afford, and that

was

> my first experience with the anti-candida diet. I had eliminated

sugar

> and alcohol until then, but no one had told me about the

carbohydrate

> aspect, and after a month of the diet there is no improvement.

>

> Different sources online have confused me about what is and is not

> acceptable to eat. What are some opinions on the following?: nuts,

> coconut milk, grapefruit/cranberr ies, brown rice, oats, dairy. Some

> sites indicate that these contain too much sugar, others recommend

them.

>

> I have also heard that some people can have candida related

reactions

> to condoms (due to a latex allergy), or an allergen in lubricant. As

> far as I know I'm not allergic, but does anyone know anything about

this?

>

> So confused. Thank you

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Stay connected to the people that matter most with a smarter

inbox. Take a look http://au.docs. / mail/smarterinbo x

>

>

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Guest guest

Yes, you can drink vodka because although it may be an irritant it

will not feed germs or candida. But lime may contain enough sugar to

upset the diet a bit even though it's not really seen as a very sweet

food.

Duncan

> >

> >

> > From: silver.renaissance <silver.renaissance @...>

> > Subject: New to Group

> > candidiasis

> > Received: Tuesday, 23 December, 2008, 8:04 PM

> >

> >

> >

> >

> >

> >

> > Hi, I'm Cortnie. and I've been having candida problems off and on

> for

> > nearly a year (our anniversary will be this January).

> > I don't really have the money to see a doctor, so its been a

> struggle.

> > I'd visited a free clinic every couple months until September when

I

> > finally found a naturalistic clinic that I could afford, and that

> was

> > my first experience with the anti-candida diet. I had eliminated

> sugar

> > and alcohol until then, but no one had told me about the

> carbohydrate

> > aspect, and after a month of the diet there is no improvement.

> >

> > Different sources online have confused me about what is and is not

> > acceptable to eat. What are some opinions on the following?: nuts,

> > coconut milk, grapefruit/cranberr ies, brown rice, oats, dairy.

Some

> > sites indicate that these contain too much sugar, others recommend

> them.

> >

> > I have also heard that some people can have candida related

> reactions

> > to condoms (due to a latex allergy), or an allergen in lubricant.

As

> > far as I know I'm not allergic, but does anyone know anything

about

> this?

> >

> > So confused. Thank you

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Stay connected to the people that matter most with a smarter

> inbox. Take a look http://au.docs. / mail/smarterinbo x

> >

> >

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Guest guest

Yes, I would still call spirits pure if they are 40% alcohol and the

rest water. For our purposes there's nothing in either one to feed

microbes or candida.

Duncan

> >

> >

> > From: silver.renaissance <silver.renaissance @...>

> > Subject: New to Group

> > candidiasis

> > Received: Tuesday, 23 December, 2008, 8:04 PM

> >

> >

> >

> >

> >

> >

> > Hi, I'm Cortnie. and I've been having candida problems off and on

> for

> > nearly a year (our anniversary will be this January).

> > I don't really have the money to see a doctor, so its been a

> struggle.

> > I'd visited a free clinic every couple months until September when

I

> > finally found a naturalistic clinic that I could afford, and that

> was

> > my first experience with the anti-candida diet. I had eliminated

> sugar

> > and alcohol until then, but no one had told me about the

> carbohydrate

> > aspect, and after a month of the diet there is no improvement.

> >

> > Different sources online have confused me about what is and is not

> > acceptable to eat. What are some opinions on the following?: nuts,

> > coconut milk, grapefruit/cranberr ies, brown rice, oats, dairy.

Some

> > sites indicate that these contain too much sugar, others recommend

> them.

> >

> > I have also heard that some people can have candida related

> reactions

> > to condoms (due to a latex allergy), or an allergen in lubricant.

As

> > far as I know I'm not allergic, but does anyone know anything

about

> this?

> >

> > So confused. Thank you

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Stay connected to the people that matter most with a smarter

> inbox. Take a look http://au.docs. / mail/smarterinbo x

> >

> >

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Guest guest

Hi, . Welcome to the group. It may take some time before you begin

to notice any improvement in your daughter. She is taking the same combo

of meds my son was on and they did work for him. He did max out on the

Celebrex for awhile, before the mtx kicked in and we were able to begin

to lower the Celebrex and eventually get him off. Then he was just on

the MTX which worked well for him. It takes some kids 8 weeks or more on

the mtx before a difference begins to be seen, plus as she grows she

will need to have the dosage adjusted, especially in the beginning. If

she is in extreme pain, you may want to look into joint injections. My

son's JRA began as your daughter's is, pain in the ankle. At that time,

joint injections were not often done, but now it seems more popular. The

dr injects a steroid directly into the joint and some children get

relief, at least for a while. This then gives the other meds a chance to

get working. You may want to research that.

The physical therapy is important, to help keep the joints loose, even

if done for a short period of time. For my son, we would also work at

home. One of the exercises the therapist had us do was every morning he

would soak his foot/ankle in warm water and then I would help him to

gently rotate the ankle. That did help. We had to get up a little

earlier to make to school on time, but it was worth it.

I would suggest also that you have her eyes checked for inflammation if

you have not already. Pauci - articular girls are more likely to have

uveitis. Also with the MTX she should be on folic acid (or take a multi

vitamin that has it) to help minimize side effects. My son did not have

too many, mostly mouth sores, and taking the folic acid helped.

Please feel free to ask any questions you have. The parents here

understand how you feel and know the frustration you have. Please let us

know how she is doing, Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of Crawford

Sent: Sunday, January 11, 2009 6:19 PM

Subject: new to group

My name is and my 2 year old daughter was diagnosed with JRA in

September. She only has her left ankle affected right now but it

causes her extreme pain. She was on Naprosyn for 3 months with no

relief. She has just switched to Methotrexate and Celebrex 2 weeks

ago. No change so far. She had labs done last week and we should get

the results tomorrow. She goes to physical therapy once a week which

is just excrutiating for her and me. She has not had one symptom free

day since August. I was wondering if anyone had any luck with

alternative treatments. We are also looking into hydrotherapy. Any

suggestions/advice would be greatly appreciated.

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Guest guest

>

> Hi, . Welcome to the group. It may take some time before you begin

> to notice any improvement in your daughter. She is taking the same combo

> of meds my son was on and they did work for him. He did max out on the

> Celebrex for awhile, before the mtx kicked in and we were able to begin

> to lower the Celebrex and eventually get him off. Then he was just on

> the MTX which worked well for him. It takes some kids 8 weeks or more on

> the mtx before a difference begins to be seen, plus as she grows she

> will need to have the dosage adjusted, especially in the beginning. If

> she is in extreme pain, you may want to look into joint injections. My

> son's JRA began as your daughter's is, pain in the ankle. At that time,

> joint injections were not often done, but now it seems more popular. The

> dr injects a steroid directly into the joint and some children get

> relief, at least for a while. This then gives the other meds a chance to

> get working. You may want to research that.

>

> The physical therapy is important, to help keep the joints loose, even

> if done for a short period of time. For my son, we would also work at

> home. One of the exercises the therapist had us do was every morning he

> would soak his foot/ankle in warm water and then I would help him to

> gently rotate the ankle. That did help. We had to get up a little

> earlier to make to school on time, but it was worth it.

>

> I would suggest also that you have her eyes checked for inflammation if

> you have not already. Pauci - articular girls are more likely to have

> uveitis. Also with the MTX she should be on folic acid (or take a multi

> vitamin that has it) to help minimize side effects. My son did not have

> too many, mostly mouth sores, and taking the folic acid helped.

>

> Please feel free to ask any questions you have. The parents here

> understand how you feel and know the frustration you have. Please let us

> know how she is doing, Michele ( 21, spondy)

>

>

>

>

>

>

>

>

>

>

>

> ________________________________

>

> From: [mailto: ] On

> Behalf Of Crawford

> Sent: Sunday, January 11, 2009 6:19 PM

>

> Subject: new to group

>

>

>

> My name is and my 2 year old daughter was diagnosed with JRA in

> September. She only has her left ankle affected right now but it

> causes her extreme pain. She was on Naprosyn for 3 months with no

> relief. She has just switched to Methotrexate and Celebrex 2 weeks

> ago. No change so far. She had labs done last week and we should get

> the results tomorrow. She goes to physical therapy once a week which

> is just excrutiating for her and me. She has not had one symptom free

> day since August. I was wondering if anyone had any luck with

> alternative treatments. We are also looking into hydrotherapy. Any

> suggestions/advice would be greatly appreciated.

>

>

>

>

>

>

Share this post


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Guest guest

>

> Hi, . Welcome to the group. It may take some time before you begin

> to notice any improvement in your daughter. She is taking the same combo

> of meds my son was on and they did work for him. He did max out on the

> Celebrex for awhile, before the mtx kicked in and we were able to begin

> to lower the Celebrex and eventually get him off. Then he was just on

> the MTX which worked well for him. It takes some kids 8 weeks or more on

> the mtx before a difference begins to be seen, plus as she grows she

> will need to have the dosage adjusted, especially in the beginning. If

> she is in extreme pain, you may want to look into joint injections. My

> son's JRA began as your daughter's is, pain in the ankle. At that time,

> joint injections were not often done, but now it seems more popular. The

> dr injects a steroid directly into the joint and some children get

> relief, at least for a while. This then gives the other meds a chance to

> get working. You may want to research that.

>

> The physical therapy is important, to help keep the joints loose, even

> if done for a short period of time. For my son, we would also work at

> home. One of the exercises the therapist had us do was every morning he

> would soak his foot/ankle in warm water and then I would help him to

> gently rotate the ankle. That did help. We had to get up a little

> earlier to make to school on time, but it was worth it.

>

> I would suggest also that you have her eyes checked for inflammation if

> you have not already. Pauci - articular girls are more likely to have

> uveitis. Also with the MTX she should be on folic acid (or take a multi

> vitamin that has it) to help minimize side effects. My son did not have

> too many, mostly mouth sores, and taking the folic acid helped.

>

> Please feel free to ask any questions you have. The parents here

> understand how you feel and know the frustration you have. Please let us

> know how she is doing, Michele ( 21, spondy)

>

>

>

>

>

>

>

>

>

>

>

> ________________________________

>

> From: [mailto: ] On

> Behalf Of Crawford

> Sent: Sunday, January 11, 2009 6:19 PM

>

> Subject: new to group

>

>

>

> My name is and my 2 year old daughter was diagnosed with JRA in

> September. She only has her left ankle affected right now but it

> causes her extreme pain. She was on Naprosyn for 3 months with no

> relief. She has just switched to Methotrexate and Celebrex 2 weeks

> ago. No change so far. She had labs done last week and we should get

> the results tomorrow. She goes to physical therapy once a week which

> is just excrutiating for her and me. She has not had one symptom free

> day since August. I was wondering if anyone had any luck with

> alternative treatments. We are also looking into hydrotherapy. Any

> suggestions/advice would be greatly appreciated.

>

>

>

>

>

>

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Guest guest

Thanks Michele.

 

We go back to see her doctor March 6 so we are giving the medicine until then to

start working.  She has only had two doses of MTX so far.  I am hopeful that

since she was diagnosed so young that she will not have problems as an adult. 

The one thing I have learned over the last few months is that disease is

unpredictable and seems to be so different in all kids.  We have not discussed

the steroid injections yet with her doctor but we will next time.  She also said

she could get her MTX through an injection if the pills did not work.  Did you

give the injections yourself.  Our concern is that her doctor is an hour and a

half away at The University of Florida so we can't go down there once a week for

injections.

 

She is high risk for eye inflammation because she is ANA positive so we go every

three months to the opthamologist and so far so good.  Even if she goes into

remission we have to go see him every three months for four years..

 

I am worried about her little tummy with all this medicine.  She is taking

Prevacid and Zantac but she still says her tummy hurts sometimes.  I have a

feeling we are in for a long and bumpy ride.

 

From: Tepper, Michele <MTepper@...>

Subject: RE: new to group

Date: Monday, January 12, 2009, 11:24 AM

Hi, . Welcome to the group. It may take some time before you begin

to notice any improvement in your daughter. She is taking the same combo

of meds my son was on and they did work for him. He did max out on the

Celebrex for awhile, before the mtx kicked in and we were able to begin

to lower the Celebrex and eventually get him off. Then he was just on

the MTX which worked well for him. It takes some kids 8 weeks or more on

the mtx before a difference begins to be seen, plus as she grows she

will need to have the dosage adjusted, especially in the beginning. If

she is in extreme pain, you may want to look into joint injections. My

son's JRA began as your daughter's is, pain in the ankle. At that time,

joint injections were not often done, but now it seems more popular. The

dr injects a steroid directly into the joint and some children get

relief, at least for a while. This then gives the other meds a chance to

get working. You may want to research that.

The physical therapy is important, to help keep the joints loose, even

if done for a short period of time. For my son, we would also work at

home. One of the exercises the therapist had us do was every morning he

would soak his foot/ankle in warm water and then I would help him to

gently rotate the ankle. That did help. We had to get up a little

earlier to make to school on time, but it was worth it.

I would suggest also that you have her eyes checked for inflammation if

you have not already. Pauci - articular girls are more likely to have

uveitis. Also with the MTX she should be on folic acid (or take a multi

vitamin that has it) to help minimize side effects. My son did not have

too many, mostly mouth sores, and taking the folic acid helped.

Please feel free to ask any questions you have. The parents here

understand how you feel and know the frustration you have. Please let us

know how she is doing, Michele ( 21, spondy)

____________ _________ _________ __

From: @group s.com [mailto: @group s.com] On

Behalf Of Crawford

Sent: Sunday, January 11, 2009 6:19 PM

@group s.com

Subject: new to group

My name is and my 2 year old daughter was diagnosed with JRA in

September. She only has her left ankle affected right now but it

causes her extreme pain. She was on Naprosyn for 3 months with no

relief. She has just switched to Methotrexate and Celebrex 2 weeks

ago. No change so far. She had labs done last week and we should get

the results tomorrow. She goes to physical therapy once a week which

is just excrutiating for her and me. She has not had one symptom free

day since August. I was wondering if anyone had any luck with

alternative treatments. We are also looking into hydrotherapy. Any

suggestions/ advice would be greatly appreciated.

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Hi ,

 

My daughter had just turned three when she stopped walking.  6 months later she

was diagnosed and put on Naproxen.  It helped, but not enough. Methotrexate was

added.  Also helped, but not enough.  She had not had more than a week of being

pain free for over a year - until November when she began Methotrexate by

injections.  (she's almost 5 now)

 

To answer your alternatives question, she's been doing aquatic therapy.  We met

with a physical therapist who specializes in working in the water.  He worked

out a group of excercises for to do in the heated pool 2x a week.  I

go with her and help with the excercises, then we play and swim and sit or swim

in front of the jets (like a hot tub only in the giant heated pool).  She

absolutely loves it and told me several months ago that that is the only time

she doesn't hurt.  I would HIGHLY recommend aquatic therapy to anyone who has

access.  (warm baths all the time if no heated therapy pools)

 

also started theraputic horesback riding last summer.  Another thing

she LOVES.  She rides a huge horse and has used two different types of saddles. 

One is made of a thick fleece and feels like a heating pad.  The other is more

of a standard saddle but a little more pliable so she can put her legs into any

position that is comfortable for her.  looks completely at peace on

Buddy and is anxious to go everytime.  Her rhuemy says that not only is she

building strength in her weakened core muscles, building her endurance, and

gaining confidence in her physical abilities, but it has been proven that

animals help strengthen immune systems!  Good all round!

 

I also give Reiki when she is hurting.  This really seems to help take

the edge off of her pain.  She also has two very advanced energy healers who

work on her from time to time.  The before and after difference is phenomenal. 

Even if you don't believe in or understand energy medicine it is worth checking

out.  It is amazing how kids soak it up!

 

I have one more suggestion that I haven't tried yet.  Have you heard of Super

Greens?  A friend of a friend swears her life-long out of control JRA went into

remission and never came back after starting Super Greens.  Might be worth

Googling!   Let me know if you do!

 

Good luck,

Kirsten Wilder

mom to , 4, spondyloarthropathy

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Her physical therapist said today that she is making progress.  She was able to

move her ankle more today than she has since she started therapy so we are

hopeful that the MTX is working.  I gave her Tylenol before therapy today and I

think that also helped.  She has not had a pain free day since September so we

are due for one.  Her doctor did say that if the MTX pills do not work we will

try injections.  I know she is just trying least involved treatment first and is

moving towards the more invasive as we determine the other things are not

working.  We got lab results today and all levels are normal except for her sed

rate of course.  I did google super greens and it looks interesting.  The powder

looks to have a ton of vitamins in it, but it also talks about giving energy so

I was wondering if there was caffeine in it.  I didn't have time to read much so

I will look again later.  I have heard that black cherry juice is very good for

JRA and

also pomegranite juice.  Thanks for the other suggestions.  What is Reiki?  I

have never heard of that.  I will look into an energy healer also.

From: kirsten wilder <wilderhealing@...>

Subject: Re:new to group

Date: Monday, January 12, 2009, 7:50 PM

Hi ,

 

My daughter had just turned three when she stopped walking.  6 months later she

was diagnosed and put on Naproxen.  It helped, but not enough. Methotrexate was

added.  Also helped, but not enough.  She had not had more than a week of being

pain free for over a year - until November when she began Methotrexate by

injections.  ( she's almost 5 now)

 

To answer your alternatives question, she's been doing aquatic therapy.  We met

with a physical therapist who specializes in working in the water.  He worked

out a group of excercises for to do in the heated pool 2x a week.  I

go with her and help with the excercises, then we play and swim and sit or swim

in front of the jets (like a hot tub only in the giant heated pool).  She

absolutely loves it and told me several months ago that that is the only time

she doesn't hurt.  I would HIGHLY recommend aquatic therapy to anyone who has

access.  (warm baths all the time if no heated therapy pools)

 

also started theraputic horesback riding last summer.  Another thing

she LOVES.  She rides a huge horse and has used two different types of saddles. 

One is made of a thick fleece and feels like a heating pad.  The other is more

of a standard saddle but a little more pliable so she can put her legs into any

position that is comfortable for her.  looks completely at peace on

Buddy and is anxious to go everytime.  Her rhuemy says that not only is she

building strength in her weakened core muscles, building her endurance, and

gaining confidence in her physical abilities, but it has been proven that

animals help strengthen immune systems!  Good all round!

 

I also give Reiki when she is hurting.  This really seems to help take

the edge off of her pain.  She also has two very advanced energy healers who

work on her from time to time.  The before and after difference is phenomenal. 

Even if you don't believe in or understand energy medicine it is worth checking

out.  It is amazing how kids soak it up!

 

I have one more suggestion that I haven't tried yet.  Have you heard of Super

Greens?  A friend of a friend swears her life-long out of control JRA went into

remission and never came back after starting Super Greens.  Might be worth

Googling!   Let me know if you do!

 

Good luck,

Kirsten Wilder

mom to , 4, spondyloarthropathy

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Hi - We started on the MTX pills and quickly switched to the

injection when the pills weren't working. Our rheumy taught us how

to give the injection. I wasn't sure that I would be able to do it

but once the nurse showed us how and let us practice we both figured

it out. Grant was old enough at 10 to learn as well. The injection

just seems to work better because more of the medicine is abosrbed

into the body. You mentioned you are worried about her tummy. I

know mentioned the folic acid. Grant was up to 3 mg/day of

the folic acid and that worked for his stomach pains. That is

significantly more than the amount in a multi vitimin so just in

case that is all the folic you are taking you may want to talk to

your rheumy about getting a higher dose. Apparently your body just

gets rid of any extra folic that you take so I think a child can

take up to 5mg/ day. Probably should check with the rheumy on that

though. Unfortunatly JRA is a long bumpy ride. Thats what we are

all here for though to help each other get through it.

& Grant (11, Psa/Uveitis)

>

> From: Tepper, Michele <MTepper@...>

> Subject: RE: new to group

>

> Date: Monday, January 12, 2009, 11:24 AM

>

>

>

>

>

>

> Hi, . Welcome to the group. It may take some time before you

begin

> to notice any improvement in your daughter. She is taking the same

combo

> of meds my son was on and they did work for him. He did max out on

the

> Celebrex for awhile, before the mtx kicked in and we were able to

begin

> to lower the Celebrex and eventually get him off. Then he was just

on

> the MTX which worked well for him. It takes some kids 8 weeks or

more on

> the mtx before a difference begins to be seen, plus as she grows

she

> will need to have the dosage adjusted, especially in the

beginning. If

> she is in extreme pain, you may want to look into joint

injections. My

> son's JRA began as your daughter's is, pain in the ankle. At that

time,

> joint injections were not often done, but now it seems more

popular. The

> dr injects a steroid directly into the joint and some children get

> relief, at least for a while. This then gives the other meds a

chance to

> get working. You may want to research that.

>

> The physical therapy is important, to help keep the joints loose,

even

> if done for a short period of time. For my son, we would also work

at

> home. One of the exercises the therapist had us do was every

morning he

> would soak his foot/ankle in warm water and then I would help him

to

> gently rotate the ankle. That did help. We had to get up a little

> earlier to make to school on time, but it was worth it.

>

> I would suggest also that you have her eyes checked for

inflammation if

> you have not already. Pauci - articular girls are more likely to

have

> uveitis. Also with the MTX she should be on folic acid (or take a

multi

> vitamin that has it) to help minimize side effects. My son did not

have

> too many, mostly mouth sores, and taking the folic acid helped.

>

> Please feel free to ask any questions you have. The parents here

> understand how you feel and know the frustration you have. Please

let us

> know how she is doing, Michele ( 21, spondy)

>

> ____________ _________ _________ __

>

> From: @group s.com [mailto: @group s.com]

On

> Behalf Of Crawford

> Sent: Sunday, January 11, 2009 6:19 PM

> @group s.com

> Subject: new to group

>

> My name is and my 2 year old daughter was diagnosed with JRA

in

> September. She only has her left ankle affected right now but it

> causes her extreme pain. She was on Naprosyn for 3 months with no

> relief. She has just switched to Methotrexate and Celebrex 2 weeks

> ago. No change so far. She had labs done last week and we should

get

> the results tomorrow. She goes to physical therapy once a week

which

> is just excrutiating for her and me. She has not had one symptom

free

> day since August. I was wondering if anyone had any luck with

> alternative treatments. We are also looking into hydrotherapy. Any

> suggestions/ advice would be greatly appreciated.

>

>

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took pills and had success so we never needed to go to injections.

I have heard from many here that injections give good results with less

stomach problems. As had minimal nausea, it was not a concern for

us. I do know the needles are small. I am sure they can train you to do

it, or I have heard of some folks who have friends who are nurses who

help them. Maybe that is a possibility if you switch?

You are right about the eye dr - went every 3 months the first

year, and then once clear for a year, he went every six months. Now

since it has been 7 years clear (that was our eye drs criteria) he only

needs to be checked once a year. is ANA positive too. had

stomach issues and could not take naprosyn or ibuprofen so was given

Celebrex for that reason. He had a lot less issues with his stomach on

that.

Finding the right combo of things does take time as you realize. I found

that educating myself (and him) has been the best thing for us. I have

learned so much over the years and this list has been one of my best

sources, as you can see by the medical stuff Georgina recently posted

and the personal experiences people post on.

Michele (21, spondy)

________________________________

From: [mailto: ] On

Behalf Of Crawford

Sent: Monday, January 12, 2009 12:23 PM

Subject: RE: new to group

Thanks Michele.

We go back to see her doctor March 6 so we are giving the medicine until

then to start working. She has only had two doses of MTX so far. I am

hopeful that since she was diagnosed so young that she will not have

problems as an adult. The one thing I have learned over the last few

months is that disease is unpredictable and seems to be so different in

all kids. We have not discussed the steroid injections yet with her

doctor but we will next time. She also said she could get her MTX

through an injection if the pills did not work. Did you give the

injections yourself. Our concern is that her doctor is an hour and a

half away at The University of Florida so we can't go down there once a

week for injections.

She is high risk for eye inflammation because she is ANA positive so we

go every three months to the opthamologist and so far so good. Even if

she goes into remission we have to go see him every three months for

four years..

I am worried about her little tummy with all this medicine. She is

taking Prevacid and Zantac but she still says her tummy hurts sometimes.

I have a feeling we are in for a long and bumpy ride.

From: Tepper, Michele <MTepper@...

<mailto:MTepper%40ftportfolios.com> >

Subject: RE: new to group

<mailto: %40>

Date: Monday, January 12, 2009, 11:24 AM

Hi, . Welcome to the group. It may take some time before you begin

to notice any improvement in your daughter. She is taking the same combo

of meds my son was on and they did work for him. He did max out on the

Celebrex for awhile, before the mtx kicked in and we were able to begin

to lower the Celebrex and eventually get him off. Then he was just on

the MTX which worked well for him. It takes some kids 8 weeks or more on

the mtx before a difference begins to be seen, plus as she grows she

will need to have the dosage adjusted, especially in the beginning. If

she is in extreme pain, you may want to look into joint injections. My

son's JRA began as your daughter's is, pain in the ankle. At that time,

joint injections were not often done, but now it seems more popular. The

dr injects a steroid directly into the joint and some children get

relief, at least for a while. This then gives the other meds a chance to

get working. You may want to research that.

The physical therapy is important, to help keep the joints loose, even

if done for a short period of time. For my son, we would also work at

home. One of the exercises the therapist had us do was every morning he

would soak his foot/ankle in warm water and then I would help him to

gently rotate the ankle. That did help. We had to get up a little

earlier to make to school on time, but it was worth it.

I would suggest also that you have her eyes checked for inflammation if

you have not already. Pauci - articular girls are more likely to have

uveitis. Also with the MTX she should be on folic acid (or take a multi

vitamin that has it) to help minimize side effects. My son did not have

too many, mostly mouth sores, and taking the folic acid helped.

Please feel free to ask any questions you have. The parents here

understand how you feel and know the frustration you have. Please let us

know how she is doing, Michele ( 21, spondy)

____________ _________ _________ __

From: @group s.com [mailto: @group s.com] On

Behalf Of Crawford

Sent: Sunday, January 11, 2009 6:19 PM

@group s.com

Subject: new to group

My name is and my 2 year old daughter was diagnosed with JRA in

September. She only has her left ankle affected right now but it

causes her extreme pain. She was on Naprosyn for 3 months with no

relief. She has just switched to Methotrexate and Celebrex 2 weeks

ago. No change so far. She had labs done last week and we should get

the results tomorrow. She goes to physical therapy once a week which

is just excrutiating for her and me. She has not had one symptom free

day since August. I was wondering if anyone had any luck with

alternative treatments. We are also looking into hydrotherapy. Any

suggestions/ advice would be greatly appreciated.

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,

 

Reiki is just a very low-key form of energy healing.  It's something anyone can

learn to do and is often described by clients as very relaxing. 

 

Thanks for the black cherry & pomegranite juices tip.  I'm very hesitant to put

anything else in the mix - even when people swear by it like the friend of a

friend and Super Greens.  's on Mtx, prevacid, meloxicam, folic acid,

and flovent for asthma.  But juice I can do!  She'd love that!!  Glad to hear

that your daughter's labs are looking good - excluding the sed rate, and her

range of motion is improving.  I really hope you can post soon about how great

she's doing.

 

Good luck!

 

Kirsten

mom to , age 4, spondyloarthropathy

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Hi Colleen:

Pat yourself on the back that you are taking increasing responsibility for your

health. It's

so important and you often have to swim against the current, as it were. But

you will find

information and support here.

May I suggest that you review the getting started material? Just to make sure

your diet is

on track? You mention that you are taking caprylic acid, which is not necessary

because it

is synthesized from coconut oil which you should be taking 6 tablespoons of

daily if you

are ready for Oregano oil. So just review the diet and the steps with their

proper order and

we'll go from there, okay? We are here for you.

http://www.healingnaturallybybee.com/articles/intro1.php

All the best,

Marissa

>

> Hello!

> I am finally getting around to signing on and calling out for help.

> I am extremely frustrated and at the threshhold of either refocusing

> my diet after a bit of a " falling off of the wagon " , or just

> abandoning it altogether, which I know I wont really do...

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>

> Hello!

> I am finally getting around to signing on and calling out for

help.

> I am extremely frustrated and at the threshhold of either

refocusing

> my diet after a bit of a " falling off of the wagon " , or just

> abandoning it altogether, which I know I wont really do...

> I have had candida for at least 10 years, and possibly much

longer.

> I started with hashimotos 10 years ago, then became very sick to my

> stomach after most meals. I got mentally scattered and lethargic- I

> have always had belching, and then 8 years ago started with a small

> rash on my abdomen which now covers my abdomen and has moved to my

> armpits and groin area and under my breats. I have consulted with

so

> many doctors and noone can advise me of what that rash is, Im

pretty

> sure now its candida.

+++Hi Colleen. Welcome to our group. That's great you've gotten

started on the candida diet, but like Marissa wrote ensure you are on

the " right " program by reading the 2 most important articles.

+++You can be assured that all of your symptoms are caused by candida

overgrowth, which interferes with digestion, puts out toxins that

cause gas and bloating, causes hashimotos, fatigue, and rash or other

skin eruptions which are toxins coming out through the skin, etc.

> I started my diet in October and experienced terrible symptoms,

pain in joints and muscles, cravings, headaches and intense anger at

> times, not to mention a litte feeling sorry for myself.

+++It is very miserable to go through die-off symptoms. The pains in

your joints and muscles are caused by toxins, mainly from candida,

and your other symptoms are typical for candida sufferers to go

through when they start on the candida program.

> My problem now is taht my most recent stool samples show no candida

> in my GI tract, yet I still have my rash, achey joints and itchy

> hands and feet. My naturopath thinks it may have left my GI tract

> and is now residing somewhere else. WHERE? I am so discouraged,

can anyone guide me?

+++There are no tests that can be conclusive for candida; that's why

only Dr. Crook's Candida Questionnaire is recommended.

+++Your naturopath doesn't understand the nature of candida. Candida

is normal throughout all mucus membranes in everyone, but under

certain poor conditions in the body it changes and starts overgrowing

in a monster. Candida cannot be cured by " killing it off " or " trying

to get rid of it. " It doesn't work that way. The only way to cure

it is by building up your immune system. You'll understand more

after you read the key articles on my website.

> I have just restarted oregano oil, and will switch to caprylic acid

> for a week on week off rotation. I have been cheating and have lost

> my confidence so am having a hard time justifying eating properly.

> No hope, anyone got any to share?

+++You do not need to do any kind of rotation on this program. That

is a false idea that some people have about taking natural

antifungals.

+++Colleen, please read and then get back to us for help and

support! You, too, can get healthy like myself and many other people

have on this group. For encouragement see the many Success Stories:

http://www.healingnaturallybybee.com/success/index.php

The best in health, Bee

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Ok, I have read some more, and printed alot of the info for further reading..  I

did take the test, and my score was 36%- it was difficult due to the fact that i

am 4 months into it, and alot of my symptoms have lessened, whereas others have

increased.  Ie, less belching and indegestion and abdominal pain, but much worse

on the muscle and joint pain.  Sometimes its hard to move and even type,

especially upon waking.

So, is 36% considered a definite positive?

Colleen

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>

> Ok, I have read some more, and printed alot of the info for further

reading..  I did take the test, and my score was 36%- it was difficult

due to the fact that i am 4 months into it, and alot of my symptoms

have lessened, whereas others have increased.  Ie, less belching and

indegestion and abdominal pain, but much worse on the muscle and joint

pain.  Sometimes its hard to move and even type, especially upon waking.

> So, is 36% considered a definite positive?

+++Hi Colleen. Yes, 36% is positive for candida. However, even if you

didn't have candida your immune system is obviously very depressed.

That's why this program is just as much a " healing program " as it is

for candida sufferers. It is designed to build up your immune system

and the functioning of the entire body so it will be healthy, according

to Nature's Fundamentals Laws on health.

Your muscle and joint pains are caused by toxins. the condition is

usually called fibromyalgia or arthritis by doctors - see this article:

http://www.healingnaturallybybee.com/articles/arth1.php

The best, Bee

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It sounds like its time to see a neuro surgeon......good luck also you

might want to speak to doc about better pain control

Deb RN

From: neck pain

[mailto:neck pain ] On Behalf Of peacenow56

Sent: Saturday, February 21, 2009 10:03 PM

neck pain

Subject: New to group

Hello everyone, I am new to this group and am so glad I found it. I

have suffered with neck and back problems for years and other

orthopaedic afflictions.In fact I had one of the PAs at my doctors

office tell me I am an orthopaedic wreck.It is good to get input from

others who are going through the pain and depression that comes from a

chronic condition.I am in the midst of what is my worst flare-up ever.

It has been about three months now and very intense.I had an MRI two

weeks ago that showed ruptured disk at c5-6 and bilateral foraminal

spinal stenosis and arthritis.Is anyone familiar with this? I knew I

had the disk problem, but it has gotten much worse.My doctor has me on

antiinflammatory medication,muscle relaxers,Loritab 10mg,and

prednisone,but I am still in pain.If anyone can offer some insight

into what I may be facing I would certainly appreciate it.Hope to hear

from you soon, peacenow

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It sounds like its time to see a neuro surgeon......good luck also you

might want to speak to doc about better pain control

Deb RN

From: neck pain

[mailto:neck pain ] On Behalf Of peacenow56

Sent: Saturday, February 21, 2009 10:03 PM

neck pain

Subject: New to group

Hello everyone, I am new to this group and am so glad I found it. I

have suffered with neck and back problems for years and other

orthopaedic afflictions.In fact I had one of the PAs at my doctors

office tell me I am an orthopaedic wreck.It is good to get input from

others who are going through the pain and depression that comes from a

chronic condition.I am in the midst of what is my worst flare-up ever.

It has been about three months now and very intense.I had an MRI two

weeks ago that showed ruptured disk at c5-6 and bilateral foraminal

spinal stenosis and arthritis.Is anyone familiar with this? I knew I

had the disk problem, but it has gotten much worse.My doctor has me on

antiinflammatory medication,muscle relaxers,Loritab 10mg,and

prednisone,but I am still in pain.If anyone can offer some insight

into what I may be facing I would certainly appreciate it.Hope to hear

from you soon, peacenow

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Guest guest

>

> It sounds like its time to see a neuro surgeon......good luck

also you

> might want to speak to doc about better pain control

>

> Deb RN

>

>

>

> From: neck pain

> [mailto:neck pain ] On Behalf Of peacenow56

> Sent: Saturday, February 21, 2009 10:03 PM

> neck pain

> Subject: New to group

>

> What would be a beter pain control? Thanks for your reply.

peacenow

>

> Hello everyone, I am new to this group and am so glad I found it.

I

> have suffered with neck and back problems for years and other

> orthopaedic afflictions.In fact I had one of the PAs at my doctors

> office tell me I am an orthopaedic wreck.It is good to get input

from

> others who are going through the pain and depression that comes

from a

> chronic condition.I am in the midst of what is my worst flare-up

ever.

> It has been about three months now and very intense.I had an MRI

two

> weeks ago that showed ruptured disk at c5-6 and bilateral

foraminal

> spinal stenosis and arthritis.Is anyone familiar with this? I knew

I

> had the disk problem, but it has gotten much worse.My doctor has

me on

> antiinflammatory medication,muscle relaxers,Loritab 10mg,and

> prednisone,but I am still in pain.If anyone can offer some insight

> into what I may be facing I would certainly appreciate it.Hope to

hear

> from you soon, peacenow

>

>

>

>

>

>

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Guest guest

>

> It sounds like its time to see a neuro surgeon......good luck

also you

> might want to speak to doc about better pain control

>

> Deb RN

>

>

>

> From: neck pain

> [mailto:neck pain ] On Behalf Of peacenow56

> Sent: Saturday, February 21, 2009 10:03 PM

> neck pain

> Subject: New to group

>

> What would be a beter pain control? Thanks for your reply.

peacenow

>

> Hello everyone, I am new to this group and am so glad I found it.

I

> have suffered with neck and back problems for years and other

> orthopaedic afflictions.In fact I had one of the PAs at my doctors

> office tell me I am an orthopaedic wreck.It is good to get input

from

> others who are going through the pain and depression that comes

from a

> chronic condition.I am in the midst of what is my worst flare-up

ever.

> It has been about three months now and very intense.I had an MRI

two

> weeks ago that showed ruptured disk at c5-6 and bilateral

foraminal

> spinal stenosis and arthritis.Is anyone familiar with this? I knew

I

> had the disk problem, but it has gotten much worse.My doctor has

me on

> antiinflammatory medication,muscle relaxers,Loritab 10mg,and

> prednisone,but I am still in pain.If anyone can offer some insight

> into what I may be facing I would certainly appreciate it.Hope to

hear

> from you soon, peacenow

>

>

>

>

>

>

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