New to Group

[Guest guest]

> >

> > From: shepard richard <yenko_stinger65>

> > Subject: Re:New to Group

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Friday, July 11, 2008, 5:02 PM

> >

> >

> >

> >

> >

> >

> > You not alone. I work through treatment and all , then last year

> > it got so bad had to cut back on my hours from 8 till 6 a day.

> > Company was fine with that then in December got my call and had a

> > transplant. Company had gone through a buy out with new owners .

> > So only took a little over a month off after the operation and

> > have been working half days (against doc's orders),but doing a

> > full days work since . On Monday went it and was told no longer

> > needed after 20 day short of 19 years.

> > Luckily My side business picked up this week also, not enough to

> > pay bills but will get by. As severance they did say they would

> > pay for my cobra insurance for 18 months time will tell.

> >

> > rich

> > www.rslaserkits. com

> >

> >

> >

> >

> >

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[Guest guest]

Bob,

YOu made me laugh (Bush Dynasty) ---((hugs)

Yeah your right I was typing to fast it was 1a/1b that I have and my little guy

3 years old has 1a. So far we keep going back to the gi doc he says come back

next year. Taps his belly and that is it... But this kid only had 1 antibiotic

in the 3 years of his life and I have not given this child any TYLENOL--

horrible for the liver. He gets his Vit C-- Hey does anyeone know if Milk

thistle ok for little ones?

I am doing a big check on the CS but there are 500 brands anyone know an ok

brand??

Hugs to all,

Re: Re:New to Group

>

>

> Hi I think it's a strain or species. I was told 1a is the

> hardest to cure. I have never seen it put 1a/b, but that does'nt

> mean their is one :-) Wish you all the luck!

>

> emily_sweethang@... wrote:

> Yes I am 1a/b not sure what that is? what is the B part or I

> guess I will ask the doc next visit. But I know it is the hardest

> to treat or so she said. Of course when I do something bad I do

> it all the way!! lol

>

[Guest guest]

Bob,

YOu made me laugh (Bush Dynasty) ---((hugs)

Yeah your right I was typing to fast it was 1a/1b that I have and my little guy

3 years old has 1a. So far we keep going back to the gi doc he says come back

next year. Taps his belly and that is it... But this kid only had 1 antibiotic

in the 3 years of his life and I have not given this child any TYLENOL--

horrible for the liver. He gets his Vit C-- Hey does anyeone know if Milk

thistle ok for little ones?

I am doing a big check on the CS but there are 500 brands anyone know an ok

brand??

Hugs to all,

Re: Re:New to Group

>

>

> Hi I think it's a strain or species. I was told 1a is the

> hardest to cure. I have never seen it put 1a/b, but that does'nt

> mean their is one :-) Wish you all the luck!

>

> emily_sweethang@... wrote:

> Yes I am 1a/b not sure what that is? what is the B part or I

> guess I will ask the doc next visit. But I know it is the hardest

> to treat or so she said. Of course when I do something bad I do

> it all the way!! lol

>

[Guest guest]

Cool Deron,

We got the same DRAGON!! smile

Re:New to Group

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Friday, July 11, 2008, 5:02 PM

> >

> >

> >

> >

> >

> >

> > You not alone. I work through treatment and all , then last year

> > it got so bad had to cut back on my hours from 8 till 6 a day.

> > Company was fine with that then in December got my call and had a

> > transplant. Company had gone through a buy out with new owners .

> > So only took a little over a month off after the operation and

> > have been working half days (against doc's orders),but doing a

> > full days work since . On Monday went it and was told no longer

> > needed after 20 day short of 19 years.

> > Luckily My side business picked up this week also, not enough to

> > pay bills but will get by. As severance they did say they would

> > pay for my cobra insurance for 18 months time will tell.

> >

> > rich

> > www.rslaserkits. com

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Cool Deron,

We got the same DRAGON!! smile

Re:New to Group

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Friday, July 11, 2008, 5:02 PM

> >

> >

> >

> >

> >

> >

> > You not alone. I work through treatment and all , then last year

> > it got so bad had to cut back on my hours from 8 till 6 a day.

> > Company was fine with that then in December got my call and had a

> > transplant. Company had gone through a buy out with new owners .

> > So only took a little over a month off after the operation and

> > have been working half days (against doc's orders),but doing a

> > full days work since . On Monday went it and was told no longer

> > needed after 20 day short of 19 years.

> > Luckily My side business picked up this week also, not enough to

> > pay bills but will get by. As severance they did say they would

> > pay for my cobra insurance for 18 months time will tell.

> >

> > rich

> > www.rslaserkits. com

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Glen, 

That's great news.  You're chance of complete clearance just shot up to 85%,

just like mine did, once you went undetectable at week 4. 

Good job!!

Deron

Re:New to Group

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Friday, July 11, 2008, 5:02 PM

> >

> >

> >

> >

> >

> >

> > You not alone. I work through treatment and all , then last year

> > it got so bad had to cut back on my hours from 8 till 6 a day.

> > Company was fine with that then in December got my call and had a

> > transplant. Company had gone through a buy out with new owners .

> > So only took a little over a month off after the operation and

> > have been working half days (against doc's orders),but doing a

> > full days work since . On Monday went it and was told no longer

> > needed after 20 day short of 19 years.

> > Luckily My side business picked up this week also, not enough to

> > pay bills but will get by. As severance they did say they would

> > pay for my cobra insurance for 18 months time will tell.

> >

> > rich

> > www.rslaserkits. com

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Glen, 

That's great news.  You're chance of complete clearance just shot up to 85%,

just like mine did, once you went undetectable at week 4. 

Good job!!

Deron

Re:New to Group

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Friday, July 11, 2008, 5:02 PM

> >

> >

> >

> >

> >

> >

> > You not alone. I work through treatment and all , then last year

> > it got so bad had to cut back on my hours from 8 till 6 a day.

> > Company was fine with that then in December got my call and had a

> > transplant. Company had gone through a buy out with new owners .

> > So only took a little over a month off after the operation and

> > have been working half days (against doc's orders),but doing a

> > full days work since . On Monday went it and was told no longer

> > needed after 20 day short of 19 years.

> > Luckily My side business picked up this week also, not enough to

> > pay bills but will get by. As severance they did say they would

> > pay for my cobra insurance for 18 months time will tell.

> >

> > rich

> > www.rslaserkits. com

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

what's the GI doc say about the MT for little guy? i really don't know.

for CS, commercial products that are good are also pricey.

there's (or was) lots of testimonials on the Mesosilver site where people

claim to have cleared HCV with it, and that's reputed to be one of the

better, even best, ones.

there's (only) one company that makes USP Rx CSilver for IV drips, called

Argentyn 23 i believe, and they sell basically the same thing through retail

distribution as Sovereign Silver. looking at the table on

http://www.silver-colloids.com/Reports/reports.html it appears the absolute

best bang for the buck would be mesosilver. all i've ever used is the

bargain basement home brewed, which rates in the table as about the least

efficient but also the cheapest by far... seems to work for me, but to

really get over the top i guess spending money is unavoidable. maybe i'll

buy a bunch of mesosilver and try several months of that if cash flow

permits. i am getting bored with fussing with brewing CS although less than

$1 per gallon has it's merits.

i just arrived at the 4 month point of 1 liter/day, and am considering

stopping CS for a couple months, switching over to ozonated water + MMS. a

number of folks seem to get good results from MMS and HCV (manage but not

clear so far), and i've found it seems to manage symptoms about as well as

my CS but the stuff is really pretty foul to ingest, and for myself doesn't

get any better as time goes on. so i might just do it for a month or two at

which time the chlorine smell will scream " enough " . will do zeolites along

with it, which are pretty cool too. no money for waiora NCD (a MLM product)

but i have the cheaper competitor from NJersey stuff coming in the mail. by

fall maybe i'll have a serious stash of mesosilver on hand to try.

MMS is a powerful oxidizer as is ozone and peroxide, so MMS + ozone water

aren't incompatible except they destroy your anti-oxidants requiring

replenishment.

i just finished re-stocking up on herbs and supps ala Buhner's and Zhang's

protocols, finally have them all complete (i think; i know i'm broke) and

enough for most of a year or so. that stuff does seem to help, but i

haven't done it without CS or MMS so i can't judge how effectively... just

know i feel better with than without.

blah, blah, must get some food together.

cheers,

bobL

> Re: Re:New to Group

>

>

> Bob,

>

> YOu made me laugh (Bush Dynasty) ---((hugs)

> Yeah your right I was typing to fast it was 1a/1b that I have and

> my little guy 3 years old has 1a. So far we keep going back to

> the gi doc he says come back next year. Taps his belly and that

> is it... But this kid only had 1 antibiotic in the 3 years of his

> life and I have not given this child any TYLENOL-- horrible for

> the liver. He gets his Vit C-- Hey does anyeone know if Milk

> thistle ok for little ones?

> I am doing a big check on the CS but there are 500 brands anyone

> know an ok brand??

> Hugs to all,

>

> Re: Re:New to Group

> >

> >

> > Hi I think it's a strain or species. I was told 1a is the

> > hardest to cure. I have never seen it put 1a/b, but that does'nt

> > mean their is one :-) Wish you all the luck!

> >

> > emily_sweethang@... wrote:

> > Yes I am 1a/b not sure what that is? what is the B part or I

> > guess I will ask the doc next visit. But I know it is the hardest

> > to treat or so she said. Of course when I do something bad I do

> > it all the way!! lol

> >

>

>

>

>

>

>

[Guest guest]

what's the GI doc say about the MT for little guy? i really don't know.

for CS, commercial products that are good are also pricey.

there's (or was) lots of testimonials on the Mesosilver site where people

claim to have cleared HCV with it, and that's reputed to be one of the

better, even best, ones.

there's (only) one company that makes USP Rx CSilver for IV drips, called

Argentyn 23 i believe, and they sell basically the same thing through retail

distribution as Sovereign Silver. looking at the table on

http://www.silver-colloids.com/Reports/reports.html it appears the absolute

best bang for the buck would be mesosilver. all i've ever used is the

bargain basement home brewed, which rates in the table as about the least

efficient but also the cheapest by far... seems to work for me, but to

really get over the top i guess spending money is unavoidable. maybe i'll

buy a bunch of mesosilver and try several months of that if cash flow

permits. i am getting bored with fussing with brewing CS although less than

$1 per gallon has it's merits.

i just arrived at the 4 month point of 1 liter/day, and am considering

stopping CS for a couple months, switching over to ozonated water + MMS. a

number of folks seem to get good results from MMS and HCV (manage but not

clear so far), and i've found it seems to manage symptoms about as well as

my CS but the stuff is really pretty foul to ingest, and for myself doesn't

get any better as time goes on. so i might just do it for a month or two at

which time the chlorine smell will scream " enough " . will do zeolites along

with it, which are pretty cool too. no money for waiora NCD (a MLM product)

but i have the cheaper competitor from NJersey stuff coming in the mail. by

fall maybe i'll have a serious stash of mesosilver on hand to try.

MMS is a powerful oxidizer as is ozone and peroxide, so MMS + ozone water

aren't incompatible except they destroy your anti-oxidants requiring

replenishment.

i just finished re-stocking up on herbs and supps ala Buhner's and Zhang's

protocols, finally have them all complete (i think; i know i'm broke) and

enough for most of a year or so. that stuff does seem to help, but i

haven't done it without CS or MMS so i can't judge how effectively... just

know i feel better with than without.

blah, blah, must get some food together.

cheers,

bobL

> Re: Re:New to Group

>

>

> Bob,

>

> YOu made me laugh (Bush Dynasty) ---((hugs)

> Yeah your right I was typing to fast it was 1a/1b that I have and

> my little guy 3 years old has 1a. So far we keep going back to

> the gi doc he says come back next year. Taps his belly and that

> is it... But this kid only had 1 antibiotic in the 3 years of his

> life and I have not given this child any TYLENOL-- horrible for

> the liver. He gets his Vit C-- Hey does anyeone know if Milk

> thistle ok for little ones?

> I am doing a big check on the CS but there are 500 brands anyone

> know an ok brand??

> Hugs to all,

>

> Re: Re:New to Group

> >

> >

> > Hi I think it's a strain or species. I was told 1a is the

> > hardest to cure. I have never seen it put 1a/b, but that does'nt

> > mean their is one :-) Wish you all the luck!

> >

> > emily_sweethang@... wrote:

> > Yes I am 1a/b not sure what that is? what is the B part or I

> > guess I will ask the doc next visit. But I know it is the hardest

> > to treat or so she said. Of course when I do something bad I do

> > it all the way!! lol

> >

>

>

>

>

>

>

[Guest guest]

>

>

> Bee,

>

> I am new to this group and have lots of questions.

>

> About 25 years ago, I read Dr. Crooks's book after having chronic

UTI's

> and taking lots of antibotics. I took caprylic acid and got

immediate

> relief from UTI the first day. Had to stop taking it because of

severe

> indigestion problems, then took oral nylistat for several years,

but I

> didn't follow a good diet. I have read lots of your information

and

> did not see the use of caprylic acid...is this not used anymore?

==>Hi Bobbie. Welcome to our wonderful group!

==>Instead of caprylic acid I recommend the real thing, from which

caprylic acid is made, which is coconut oil.

>

> What is a good HCI with betaine to buy? I have one, but it has the

> pancreatic enzymes in it. Should I throw it away?

==>No, you can use up what you have, and then buy one the is Betaine

HCl with or without pepsin. NOW is a good brand, and I buy Natural

Factors that includes Fenegreek here in Canada.

>

> I want to be able to stick with the diet and see if some of my

health issues will get better. I know it will be hard, already

missing the chocolate.

==>Yes, it is hard, but every day you overcome the withdrawal

symptoms is one step closer to good health. The only way to cure

candida is to build up the immune system; it doesn't work to

just " try " to kill it off. So antifungals are very minor compared to

the diet and supplements, and it takes time and patience. In the

meantime you will go through the natural healing processes (die-off

and detoxifying symptoms and reactions), which aren't easy either,

but they are a sign you are getting better.

If you need a boost read the wonderful Success Stories from members

of this group: http://www.healingnaturallybybee.com/success/index.php

Not all of the stories are posted on my website yet, but you can get

an idea from these as to the wonderful success people are having on

this program. Onward & upward!

The best in health, Bee

[Guest guest]

>

> First of all- thanks for being here- I have printed out all the

info and will read it and steer my diet in the right direction. I

have a really bad stomach - drs say IBS. I just know it is " bad " . I

also have candida (yes connected, asthma and most on my mind cervical

dysplasia which I am trying to reverse before it becomes cancer

(also candida connection).

==>Hi There! Welcome to our group. What is your name please?

==>You are correct that IBS, asthma, and cervical dysplasia is

definitely candida related. This program is basically a healing

program because the only way to get healthy, cure candida, etc. is to

build up the immune system with proper nutrients.

>

> I have been on a desperate crusade to help cure myself or just

> improve these things for a long time. I have been 100% raw,

80/10/10 (BAD CANDIDA) and now am mostly raw and confused. I have

recently started having a lot of kefir to help my stomach but it

seems like that was not a good idea. I just remember the best I ever

felt was in India when I was eating a lot of yogurt. But I also was

meditating every day and doing yoga so I am sure that had something

to do with it.

==>Candida sufferers shouldn't have Kefir or yogurt since they

contain too much sugar (during fermentation lactose is changed into

another sugar call galactose). For more information see this

reference in my main candida article " How to Successfully Overcome

Candida " ; http://www.healingnaturallybybee.com/articles/intro2.php#s38

>

> Sorry for the long post. I am just really hoping for some relief

and most importantly to be cancer free. Any help or words of wisdom

is appreciated. i will read the material tonight and probably have

some questions. I am also trying to read through these past posts to

catch up.

==>It is more important to read the article that is the basis of this

group " How to Successfully Overcome Candida " ;

http://www.healingnaturallybybee.com/articles/menu2_8.php

>

> Right now my diet includes a lot of green juice, salads with

sprouted lentils, veggies and fermented veggies, bee pollen, goji,

kefir, vega protein supplement and popcorn (it is a comfort food at

times). Every now and then I want to eat more " normal " and I have a

gluten free pizza or some indian food.

==>The only foods you eat that are acceptable on the candida diet are

low-carb veggies and fermented veggies. Raw foods are also very hard

on people who have IBS, as explained in my main candida article.

After you read that article you will understand why most of the foods

you are eating need to be eliminated. Also see handy diet and

supplements lists on my website:

http://www.healingnaturallybybee.com/articles/menu2_2.php

http://www.healingnaturallybybee.com/articles/menu2_2.php

We are here to help you get healthy, so after reading please get back

to us with questions and concerns. Some questions may have been

answered in previous group messages, so try doing a search of them

first.

The best in health, Bee

[Guest guest]

>

> Hi Bee,

> I actually cried when I saw there was a support group for candida.

I

> am miserable and feeling helpless, depressed and anxious.

==>Hi Rose. Welcome to our group. I'm glad you found us. We are

here to help and support you so you can get healthy too!!

> I had 2 rounds of antibiotics 6 weeks ago for a urinary/bladder

> infection....since then I have been sick pretty much 75% of the

time with nausea, indigestion, sour stomach, belching, loss of

appetite, loss of energy, panic attacks, dizziness, rapid heart

rates,insomnia, daily crying and of course my main thing that led me

to candida research..oral thrush. I took Nystatin for 2 weeks and it

seemed to help the oral thrush. I also purchased probiotics , a

candida redux supplement, apple cidar vinegar, pau d'arco tea,

garlic, omega 3, aloe vera juice, saurkraut and most importantly the

Body Ecology book by Donna Gates.

>I have been on the diet for about 6 days and at first my symptoms

seemed to dissappear after a 2 day headache! I used to eat alot of

wheat and fruit and milk and yogurt all the things I thought were

good for me I recently learned feed candida. My main concern is

getting my health back so I can get back to work ...being unemployed

and accumulating dr. bills has also added stress to my life. I took

the questionairre and it seems I probably have candida overgrowth. I

can't know for sure but I have alot of symptoms which come and go.

From what I've explained do you have any recommendations? Am I

missing a piece of the puzzle in recovering? PLEASE HELP.

==>First, Donna Gates diet can help a lot but it does not work in the

long run. Her diet allows many things that feed candida, and she

doesn't include a high enough " good " fats program. In any case

candida is only cured by building up the immune system so it becomes

strong enough to " make " candida change back to the friendly organism

it is supposed to be. That means a proper diet and supplements that

together give the body what it needs so it can heal itself.

This is just as much a healing program as it is for candida, so it

will improve anyone's health! Unfortunately it take time and

patience. It won't happen overnight and there are no quick fixes.

It takes 1 month of natural healing for every year you've had poor

health. For most people nowadays that is since before birth.

You'll never regret doing this program. You will learn so much and

know how to maintain your health life-long! I suggest you start by

reading " How to Successfully Overcome Candida " and " Curing Candida,

How to Get Started " ;

http://www.healingnaturallybybee.com/candida/index.php

Then you will understand what you need to do and why. Then you start

step by step according to the articles.

We are here to help you, but ensure you read first so we are all on

the same page. Afterward please get back to us with questions,

problems, etc.

The best in health, Bee

[Guest guest]

, I am from Washington State I to have seizure. But have not

been daring enough to go and wean myself off my meds. I have adult

onset Epilepsy,have had for about 6 or maybe 7 years now. (I don't

know how long now but anyways..)I guess what I wanted to tell you is

don't feel bad about going to another DR. If I hadn't I strongly

feel I would be in worse shape then I was. I am doing a lot better

now. Things are hard sometimes but I also have some other things

going on. Something to think about. Welcome to the Group. .

>

> Hi,

> I joined your list to find some help for my son. I have a 17

year old son

> who had a seizure at age 14 and then again on June 19th as we

were weaning him

> off his meds. I do not care for my current doctor and I would

like to find

> a new one. I look forward to joining your list. Anyone from NJ?

> .

>

>

>

> **************Get the scoop on last night's hottest shows and the

live music

> scene in your area - Check out TourTracker.com!

> (http://www.tourtracker.com?NCID=aolmus00050000000112)

>

>

>

[Guest guest]

Hi

We seem to have similar stories. My 8 year old switched from Humira

to Kineret in June. I am sure you know about EMLA cream. For my

daughter, the kineret shots do not hurt nearly as much as the Humira

shots. Humira nights used to be terrible, but she doesn't get nearly

as anxious about the kineret shots. When she was on humira, I timed

the length of time that the shot site hurt and it was seven minutes.

I used to tell her that seven minutes was worth being able to walk,

etc. We do keep the EMLA cream on for two hours (I asked her doctor

if it was safe to do so).

has abdominal pain also. We went to the pediatric GI doctor

in July and he started her on Previcid, b/c she had reflux symptoms.

He ordered a colonoscopy and endoscopy and it was supposed to be on

Monday. I ended up " chickening out " I just couldn't put her through

the preparation. Since starting kineret she has put on three pounds

and I knew that she would probably lose it if I put her through the

prep for the colonoscopy. I am waiting until Monday when she sees

her pediatric rheumatologist and I am going to see what he says. I

know I read that 20% of adults with Stills Disease (the adult form of

systemic JRA) have abdominal pain, and I believe in my heart that is

what is causing her stomach pain. She does take her MTX by injection

(20 mg) per week.

Every day is a battle, and I feel for you. We all want our kids to

be carefree and healthy! Summer is so much easier to deal with all

of this. It is hard to juggle the disease and school.

Take care.

Sophie

's mom, systemic jra, age 8

>

> Hi,

> While I'm new to this group, my family has been dealing with

systemic

> JIA for the last two years. My son, Tanner, was diagnosed at 9yrs

old

> and we are still on the roller coaster. We recently switched from

> Humira to Anakinra and he absolutely hates the daily shots. He has

no

> problem with blood work, flu shots, even Enbrel was not an issue,

but

> Humira started a terrible pattern of crying and pain associated

with

> the shot. Anakinra has enduced even more anxiety. Does anyone

have

> any suggestions for easing the daily battle? He is still suffering

> from severe episodes of nasuea and stomach pain, so I'm considering

> going back to MTX as a shot instead of pills--two shots in one

day? He

> is such a great kid, but this disease seems to be sapping his

spirit

> and I'm floundering. We are on summer break and I can't imagine

doing

> this during the school year. I keep waiting for life to get easier

for

> him...

>

[Guest guest]

Hi Sophie,

I understand about the weight, Tanner has lost A LOT of weight over the last two

years (over 15 pounds).  I seem to be force feeding him these days. 

I'm sorry to hear your daughter is having the same stomach issues.  Tanner also

has acid reflux, but he says the stomach pain is different.  Please let me know

if your rheum. has any more suggestions for the stomach problems, our doctor was

really hoping that kineret would take care of the stomach problems along with

the systemic portion.  Fortunately the rash and fever have disappeared for now,

and hopefully his d-dimer has dropped as well.  A quick question, do you know

how high your daughters d-dimer has gone.  Tanner was at 2830 last month during

this flare, I'm just curious how high other systemic kids tend to go during

flares.

Does  have a routine for the daily shots?  Where do you give them to

her?  Tanner is really stuck on only taking the shot on his thighs, specifically

his left thigh.  I know it is a control issue for him.  I'm really trying to get

him to try other spots to see if they are less painful..  

Thank you for sharing it is nice to know I'm not alone.

Best wishes,

Tristin

(Tanner, 11 systemic)

Re: new to group

Hi

We seem to have similar stories. My 8 year old switched from Humira

to Kineret in June. I am sure you know about EMLA cream. For my

daughter, the kineret shots do not hurt nearly as much as the Humira

shots. Humira nights used to be terrible, but she doesn't get nearly

as anxious about the kineret shots. When she was on humira, I timed

the length of time that the shot site hurt and it was seven minutes.

I used to tell her that seven minutes was worth being able to walk,

etc. We do keep the EMLA cream on for two hours (I asked her doctor

if it was safe to do so).

has abdominal pain also. We went to the pediatric GI doctor

in July and he started her on Previcid, b/c she had reflux symptoms.

He ordered a colonoscopy and endoscopy and it was supposed to be on

Monday. I ended up " chickening out " I just couldn't put her through

the preparation. Since starting kineret she has put on three pounds

and I knew that she would probably lose it if I put her through the

prep for the colonoscopy. I am waiting until Monday when she sees

her pediatric rheumatologist and I am going to see what he says. I

know I read that 20% of adults with Stills Disease (the adult form of

systemic JRA) have abdominal pain, and I believe in my heart that is

what is causing her stomach pain. She does take her MTX by injection

(20 mg) per week.

Every day is a battle, and I feel for you. We all want our kids to

be carefree and healthy! Summer is so much easier to deal with all

of this.. It is hard to juggle the disease and school.

Take care.

Sophie

's mom, systemic jra, age 8

>

> Hi,

> While I'm new to this group, my family has been dealing with

systemic

> JIA for the last two years. My son, Tanner, was diagnosed at 9yrs

old

> and we are still on the roller coaster. We recently switched from

> Humira to Anakinra and he absolutely hates the daily shots. He has

no

> problem with blood work, flu shots, even Enbrel was not an issue,

but

> Humira started a terrible pattern of crying and pain associated

with

> the shot. Anakinra has enduced even more anxiety. Does anyone

have

> any suggestions for easing the daily battle? He is still suffering

> from severe episodes of nasuea and stomach pain, so I'm considering

> going back to MTX as a shot instead of pills--two shots in one

day? He

> is such a great kid, but this disease seems to be sapping his

spirit

> and I'm floundering. We are on summer break and I can't imagine

doing

> this during the school year. I keep waiting for life to get easier

for

> him...

>

[Guest guest]

HI,

I'm Ed, my daughter is now 13 years old and has extremely

severe CP from dying for 35 minutes in the womb.

We started HBOT when she was 5 with Neubauer. It dramatically

changed her life. She remains a quad, but can attend school full

time, is in full inclusion and has a tested IQ of 148! I believe she

would not be alive if it wasn't for HBOT. Certainly, her life would

be significantly worse.

I have pursued HBOT very, very hard since then (Sponsored the 2nd

Intl Symposium on HBOT for the CP child; sponsored the debate on HBOT

for CP at the Int;l Congress of Hyperbaric Medicine, etc.; wrote

chapt 7 of Neubauer's book on HBOT for CP; sponsored CA legislation

AB2763 for reimburement, sued California; built a clinic and founded

the CHERISH Foundation, and much more). CHERISH pdoes a lot for

HBOT, including right now is implementing the most significant HBOT

for autism study to date; with the UC Medical SChool. We are

almost done with it.

From what little you said, unless you can travel, you need to look

at a home chamber.

Despite what some people on this list might think (pro and con) it

should be helpful. But, it does not deliver the same level of

treatment as medicinal HBOT. There are a few nuances that people do

not understand.

But, the bottom line is you have to find a way to get HBOT, if

traveling is difficult, then you need to look at the home chamber.

And, I am pretty sure you will be happy with it.

The positive is that it is much easier to do this at home than

traveling to a clinic, and you will do more and more

treatments. With mild HBOT, numbers are very, very important. You

do not have the same issue with medicinal, I believe.

But, I would tell you that IF you can travel, there is a clinic in

the Hudson Valley that is pretty good and very dedicated. I do not

know what they charge.

Also, you can look up clinics online at www.netnet.net/mums.

You can send any other question you might have to me directly or

through this site.

my direct email is ednemeth@...

Blessings!

Ed

At 06:01 AM 10/10/2008, you wrote:

>Hello. I am new to this group. After reading past posts, I am feeling

>completely overwhelmed! I am a parent of a 5 year old with CP. I am

>researching hbot for treatment of CP. We live in Upstate NY and I am

>having a hard time finding an hbot center close by. I am also

>overwhelmed by the cost of the hbot. If anyone has any information (in

>layman's terms!) they can provide me with that may help, I would

>greatly appreciate it!

>

>

Ed Nemeth

President, CEO

Spectrum Events

444 North Third Street, Suite 304

Sacramento, CA 95814

916-856-7044 x 339

916-856-7040 (fax)

[Guest guest]

You really should not delay with getting your child treated. Either hard or

soft chamber is great. Contrary to what most people think, a recent study shows

the portable chambers are just as effective as the hard chambers at treating CP.

I can provide a copy of this study if you wish to read it.

Sent from my Verizon Wireless BlackBerry

[ ] New to group

Hello. I am new to this group. After reading past posts, I am feeling

completely overwhelmed! I am a parent of a 5 year old with CP. I am

researching hbot for treatment of CP. We live in Upstate NY and I am

having a hard time finding an hbot center close by. I am also

overwhelmed by the cost of the hbot. If anyone has any information (in

layman's terms!) they can provide me with that may help, I would

greatly appreciate it!

[Guest guest]

What recent study is that?

At 05:44 PM 10/10/2008, you wrote:

>You really should not delay with getting your child treated. Either

>hard or soft chamber is great. Contrary to what most people think, a

>recent study shows the portable chambers are just as effective as

>the hard chambers at treating CP. I can provide a copy of this study

>if you wish to read it.

>Sent from my Verizon Wireless BlackBerry

>

> [ ] New to group

>

>

>Hello. I am new to this group. After reading past posts, I am feeling

>completely overwhelmed! I am a parent of a 5 year old with CP. I am

>researching hbot for treatment of CP. We live in Upstate NY and I am

>having a hard time finding an hbot center close by. I am also

>overwhelmed by the cost of the hbot. If anyone has any information (in

>layman's terms!) they can provide me with that may help, I would

>greatly appreciate it!

>

>

>

>

[Guest guest]

Ed,

 

I am referring to the Dr. Mukherjee study that was performed on 128

children.  The results of the study were released at the 6th International

Symposium on HBOT in Torrance, CA in July 2008.

 

It clearly found that there was " no significant difference " between the results

when the children were treated at 1.75 ATA and 100% 02, 1.5 ATA and 100% 02, and

at 1.3 ATA with ambient air.

 

Now, I ask that you please do not argue with the statement I have made or the

study, of which you can read part of below.  In doing so, we will confuse and

possibly prevent this lady from getting the help that her child needs.  As with

most of the arguing that occurs on this list serve, although it does shed some

light on HBOT, it may confuse and " turn people off " to the use of HBOT.

 

I have included some quotes from the study for you to read:

 

That is a hard decision we must take,

especially as the much more affordable 1.3 ATA gives statistically similar

benefit at almost

half the cost, which many more parents in the less economically affluent

segments can afford.

 

Also that 1.3 ATA Low pressure Hyperbaric Air Therapy is Statistically Not

Inferior to

Regular HBOT at 1.5 / 1.75 ATA using 100% oxygen.

 

 

>You really should not delay with getting your child treated. Either

>hard or soft chamber is great. Contrary to what most people think, a

>recent study shows the portable chambers are just as effective as

>the hard chambers at treating CP. I can provide a copy of this study

>if you wish to read it.

>Sent from my Verizon Wireless BlackBerry

>

> [ ] New to group

>

>

>Hello. I am new to this group. After reading past posts, I am feeling

>completely overwhelmed! I am a parent of a 5 year old with CP. I am

>researching hbot for treatment of CP. We live in Upstate NY and I am

>having a hard time finding an hbot center close by. I am also

>overwhelmed by the cost of the hbot. If anyone has any information (in

>layman's terms!) they can provide me with that may help, I would

>greatly appreciate it!

>

>

>

>

[Guest guest]

I CHIME what ED has said about HBOT, I started as patient myself in 1989, my

three daughters were treated in 1991 and from there they have had 1000's of

treatments, however prior to HBOT there was no hope, auto immune, autism non

verbal and a host of other problems. they went from disabled to gate or

gifted with an IQ of over 140 and 4,0 gpa. Now 19, 21, 22 I can tell you

this fact, I do not know what would have happened with out HBOT. I entered

into the field of HBOT in 1991 myself.

This is a quick summary of our life and there are to many details to even

list, However you may read about our situation and 150 others and a website

of over 800 pages at www.hbot4u.com

I opened my own clinic in 1998 hit the ground running! my husband and I

were the first to LOWER the price of HBOT!

I urge everyone to wisely consider the science in HBOT.

My zeal for HBOT has remained and will remain.

Sincerely

and CHT, EMT, DMT.

Rapid Recovery Hyperbarics

www.hbot4u.com

Re: [ ] New to group

> HI,

>

> I'm Ed, my daughter is now 13 years old and has extremely

> severe CP from dying for 35 minutes in the womb.

>

> We started HBOT when she was 5 with Neubauer. It dramatically

> changed her life. She remains a quad, but can attend school full

> time, is in full inclusion and has a tested IQ of 148! I believe she

> would not be alive if it wasn't for HBOT. Certainly, her life would

> be significantly worse.

>

> I have pursued HBOT very, very hard since then (Sponsored the 2nd

> Intl Symposium on HBOT for the CP child; sponsored the debate on HBOT

> for CP at the Int;l Congress of Hyperbaric Medicine, etc.; wrote

> chapt 7 of Neubauer's book on HBOT for CP; sponsored CA legislation

> AB2763 for reimburement, sued California; built a clinic and founded

> the CHERISH Foundation, and much more). CHERISH pdoes a lot for

> HBOT, including right now is implementing the most significant HBOT

> for autism study to date; with the UC Medical SChool. We are

> almost done with it.

>

> From what little you said, unless you can travel, you need to look

> at a home chamber.

>

> Despite what some people on this list might think (pro and con) it

> should be helpful. But, it does not deliver the same level of

> treatment as medicinal HBOT. There are a few nuances that people do

> not understand.

>

> But, the bottom line is you have to find a way to get HBOT, if

> traveling is difficult, then you need to look at the home chamber.

> And, I am pretty sure you will be happy with it.

>

> The positive is that it is much easier to do this at home than

> traveling to a clinic, and you will do more and more

> treatments. With mild HBOT, numbers are very, very important. You

> do not have the same issue with medicinal, I believe.

>

> But, I would tell you that IF you can travel, there is a clinic in

> the Hudson Valley that is pretty good and very dedicated. I do not

> know what they charge.

>

> Also, you can look up clinics online at www.netnet.net/mums.

>

> You can send any other question you might have to me directly or

> through this site.

>

> my direct email is ednemeth@...

>

> Blessings!

> Ed

>

>

>

>

>

>

> At 06:01 AM 10/10/2008, you wrote:

>

>>Hello. I am new to this group. After reading past posts, I am feeling

>>completely overwhelmed! I am a parent of a 5 year old with CP. I am

>>researching hbot for treatment of CP. We live in Upstate NY and I am

>>having a hard time finding an hbot center close by. I am also

>>overwhelmed by the cost of the hbot. If anyone has any information (in

>>layman's terms!) they can provide me with that may help, I would

>>greatly appreciate it!

>>

>>

>

> Ed Nemeth

> President, CEO

> Spectrum Events

> 444 North Third Street, Suite 304

> Sacramento, CA 95814

>

> 916-856-7044 x 339

> 916-856-7040 (fax)

>

>

[Guest guest]

Please check out our web site. Our portable hyperbaric chambers start

at $6,995.

Diane N. Pechenick

diane@...

http://www.healingdives.com

> Hello. I am new to this group. After reading past posts, I am feeling

> completely overwhelmed! I am a parent of a 5 year old with CP. I am

> researching hbot for treatment of CP. We live in Upstate NY and I am

> having a hard time finding an hbot center close by. I am also

> overwhelmed by the cost of the hbot. If anyone has any information

(in

> layman's terms!) they can provide me with that may help, I would

> greatly appreciate it!

[Guest guest]

I just wanted to let you know there is a center in Great Neck, Long

Island and there is one in Parsippany, New Jersey.

>

> Hello. I am new to this group. After reading past posts, I am feeling

> completely overwhelmed! I am a parent of a 5 year old with CP. I am

> researching hbot for treatment of CP. We live in Upstate NY and I am

> having a hard time finding an hbot center close by. I am also

> overwhelmed by the cost of the hbot. If anyone has any information (in

> layman's terms!) they can provide me with that may help, I would

> greatly appreciate it!

>

[Guest guest]

HI

The elks club cripple children's fund may help pay for the hbot. They helped

pay for the first 30sessions for my son @100.00 per session about 4years ago.

Cordella

[ ] New to group

Hello. I am new to this group. After reading past posts, I am feeling

completely overwhelmed! I am a parent of a 5 year old with CP. I am

researching hbot for treatment of CP. We live in Upstate NY and I am

having a hard time finding an hbot center close by. I am also

overwhelmed by the cost of the hbot. If anyone has any information (in

layman's terms!) they can provide me with that may help, I would

greatly appreciate it!

[Guest guest]

>

> Hi Bee and members:

>

> I found this site today while trying to research all I could about

> candida. Please forgive me if this post is too long. I'm 36 years

old

> and have been having persistent yeast problems for almost one year

> now. I've had yeast issues in the past but they've always

responded to

> treatment and cleared up eventually. This past year though has

been

> different- also a very stressful one so I guess that explains a

lot. I

> think all my research has left me more confused than ever because

> there's so much conflicting information. I woould really appreciate

> some answers to some of my concerns. Please bear with me if the

> questions seem absurd or naiive- I'm simply trying to learn more

about

> this thing.

+++Hi Tricia. Welcome to our group. You have certainly come to the

right place to cure your candida.

>

> 1. Can I do this program while breastfeeding or pregnant?

+++Yes you can. You shouldn't have some antifungals but there are

warnings in my article about them. You can have unrefined coconut

oil and garlic as antifungals.

> 2. What is the difference between this program and Donna Gates'

Body Ecology candida program?

+++The major differences are she allows many foods that feed candida,

foods that are damaging to the body, and she doesn't recommend

high " good " fats like I do. My program is unique and it works

because of these important difference. We have many people come here

after trying her program, and others, such as SCD.

> 3. What is the difference between this program and the Biamonte

method-www.health-truth.com.

+++I don't know that program, but if you read my program you'll know

the differences. I suggest you start with 2 main article:

-How to Successfully Overcome Candida

-Curing Candida, How to Get Started

Both of them are in the candida section on my website:

http://www.healingnaturallybybee.com/candida/index.php

+++Once you've read please get back to us with questions. We are

here to help you get well too!

The best in health, Bee

[Guest guest]

>

> > +++Hi Tricia. Welcome to our group. You have certainly come to

the

> right place to cure your candida.

>

> > ++Once you've read please get back to us with questions. We are

> here to help you get well too!

>

> The best in health, Bee

>

Thanks for the encouragement. I've been going through the files you

recommend.

Tricia