Just Wondering?

[Guest guest]

I have been a member about a month. I have learned so much from all

of you. This is the second time I have ever posted. I guess I am kind

of shy.....Anyway I had L4L5 Back fusion 1 year a go February of this

year. My Dr. said it was emergency surgery cause I was losing bladder

control and the ability to walk. I had plate and titanium screws put

in. I have pain constantly in the L4L5 area. The DR> said my scaitia

nerves had been crushed and MIGHT heal but no guarantees. Well, the

nerves didnt heal. So I have nerve damage in both buttocks legs and

feet. So know the neurologist has had me on neurotin plus Norco.

Plus he is gunho on this spinal chord stimulator and I said NO WAY! I

went to a pain management dr who has put me on methadone. Has anyone

been prescribed that? I started to take it for a few days and I didnt

like how it made me feel. I call the Dr. up and his answer is to up

the dose. I told him the medicine makes me sick and he said he has

never heard of it making anyone sick. I told him the methadone makes

me feel weird in my head but does nothing for my pain.

[Guest guest]

hey carlene, my range of motion is from bed to couch. - but tthat is where

the lap top is or as it is right now - propped up against my knees as i lay

down.

marsha

[Guest guest]

Marsha,

you must be feeling pretty good--sure are busy on the internet! that's great.

i took methadone for awhile and had no problems but i am not easily addicted to

drugs; have used xanax off and on for many years and still only use .5mg or

sometimes 1mg but never hooked on it either. but then when i had my knee

surgery, i needed something stronger (or so the doctors thought) and they put me

on those codeine products, oxycontin, hydrocodone-now those really weird me out.

so, i got off of them and on tramdol which worked fine, still does on those days

when i am overdoing it a bit.

still, as Marsha pointed out earlier, we can each only speak for ourselves and

our experiences for we all have different bodies, physical issues, etc.

Carlene in MT

Re: Just Wondering?

i just spoke with someone more knowledgeable about methadone and it was

first developed as a synthetic pain killer and then used for returning soldiers

to get them off heroin. it is still a terrible drug as far as i am concerned

from seeing a lot of people go thru terrible withdrawal from methadone. bad

shit

[Guest guest]

I've heard of many, many people being prescribed methadone for *chronic,

severe* pain. The studies on dependence indicate that if you're

legitimately in serious pain, the likelihood of dependence, or addiction, is

minimal (unless you're already predisposed to that). And if there is no

cure for the problem that's causing the pain, and you're going to be on the

meds forever, what's the difference if you do get addicted?

In either case, with the way the DEA is cracking down on doctors who

over-prescribe, it's a good bet that darn few doctors are prescribing the

drug inappropriately. It's probably not helping anyone for *this* community

to be judgemental about legitimate medicine.

But Sharon, if the doctor isn't listening to you, you might want to consider

finding another doctor. Pain is still a completely subjective thing, and we

need doctors who understand that we're all different, and honor our wishes.

On 6/3/06, Penny Carrillo <chilicent@...> wrote:

>

> I totally agree. It is worse than heroin. I have never heard of anyone

> being prescribed methadone for pain. It is very addicting. My brother in

> law was a long time heroin user and has been going to the methadone clinic

> now for many many years. Find another pain managment doctor. Penny...

>

> BLEECKERST10012@... wrote: i just spoke with someone more

> knowledgeable about methadone and it was

>

> first developed as a synthetic pain killer and then used for returning

> soldiers

> to get them off heroin. it is still a terrible drug as far as i am

> concerned

> from seeing a lot of people go thru terrible withdrawal from methadone.

> bad

> shit

>

>

>

[Guest guest]

,I doubt (hope!) that you didn't offend anyone here, I know you didn't offend me!The natural, or "alternative", options open to us are being explored and offered more and more. Don's got a great library here, and he's included as much natural information that's been found by him, and it's something that calls to many of us.I've been a quasi-naturopath for years, and believe most strongly in our abilities to "heal thyself, doctor". Well, the folks here that are in or past treatment decided to heal themselves with that option. I'm glad you've been through treatment and can speak from a 'been there done that' perspective. I know what you're saying about simple frigging words, I'm a reasonably intelligent person myself and now find myself searching for "that word" in a conversation sometimes, it's very frustrating. Maybe we can team up and text each other when we're at a loss, eh?I think most of the folks here watch the conversations and try to learn from them. We're all trying to help each other through this little roadbump, and however each of us try to conquer it, we're here for all of them, all day every day.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett Re: [ ] Just Wondering?

Steve,

I do realize I opened up a can of worms, and by no means did I mean to step on any toes, especially those that are on treatment!!!!

I guess I just assumed that most on this sight had the chance to look at the natural remedies Lloyds concerns with interferon.

I did treatment myself, and I am most grateful that I got to treat when and for as long as I did, however, I just have seen so much astounding information and documentation on how bad interferon can be for us - i'm just wondering if there is anything we can do to help push the FDA or the medical society, or gov, whoever it is, into researching all of this further...

I am really sorry if I offended anyone, I am sometimes really good at just simply saying what I feel, especially if I am passionate about it, or if it appears to be for the public's better/good.

And your so right about how we must all fight our own battles so to speak, and choose the best means for us. I too had given up after my treatment, and just settled for trying to forget it, and living life, putting it God's hands, and dying when he calls my number.

However, it really isn't something we can forget, at least not me anyway, I am reminded daily with the football feeling in my upper right quadrant, from inflammation. And I am reminded when I try and have a normal conversation with someone, more embarrassing, someone that I have just met, and I can't remember the word I am normally use to saying.. And the constant fatigue...

You know what I mean....

I will look for your book on the sight, I had no idea you had one there, I really need to dig around the sight more. I haven't because I just go to my inbox to correspond with everyone....

By the way, is there any kind of chat that this group goes to?

Ok well, thanks for the info Steve, I am anxious to read the info now...

I hope I didn't offend anyone and if I did please accept my sincere apologies...

Hugs, prayers, and May God bless you all,

_,_._,___

[Guest guest]

,I went to see my Liver Specialist a few weeks ago for the first time in a few years..  We talked about the Fibromyalgia and the other symptoms that I still have..  sounds like you have some of the same.  Here's what he said, and I must admit I was quite surprised...  now, bear in mind, when I was on treatment this guy was very aggressive with his treatment protocol.  I took double the amount of Peg-Interfuron that the average person does, and 14  200mg Ribavirin a day.. yes, you heard me right, 2,800 mg of Ribavirin a day.  My doctor said that it can take many years for the body to recover from one year of Interfuron at the level that I was taking it..  10 or more years.  Holy crap.  

I too forget words.  I deal with horrible insomnia all the time.  I get lost easily.. in my own neighborhood.  It took me 2 years after treatment was over to be able to drive locally again.  If I have to go beyond 5 miles from my house, I best not be alone.  Familiar roads and landmarks are no longer familiar to me.  This past Mother's Day I had to take my brother-in-law to the airport.. luckily I had my son with me.  I should have let him drive.  I kept panicking because I didn't think I was going the right way.  I was.  I didn't know where I was.  I've made that drive to the airport hundreds of times..  My life has changed since treatment.  Would I do it again?  Yeah... if I had insurance to cover it.  Right now I have Medicare and no prescription coverage.  Would I try a natural approach first?  Not so sure...  Hopefully that's a bridge I will never have to cross again.  

Just my 2 cents.

Hugs,

TeriOn Mon, Oct 25, 2010 at 9:30 PM, <jessegrace514@...> wrote:

 

Ok Everyone,

     I have been researching this man name Lloyd - Teri and Trudi  know of him, and maybe many more of you. 

I have also been watching his video's on you Youtube.  A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right. 

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse. 

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure.  Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory.  I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words.  Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

 

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

 

Comical as it may seem - but, the medical documentation speaks volumes.

 

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

 

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us.  The damage on the brain, and nervous system alone is phenomenal.

 

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

 

Hugs and prayers,