Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 Joan, I understand depakote is anti-seizure med. JJ takes it but has not been dx'd. & Garry, parents of (9), (8), JJ (6), (5), and Esther (3). All adopted & with Down Syndrome. ---------- >From: " Joan E. Guthrie Medlen " <jmedlen@...> >egroups >Subject: so... >Date: Tue, May 9, 2000, 8:50 AM > >what'd you all think of the " mapping of chromosome21 " ?? > >I didn't realize it was associated with epilepsy and lou gehrig's disease. >Or maybe it just didn't sink in. Anyway, I find that interesting. How many >of us had to endure 23 hour EEGs with our kids when they were dx'd wiht >Autism?? And how many are on seizure meds? I wonder if they will find a >clue there. > >j > >------------------------------------------------------------------------ ><!-- |@|begin eGroups banner|@| runid: 3951 crid: 1901 --> ><a target= " _blank " >href= " 1/3951/10/_/691668/_/957891647/ " ><center> ><img width= " 468 " height= " 60 " > border= " 0 " > alt= " " > >src= " http://adimg./img/3951/10/_/691668/_/957891647/EGDIRbranddi dyou468x60 >a8.gif " ></center><center><font color= " white " ></font></center></a> ><!-- |@|end eGroups banner|@| --> >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 Cool, huh. Unfortunately, the 100 genes they don't know what they are that they found will slow stuff down. Were not even sure of the effect the other 100 that we did know about had. Kara At 09:50 AM 5/9/2000 -0700, you wrote: >what'd you all think of the " mapping of chromosome21 " ?? > >I didn't realize it was associated with epilepsy and lou gehrig's disease. >Or maybe it just didn't sink in. Anyway, I find that interesting. How many >of us had to endure 23 hour EEGs with our kids when they were dx'd wiht >Autism?? And how many are on seizure meds? I wonder if they will find a >clue there. > >j > >------------------------------------------------------------------------ ><!-- |@|begin eGroups banner|@| runid: 3951 crid: 1901 --> ><a target= " _blank " href= " 1/3951/10/_/691668/_/957891647/ " ><center> ><img width= " 468 " height= " 60 " > border= " 0 " > alt= " " > src= " http://adimg./img/3951/10/_/691668/_/957891647/EGDIRbranddid you468x60a8.gif " ></center><center><font color= " white " ></font></center></a> ><!-- |@|end eGroups banner|@| --> >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Given his age,pain level, duration, history and lack of health insurance, I decided to postpone imaging. Like i said, and like i explained to him, if the symptoms progress, change quality or do not relent over time then I will have to send him for US of abdomen. I did not skip the point you made below, but deduced that it was likely, givin the exam, that this was irritating to an ulcer and not stones, liver etc. But time will tell Convincing him to get an exploratory US for $250.00 when his pain is at 1-2 of 10 for 1-5% of a day wasnt gonna happen! If the pain level increases so will his resolve to have the procedure performed. He has been well informed that imaging would help in the diagnosis, but indicated strongly his desire to wait. Dr. ph Medlin D.C.Spine Tree Chiropractic1627 NE Alberta St. #6Portland, OR 97211Ph: 503-788-6800c: 503-889-6204 so... .....why skip this part?"He seems to think that the intensity of the pain is increased by alcohol use, "I'm all for imaging ASAP.....J. Pedersen DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 have you tried making an appointment without telling them up front that you're seeking a second opinion? that might help you get in the door. good luck! > > > I had my brain, cerv and lumbar MRI's. The neurologist will only tell > me I have a bulge in one disc (I have no idea where) and that my brain > is slightly atrophied. She's not at all concerned about my brain > because, as she puts it, " there's nothing to be done about it anyway " . > > That's not very comforting! I've tried making apppointments with other > neurologists but all say the same thing - they don't do second opinions. > > *sigh* > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Thanks - Yes, I have, but they always ask, " Have you had any MRI's or other testing done? " I have to say yes - I can't afford more MRI's... then they ask who the doctor was that ordered them - and I get the same 'no second opinion' disclaimer from them... > > > > > > I had my brain, cerv and lumbar MRI's. The neurologist will only tell > > me I have a bulge in one disc (I have no idea where) and that my brain > > is slightly atrophied. She's not at all concerned about my brain > > because, as she puts it, " there's nothing to be done about it anyway " . > > > > That's not very comforting! I've tried making apppointments with other > > neurologists but all say the same thing - they don't do second opinions. > > > > *sigh* > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 : I don't want to sound like I'm advocating telling half truths when it comes to your health, but I treat my specialists as if I've never seen anyone else about it. How else would they know, outside of potentially having to consult with your PCP? If you do not have to consult your PCP before seeing a specialist, discuss things as if you've never seen anyone. If your insurance requires a PCP referral, he or she is the lynch pin to it all. If he or she is not supportive, time to switch up PCPs. I have had relatively good health, but I've switched up physicians if they do not have my well-being in mind. Stay strong, man. We cannot change people's attitudes or behaviors. The great thing is that there's more than one doctor in the world! - So... I had my brain, cerv and lumbar MRI's. The neurologist will only tell me I have a bulge in one disc (I have no idea where) and that my brain is slightly atrophied. She's not at all concerned about my brain because, as she puts it, " there's nothing to be done about it anyway " . That's not very comforting! I've tried making apppointments with other neurologists but all say the same thing - they don't do second opinions. *sigh* Quote Link to comment Share on other sites More sharing options...
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