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Hi Star, if it works, don't fix it!!!!

> Thanks for inviting me,,I am on effexor xr now four 4 months and

> doing pretty good so far.But every since I heard of this lexapro, I

> have been wanting to fine out more about it.I was on wellbutrin for

3

> weeks, and that one wasnt for me, and I did prozac and it didnt do

> anything but make me zombie with a smile, so I have two down so far

> for me.

> Hello everybody :-)

> Star

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---Hi ,,,,,,you are so right!!!

Thanks

Star

In Lexapro@y..., " karenpkaren " <karenpkaren@y...> wrote:

> Hi Star, if it works, don't fix it!!!!

>

>

> > Thanks for inviting me,,I am on effexor xr now four 4 months and

> > doing pretty good so far.But every since I heard of this lexapro,

I

> > have been wanting to fine out more about it.I was on wellbutrin

for

> 3

> > weeks, and that one wasnt for me, and I did prozac and it didnt

do

> > anything but make me zombie with a smile, so I have two down so

far

> > for me.

> > Hello everybody :-)

> > Star

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  • 1 year later...

Ok I went today. The space between my vertebrae in the lower lumbar

is narrowing which means Its been compressed by damage of injury

plus Osteo arthritis has set in. He's sending me to PT starting

next week and put me on Mobic. Anyone heard of it or been on it?

Any side effect. Aparently it's Non steroidic so I should not sweel

up like a blowfish like on Prednisone.

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HI Beth, welcome too the group, sorry too hear your hurting so much.

But glad you found us. I truly believe that the best understanding

we get for our pain comes from others who live in the same

situation. If you have any questions on meds check the links list.

There are a couple of sites on it that can tell you more about meds

and a lot of other information. Medline is my favorite I think it

has the best info. The following I copied off their site for you.

Hope this helps. Good luck with PT. I tried that myself several

times but the getting there was not worth what I got out of it. I

seem too be better off doing my exercises at home. Although for me

thats tough too make myself sit down and get it done. I'm constantly

surprised how much time it takes making dr appt, refilling meds,

getting the meds, talking too new dr's, getting those appts and

trying new things the dr's come up with that might help me. Gee it

wears me out sometimes. Best of luck, take care. Sharon

Other drug names: A-Am An-Az B C-Ch Ci-Cz D-Dh Di-Dz E F

G H I-J K-L M-Mh Mi-Mz N-Nh Ni-Nz O P-Pl Pm-Pz Q-R S-Sn

So-Sz T-To Tp-Tz U-V W-Z 0-9

Meloxicam

(mel ox' i cam)

Brand name(s): Mobic

Contents of this page:

Why is this medication prescribed?

How should this medicine be used?

What special precautions should I follow?

What should I do if I forget a dose?

What side effects can this medication cause?

What storage conditions are needed for this medicine?

In case of emergency/overdose

What other information should I know?

Why is this medication prescribed?

Meloxicam is used to relieve the pain, tenderness, inflammation

(swelling), and stiffness caused by arthritis. It works by

decreasing the body's production of prostaglandin, a substance that

causes inflammation and pain.

This medication is sometimes prescribed for other uses; ask your

doctor or pharmacist for more information.

How should this medicine be used?

Meloxicam comes as a tablet to take by mouth. It is usually taken

once a day with or without food. Follow the directions on your

prescription label carefully, and ask your doctor or pharmacist to

explain any part you do not understand. Take meloxicam exactly as

directed. Do not take more or less of it or take it more often than

prescribed by your doctor.

Your arthritis symptoms should improve within several weeks of

beginning meloxicam. If your symptoms do not improve or they worsen,

call your doctor. Do not stop taking meloxicam without talking to

your doctor. Arthritis symptoms will return if you stop taking

meloxicam.

What special precautions should I follow?

Before taking meloxicam,

tell your doctor and pharmacist if you are allergic to meloxicam,

aspirin, nonsteriodal anti-inflammatory drugs (NSAIDs), or any other

drugs.

tell your doctor and pharmacist what prescription and

nonprescription medications you are taking, especially aspirin,

anticoagulants (''blood thinners'') such as warfarin (Coumadin),

betamethasone (Celestone), benazapril (Lotensin), captopril

(Capoten), cholestyramine (Cholybar, Questran, Questran Light),

cortisone (Cortone), dexamethasone (Decadron, Dexone), diuretics

(''water pills''), enalapril (Vasotec), fosinopril (Monopril),

fludrocortisone (Florinef), hydrocortisone (Cortef, Hydrocortone),

lithium (Cibalith-S, Eskalith, Lithobid, others), lisinopril

(Prinivil, Zestril), methylprednisolone (Medrol), moexipril

(Univasc), prednisolone (Prelone), prednisone (Deltasone, Orasone),

quinapril (Accupril), ramipril (Altace), triamcinolone (Aristocort),

and vitamins or herbal products.

tell your doctor if you have or have ever had asthma; liver, kidney,

or heart disease: a severe allergic reaction to aspirin or an NSAID;

nasal polyps; ulcers; gastrointestinal disease; a history of alcohol

abuse; or if you currently smoke tobacco products.

tell your doctor if you are pregnant, plan to become pregnant, or

are breast-feeding. If you become pregnant while taking meloxicam,

call your doctor.

if you are having surgery, including dental surgery, tell the doctor

or dentist that you are taking meloxicam.

What should I do if I forget a dose?

Take the missed dose as soon as you remember it. However, if it is

almost time for the next dose, skip the missed dose and continue

your regular dosing schedule. Do not take a double dose to make up

for a missed one.

What side effects can this medication cause?

Although side effects from meloxicam are not common, they can occur.

Tell your doctor if any of these symptoms are severe or do not go

away:

loss of appetite

upset stomach

constipation

diarrhea

gas

weight gain

dizziness

headache

muscle, joint, or back pain

difficulty sleeping

cough

frequent urination

If you experience any of the following symptoms, call your doctor

immediately:

skin rash

difficulty breathing

respiratory infection

urinary tract infection

bloody diarrhea or black tarry stools

itching

abdominal pain

excessive tiredness

vomiting

flu-like symptoms

dark urine

yellowing of the skin or whites of the eyes

swelling of the hands, feet, ankles, or lower legs

What storage conditions are needed for this medicine?

Keep this medication in the container it came in, tightly closed,

and out of reach of children. Store it at room temperature and away

from excess heat and moisture (not in the bathroom). Throw away any

medication that is outdated or no longer needed. Talk to your

pharmacist about the proper disposal of your medication.

In case of emergency/overdose

In case of overdose, call your local poison control center at 1-800-

222-1222. If the victim has collapsed or is not breathing, call

local emergency services at 911.

What other information should I know?

Keep all appointments with your doctor and the laboratory. Your

doctor will order certain lab tests to check your response to

meloxicam.

Do not let anyone else take your medication. Ask your pharmacist any

questions you have about refilling your prescription.

Last Revised - 01/01/2003

American Society of Health-System Pharmacists, Inc. Disclaimer

The MedMasterâ„¢ Patient Drug Information database provides

information copyrighted by the American Society of Health-System

Pharmacists, Inc., Bethesda, land Copyright© 2001. All Rights

Reserved.

Health Topics | Drug Information | Encyclopedia | Dictionary | News

| Directories | Other Resources |

> Ok I went today. The space between my vertebrae in the lower

lumbar

> is narrowing which means Its been compressed by damage of injury

> plus Osteo arthritis has set in. He's sending me to PT starting

> next week and put me on Mobic. Anyone heard of it or been on it?

> Any side effect. Aparently it's Non steroidic so I should not

sweel

> up like a blowfish like on Prednisone.

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  • 9 months later...
Guest guest

I don't think so in fact I read (belatedly) it hasn't been tested very well & to

wait 5 years to take Lex....Joyce

Re: Hi New here

I was wondering if Lexapro causes liver problems? This med has not been tested

for long term use correct? Terry

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  • 2 months later...

In a message dated 10/11/2004 5:25:49 AM Pacific Daylight Time,

eric_ross@... writes:

This tuesday oct 12 is my first day getting the test to see if I'm cadiadte

for CI.

Good luck and welcome!

When you go in for your test, don't be afraid to ask ANY questions that came

to your mind, even what appears to be silly. There are many of us here who

has been deaf as long as you have, even some of us since birth (I'm one of

them).

You are also welcome to post your questions in here, if you are in hurry to

know the answer before your next appointment,

Again, welcome to the list!

Lee

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,

Welcome. I am from Minnesota. Will you go to Mayo or U of MN?

Re: hi new here

>

>

>

> Hi ,

> Good to have you hear on the forum and congratulations on your

> decision to be implanted. Please know that we are here to answer any

> questions you may have as many of us here have been through the

> process and have the implant

> so we can help you along and help make the path a little smoother

> for you.

> I have a brother in the Richfield, MN area and I know there a few

> people on here from Minnesota who may be willing to contact you if

> you want.

> Do you know what to expect at your 1st evaluation appointment?

> Ask away and we'll be glad to help you out.

> Warm Regards,

> Silly MI

>

>

>

> In , " uwdiving80 " <eric_ross@t...> wrote:

> >

> >

> > Hi I'm new here, a breif personal about myself, I'm from minnesota

> and been deaf since 2 yrs old.

> > This tuesday oct 12 is my first day getting the test to see if I'm

> cadiadte for CI.

>

>

>

>

>

>

>

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- going to U of MN

Along with sharon smith the audiologist and dr. Levine the surgeon

> > >

> > >

> > > Hi I'm new here, a breif personal about myself, I'm from minnesota

> > and been deaf since 2 yrs old.

> > > This tuesday oct 12 is my first day getting the test to see if I'm

> > cadiadte for CI.

> >

> >

> >

> >

> >

> >

> >

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Cool, . I have met Dr. Levine. Annika goes to the U of MN also but since

she is pediatric her surgeon is Dr. Rimmel. In fact she gets to go back and see

him this Friday. I have been down there every week for the past three weeks

with her. She still goes there for AVT therapy once a month and September and

October ended up being scheduled back to back. Maybe we will see you there

sometime.

Annika's mom

bilaterally implanted 3/1/04

hookup 3/25/04

Re: hi new here

- going to U of MN

Along with sharon smith the audiologist and dr. Levine the surgeon

> > >

> > >

> > > Hi I'm new here, a breif personal about myself, I'm from minnesota

> > and been deaf since 2 yrs old.

> > > This tuesday oct 12 is my first day getting the test to see if I'm

> > cadiadte for CI.

> >

> >

> >

> >

> >

> >

> >

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  • 5 months later...
Guest guest

Dear Daby,

How did you find this site?

Which Bryman College? Which state/city.

What is your instructor's name?

Stuck? I would not call being in a program 'stuck'.

You ARE moving forward.

Good luck post your questions and let us know how you

are doing.

Respectfully,

Jeanetta Mastron CPhT BS Chem

--- daby_57 <daby_57@...> wrote:

>

> I am taking the Phar Tech course at Bryman College

> right now we

> begin our next mod on wed we will be working with

> flow rates, chemo

> lab and 4 other areas as well

> i have been stuck on a career plan like how far in

> phamacy do I

> want to take this. I am 47 yrs old and just wanted

> to do something

> that would give me more experience and further my

> retail experience

> any help would be nice we have 5, 6 week mod and

> then we have a

> 30 day in hospital and 30 days in retail pharmacy

> externship we

> graduate in dec. Am doing good should have looked

> for this site a

> month ago talk soon. I like chat rooms and am

> online alot

>

>

>

>

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Guest guest

I am in Washington State, I go to the Port Orchard campus. My Core

mod instructor Was Mr Adcock. I am in the evening class and there is

talk that the program may be split because there are to many of us

for 1 instructor I cant think of the gals namebut Ms McGee is

leaving she is moving to California to work. I found this site but

doing a search for groups , I found the Pharmacy Tech one first and

a link to here from nutterbutter someone she is from Texas.

There are so many ways I could go with my career not sure what I

want to do. Any ideas would be helpful as my training is just

beginning. I also noticed that Dora is from same area found that

awesome to have someone that close in a chat group. I will be on

most of today working on my career plan that was due last week but

was trying to catch up on other assignments thanks Deb

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Guest guest

Dear Deb,

Concentrate on becoming the BEST pharm tech you can be

right now. If your school requires a career plan, then

place an emphasis on that which you can attain in one

year, then 3 yrs then 5 yrs then 10 yrs.

example:

1. pharm tech

2. certified pharm tech

3. lead certified pharm tech

4. purchasing agent (CPhT) or anit-coagulant clinic

lead tech or nuclear pharm tech

and

4. simultaneously return to school

5. pharm tech educator

or

5. pharmacist

Hope this helps.

Jeanetta

--- daby_57 <daby_57@...> wrote:

>

> I am in Washington State, I go to the Port Orchard

> campus. My Core

> mod instructor Was Mr Adcock. I am in the evening

> class and there is

> talk that the program may be split because there are

> to many of us

> for 1 instructor I cant think of the gals namebut Ms

> McGee is

> leaving she is moving to California to work. I found

> this site but

> doing a search for groups , I found the Pharmacy

> Tech one first and

> a link to here from nutterbutter someone she is from

> Texas.

> There are so many ways I could go with my career not

> sure what I

> want to do. Any ideas would be helpful as my

> training is just

> beginning. I also noticed that Dora is from same

> area found that

> awesome to have someone that close in a chat group.

> I will be on

> most of today working on my career plan that was due

> last week but

> was trying to catch up on other assignments thanks

> Deb

>

>

>

>

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  • 1 year later...

Ann - St. Louis has one of the highest crime rates in the country. You

might want to check into the employment rate there also and the cost of living.

I use to live in Carbondale, Illinois - it is about 90 miles from St.

Louis. It is an University town - has a good hospital and the economy is

pretty

good. The weather probably won't be as cold as Dixon - or the Chicago area..

The school are also pretty awesome. Will be praying for you. Sandi Ken

Hunter (Systemic)

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-Hi Ann,

I dont have any advice, but I just wanted to welcome you to the

group. These foolk here are awesome and such a godsend.I hope you get

some answers to your questions.

hugs Helen and (9,systemic)

-- In , " Ann " <angrydoughgirl@...> wrote:

>

> Hi my name is ann and I live in Dixon IL.. My daughter is 7 years

> old and has jra. Jennelle has the poly type. Jennelle has had this

> since she was 11 months old. It has been a long hard road for us.

It

> never seems to end. It probbly will never end. I have given up hope

> she will grow out of it, as I was told long ago from her doctor.

> Jennelle's doctor is dr. spencer in chicago. We see him at

> shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

> her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

> her eyes, eye drops every hour two kinds. If the cyclosporine does

> not work she will then be switched to remacaid, which she will have

> infussins every six weeks. This will need to be done in chicago,

> which is 2 hours away. My husband grew up in St. Louis and we are

> thinking of moving there because there are 2 childrens hospitals we

> could go to. And there are more doctors to see. Where I live there

> are hardly no specialists to see for her or no services such as ot

> or pt. Even in the school. The only insurance we have on my

daughter

> is medicaid. I was hoping if there was someone out there who was

> around the st. louis area that could help me if this would be a

good

> idea to move there and what advice you could tell me about what I

> need to do to get things set up for her.Also if anyone who wants to

> ask me questions or need help please let me know. I will love to

> help. Thank you so much for your help. Ann

>

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Welcome to the list. I take my 8 yr old son to Cardinal Glennon

Chilsren's Hospital in St Louis. We live about a 2 hr drive from

there, so we usually stay overnight after an appt because

does not travel well. St Louis is a nice city to visit, but

definately a higher cost of living. Perhaps not as high as Chicago

area, but I would recommend living in the outer subarbs rather than

the city itself. If you have any specific questions, feel free to

ask.

Misty & (8, systemic)

>

> Hi my name is ann and I live in Dixon IL.. My daughter is 7 years

> old and has jra. Jennelle has the poly type. Jennelle has had this

> since she was 11 months old. It has been a long hard road for us.

It

> never seems to end. It probbly will never end. I have given up hope

> she will grow out of it, as I was told long ago from her doctor.

> Jennelle's doctor is dr. spencer in chicago. We see him at

> shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

> her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

> her eyes, eye drops every hour two kinds. If the cyclosporine does

> not work she will then be switched to remacaid, which she will have

> infussins every six weeks. This will need to be done in chicago,

> which is 2 hours away. My husband grew up in St. Louis and we are

> thinking of moving there because there are 2 childrens hospitals we

> could go to. And there are more doctors to see. Where I live there

> are hardly no specialists to see for her or no services such as ot

> or pt. Even in the school. The only insurance we have on my

daughter

> is medicaid. I was hoping if there was someone out there who was

> around the st. louis area that could help me if this would be a

good

> idea to move there and what advice you could tell me about what I

> need to do to get things set up for her.Also if anyone who wants to

> ask me questions or need help please let me know. I will love to

> help. Thank you so much for your help. Ann

>

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I do not know much about living in St. Louis but I can say that St. Louis

Children's Hospital was very good to us. My daughter was born in Kansas then

transferred to St. Louis Children's Hospital for heart surgery when she was 5

days old. We stayed in the Mc House just a few blocks away and they

were wonderful!! I think crime is quite a problem...at least is was when we were

there 12 years ago. Not sure if this helps. ---

Ann <angrydoughgirl@...> wrote: Hi my name is ann and I live in

Dixon IL.. My daughter is 7 years

old and has jra. Jennelle has the poly type. Jennelle has had this

since she was 11 months old. It has been a long hard road for us. It

never seems to end. It probbly will never end. I have given up hope

she will grow out of it, as I was told long ago from her doctor.

Jennelle's doctor is dr. spencer in chicago. We see him at

shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

her eyes, eye drops every hour two kinds. If the cyclosporine does

not work she will then be switched to remacaid, which she will have

infussins every six weeks. This will need to be done in chicago,

which is 2 hours away. My husband grew up in St. Louis and we are

thinking of moving there because there are 2 childrens hospitals we

could go to. And there are more doctors to see. Where I live there

are hardly no specialists to see for her or no services such as ot

or pt. Even in the school. The only insurance we have on my daughter

is medicaid. I was hoping if there was someone out there who was

around the st. louis area that could help me if this would be a good

idea to move there and what advice you could tell me about what I

need to do to get things set up for her.Also if anyone who wants to

ask me questions or need help please let me know. I will love to

help. Thank you so much for your help. Ann

__________________________________________________

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Hi Ann,

I am not familiar with any docs in st louis but when I saw Dixon,

Illinois I knew just where you are at. We lived in on,

Illinois until just over a year ago when we moved to Az.

I know what you mean about being in the rural midwest and limited

options for specialists, support groups, therapies etc.

Since moving to az we have enjoyed the benefits of the local

arthritis foundation and Aundrea had an awesome time at the jra

camp. Aundrea doesn't require therapy but if she did it is made

available through the school system.

When we lived in Illinois we traveled to Iowa City and saw a pedi.

rheumatologist there and also her eye and skin docs. We went to

chicago for consultations with klein-gettleman )(sp) and to peoria

with dr couri.

How old is Jenelle now? I hope the current treatment plan starts

working so that you don't have to make the change to remicade. Best

of luck with your decisions regarding the move.

sonia (aundrea 11 systemic jra/gerd)

>

> Hi my name is ann and I live in Dixon IL.. My daughter is 7 years

> old and has jra. Jennelle has the poly type. Jennelle has had this

> since she was 11 months old. It has been a long hard road for us.

It

> never seems to end. It probbly will never end. I have given up

hope

> she will grow out of it, as I was told long ago from her doctor.

> Jennelle's doctor is dr. spencer in chicago. We see him at

> shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

> her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

> her eyes, eye drops every hour two kinds. If the cyclosporine does

> not work she will then be switched to remacaid, which she will

have

> infussins every six weeks. This will need to be done in chicago,

> which is 2 hours away. My husband grew up in St. Louis and we are

> thinking of moving there because there are 2 childrens hospitals

we

> could go to. And there are more doctors to see. Where I live there

> are hardly no specialists to see for her or no services such as

ot

> or pt. Even in the school. The only insurance we have on my

daughter

> is medicaid. I was hoping if there was someone out there who was

> around the st. louis area that could help me if this would be a

good

> idea to move there and what advice you could tell me about what I

> need to do to get things set up for her.Also if anyone who wants

to

> ask me questions or need help please let me know. I will love to

> help. Thank you so much for your help. Ann

>

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Hi, Ann. My son also has seen Dr Spencer. What I liked about seeing him

was that he is associated with the University of Chicago. We would see

him at our local children's hospital, Hope Children's Hospital, in Oak

Lawn, IL. I know Dr Spencer has other offices that he goes to in the

Chicago area, perhaps one might be closer to Dixon than going downtown?

Unless you are going there for insurance reasons because it is a

Shriner's hospital? Being associated with the university is to me a

good thing as they are usually on the cutting edge of treatments. Dr

Spencer does attend the conferences and seems to keep up with all the

latest info on JRA. is doing rather well now, but he has made his

own decision to stop treatment for awhile. But when he saw Dr Spencer,

we were quite pleased with him.

I know you must feel discouraged, but remember when they say some kids

outgrow it, usually they mean as they hit puberty or after, the symptoms

may become less. I can't give you any info about St Louis, but do

recommend that if you move, stick with a dr that is affiliated with a

children's hospital, and in my opinion, one associated with a

university. Michele ( 19, spondy)

________________________________

From: [mailto: ] On

Behalf Of Ann

Sent: Friday, December 29, 2006 12:39 PM

Subject: Hi new here

Hi my name is ann and I live in Dixon IL.. My daughter is 7 years

old and has jra. Jennelle has the poly type. Jennelle has had this

since she was 11 months old. It has been a long hard road for us. It

never seems to end. It probbly will never end. I have given up hope

she will grow out of it, as I was told long ago from her doctor.

Jennelle's doctor is dr. spencer in chicago. We see him at

shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

her eyes, eye drops every hour two kinds. If the cyclosporine does

not work she will then be switched to remacaid, which she will have

infussins every six weeks. This will need to be done in chicago,

which is 2 hours away. My husband grew up in St. Louis and we are

thinking of moving there because there are 2 childrens hospitals we

could go to. And there are more doctors to see. Where I live there

are hardly no specialists to see for her or no services such as ot

or pt. Even in the school. The only insurance we have on my daughter

is medicaid. I was hoping if there was someone out there who was

around the st. louis area that could help me if this would be a good

idea to move there and what advice you could tell me about what I

need to do to get things set up for her.Also if anyone who wants to

ask me questions or need help please let me know. I will love to

help. Thank you so much for your help. Ann

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Hi , We have been seeing Dr. Spencer for 6 years now. I agree that he is a very

good doctor. He seems to know alot.We live about two hours away from chicago. I

have asked if he traveled close to my area and he told me no. I guess one of the

reasons I want to move is that it would not take to long to get to the childrens

hospital . I dont have a very good car and the gas is so high. Then It costs

alot for the tollway now. I will miss him when I move. Thank you for your help.

Ann

" Tepper, Michele " <MTepper@...> wrote: Hi, Ann. My son

also has seen Dr Spencer. What I liked about seeing him

was that he is associated with the University of Chicago. We would see

him at our local children's hospital, Hope Children's Hospital, in Oak

Lawn, IL. I know Dr Spencer has other offices that he goes to in the

Chicago area, perhaps one might be closer to Dixon than going downtown?

Unless you are going there for insurance reasons because it is a

Shriner's hospital? Being associated with the university is to me a

good thing as they are usually on the cutting edge of treatments. Dr

Spencer does attend the conferences and seems to keep up with all the

latest info on JRA. is doing rather well now, but he has made his

own decision to stop treatment for awhile. But when he saw Dr Spencer,

we were quite pleased with him.

I know you must feel discouraged, but remember when they say some kids

outgrow it, usually they mean as they hit puberty or after, the symptoms

may become less. I can't give you any info about St Louis, but do

recommend that if you move, stick with a dr that is affiliated with a

children's hospital, and in my opinion, one associated with a

university. Michele ( 19, spondy)

________________________________

From: [mailto: ] On

Behalf Of Ann

Sent: Friday, December 29, 2006 12:39 PM

Subject: Hi new here

Hi my name is ann and I live in Dixon IL.. My daughter is 7 years

old and has jra. Jennelle has the poly type. Jennelle has had this

since she was 11 months old. It has been a long hard road for us. It

never seems to end. It probbly will never end. I have given up hope

she will grow out of it, as I was told long ago from her doctor.

Jennelle's doctor is dr. spencer in chicago. We see him at

shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

her eyes, eye drops every hour two kinds. If the cyclosporine does

not work she will then be switched to remacaid, which she will have

infussins every six weeks. This will need to be done in chicago,

which is 2 hours away. My husband grew up in St. Louis and we are

thinking of moving there because there are 2 childrens hospitals we

could go to. And there are more doctors to see. Where I live there

are hardly no specialists to see for her or no services such as ot

or pt. Even in the school. The only insurance we have on my daughter

is medicaid. I was hoping if there was someone out there who was

around the st. louis area that could help me if this would be a good

idea to move there and what advice you could tell me about what I

need to do to get things set up for her.Also if anyone who wants to

ask me questions or need help please let me know. I will love to

help. Thank you so much for your help. Ann

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Hi Misty,

My in laws live in Pacific, so that is where we are planning to move

or maybe even Union. Wherever we can find a afordable housing. I

dont want to live in st. louis. That is to scarry to me. I am used

to living in a small town. I just want to live 1 hour away to The

cardinal Glennon childrens hosptal.It looks like it will be easy to

get to. Right off the interstate. There seems to be alot of rhym.

doctors there. In chicago and northern IL. there is only 2 doctors

to see. So It takes 2 to 3 months to get to see the doctor. How long

does it take for your son to get in to see the doctor? Jennelle

needs to see a ped eye doctor but there is no one to see here. So we

see a regular eye doctor. Doctors here have never seen a child with

jra. It gets very frustrating. I think it would be good to have all

the doctors in one building. I have to go to diferent clinics to see

a certain doctor and they don't talk to each other. Where I live

there is a shotage of ot and pt. in my area. Is there a stortage in

mo? Thank you for letting me vent. Thank you so much for your help.

Ann

> >

> > Hi my name is ann and I live in Dixon IL.. My daughter is 7

years

> > old and has jra. Jennelle has the poly type. Jennelle has had

this

> > since she was 11 months old. It has been a long hard road for

us.

> It

> > never seems to end. It probbly will never end. I have given up

hope

> > she will grow out of it, as I was told long ago from her doctor.

> > Jennelle's doctor is dr. spencer in chicago. We see him at

> > shrinners is chicago. Jennelle takes Enbrel .08, prednisolone

for

> > her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml.

for

> > her eyes, eye drops every hour two kinds. If the cyclosporine

does

> > not work she will then be switched to remacaid, which she will

have

> > infussins every six weeks. This will need to be done in chicago,

> > which is 2 hours away. My husband grew up in St. Louis and we

are

> > thinking of moving there because there are 2 childrens hospitals

we

> > could go to. And there are more doctors to see. Where I live

there

> > are hardly no specialists to see for her or no services such as

ot

> > or pt. Even in the school. The only insurance we have on my

> daughter

> > is medicaid. I was hoping if there was someone out there who was

> > around the st. louis area that could help me if this would be a

> good

> > idea to move there and what advice you could tell me about what

I

> > need to do to get things set up for her.Also if anyone who wants

to

> > ask me questions or need help please let me know. I will love to

> > help. Thank you so much for your help. Ann

> >

>

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Thank you everyone for welcoming me to the group!! Everyone was so

helpfull!! It feels good that I am not alone anymore!! Thank you Ann

-- In , " Ann " <angrydoughgirl@...> wrote:

>

> Hi my name is ann and I live in Dixon IL.. My daughter is 7 years

> old and has jra. Jennelle has the poly type. Jennelle has had this

> since she was 11 months old. It has been a long hard road for us.

It

> never seems to end. It probbly will never end. I have given up

hope

> she will grow out of it, as I was told long ago from her doctor.

> Jennelle's doctor is dr. spencer in chicago. We see him at

> shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for

> her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for

> her eyes, eye drops every hour two kinds. If the cyclosporine does

> not work she will then be switched to remacaid, which she will

have

> infussins every six weeks. This will need to be done in chicago,

> which is 2 hours away. My husband grew up in St. Louis and we are

> thinking of moving there because there are 2 childrens hospitals

we

> could go to. And there are more doctors to see. Where I live there

> are hardly no specialists to see for her or no services such as

ot

> or pt. Even in the school. The only insurance we have on my

daughter

> is medicaid. I was hoping if there was someone out there who was

> around the st. louis area that could help me if this would be a

good

> idea to move there and what advice you could tell me about what I

> need to do to get things set up for her.Also if anyone who wants

to

> ask me questions or need help please let me know. I will love to

> help. Thank you so much for your help. Ann

>

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Cardinal is fairly easy to get to, although there is one quirky turn

onto Grand Ave off of eastbound I 64. There is usually a waiting

period for new patients, but you could perhaps circumvent that when

you have a definate move date by coordinating through your present

rhuemy. We got around it because was seen by a rhuemy there

while hospitalised, and so was not a new patient.

I really like having drs in the same building. They coordinate

's twice yearly appointments with the opthamologist to be the

same day as his rhuemy so we don't have to make separate trips. We go

to the eye appt firstr, then to the rhuemy when we're done. In fact,

that's just what we're doing next Thur if the weather holds. (note to

self: bring his shades in case they dilate his pupils)

Here in Hannibal, there is no shortage of ot and pt. I don't know

about the Pacific area, though.

Misty & (8, systemic)

>

> Hi Misty,

> My in laws live in Pacific, so that is where we are planning to

move

> or maybe even Union. Wherever we can find a afordable housing. I

> dont want to live in st. louis. That is to scarry to me. I am used

> to living in a small town. I just want to live 1 hour away to The

> cardinal Glennon childrens hosptal.It looks like it will be easy to

> get to. Right off the interstate. There seems to be alot of rhym.

> doctors there. In chicago and northern IL. there is only 2 doctors

> to see. So It takes 2 to 3 months to get to see the doctor. How

long

> does it take for your son to get in to see the doctor? Jennelle

> needs to see a ped eye doctor but there is no one to see here. So

we

> see a regular eye doctor. Doctors here have never seen a child with

> jra. It gets very frustrating. I think it would be good to have all

> the doctors in one building. I have to go to diferent clinics to

see

> a certain doctor and they don't talk to each other. Where I live

> there is a shotage of ot and pt. in my area. Is there a stortage in

> mo? Thank you for letting me vent. Thank you so much for your help.

> Ann

>

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  • 1 year later...
Guest guest

Cheri,

I don't know which pain clinic or Drs. you may have seen. I would

recommend the Boston Spine Group at New England Baptist Hospital. Dr.

Rand

is a very good specialist and also Dr. Rainville is a very good pain ma

nagement dr. Hope this helps.

In a message dated 3/10/2008 6:05:13 P.M. Eastern Daylight Time,

just.cheri@... writes:

Hi I just joined this group.

My daughter Breanna 17 had surgery in Oct 2006 with a full spine fusion and

17 pins with two full spinal rods. She has juvenile Scoliosis and has two

curves in her back and one in her neck. She has not had the surgery in her

neck yet. The problem is they told us that it would take a year to heal and

she would be ok and things would be great.... Well things are not great and

she has missed two years of school with some home Tudors but most days she

is in too much pain. She is still using a wheel chair every day and now also

has a hospital bed.

She has tingling in her legs and shooting pains going down her legs. Also on

a scale of 1 to 10 she is an 8 most days with pain in her upper back and

shoulders.

We went to the pain clinic last Friday and they just said she has some bad

nerve damage and they can not fix that. The Dr said she would be in pain the

rest of her life. My question is how do I get help in making the Right

doctors send her for some kind of further testing and see what can be done.

I feel like every time we see the surgeon every three months he just keeps

saying things like well I can not believe she is still in this kind of pain.

..

He does write letters to the school and things like that but has not gone

out of his way to do more like referrer her to someone else....

I live in the Boston Area and have tried researching organizations but with

not much luck. Her primary care doctor is passing the buck and no one wants

to be the one to make the move to get her the help she needs... Any help

would be appreciated.would be appreciated.<WBR>.. As

I believe she needs water therapy or massage therapy and things like that.

The pain clinic also say pain medications are not the answer because she is

so young and her body would build up a tolerance from them....

Thanks Cheri

[Non-text portions of this message have been removed]

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

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Guest guest

I am sorry to read about your daughters pain. The only thing I can suggest

is that you keep looking for a doctor that can help her. Hopefully there

will be members of this group who live in the same area as you do that can

recommend good physicians, including orthopedic,neurosurgery and pain

management doctors that practice in your area. If you don't find someone

close to home, you might need to travel to get the help your daughter needs.

Your daughter is too young to accept living in so much pain for the rest of

her life.

I know of a company that charges for the services they provide, but if you

can't find a doctor on your own, they have helped numerous spine patients

find the right doctor. I talked to the director of the company when I was

contemplating going to Germany for artificial cercival disc replacement

surgery last year. One of the services they provide is downloading a

clients medical records/MRI's CT scans, etc and sending them to surgeons who

can review the records without an office visit. If you want more info, you

can pm me.

Please keep the group updated regarding your daughter's progress. I'll be

thinking healthy pain free thoughts and sending them your way. Melody

>From: " Just.Me " <just.cheri@...>

>Reply-Scoliosis Treatment

><Scoliosis Treatment >

>Subject: Hi new here

>Date: Mon, 10 Mar 2008 15:40:34 -0500 (Eastern Standard Time)

>

>Hi I just joined this group.

> My daughter Breanna 17 had surgery in Oct 2006 with a full spine fusion

>and

>17 pins with two full spinal rods. She has juvenile Scoliosis and has two

>curves in her back and one in her neck. She has not had the surgery in her

>neck yet. The problem is they told us that it would take a year to heal and

>she would be ok and things would be great.... Well things are not great and

>she has missed two years of school with some home Tudors but most days she

>is in too much pain. She is still using a wheel chair every day and now

>also

>has a hospital bed.

>She has tingling in her legs and shooting pains going down her legs. Also

>on

>a scale of 1 to 10 she is an 8 most days with pain in her upper back and

>shoulders.

> We went to the pain clinic last Friday and they just said she has some

>bad

>nerve damage and they can not fix that. The Dr said she would be in pain

>the

>rest of her life. My question is how do I get help in making the Right

>doctors send her for some kind of further testing and see what can be done.

>I feel like every time we see the surgeon every three months he just keeps

>saying things like well I can not believe she is still in this kind of

>pain.

>.

>He does write letters to the school and things like that but has not gone

>out of his way to do more like referrer her to someone else....

>I live in the Boston Area and have tried researching organizations but

>with

>not much luck. Her primary care doctor is passing the buck and no one

>wants

>to be the one to make the move to get her the help she needs... Any help

>would be appreciated... As to what do I do now?

>

>I believe she needs water therapy or massage therapy and things like that.

>The pain clinic also say pain medications are not the answer because she is

>so young and her body would build up a tolerance from them....

>

>Thanks Cheri

>

>

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