Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Hi Star, if it works, don't fix it!!!! > Thanks for inviting me,,I am on effexor xr now four 4 months and > doing pretty good so far.But every since I heard of this lexapro, I > have been wanting to fine out more about it.I was on wellbutrin for 3 > weeks, and that one wasnt for me, and I did prozac and it didnt do > anything but make me zombie with a smile, so I have two down so far > for me. > Hello everybody :-) > Star Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 ---Hi ,,,,,,you are so right!!! Thanks Star In Lexapro@y..., " karenpkaren " <karenpkaren@y...> wrote: > Hi Star, if it works, don't fix it!!!! > > > > Thanks for inviting me,,I am on effexor xr now four 4 months and > > doing pretty good so far.But every since I heard of this lexapro, I > > have been wanting to fine out more about it.I was on wellbutrin for > 3 > > weeks, and that one wasnt for me, and I did prozac and it didnt do > > anything but make me zombie with a smile, so I have two down so far > > for me. > > Hello everybody :-) > > Star Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Ok I went today. The space between my vertebrae in the lower lumbar is narrowing which means Its been compressed by damage of injury plus Osteo arthritis has set in. He's sending me to PT starting next week and put me on Mobic. Anyone heard of it or been on it? Any side effect. Aparently it's Non steroidic so I should not sweel up like a blowfish like on Prednisone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 HI Beth, welcome too the group, sorry too hear your hurting so much. But glad you found us. I truly believe that the best understanding we get for our pain comes from others who live in the same situation. If you have any questions on meds check the links list. There are a couple of sites on it that can tell you more about meds and a lot of other information. Medline is my favorite I think it has the best info. The following I copied off their site for you. Hope this helps. Good luck with PT. I tried that myself several times but the getting there was not worth what I got out of it. I seem too be better off doing my exercises at home. Although for me thats tough too make myself sit down and get it done. I'm constantly surprised how much time it takes making dr appt, refilling meds, getting the meds, talking too new dr's, getting those appts and trying new things the dr's come up with that might help me. Gee it wears me out sometimes. Best of luck, take care. Sharon Other drug names: A-Am An-Az B C-Ch Ci-Cz D-Dh Di-Dz E F G H I-J K-L M-Mh Mi-Mz N-Nh Ni-Nz O P-Pl Pm-Pz Q-R S-Sn So-Sz T-To Tp-Tz U-V W-Z 0-9 Meloxicam (mel ox' i cam) Brand name(s): Mobic Contents of this page: Why is this medication prescribed? How should this medicine be used? What special precautions should I follow? What should I do if I forget a dose? What side effects can this medication cause? What storage conditions are needed for this medicine? In case of emergency/overdose What other information should I know? Why is this medication prescribed? Meloxicam is used to relieve the pain, tenderness, inflammation (swelling), and stiffness caused by arthritis. It works by decreasing the body's production of prostaglandin, a substance that causes inflammation and pain. This medication is sometimes prescribed for other uses; ask your doctor or pharmacist for more information. How should this medicine be used? Meloxicam comes as a tablet to take by mouth. It is usually taken once a day with or without food. Follow the directions on your prescription label carefully, and ask your doctor or pharmacist to explain any part you do not understand. Take meloxicam exactly as directed. Do not take more or less of it or take it more often than prescribed by your doctor. Your arthritis symptoms should improve within several weeks of beginning meloxicam. If your symptoms do not improve or they worsen, call your doctor. Do not stop taking meloxicam without talking to your doctor. Arthritis symptoms will return if you stop taking meloxicam. What special precautions should I follow? Before taking meloxicam, tell your doctor and pharmacist if you are allergic to meloxicam, aspirin, nonsteriodal anti-inflammatory drugs (NSAIDs), or any other drugs. tell your doctor and pharmacist what prescription and nonprescription medications you are taking, especially aspirin, anticoagulants (''blood thinners'') such as warfarin (Coumadin), betamethasone (Celestone), benazapril (Lotensin), captopril (Capoten), cholestyramine (Cholybar, Questran, Questran Light), cortisone (Cortone), dexamethasone (Decadron, Dexone), diuretics (''water pills''), enalapril (Vasotec), fosinopril (Monopril), fludrocortisone (Florinef), hydrocortisone (Cortef, Hydrocortone), lithium (Cibalith-S, Eskalith, Lithobid, others), lisinopril (Prinivil, Zestril), methylprednisolone (Medrol), moexipril (Univasc), prednisolone (Prelone), prednisone (Deltasone, Orasone), quinapril (Accupril), ramipril (Altace), triamcinolone (Aristocort), and vitamins or herbal products. tell your doctor if you have or have ever had asthma; liver, kidney, or heart disease: a severe allergic reaction to aspirin or an NSAID; nasal polyps; ulcers; gastrointestinal disease; a history of alcohol abuse; or if you currently smoke tobacco products. tell your doctor if you are pregnant, plan to become pregnant, or are breast-feeding. If you become pregnant while taking meloxicam, call your doctor. if you are having surgery, including dental surgery, tell the doctor or dentist that you are taking meloxicam. What should I do if I forget a dose? Take the missed dose as soon as you remember it. However, if it is almost time for the next dose, skip the missed dose and continue your regular dosing schedule. Do not take a double dose to make up for a missed one. What side effects can this medication cause? Although side effects from meloxicam are not common, they can occur. Tell your doctor if any of these symptoms are severe or do not go away: loss of appetite upset stomach constipation diarrhea gas weight gain dizziness headache muscle, joint, or back pain difficulty sleeping cough frequent urination If you experience any of the following symptoms, call your doctor immediately: skin rash difficulty breathing respiratory infection urinary tract infection bloody diarrhea or black tarry stools itching abdominal pain excessive tiredness vomiting flu-like symptoms dark urine yellowing of the skin or whites of the eyes swelling of the hands, feet, ankles, or lower legs What storage conditions are needed for this medicine? Keep this medication in the container it came in, tightly closed, and out of reach of children. Store it at room temperature and away from excess heat and moisture (not in the bathroom). Throw away any medication that is outdated or no longer needed. Talk to your pharmacist about the proper disposal of your medication. In case of emergency/overdose In case of overdose, call your local poison control center at 1-800- 222-1222. If the victim has collapsed or is not breathing, call local emergency services at 911. What other information should I know? Keep all appointments with your doctor and the laboratory. Your doctor will order certain lab tests to check your response to meloxicam. Do not let anyone else take your medication. Ask your pharmacist any questions you have about refilling your prescription. Last Revised - 01/01/2003 American Society of Health-System Pharmacists, Inc. Disclaimer The MedMaster™ Patient Drug Information database provides information copyrighted by the American Society of Health-System Pharmacists, Inc., Bethesda, land Copyright© 2001. All Rights Reserved. Health Topics | Drug Information | Encyclopedia | Dictionary | News | Directories | Other Resources | > Ok I went today. The space between my vertebrae in the lower lumbar > is narrowing which means Its been compressed by damage of injury > plus Osteo arthritis has set in. He's sending me to PT starting > next week and put me on Mobic. Anyone heard of it or been on it? > Any side effect. Aparently it's Non steroidic so I should not sweel > up like a blowfish like on Prednisone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I was wondering if Lexapro causes liver problems? This med has not been tested for long term use correct? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I don't think so in fact I read (belatedly) it hasn't been tested very well & to wait 5 years to take Lex....Joyce Re: Hi New here I was wondering if Lexapro causes liver problems? This med has not been tested for long term use correct? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 In a message dated 10/11/2004 5:25:49 AM Pacific Daylight Time, eric_ross@... writes: This tuesday oct 12 is my first day getting the test to see if I'm cadiadte for CI. Good luck and welcome! When you go in for your test, don't be afraid to ask ANY questions that came to your mind, even what appears to be silly. There are many of us here who has been deaf as long as you have, even some of us since birth (I'm one of them). You are also welcome to post your questions in here, if you are in hurry to know the answer before your next appointment, Again, welcome to the list! Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 , Welcome. I am from Minnesota. Will you go to Mayo or U of MN? Re: hi new here > > > > Hi , > Good to have you hear on the forum and congratulations on your > decision to be implanted. Please know that we are here to answer any > questions you may have as many of us here have been through the > process and have the implant > so we can help you along and help make the path a little smoother > for you. > I have a brother in the Richfield, MN area and I know there a few > people on here from Minnesota who may be willing to contact you if > you want. > Do you know what to expect at your 1st evaluation appointment? > Ask away and we'll be glad to help you out. > Warm Regards, > Silly MI > > > > In , " uwdiving80 " <eric_ross@t...> wrote: > > > > > > Hi I'm new here, a breif personal about myself, I'm from minnesota > and been deaf since 2 yrs old. > > This tuesday oct 12 is my first day getting the test to see if I'm > cadiadte for CI. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 - going to U of MN Along with sharon smith the audiologist and dr. Levine the surgeon > > > > > > > > > Hi I'm new here, a breif personal about myself, I'm from minnesota > > and been deaf since 2 yrs old. > > > This tuesday oct 12 is my first day getting the test to see if I'm > > cadiadte for CI. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Cool, . I have met Dr. Levine. Annika goes to the U of MN also but since she is pediatric her surgeon is Dr. Rimmel. In fact she gets to go back and see him this Friday. I have been down there every week for the past three weeks with her. She still goes there for AVT therapy once a month and September and October ended up being scheduled back to back. Maybe we will see you there sometime. Annika's mom bilaterally implanted 3/1/04 hookup 3/25/04 Re: hi new here - going to U of MN Along with sharon smith the audiologist and dr. Levine the surgeon > > > > > > > > > Hi I'm new here, a breif personal about myself, I'm from minnesota > > and been deaf since 2 yrs old. > > > This tuesday oct 12 is my first day getting the test to see if I'm > > cadiadte for CI. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Dear Daby, How did you find this site? Which Bryman College? Which state/city. What is your instructor's name? Stuck? I would not call being in a program 'stuck'. You ARE moving forward. Good luck post your questions and let us know how you are doing. Respectfully, Jeanetta Mastron CPhT BS Chem --- daby_57 <daby_57@...> wrote: > > I am taking the Phar Tech course at Bryman College > right now we > begin our next mod on wed we will be working with > flow rates, chemo > lab and 4 other areas as well > i have been stuck on a career plan like how far in > phamacy do I > want to take this. I am 47 yrs old and just wanted > to do something > that would give me more experience and further my > retail experience > any help would be nice we have 5, 6 week mod and > then we have a > 30 day in hospital and 30 days in retail pharmacy > externship we > graduate in dec. Am doing good should have looked > for this site a > month ago talk soon. I like chat rooms and am > online alot > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 I am in Washington State, I go to the Port Orchard campus. My Core mod instructor Was Mr Adcock. I am in the evening class and there is talk that the program may be split because there are to many of us for 1 instructor I cant think of the gals namebut Ms McGee is leaving she is moving to California to work. I found this site but doing a search for groups , I found the Pharmacy Tech one first and a link to here from nutterbutter someone she is from Texas. There are so many ways I could go with my career not sure what I want to do. Any ideas would be helpful as my training is just beginning. I also noticed that Dora is from same area found that awesome to have someone that close in a chat group. I will be on most of today working on my career plan that was due last week but was trying to catch up on other assignments thanks Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Dear Deb, Concentrate on becoming the BEST pharm tech you can be right now. If your school requires a career plan, then place an emphasis on that which you can attain in one year, then 3 yrs then 5 yrs then 10 yrs. example: 1. pharm tech 2. certified pharm tech 3. lead certified pharm tech 4. purchasing agent (CPhT) or anit-coagulant clinic lead tech or nuclear pharm tech and 4. simultaneously return to school 5. pharm tech educator or 5. pharmacist Hope this helps. Jeanetta --- daby_57 <daby_57@...> wrote: > > I am in Washington State, I go to the Port Orchard > campus. My Core > mod instructor Was Mr Adcock. I am in the evening > class and there is > talk that the program may be split because there are > to many of us > for 1 instructor I cant think of the gals namebut Ms > McGee is > leaving she is moving to California to work. I found > this site but > doing a search for groups , I found the Pharmacy > Tech one first and > a link to here from nutterbutter someone she is from > Texas. > There are so many ways I could go with my career not > sure what I > want to do. Any ideas would be helpful as my > training is just > beginning. I also noticed that Dora is from same > area found that > awesome to have someone that close in a chat group. > I will be on > most of today working on my career plan that was due > last week but > was trying to catch up on other assignments thanks > Deb > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Ann - St. Louis has one of the highest crime rates in the country. You might want to check into the employment rate there also and the cost of living. I use to live in Carbondale, Illinois - it is about 90 miles from St. Louis. It is an University town - has a good hospital and the economy is pretty good. The weather probably won't be as cold as Dixon - or the Chicago area.. The school are also pretty awesome. Will be praying for you. Sandi Ken Hunter (Systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 -Hi Ann, I dont have any advice, but I just wanted to welcome you to the group. These foolk here are awesome and such a godsend.I hope you get some answers to your questions. hugs Helen and (9,systemic) -- In , " Ann " <angrydoughgirl@...> wrote: > > Hi my name is ann and I live in Dixon IL.. My daughter is 7 years > old and has jra. Jennelle has the poly type. Jennelle has had this > since she was 11 months old. It has been a long hard road for us. It > never seems to end. It probbly will never end. I have given up hope > she will grow out of it, as I was told long ago from her doctor. > Jennelle's doctor is dr. spencer in chicago. We see him at > shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for > her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for > her eyes, eye drops every hour two kinds. If the cyclosporine does > not work she will then be switched to remacaid, which she will have > infussins every six weeks. This will need to be done in chicago, > which is 2 hours away. My husband grew up in St. Louis and we are > thinking of moving there because there are 2 childrens hospitals we > could go to. And there are more doctors to see. Where I live there > are hardly no specialists to see for her or no services such as ot > or pt. Even in the school. The only insurance we have on my daughter > is medicaid. I was hoping if there was someone out there who was > around the st. louis area that could help me if this would be a good > idea to move there and what advice you could tell me about what I > need to do to get things set up for her.Also if anyone who wants to > ask me questions or need help please let me know. I will love to > help. Thank you so much for your help. Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Welcome to the list. I take my 8 yr old son to Cardinal Glennon Chilsren's Hospital in St Louis. We live about a 2 hr drive from there, so we usually stay overnight after an appt because does not travel well. St Louis is a nice city to visit, but definately a higher cost of living. Perhaps not as high as Chicago area, but I would recommend living in the outer subarbs rather than the city itself. If you have any specific questions, feel free to ask. Misty & (8, systemic) > > Hi my name is ann and I live in Dixon IL.. My daughter is 7 years > old and has jra. Jennelle has the poly type. Jennelle has had this > since she was 11 months old. It has been a long hard road for us. It > never seems to end. It probbly will never end. I have given up hope > she will grow out of it, as I was told long ago from her doctor. > Jennelle's doctor is dr. spencer in chicago. We see him at > shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for > her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for > her eyes, eye drops every hour two kinds. If the cyclosporine does > not work she will then be switched to remacaid, which she will have > infussins every six weeks. This will need to be done in chicago, > which is 2 hours away. My husband grew up in St. Louis and we are > thinking of moving there because there are 2 childrens hospitals we > could go to. And there are more doctors to see. Where I live there > are hardly no specialists to see for her or no services such as ot > or pt. Even in the school. The only insurance we have on my daughter > is medicaid. I was hoping if there was someone out there who was > around the st. louis area that could help me if this would be a good > idea to move there and what advice you could tell me about what I > need to do to get things set up for her.Also if anyone who wants to > ask me questions or need help please let me know. I will love to > help. Thank you so much for your help. Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I do not know much about living in St. Louis but I can say that St. Louis Children's Hospital was very good to us. My daughter was born in Kansas then transferred to St. Louis Children's Hospital for heart surgery when she was 5 days old. We stayed in the Mc House just a few blocks away and they were wonderful!! I think crime is quite a problem...at least is was when we were there 12 years ago. Not sure if this helps. --- Ann <angrydoughgirl@...> wrote: Hi my name is ann and I live in Dixon IL.. My daughter is 7 years old and has jra. Jennelle has the poly type. Jennelle has had this since she was 11 months old. It has been a long hard road for us. It never seems to end. It probbly will never end. I have given up hope she will grow out of it, as I was told long ago from her doctor. Jennelle's doctor is dr. spencer in chicago. We see him at shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for her eyes, eye drops every hour two kinds. If the cyclosporine does not work she will then be switched to remacaid, which she will have infussins every six weeks. This will need to be done in chicago, which is 2 hours away. My husband grew up in St. Louis and we are thinking of moving there because there are 2 childrens hospitals we could go to. And there are more doctors to see. Where I live there are hardly no specialists to see for her or no services such as ot or pt. Even in the school. The only insurance we have on my daughter is medicaid. I was hoping if there was someone out there who was around the st. louis area that could help me if this would be a good idea to move there and what advice you could tell me about what I need to do to get things set up for her.Also if anyone who wants to ask me questions or need help please let me know. I will love to help. Thank you so much for your help. Ann __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Hi Ann, I am not familiar with any docs in st louis but when I saw Dixon, Illinois I knew just where you are at. We lived in on, Illinois until just over a year ago when we moved to Az. I know what you mean about being in the rural midwest and limited options for specialists, support groups, therapies etc. Since moving to az we have enjoyed the benefits of the local arthritis foundation and Aundrea had an awesome time at the jra camp. Aundrea doesn't require therapy but if she did it is made available through the school system. When we lived in Illinois we traveled to Iowa City and saw a pedi. rheumatologist there and also her eye and skin docs. We went to chicago for consultations with klein-gettleman )(sp) and to peoria with dr couri. How old is Jenelle now? I hope the current treatment plan starts working so that you don't have to make the change to remicade. Best of luck with your decisions regarding the move. sonia (aundrea 11 systemic jra/gerd) > > Hi my name is ann and I live in Dixon IL.. My daughter is 7 years > old and has jra. Jennelle has the poly type. Jennelle has had this > since she was 11 months old. It has been a long hard road for us. It > never seems to end. It probbly will never end. I have given up hope > she will grow out of it, as I was told long ago from her doctor. > Jennelle's doctor is dr. spencer in chicago. We see him at > shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for > her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for > her eyes, eye drops every hour two kinds. If the cyclosporine does > not work she will then be switched to remacaid, which she will have > infussins every six weeks. This will need to be done in chicago, > which is 2 hours away. My husband grew up in St. Louis and we are > thinking of moving there because there are 2 childrens hospitals we > could go to. And there are more doctors to see. Where I live there > are hardly no specialists to see for her or no services such as ot > or pt. Even in the school. The only insurance we have on my daughter > is medicaid. I was hoping if there was someone out there who was > around the st. louis area that could help me if this would be a good > idea to move there and what advice you could tell me about what I > need to do to get things set up for her.Also if anyone who wants to > ask me questions or need help please let me know. I will love to > help. Thank you so much for your help. Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Hi, Ann. My son also has seen Dr Spencer. What I liked about seeing him was that he is associated with the University of Chicago. We would see him at our local children's hospital, Hope Children's Hospital, in Oak Lawn, IL. I know Dr Spencer has other offices that he goes to in the Chicago area, perhaps one might be closer to Dixon than going downtown? Unless you are going there for insurance reasons because it is a Shriner's hospital? Being associated with the university is to me a good thing as they are usually on the cutting edge of treatments. Dr Spencer does attend the conferences and seems to keep up with all the latest info on JRA. is doing rather well now, but he has made his own decision to stop treatment for awhile. But when he saw Dr Spencer, we were quite pleased with him. I know you must feel discouraged, but remember when they say some kids outgrow it, usually they mean as they hit puberty or after, the symptoms may become less. I can't give you any info about St Louis, but do recommend that if you move, stick with a dr that is affiliated with a children's hospital, and in my opinion, one associated with a university. Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of Ann Sent: Friday, December 29, 2006 12:39 PM Subject: Hi new here Hi my name is ann and I live in Dixon IL.. My daughter is 7 years old and has jra. Jennelle has the poly type. Jennelle has had this since she was 11 months old. It has been a long hard road for us. It never seems to end. It probbly will never end. I have given up hope she will grow out of it, as I was told long ago from her doctor. Jennelle's doctor is dr. spencer in chicago. We see him at shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for her eyes, eye drops every hour two kinds. If the cyclosporine does not work she will then be switched to remacaid, which she will have infussins every six weeks. This will need to be done in chicago, which is 2 hours away. My husband grew up in St. Louis and we are thinking of moving there because there are 2 childrens hospitals we could go to. And there are more doctors to see. Where I live there are hardly no specialists to see for her or no services such as ot or pt. Even in the school. The only insurance we have on my daughter is medicaid. I was hoping if there was someone out there who was around the st. louis area that could help me if this would be a good idea to move there and what advice you could tell me about what I need to do to get things set up for her.Also if anyone who wants to ask me questions or need help please let me know. I will love to help. Thank you so much for your help. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Hi , We have been seeing Dr. Spencer for 6 years now. I agree that he is a very good doctor. He seems to know alot.We live about two hours away from chicago. I have asked if he traveled close to my area and he told me no. I guess one of the reasons I want to move is that it would not take to long to get to the childrens hospital . I dont have a very good car and the gas is so high. Then It costs alot for the tollway now. I will miss him when I move. Thank you for your help. Ann " Tepper, Michele " <MTepper@...> wrote: Hi, Ann. My son also has seen Dr Spencer. What I liked about seeing him was that he is associated with the University of Chicago. We would see him at our local children's hospital, Hope Children's Hospital, in Oak Lawn, IL. I know Dr Spencer has other offices that he goes to in the Chicago area, perhaps one might be closer to Dixon than going downtown? Unless you are going there for insurance reasons because it is a Shriner's hospital? Being associated with the university is to me a good thing as they are usually on the cutting edge of treatments. Dr Spencer does attend the conferences and seems to keep up with all the latest info on JRA. is doing rather well now, but he has made his own decision to stop treatment for awhile. But when he saw Dr Spencer, we were quite pleased with him. I know you must feel discouraged, but remember when they say some kids outgrow it, usually they mean as they hit puberty or after, the symptoms may become less. I can't give you any info about St Louis, but do recommend that if you move, stick with a dr that is affiliated with a children's hospital, and in my opinion, one associated with a university. Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of Ann Sent: Friday, December 29, 2006 12:39 PM Subject: Hi new here Hi my name is ann and I live in Dixon IL.. My daughter is 7 years old and has jra. Jennelle has the poly type. Jennelle has had this since she was 11 months old. It has been a long hard road for us. It never seems to end. It probbly will never end. I have given up hope she will grow out of it, as I was told long ago from her doctor. Jennelle's doctor is dr. spencer in chicago. We see him at shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for her eyes, eye drops every hour two kinds. If the cyclosporine does not work she will then be switched to remacaid, which she will have infussins every six weeks. This will need to be done in chicago, which is 2 hours away. My husband grew up in St. Louis and we are thinking of moving there because there are 2 childrens hospitals we could go to. And there are more doctors to see. Where I live there are hardly no specialists to see for her or no services such as ot or pt. Even in the school. The only insurance we have on my daughter is medicaid. I was hoping if there was someone out there who was around the st. louis area that could help me if this would be a good idea to move there and what advice you could tell me about what I need to do to get things set up for her.Also if anyone who wants to ask me questions or need help please let me know. I will love to help. Thank you so much for your help. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Hi Misty, My in laws live in Pacific, so that is where we are planning to move or maybe even Union. Wherever we can find a afordable housing. I dont want to live in st. louis. That is to scarry to me. I am used to living in a small town. I just want to live 1 hour away to The cardinal Glennon childrens hosptal.It looks like it will be easy to get to. Right off the interstate. There seems to be alot of rhym. doctors there. In chicago and northern IL. there is only 2 doctors to see. So It takes 2 to 3 months to get to see the doctor. How long does it take for your son to get in to see the doctor? Jennelle needs to see a ped eye doctor but there is no one to see here. So we see a regular eye doctor. Doctors here have never seen a child with jra. It gets very frustrating. I think it would be good to have all the doctors in one building. I have to go to diferent clinics to see a certain doctor and they don't talk to each other. Where I live there is a shotage of ot and pt. in my area. Is there a stortage in mo? Thank you for letting me vent. Thank you so much for your help. Ann > > > > Hi my name is ann and I live in Dixon IL.. My daughter is 7 years > > old and has jra. Jennelle has the poly type. Jennelle has had this > > since she was 11 months old. It has been a long hard road for us. > It > > never seems to end. It probbly will never end. I have given up hope > > she will grow out of it, as I was told long ago from her doctor. > > Jennelle's doctor is dr. spencer in chicago. We see him at > > shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for > > her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for > > her eyes, eye drops every hour two kinds. If the cyclosporine does > > not work she will then be switched to remacaid, which she will have > > infussins every six weeks. This will need to be done in chicago, > > which is 2 hours away. My husband grew up in St. Louis and we are > > thinking of moving there because there are 2 childrens hospitals we > > could go to. And there are more doctors to see. Where I live there > > are hardly no specialists to see for her or no services such as ot > > or pt. Even in the school. The only insurance we have on my > daughter > > is medicaid. I was hoping if there was someone out there who was > > around the st. louis area that could help me if this would be a > good > > idea to move there and what advice you could tell me about what I > > need to do to get things set up for her.Also if anyone who wants to > > ask me questions or need help please let me know. I will love to > > help. Thank you so much for your help. Ann > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Thank you everyone for welcoming me to the group!! Everyone was so helpfull!! It feels good that I am not alone anymore!! Thank you Ann -- In , " Ann " <angrydoughgirl@...> wrote: > > Hi my name is ann and I live in Dixon IL.. My daughter is 7 years > old and has jra. Jennelle has the poly type. Jennelle has had this > since she was 11 months old. It has been a long hard road for us. It > never seems to end. It probbly will never end. I have given up hope > she will grow out of it, as I was told long ago from her doctor. > Jennelle's doctor is dr. spencer in chicago. We see him at > shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for > her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for > her eyes, eye drops every hour two kinds. If the cyclosporine does > not work she will then be switched to remacaid, which she will have > infussins every six weeks. This will need to be done in chicago, > which is 2 hours away. My husband grew up in St. Louis and we are > thinking of moving there because there are 2 childrens hospitals we > could go to. And there are more doctors to see. Where I live there > are hardly no specialists to see for her or no services such as ot > or pt. Even in the school. The only insurance we have on my daughter > is medicaid. I was hoping if there was someone out there who was > around the st. louis area that could help me if this would be a good > idea to move there and what advice you could tell me about what I > need to do to get things set up for her.Also if anyone who wants to > ask me questions or need help please let me know. I will love to > help. Thank you so much for your help. Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Cardinal is fairly easy to get to, although there is one quirky turn onto Grand Ave off of eastbound I 64. There is usually a waiting period for new patients, but you could perhaps circumvent that when you have a definate move date by coordinating through your present rhuemy. We got around it because was seen by a rhuemy there while hospitalised, and so was not a new patient. I really like having drs in the same building. They coordinate 's twice yearly appointments with the opthamologist to be the same day as his rhuemy so we don't have to make separate trips. We go to the eye appt firstr, then to the rhuemy when we're done. In fact, that's just what we're doing next Thur if the weather holds. (note to self: bring his shades in case they dilate his pupils) Here in Hannibal, there is no shortage of ot and pt. I don't know about the Pacific area, though. Misty & (8, systemic) > > Hi Misty, > My in laws live in Pacific, so that is where we are planning to move > or maybe even Union. Wherever we can find a afordable housing. I > dont want to live in st. louis. That is to scarry to me. I am used > to living in a small town. I just want to live 1 hour away to The > cardinal Glennon childrens hosptal.It looks like it will be easy to > get to. Right off the interstate. There seems to be alot of rhym. > doctors there. In chicago and northern IL. there is only 2 doctors > to see. So It takes 2 to 3 months to get to see the doctor. How long > does it take for your son to get in to see the doctor? Jennelle > needs to see a ped eye doctor but there is no one to see here. So we > see a regular eye doctor. Doctors here have never seen a child with > jra. It gets very frustrating. I think it would be good to have all > the doctors in one building. I have to go to diferent clinics to see > a certain doctor and they don't talk to each other. Where I live > there is a shotage of ot and pt. in my area. Is there a stortage in > mo? Thank you for letting me vent. Thank you so much for your help. > Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Cheri, I don't know which pain clinic or Drs. you may have seen. I would recommend the Boston Spine Group at New England Baptist Hospital. Dr. Rand is a very good specialist and also Dr. Rainville is a very good pain ma nagement dr. Hope this helps. In a message dated 3/10/2008 6:05:13 P.M. Eastern Daylight Time, just.cheri@... writes: Hi I just joined this group. My daughter Breanna 17 had surgery in Oct 2006 with a full spine fusion and 17 pins with two full spinal rods. She has juvenile Scoliosis and has two curves in her back and one in her neck. She has not had the surgery in her neck yet. The problem is they told us that it would take a year to heal and she would be ok and things would be great.... Well things are not great and she has missed two years of school with some home Tudors but most days she is in too much pain. She is still using a wheel chair every day and now also has a hospital bed. She has tingling in her legs and shooting pains going down her legs. Also on a scale of 1 to 10 she is an 8 most days with pain in her upper back and shoulders. We went to the pain clinic last Friday and they just said she has some bad nerve damage and they can not fix that. The Dr said she would be in pain the rest of her life. My question is how do I get help in making the Right doctors send her for some kind of further testing and see what can be done. I feel like every time we see the surgeon every three months he just keeps saying things like well I can not believe she is still in this kind of pain. .. He does write letters to the school and things like that but has not gone out of his way to do more like referrer her to someone else.... I live in the Boston Area and have tried researching organizations but with not much luck. Her primary care doctor is passing the buck and no one wants to be the one to make the move to get her the help she needs... Any help would be appreciated.would be appreciated.<WBR>.. As I believe she needs water therapy or massage therapy and things like that. The pain clinic also say pain medications are not the answer because she is so young and her body would build up a tolerance from them.... Thanks Cheri [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 I am sorry to read about your daughters pain. The only thing I can suggest is that you keep looking for a doctor that can help her. Hopefully there will be members of this group who live in the same area as you do that can recommend good physicians, including orthopedic,neurosurgery and pain management doctors that practice in your area. If you don't find someone close to home, you might need to travel to get the help your daughter needs. Your daughter is too young to accept living in so much pain for the rest of her life. I know of a company that charges for the services they provide, but if you can't find a doctor on your own, they have helped numerous spine patients find the right doctor. I talked to the director of the company when I was contemplating going to Germany for artificial cercival disc replacement surgery last year. One of the services they provide is downloading a clients medical records/MRI's CT scans, etc and sending them to surgeons who can review the records without an office visit. If you want more info, you can pm me. Please keep the group updated regarding your daughter's progress. I'll be thinking healthy pain free thoughts and sending them your way. Melody >From: " Just.Me " <just.cheri@...> >Reply-Scoliosis Treatment ><Scoliosis Treatment > >Subject: Hi new here >Date: Mon, 10 Mar 2008 15:40:34 -0500 (Eastern Standard Time) > >Hi I just joined this group. > My daughter Breanna 17 had surgery in Oct 2006 with a full spine fusion >and >17 pins with two full spinal rods. She has juvenile Scoliosis and has two >curves in her back and one in her neck. She has not had the surgery in her >neck yet. The problem is they told us that it would take a year to heal and >she would be ok and things would be great.... Well things are not great and >she has missed two years of school with some home Tudors but most days she >is in too much pain. She is still using a wheel chair every day and now >also >has a hospital bed. >She has tingling in her legs and shooting pains going down her legs. Also >on >a scale of 1 to 10 she is an 8 most days with pain in her upper back and >shoulders. > We went to the pain clinic last Friday and they just said she has some >bad >nerve damage and they can not fix that. The Dr said she would be in pain >the >rest of her life. My question is how do I get help in making the Right >doctors send her for some kind of further testing and see what can be done. >I feel like every time we see the surgeon every three months he just keeps >saying things like well I can not believe she is still in this kind of >pain. >. >He does write letters to the school and things like that but has not gone >out of his way to do more like referrer her to someone else.... >I live in the Boston Area and have tried researching organizations but >with >not much luck. Her primary care doctor is passing the buck and no one >wants >to be the one to make the move to get her the help she needs... Any help >would be appreciated... As to what do I do now? > >I believe she needs water therapy or massage therapy and things like that. >The pain clinic also say pain medications are not the answer because she is >so young and her body would build up a tolerance from them.... > >Thanks Cheri > > Quote Link to comment Share on other sites More sharing options...
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