Hi Sandy

[Guest guest]

In a message dated 3/23/2003 11:18:37 PM Eastern Standard Time,

mhs-way@... writes:

> I think most Endo's were at the bottom while their ego's

> lingered someone in the clouds

LOL!!!

When I was on Tapezole, I could tell when I was getting slightly hypo, and

lowered the dose. In this way, I eventually weaned myself off. My endo

didn't believe I could be slightly hypo, and in no way was ready to start

reducing the dose when I first wanted to do this. I INSISTED he take my

blood, and he reluctantly agreed to do this. When he got the results, he

supported my decision to reduce the dosage (which I had done anyway--I didn't

need his permission to do this, and I am TOO VAIN to start gaining weight).

By taking charge of my own treatment, I was off the meds and cured in a few

months.

We should listen to our bodies, and not to the endos!

AntJoan

[Guest guest]

Sandy, thanks for writing. I have my second MRI tonight, the first showed NO

visible pinched nerves, I will ask about the nerve test,

sandy zahara <jaymedezert2000@...> wrote: Have a nerve test done you

might have a nerve pinched that the MRI didn't show I had a nevrve that was

being pinched that it caused numbness or charley horses in my legs. My pain

manager tryed a pelvic tilt which regarded a hardness to lift my hips up and

tilt my pelvic. It hurt but two days later I was able to get up and walk around

without my legs and feet hurting. Good luck Sandy

blondy26 <blondy26@...> wrote: Hi everyone, I need some

advice so anyone who can take the time to read this and respond It would mean

THE WORLD to me. My name is , I am 26 years old, and I suffer with

lower back pain. It started when I was 10 years old, only then the problem was

off and on, I rode horses and was bucked of many times. What would happen was I

would move a certain way and my whole back was frozen with pain, I couldn't

move, this continued OFF and ON, only a few episodes a year all the way through

high school. The problem really went away from age 18-23, I was very thin most

the time and had little-no back pain. Three years ago my husband and I bought

a two-story house in a desirable area in northern California. In order to

afford the house we had to buy a fixer upper, the house had orange carpet,

pink walls, and yellow linoleum. My husband and I had to do the remodeling,

painting, put in new flooring (tile) all ourselves.

It was at this time that the pain came back and was present most

the time. I pushed myself painting, laying tile, putting on baseboards my

doctor prescribed Vicodin which took care of the pain, I used it off and on 1-4

pills a day when needed until today. About six months ago my doctor tried to

cut me off the vicodin, HE was so RUDE to me, he said I was too young to have

back problems and basically called me a Lier. I started crying in his office

and pushed him to order an MRI. My MRI showed disk dehydration and herniation

of 5mm on L4-5 disks. I was referred to a pain management specialist who also

treated me like crap and said my disk was not that bad and my pain was from

muscles, and I needed to stop taking the vicodin. I lowered my dose from 4 to

2 a day and though it takes the edge off the pain, I suffer much of the time.

Just last week I woke in my sleep with a throbbing pain in my lower back and I

COULDN'T FEEL MY LEGS!! I was able to get up and walk around the numbness

turned into pins and needles but didn't go away

for hours, I

have had episodes like that off and on all this last week. I had an

emergency apt. with the Pain management doctor on Friday. He scheduled another

MRI for this week and gave me a prescription for a steroid. I had a terrible

reaction to the steroid, my heart felt like is was beating so hard it was going

to jump out of my chest, and I had pretty bad stomach pains the next day. If

anyone here can give me any advice about what you have done for similar

problems please let me know. What kind of medications are the safest for long

term use, safest for your stomach, liver, and kidneys. Any advice or stories

of your own would help me so much, thanks JESSICA

[Guest guest]

Fills, with the present technology, just are an imperfect thing. As

Dan says, they are far from any guarantee - but only one more clue.

That's one of many reasons going very slowly with increasing fills is

impt. The bigger the fill total, and the bigger the amt added at a

time, the bigger the chances for problems.

But I also feel a lot of the problems experienced with " fills " is

actually trouble with " eating skills " and " food choices " .

This all takes time, practice, and patience. And we're all in this

together, and learn from each other.

Sandy R

> >

> > Hi Sandy,, ty for explaining all this. I think that being an

> Australian I was not aware of the terms as we do not appear to have

> the problem here. We do indeed not seem to get tight or should I

say

> large fills. After a fill we are tested to be sure we can drink a

> glass of water, not sure if it's the same in the States or not.

> > If we cannot manage that comfortably,, some of the fill is

> removed immediately. I have a Swedish band and since Aug 06 have

lost

> 53 pounds.

> > Power to us all,, Carol in Perth, Western Australia

>

>

>

>

>

>

> ---------------------------------

> Finding fabulous fares is fun.

> Let FareChase search your favorite travel sites to find

flight and hotel bargains.

>

>