Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 thank you; i cant remember the nerve pain meds i used to be on, but stii should be on rob No greater burden can be borne by an individual than to know no one cares or understands. >From: Cruikshank <d.cruikshank@...> >Reply-neck pain >neck pain >Subject: Re: dave >Date: Thu, 26 Jul 2007 11:18:27 -0400 > >At 11:15 PM 7/25/07, you wrote: > > >what's depakote? > >rob > >My understanding is that it is for Nerve pain, but I'll have to get >back to you as to what type of drug it is. Dave > _________________________________________________________________ http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\ _mini_pcmag_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 thank you; i cant remember the nerve pain meds i used to be on, but stii should be on rob No greater burden can be borne by an individual than to know no one cares or understands. >From: Cruikshank <d.cruikshank@...> >Reply-neck pain >neck pain >Subject: Re: dave >Date: Thu, 26 Jul 2007 11:18:27 -0400 > >At 11:15 PM 7/25/07, you wrote: > > >what's depakote? > >rob > >My understanding is that it is for Nerve pain, but I'll have to get >back to you as to what type of drug it is. Dave > _________________________________________________________________ http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\ _mini_pcmag_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Dave - time to progression and time to needing TX is really splitting hairs, I think - but, I believe, I would measure a remission by the time elapsed between treatments - johnCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Dave - I see that I have once again put my foot in my mouth, and that Dr. Forman's response, as always, is the more telling one. I'll stick by my guns, though, as far as the word "remission" is concerned. I have reason to believe that I am slowly drifting toward needing treatment. My counts are slowly changing. (Dr. Furman disagrees :-) :-) ) BUT, I think my remission continues gloriously. So, there you have a proper medical response, and a patient's sentiment. In a message dated 3/26/2008 10:50:53 AM Eastern Daylight Time, rrfurman@... writes: ,From the perspective of assessing clinical response, the time from treatment to time of progression is used. As you point out, this is not what translates into what is most important for the patient. It is believed that the two are related. So the longer until you progress, the longer until you need treatment.In general we discuss a response of less than six months or lack of a response as defining refractory disease. That is not necessarily the same as clinical benefit. A good example is a patient who receives only rituximab in order to help reduce splenomegaly and improve counts. The blood counts might not improve sufficiently to achieve a "response", but with continued therapy every six months, the patient might be kept stable for years. Here there is a great clinical benefit without a response. When measuring the quality of therapies, it is important to be rigid. When deciding how to treat patients, obviously clinical benefit is what is most important.Rick Furman, MD Create a Home Theater Like the Pros. Watch the video on AOL Home. , From the perspective of assessing clinical response, the time from treatment to time of progression is used. As you point out, this is not what translates into what is most important for the patient. It is believed that the two are related. So the longer until you progress, the longer until you need treatment. In general we discuss a response of less than six months or lack of a response as defining refractory disease. That is not necessarily the same as clinical benefit. A good example is a patient who receives only rituximab in order to help reduce splenomegaly and improve counts. The blood counts might not improve sufficiently to achieve a " response " , but with continued therapy every six months, the patient might be kept stable for years. Here there is a great clinical benefit without a response. When measuring the quality of therapies, it is important to be rigid. When deciding how to treat patients, obviously clinical benefit is what is most important. Rick Furman, MD ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 : Actually I think you said the same thing as Dr. Furman. Just in a different way. I believe the key is finding the right formula for each of us (because this disease seems to treat each of us differently) to live a full life for as long as can. As always thanks for the reply. Dave > > > Dave - I see that I have once again put my foot in my mouth, and that Dr. > Forman's response, as always, is the more telling one. > > I'll stick by my guns, though, as far as the word " remission " is concerned. > > I have reason to believe that I am slowly drifting toward needing treatment. > My counts are slowly changing. (Dr. Furman disagrees :-) :-) ) > > BUT, I think my remission continues gloriously. > > So, there you have a proper medical response, and a patient's sentiment. > > > > In a message dated 3/26/2008 10:50:53 AM Eastern Daylight Time, > rrfurman@... writes: > > , > From the perspective of assessing clinical response, the time from > treatment to time of progression is used. As you point out, this is > not what translates into what is most important for the patient. It is > believed that the two are related. So the longer until you progress, > the longer until you need treatment. > > In general we discuss a response of less than six months or lack of a > response as defining refractory disease. That is not necessarily the > same as clinical benefit. A good example is a patient who receives > only rituximab in order to help reduce splenomegaly and improve > counts. The blood counts might not improve sufficiently to achieve > a " response " , but with continued therapy every six months, the patient > might be kept stable for years. Here there is a great clinical benefit > without a response. When measuring the quality of therapies, it is > important to be rigid. When deciding how to treat patients, obviously > clinical benefit is what is most important. > > Rick Furman, MD > > > > > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) > > , > From the perspective of assessing clinical response, the time from > treatment to time of progression is used. As you point out, this is > not what translates into what is most important for the patient. It is > believed that the two are related. So the longer until you progress, > the longer until you need treatment. > > In general we discuss a response of less than six months or lack of a > response as defining refractory disease. That is not necessarily the > same as clinical benefit. A good example is a patient who receives > only rituximab in order to help reduce splenomegaly and improve > counts. The blood counts might not improve sufficiently to achieve > a " response " , but with continued therapy every six months, the patient > might be kept stable for years. Here there is a great clinical benefit > without a response. When measuring the quality of therapies, it is > important to be rigid. When deciding how to treat patients, obviously > clinical benefit is what is most important. > > Rick Furman, MD > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Dave - go see Byrd - you will not regret it - Create a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 : I do intend to do that. I would really like to have Dr. Furman but it is just not practical being so far away. Thanks Dave > > Dave - go see Byrd - you will not regret it - > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Welcome Dave, Just exactly where do you live? I used to live in Ferndale, Royal Oak, Biringham,Waterford and we now live in Oscoda on Lake Huron.I have never met in person anyone in Mi. with Still.There is another Woman named who live in the Saginaw area.I have had Stills many years and am disabled and recieve SSI. Of course I am alot older than you.Stress absolutely plays a part,but I don't think thats what causes it.My doc said they think it starts with a virus in the liver or brain.I'mnot sure I believe that either.All I know is without this group I don't know where I'd be now.The people here are so caring and empathetic,you'll never find any better.They have big shoulders (some not their own lol) and listen to you even when they are in a bad way themselves.So sit back or lay down and kick off your shoes and ask away.Again welcome.Elly --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi Elly, Thanks for responding! I live in Novi but I used to live in R.O. and Troy for a few years. It seem like everyone on this site has had such a horrible experience with Stills but my RD seems overly confident that I will get over this. Does anyone know the percentages of people who overcome this right away/after 1 year/2 years ect and are there people who get back to 100% remission? Thanks Dave To: Stillsdisease@...: ellyandbilltroy@...: Sun, 20 Apr 2008 16:35:45 -0700Subject: RE:Dave Welcome Dave, Just exactly where do you live? I used to live in Ferndale, Royal Oak, Biringham,Waterford and we now live in Oscoda on Lake Huron.I have never met in person anyone in Mi. with Still.There is another Woman named who live in the Saginaw area.I have had Stills many years and am disabled and recieve SSI. Of course I am alot older than you.Stress absolutely plays a part,but I don't think thats what causes it.My doc said they think it starts with a virus in the liver or brain.I'mnot sure I believe that either.All I know is without this group I don't know where I'd be now.The people here are so caring and empathetic,you'll never find any better.They have big shoulders (some not their own lol) and listen to you even when they are in a bad way themselves.So sit back or lay down and kick off your shoes and ask away.Again welcome.Elly---------------------------------Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.[Non-text portions of this message have been removed] _________________________________________________________________ Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn how. http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skyd\ rive_packup_042008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi Elly, Thanks for responding! I live in Novi but I used to live in R.O. and Troy for a few years. It seem like everyone on this site has had such a horrible experience with Stills but my RD seems overly confident that I will get over this. Does anyone know the percentages of people who overcome this right away/after 1 year/2 years ect and are there people who get back to 100% remission? Thanks Dave To: Stillsdisease@...: ellyandbilltroy@...: Sun, 20 Apr 2008 16:35:45 -0700Subject: RE:Dave Welcome Dave, Just exactly where do you live? I used to live in Ferndale, Royal Oak, Biringham,Waterford and we now live in Oscoda on Lake Huron.I have never met in person anyone in Mi. with Still.There is another Woman named who live in the Saginaw area.I have had Stills many years and am disabled and recieve SSI. Of course I am alot older than you.Stress absolutely plays a part,but I don't think thats what causes it.My doc said they think it starts with a virus in the liver or brain.I'mnot sure I believe that either.All I know is without this group I don't know where I'd be now.The people here are so caring and empathetic,you'll never find any better.They have big shoulders (some not their own lol) and listen to you even when they are in a bad way themselves.So sit back or lay down and kick off your shoes and ask away.Again welcome.Elly---------------------------------Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.[Non-text portions of this message have been removed] _________________________________________________________________ Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn how. http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skyd\ rive_packup_042008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi Elly, Thanks for responding! I live in Novi but I used to live in R.O. and Troy for a few years. It seem like everyone on this site has had such a horrible experience with Stills but my RD seems overly confident that I will get over this. Does anyone know the percentages of people who overcome this right away/after 1 year/2 years ect and are there people who get back to 100% remission? Thanks Dave To: Stillsdisease@...: ellyandbilltroy@...: Sun, 20 Apr 2008 16:35:45 -0700Subject: RE:Dave Welcome Dave, Just exactly where do you live? I used to live in Ferndale, Royal Oak, Biringham,Waterford and we now live in Oscoda on Lake Huron.I have never met in person anyone in Mi. with Still.There is another Woman named who live in the Saginaw area.I have had Stills many years and am disabled and recieve SSI. Of course I am alot older than you.Stress absolutely plays a part,but I don't think thats what causes it.My doc said they think it starts with a virus in the liver or brain.I'mnot sure I believe that either.All I know is without this group I don't know where I'd be now.The people here are so caring and empathetic,you'll never find any better.They have big shoulders (some not their own lol) and listen to you even when they are in a bad way themselves.So sit back or lay down and kick off your shoes and ask away.Again welcome.Elly---------------------------------Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.[Non-text portions of this message have been removed] _________________________________________________________________ Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn how. http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skyd\ rive_packup_042008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 It is indeed so sad to know that Dave is no longer with us. He truly inspired a lot of us and was one of the most informed in research. Hope his memory is comforting to all and specially his wife, children and grand kids. Farah On Tue, Sep 30, 2008 at 11:31 AM, Valarie <val@...> wrote: > I am not surprised but am heartbroken at the news. Dave was so well > informed and always so very helpful and kind to me. I miss him terribly. > Here is a picture of him. <riothamus20> > riothamus20 > > I will re-post Dave's last email to me. He asked me at the time to tell the > list so I'm not betraying any confidence. Perhaps Dave sees his wee one > from afar. > > <riothamus20> Is your edema pitting or > non-pitting? Non-pitting is often associated with hypothyroidism. My edema > left 98% when I got on sprio. > > <riothamus20> Val > > <riothamus20> From: > hyperaldosteronism <hyperaldosteronism%40> > [mailto:hyperaldosteronism <hyperaldosteronism%40>\ ] > On Behalf Of Sheilah > > <riothamus20> Thanks for the reply,Val.That is > the Dave I'm talking about.He passed > away on June,8th.He never got to see his granddaughter.I feel this > loss every day. > > And, the problem is in both legs. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Dave, I am not sure how long you will be in the hospital, and how large an OT department they have. Please tell your doctor ahead of time your wishes to have an OT evaluation before you go home. Please let him know why, he will be more out to make sure you have it before going home. (unfortunately most hospitals are under staffed with OT's). During the evaluation a good OT will know what you need to do your Activities Of Daily Living (ADL). When I had L surgery in 2000 I didn't want to go to rehab, I had HS age children home, and opted to have a visiting nurse. I didn't want an aid, but did have PT. They didn't do any real exercises, but she helped me with stairs, and walking outside. If you live alone or even if you don't your insurance may provide you with visiting home nursing, since there are so many things you will not be able to do for yourself. This usually includes an aid for a few mornings a week that can help you with showers, light cleaning, and meal preparations. They can also send in a PT and an OT for at least an evaluation. My daughters usually push for rehab for people that live alone, and those that have had major reconstruction with spine surgeries. Dave if you have any questions for my daughters please let me know. ilene In a message dated 8/11/2009 1:00:15 A.M. Eastern Daylight Time, chavezd@... writes: This is some very helpful information to know. Honestly, I didn't even think of this kind of stuff. I will definately use your advice and contact the OT dept. You are a lifesaver, Ilene. Thanks! dave ________________________________ From: " _Ileney54@..._ (mailto:Ileney54@...) " <_Ileney54@..._ (mailto:Ileney54@...) > _spinedisorderssuppospinedisorderssuspinedi_ (mailto:spinal problems ) Sent: Monday, August 10, 2009 9:20:46 PM Subject: Re: Re: update of pending fusion Hi Dave, My daughters are both OT's and said that they have all the stuff I may for dressing. They said most hospitals where you will be having the surgery have OT's and that prior to surgery you can ask your doctor if you can contact the OT office in the hospital, they will be able to order and have all the things that will aid you in getting dressed delivered to your house, and they can come up to your room and show you how to use them properly too, this includes a raised toilet seat. The basic commode that fits over a regular toilet is covered by most insurances, so they suggest that one, it is the most economical, the other more " fancy " ones aren't covered by insurance. They also said a shower chair is important, but is not covered by insurance. For lumbar surgery for those that don't have a stall shower there is something called a " shower bench " it fits over the bathtub and aids you in sliding into the bath without having to raise your legs, not exactly sure how it works by they said it is beneficial for those who have had lumbar surgery and will have difficulty raising their legs. Hope this is helpful, ilene In a message dated 8/10/2009 4:07:38 P.M. Eastern Daylight Time, chavezdymail (DOT) com writes: I didn't even think about socks and having to put them on and take them off. I know I'm going to have difficulty in doing many basic and essential things, but I didn't even think about some of the stuff you mention. thanks, dave ____________ _________ _________ __ From: " _liznicolehart@ liznico_ (mailto:liznicolehaFrom: " _liznicoleha <_liznicolehart@ liznico_ (mailto:liznicoleha_liznicolehart@ l> _spinedisorderssupp ospinedisorderss uspinedi_ (mailto:spinedisord(mailto:spinedisord<WBR>erssuppo rt Sent: Monday, August 10, 2009 12:38:29 PM Subject: Re: update of pending fusion Very best of luck with your fusion!!! Do you have your grabber? toilet seat raiser? I bought myself plastic plates, cups, forks so I don't have to lift stuff. I also got a thing to help me put socks on. Putting things on a level where you can reach them will be helpful. I also bought a big thing of baby wipes so I can clean myself inbetween showers. I'm not sure if you were asking for practical stuff....best of luck again. [Non-text portions of this message have been removed] ************ **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (_http://pr.atwola._ (http://pr.atwola./) com/promoclk/ 100126575x122284 6709x1201493018/ aol?redir= _http://www._ (http://www./) freecreditreport ..com/pm/default. aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO1 15) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO115) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Ilene, According to the order for certification from my insurance, it lists 5 days as the length of my hospital stay. If all goes well and I respond quickly, I don't know if I will be able to leave before this time is up, or if I will have to wait out the whole 5 days. I'm sure it is for the best if I take advantage of each day, but I don't like having to stay in hospitals for too long, feeling confined. I'm one to get annoyed with all the disruptions and restrictions. I guess that I will have to quickly learn to accept being able to do a whole lot less, since my abilities will be greatly diminished. Like you, I am reluctant to have physical therapy. While playing football in middle school, I suffered a left knee injury when it was awkwardly hit. Nothing was found to be broken, but I was put in PT. Since my back was giving me problems as well, I was " taught " the many exercises that could relieve the pain. Needless to say, I found PT to be a complete joke. Implemented for certain instances, it is a complete waste of time and money. On my own, I was doing not only these simple exercise, but also a whole lot more strength training and conditioning, as I was involved in many different types of sports and athletic teams. For the politicos whom are pushing Obama's health care, they first need to reform the current methods and get rid of the abundant waste from all of the unnecessary treatments and procedures. Doctors need to stop recommending and ordering for the purpose of fattening their own pockets and the pockets of their " supporters " . Post-surgery, I understand that it will take a lot of patience, labor, and time for me to get back to my old, " pain-free " self. I know for sure that aqua therapy will play a central role in my recovery. As far as that, I am unable to recollect what else the doc told me that he will have me do. However, I do know that any and all PT will be of prime importance, and am willing to do all which is needed. I hope that I could have a nurse come visit and help me! That would be kinda cool, especially if they can cook some 5 course meals! I'm definately going to be taking your advice and ask for the OT dept. Already, you have been such a tremendous help. Never would I have thought about the ideas you have offered, or realized that some of this stuff exists and could be taken care of by my insurance. Although my sister manages an OT dept among a group of assisted living facilities, I don't believe she would know about the back issue needs of recovering patients. I will find out and will definately contact you if you our your daughters could be of assistance. Much thanks, dave ________________________________ From: " Ileney54@... " <Ileney54@...> spinal problems Sent: Tuesday, August 11, 2009 9:08:09 AM Subject: Dave  Dave, I am not sure how long you will be in the hospital, and how large an OT department they have. Please tell your doctor ahead of time your wishes to have an OT evaluation before you go home. Please let him know why, he will be more out to make sure you have it before going home. (unfortunately most hospitals are under staffed with OT's). During the evaluation a good OT will know what you need to do your Activities Of Daily Living (ADL). When I had L surgery in 2000 I didn't want to go to rehab, I had HS age children home, and opted to have a visiting nurse. I didn't want an aid, but did have PT. They didn't do any real exercises, but she helped me with stairs, and walking outside. If you live alone or even if you don't your insurance may provide you with visiting home nursing, since there are so many things you will not be able to do for yourself. This usually includes an aid for a few mornings a week that can help you with showers, light cleaning, and meal preparations. They can also send in a PT and an OT for at least an evaluation. My daughters usually push for rehab for people that live alone, and those that have had major reconstruction with spine surgeries. Dave if you have any questions for my daughters please let me know. ilene In a message dated 8/11/2009 1:00:15 A.M. Eastern Daylight Time, chavezdymail (DOT) com writes: This is some very helpful information to know. Honestly, I didn't even think of this kind of stuff. I will definately use your advice and contact the OT dept. You are a lifesaver, Ilene. Thanks! dave ____________ _________ _________ __ From: " _Ileney54aol (DOT) Ile_ (mailto:Ileney54aol (DOT) com) " <_Ileney54aol (DOT) Ile_ (mailto:Ileney54aol (DOT) com) > _spinedisorderssupp ospinedisorderss uspinedi_ (mailto:spinedisorderssuppo rtgroup@gro ups.com) Sent: Monday, August 10, 2009 9:20:46 PM Subject: Re: Re: update of pending fusion Hi Dave, My daughters are both OT's and said that they have all the stuff I may for dressing. They said most hospitals where you will be having the surgery have OT's and that prior to surgery you can ask your doctor if you can contact the OT office in the hospital, they will be able to order and have all the things that will aid you in getting dressed delivered to your house, and they can come up to your room and show you how to use them properly too, this includes a raised toilet seat. The basic commode that fits over a regular toilet is covered by most insurances, so they suggest that one, it is the most economical, the other more " fancy " ones aren't covered by insurance. They also said a shower chair is important, but is not covered by insurance. For lumbar surgery for those that don't have a stall shower there is something called a " shower bench " it fits over the bathtub and aids you in sliding into the bath without having to raise your legs, not exactly sure how it works by they said it is beneficial for those who have had lumbar surgery and will have difficulty raising their legs. Hope this is helpful, ilene In a message dated 8/10/2009 4:07:38 P.M. Eastern Daylight Time, chavezdymail (DOT) com writes: I didn't even think about socks and having to put them on and take them off. I know I'm going to have difficulty in doing many basic and essential things, but I didn't even think about some of the stuff you mention. thanks, dave ____________ _________ _________ __ From: " _liznicolehart@ liznico_ (mailto:liznicoleha From: " _liznicoleha <_liznicolehart@ liznico_ (mailto:liznicoleha _liznicolehart@ l> _spinedisorderssupp ospinedisorderss uspinedi_ (mailto:spinedisord (mailto:spinedis ord<WBR>erssuppo rt Sent: Monday, August 10, 2009 12:38:29 PM Subject: Re: update of pending fusion Very best of luck with your fusion!!! Do you have your grabber? toilet seat raiser? I bought myself plastic plates, cups, forks so I don't have to lift stuff. I also got a thing to help me put socks on. Putting things on a level where you can reach them will be helpful. I also bought a big thing of baby wipes so I can clean myself inbetween showers. I'm not sure if you were asking for practical stuff....best of luck again. 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Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 I agree Dave should be banned from group. this is a group for people who have tried everything and still on pain w serious spinal abnormalities and herniations- not sore backs and small disc bulges. Is there not a moderator? this is a group for those w compassion and who offer support and are humble not sensationalistic over dramatic advice re one approach or radical diet and fail- proof advice. u r not a dr Dave and we don't want what ur selling > multiple bulging and dessicated discs, 3/4 herniated L5 w discectomy 8 weeks ago, disc adhered to sciatic nerve and difficult to remove, years of diet and exercise improvements, physical trainers, pilates instructors, chiropractic, acupuncture - all recomended and lots " work " cuz muscle strain wouldve healed itself anyway! thats why MRIs and surgery last resorts. rucking most of indiv on this site experience excruciating or intense pain that is only relieved w surgerycplus ice, rest, major modifications to lifestyle and often narcotics and nerve Rx that cause a host of not-so-fun sideceffects. u think we haven't tried changing mattresses and shoes- come on and building high quality good material. This is irrefutable and demonstratable Common Sense > > > > Find an Advanced Rolfer in your area and try the therapy for at least 3 visits and Note the effects . ALL of these things work synergistically harmoniously to properly bring your ENTIRE physical body in its free flowing proper Alignment. This is an excellent, Highly successful regimen for structural conditions and alleviating chronic pain > > > > Fact is Anyone who has pain due to Disc issues also has a body that is out of its proper Anatomical alignment, its Axiomatic and a given > fact > > > > Dave > > > > > > > > > Me: you are not alone. I live the pain 24/7 to. And i to an sick of hearing about all the miracle cures that will fix us all. Wish it was that easy. But living with a intolerable condition that is slowly taking your life is bad enough. Hope this guy gives it a rest. Enough already! > > Re: my Lumbar MRI said > > > > Dave, > > > > Am I disgruntled, angry and over emotional. TRY BEING TRULY SICK and in pain 24/7 with NO CURE, that is slowly dying, and see how you feel and act when someone tells you to change your diet and get your body aligned and you'll be all better. It is offensive. Am I hostile? Yes, I am hostile to anyone who comes on a group that is meant for support and tries to convince people that something will cure their issues when it is unproven or a crock of crap. I doubt that you had a total herniation and the other issues that you stated because there is no way realignment of your body would correct and heal those issues. Most people on this board aren't people with just a sore back that would benefit from what you are preaching. I said the food issue because I knew that was coming next from researching you on other posts, and I was correct. You started telling everyone that our diet was wrong if we were American and we should all check out the raw food diet, etc. I also found one that says " Avoid this guy: dj7 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Nene, I am a moderator and will ban anyone who interferes with the support that is what this group is for. That being said, this group is for ANYONE who currently has ANY level of back pain, used to have back pain or has a loved one with back pain. And yes, the sole priority of this group is SUPPORT. Anything that is negative or causes stress is not supportive. Such conversations and comments will be dealt with. --- Babbitt From: nene <renee_burke1@...> Subject: Re: Dave spinal problems Date: Friday, January 14, 2011, 12:16 AM  I agree Dave should be banned from group. this is a group for people who have tried everything and still on pain w serious spinal abnormalities and herniations- not sore backs and small disc bulges. Is there not a moderator? this is a group for those w compassion and who offer support and are humble not sensationalistic over dramatic advice re one approach or radical diet and fail- proof advice. u r not a dr Dave and we don't want what ur selling > multiple bulging and dessicated discs, 3/4 herniated L5 w discectomy 8 weeks ago, disc adhered to sciatic nerve and difficult to remove, years of diet and exercise improvements, physical trainers, pilates instructors, chiropractic, acupuncture - all recomended and lots " work " cuz muscle strain wouldve healed itself anyway! thats why MRIs and surgery last resorts. rucking most of indiv on this site experience excruciating or intense pain that is only relieved w surgerycplus ice, rest, major modifications to lifestyle and often narcotics and nerve Rx that cause a host of not-so-fun sideceffects. u think we haven't tried changing mattresses and shoes- come on and building high quality good material. This is irrefutable and demonstratable Common Sense > > > > Find an Advanced Rolfer in your area and try the therapy for at least 3 visits and Note the effects . ALL of these things work synergistically harmoniously to properly bring your ENTIRE physical body in its free flowing proper Alignment. This is an excellent, Highly successful regimen for structural conditions and alleviating chronic pain > > > > Fact is Anyone who has pain due to Disc issues also has a body that is out of its proper Anatomical alignment, its Axiomatic and a given > fact > > > > Dave > > > > > > > > > Me: you are not alone. I live the pain 24/7 to. And i to an sick of hearing about all the miracle cures that will fix us all. Wish it was that easy. But living with a intolerable condition that is slowly taking your life is bad enough. Hope this guy gives it a rest. Enough already! > > Re: my Lumbar MRI said > > > > Dave, > > > > Am I disgruntled, angry and over emotional. TRY BEING TRULY SICK and in pain 24/7 with NO CURE, that is slowly dying, and see how you feel and act when someone tells you to change your diet and get your body aligned and you'll be all better. It is offensive. Am I hostile? Yes, I am hostile to anyone who comes on a group that is meant for support and tries to convince people that something will cure their issues when it is unproven or a crock of crap. I doubt that you had a total herniation and the other issues that you stated because there is no way realignment of your body would correct and heal those issues. Most people on this board aren't people with just a sore back that would benefit from what you are preaching. I said the food issue because I knew that was coming next from researching you on other posts, and I was correct. You started telling everyone that our diet was wrong if we were American and we should all check out the raw food diet, etc. I also found one that says " Avoid this guy: dj7 > > > Quote Link to comment Share on other sites More sharing options...
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