Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Dave - I'm sorry you have so much pain. I know how bad pain can suck!!! The pain from my Stills was bad in the beginning but improved. My headaches & neck pain, however - WOW! There have been times I've been up all night long, laying on the couch wanting to die just to get away from the pain. Pain meds just don't work too great when the pain gets really bad like that. I'm glad your doc recognizes the problem your pain is causing and is willing to prescribe strong meds for it, and send you to other specialists. Dave, just do your best to hang in there. And please please remember.... no what how rotten or useless or helpless you feel .... remember you are very VALUED and LOVED by your family and by the members of our group. Take care & feel free to vent all you want here!! Trish in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Dave - I'm sorry you have so much pain. I know how bad pain can suck!!! The pain from my Stills was bad in the beginning but improved. My headaches & neck pain, however - WOW! There have been times I've been up all night long, laying on the couch wanting to die just to get away from the pain. Pain meds just don't work too great when the pain gets really bad like that. I'm glad your doc recognizes the problem your pain is causing and is willing to prescribe strong meds for it, and send you to other specialists. Dave, just do your best to hang in there. And please please remember.... no what how rotten or useless or helpless you feel .... remember you are very VALUED and LOVED by your family and by the members of our group. Take care & feel free to vent all you want here!! Trish in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 In a message dated 10/9/2004 9:14:52 PM Pacific Daylight Time, dkl.pearson@... writes: I'm hoping to see Robbie Bishop, NASA...... (pam hear this),,, WE HAVE A PROBLEM... Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Hey Dave, Glad to hear this!! Please keep us posted, okay? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 In a message dated 10/9/2004 8:14:53 PM Alaskan Daylight Time, dkl.pearson@... writes: > I will be making an appointment CI center. Virginia Mason " Listen For Life > Center. I'm hoping to see Robbie Bishop, Audiologist and if I'm qualify > for a CI and How much my insurance will cover and figure out where to get > the rest of the money to pay for it. I'm hoping for Dr Backous to give me > the surgery. > > Wishing you well! Robbi is great and so is the team at Virginia Mason! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 In a message dated 10/9/2004 8:38:47 PM Alaskan Daylight Time, spottedlee@... writes: > > NASA...... (pam hear this),,, WE HAVE A PROBLEM... > > Lee heheheheheheh.. there will be a crowd won't there? :-) Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 I will be making an appointment CI center. Virginia Mason " Listen For Life Center. I'm hoping to see Robbie Bishop, Audiologist and if I'm qualify for a CI and How much my insurance will cover and figure out where to get the rest of the money to pay for it. I'm hoping for Dr Backous to give me the surgery. -- Taking the first step well, I said it out loud to my wife. I am call to get the forms to fill out and make an appointment to see if I'm qualify for a CI. I decide not to be a chicken anymore... (smile) I have all of you to thanks for this! It all of your faults! Pearson ________________________________________________________________ Speed up your surfing with Juno SpeedBand. Now includes pop-up blocker! Only $14.95/ month - visit http://www.juno.com/surf to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2004 Report Share Posted October 10, 2004 In a message dated 10/10/2004 8:20:36 AM Pacific Daylight Time, rlclark77@... writes: Houston, we have a problem OOP,,, thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2004 Report Share Posted October 10, 2004 Correction...... its..... Houston, we have a problem. Our esteemed pilot just discovered he did not bring any spare batteries and his CI just died. He would be most appreciative if you guys would send him some asap via one of those hotshot space jockeys that just won the $10million prize. *---* *---* *---* *---* *---* Back off!! You're standing in my aura. & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi Dave! I'm getting to you late, cause I subscribe to the 'digest' version. 49 is not! 'too young' to have THR. I never did do the injection thing--I'm scared of what they're putting in me! Steroids scare me! That said: I'm 44 and just had my L hip replaced Sept 28. I did have AVN at first, my first ortho did a core decompression (drilled 2 holes in the top of the femur so blood vessels could form--which they did--and ossify the bone--which they did too!) in 1992, but was on painkillers for all that time until I had it replaced. I think getting off of those is harder than the operation itself! (Not really, but it IS hard.) Has your doc suggested a core decompression? If the femural heads aren't too collapsed, this may be an option for you for awhile. Just a suggestion--I'm not a Dr but I play one on the internet! ;-) This year I went to a new Dr when my insurance changed and she wanted a new MRI. Turns out the AVN was gone, but osteoarthritis had set in. :-( SO, I had to make a choice to either have my hip replaced or deal with a rotting bone and increased pain. I chose the former, and I don't regret it! My current ortho chose the cementless method and installed the DePuy prosthesis. He did it with the anterolateral approach, meaning from the front and side. Apparently that is more easy to recover from than from the back, as is more widely done. The cementless procedure was used because of my age, and the tendency for the cement to flake off--guaranteeing another op, or increased pain. So, I was on toe-touch weight-bearing for 6 weeks, but now I can do just about anything! I do cross my right leg over my left, but as I haven't been told I CAN cross my left over my right, I don't do it much--yet! And I don't cross the right-over-left for too long, although I cross my ankles all the time--I'm doing it now! :-) I have to stop myself from the left-over-right crossing because that has been such a natural way for me to sit for so long, its hard to break. But its uncomfortable, and so I take that as a sign I shouldn't do it. I don't know how it would be having to have both done....and I don't know if they do them at the same time now. If they do, you could get it over in one fell swoop, but I would imagine it would be taxing on your body. I still get very fatigued even 3 months out. All in all, I'd say get a 2nd opinion if you don't like the 1st! You wouldn't believe the hokey info I got from the orthos in their high golden towers when I went in for my first 2nd opinion for AVN! One wanted to cut a pie-shaped portion out of my lower femur and fuse it back together again! How insane is THAT?! Glad I went for the core-decompression--the 3rd opinion! My doc did tell me that at sometime down the road I would have to have the hip replaced--that this first operation was just to try to save the bone. It did, but as I say, osteoarthritis set in and I had to have it removed. I was VERY scared and nervous, but--I lived!--and everything is progressing nicely! So--I'm 44, 49 ain't so much older now is it! ;-) Good luck to you, and keep us posted! -Glenna/Seattle Hi everyone. I'm a 49 year old, suffering from AVN in both hips. So far, I have received two rounds of injections. The first one worked for about 10 weeks, the second on for about 3-4 weeks. The surgeon said that I am too young to consider the THR right now, but I just don't think I can deal with the pain much longer. This is effecting my day-to-day life. My right hip seems to be 'going out' occasionally. It might happen when I'm walking or trying to stand from a sitting position. Being new here, I'm anxious to get some wonderful advice and will start reading the back posts. In the meantime, can anyone tell me if I'll be able to cross my legs again once the hips are replaced?cheers & thanks,dave ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.769 / Virus Database: 516 - Release Date: 9/24/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 Hallo Dave, i have also AVN . I am 48 - i take Mayo Hip from Zimmer and a Cer-Ceramic 32mm artic.. Now it is a half year, it is good. Gunnar from Germany. Re: DAVE Hi Dave! I'm getting to you late, cause I subscribe to the 'digest' version. 49 is not! 'too young' to have THR. I never did do the injection thing--I'm scared of what they're putting in me! Steroids scare me! That said: I'm 44 and just had my L hip replaced Sept 28. I did have AVN at first, my first ortho did a core decompression (drilled 2 holes in the top of the femur so blood vessels could form--which they did--and ossify the bone--which they did too!) in 1992, but was on painkillers for all that time until I had it replaced. I think getting off of those is harder than the operation itself! (Not really, but it IS hard.) Has your doc suggested a core decompression? If the femural heads aren't too collapsed, this may be an option for you for awhile. Just a suggestion--I'm not a Dr but I play one on the internet! ;-) This year I went to a new Dr when my insurance changed and she wanted a new MRI. Turns out the AVN was gone, but osteoarthritis had set in. :-( SO, I had to make a choice to either have my hip replaced or deal with a rotting bone and increased pain. I chose the former, and I don't regret it! My current ortho chose the cementless method and installed the DePuy prosthesis. He did it with the anterolateral approach, meaning from the front and side. Apparently that is more easy to recover from than from the back, as is more widely done. The cementless procedure was used because of my age, and the tendency for the cement to flake off--guaranteeing another op, or increased pain. So, I was on toe-touch weight-bearing for 6 weeks, but now I can do just about anything! I do cross my right leg over my left, but as I haven't been told I CAN cross my left over my right, I don't do it much--yet! And I don't cross the right-over-left for too long, although I cross my ankles all the time--I'm doing it now! :-) I have to stop myself from the left-over-right crossing because that has been such a natural way for me to sit for so long, its hard to break. But its uncomfortable, and so I take that as a sign I shouldn't do it. I don't know how it would be having to have both done....and I don't know if they do them at the same time now. If they do, you could get it over in one fell swoop, but I would imagine it would be taxing on your body. I still get very fatigued even 3 months out. All in all, I'd say get a 2nd opinion if you don't like the 1st! You wouldn't believe the hokey info I got from the orthos in their high golden towers when I went in for my first 2nd opinion for AVN! One wanted to cut a pie-shaped portion out of my lower femur and fuse it back together again! How insane is THAT?! Glad I went for the core-decompression--the 3rd opinion! My doc did tell me that at sometime down the road I would have to have the hip replaced--that this first operation was just to try to save the bone. It did, but as I say, osteoarthritis set in and I had to have it removed. I was VERY scared and nervous, but--I lived!--and everything is progressing nicely! So--I'm 44, 49 ain't so much older now is it! ;-) Good luck to you, and keep us posted! -Glenna/Seattle Hi everyone. I'm a 49 year old, suffering from AVN in both hips. So far, I have received two rounds of injections. The first one worked for about 10 weeks, the second on for about 3-4 weeks. The surgeon said that I am too young to consider the THR right now, but I just don't think I can deal with the pain much longer. This is effecting my day-to-day life. My right hip seems to be 'going out' occasionally. It might happen when I'm walking or trying to stand from a sitting position. Being new here, I'm anxious to get some wonderful advice and will start reading the back posts. In the meantime, can anyone tell me if I'll be able to cross my legs again once the hips are replaced?cheers & thanks,dave ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.769 / Virus Database: 516 - Release Date: 9/24/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 OH DAVE, hug her when you are feeling good and she will travel with you through the pain. For better or worse, remember? I remember telling my hubby that he had promised to love me for better or worse, and that the next two years were going to be some of the worst we had seen! He said, "I will still be there." It helped. I had a bad stretch of depression after each op--this, too, will pass. Hang on! Marge I am a 49 year old man that has cried more tears and done more sobbing in the last two weeks than I have in years. I also get very angry at nothing and I'm driving my wife nuts. dave, 49 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Dear Dave, It sounds like this has frightened both yourself and your wife. Having been through 4 ops in a year, I am now getting quite familiar with the low feelings after each op, as is my husband, and like others who have posted. However, as a woman, perhaps I am more allowed to cry than you are as a man—I think others expect tears from women more then men? Not very fair for men. Like others, I also wonder how much effect the pain meds are having in making you sob—they really can do that to you. The other feelings that I certainly had each time were feeling so out of control and helpless and so-o-o dependent for help on everyone and my husband in particular. I don’t know what it is like for your wife, but my husband really finds it difficult to have me dependent on him. He has always liked my independence and strength, and so it is difficult when it changes. The result of all this has been lots and lots of talking together (often in the middle of the night)—me saying how I am experiencing things, positive and negative, and him, how he is finding things. He has become a good listener over the years (35!) and has learned how to say where he is at, as well. In the end, it certainly brings you closer, although the process can be quite difficult. And I have found, after a good cry and talk, things start to get into perspective again. Somehow it helps to be able to talk about all one’s worst fears, (in my case—will I ever walk properly again, be able to have a bath, run after my grandchild, etc.—all the usual. And his are—will I have to be a nurse for the rest of my life to this woman) to be able to move on. Humour has also helped a lot. And—as mentioned below—cuddles. Eleanor -----Original Message----- From: marge [mailto:palybami@...] Sent: 15 February 2005 03:40 To: Joint Replacement Subject: Re: dave OH DAVE, hug her when you are feeling good and she will travel with you through the pain. For better or worse, remember? I remember telling my hubby that he had promised to love me for better or worse, and that the next two years were going to be some of the worst we had seen! He said, " I will still be there. " It helped. I had a bad stretch of depression after each op--this, too, will pass. Hang on! Marge I am a 49 year old man that has cried more tears and done more sobbing in the last two weeks than I have in years. I also get very angry at nothing and I'm driving my wife nuts. dave, 49 Be your own advocate! The best patient is an informed patient! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 I am actually wondering if Dave is taking enough pain medication too. It seems funny, but I often didn't realise that I was in pain. I would be irritable, couldn't get comfortable, couldn't settle, so was up and down one day. Hubby put up with me for a while and then said " When is your pain medication due! " Would you believe I had not taken pain medication all day. And this was my first full day out of hospital. Yep pain meds solved that little stint of missery. I had the same situation further down the track. Went to the doctor and my walking wasn't improving - doctor put me on regular pain meds and my walking improved no end. Hubby still reminds me to take pain meds when he sees me struggling. So too much meds, and not enough meds - either could be the trouble. Today I had another set of injections to try to release the muscles. I asked the specialist if it was ever going to come good, or something I just have to learn to live with. He seems to think there is still a chance. Hugs Margaret from Australia Re: dave > > > OH DAVE, hug her when you are feeling good and she will travel with you > through the pain. For better or worse, remember? > I remember telling my hubby that he had promised to love me for better > or worse, and that the next two years were going to be some of the worst > we had seen! He said, " I will still be there. " > It helped. I had a bad stretch of depression after each op--this, too, > will pass. Hang on! > Marge > > I am a 49 year old man that has cried more tears and done more sobbing > in the last two weeks than I have in years. I also get very angry at > nothing and I'm driving my wife nuts. > > dave, 49 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Dear Margaret, How perceptive! Do hope the injections work. Presumably you have tried some other physical alternatives--pilates, yoga, cranial osteopathy etc.? Technique is my favourite for releasing muscles and they do have it in Australia depending where you live. I went to someone in Sydney when we lived there once for 4 months. Eleanor Re: dave I am actually wondering if Dave is taking enough pain medication too. It seems funny, but I often didn't realise that I was in pain. I would be irritable, couldn't get comfortable, couldn't settle, so was up and down one day. Hubby put up with me for a while and then said " When is your pain medication due! " Would you believe I had not taken pain medication all day. And this was my first full day out of hospital. Yep pain meds solved that little stint of missery. I had the same situation further down the track. Went to the doctor and my walking wasn't improving - doctor put me on regular pain meds and my walking improved no end. Hubby still reminds me to take pain meds when he sees me struggling. So too much meds, and not enough meds - either could be the trouble. Today I had another set of injections to try to release the muscles. I asked the specialist if it was ever going to come good, or something I just have to learn to live with. He seems to think there is still a chance. Hugs Margaret from Australia Re: dave > > > OH DAVE, hug her when you are feeling good and she will travel with you > through the pain. For better or worse, remember? > I remember telling my hubby that he had promised to love me for better > or worse, and that the next two years were going to be some of the worst > we had seen! He said, " I will still be there. " > It helped. I had a bad stretch of depression after each op--this, too, > will pass. Hang on! > Marge > > I am a 49 year old man that has cried more tears and done more sobbing > in the last two weeks than I have in years. I also get very angry at > nothing and I'm driving my wife nuts. > > dave, 49 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Hi, Dave, I don't know if this is the site you were thinking of, but here is one. I haven't read it myself, but it looks like it might have basic info. Let us know! Mapping for Dummies: o) Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 > > Hi Dave, > Hey U Mich rules. GO BLUE. Now, Now! I and my wife went to undergrad at OSU! But.....I don't want to start a fight with anyone here. Of course we have lived in Michigan for 40 years so I root for whoever is leading in the polls when the BIG GAME occurs. This year it was OSU and they won, but because of a loss to pesky Penn State they are not at the top of the national rankings. You can participate in the research they > do up there at the Kresge Hearing Research institute. I go up there > several times a year and listen to sounds in a sound booth. It pays, but > hard to keep awake for it! LOL. I'm NOT spending EXTRA time in the booth! > Several of our members were implanted at U Mich - Silly and her > sister, , for instance. There are, I think 3 or 4 members of the > family with Nucleus implants. They can probably tell you a good audi for > mappings. I thought I would go to a Michigan SHHH meeting in Ann Arbor this year. We live about 30 miles away. I have never been to a SHHH or any other deaf/HOH meetings. > Congratulations on taking this step toward hearing. And you can get a > long (12 Inch or so) cord so you can move the processor to the right hand > side when you are driving. To allow you to hear conversation from that > side. I'm implanted on the left as well, and have had my Nucleus 24 for > 8 years now. I use the longer cord to listen to passengers, or music, > when I drive. If you get 2 cords with your processor, get one short and > one long. Great idea! I didn't think I had any questions, but that idea sounds very practical. And you can listen to music! I would love to be able to listen to music again, maybe even go to a broadway type show that I have missed for at least 15 years! > You'll do well -- and BTW, Thank you for serving our country in the > Armed Forces. > > Thanks, > > The Original Thanks for your support . That was the US Army - 67-69. Dave CI scheduled 12/30/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Hello, Dave, Wishing you well on Friday and the following weeks for an easy recovery. This is one New Year you will never forget, starting a few days before and lasting the rest of your life! ) Jackie Implanted - right ear - Oct.2002 - Nucleus 24/3G Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G Implanted - left ear - Sept.2005 - Nucleus-Freedom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hi, Dave, So glad your surgery went well. But what was so hard about laying down and going to sleep? <giggles> The hard part is just beginning But therein lies the thrill! Hope Feb. 2 brings you bearable sound, and on into voice distinction in the not too distant future! ) Jackie Implanted - right ear - Oct.2002 - Nucleus 24/3G Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G Implanted - left ear - Sept.2005 - Nucleus-Freedom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi, Dave, So glad things went so well for you during and following surgery. I can't believe you;ve retained the hearing you had, that is amazing! Continued good recovery and good luck on activation day! ) Jackie Implanted - right ear - Oct.2002 - Nucleus 24/3G Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G Implanted - left ear - Sept.2005 - Nucleus-Freedom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 In a message dated 16/06/2006 21:56:34 GMT Daylight Time, dava93@... writes: Little Dan had high sulphur in his urine as do most of out kids, I have read that phenols need sulphur to metabolize food would using these enzymes possibly mean less sulphur is needed to absorb phenols and allow the body to use the remaining sulphur it has elsewhere in the body ie detox. >>>In my reading high urine sulphur most likely means he is wasting it. Phenols need sulphATE to efficiently detox, you can get that from Epsom Salts in the bath, in a cream or a few grains stuck on with a plaster thats tolerated if he would keep it on, Sam could get one off the middle of his back LOL. Thats helps with the immediate problem but not the cause, for that you have to get the whole cycle of things moving and that will get better in time as you go through the various treatments and as he gets healthier and his gut is absorbing the nutrients. Sorry so long to reply, puter is dying, switching itself off and then refusing to come back one - oh woe is me Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 At 11:15 PM 7/25/07, you wrote: >what's depakote? >rob My understanding is that it is for Nerve pain, but I'll have to get back to you as to what type of drug it is. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 At 11:15 PM 7/25/07, you wrote: >what's depakote? >rob My understanding is that it is for Nerve pain, but I'll have to get back to you as to what type of drug it is. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 > >what's depakote? > >rob > > My understanding is that it is for Nerve pain, but I'll have to get > back to you as to what type of drug it is. Dave > I was given depakote after having bad migraines and some seizures. They told me that it would help as a preventative for them. I hated that med. turned me into a bad space case...worse than usuall. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 > >what's depakote? > >rob > > My understanding is that it is for Nerve pain, but I'll have to get > back to you as to what type of drug it is. Dave > I was given depakote after having bad migraines and some seizures. They told me that it would help as a preventative for them. I hated that med. turned me into a bad space case...worse than usuall. Debbie Quote Link to comment Share on other sites More sharing options...
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