Dave

[Guest guest]

Dave,

Thanks for cheering me on and for your compliments. You sound like you're

not doing so bad yourself!!! I have also enjoyed your insparational thoughts

and comments. So, when was the wedding? You refer to your " wife " now, so I

was wondering.... did you have a honeymoon? what about the wedding

pictures... I can't wait to see those!!

Is your wife doing BFL now too??

Take care and thanks for the support!!

Merced

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

It appears that the fitter & active you can keep yourself the less effect it has. [ timw50 ] seems a good example.

Then I'm already at a loss...I am wheelchair bound from spinal and nerve disease.

[Guest guest]

The point I was trying to make is that if you do your best to take that extra bit of care of your health you are better able to fight the dragon. I was diagnosed 10 years ago & at one time heard that I might as well continue drinking as my liver was shot.

I am a member of NABD, a UK charity which helps bikers with a disability get back on the road again. most of all it cheers me up to find people pushing my ideas of whats possible.

All we can do is our best, within our own limits, we can't turn back the clock, unless we are very lucky, but we can slow it down a bit if we try.

Some people I know are self destructive & blame the dragon. It's not the be all & end all, just something else to deal with, educate & protect others.

I have facet joint damage top & bottom of spine, arthritis down right side, & left arm, neck & hips, bloating, & occassionally pass out after coughing or standing up But apart from that hope to do 6 bike shows this year, travel across England & see more of my family. I can only do this by taking more care of myself physically & emotionally, build on the good days, & hang in their on the bad. & Despite normally being a miserable b'stard, [called Smiler @ one do] & telling everyone I meet, twice or more that I have the dragon. I've met some new friends & only lost a couple of old ones. Keep fighting however you can.

All the Best, Dave.

RE: Dave

It appears that the fitter & active you can keep yourself the less effect it has. [ timw50 ] seems a good example.

Then I'm already at a loss...I am wheelchair bound from spinal and nerve disease.

[Guest guest]

Thanks Dave for telling it like it is....yesterday I decided I was going to " look the devil in the eye and take back my life ". I've set a few goals for myself that are attainable and will work on more. I suppose when a person first finds out about the hep...it's not unusal to be scared and who knows how long I will live? I just know I'm going to make the best of each day and let the rest take care of itself......

I like what you are doing and I can tell you enjoy it...Yes, you have the right idea....I want to be more independent...I want to be able to go someplace when I want....one goal is to figure out a way to get funds for a wheelchair lift for our truck. I cannot lift a power wheel chair...takes 2 strong people...so I'm going to be searching into this. Medicare paid for the wheelchair because it keeps me from being bed bound and they want to make it easier for a handicapped person to care for themselves in the home but they couldn't care less if you never went out the door...they don't pay for a lift and we have no money for one. A person living on social security disability never has an extra dime for anything. I'll let you know how this comes out.

Thanks Dave for your encouragement...judy

-----Original Message-----From: Dave Margetts [mailto:cdesigns@...] Sent: Wednesday, January 09, 2002 9:30 PMHepatitis C Subject: Re: Dave

The point I was trying to make is that if you do your best to take that extra bit of care of your health you are better able to fight the dragon. I was diagnosed 10 years ago & at one time heard that I might as well continue drinking as my liver was shot.

I am a member of NABD, a UK charity which helps bikers with a disability get back on the road again. most of all it cheers me up to find people pushing my ideas of whats possible.

All we can do is our best, within our own limits, we can't turn back the clock, unless we are very lucky, but we can slow it down a bit if we try.

Some people I know are self destructive & blame the dragon. It's not the be all & end all, just something else to deal with, educate & protect others.

I have facet joint damage top & bottom of spine, arthritis down right side, & left arm, neck & hips, bloating, & occassionally pass out after coughing or standing up But apart from that hope to do 6 bike shows this year, travel across England & see more of my family. I can only do this by taking more care of myself physically & emotionally, build on the good days, & hang in their on the bad. & Despite normally being a miserable b'stard, [called Smiler @ one do] & telling everyone I meet, twice or more that I have the dragon. I've met some new friends & only lost a couple of old ones. Keep fighting however you can.

All the Best, Dave.

RE: Dave

It appears that the fitter & active you can keep yourself the less effect it has. [ timw50 ] seems a good example.

Then I'm already at a loss...I am wheelchair bound from spinal and nerve disease.

[Guest guest]

Well thats what its like for me with a few personal twists, Considering I SMOKED @ 6, drank @11, took dope @14, IV @18, & haven't been able to rid myself of beer & tobacco for any period of time. Also had migraines @14 when Iwas taking up to 30 painkillers a day. Am now on similar pain relief re. joint/muscle pains. However I like to take less though I will probably need something for inflammation.

I sometimes find myself intolerant of dairy, mushrooms, sugar, coffee, chocolate, & ,wheat products which adds to the confusion of brainfog. However by varying my diet & not drinking too much coffee I got round that. I found Guarana worked fairly well instead of coffee. St. s Wort helps with energy during the dark of winter & with low moods, Ginseng/ & Royal Jelly also lifts energy & mood, Q10 has helped. Some of these need checking if on medication. I also find some supplements help.

My consultant gave me Prozac 2 weeks before treatment started, it helped me, though I wonder how long I'll be on it. For me it seems that short term use rather than a permanent dose works so if there are 2 things that do the same I try to alternate [ not on prescription drugs !! though I am trying to get my GP to alternate my painkillers ] if I don't need it I try to use occassionally.

With regards to Milk Thistle I haven't tried it for long, re vegetarian & total abstinence I haven't got to that stage yet, I try to eat well & what I enjoy.

was told after a heart op that he shouldn't smoke drink or do most things, after 6mths he looked really rough, when he allowed himself a couple of cigs & the odd half pint & started pottering about he looked & felt much better. Also I don't want to get run over by a bus & not have had a pint or smoke at someones party. However I take photo's & ride a motorbike which helps me stay fairly straight, if not exactly narrow.

Personally I like to listen & then see which advice suits me we're all different in some way & I know that how I deal with it wouldn't suit a lot of people so think twice, & for yourself. The only thing I know is that you always have to wake up with yourself. If you're happy doing that you're normally going in the right direction.

All the Best, Dave, glad you found it helpful.

RE: Dave

It appears that the fitter & active you can keep yourself the less effect it has. [ timw50 ] seems a good example.

Then I'm already at a loss...I am wheelchair bound from spinal and nerve disease.

[Guest guest]

In a message dated Sat, 29 Jun 2002 6:37:27 PM Eastern Standard Time,

dlittlec@... writes:

> anxiety attacks caused by the anesthesia used during

> your surgery

Hi - just checking my mail from vacation. I was really struck by your post,

Dave. After my 1st 2 c-toma surgeries, I had terrible trouble with

post-anesthesia anxiety but I've never really heard anyone else talk about it &

I didn't want to sound like a nut. Thank you for having more guts than me and

sharing that.

With me, the 1st day or so was the absolute worst - I mean, lock myself in my

room horrible. After that, it settled down, but there was a kind of

snowball/domino effect. I had particular trouble with car rides, and - as

anxiety feeds on itself 'cause you are afraid it will happen again - still have

trouble with this.

When I found out I needed surgery #3, I was very concerned about this happening

again. I'd brought it up to both my old ENT & the current one & was told they'd

never heard of such a thing. My last surgery was in a different hospital, with

different anesthesiologists & lo and behold it didn't happen this time. I was SO

relieved!!

The anesthesia was overall better in every way, even though it was a tiny rural

hospital as opposed to a big upscale place like before. I did have more

post-surgery pain, but that may have just been me noticing it more without being

totally preoccupied by the anxiety.

Thanks again for sharing that.

[Guest guest]

Actually pressure from constant inflammation can cause bone erosion.

I have a pretty big hole in the orbit (the bone around my eye) due to a

mucocle (mucus sac) stuck in one of my frontal sinuses. This can also

happen with the thin bone separating the sinuses from the brain. So I

can how the bones in the sinuses themselves can be eroded due to

constant pressure from polyps etc.

I am now facing a battle with my insurance company as I need surgery

to remove this mucus sac before it does damage to my eye. I learned that

I have an extra sinus in the front that only 15% of people have, and it is in

a tough spot to get to. On top of that I have my optic nerve going right

through my sinus cavity causing a lot more than average complications, and

there is also an artery in the way!

Thanks to several folks here I found a wonderful doctor at Stanford (Winston

Vaughn) who is not in my medical group so I am going to have to fight to get

him to do the surgery. He has done many like mine, and all endoscopically. The

previous surgeon wants to 'try' it endoscopically, but said he has little

confidence

it will work and then would try drilling holes around my eye and going at

it that way,

if that failed he said he would do a third operation where called an

osteoplastic flap

where they literally pull the skin off your forehead and take away a big

piece of skull to

get at the problem! Vaughn has done this without any holes in one's head!

Wish me luck, I see the previous surgeon this Friday where I will ask him

to please

refer me to Vaughn (I am hoping he doesn't want to touch me, instead of

looking at

my case as an interesting challenge. He has only done the operation where

they drill

the holes in one's head once!) Next week I will work with my primary

physician and try

to get her on my side. I am in an HMO and the medical group does not want

to lose the

money to another group, plus my group and Stanford had a big riff a few

years ago and

there is bad feelings still.

After I have this, I am off to san diego for the aspirin desensitization

program....what a

way to spend vacation time.

Kim

At 02:49 PM 8/28/2002 -0400, you wrote:

>Not only could the steroids not have prevented the bone loss, it has been

>clearly shown for many years that repeated use of intransal steroids

>(especially Decadron) CAUSES holes in the sinus bones ...

>

>sorry to tell this to you but I'm very surprised your doctors don't know

>this already. Or maybe they do and they want to avoid any ethical/legal

>complications from tellng you this ...

>

>I've never heard of " sinus pressure " causing holing in the bones. You

>should research this more on the internet. I don't know much about it but I

>do know that there is a direct link between steroid sinus sprays and

>problems with the sinus bones. I think, quite honestly, the " sinus

>pressure " argument is complete bullshit.

>

>Lori

>

>

>

>

>

>

[Guest guest]

Hi , It's Dave

Thankyou for responding back to me. I'm so sorry to hear about your pian and

your numb leg. I'm also in severe pain I take 40 mgs of oxycontin also. I'm

having a EMG on Monday my 3rd. one hopfully my great neurologist will tell me

whats going on with my leg and my spine I had MRI of my spine it just showed

bulging discs and Arthritis in my spine. Well Ii gotta go now take care and

try to be PAIN FREE!!! I know it's very hard. Thanx again for writing me

back.------Dave

[Guest guest]

> Hi , It's Dave

> Thankyou for responding back to me. I'm so sorry to hear about your

pian and

> your numb leg. I'm also in severe pain I take 40 mgs of oxycontin

also. I'm

> having a EMG on Monday my 3rd. one hopfully my great neurologist

will tell me

> whats going on with my leg and my spine I had MRI of my spine it

just showed

> bulging discs and Arthritis in my spine.

Hello Dave,

How long have you been on oxycotin? For almost a year now I have had

trouble with sweating really bad and I do believe it is caused from

the oxycotin. I get some really weird looks when it is only in the

teens for a temp and I am sweating like its over a 100 degree's

outside. I use to never sweat like this not even in 110 degree

weather. Sometimes I hate even going out anymore because of it. I

always have to carry something with me to wipe my face off and always

when I get home have to take another shower.

I hope they find out what is wrong with your leg and spine. I just

started seeing a Neurologist a couple of months ago because of

balance problems and was tested for Ataxia and MS and both were

Negative. But what was the problem was the damage nerve in my leg

that controls the muscle in your foot that if you were pushing down

on a gas pedal. And it is caused from the arthritis. But we did

narrow it down to the time the damage happened to the nerve it was

this time last year when I was haveing kidney problems. For months my

feet swelled up so bad that you could barely tell I even had toes.

But I do see my Neuro again in March to see how that nerve is doing.

I just love adding another doctor to the rest of them, He makes

doctor number 8 that I see for all different problems. I have had

back problems for years but they still to this date haven't found out

what is wrong with it. Right now my back is doing ok though. At least

one part of me is LOL. Well got to go. Until next time take care

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" We are all normal, Just some of us have more bumps in our lives then

others "

[Guest guest]

Hi It's Dave,

I've been on Oxycontin for about a month now. I just ran out of it on

friday.and I'm in SEVERE pain!!!!!! As you know I'm seeing my Neurologist

tomorow and I'll get more. I don't get those side effects from it that you

get. I'm sorry to hear that. It just takes the pain away But we'll see what

My EMG will show tomorrow. I'm on 40 mgs of it. I'm also having some Ataxia

problems. I might have to have an MRI of my Brain possibly I don't know until

tomorow I'm 20 yrs old and I have to use a cane. I hate it but I have to.

Well take care friend and I hope your not in that much pain? Fell better. ONE

DAY WE WILL KILL THE DRAGON. Sincerely

Dave,

[Guest guest]

Hi It's Dave,

I've been on Oxycontin for about a month now. I just ran out of it on

friday.and I'm in SEVERE pain!!!!!! As you know I'm seeing my Neurologist

tomorow and I'll get more. I don't get those side effects from it that you

get. I'm sorry to hear that. It just takes the pain away But we'll see what

My EMG will show tomorrow. I'm on 40 mgs of it. I'm also having some Ataxia

problems. I might have to have an MRI of my Brain possibly I don't know until

tomorow I'm 20 yrs old and I have to use a cane. I hate it but I have to.

Well take care friend and I hope your not in that much pain? Fell better. ONE

DAY WE WILL KILL THE DRAGON. Sincerely

Dave,

[Guest guest]

Hi ,

Thank you for your kind and sincere thoughts agreatly appreiate it. I know it

doesn't matter. I just sometimes feel embarassed about using it at 20 alsmost

21 but it helps and I have a nice modern one too. Not a old wooden one. Thank

you for your caring thoughts about tomorow with my Neurologist and my EMG

(Electromylogram). I will let you know what happens tomorow friend. Thanx

again for your kind words. I hope your not in that much pain tonite!! Take

care and be well. we;ll talk soon. Have a nice Nite!! Sincerely -----Dave,

[Guest guest]

> tomorow I'm 20 yrs old and I have to use a cane. I hate it but I

have to.

Hey Dave,

You shouldn't feel bad about using a cane. If it helps that is a good

thing. I do know all about being young and having to use a cane. But

I have looked at it this way for years, If it helps me get around

and helps me stay stable on my feet and help with some of the pain

because u take the weight off that leg and put it on your upper body

it is well worth it. Now days u can get cane's that look way better

then just a old brown wooden cane or a sliver metal one. I like the

colors of my cane I have it has a few different blues and is kinda

like a tie die. I had to start using a cane when I was 10 years old.

I am 28 now. If it wasn't for me having to use my cane I would of

probably have to stay home all the time or have to be in a wheel

chair again. I will fight my hardest fight not to end up in a wheel

chair again. Well got to go play the ole Playstation2 so I will talk

to you later, until then take care and good luck with the neuro

tomorrow.

n

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" We are all normal, Just some of us have more bumps in our lives then

others "

[Guest guest]

Dave when I was your age, I too had to use crutches and canes. I always

had the adjustable ones and my friends used to change the settings and see

how long it would take me to notice. They always helped me get over my

insecurities, mostly with silliness and laughter. I haven't had to use such

in many years except for after surgery. I hope your days will come soon

also. Your such a kind and caring person and I wish you well with your

testing. Till soon, Melt

Re: Re: Dave

I know it

> doesn't matter. I just sometimes feel embarassed about using it at 20

alsmost

> 21 but it helps and I have a nice modern one too. I will let you know what

happens tomorow friend. I hope your not in that much pain tonite!! Take

> care and be well. we;ll talk soon. Have a nice Nite!! Sincerely -----Dave,

[Guest guest]

Hey there Dave. We have missed you too. I'm sorry to hear your still

having such a rough time. How are the family? Just wanted to say hi and

the best of luck in Cleveland. Thinking of you, Melt

----- Original Message -----

From: <wave678@...>

> This is Dave. And I have

> Stills really bad. Right now I have a severe flare. I'm going to The

> cleveland clinic in 3 weeks to see another Rheumy!!. Well take care and BE

> PAIN FREE!!!!! I hope you feel better. -------Dave

[Guest guest]

>>>>>> I am wondering if any of the remedies Baschetti uses does help

to reverse the process..Licorice or cortisol?<<<<<<

No.

>>>>>>Do you consider yourself cured?<<<<<<

No.

>>>>>>I know that you still use supplements.Have you decreased your

supplements in time or do you have to use them at almost the same

dosage whole your life?Do you think you will be able to stop them

some day?If you have been able to decrease your supplements than I

would conclude that this therapy does help to control HPA axis

malfunction. Other wise I would think that this is a supplementary

therapy.Hope I have clearly expressed myself.Will be glad if you can

clear that out for me.<<<<<<

I don't use supplements anymore other than occassional magnesium and

calcium and molybedeum. I think the supplements might have helped

but in hindsight I can't say for sure. Supplements are a personal

issue -- they'll help you if you need them.

>>>In my HO these are two different illnesses. Adrenal weakness is

result of CFS but not all people who have exhausted adrenals have

CFS. Adrenal weakness may happen due to extreme stress. In that case

normal people can recover by naturally increasing their resting

times.<<<<

>>>>>>>No....in my opinion the problem is due to malfunction in the

H/P/A axis. Maybe from cellular damage from which we will never

recover.<<<<<<

Dave

[Guest guest]

Dave, Im going to try and find the article that found a while back

for you, has your doc added mtx to the mix? Are you taking any prednisone

also? If I remember correctly you had taken pred in the beginning and

already had osteopenia set in? or maybe that was someone else. Im really

sorry that the biologics dont seem to be working. Please be careful with

the oxycontin. Your body may eventually become dependent on it. However I

do realize that your pain is severe enough that you require oxy just to

function. Oxy is a great med for pain and when taken correctly and short

term there are usually no problems. The dependence comes in with long term

use and when used as a street drug by crushing it up. Oxy is almost

identical in chemical properties to Heroin, and in reality it is just as

addictive as heroin, some even refer to oxy as " legal heroin " .

Vicodin also seems to have a higher potential for abuse when comparing it to

Darvocet.

I will send you that article soon. I dont know if the tests are available

yet but Im sure your doc will know, Im glad that you have a great rheumy, I

have read alot of his works and he definitly understands stills better than

most.

GO DAWGS !!!!!

[Guest guest]

Dave,

I am truly sorry to hear that you are going through such a battle too and I

hear " your pain and feel it as well. I know the feeling of depression all

too well lately. I hope that some of your pain will subside soon and that

the methotrexate and and Humira will be the right mix for you friend.

Thinking of you.

Love,Sue #2

-- Re: Sue

Hi Everyone It's Dave,

I hope my fellow stilligans are having a decent day and PAIN FREE DAY!!!

I'm not doing well at all myself. I'm in a severe Flare to the extreme. I'm

in excruciating pain which is constant but thank god for the Oxycontin!!!!!!

I just wished The Humira would kick in and I would be able to feel some what

better and I'm going to take my second MTX pillls for the 2nd week on

thursday. I'm just having a very bad Stills day with everything and very

depressed

today. Well I gotta go I wish everyone a anice evening and nite. And be PAIN

FREE!!!!

Sincerely --------D

[Guest guest]

Hi ,

It's Dave. How are you doing and my fellow stiligans today? I hope you guys

aren't in that much pain today. Yes, I'm still on Prednisione also and I have

Osteoporosis and osteoarthritis plus stills, and mixed connective tissue dz. I

know that Oxycontin is addictive but I'm not too concerned about it because I

know i'm not going to get addicted to it. It works wonders for me and takes

away my pain and my Doctor knows it's very addictive but he;'s not that

concerned right now and know i'm not go to get addicted to it. For the present

time I

need it. I'm in excruciating constant pain. I'm hoping the Humira and the

Methotrexate will kick in very soon Thats what I'm hoping for Desperatly(sp) and

put the dragon to sleep for a long while!!!

from the Stills. Well I gotta split take care and try to be PAIN FREE!!!!!!

you are in my thoughts and prayers everyone and jennifer thanx for your kind

thoughts too

Sincerely Dave in South Fla.

[Guest guest]

Hi Sue # 2

It's Dave. How are you doing and feeling today? I wanted to thankyou very

much for your kind and sincere thoughts about me. I Greatly appreciate it. I

really hope my two " cocktails " will do the trick and to get me better. Right

now

I'm not doing well at all as you know. Thank you again for your Sincere

thoughts about me. Take care and try to be PAIN FREE!!!

Sincerely ----D

[Guest guest]

Hi Caroline,

It's Dave. How are you doing and feeling today? My Rheumy DEFFINATLEY (SP)

knows I have STILLS to the extreme I also have Osteoarthritis and Mixed

Connective Tissue dz. I was Tested for everything I had a bone marrow biopsy,

muscle

biopsy, I had a Synovialectomy, I have Stills severely to the extreme. My

Rheumy just added MTX to my " cocktail " with the Humira. Kineret and Enbrel

didn't

do anything for me at all. And also Oxycontin because I'm in severe

excruciating pain. So i was switched to Humira and now I'm going to be taking my

second

dose of MTX tomorow. It's absolutly Stills and MCTissue dz. and osteoarthritis

in my right shoulder I can barely lift it up and my arm aslo. My FEVERS are

also very high too 103.8- then they'll drop to about 99.3-99.8 I'm on Naprosyn

to bring them down also. plus Prednisone too. Well I gotta go take care and be

PAIN FREE!!!

Sincerely -----D

[Guest guest]

I for got to tell you I also see a Neurologist too. Take care and Try to have

a PAIN FREE NIGHT!!!~~~~D

[Guest guest]

Dear Marilyn,

Thank you so much for you response back to me. I greatly appreciate it. I will be checking those cites I hope are doing ok and not in that much pain. Thanx again for your kind response back to me. Take care--- and be PAIN FREE!!!!!!!!!

p.s. ONE DAY WE WILL SLAUGHTER THIS HORRIBLE DRAGON!!!!!!!!!!

[Guest guest]

Hi Dave,

How is it going today? Felt the need to pop in and check on you.

Let us know ok?

, G.otF.M.

[Guest guest]

Dearest Dave,

I read your letter and "felt" your pain. I am sorry for not being there lately for you friend. I have had so many troubles here with health also, but I did indeed read yours, and I honestly can tell you that I know what you are going through. You are in NO WAY a baby. I am very independent, also friend, and I do have to have my mom help me dress or help with anything that I need, and I have had her cut my meat, cut an apple, butter toast for me...etc. That's called LOVE, and thank goodness that you have someone so special to help you and care about you. Oh Dave, if I could do anything for you, believe me...I would. Please stay with us, and if you are able to sit up and type..please talk and "vent" it all out. It really does you good, and to have people care about you so much, is a blessing. Feel the love from your family and friends, and your second family here. We are all here beside you, and going through it with you. I am glad that you are off to the Clinic this week, and hopefully you will find some relief and some answers. I am sorry that I cannot type longer right now . I just went through some surgery, and I am not able to sit up too long yet, but please know that I am thinking of you and I really do care. Please be well and don't be too hard on yourself.

Love, Sue #2

-- Re: A definate answer on the flu shot debate

Hi To All My Fellow Stilligans This Evening, This is Dave. I hope all my stillligans friends aren't in a bad way tonight. I hope the Dragon dosen't have anybody in his grips lately. Like me he's holding on very tight and not letting me go. I'm doing very poorly and getting worse day by day. Some of you know that I'm going to the Cleveland Clinic in Florida This coming Tuesday. to see a specialized Neurologist who specializes in All sorts of movement disorders and Neurological Auto-Immune diseases which My regular neurologist and my Rheumy think I might have a disorder like that. If I do It's called "Stiff Man Syndrome" It's like a Neuro Auto-Immune disease. It progresses very slowly. It attacks your muscle and you get severe to the extreme PAINFULLLLLL Muscle Spasms. I really hope I don't have it. I don't need anything else. I already have Stills and Psoriatic Arthritis too. I'm 21 yrs old and My parents have to help me do everything help me get dressed puting on clothing. and cutting up my food for me. I don't mean to sound like a baby because I'm not I swear. I can't even butter or cut a bagel or toast I'm getting worse every day. I saw my Rheumy last Monday and he agreed with me that he told my mom and my self that I'm doing very extremely poorly and getting worse. I'm 21 and I use a cane. I f I get much worse I'm going to have to use a wheel chair. I hope that dosen't come to that scinario. The folowing week I have to go back to Cleveland clinic to see a Hand Surgeon I have a severly humungios(sp) Ganglion fluid filled cyst on my left hand which is so painful. My rheumy also told me that most likely it has to be Surgically removed. I've had it with all this shit exuse my language. Also because I'm in chronic excruciating pain non stop constant and my Oxycontin 80 mg's a day is not helping me anymore and it's wearing off sooner than it's soposed to. I'm in pain now just typing on the key board. So My Rheumy is sending me to a Pain Specialist. This Doctor specializes in severe constant chronic pain from these Diseases. He's not a Anestesiaologist pain doc. He is a specialized Neurologist Pain specialist I'm not going for Neurology I'm being sent to him for he expertise in Pain managemaent for what I have. He's just a Pain spec! ialist. I might need to go on a Morphine/Fentynal patch or maybe he will increase my "OXY" But I know he's going to help me. When I saw my rheumy last week he told my mom and myself to just hang on for a few more months and things should turn the corner hopefully. He said that to give Humira another 2 months if no better when I see him for a follow up in March then he's going to add The Methotrexate Injection with the Humira every other week and start the MTX injections. So I just have to wait. Well, enogh with me sorry for going on and on I sincerely appologize to all of you. My PCP gave me a Flu and Pnemonia shot and I had to stop my Humira for 3 weeks. I'm now back on it. Well I wish everybody a PAIN FREE NIGHT and UPCOMMING week!!!!! Take care guy's. Friends, if some of you like me are experiencing a fight with the dragon I only wish you a PAIN FREe night and I hope you feel better . Sincerely, Dave, p.s. I appologize for going on and on. I wish I was DEAD!!!!!! I'm so depressed. I'm sorry for venting out. Thank you all of you --------D Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.