Prayers Please

[Guest guest]

In a message dated 8/22/05 8:57:19 AM Central Daylight Time, ajaoky@... writes:

This brings to mind a question...am I the only one that dreads a trip to the ER BECAUSE the poor docs are so fumbled by our dx's????

has only been to the ER once and that was when he was still on steroids,massive doses of Ibuprofen and maxed out on MTX and Plaquenil.He got realy lethargic and would sleep for a few hours and wake up crying that his head hurt.It eventualy turned to screaming and his rheumy recommended taking him to the ER after several hours of sleeping and waking up briefly that his head hurt.No other symptoms what so ever at all!

I had to wake him to get him in the car,I had to wake him to get him in the ER,I had to wake him to get weighed in and do history.Thats when he just puked all over the place.Ah ha migraine.He was konked out on the exam table and I had to wake him when the doc came in.Only a 100.5 temp but now right out of the blue his nose is full of thick green goo.Diagnosis sinus infection and the puny little low grade temp is causing the lethragy.The doc was realy nice but couldn't comprehend how the steroids could mask symptoms until they became so severe,duh read up on steroids.

Duiring his history I told them he had systemic JRA,they didn't know what the JRA stood for but once I told them they acted like they heard of it.Who knows,hearing about it and knowing and understanding are two differant things.

s little friend also systemic decided to eat a Christmas tree bulb at age 2 almost 3.Mom got all the glass out of her mouth and took her to the same ER.I can understand why they would want a CBC but I doubt she would be bleeding internaly within 30 minuites.Mom was tramatized and swore that little want to be doctor just wanted to know what the labs of a systemic JRA kid looked like.

Hugs

Becki and 7 systemic

[Guest guest]

Sorry the kiddo's are both feeling lousy and such a bummer about the

additional stress with the broken car...Prayers for Miss Violets

quick recovery and return home!

(aundrea 11 systemic jra/gerd)-

-- In , " Grant & Jo " <joking70@...> wrote:

>

> Please, if you do so, could you please drop in a prayer for our

little ones?

> Miss Violet is in hospital on a drip, after she and Bayly got that

dreadful

> vomiting/gastro bug.

> Bay is getting over it, Violet got dehydrated. Jo and Vi spent the

night at

> the hospital, with bonus ambulance ride, and we are waiting to see

whether

> Miss V is well enough to come home, or if they're in for another

night.

> Oh, and Jo's car died on the way to hospital. We are not having

fun.

> Hope everyone else is faring better!

> Us in Newy

>

> http://www.kidsgetarthritistoo.org.au

>

[Guest guest]

Our prayers are with you. Will pray for Miss V to get to come home soon and

that Bayley will not have any setbacks from this as well. Also prayers for Jo

as she is with Miss V at the hospital. I know how hard it is to have one baby

in the hospital with others at home.

Veri & jaye 12 poly

[Guest guest]

Most definitely...we will say an extra prayer for all to feel much better

real soon....Hugs to all!

Donna

[Guest guest]

Jo:

We are sending happy, healthy thoughts your way along with soft, gentle hugs.

Hope everyone is better and back home soon! Bummer about the car...my van died

this week too, luckily hubby had taken to work that day. Maybe next time he'll

pay more attention when I tell him something is wrong with it.

Beth

Grant & Jo <joking70@...> wrote:

Please, if you do so, could you please drop in a prayer for our little

ones?

Miss Violet is in hospital on a drip, after she and Bayly got that dreadful

vomiting/gastro bug.

Bay is getting over it, Violet got dehydrated. Jo and Vi spent the night at

the hospital, with bonus ambulance ride, and we are waiting to see whether

Miss V is well enough to come home, or if they're in for another night.

Oh, and Jo's car died on the way to hospital. We are not having fun.

Hope everyone else is faring better!

Us in Newy

http://www.kidsgetarthritistoo.org.au

[Guest guest]

Donna, I am so sorry to hear about your dad's fall. Will keep him and all

of you in my thoughts and prayers. Please let us know how he is when you get

a moment.

Take care.

Patty

[Guest guest]

Donna-

Your dad is in our prayers.

The Bornscheuers

[Guest guest]

Hi everyone,coming to please ask for thoughts and prayers for .....she had her niece come get me at midnight last night, which was a big deal b/c I just had surgery and was all hooked up to my "ice machine" ... proceeded to show me a round, red, raised area on her upper thigh, not looking like a bug bite, and much larger. Between her cvid (genetic immune deficiency), and the mtx and Enbrel having the ability to further suppress her immune system, and seeing stories in the media, my worry button switched on, so I phoned our nurse advice line - they said if it was 2" x 2" or she had a fever, she needed to go to ER at once...couldn't find thermometer (of course) but it measured 1.5 x 1.5, so nurse go to urgent care first thing in a.m. This morning, had 4 spots, 2 on her thigh, one on her back, one on her opposite shoulder. The bigger one was now bigger. At Urgent Care, she had a fever and by the

time the dr came in all spots were increased in size again. Dr says it is cellulitis. He gave her a shot of Rocephin, and oral Cefazolin (I don't know either of these antibiotics), circled all areas and said if they increase at all, or if her temp increases, take her to the ER immediately - even if things go okay, bring her back tomorrow for another shot of antibiotics.How do you get cellulitis? Her rheumy (per phone) questioned that it was cellulitis as "it is unusual to get cellulitis from an injection site rxn" but I kept trying to tell her it could not be anyway, because she did not even inject herself on that leg this week, and there are 4 sites...(sometimes she does not listen!) There was no evident break in her skin, no bug bites he could see, and the areas were so removed from one another! This seemed to just appear, but the dr we saw seemed very certain and concerned that it was cellulitis. I don't know how else to explain why she also

has a fever....Most important to me, thanks you for any prayers for ...I would really appreciate it. (, 17, poly, cvid, migraines) __________________________________________________

[Guest guest]

Hugs ....

That doesn't sound like cellulitis being that the area is no where near the injection site or any other skin injury! Grrr, I hate when doctors dismiss things and just come up with something that doesn't make sense??? I dont know.... I surely hope that things work out and that this will go away or be diagnosed properly if it isn't cellulitis.

Definately thinking/praying for you all.

Issadora

On Sat, Apr 12, 2008 at 6:18 PM, nancy barnes <nancyb315@...> wrote:

Hi everyone,coming to please ask for thoughts and prayers for .....she had her niece come get me at midnight last night, which was a big deal b/c I just had surgery and was all hooked up to my " ice machine " ... proceeded to show me a round, red, raised area on her upper thigh, not looking like a bug bite, and much larger. Between her cvid (genetic immune deficiency), and the mtx and Enbrel having the ability to further suppress her immune system, and seeing stories in the media, my worry button switched on, so I phoned our nurse advice line - they said if it was 2 " x 2 " or she had a fever, she needed to go to ER at once...couldn't find thermometer (of course) but it measured 1.5 x 1.5, so nurse go to urgent care first thing in a.m.

This morning, had 4 spots, 2 on her thigh, one on her back, one on her opposite shoulder. The bigger one was now bigger. At Urgent Care, she had a fever and by the time the dr came in all spots were increased in size again. Dr says it is cellulitis. He gave her a shot of Rocephin, and oral Cefazolin (I don't know either of these antibiotics), circled all areas and said if they increase at all, or if her temp increases, take her to the ER immediately - even if things go okay, bring her back tomorrow for another shot of antibiotics.

How do you get cellulitis? Her rheumy (per phone) questioned that it was cellulitis as " it is unusual to get cellulitis from an injection site rxn " but I kept trying to tell her it could not be anyway, because she did not even inject herself on that leg this week, and there are 4 sites...(sometimes she does not listen!) There was no evident break in her skin, no bug bites he could see, and the areas were so removed from one another! This seemed to just appear, but the dr we saw seemed very certain and concerned that it was cellulitis. I don't know how else to explain why she also has a fever....

Most important to me, thanks you for any prayers for ...I would really appreciate it. (, 17, poly, cvid, migraines)

__________________________________________________

[Guest guest]

Ohhhh, , that sounds terrible. And suspicious diagnosis. If you have any doubt at all take her to the ER. I hope that things turn around soon and she gets to feeling better. Please, update us when you can.

Hugs and prayers, and Rob 18 JAS Re: Prayers please > Hugs ....> > That doesn't sound like cellulitis being that the area is no > where near the> injection site or any other skin injury! Grrr, I hate when > doctors dismiss> things and just come up with something that doesn't make > sense??? I dont> know.... I surely hope that things work out and that this will > go away or be> diagnosed properly if it isn't cellulitis.> > Definately thinking/praying for you all.> > Issadora> > On Sat, Apr 12, 2008 at 6:18 PM, nancy barnes > <nancyb315@...> wrote:> > > Hi everyone,> >> > coming to please ask for thoughts and prayers for .....> >> > she had her niece come get me at midnight last night, which > was a big deal> > b/c I just had surgery and was all hooked up to my "ice > machine" ...> > proceeded to show me a round, red, raised area on her upper > thigh, not> > looking like a bug bite, and much larger. Between her > cvid (genetic immune> > deficiency), and the mtx and Enbrel having the ability to > further suppress> > her immune system, and seeing stories in the media, my worry button> > switched on, so I phoned our nurse advice line - they said if > it was 2" x 2"> > or she had a fever, she needed to go to ER at once...couldn't find> > thermometer (of course) but it measured 1.5 x 1.5, so nurse go > to urgent> > care first thing in a.m.> >> > This morning, had 4 spots, 2 on her thigh, one on her > back, one on> > her opposite shoulder. The bigger one was now > bigger. At Urgent Care, she> > had a fever and by the time the dr came in all spots were > increased in size> > again. Dr says it is cellulitis. He gave her a > shot of Rocephin, and oral> > Cefazolin (I don't know either of these antibiotics), circled > all areas and> > said if they increase at all, or if her temp increases, take > her to the ER> > immediately - even if things go okay, bring her back tomorrow > for another> > shot of antibiotics.> >> > How do you get cellulitis? Her rheumy (per phone) questioned > that it was> > cellulitis as "it is unusual to get cellulitis from an > injection site rxn"> > but I kept trying to tell her it could not be anyway, because > she did not> > even inject herself on that leg this week, and there are 4> > sites...(sometimes she does not listen!) There was no evident > break in her> > skin, no bug bites he could see, and the areas were so removed > from one> > another! This seemed to just appear, but the dr we saw seemed > very certain> > and concerned that it was cellulitis. I don't know how > else to explain why> > she also has a fever....> >> > Most important to me, thanks you for any prayers for > ...I would> > really appreciate it.> >> > (, 17, poly, cvid, migraines)> >> >> >> >> >> > __________________________________________________> >

[Guest guest]

Hi Issadora,well, after the trip to Urgent care, the red areas began to get centers, looking like they could be mosquito bites (and she had been on the grass at her sisters, but, with long pants on...?) She hasn't reacted to mosquito bites since she was 5. But, the large one had definitely spread beyond the circle the urgent care dr had drawn - so, per his instructions, we were off to the ER....ugh....First ER dr suspected allergic rxn....gave her an injection of Benadryl, and a different antibiotic, then, they observed her ...drs change of shift...new dr said definitely not an allergic rxn b/c zero reduction in swelling and redness and he absolutely agrees with the Urgent care dr - no doubt it IS cellulitis, probably started by the tiniest little bite she wasn't even aware of, and within hours, there's a problem. (The other three were "bites" as they

got smaller with inject of Benadryl).Meanwhile, she is off Enbrel and mtx until this is all cleared. We are to watch very closely for changes and return if any changes in fever, color, size, swelling, etc. It's a little bigger today - not dramatically - it's so confusing when one dr is an "alarmist", and one is serious, but calm and cool-headed...so, we will watch it through-out the day til Urgent care closes (do NOT want to expose her to ER again) and hope to avoid the IV antibiotics. Thanks for listening, Issadora, and especially for the prayers. I think the immune system part is what makes me most nervous for her, and I would imagine some of the other mothers can relate...I know she needs the Enbrel, and it is really helping, which is wonderful, but I do get anxious about how it affects her already weak immune system.There I go rambling....sorry....How is your wrist doing? Any closer to getting

an appt? I never did hear back if you have any chance of seeing an orthopedist, did you ever receive that e-mail from me?Well, I've gone on long enough. Hope you have a beautiful day - this So Cal weather we are having is like summer!Take care,Issadora <FlyfreeIzzie@...> wrote: Hugs .... That doesn't sound like cellulitis being that the area is no where near the injection site or any other skin injury! Grrr, I hate when doctors dismiss things and just come up with

something that doesn't make sense??? I dont know.... I surely hope that things work out and that this will go away or be diagnosed properly if it isn't cellulitis. Definately thinking/praying for you all. Issadora On Sat, Apr 12, 2008 at 6:18 PM, nancy barnes <nancyb315 > wrote: Hi everyone,coming to please ask for thoughts and prayers for .....she had her niece come get me at midnight last night, which was a big deal b/c I just had surgery and was all hooked up to my "ice machine" ... proceeded to show me a round, red, raised area on her upper thigh, not looking like a bug bite, and much larger. Between her cvid (genetic immune deficiency),

and the mtx and Enbrel having the ability to further suppress her immune system, and seeing stories in the media, my worry button switched on, so I phoned our nurse advice line - they said if it was 2" x 2" or she had a fever, she needed to go to ER at once...couldn't find thermometer (of course) but it measured 1.5 x 1.5, so nurse go to urgent care first thing in a.m. This morning, had 4 spots, 2 on her thigh, one on her back, one on her opposite shoulder. The bigger one was now bigger. At Urgent Care, she had a fever and by the time the dr came in all spots were increased in size again. Dr says it is cellulitis. He gave her a shot of Rocephin, and oral Cefazolin (I don't know either of these antibiotics), circled all areas and said if they increase at all, or if her temp increases, take her to the ER immediately - even if things go okay, bring her back tomorrow for another shot of antibiotics. How do

you get cellulitis? Her rheumy (per phone) questioned that it was cellulitis as "it is unusual to get cellulitis from an injection site rxn" but I kept trying to tell her it could not be anyway, because she did not even inject herself on that leg this week, and there are 4 sites...(sometimes she does not listen!) There was no evident break in her skin, no bug bites he could see, and the areas were so removed from one another! This seemed to just appear, but the dr we saw seemed very certain and concerned that it was cellulitis. I don't know how else to explain why she also has a fever.... Most important to me, thanks you for any prayers for ...I would really appreciate it. (, 17, poly, cvid, migraines) __________________________________________________

[Guest guest]

,

My son had a strange bout with cellulitis several years ago. It was

around his eye. It came on very suddenly. He had a severe headache

and around his eye was swollen and red. He was hospitalized for a

couple of days and treated with IV rochephin. (this is a strong

antibiotic) he was sent home with I believe the same oral antibiotic

that you mentioned.

Take back to the doc on Monday so that thay they can run some

labs and make sure that they are kicking this infection to the curb.

P.S. If the size of the " spots " increases overnight or her fever

continues then I would suggest returning to the ER tonight.

Give us an update when you can.

(Aundrea 12 fibromyalgia)-

-- In , nancy barnes <nancyb315@...> wrote:

>

> Hi everyone,

>

> coming to please ask for thoughts and prayers for .....

>

> she had her niece come get me at midnight last night, which was a

big deal b/c I just had surgery and was all hooked up to my " ice

machine " ... proceeded to show me a round, red, raised area on

her upper thigh, not looking like a bug bite, and much larger.

Between her cvid (genetic immune deficiency), and the mtx and Enbrel

having the ability to further suppress her immune system, and seeing

stories in the media, my worry button switched on, so I phoned our

nurse advice line - they said if it was 2 " x 2 " or she had a fever,

she needed to go to ER at once...couldn't find thermometer (of

course) but it measured 1.5 x 1.5, so nurse go to urgent care first

thing in a.m.

>

> This morning, had 4 spots, 2 on her thigh, one on her back,

one on her opposite shoulder. The bigger one was now bigger. At

Urgent Care, she had a fever and by the time the dr came in all spots

were increased in size again. Dr says it is cellulitis. He gave her

a shot of Rocephin, and oral Cefazolin (I don't know either of these

antibiotics), circled all areas and said if they increase at all, or

if her temp increases, take her to the ER immediately - even if

things go okay, bring her back tomorrow for another shot of

antibiotics.

>

> How do you get cellulitis? Her rheumy (per phone) questioned that

it was cellulitis as " it is unusual to get cellulitis from an

injection site rxn " but I kept trying to tell her it could not be

anyway, because she did not even inject herself on that leg this

week, and there are 4 sites...(sometimes she does not listen!) There

was no evident break in her skin, no bug bites he could see, and the

areas were so removed from one another! This seemed to just appear,

but the dr we saw seemed very certain and concerned that it was

cellulitis. I don't know how else to explain why she also has a

fever....

>

> Most important to me, thanks you for any prayers for ...I

would really appreciate it.

>

> (, 17, poly, cvid, migraines)

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

keeping you and in prayer. Cellulitis can be triggered by just the smallest bug bite that you might not even know you have. Since her immune is low anyway I would not be real surprised. The antibiotic they have her on is very strong and hopefully that will get rid of it. If her fever goes up or the area spreads, though I would get her back in right away.

Keep us posted.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

Re: Prayers please

Hi everyone,coming to please ask for thoughts and prayers for .....she had her niece come get me at midnight last night, which was a big deal b/c I just had surgery and was all hooked up to my "ice machine" ... proceeded to show me a round, red, raised area on her upper thigh, not looking like a bug bite, and much larger. Between her cvid (genetic immune deficiency), and the mtx and Enbrel having the ability to further suppress her immune system, and seeing stories in the media, my worry button switched on, so I phoned our nurse advice line - they said if it was 2" x 2" or she had a fever, she needed to go to ER at once...couldn' t find thermometer (of course) but it measured 1.5 x 1.5, so nurse go to urgent care first thing in a.m. This morning, had 4 spots, 2 on her thigh, one on her back, one on her opposite shoulder. The bigger one was now bigger. At Urgent Care, she

had a fever and by the time the dr came in all spots were increased in size again. Dr says it is cellulitis. He gave her a shot of Rocephin, and oral Cefazolin (I don't know either of these antibiotics) , circled all areas and said if they increase at all, or if her temp increases, take her to the ER immediately - even if things go okay, bring her back tomorrow for another shot of antibiotics.How do you get cellulitis? Her rheumy (per phone) questioned that it was cellulitis as "it is unusual to get cellulitis from an injection site rxn" but I kept trying to tell her it could not be anyway, because she did not even inject herself on that leg this week, and there are 4 sites...(sometimes she does not listen!) There was no evident break in her skin, no bug bites he could see, and the areas were so removed from one another! This seemed to just appear, but the dr we saw seemed very certain and concerned that it was cellulitis. I

don't know how else to explain why she also has a fever....Most important to me, thanks you for any prayers for ...I would really appreciate it. (, 17, poly, cvid, migraines)

____________ _________ _________ _________ _________ __

[Guest guest]

Lots of prayers for Miss Holly at our house.  Our thoughts are with Holly and

n for relief and better days.

&

From: ajaoky@... <ajaoky@...>

Subject: prayers PLEASE

Date: Wednesday, July 23, 2008, 3:03 PM

Hey guys I just wanted to send a quick email. Last night I spoke to

ajaomom

from this list and Holly is not doing well. After recouping from the port being

put in, she did have her first infusion. It went well however the arthritis

is not letting up at all and Holly has been admitted to the hospital for pain,

OT and PT. Please say a prayer that she feels better soon...

Dang this darn disease!!!!! !!!!!!!!

Donna<BR><BR> <BR>***** ********* <BR>Get fantasy football with free live

scoring. Sign up for

FanHouse Fantasy Football today.<BR>

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)</HTML>

[Guest guest]

Big hugs and prayers coming from Iowa to Holly!

Sometimes this disease really just is not fair!

Diane and Maggie age 11 (OI,CP,systemic JIA,Uveitis,PIDD)

> From: ajaoky@... <ajaoky@...>

> Subject: prayers PLEASE

>

> Date: Wednesday, July 23, 2008, 10:03 PM

> Hey guys I just wanted to send a quick email. Last night I

> spoke to ajaomom

> from this list and Holly is not doing well. After recouping

> from the port being

> put in, she did have her first infusion. It went well

> however the arthritis

> is not letting up at all and Holly has been admitted to the

> hospital for pain,

> OT and PT. Please say a prayer that she feels better

> soon...

> Dang this darn disease!!!!!!!!!!!!!

> Donna<BR><BR><BR>**************<BR>Get

> fantasy football with free live scoring. Sign up for

> FanHouse Fantasy Football today.<BR>

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)</HTML>

>

>

>

[Guest guest]

Donna:

Please give n & Holly our best wishes.  We will keep her prayer and hope

for better days ahead.  Please keep us posted.

Beth & Hannah

 

Sending prayers & happy thoughts,

Beth

prayers PLEASE

Hey guys I just wanted to send a quick email. Last night I spoke to ajaomom

from this list and Holly is not doing well. After recouping from the port being

put in, she did have her first infusion. It went well however the arthritis

is not letting up at all and Holly has been admitted to the hospital for pain,

OT and PT. Please say a prayer that she feels better soon...

Dang this darn disease!!!!! !!!!!!!!

Donna<BR><BR> <BR>***** ********* <BR>Get fantasy football with free live

scoring. Sign up for

FanHouse Fantasy Football today.<BR>

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)</HTML>

[Guest guest]

Thanks for the update Donna. Lots of hugs and prayers for Miss Holly,

Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of ajaoky@...

Sent: Wednesday, July 23, 2008 5:03 PM

Subject: prayers PLEASE

Hey guys I just wanted to send a quick email. Last night I spoke to

ajaomom

from this list and Holly is not doing well. After recouping from the

port being

put in, she did have her first infusion. It went well however the

arthritis

is not letting up at all and Holly has been admitted to the hospital for

pain,

OT and PT. Please say a prayer that she feels better soon...

Dang this darn disease!!!!!!!!!!!!!

Donna<BR><BR><BR>**************<BR>Get fantasy football with free live

scoring. Sign up for

FanHouse Fantasy Football today.<BR>

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020

<http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020>

)</HTML>

[Guest guest]

Jo,

I have not heard more about n and Holly.

Robbin

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

Any more on our little mate Miss Holly?

Still sending big hugs to all- n, and too!!

Jo

Bayly, 6, extended oligo

>

> Hey guys I just wanted to send a quick email. Last night I spoke to

ajaomom > from this list and Holly is not doing well. After recouping

from the port being > put in, she did have her first infusion. It went

well however the arthritis > is not letting up at all and Holly has

been admitted to the hospital for pain, > OT and PT. Please say a

prayer that she feels better soon...

> Dang this darn disease!!!!!!!!!!!!!

> Donna<BR><BR><BR>*************

[Guest guest]

Barb..

My prayers and thoughts are with you. I wish you the best of luck.

DM

Date: Friday, May 29, 2009, 7:19 PM

I found out today that I have to have another tethered cord surgery on an

emergency basis likely on Tuesday. I see the neurosurgeon on Monday and

they told me to come ready to check into the hospital and the surgery will

likely be Tuesday morning. The first one I had was so horrid I said I would

never do it again, I guess never say never when you want to continue to have

function of your legs, bladder and bowels.

God bless all of you.

Barb

**************We found the real ‘Hotel California’ and the ‘Seinfeld’

diner. What will you find? Explore WhereItsAt.com.

(http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/Youve-Fo\

und-Where-Its-At?ncid=eml

cntnew00000007)

[Guest guest]

Val:

That is so very sad.  Prayers going up for the family.

 

Beth & Hannah, 12, OA, HMJS, vit d deficiency, asthma

" We can't direct the wind, but we can adjust our sails " -author unknown

________________________________

From: " carneyval@... " <carneyval@...>

Sent: Tuesday, June 30, 2009 8:05:19 AM

Subject: Prayers please

Hi guys -

Just a quick note to request prayers for the family of a brave six year old

friend who lost her battle with bone cancer last Thursday.? and I have

known Rebekah and her?family for years - through cub scouts and now boy scouts.

(One of her brothers has JRA - and has been doing terrific.) Sadly, Rebekah lost

her battle while at Disney - a Make a Wish Foundation wish. Her family needs all

the prayers you can send? - both to cope with the tragic loss of life, but to

overcome the unbelievable hospital and medical bills. Thanks,

Val

Rob's Mom (11, systemic)

[Guest guest]

Hi Val!

How sad. I will add the family to my prayer list.

How are you and Robby?

Donna