Re: xolair and Sublingual Allergy Immunotherapy ???

[Guest guest]

I haven't tried it with the Xolair, but before the Xolair it resulted

in an anaphalactic reaction which i had only gotten before with

shellfish, nuts, and certain antibiotics.

>

> not to go off the beaten path here, but...

>

> i went to an ENT as a followup on my sleep study (what qualifies

an ENT as a sleep specialist i'll never understand). i won't bore you

with the details (trust me, you'll thank me - end result - diagnosis -

insomnia - DUH!!!) but he asked me if i had done allergy shots. i

told him my experience with reactions (throat/tongue swelling, SOB..)

after shots with even the most minute dilutions, and told him that's

when we started the xolair process....he starts blabbing that xolair

doesn't fix the problem, it simply puts a band aid on it (i informed

him that this was the best band aid then -- b/c it gave me my life

back - i'm the healthiest i've ever been since i was a toddler!!!!).

>

> he asked if i tried Sublingual Allergy Immunotherapy -- said it

has no reports of anaph. reactions and all...i'm quite happy with my

xolair and don't wish to add anything else to my plate, so to speak.

he said he'd call my allergist about it, which just thrills me

(rolling my eyes!!). anyhoo, i was wondering if anyone here does

xolair AND Sublingual Allergy Immunotherapy?

>

> thanks,

>

> heather

>

>

> ---------------------------------

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>

>

[Guest guest]

With all due respect to your ENT, one needs to remember that when you

have an open wound, a bandaid may be just what is called for.

Those of us with asthma and allergies at a level that even qualifies

for use of Xolair at this stage of the game are like a patient

standing there with an open, gaping wound. One has to to something to

close the wound, i.e. to get us breathing and get our IgE in a stable

range before one can think of other healing interventions. Maybe

experimenting with immunotherapy when your allergy specialist thinks

it's worth the risk to your health to try again, but not before then.

I know for me it became a matter of being so allergic to so many

things that my body was continually bombarded by allergens.

Immunotherapy was just the straw that broke the camel's back - adding

more stress to an overtaxed system. There could be a time when it will

work in the future now that my body has calmed down. But first, I want

to lose weight and get in shape.

I'm sure your ENT had your best interests at heart, but it is

continuing evidence to me that many doctors don't understand the

severity of the disease that Xolair was designed to treat. I read a

recent article that argued for classifying asthma into several

different diseases because of this problem. People like us would then

no longer be classified alongside the folks who need an occasional

puff on an inhaler when running. It's not that they don't need meds,

but they're not going to end up in intensive care when smelling

someone's perfume on the bus.

BTW, one of the best pre-Xolair interventions I underwent was the

discovery I had sleep apnea and getting a CPAP. It really helped me

get a good night's sleep. One happy side effect is that I get to

directly breathe HEPA filtered air every night. So your ENT found no

apnea contributing to your insomnia?

Peace and Joy in the Holidays, and, as always, breathe easy!

--Kitty

>

> not to go off the beaten path here, but...

>

> i went to an ENT as a followup on my sleep study (what qualifies

an ENT as a sleep specialist i'll never understand). i won't bore you

with the details (trust me, you'll thank me - end result - diagnosis -

insomnia - DUH!!!) but he asked me if i had done allergy shots. i told

him my experience with reactions (throat/tongue swelling, SOB..) after

shots with even the most minute dilutions, and told him that's when we

started the xolair process....he starts blabbing that xolair doesn't

fix the problem, it simply puts a band aid on it (i informed him that

this was the best band aid then -- b/c it gave me my life back - i'm

the healthiest i've ever been since i was a toddler!!!!).

>

> he asked if i tried Sublingual Allergy Immunotherapy -- said it

has no reports of anaph. reactions and all...i'm quite happy with my

xolair and don't wish to add anything else to my plate, so to speak.

he said he'd call my allergist about it, which just thrills me

(rolling my eyes!!). anyhoo, i was wondering if anyone here does

xolair AND Sublingual Allergy Immunotherapy?

>

> thanks,

>

> heather

>

>

> ---------------------------------

> Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

>

>