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Re:Alternative therapies

All I know is that Nov of 96 I needed a transplant and now I am on the

inactive list.

My secrets? Good health care providors, a healthy life-style (remove

stress too) Milk Thistle, Selinium,Alpha Lipoic acid, lecithin and Vit

E. No heavy doses of any except Milk Thistle I take 450 mgs.

I avoid hard to digest foods (red meat,etc) ad i get my protein from

veggie sources. Lets cut out that coffee and cigarette too.

I still have cirrhoss, portal vein hypertension, enlarged spleen and

Esophageal Varicies. But I live a very normal life. I make long range

plans and have a great time in the summer.

Healthy Mental outlook- you are what you think. Get aggresive and

learn-knowledge is the first line of defense.

Everybody is dying-nuff said. God may have promised to heal bodies, but

He still said we are all going to die. I find solice in the

uncertainity.

-Gar

" ...I dream then ask why not "

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Re:Alternative therapies

All I know is that Nov of 96 I needed a transplant and now I am on the

inactive list.

My secrets? Good health care providors, a healthy life-style (remove

stress too) Milk Thistle, Selinium,Alpha Lipoic acid, lecithin and Vit

E. No heavy doses of any except Milk Thistle I take 450 mgs.

I avoid hard to digest foods (red meat,etc) ad i get my protein from

veggie sources. Lets cut out that coffee and cigarette too.

I still have cirrhoss, portal vein hypertension, enlarged spleen and

Esophageal Varicies. But I live a very normal life. I make long range

plans and have a great time in the summer.

Healthy Mental outlook- you are what you think. Get aggresive and

learn-knowledge is the first line of defense.

Everybody is dying-nuff said. God may have promised to heal bodies, but

He still said we are all going to die. I find solice in the

uncertainity.

-Gar

" ...I dream then ask why not "

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Re:Alternative therapies

All I know is that Nov of 96 I needed a transplant and now I am on the

inactive list.

My secrets? Good health care providors, a healthy life-style (remove

stress too) Milk Thistle, Selinium,Alpha Lipoic acid, lecithin and Vit

E. No heavy doses of any except Milk Thistle I take 450 mgs.

I avoid hard to digest foods (red meat,etc) ad i get my protein from

veggie sources. Lets cut out that coffee and cigarette too.

I still have cirrhoss, portal vein hypertension, enlarged spleen and

Esophageal Varicies. But I live a very normal life. I make long range

plans and have a great time in the summer.

Healthy Mental outlook- you are what you think. Get aggresive and

learn-knowledge is the first line of defense.

Everybody is dying-nuff said. God may have promised to heal bodies, but

He still said we are all going to die. I find solice in the

uncertainity.

-Gar

" ...I dream then ask why not "

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Re:Alternative therapies

All I know is that Nov of 96 I needed a transplant and now I am on the

inactive list.

My secrets? Good health care providors, a healthy life-style (remove

stress too) Milk Thistle, Selinium,Alpha Lipoic acid, lecithin and Vit

E. No heavy doses of any except Milk Thistle I take 450 mgs.

I avoid hard to digest foods (red meat,etc) ad i get my protein from

veggie sources. Lets cut out that coffee and cigarette too.

I still have cirrhoss, portal vein hypertension, enlarged spleen and

Esophageal Varicies. But I live a very normal life. I make long range

plans and have a great time in the summer.

Healthy Mental outlook- you are what you think. Get aggresive and

learn-knowledge is the first line of defense.

Everybody is dying-nuff said. God may have promised to heal bodies, but

He still said we are all going to die. I find solice in the

uncertainity.

-Gar

" ...I dream then ask why not "

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  • 2 weeks later...

MB:

My prayers go out to you for Nonni......didn't realize you had an elderly one

living with you too......as if you need the additional strain!! Making a

decision like that is never easy....my Dad, God bless him, is almost 87 and

still has his own apt. but I often think what would happen if he were

suddenly incapacitated!!

Thinking of you with a sick 10 yr. old home in bed (HIM, not me!)

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Donna:

Bless your heart........ does his thing in the a.m. adamantly REFUSES to

put his coat on while the school bus is outside waiting...and waiting...and

waiting....just when you're ready to literally SHOVE his butt out the door,

he suddenly decides he's gonna walk out all by himself and does a complete

turn around......everyone thinks he's just an angel.......but Mom knows

better!

One better than that.......we have a huge sectional sofa and he runs around

and around........no wonder we like the 3 Stooges......we LIVE it in our

house!!

Sherry, where the heck are you, by the way???

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Leah:

When I emailed that on line doc to ask about Risperdal, that Dr. Leshin, he

asked a Dr. Capone for his opinion........that's the one that said

Risperdal was relatively safe and that they use it all the time........the

side effect I am worried about is relatively rare, they said.

You're lucky if you are close enought to get Ashton to see him!!!!!

Take care,

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Leah:

When I emailed that on line doc to ask about Risperdal, that Dr. Leshin, he

asked a Dr. Capone for his opinion........that's the one that said

Risperdal was relatively safe and that they use it all the time........the

side effect I am worried about is relatively rare, they said.

You're lucky if you are close enought to get Ashton to see him!!!!!

Take care,

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>>>I know it seems like an unusual subject line, but I see PB likes the

>>>feel of pantyhose too. Whenever I wear pantyhose, rubs my legs

>>>constantly, if I let him. He loves the feel of pantyhose. I'm lucky we

>>>live in Hawaii, and I can go without and not be odd. Does anyone else's

>>>kids live the feel of pantyhose?

Loriann >>

Oh yea. Miss Maddie can't keep her hands off my legs when I'm in hose. She

also used to shove her hands down my shirt. I went through so many bras that

summer......LOL

Donna

<<<<<<<

HAHAHAHA! Glad to hear we're not alone. But then, these darlin's ARE

into tactile sensations! And Donna, I cracked up hearing your description

about Ms. Maddie's " Make Ma crazy " routine.

I was glad to read that at least a few of your angels will behave in church

even if not other places. And We're not the only ones who leave bigger

tips in order to compensate for the bigger mess that inevetibley gets left

at restuarants. However, I have had more than one waiter tell me that PB's

mess was NOTHING compared to some " typical " kids' messes and behaviors!

Made me feel better somehow.

Sara- I'm looking for the tests that the psych used for PB's eval. Can't

find the right pile somehow tonight. I'll get back to you later with them.

As to

>> I suspect the issue is continuation of services - according to his TSS,

>>Elie is the BEST kid she has on her case load.!! That is because he is

>>atypical for ASD - after all he is so lovable because of the DS!!

Are you screaming yet???>>

We also had the psych at the dual-dx clinic question the autism dx because

PB was so well behaved there. I told him that that was the result of the

last 18 months of hard work- and that we still weren't seeing a reduction

of his aggressive behaviors at school. Well, this guy also says " I usually

see kids with behaviors MUCH worse than this " . Then he admitted that, "

well, but I see your problem- it must get kind of wearing chasing him all

day- gee, you never can tell what he's going to do next, can you? "

And so far, so good with the risperdol. Ben hasn't even had any

marked sedation because we reduced the Clonidine as well.

MB

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In a message dated 2/9/2000 4:58:42 AM !!!First Boot!!!, paul.3@...

writes:

<<

We also had the psych at the dual-dx clinic question the autism dx because

PB was so well behaved there. I told him that that was the result of the

last 18 months of hard work- and that we still weren't seeing a reduction

of his aggressive behaviors at school. Well, this guy also says " I usually

see kids with behaviors MUCH worse than this " . Then he admitted that, "

well, but I see your problem- it must get kind of wearing chasing him all

day- gee, you never can tell what he's going to do next, can you? " >>

Well I just read over Maddie's Behavior Psych report. On the first page the

guys says: No instances of inappropriate behavior were observed during the

evaluation. Three pages later he says: Maddie engaged in masturbation two

times during the evaluation. He then goes on to describe how she did it.

Seem appropriate to you????? UGH!!!!!!

Donna

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>Especially if I wore a Satin type

HAHAHA I learned this recently!! Bought satiny panties. With 3 little

ones around who grab my leg for attention at times, I am hauling my jeans up

too much! Back to cotton!!! (oops---sorry Glen!)

& Garry, parents of (9), (8), JJ (6), (5), and

Esther (3). All adopted & with Down Syndrome.

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>

> Oh yea. Miss Maddie can't keep her hands off my legs when I'm in

> hose. She

> also used to shove her hands down my shirt. I went through so many

> bras that

> summer......LOL

> Donna

Donna,

Matt used to do that too!

Especially if I wore a Satin type bra.

I figured that it was because I nursed him, but he stopped when he was 8

months old. Hardly a toddler to remember what was in there. Now I know it

was for tactile stim!

S

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  • 8 months later...

Georgia hi! Well their are two fizzies in each bag. I charge $3.00 per

bag. My everyday molds are smaller so I pack 4 to a bag... Although this

particular bunch I am giving to some chatter friends in a swap. I am

meeting them in Niagara Falls tomorow afternoon, and spending Wednesday as

well. I'm a little nervouse about it, I've never actually met any of these

ladies but chat with them almost every nite.

Thanks for the compliment!!!

Shaye

The Soap Shack

http://www.mysoapshack.com

Re: Digest Number 21

The photo was great. I love the labels. How much do you charge per fizzie?

Georgia

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  • 3 years later...

This is the last post, # 21 that I rec'd from our list--Thurs. Dec. 11.

Were there any subsequent to this date? If so could someone post me the

Dec. 12, 13, 14, 15, digests. If not, never mind. Y'all: be well &

Happy Holidays. Hal Skye.

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  • 3 months later...
Guest guest

Get thee to a neuroSURGEON ASAP!

I'm new to this group

Hi everyone

Iam new to this group and have had symptons from spinal stenosis for

about 4 years but over the past year my problems have become a lot

worse with frequent falling down( at least 3 times a day),numbness in

upper and lower limbs all the time, right sided weakness and reduced

plantar reflexes. I am at the moment seeing a neurologist and have

been seeing a rheumatologist for many years.I would value any advice

from anyone who has similar symptons as myself as to how they cope on

a daily basis. I have 2 children and a husband who help me alot but

would like to be a little more independent. Oh and I have been

stopped from driving due to my symptons.Although I do have an

electric wheelchair whilst I am out. Thank you.

JoJo

________________________________________________________________________

________________________________________________________________________

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