Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 i feel or you about the injections. i started enbrel injections a month ago. and gave myself 2 shots already. the first time my hand was shaking so bad i didn't think i could do it. but after a couple of deep breaths to calm down i did it. i'm still a little shakey but getting better. like you said we have to do what we have to do. and i didn't think i could ever give myself a shot.. thanks to everybody you have helped more then you think.. you guys and gals are family now later mike Tawny <tawnyokc@...> wrote:I have noticed that the sun isn't bothering me either, so that is good news. I have heard the Humira works better with MTX. If they can't take the MTX, usually the weekly injections help more. When I go on MTX my liver enzymes go high, so that is not for me. I didn't feel much difference until I started the weekly. Today is my day for the Humira injection,(eek) we got to do what we have to do. I would rather do it later too, hugs Tawny > > > > I am just wandering if anyone has had a problem with sun > > > sensitivity since taking mtx. I went to watch my daughter play > > > softball one day last week and burnt badly. I have never had > this > > > problem. I have always just tanned. I got large blisters around > my > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > Renate > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 I came back from my RA doc and he has recommended Enbrel. It just terrifies me but Remicade is not an alternative because of the time I would have to take away from work. Heck, I had a filling fall out and they wouldn't even give me two hours to get it fixed. I have a whole month to think about the Enbrel and they gave me info and a video. I feel like the little engine that could because I have to convince myself...I think I can I think I can.... For now he gave me a methylprednisolone dosepak. All the sharp pains became dull the first day and I could move my wrists. I even picked up a fry pan...a little gingerly at first but even though I ache, it's so much better than the sharp pain all over. Peggy mike nelson <winchester19572004@...> wrote: i feel or you about the injections. i started enbrel injections a month ago. and gave myself 2 shots already. the first time my hand was shaking so bad i didn't think i could do it. but after a couple of deep breaths to calm down i did it. i'm still a little shakey but getting better. like you said we have to do what we have to do. and i didn't think i could ever give myself a shot.. thanks to everybody you have helped more then you think.. you guys and gals are family now later mike Tawny wrote:I have noticed that the sun isn't bothering me either, so that is good news. I have heard the Humira works better with MTX. If they can't take the MTX, usually the weekly injections help more. When I go on MTX my liver enzymes go high, so that is not for me. I didn't feel much difference until I started the weekly. Today is my day for the Humira injection,(eek) we got to do what we have to do. I would rather do it later too, hugs Tawny > > > > I am just wandering if anyone has had a problem with sun > > > sensitivity since taking mtx. I went to watch my daughter play > > > softball one day last week and burnt badly. I have never had > this > > > problem. I have always just tanned. I got large blisters around > my > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > Renate > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Good luck, Peggy! I hope Enbrel works very well for you. We have a lot of people here with experience with the injections and they can encourage you along the way. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] injections I came back from my RA doc and he has recommended Enbrel. It just terrifies me but Remicade is not an alternative because of the time I would have to take away from work. Heck, I had a filling fall out and they wouldn't even give me two hours to get it fixed. I have a whole month to think about the Enbrel and they gave me info and a video. I feel like the little engine that could because I have to convince myself...I think I can I think I can.... For now he gave me a methylprednisolone dosepak. All the sharp pains became dull the first day and I could move my wrists. I even picked up a fry pan...a little gingerly at first but even though I ache, it's so much better than the sharp pain all over. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 You can do it, or have someone give you the injection. I can't do it myself yet (Humira) but my husband has no problem at all. It hurt really bad at first but now it's just a minor inconvenience, over and done with and that's it. Just keep thinking the small amount of time you get the injection can maybe avoid a lifetime of worse things. We're here for you. Becky Re: [ ] injections I came back from my RA doc and he has recommended Enbrel. It just terrifies me but Remicade is not an alternative because of the time I would have to take away from work. Heck, I had a filling fall out and they wouldn't even give me two hours to get it fixed. I have a whole month to think about the Enbrel and they gave me info and a video. I feel like the little engine that could because I have to convince myself...I think I can I think I can.... For now he gave me a methylprednisolone dosepak. All the sharp pains became dull the first day and I could move my wrists. I even picked up a fry pan...a little gingerly at first but even though I ache, it's so much better than the sharp pain all over. Peggy mike nelson <winchester19572004@...> wrote: i feel or you about the injections. i started enbrel injections a month ago. and gave myself 2 shots already. the first time my hand was shaking so bad i didn't think i could do it. but after a couple of deep breaths to calm down i did it. i'm still a little shakey but getting better. like you said we have to do what we have to do. and i didn't think i could ever give myself a shot.. thanks to everybody you have helped more then you think.. you guys and gals are family now later mike Tawny wrote:I have noticed that the sun isn't bothering me either, so that is good news. I have heard the Humira works better with MTX. If they can't take the MTX, usually the weekly injections help more. When I go on MTX my liver enzymes go high, so that is not for me. I didn't feel much difference until I started the weekly. Today is my day for the Humira injection,(eek) we got to do what we have to do. I would rather do it later too, hugs Tawny > > > > I am just wandering if anyone has had a problem with sun > > > sensitivity since taking mtx. I went to watch my daughter play > > > softball one day last week and burnt badly. I have never had > this > > > problem. I have always just tanned. I got large blisters around > my > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > Renate > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Peggy, The injection is not that bad, you just have to think about the postitive side of it. If you decide on the Enbrel, is there anyone that can give you the shot for awhile, until your ready? I think that is the best to do, until your use to it. My husband was giving me the injections, I was terrified of needles. Then his job takes him away from the home, so I had to do it myself. The first few times, was really hard, it's a litle easier. But at times, I just stare at it, and make myself so nervous and uptight. But after it's done, I don't have to worry until the next week, so that is uplifting. You just think it over, and talk with others, and maybe find someone to help you with the injections, take care Tawny > > > > > I am just wandering if anyone has had a problem with sun > > > > sensitivity since taking mtx. I went to watch my daughter > play > > > > softball one day last week and burnt badly. I have never > had > > this > > > > problem. I have always just tanned. I got large blisters > around > > my > > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > > > Renate > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Mike, I am glad that your doing better with your injections, it's try isn't it?(sigh) I get myself so worked up, I feel like my blood pressure is sky high. I notice the more I just think about it, and look at it, the worse it is for me. I am so glad that were here for each other,I couldn't imagine without the support of my RA family. You take care Mike, and we are always here for you, hugs Tawny > > > > > I am just wandering if anyone has had a problem with sun > > > > sensitivity since taking mtx. I went to watch my daughter > play > > > > softball one day last week and burnt badly. I have never > had > > this > > > > problem. I have always just tanned. I got large blisters > around > > my > > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > > > Renate > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 I used to get so worked up the day before just knowing I had to get the injection. Right before I would get it I got sick to my stomach, cried, carried on (I'm not a crier), was completely hysterical. Now it's nothing like that. I grab a pillow close my eyes, and it's over and done with. Never thought it would get so much easier. I was ready to give up after the second injection but all of these wonderful people here on this list kept me going and kept encouraging me. Becky [ ] Re: injections Mike, I am glad that your doing better with your injections, it's try isn't it?(sigh) I get myself so worked up, I feel like my blood pressure is sky high. I notice the more I just think about it, and look at it, the worse it is for me. I am so glad that were here for each other,I couldn't imagine without the support of my RA family. You take care Mike, and we are always here for you, hugs Tawny > > > > > I am just wandering if anyone has had a problem with sun > > > > sensitivity since taking mtx. I went to watch my daughter > play > > > > softball one day last week and burnt badly. I have never > had > > this > > > > problem. I have always just tanned. I got large blisters > around > > my > > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > > > Renate > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Hi Peggy, I have been on Enbrel now coming up on 9 months. I take two injections a week on tues/friday. Its really a breeze once you get the technique down and how to put all the parts together. I have been on Methotrexate injections now 6 months which I take on Saturday. So yes I take 3 injections a week. Enbrel has an excellent support program. They will send you a teaching kit which they call the resource kit. It is really nice, plus they will replace any parts of the kit if they wear out get broken or missing. They will also send you sharps containers for home and to travel with as well as a travel cooler bag. I have been really pleased with the Enbrel. No side effects at all. Needle is small insulin type needle. Just don't inject it cold from the frig!!! Brrrr........The first injection will probably been done in the docs office with the nurse while you are learning. I would suggest that you take someone else that would also be able to give injections so they can learn too. Both my kids can give me my injections. the nice thing about Enbrel is you travel and be active and still on meds. Enbrel is also approved to take once a week. Yes you take both injections the same day. Good luck. Toni In a message dated 4/18/04 1:25:56 PM Central Daylight Time, writes: > Date: Sun, 18 Apr 2004 01:19:33 -0700 (PDT) > From: Silver Moon Dragon <silvermoondragonz@...> > Subject: Re: injections > > I came back from my RA doc and he has recommended Enbrel. It just terrifies > me but Remicade is not an alternative because of the time I would have to > take away from work. Heck, I had a filling fall out and they wouldn't even > give me two hours to get it fixed. > > I have a whole month to think about the Enbrel and they gave me info and a > video. I feel like the little engine that could because I have to convince > myself...I think I can I think I can.... > > For now he gave me a methylprednisolone dosepak. All the sharp pains became > dull the first day and I could move my wrists. I even picked up a fry > pan...a little gingerly at first but even though I ache, it's so much better than > the sharp pain all over. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Peggy, I have been on Enbrel since shortly after it was approved 5 years ago. I was scared, but I had been on everything else and nothing was working. I had a lot of joint damage and was afraid of more, so I took it. For me it was life altering. I still have pain from the damage already done, and have joint flare ups, but nothing like before. The injections have recently been changed, making it much easier to self inject. They now are using much thinner needles like a diabetic uses. I hardly can feel the injection. I'm sorry you have a job that has no compassion for the health of their employees. a > I came back from my RA doc and he has recommended Enbrel. It just terrifies > me but Remicade is not an alternative because of the time I would have to take > away from work. Heck, I had a filling fall out and they wouldn't even give me > two hours to get it fixed. > > I have a whole month to think about the Enbrel and they gave me info and a > video. I feel like the little engine that could because I have to convince > myself...I think I can I think I can.... > > For now he gave me a methylprednisolone dosepak. All the sharp pains became > dull the first day and I could move my wrists. I even picked up a fry pan...a > little gingerly at first but even though I ache, it's so much better than the > sharp pain all over. > > Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Thank you Becky. I've concluded that despite the fact I've never been one to take drugs at the first sign of illness, unless I really had to, they are here to help us live a more comfortable life. Yes, there are major risks in taking these drugs but I found I'm not willing to give in to the illness and accept the discomfort for the rest of my life, when there are alternatives that can help you live with it more comfortably. I've experienced several years with increasing pain and this weekend has been an amazing experience. The methylprednisolone has really given me a lot of relief. It's the first weekend that I've felt this good in such a long time. I'm really not willing to give that up and if it takes a little needle discomfort, I've got to suck it up. It's just scarey. I can't depend on my husband's help because he faints ...LOL. Peggy natesmom4@... wrote: You can do it, or have someone give you the injection. I can't do it myself yet (Humira) but my husband has no problem at all. It hurt really bad at first but now it's just a minor inconvenience, over and done with and that's it. Just keep thinking the small amount of time you get the injection can maybe avoid a lifetime of worse things. We're here for you. Becky Re: [ ] injections I came back from my RA doc and he has recommended Enbrel. It just terrifies me but Remicade is not an alternative because of the time I would have to take away from work. Heck, I had a filling fall out and they wouldn't even give me two hours to get it fixed. I have a whole month to think about the Enbrel and they gave me info and a video. I feel like the little engine that could because I have to convince myself...I think I can I think I can.... For now he gave me a methylprednisolone dosepak. All the sharp pains became dull the first day and I could move my wrists. I even picked up a fry pan...a little gingerly at first but even though I ache, it's so much better than the sharp pain all over. Peggy mike nelson <winchester19572004@...> wrote: i feel or you about the injections. i started enbrel injections a month ago. and gave myself 2 shots already. the first time my hand was shaking so bad i didn't think i could do it. but after a couple of deep breaths to calm down i did it. i'm still a little shakey but getting better. like you said we have to do what we have to do. and i didn't think i could ever give myself a shot.. thanks to everybody you have helped more then you think.. you guys and gals are family now later mike Tawny wrote:I have noticed that the sun isn't bothering me either, so that is good news. I have heard the Humira works better with MTX. If they can't take the MTX, usually the weekly injections help more. When I go on MTX my liver enzymes go high, so that is not for me. I didn't feel much difference until I started the weekly. Today is my day for the Humira injection,(eek) we got to do what we have to do. I would rather do it later too, hugs Tawny > > > > I am just wandering if anyone has had a problem with sun > > > sensitivity since taking mtx. I went to watch my daughter play > > > softball one day last week and burnt badly. I have never had > this > > > problem. I have always just tanned. I got large blisters around > my > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > Renate > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Thanks Tawny! I'm very greatful at all the support given here on this site. Peggy Tawny <tawnyokc@...> wrote: Peggy, The injection is not that bad, you just have to think about the postitive side of it. If you decide on the Enbrel, is there anyone that can give you the shot for awhile, until your ready? I think that is the best to do, until your use to it. My husband was giving me the injections, I was terrified of needles. Then his job takes him away from the home, so I had to do it myself. The first few times, was really hard, it's a litle easier. But at times, I just stare at it, and make myself so nervous and uptight. But after it's done, I don't have to worry until the next week, so that is uplifting. You just think it over, and talk with others, and maybe find someone to help you with the injections, take care Tawny > > > > > I am just wandering if anyone has had a problem with sun > > > > sensitivity since taking mtx. I went to watch my daughter > play > > > > softball one day last week and burnt badly. I have never > had > > this > > > > problem. I have always just tanned. I got large blisters > around > > my > > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > > > Renate > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Just knowing that there are others experienceing similar problems and how they've made it through is soooo much help. Of course, I sound brave now but when the time comes I hope I'm still as confident...or at least some. Peggy natesmom4@... wrote: I used to get so worked up the day before just knowing I had to get the injection. Right before I would get it I got sick to my stomach, cried, carried on (I'm not a crier), was completely hysterical. Now it's nothing like that. I grab a pillow close my eyes, and it's over and done with. Never thought it would get so much easier. I was ready to give up after the second injection but all of these wonderful people here on this list kept me going and kept encouraging me. Becky [ ] Re: injections Mike, I am glad that your doing better with your injections, it's try isn't it?(sigh) I get myself so worked up, I feel like my blood pressure is sky high. I notice the more I just think about it, and look at it, the worse it is for me. I am so glad that were here for each other,I couldn't imagine without the support of my RA family. You take care Mike, and we are always here for you, hugs Tawny > > > > > I am just wandering if anyone has had a problem with sun > > > > sensitivity since taking mtx. I went to watch my daughter > play > > > > softball one day last week and burnt badly. I have never > had > > this > > > > problem. I have always just tanned. I got large blisters > around > > my > > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > > > Renate > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Thanks a. a <paula54@...> wrote:Peggy, I have been on Enbrel since shortly after it was approved 5 years ago. I was scared, but I had been on everything else and nothing was working. I had a lot of joint damage and was afraid of more, so I took it. For me it was life altering. I still have pain from the damage already done, and have joint flare ups, but nothing like before. The injections have recently been changed, making it much easier to self inject. They now are using much thinner needles like a diabetic uses. I hardly can feel the injection. I'm sorry you have a job that has no compassion for the health of their employees. a > I came back from my RA doc and he has recommended Enbrel. It just terrifies > me but Remicade is not an alternative because of the time I would have to take > away from work. Heck, I had a filling fall out and they wouldn't even give me > two hours to get it fixed. > > I have a whole month to think about the Enbrel and they gave me info and a > video. I feel like the little engine that could because I have to convince > myself...I think I can I think I can.... > > For now he gave me a methylprednisolone dosepak. All the sharp pains became > dull the first day and I could move my wrists. I even picked up a fry pan...a > little gingerly at first but even though I ache, it's so much better than the > sharp pain all over. > > Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Tony, That's really encouraging and the idea of taking someone along to learn to do the injections is a great idea. I know my husband will faint but maybe I can take my son. That would be comforting. I wondered about the cold from the frig. Do you let it warm to room temp? Peggy aclavern33@... wrote: Hi Peggy, I have been on Enbrel now coming up on 9 months. I take two injections a week on tues/friday. Its really a breeze once you get the technique down and how to put all the parts together. I have been on Methotrexate injections now 6 months which I take on Saturday. So yes I take 3 injections a week. Enbrel has an excellent support program. They will send you a teaching kit which they call the resource kit. It is really nice, plus they will replace any parts of the kit if they wear out get broken or missing. They will also send you sharps containers for home and to travel with as well as a travel cooler bag. I have been really pleased with the Enbrel. No side effects at all. Needle is small insulin type needle. Just don't inject it cold from the frig!!! Brrrr........The first injection will probably been done in the docs office with the nurse while you are learning. I would suggest that you take someone else that would also be able to give injections so they can learn too. Both my kids can give me my injections. the nice thing about Enbrel is you travel and be active and still on meds. Enbrel is also approved to take once a week. Yes you take both injections the same day. Good luck. Toni In a message dated 4/18/04 1:25:56 PM Central Daylight Time, writes: > Date: Sun, 18 Apr 2004 01:19:33 -0700 (PDT) > From: Silver Moon Dragon <silvermoondragonz@...> > Subject: Re: injections > > I came back from my RA doc and he has recommended Enbrel. It just terrifies > me but Remicade is not an alternative because of the time I would have to > take away from work. Heck, I had a filling fall out and they wouldn't even > give me two hours to get it fixed. > > I have a whole month to think about the Enbrel and they gave me info and a > video. I feel like the little engine that could because I have to convince > myself...I think I can I think I can.... > > For now he gave me a methylprednisolone dosepak. All the sharp pains became > dull the first day and I could move my wrists. I even picked up a fry > pan...a little gingerly at first but even though I ache, it's so much better than > the sharp pain all over. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 My children all faint (teenagers and a 21 year old) so they can't help me but at least my husband isn't a fainter. I have friends that know how to give injections if he is gone but maybe that is the time I'll learn, when I really have to! Becky Re: [ ] injections I came back from my RA doc and he has recommended Enbrel. It just terrifies me but Remicade is not an alternative because of the time I would have to take away from work. Heck, I had a filling fall out and they wouldn't even give me two hours to get it fixed. I have a whole month to think about the Enbrel and they gave me info and a video. I feel like the little engine that could because I have to convince myself...I think I can I think I can.... For now he gave me a methylprednisolone dosepak. All the sharp pains became dull the first day and I could move my wrists. I even picked up a fry pan...a little gingerly at first but even though I ache, it's so much better than the sharp pain all over. Peggy mike nelson <winchester19572004@...> wrote: i feel or you about the injections. i started enbrel injections a month ago. and gave myself 2 shots already. the first time my hand was shaking so bad i didn't think i could do it. but after a couple of deep breaths to calm down i did it. i'm still a little shakey but getting better. like you said we have to do what we have to do. and i didn't think i could ever give myself a shot.. thanks to everybody you have helped more then you think.. you guys and gals are family now later mike Tawny wrote:I have noticed that the sun isn't bothering me either, so that is good news. I have heard the Humira works better with MTX. If they can't take the MTX, usually the weekly injections help more. When I go on MTX my liver enzymes go high, so that is not for me. I didn't feel much difference until I started the weekly. Today is my day for the Humira injection,(eek) we got to do what we have to do. I would rather do it later too, hugs Tawny > > > > I am just wandering if anyone has had a problem with sun > > > sensitivity since taking mtx. I went to watch my daughter play > > > softball one day last week and burnt badly. I have never had > this > > > problem. I have always just tanned. I got large blisters around > my > > > neck and shoulders. Is this going to be a ongoing problem? > > > > > > > > Renate > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 I use a 25 gague needle in the thigh. It is almost completely painless. The trick is no dilly-dallying. Just jam it right in there and you won't feel a thing. The only time you feel pain is if you hesitate, and with a 25 it's not that bad. The only thing to keep in mind is it will take almost a minute to withdraw your dose from the bottle. Just pull it back to the little bump all the way at the end of the syrinnge and hold it. Just try to relax, it's going to take a while but hell, it's one minute once a week. That way you don't have to switch needles, which costs you a small amount of T anyway. With the 1.5 needles I try to leave about ..25 sticking out. It'll take a couple pokes to get a feel for how had to do it, if you don't do it hard enough first time just slide it in a little. If it bottoms out, not quire so hard next time <g>. It will go in quite slowly because it is pretty hard to squeeze it out thru so thin a needle, so you won't have a bump or knot. Louis Nardozi rndchemist <rndchemist@...> wrote: > Those of you using the injections, do you go to the > doctor every time > or do you give yourself the shots? > > The reason I asked is my doctor, when we were > discussing the > possibility of switching to shots due to my reaction > to the gel, she > said I have to go to the clinic; that I was not > allowed to give them > to me because the shots are intra-muscular and are > difficult for the > own person to administer them. > > Flaco. > > > > > > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.11.9/116 - Release Date: 9/30/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 In a message dated 4/10/2006 2:05:47 PM Central Standard Time, bonniebaron@... writes: i prolly shouldn't ask this yet since i haven't even really come to terms with any of this . . . it's only been a week since i got the positive dx on ra. but do most of you use injectible meds ? do you go to the doctor's office or inject yourself ? who teaches you ? ? ? i'm still trying to deal with taking meds at all and i'm not really sure i want to hear the answer but i guess i should start dealing with the big picture, so to speak . . . . . thanks, bonnie/boys Bonnie i think most of us are on injectables, pills, or both. Usually the doctor or nurse shows you how to do it the first time. Some of us have their hubby give them the meds if they cant. Are you taking anything for your RA? hugs http://www1.myspace.com/julz2kidz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Most of us inject ourselves,or a mate or partner does it for us. The doctor or her nurse will teach you if the time comes. Don't worry it is not as bad as it sounds. in WI bonniebaron <bonniebaron@...> wrote: i prolly shouldn't ask this yet since i haven't even really come to terms with any of this . . . it's only been a week since i got the positive dx on ra. but do most of you use injectible meds ? do you go to the doctor's office or inject yourself ? who teaches you ? ? ? i'm still trying to deal with taking meds at all and i'm not really sure i want to hear the answer but i guess i should start dealing with the big picture, so to speak . . . . . thanks, bonnie/boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 i just started the mxt (and folic acid) this past saturday . . . . only got the dx back on thursday. i'm taking pills, then he's testing, then changing the dose, then testing, etc. etc. i guess this prolly sounds familiar to all of you . . . . . . bonnie/boys > > > > > > In a message dated 4/10/2006 2:05:47 PM Central Standard Time, > bonniebaron@... writes: > > i prolly shouldn't ask this yet since i haven't even really come to > terms with any of this . . . it's only been a week since i got the > positive dx on ra. but do most of you use injectible meds ? do you go > to the doctor's office or inject yourself ? who teaches you ? ? ? i'm > still trying to deal with taking meds at all and i'm not really sure i > want to hear the answer but i guess i should start dealing with the big > picture, so to speak . . . . . > > thanks, bonnie/boys > > > > Bonnie i think most of us are on injectables, pills, or both. Usually the > doctor or nurse shows you how to do it the first time. Some of us have their > hubby give them the meds if they cant. Are you taking anything for your RA? hugs > > > > http://www1.myspace.com/julz2kidz > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 I started on injectable meds about a 14 months after my DX and starting on meds. I am an ex-paramedic and so I already knew how to give injections...so I was self taught. I started on Enbrel and they have an extensive self teaching material kit they send you out with DVDs, books and a mat to organize your supplies. Later I changed from oral to injectable MTX and again I already knew what to do. I have never had my doc or nurse give my injections. I hate going to the doc as is soo it would really be disrputive to my life to have to run to the doc all the time for injections ranging from twice a week to one every two weeks. I would rather just do it myself. Toni In a message dated 4/10/2006 6:03:38 P.M. Central Daylight Time, writes: From: " bonniebaron " bonniebaron@... Date: Mon Apr 10, 2006 0:04pm(PDT) Subject: injections i prolly shouldn't ask this yet since i haven't even really come to terms with any of this . . . it's only been a week since i got the positive dx on ra. but do most of you use injectible meds ? do you go to the doctor's office or inject yourself ? who teaches you ? ? ? i'm still trying to deal with taking meds at all and i'm not really sure i want to hear the answer but i guess i should start dealing with the big picture, so to speak . . . . . thanks, bonnie/boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 hopefully some day (if need be) i can quote you and mean it too ! ! ! ! hugs, bonnie/boys > > > I started on injectable meds about a 14 months after my DX and starting on > meds. I am an ex-paramedic and so I already knew how to give injections...so > I was self taught. I started on Enbrel and they have an extensive self > teaching material kit they send you out with DVDs, books and a mat to organize > your supplies. Later I changed from oral to injectable MTX and again I already > knew what to do. > > I have never had my doc or nurse give my injections. I hate going to the > doc as is soo it would really be disrputive to my life to have to run to the > doc all the time for injections ranging from twice a week to one every two > weeks. I would rather just do it myself. > > Toni > > > In a message dated 4/10/2006 6:03:38 P.M. Central Daylight Time, > writes: > > From: " bonniebaron " bonniebaron@... > Date: Mon Apr 10, 2006 0:04pm(PDT) > Subject: injections > > i prolly shouldn't ask this yet since i haven't even really come to > terms with any of this . . . it's only been a week since i got the > positive dx on ra. but do most of you use injectible meds ? do you go > to the doctor's office or inject yourself ? who teaches you ? ? ? i'm > still trying to deal with taking meds at all and i'm not really sure i > want to hear the answer but i guess i should start dealing with the big > picture, so to speak . . . . . > > thanks, bonnie/boys > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Dear Friends:all After reading the 56 emails awaiting me when I returned home yesterday, I was beginning to fear I wouldn't qualify for the xolair--the insurance co wouldn't think my asthma severe enough (it is moderately severe, but under control with meds most of the time--prednisone about twice a year). But today I got a call setting up the times for my injections which means it has cleared the insurance and medicare. Can hardly wait...... Thanks so much for your encouragement and support. I'll keep you up to date as to my progress. I have realized through this group how important emotional/educational/experiential support and feedback is. Thanks again. Adah __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 If your estradiol E2 is good at about 20 pg/ml and your labs for Total and Free T are not up into the upper 1/3 of your labs range you need to up your dose. Your eating it up very fast if you levels are low and if you switch to 2x's a week this works better. And add in some HCG do 250 IU the 2 days each before your next T shot. If you do the T shot 2x's a week do 250 IU's the day before each T shot. I don't feel my shots of T but I feel dam good and the HCG gives me a feeling of well being. Co-Moderator Phil > From: LarryP <llpete@...> > Subject: Injections > > Date: Sunday, December 13, 2009, 12:47 PM > I have been on testostrone for at > least twenty five years. I first started with the pills but > I had to take so many of those small pills a day it was to > costly and the injections were the best way to do. I have > ben on injections for around 24 years and it was first 200 > mg every 14 days then went to 300 mg every 14 days and > finally 300 mg every 10 days. I had been using a 22 needle > all that time and my wife gave me the shots and it never > burned or hurt. It makes me wonder if the person who is > having problems may be allergic to the medication or where > they are injecting this medication. I recently changed to a > 27 needle. I draw it up with a 22 and switch to the 27. What > I noticed was it was like I had none in my body the first 24 > hours after the shot then the first week was great then I > started going down hill from then. I do not have any thyroid > problems only the klinfelters . I tried the cream but it did > not work for me. That is all my insurance company will pay > for is the injections. They will pay for the medicine and I > have to buy the syringes on my own. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.