Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 June, I’ll be thinking of you this Fri and hoping Dr. Errico has some idea of how to help you or who best to send you to for help. I’m so sorry you are having so much pain. I know how difficult that can be. I really hope you get some relief soon. Best, Kate From: june08816@... Sent: Sunday, May 15, 2011 8:59 PM Subject: [ ] Re: Hi everyone! Glad to hear that you are doing better! and have so much going on in your life! Your update encouraged me to continue looking for a doctor to "fix" me! I'm not surprised that it took you so long to decide on revision surgery. I've been dragging my feet about another surgery.. This would be my 4th in about 10 yrs. My last surgery to remove broken Harrington rods was 12/05 and now I have what they are calling "dextroscoliosis at the thoracic-lumbar junction measuring aprox. 25 degrees with increased thoracic kyphosis". I started out leaning forward a little and now I am actually slumping forward terribly! I'm actually a "hunchback" and have gone from 6'1" to 5' '7" List members suggested that I contact Dr. Rand in Boston and also Dr. Kabaish in Baltimore. I wanted to ask about your Dr. Glazer. Is he in Boston near Dr. Rand? I called Dr. Rand's office and also Dr. Kabaish's for appts-more like second and third opinions. Both doctors along with Sr. Ludwig (Univ of MD Spine Ctr) know my surgeon Dr. Errico(NYC). Seems that some of the docs trained together. Both Dr. Rand's and Dr. Kabaish's admins wanted me to wait until after I see Dr. Errico to make the appointments. Understand, that Dr.Errico stated that he was afraid to operate on me again due to previous mid torso radiation treatments in 1981. That's why I have gone to other specialists. I will see Dr. Errico this next Friday for an annual checkup. I'll have had a CT scan by then and plan to take the results to him along with the results of yet another scoliosis (long) x-ray that clearly shows the collapsed vertebrae above the fusion. I'll also have a detailed list of my limitations and complaints. I've been on this list for several years and have recently joined the scoliosis forum. I'm still gathering information and I do appreciate your update! I'm sorry if this is running on but I am in severe pain today and am extrememly frustrated by my situation!! Thanks for listening! June -NJ Quote Link to comment Share on other sites More sharing options...
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