Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Hi cindy, my name is Lin. i have a son on xolair. thankfully my son hasnt had any reaction to the xolair yet. sometimes to the allergy shots but so far not yet to the xolair shot. it may hurt at the site for a lil bit my son says for a lil bit then that goes away. yes this is typical for the shots. they want you to stay there incase theres a reaction. we are always in our drs. office for that period of time. but i have it so that he can get his allergy shot and xolair on the same day so im not running around, his dr said thats fine. EVERYONE IS DIFFERENT SO JUST WATCH YOUR OWN SELF AND YOUR OWN REACTION TO THE MEDICINE. IM JUST GIVING ADVICE, IM NOT A DR. i know if you do have a reaction they will give you something for it. then mark it down in your chart. good luck with your first shot. my son has done so much better on this , i thank god for it and the people who came out with this. you should see a differnce in the next couple shots... it will take some time for you to see a change. god bless and have a asthma free day Lin from pittsburgh Belsky <crdb@...> wrote: I will be getting my first shot next week. Thankfully I will only need the smaller dose. Any tips I should know beforehand? I need to spend 1 hour there after my first shot. Is this typical for your first shot? I have needed epi injections 4 times after allergy shots due to asthma reactions immediately so they rinse my syringes first with epi now (along with time-released in two vials). Does anyone ever use terbutaline (Brethine is one brand name) for asthma management any more? I was on it for preterm contractions with 4 of my pregnancies and it really helped my lungs, though the side effects were yucky. I had been on it basically for 5 months every other year. Now it has been over 3 years since using it and I wonder if that has an influence on how much worse my asthma has been this last year. Just curious. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 , Congrats and good luck on the shot. It took a full year before I noticed any difference. Some people respond quicker than others but the typical response period is between 3 and 6 months. My IgE count is fairly low at 44 but oddly enough, 150 didn't do the job. I currently take 150 and 75 alternating every two weeks and it has made a world of difference. I currently have a nasty chest cold and I'd be on prednisone until it clears if it weren't for Xolair. Allergic responses are possible but fairly uncommon. I know one person who had to stop taking the drug because of the allergic reaction but, fingers crossed, that won't be the case with you. There are a lot of people on this board who have experienced the " Xolair Miracle. " Best of luck and keep us posted. Belsky <crdb@...> wrote: I will be getting my first shot next week. Thankfully I will only need the smaller dose. Any tips I should know beforehand? I need to spend 1 hour there after my first shot. Is this typical for your first shot? I have needed epi injections 4 times after allergy shots due to asthma reactions immediately so they rinse my syringes first with epi now (along with time-released in two vials). Does anyone ever use terbutaline (Brethine is one brand name) for asthma management any more? I was on it for preterm contractions with 4 of my pregnancies and it really helped my lungs, though the side effects were yucky. I had been on it basically for 5 months every other year. Now it has been over 3 years since using it and I wonder if that has an influence on how much worse my asthma has been this last year. Just curious. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Hi , Congratulations on getting approved for Xolair! I'm very sensitive to all medications, so I was extremely nervous before my first Xolair shot. My typical symptoms were aggravated a bit after the shot, but it went pretty well overall. I had to wait in the office for 2 hours after the first shot...that was a long 2 hours! Now I usually wait about 30 minutes after my Xolair shots, but that's by choice. Keep us posted on how it goes! Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hi , Thanks for your e-mail its good to hear from people in the same situation. I don't seem to know how its going over here because the nhs haven't approved it . I think i am very lucky as it is doing me so much good. England seems to be very slow with this drug and i feel sorry for all the other people that would benefit from it. Do you know how long you have to have it for. Is it permenant . I will keep you in touch. Thanks again. >From: " " <justinlouisville@...> >Reply- > >Subject: [ ] Re: First shot next week >Date: Wed, 18 Oct 2006 22:38:08 -0000 > >Hi , > >Congratulations on getting approved for Xolair! > >I'm very sensitive to all medications, so I was extremely nervous >before my first Xolair shot. My typical symptoms were aggravated a bit >after the shot, but it went pretty well overall. I had to wait in the >office for 2 hours after the first shot...that was a long 2 hours! Now >I usually wait about 30 minutes after my Xolair shots, but that's by >choice. > >Keep us posted on how it goes! Good luck! > > > > > _________________________________________________________________ Download the new Windows Live Toolbar, including Desktop search! http://toolbar.live.com/?mkt=en-gb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 I was given terbutaline for asthma some time back in the 80's. Yes, it is a bronchodilator. But, as you experienced, the side effects are nasty. I refused to continue taking it after I had violent mood swings in addition to the shakes and such. There are now other long-term brochidilators that don't have as bad side effects, such as serevent. Since that time, the focus of asthma treatment has moved away from just using bronchodilators like theophyllin and albuterol to treating the inflammation with steroid inhalers as well. If you found it helpful, though, you should mention the experience to your doctor and discuss whether your current meds are really meeting your needs. Such experience is worth paying attention to. My biggest hope is that your Xolair makes more medication unnecessary! --Kitty > > I will be getting my first shot next week. Thankfully I will only need the > smaller dose. Any tips I should know beforehand? I need to spend 1 hour > there after my first shot. Is this typical for your first shot? I have > needed epi injections 4 times after allergy shots due to asthma reactions > immediately so they rinse my syringes first with epi now (along with > time-released in two vials). > > Does anyone ever use terbutaline (Brethine is one brand name) for asthma > management any more? I was on it for preterm contractions with 4 of my > pregnancies and it really helped my lungs, though the side effects were > yucky. I had been on it basically for 5 months every other year. Now it has > been over 3 years since using it and I wonder if that has an influence on > how much worse my asthma has been this last year. Just curious. > > B. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 , I wouldn't sweat the shot. I get two every two weeks and the only significant reaction I've had is breathing better. The shots go just under the skin so you'll probably be wondering when you're going to get stuck and it's already over. I guess I'm around two and a half months into Xolair. Today, my peak flow was up somewhere between 15 and 20% over what it was before I started. That's a really big difference in my book. Good luck and I hope the med works for you. > > I will be getting my first shot next week. Thankfully I will only need the > smaller dose. Any tips I should know beforehand? I need to spend 1 hour > there after my first shot. Is this typical for your first shot? I have > needed epi injections 4 times after allergy shots due to asthma reactions > immediately so they rinse my syringes first with epi now (along with > time-released in two vials). > > Does anyone ever use terbutaline (Brethine is one brand name) for asthma > management any more? I was on it for preterm contractions with 4 of my > pregnancies and it really helped my lungs, though the side effects were > yucky. I had been on it basically for 5 months every other year. Now it has > been over 3 years since using it and I wonder if that has an influence on > how much worse my asthma has been this last year. Just curious. > > B. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I got my first Xolair shot today! Hurrah!! I had no problems with it, and took my laptop with me so was able to get a bit of work done as I waited the hour afterwards. I was a bit afraid I would have to postpone it as I got a letter from insurance declining coverage of it. I was pretty miffed as I had been told by my allergist they already had the Xolair in house. Thankfully Monday after I got back from a short weekend trip, I received another letter from insurance stating that is was now covered. I think the letters were just late in getting to me. I still need to give the pulmo a call as I am needing my Maxair 2-3 times a day these last two weeks and am waking at night. I am at the max of Advair already so it is likely I will be on some prednisone for a period - hopefully a short one. Maybe if we get some overnight freezing the molds will go away and I can breathe again. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Congratulations, ! That's great news! Please keep us posted on how things are going! > > I got my first Xolair shot today! Hurrah!! I had no problems with it, and > took my laptop with me so was able to get a bit of work done as I waited the > hour afterwards. > B. Quote Link to comment Share on other sites More sharing options...
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