Guest guest Posted September 8, 2010 Report Share Posted September 8, 2010 Thank you for all of your replies! I have to go to a regular pediatrician because I have to be sexually active or over 16 to see an adult OBGN. Trust me we were both shocked that they had asked that question for a 12 year old. I will let you guys know what the pediatrician says to do. We might just have to grit our teeth and head to Emory. Thanks for all of your research and advice! Shea Reasoner ________________________________ From: Joann Bullock <joann@...> Sent: Tue, September 7, 2010 11:02:26 PM Subject: RE: Results Shea, I am glad you are able to get started on the new medicine and I hope it offers great benefits. I wanted to write to you reference the ovarian cyst. Having had them my entire life that I can remember and my sister also, the doc is Right, it is most likely nothing. AND, if you have not started menses yet, it could be that first follicle ready to rupture that is going to get you started. I have had big ones and small ones, one’s that hurt soo bad I went to the ER thinking my appendix was ready to rupture, mostly though, I feel a twinge just inside my hipbones when I roll over or turn too quick. They can be truly benign but for your age it should be checked out. Better safe!! If you want to talk more about this or want to know about the appt you will have with the OB/GYN and how they will ultrasound them, you are welcome to email me privately. Because of my history, my daughter is at a high risk of having them also, and when we get closer to your age, she will know the symptoms to look for. I can respond with more info here if you think it would be beneficial to all but I am willing to talk with you more off line also. Hugs to you. Joann joann@... Zoe, 8.5, pauci JRA, non medicated remission 2 years and running. From: [mailto: ] On Behalf Of Shea Reasoner Sent: Tuesday, September 07, 2010 9:33 PM Subject: Results Today the phone rang, this used to be a normal sound, but when you are waiting for results for a test and you see EMORY HEALTHCARE on the caller i.d you hit the green button like your on Deal or No Deal. Dr. Han quickly explained that she saw signs of arthritis and fluid in both of my knees. The hip MRI is another story, she didn't see fluid or signs of arthritis. But she found something else, she saw a cyst on one of my ovaries. This means I have to get a sonigram at an OBGYN. I'm 12 years old and I need to see a OBGYN?!?!?! What? She said it could be nothing or it could be something. But, at least we get the green light to start the new medicine. Has anything like this has happened to any of your kids? Please, let me know Thank you for all of your support and advice!Shea Reasoner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2010 Report Share Posted September 8, 2010 Hey Audra, I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ I am currently taking : Zantac so my medicine won't upset my stomach Diclophenac (NSAID) folic acid 1 mL of methotrexate per week Clonidine patch and pill (pain med) My rhuemy is checking to see which TNF blocker insurance will approve, but most likely Enbrel. Thank you for concern and everything! Shea Shea Reasoner ________________________________ From: audra <wynhama@...> Sent: Wed, September 8, 2010 9:35:52 AM Subject: Re: Results Shea, I had no idea you were 12. You write like a much older person. You definitely have a talent for writing. Maybe you should blog your whole arthritis experience - kinda to help other kids. Just thinking. Anyway, I am glad they found out a problem, now you can get help with your knees. What medicines are they putting you on? The cyst. I have had them. But I know nothing about them at your age. You know pediatric medicine isn't just shrunk down adult medicine. You guys are different and growing and developing people. So have it checked out just to be on the safe side. Good luck with your new meds. Keep us updated! Audra 14 poly 07 Peyton 12 poly 08 > > Today the phone rang, this used to be a normal sound, but when you are waiting >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Did your kids take the premixed or the mixed? Shea Reasoner ________________________________ From: audra <wynhama@...> Sent: Thu, September 9, 2010 8:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Love, love, love your blog!!! If you are Facebook, you should befriend my daughter Hannah. She is close in age to you (she will be 14 one month from today). You are a lot alike!!!! Beth " We cannot direct the wind, but we can adjust our sails " ________________________________ From: audra <wynhama@...> Sent: Thu, September 9, 2010 7:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Shea, I’m not Audra but my daughter also used Enbrel. When she was on it they didn’t yet have the premixed available (for kids at least) so we had to mix it. It sounds complicated when you first get the info but it’s really quite easy. Liz () From: [mailto: ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:22 PM Subject: Re: Results Did your kids take the premixed or the mixed? Shea Reasoner ________________________________ From: audra <wynhama@... <mailto:wynhama%40bellsouth.net> > <mailto: %40> Sent: Thu, September 9, 2010 8:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Get the one you have to mix. It isn't as painful. The pre mixed one is a lower ph and hurts. You might have to take two shots with the one you mix. n did, but she was on it four years ago. (n, 21, systemic) Sent from my iPod On Sep 9, 2010, at 6:31 PM, " Liz " <liz_smith@...> wrote: > Shea, > > I’m not Audra but my daughter also used Enbrel. When she was on it t > hey didn’t yet have the premixed available (for kids at least) so we > had to mix it. It sounds complicated when you first get the info bu > t it’s really quite easy. > > Liz () > > From: [mailto: ] On > Behalf Of Shea Reasoner > Sent: Thursday, September 09, 2010 9:22 PM > > Subject: Re: Results > > Did your kids take the premixed or the mixed? > Shea Reasoner > > ________________________________ > From: audra <wynhama@... <mailto:wynhama%40bellsouth.net> > > <mailto: %40> > Sent: Thu, September 9, 2010 8:52:26 PM > Subject: Re: Results > > I knew you were a great person. Thinking of others when you are > having your own > difficulties. What a strong person! > > My kids both took Enbrel. It isn't bad. They used EMLA cream to numb > the site. > When you start on it, you will feel so much better, that you > actually look > forward to it. It will also prevent the crippling affect of the > arthritis on > your joints. > > Keep us updated! > Audra > > > > > > Hey Audra, > > I actually blog on my blanket site. http:// > www.knotsofhope.spruz.com/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Thanks Liz! all of your replies help tremendously! Shea Reasoner ________________________________ From: Liz <liz_smith@...> Sent: Thu, September 9, 2010 9:31:45 PM Subject: RE: Results Shea, I’m not Audra but my daughter also used Enbrel. When she was on it they didn’t yet have the premixed available (for kids at least) so we had to mix it. It sounds complicated when you first get the info but it’s really quite easy. Liz () From: [mailto: ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:22 PM Subject: Re: Results Did your kids take the premixed or the mixed? Shea Reasoner ________________________________ From: audra <wynhama@... <mailto:wynhama%40bellsouth.net> > <mailto: %40> Sent: Thu, September 9, 2010 8:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 You’re welcome, Shea. And I’ll second ’s comment about the sting. has told me that the Enbrel did not sting at all. Like n, had to get two shots a week but it has been several years since she was last on it. From: [mailto: ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:43 PM Subject: Re: Results Thanks Liz! all of your replies help tremendously! Shea Reasoner ________________________________ From: Liz <liz_smith@... <mailto:liz_smith%40cox.net> > <mailto: %40> Sent: Thu, September 9, 2010 9:31:45 PM Subject: RE: Results Shea, I’m not Audra but my daughter also used Enbrel. When she was on it they didn’t yet have the premixed available (for kids at least) so we had to mix it. It sounds complicated when you first get the info but it’s really quite easy. Liz () From: <mailto: %40> [mailto: <mailto: %40> ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:22 PM <mailto: %40> Subject: Re: Results Did your kids take the premixed or the mixed? Shea Reasoner ________________________________ From: audra <wynhama@... <mailto:wynhama%40bellsouth.net> <mailto:wynhama%40bellsouth.net> > <mailto: %40> <mailto: %40> Sent: Thu, September 9, 2010 8:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 I will also chime in here... Cameron (age 9) took the pre-mixed and it really burned. We do the one we mix now and he's fine with it. He gets 2 shots per week, 15 mg (0.6ml) on Tuesday and another on Friday. ---- Liz <liz_smith@...> wrote: ============= You’re welcome, Shea. And I’ll second ’s comment about the sting. has told me that the Enbrel did not sting at all. Like n, had to get two shots a week but it has been several years since she was last on it. From: [mailto: ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:43 PM Subject: Re: Results Thanks Liz! all of your replies help tremendously! Shea Reasoner ________________________________ From: Liz <liz_smith@... <mailto:liz_smith%40cox.net> > <mailto: %40> Sent: Thu, September 9, 2010 9:31:45 PM Subject: RE: Results Shea, I’m not Audra but my daughter also used Enbrel. When she was on it they didn’t yet have the premixed available (for kids at least) so we had to mix it. It sounds complicated when you first get the info but it’s really quite easy. Liz () From: <mailto: %40> [mailto: <mailto: %40> ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:22 PM <mailto: %40> Subject: Re: Results Did your kids take the premixed or the mixed? Shea Reasoner ________________________________ From: audra <wynhama@... <mailto:wynhama%40bellsouth.net> <mailto:wynhama%40bellsouth.net> > <mailto: %40> <mailto: %40> Sent: Thu, September 9, 2010 8:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Has any one had the shot finnergan and demoral? I had that shot and it burned so bad. Is that comparable to the way Enbrel stings? Thank you so much for all of your replies you guys are the best! Shea Reasoner ________________________________ From: Young <wsyoung@...> Sent: Thu, September 9, 2010 10:47:03 PM Subject: RE: Results I will also chime in here... Cameron (age 9) took the pre-mixed and it really burned. We do the one we mix now and he's fine with it. He gets 2 shots per week, 15 mg (0.6ml) on Tuesday and another on Friday. ---- Liz <liz_smith@...> wrote: ============= You’re welcome, Shea. And I’ll second ’s comment about the sting. has told me that the Enbrel did not sting at all. Like n, had to get two shots a week but it has been several years since she was last on it. From: [mailto: ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:43 PM Subject: Re: Results Thanks Liz! all of your replies help tremendously! Shea Reasoner ________________________________ From: Liz <liz_smith@... <mailto:liz_smith%40cox.net> > <mailto: %40> Sent: Thu, September 9, 2010 9:31:45 PM Subject: RE: Results Shea, I’m not Audra but my daughter also used Enbrel. When she was on it they didn’t yet have the premixed available (for kids at least) so we had to mix it. It sounds complicated when you first get the info but it’s really quite easy. Liz () From: <mailto: %40> [mailto: <mailto: %40> ] On Behalf Of Shea Reasoner Sent: Thursday, September 09, 2010 9:22 PM <mailto: %40> Subject: Re: Results Did your kids take the premixed or the mixed? Shea Reasoner ________________________________ From: audra <wynhama@... <mailto:wynhama%40bellsouth.net> <mailto:wynhama%40bellsouth.net> > <mailto: %40> <mailto: %40> Sent: Thu, September 9, 2010 8:52:26 PM Subject: Re: Results I knew you were a great person. Thinking of others when you are having your own difficulties. What a strong person! My kids both took Enbrel. It isn't bad. They used EMLA cream to numb the site. When you start on it, you will feel so much better, that you actually look forward to it. It will also prevent the crippling affect of the arthritis on your joints. Keep us updated! Audra > > Hey Audra, > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 my 14 daughter ciarra had a 5cm cyst on her right ovary for about 1 yr. then it went away, but then they found a kidney stone on this last ultrasound. hop everything goes okay with you. shelly, mom to ciarra sojia From: Shea Reasoner <sheareasoner1@...> Subject: Results Date: Tuesday, September 7, 2010, 9:32 PM  Today the phone rang, this used to be a normal sound, but when you are waiting for results for a test and you see EMORY HEALTHCARE on the caller i.d you hit the green button like your on Deal or No Deal. Dr. Han quickly explained that she saw signs of arthritis and fluid in both of my knees. The hip MRI is another story, she didn't see fluid or signs of arthritis. But she found something else, she saw a cyst on one of my ovaries. This means I have to get a sonigram at an OBGYN. I'm 12 years old and I need to see a OBGYN?!?!?! What? She said it could be nothing or it could be something. But, at least we get the green light to start the new medicine. Has anything like this has happened to any of your kids? Please, let me know Thank you for all of your support and advice!Shea Reasoner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 Hi Shea, My daughter is finally home from a friend's house, so I can ask her about the shots. She said the Enbrel(premixed) burns worse. I really hate to tell you that, but I have to be honest. However, with the EMLA and other tricks, you'll learn how to make them more tolerable. She would use the premixed in a syringe and give it herself slowly. That way she could control the rate and it didn't hurt as bad. But the shot really works on the arthritis. My daughter is in remission now. There is hope! Audra 14 poly Peyton 12 poly > > > > Hey Audra, > > I actually blog on my blanket site. http://www.knotsofhope.spruz.com/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 Here are the results finally from the doctor... Dr. Hey agrees with my initial reading and the radiology report that there does not appear to be any fracture of the hardware or the fusion mass. He would like for you to continue the conservative measures to try and control your low back pain. Hopefully, Dr. Coles was also able to help you knee issues as well. I have written back to Brittany to ask what conservative measures on because the ones I have been doing have kept me out of work. I also told her that I feel it is a muscular issue related to the hardware and to please advise me on who can evalute the muscular issues. Peggy Quote Link to comment Share on other sites More sharing options...
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