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There are lots of docs throughout the country that fill patients banded in Mexico. Just look on the database. Some areas have no fill docs, some have lots of them. I know of 5 within 20 miles of my home. It just takes a little homework and usually that homework pays off.

On 8/6/07, Angel Iglesias <miamiangel888@...> wrote:

Most U.S. doctor's won't fill ANY patient they didn't band, regardless of where the surgery was done. The three bariatric doctor's in my area won't even fill each other's patients. Their reason being, if they did not perform the surgery, thay are not completely clear on the other doctor's methods or tubing placement. Therefore, instead of risk potential damage, please return to the one who originated the placement.

Bipley <Bipley@...> wrote:

I'd still file a complaint with the licensing board. It can usually be done on line and you do not have to be present when the doc is brought before the board.

Bet he doesn't pull this one again if you follow through. ;o)

I still think a lot of it has to do with bigotry. That's one of the issues that really makes me angry. If someone isn't white, Republican, Christian, and American born... they are idiots. As we all know that does not describe the wonderful folks in Mexico, they are not idiots. I can't stand bigotry, I hate it. I will fight it to the end. Otherwise, how can docs explain filling Canadian banded people but not Mexican banded people?

On 8/5/07, daymkr05 <DStu98@...> wrote:

Well, I have finally calmed down abit about my situation with the Laproscopic Associates of San Francisco and their poor attitude about giving me an unfill. I have decided to file a complaint with HIPPA

(sp?) which is the organization that protects our patient confidentiality rights. Since the office manager decided to braodcast that I was " banded in Mexico " to anyone within earshot, I think that needs to be known. And, secondly, besides getting the word out on these people as much as possible, I plan to write the Drs. and inform them of what went on in spite of the fact that I am pretty sure they know what goes on since my husband saw Dr. Husted stick his head out

the door and then run back inside his office. Again, my goal is to make them realize that just because we were banded in Mexico, this could and should be a win-win situation for everyone. We got bands we either werent approved to get or couldnt get covered by insurance, we then spread the good word to people in the US who may beable to get band coverage or decide to stay in the US to be banded. We then pay EXTRA money to a US Dr. to give us continued care with fills or unfills and everybody wins. Why are the US docs so threatened by this and then have the nerve to treat us poorly? One women on OH website wrote that she was a patient at LASF and was quite happy. I have no doubt they treat their own patients quite differently, afterall they

have paid some $20,000 or more to them! The point is, if they agree to accept patients banded in Mexico, then there should be no difference in treatment. Ok, thanks for listening. Thanks for your constant support and I am open to any and all suggestions. Deborah

Angel

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Deborah...

Your point was made well. No worries there.

On 8/6/07, daymkr05 <DStu98@...> wrote:

AngelI understand why some Drs. would not want to treat patients banded elsewhere. But my case was one where I was accepted as a patient and told I WOULD be treated and then was treated poorly and unprofessionally. So, if they dont want to treat us, they should say so from the beginning. That is my point.Deborah Well, I have finally calmed down abit about my situation with the > Laproscopic Associates of San Francisco and their poor attitude about > giving me an unfill. I have decided to file a complaint with HIPPA > (sp?) which is the organization that protects our patient > confidentiality rights. Since the office manager decided to braodcast > that I was " banded in Mexico " to anyone within earshot, I think that > needs to be known. And, secondly, besides getting the word out on > these people as much as possible, I plan to write the Drs. and inform > them of what went on in spite of the fact that I am pretty sure they > know what goes on since my husband saw Dr. Husted stick his head out > the door and then run back inside his office. Again, my goal is to > make them realize that just because we were banded in Mexico, this > could and should be a win-win situation for everyone. We got bands we > either werent approved to get or couldnt get covered by insurance, we > then spread the good word to people in the US who may beable to get > band coverage or decide to stay in the US to be banded. We then pay > EXTRA money to a US Dr. to give us continued care with fills or > unfills and everybody wins. Why are the US docs so threatened by this > and then have the nerve to treat us poorly? One women on OH website > wrote that she was a patient at LASF and was quite happy. I have no > doubt they treat their own patients quite differently, afterall they > have paid some $20,000 or more to them! The point is, if they agree > to accept patients banded in Mexico, then there should be no > difference in treatment. Ok, thanks for listening. Thanks for your > constant support and I am open to any and all suggestions. > Deborah> > > > > > > > > > > > > > Angel>

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Amen! Thanks for writing!

Well, I have

> finally calmed down abit about my situation with the

> > Laproscopic Associates of San Francisco and their poor attitude

> about

> > giving me an unfill. I have decided to file a complaint with

HIPPA

> > (sp?) which is the organization that protects our patient

> > confidentiality rights. Since the office manager decided to

> braodcast

> > that I was " banded in Mexico " to anyone within earshot, I think

> that

> > needs to be known. And, secondly, besides getting the word out on

> > these people as much as possible, I plan to write the Drs. and

> inform

> > them of what went on in spite of the fact that I am pretty sure

> they

> > know what goes on since my husband saw Dr. Husted stick his head

> out

> > the door and then run back inside his office. Again, my goal is

to

> > make them realize that just because we were banded in Mexico,

this

> > could and should be a win-win situation for everyone. We got

bands

> we

> > either werent approved to get or couldnt get covered by

insurance,

> we

> > then spread the good word to people in the US who may beable to

get

> > band coverage or decide to stay in the US to be banded. We then

pay

> > EXTRA money to a US Dr. to give us continued care with fills or

> > unfills and everybody wins. Why are the US docs so threatened by

> this

> > and then have the nerve to treat us poorly? One women on OH

website

> > wrote that she was a patient at LASF and was quite happy. I have

no

> > doubt they treat their own patients quite differently, afterall

> they

> > have paid some $20,000 or more to them! The point is, if they

agree

> > to accept patients banded in Mexico, then there should be no

> > difference in treatment. Ok, thanks for listening. Thanks for

your

> > constant support and I am open to any and all suggestions.

> > Deborah

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Angel

> >

>

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-

I am looking into being Band in Mexico, but this has been a large

worry of mine. Who takes care of you when you need help and /or there

is an emergency? Has most people had this problem please someone let

me know mmcfarland2001@...

In , " daymkr05 " <DStu98@...>

wrote:

>

>

> Amen! Thanks for writing!

> Well, I have

> > finally calmed down abit about my situation with the

> > > Laproscopic Associates of San Francisco and their poor attitude

> > about

> > > giving me an unfill. I have decided to file a complaint with

> HIPPA

> > > (sp?) which is the organization that protects our patient

> > > confidentiality rights. Since the office manager decided to

> > braodcast

> > > that I was " banded in Mexico " to anyone within earshot, I think

> > that

> > > needs to be known. And, secondly, besides getting the word out

on

> > > these people as much as possible, I plan to write the Drs. and

> > inform

> > > them of what went on in spite of the fact that I am pretty sure

> > they

> > > know what goes on since my husband saw Dr. Husted stick his

head

> > out

> > > the door and then run back inside his office. Again, my goal is

> to

> > > make them realize that just because we were banded in Mexico,

> this

> > > could and should be a win-win situation for everyone. We got

> bands

> > we

> > > either werent approved to get or couldnt get covered by

> insurance,

> > we

> > > then spread the good word to people in the US who may beable to

> get

> > > band coverage or decide to stay in the US to be banded. We then

> pay

> > > EXTRA money to a US Dr. to give us continued care with fills or

> > > unfills and everybody wins. Why are the US docs so threatened

by

> > this

> > > and then have the nerve to treat us poorly? One women on OH

> website

> > > wrote that she was a patient at LASF and was quite happy. I

have

> no

> > > doubt they treat their own patients quite differently, afterall

> > they

> > > have paid some $20,000 or more to them! The point is, if they

> agree

> > > to accept patients banded in Mexico, then there should be no

> > > difference in treatment. Ok, thanks for listening. Thanks for

> your

> > > constant support and I am open to any and all suggestions.

> > > Deborah

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Angel

> > >

> >

>

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Are you referring to help needed or an emergency in the hospital or after you get home?

252/168/150

Banded 12/06

On 8/8/07, mmcfarland2001 <mmcfarland2001@...> wrote:

-I am looking into being Band in Mexico, but this has been a large worry of mine. Who takes care of you when you need help and /or there is an emergency? Has most people had this problem please someone let me know mmcfarland2001@...In

, " daymkr05 " <DStu98@...> wrote:>> > Amen! Thanks for writing!> Well, I have > > finally calmed down abit about my situation with the > > > Laproscopic Associates of San Francisco and their poor attitude > > about > > > giving me an unfill. I have decided to file a complaint with > HIPPA > > > (sp?) which is the organization that protects our patient > > > confidentiality rights. Since the office manager decided to > > braodcast > > > that I was " banded in Mexico " to anyone within earshot, I think > > that > > > needs to be known. And, secondly, besides getting the word out

on > > > these people as much as possible, I plan to write the Drs. and > > inform > > > them of what went on in spite of the fact that I am pretty sure > > they > > > know what goes on since my husband saw Dr. Husted stick his head > > out > > > the door and then run back inside his office. Again, my goal is > to > > > make them realize that just because we were banded in Mexico, > this

> > > could and should be a win-win situation for everyone. We got > bands > > we > > > either werent approved to get or couldnt get covered by > insurance, > > we

> > > then spread the good word to people in the US who may beable to > get > > > band coverage or decide to stay in the US to be banded. We then > pay > > > EXTRA money to a US Dr. to give us continued care with fills or > > > unfills and everybody wins. Why are the US docs so threatened by > > this > > > and then have the nerve to treat us poorly? One women on OH > website > > > wrote that she was a patient at LASF and was quite happy. I have > no > > > doubt they treat their own patients quite differently, afterall > > they > > > have paid some $20,000 or more to them! The point is, if they > agree

> > > to accept patients banded in Mexico, then there should be no > > > difference in treatment. Ok, thanks for listening. Thanks for > your > > > constant support and I am open to any and all suggestions. > > > Deborah> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Angel> > >> >>

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Guest guest

I'm confused by the question, what do you mean who takes care of you? Do you mean if you need a Dr? I have never needed any medical follow up because of my band, other than fills. Anything I have needed medically I just go to my regular dr, but again nothing has been for my band. No emergencies either. Cyrena www.mylapbandjourney.com(240) 230/168/145dob: 1/19/07 Re: Thanks for the support

-

I am looking into being Band in Mexico, but this has been a large

worry of mine. Who takes care of you when you need help and /or there

is an emergency? Has most people had this problem please someone let

me know mmcfarland2001

In @groups. com, "daymkr05" <DStu98@...>

wrote:

>

>

> Amen! Thanks for writing!

> Well, I have

> > finally calmed down abit about my situation with the

> > > Laproscopic Associates of San Francisco and their poor attitude

> > about

> > > giving me an unfill. I have decided to file a complaint with

> HIPPA

> > > (sp?) which is the organization that protects our patient

> > > confidentiality rights. Since the office manager decided to

> > braodcast

> > > that I was "banded in Mexico" to anyone within earshot, I think

> > that

> > > needs to be known. And, secondly, besides getting the word out

on

> > > these people as much as possible, I plan to write the Drs. and

> > inform

> > > them of what went on in spite of the fact that I am pretty sure

> > they

> > > know what goes on since my husband saw Dr. Husted stick his

head

> > out

> > > the door and then run back inside his office. Again, my goal is

> to

> > > make them realize that just because we were banded in Mexico,

> this

> > > could and should be a win-win situation for everyone. We got

> bands

> > we

> > > either werent approved to get or couldnt get covered by

> insurance,

> > we

> > > then spread the good word to people in the US who may beable to

> get

> > > band coverage or decide to stay in the US to be banded. We then

> pay

> > > EXTRA money to a US Dr. to give us continued care with fills or

> > > unfills and everybody wins. Why are the US docs so threatened

by

> > this

> > > and then have the nerve to treat us poorly? One women on OH

> website

> > > wrote that she was a patient at LASF and was quite happy. I

have

> no

> > > doubt they treat their own patients quite differently, afterall

> > they

> > > have paid some $20,000 or more to them! The point is, if they

> agree

> > > to accept patients banded in Mexico, then there should be no

> > > difference in treatment. Ok, thanks for listening. Thanks for

> your

> > > constant support and I am open to any and all suggestions.

> > > Deborah

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Angel

> > >

> >

>

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Guest guest

Here in the states. If there was a problem with the band is what I was concerned with, but I have found out some Dr. who do the fills already and I am very healthy just obese. Thanks thoughCyrena Weeks <cyrenaweeks@...> wrote: I'm confused by the question, what do you mean who takes care of you? Do you mean if you need a Dr? I have never needed any medical follow up because of my band, other than fills. Anything I have needed

medically I just go to my regular dr, but again nothing has been for my band. No emergencies either. Cyrena www.mylapbandjourney.com(240) 230/168/145dob: 1/19/07 Re: Thanks for the support -I am looking into being Band in Mexico, but this has been a large worry of mine. Who takes care of you when you need help and /or there is an emergency? Has most people had this problem please

someone let me know mmcfarland2001In @groups. com, "daymkr05" <DStu98@...> wrote:>> > Amen! Thanks for writing!> Well, I have > > finally calmed down abit about

my situation with the > > > Laproscopic Associates of San Francisco and their poor attitude > > about > > > giving me an unfill. I have decided to file a complaint with > HIPPA > > > (sp?) which is the organization that protects our patient > > > confidentiality rights. Since the office manager decided to > > braodcast > > > that I was "banded in Mexico" to anyone within earshot, I think > > that > > > needs to be known. And, secondly, besides getting the word out on > > > these people as much as possible, I plan to write the Drs. and > > inform > > > them of what went on in spite of the fact that I am pretty sure > > they > > > know what goes on since my husband saw Dr. Husted stick his head > > out > > > the door and then run back inside his office. Again, my goal is

> to > > > make them realize that just because we were banded in Mexico, > this > > > could and should be a win-win situation for everyone. We got > bands > > we > > > either werent approved to get or couldnt get covered by > insurance, > > we > > > then spread the good word to people in the US who may beable to > get > > > band coverage or decide to stay in the US to be banded. We then > pay > > > EXTRA money to a US Dr. to give us continued care with fills or > > > unfills and everybody wins. Why are the US docs so threatened by > > this > > > and then have the nerve to treat us poorly? One women on OH > website > > > wrote that she was a patient at LASF and was quite happy. I have > no > > > doubt they treat their own patients quite differently,

afterall > > they > > > have paid some $20,000 or more to them! The point is, if they > agree > > > to accept patients banded in Mexico, then there should be no > > > difference in treatment. Ok, thanks for listening. Thanks for > your > > > constant support and I am open to any and all suggestions. > > > Deborah> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Angel> > >> >>

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Search.

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  • 2 weeks later...

When I began considering the band I knew that I would go to the same doctor for my fills because of all the horror stories I have heard. I definitely would not go to a fill doctor that does not use fluoroscope. Of course I am only about a 3 hour drive from Dr. Aceves but, I still wouldn't go anywhere else.Bipley <Bipley@...> wrote: There are lots of docs throughout the country that fill patients banded in Mexico. Just look on the

database. Some areas have no fill docs, some have lots of them. I know of 5 within 20 miles of my home. It just takes a little homework and usually that homework pays off. On 8/6/07, Angel Iglesias <miamiangel888 > wrote: Most U.S. doctor's won't fill ANY patient they didn't band, regardless of where the surgery was done. The three bariatric doctor's in my area won't even fill each other's patients. Their reason being, if they did not perform the surgery, thay are not completely clear on the other doctor's methods or tubing placement. Therefore, instead of risk potential damage, please return to the one

who originated the placement. Bipley <Bipleygmail> wrote: I'd still file a complaint with the licensing board. It can usually be done on line and you do not have to be present when the doc is brought before the board. Bet he doesn't pull this one again if you follow through. ;o) I still think a lot of it has to do with bigotry. That's one of the issues that really makes me angry. If someone isn't white, Republican, Christian, and American born... they are idiots. As we all know that does not

describe the wonderful folks in Mexico, they are not idiots. I can't stand bigotry, I hate it. I will fight it to the end. Otherwise, how can docs explain filling Canadian banded people but not Mexican banded people? On 8/5/07, daymkr05 <DStu98@...> wrote: Well, I have finally calmed down abit about my situation with the Laproscopic Associates of San Francisco and their poor attitude about giving me an unfill. I have decided to file a complaint with HIPPA (sp?) which is the organization that protects our patient confidentiality rights. Since the office manager decided to braodcast that I was "banded in Mexico" to anyone within earshot,

I think that needs to be known. And, secondly, besides getting the word out on these people as much as possible, I plan to write the Drs. and inform them of what went on in spite of the fact that I am pretty sure they know what goes on since my husband saw Dr. Husted stick his head out the door and then run back inside his office. Again, my goal is to make them realize that just because we were banded in Mexico, this could and should be a win-win situation for everyone. We got bands we either werent approved to get or couldnt get covered by insurance, we then spread the good word to people in the US who may beable to get band coverage or decide to stay in the US to be banded. We then pay EXTRA money to a US Dr. to give us continued care with fills or unfills and everybody wins. Why are the US docs so threatened by this and then have the nerve to treat us poorly? One women on OH website wrote that she was a patient at

LASF and was quite happy. I have no doubt they treat their own patients quite differently, afterall they have paid some $20,000 or more to them! The point is, if they agree to accept patients banded in Mexico, then there should be no difference in treatment. Ok, thanks for listening. Thanks for your constant support and I am open to any and all suggestions. Deborah Angel

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  • 2 weeks later...

you know, one thing that we all have in common is that none of us is

perfect...i know that is shocking :-)

for me, i am happy when i make the best choice possible, even if it

is not perfect. imagine how boring it would be --if we were all perfect>

i am having some difficulty right now too..with stress of

moving...but i dont want to get another fill for a while as i am

afraid to get too restricted

while i am going thru the move stress....no need to add band stress.

so if i gain i gain, and i will just fix it later.

i am glad that you posted -- but dont feel humbled or

chastised....just be reminded of everyones fallibitiy...or at least mine!

At 09:31 PM 9/3/2007, you wrote:

>I'm feeling humbled and appropriately chastised.

>

>Thanks for everyone's support regarding my not feeling my first fill.

>I realize that I had no reason to 'give up' on the band. I was doing

>so well that when I hit this road block it was a huge blow. I'd worked

>so hard (as all of you know) at this. It has been YEARS in the making

>and I so looked forward to my first fill.

>

>I have 'fallen off the wagon' this holiday week-end, but I will get

>right back on. I have a mission to accomplish and I thank you all for

>taking the ride with me!

>

>

>

>

>

>

>

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  • 5 months later...

Hi Marge

Yes - do get your ferritin tested. I don't believe doctors do this as a matter of course, so you may have to ask for this test specifically.

Luv - Sheila

Dear Sheila, Angel and allthank you so much for your support. Sheila, I have to say that I do not have my test results of 'yore'. I hadn't thought to question them, that is till now. Should have my results this week and I suppose I could ask then for my past ones. Should I ask for the ferratin test? I have just had the TSH etc and antibodies. My temperature before getting out of bed this morning was 35.7. My thermometer is C and I believe the normal temperature is 36? and I am told that it is lower in the morning anyway? I am still ploughing through the messages and taking note. The more I read the more I am convinced....Foggy head, always feeling cold and so on. With love Marjie

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date: 04/02/2008 10:10

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  • 10 months later...

Hi Kay

Levothyroxine

thyroxine (T4) and Liothyronine (T3) are both synthetic thyroid hormones. T4 is

a mainly inactive hormone which needs to convert to the active (dominant)

hormone T3. It is T3 that makes your body and brain function. Natural desiccated

porcine thyroid extract (Armour thyroid, USP) contains all the thyroid hormones

the body requires. These are T4, T3,T2, T1 and calcitonin (for the bones).

Because the T4 and T3 in Armour is standardised to the specifications required

by the United States Pharmacopoeia, quite often, these hormones are not in

sufficient quantity for individuals (one size does not fit all) and so some of

us need a little more T4 or T3 adding to get the balance right. In such a case,

it is the synthetics that are added to the natural thyroid extract - though

many people taking Armour do very well on that alone.

Re

Adrenal problems. You can have a 24 hour salivary adrenal profile test to see

where your cortisol and DHEA levels lie at four specific times during the day. You

can get this tested through Genova Diagnostics http://gdx.uk.net/. Depending on your

results, you may need to take adrenal supplements, or even need a course of hydrocortisone.

Once your adrenals are supplemented with the level of cortisol needed, your

thyroid hormone replacement will be better absorbed. Go to our FILES and you

will see lots of information about adrenals. For adrenal support, you should be

taking 2/3000mgs Vitamin C, liquorice, Siberian Ginseng and Nutri Adrenal Extra

which you can buy from www.yournutritionship.co.uk

.. You start by taking one tablet with your breakfast for 3/4 days and then

adding another tablet with your lunch (never take any after 1.00p.m. because

the extra stimulation might keep you awake at night). After a couple of weeks,

add another tablet with your breakfast, and if necessary, after another couple

of weeks, add yet another tablet. You can take up to 6 tablets (though some of

us do take more). If this doesn't help at all, then you probably need to start

a course of Hydrocortisone.

There

is a file (which you can access from the Home Page of this Forum that gives you

some 'Home Tests' to check if adrenals might be your problem.

Look in

our website www.tpa-uk.org.uk under 'Hypothyroidism'

and then click on 'Associated Conditions' and then click on each of these

conditions that show in the page that opens and read all about them and the

effect they have on people with hypothyroidism.

You

should ask your GP to check your ferritin level (stored iron), your B12,

Vitamin D levels.

Luv -

Sheila

Thank you Shelia and for your messages, great to

know someone

else is out there who understands. mentioned T4/T3 combined

treatment, is that when you take amour and thyroxine together? Also

info on the site is telling me that I have adreanal problems, is there

any self help things I can do now e.g. change my diet?

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Hi Kay,

Combined treatment can also mean thyroxine (T4) and tertroxin

liothyronine, cytomel, T3 - lots of different brands and different

names!

Have you done the adrenal questionnaire?

As to changing diet, various foods such as raw brassicas and soya can

have an antithyroid effect. A balanced diet without too many sugars and

refined carbs suits most folk best , good old healthy eating!!.

Subject: Thanks for the support

Thank you Shelia and for your messages, great to know someone

else is out there who understands. mentioned T4/T3 combined

treatment, is that when you take amour and thyroxine together? Also

info on the site is telling me that I have adreanal problems, is there

any self help things I can do now e.g. change my diet?

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

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Hi

Armour contains T3 and T4 and other things, when I mentioned T3/T4 combination treatment I was referring to synthetic T4, thyroxine and synthetic T3 treatment, some people take the 2 together and do very well, but docs are very reluctant to prescribe T3 as it is the active hormone and they seem to think that most people do not need it as they convert well within the body, this isnt the case for a lot of people

Thank you Shelia and for your messages, great to know someone else is out there who understands. mentioned T4/T3 combined treatment, is that when you take amour and thyroxine together? Also info on the site is telling me that I have adreanal problems, is there any self help things I can do now e.g. change my diet?

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Sheila,

You wrote:

>

> Levothyroxine thyroxine (T4) and Liothyronine (T3) are both synthetic

> thyroid hormones....

Technically, these are just short forms (nicknames) for the more

official 3,5,3',5'-levo-tetra­iodothyronine and

3,5,3'-triiodo-levo-thyronine. However, they refer to the same

molecules, whether synthetic or natural. Had you said Synthroid and

Cytomel, I could have agreed they were definitely synthetic.

Chuck

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Maybe Chuck, but I am a simple soul

more interested in giving the needed support, recommendations and information

to our members in as simple a language that I can. I do not know the 'science'

behind everything - if anything, so leave such technicalities to the those who do.

This disease is difficult enough to get my head around all the many aspects involved

without giving a scientific and technical explanation all the time. If members

need that, and I admit some do, they are free to ask the scientists. However,

many thanks for this technical information.

Sheila

Sheila,

You wrote:

>

> Levothyroxine thyroxine (T4) and Liothyronine (T3) are both synthetic

> thyroid hormones....

Technically, these are just short forms (nicknames) for the more

official 3,5,3',5'-levo-tetra­iodothyronine and

3,5,3'-triiodo-levo-thyronine. However, they refer to the same

molecules, whether synthetic or natural. Had you said Synthroid and

Cytomel, I could have agreed they were definitely synthetic.

Chuck

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Thanks Sheila,

It is indeed such an approach that makes tpa so accessible to us

simple folk. I struggle to get my head around the science, aided also

by brain fog, Ha! I need practical info, that I can work with, which

possibly reflects how many of us feel. There is a place for science,

I'm just not able enough to join that gang!

Keep up the great work,

Enjoy Saturday!

xx

>

> Maybe Chuck, but I am a simple soul more interested in giving the

needed

> support, recommendations and information to our members in as

simple a

> language that I can. I do not know the 'science' behind everything -

if

> anything, so leave such technicalities to the those who do. This

disease is

> difficult enough to get my head around all the many aspects

involved without

> giving a scientific and technical explanation all the time. If

members need

> that, and I admit some do, they are free to ask the scientists.

However,

> many thanks for this technical information.

>

>

>

> Sheila

>

>

>

> Sheila,

>

> You wrote:

> >

> > Levothyroxine thyroxine (T4) and Liothyronine (T3) are both

synthetic

> > thyroid hormones....

>

> Technically, these are just short forms (nicknames) for the more

> official 3,5,3',5'-levo-tetra-iodothyronine and

> 3,5,3'-triiodo-levo-thyronine. However, they refer to the same

> molecules, whether synthetic or natural. Had you said Synthroid and

> Cytomel, I could have agreed they were definitely synthetic.

>

> Chuck

>

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You're welcome Marjie,

Yes, do ask for your ferritin to be tested, also B12 and Vitamin D to

see if these are low. Normal C temperature is 37, yours is very low and

obviously your metabolism isn't functioning as it should. If you have

opted to receive individual emails, you might find it hard-going as this

forum is extremely busy and you might wish to consider receiving

messages via the Daily Digest form, where you can get up to 25 messages

in just one email. That way, your Inbox will not become cluttered.

Luv - Sheila

> thank you so much for your support. Sheila, I have to say that I do

not

> have my test results of 'yore'. I hadn't thought to question them,

that

> is till now. Should have my results this week and I suppose I could

ask

> then for my past ones. Should I ask for the ferratin test? I have just

> had the TSH etc and antibodies. My temperature before getting out of

bed

> this morning was 35.7. My thermometer is C and I believe the normal

> temperature is 36? and I am told that it is lower in the morning

anyway?

> I am still ploughing through the messages and taking note. The more I

> read the more I am convinced....Foggy head, always feeling cold and so

> on. With love Marjie

>

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  • 1 year later...

Thank you Cam and C, and all for the kind words and advise and support.

I had my

pre op on the 10th and left with a huge Aspen TLSO which looks like it should be

in an old Star Wars movie--Kerry the Jedi!! Sorry never saw the new movies, so

I can only reference the old ones! It looks cumbersome and I'm supposed to wear

it over my clothes--can't imagine wearing it under--I don't think I have any

clothes that stretch that much! Also I have large breasts--double D's(hate

them) and my boobs stick out in such a strange way in the brace--even the tech

laughed! I guess they'll do some adjustments after, but--guess I'll have to buy

some big button up shirts and wear them with leggings for awhile! To change the

subject, I do have a question about the prism glasses, are they worth it? Also

I'm glad in this day and age that they don't shave your iliac crest for bone

grafting material, I was worried about that--I still to this day feel tingly and

strange there--and every time they take an x-ray they, radiologists report that

I have a deformity there. By the way, I have no hardware as I speak--took out my

single rod in 1996--it was impinging on a nerve--I of course am still fused--and

I do have a spina bifida occulta at L5, but, it's going to be weird being

filled up with metal again. Sorry for all the run ons and spelling errors-it

kind of defines my state of mind at the moment! The osteotomy site will be L3

and of course I will be fused to my sacrum--unfortunately the doc said that I

will need rods and screws all the way up to T8 (original surgery T9-L4 but L5

fused by itself sort of.) Breaking the fusion of course needs support, so I'm

not complaining. It's all happening so fast, especially with my mom passing so

unexpectantly! We've been so busy taking care of her affairs. I'm still in a

state of shock over her death, but as I said, I'm sure she's happily with my

dad now and they'll watch over me--maybe I'll be with them while I'm under--just

for a visit though! In a way it's a good thing being so busy, I haven't had

much time to think about the surgery. Also I'm happy because I never had to

make the decision about the surgery--it was done for me, or I probably would

have waited too long and there would be extra issues. Anyway, I will keep you

updated--I'll have my daughter bring her laptop to the hospital and she'll type

while I ramble on! Wish me luck--next stop good old Tucson Medical Center!

Kerry

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