Re: Digest Number 648

[Guest guest]

Hi ! Geoff Crenshaw here.

> Date: Sat, 05 Feb 2000 13:35:23 -0700

> From: Bob Fain <BobFain@...>

> Subject: Diet

>

> Anybody out there ever use potato flour or something in that order to

> make a dough for a veggie pizza? Thanks!

No... (due to the nightshade problem - also attaches to tomatoes) BUT...

I have used Quinoa, Millet, Barley, Amaranth, Oat & Rye. (Rye was not so

good, fav's were Millet, Amaranth & Quinoa.

HTH

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save mankind

ICQ 60333388

[Guest guest]

,

Azulfidine takes a while to really start working! For the first two months I

took it I thought this is a joke, no changes at all. I also took every NSAID

under the sun and either they did not work or made me so sick I thought I

might keel over and die. However after a while I felt some changes and then

my dose was upped to 3000 milligrams a day and there was a big improvement so

you can up your dose.

Good Luck

Kay

[Guest guest]

god bless you...you sound as if you've had a reall rough go of it. my

sympathies are with you . you are moving ahead wih your enbrel. when you

inject your enbrel try injecting it slowly and see if this helps with the

irritation at the injection site . also if you do have itching aferward try

applying ice to the site as tis might help . i wish you only good things and

comfort in your life . i hope life brings you a rainbow. thinking of you .

cathy from mass

[Guest guest]

NewJersey,

I have been on Enbrel since 11-99, my ins pays, i pay $25 co-pay,

but my Rheumatologist really had to fight for it and keep

fighting so i can stay on it...i also have PA, diagnosed in 1997.

The only side affect i get is injection site reaction, from the

size of a nickel to 5-6 inches across, it itches, swells a little

and becomes red and makes previous sites of injection also itch

adn get red again....but so far the itch is not worth giving up

the medication....then i go for several weeks with no reaction,

beat that....no answer to it either...

I am one of 3-4 that my Rhumatologis treats and I am also the

last and slowest to respond...I have flexibility, but not much

reduction in pain, my fingers, hands, wrists, left shoulder, low

back, both ankles and feet and toes still burn constantly, but

they will move, so if that is all i get i am thankful for moving.

I do have to take pain medications, and i now have upper lobe

pulmonary fibrosis, which does not usually go with PA, they think

it is some kind of cross over from the other auto-immune

diseases. I take chemo once a month to try to hault the lung

disease or at least slow it, i have had 3 treatments and after 6,

pulmonary function will be tested again to see if there is any

change... also the chemo has made most of my hair come out and

there is a chande of bladder cancer as a complication to the

cytoxin...i have chosen to take the chance so i can live a little

better until my number is called....i have other auto-immuned

diseases also, many of us do...and some things cross over and

make diagnosis and treatment difficule....I go to the

Rheumatology Clinic and University of South Florida in Tampa,

Dr.Vasey is suppose to be the one for PA in this part of the

country, travles a lot and lectures and see patients...

Anyone able to get in the study should and if ins pays take the

drug at least 3 months to see, some get instant relief...but it

is better than no treatment until Enbrel has our name on it.

Then the drug companys and insurance may drop prices or more ins

companys will pay without the hassel..

[Guest guest]

This is the Doctor's website. See how to contact them for the information.

I'm sure if they said to NOT put it in the eyes.

http://www.heartdrop.com/

Please feel free to contact us with any questions or

comments

you may have. We look forward to hearing from you.

Strauss Heart Drops

4136 Dominion Street

Burnaby, BC V5G 1C6

Telephone:

(604) 436-1893

Fax:

(604) 436-4224

Email:

webmaster@...

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 20

> Date: Fri, 1 Sep 2000 21:59:04 EDT

> From: dbates3809@...

> Subject: Re: Dr. Schulze's Eyebright

>

> Thanks for the reply. I am still not sure, since it says not to put it

> directly into

> the eyes. Will see if I can find something on the Net about Nature's Way or

> more on this.

> Really appreciate it.

>

> Dorothy

>

[Guest guest]

found this of interest........

FYI child lifers. The following info may be helpful to some of the families

you work with:

On may 8, 2000, the IRS issued a ruling that will allow parents of children

with chronic ilnesses to deduct some of the cost associated with attending

medical conferences related to their child's condition. The rule allows

parents to deduct the expenses of admission and transportation to a medical

conference related to the chronic illness of the individual's dependent.

It is explained further in the IRS Bulletin 2000-19. which is located on the

IRS website at : http://www.irs.gov/bus info/bullet.html.

[Guest guest]

Re DC Rally

According to Dr Goldberg (during the chat today), he has not been asked

to speak at the Rally.

Regards,

Ceevee

[Guest guest]

Hi Shara, i just read your post,and boy that sounds a lot like my story 6

months ago yes, all the genitic tests,and blood work should be apart of the

normal testing. maybe they will also have an eeg done if not already,but i

can say for sure after the second or so normal tests results you pretty much

can bet for a autism disorder dx,but get your daughter as much therapy as you

can now because the younger,and the more interventions the better. my

daughter just turned three july 6 2001 ,and shes coming a long way her social

is getting better not so much crying around people as before, her speech has

really come along way a lot of echolalia but everyones telling me thats great

because the speech is usually there, and its nice to finalyy have to worry

about what i say around noelle because shes repeating so much.I hope this

gives you some encouragement god knows we all need some hope good luck ,and

remember mothers know whats best for their children so follew your heart ,and

instincts.dannilynn700231@...

[Guest guest]

Hi, Dawn how is haylee? Is her speech and everything coming along still?You

helped me so much when i was going threw everything with noelle i hope you

remember if nothing else you gave me hope.I don't think your crazy noelle

is'nt on any meds either my husband would freak, but i have recently put her

on the noni juice,and believe it or not people are seeing changes,and the

only ones who know this is everyone in our group whose read my messages,and

my family its been two weeks they said give it a shot for a month so i am its

all natural and that may sound nuts ,but ole well my family nuts so if it

helps noelle or just another autisic child by getting the word out then it

was worth it good luck you nutty women !!!!!!!!!!!!!!!

[Guest guest]

Haylee's interactions have made a huge jump this summer. Thanks for asking.

I fear that when we start school we may go backwards with all the business

of a classroom. If I find she can't function well there, I'll homeschool.

I'm glad to hear I gave you hope in the beginning. I needed that today.

You have to hold on to hope. I've really had a feeling sorry for myself day

today. Thanks for reminding me that there is always hope.

Dawn

>From: dannilynn700231@...

>Reply-Autism_in_Girls

>Autism_in_Girls

>Subject: Re: Digest Number 648

>Date: Wed, 15 Aug 2001 22:46:06 EDT

>

>Hi, Dawn how is haylee? Is her speech and everything coming along still?You

>helped me so much when i was going threw everything with noelle i hope you

>remember if nothing else you gave me hope.I don't think your crazy noelle

>is'nt on any meds either my husband would freak, but i have recently put

>her

>on the noni juice,and believe it or not people are seeing changes,and the

>only ones who know this is everyone in our group whose read my messages,and

>my family its been two weeks they said give it a shot for a month so i am

>its

>all natural and that may sound nuts ,but ole well my family nuts so if it

>helps noelle or just another autisic child by getting the word out then it

>was worth it good luck you nutty women !!!!!!!!!!!!!!!

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

In a message dated 8/28/2001 2:43:48 AM Pacific Daylight Time,

writes:

>

> Wasn't it just one study that said mothers who were under the age of 35

> when they gave birth to child with DS had higher chance of AZ?

> Cheryl in VA

>

Yep...pmplol... puts me right in that category... actually I managed to get

my hands on the study a number of years ago... and it was just statiscally

adulterations... if iI remember correctly... thats my story and I am sticking

to it...

WPCJ,

Cyn

[Guest guest]

In a message dated 8/28/2001 2:43:48 AM Pacific Daylight Time,

writes:

>

> Wasn't it just one study that said mothers who were under the age of 35

> when they gave birth to child with DS had higher chance of AZ?

> Cheryl in VA

>

Yep...pmplol... puts me right in that category... actually I managed to get

my hands on the study a number of years ago... and it was just statiscally

adulterations... if iI remember correctly... thats my story and I am sticking

to it...

WPCJ,

Cyn

[Guest guest]

You Wrote:

>My son receptively will give me whatever I ask but I can't get him to

>touch or point. How critical is it to differentiate these receptive

>sd's? Is it absolutely necessary if he can discriminate between

>whatever I'm asking by giving it to me?

>

>Thanks

>Penny

Penny,

Sorry for the delayed reply. We too had real problems with pointing and

finally just pursued the giving. The pointing developed later. We also

tried a program just on pointing. This way we didn't delay the development

of other, equally important skills while developing pointing.

Naomi

[Guest guest]

Can I advertise a fastbuy on this list? Please contact me directly. Thanks:)

Happy Holidays!

Take care,

Colleen Trickett

<A HREF= " http://greengirlbasics.com/ " >www.GreenGirlBasics.com</A>

[Guest guest]

I can speak for Cold Process soaps using chocolate )) I have never had a

problem with mold.....and use Bakers unsweetened squares for marbling effects

in soaps -- Almond-Joy soap (Almond FO soap with chocolate swirls, Chocolate

covered Cherries (Cherry FO soap with real chocolate swirls), and a Raspberry

Truffle soap that can be seen on Irene's site (Raspberry soap, with Chocolate

swirls). However, I have never made a whole batch colored in chocolate....

so don't know about that. The chocolate squares are predominantly cocoa

butter....and normally the small amount I use for marbling is figured in as a

superfatter. I melt down a couple of squares, keep warm, and add a bit of

soap just prior to trace, and stir well:) After my main batch is poured, I

drizzle on top and swirl with a small skinny spatula or a butterknife. If

used in M & P, have no idea if chocolate would mold.

Bekka

[Guest guest]

Can any one give me some advise on the following. My son has been cf/gf for

approx. 7 months. He has been diagnosed with epilepsy and autism. I notice

that whenever his seizures start to increase his digestive system goes out

of whack as well. He gets a lot of undigested food in his bm. I asked my

pediatrician about this and he suggested that since some food is not being

broken down maybe he is passing his medication as well. Can anyone tell me

if they encountered this problem of undigested food and how they corrected

it. Please email me off list. at roccacc@....

thank you.

> [ ] Digest Number 648

>

>

>

[Guest guest]

hi it is shirley iam ok having trouble with the web and hope every body

has a nice valatine day and not to bad hear in ga it is warm out side

well nothing been happen hearboring nothing to do right now i still have

pain well god bless you all are they most nice people hear we all are

one we stand hear on a long road praying for eash outher trying to help

our friends with unstanding love care and hope peace of mind thath some

day we will find a cure help set all of us free from the pain

god bless every body love

[Guest guest]

Jolene.

Yes, of course Gray still operates. By the way, he performed my surgery.

Regards,

Buttonjo@... wrote:

> I'm wondering if Dr. Gray

> still operates? ? Jolene

[Guest guest]

Dear Kathleen,

Thanks for the support. You read it wrong though, my insurance has approved

me going to UC-Medical Center's Dr. Munish Gupta ( Benson's

partner), but the denial can come from them-UC Medical Center. It is a

teaching hospital connected to Shriners Scoliosis Center. I guess I'll go to

UCSF Bradford or Hu if I'm denied at UCD. I'm wondering if Dr. Gray

still operates? ? Jolene

......1960 fusion needing revision/reconstruction.

[Guest guest]

Hi Lynn,I have had Panic disorder with depression and

agouraphobia...Zanax is a anti-anxiety drug..I take Klonopin for anxiety

for me it has been a wonderful drug along with the anti-depressant

Celexa...I am sensitive to many drugs and after going threw many and

their side effects,,became med phobic!! But Celexa has been a God send

and gave my life back! I was housebound for a year with agouraphobia!!

Could go out of the house!! I wouldnt even go threw a fast food drive

thru..would send me into Panic!! I was diagnosed with HCV about 3 months

ago but my virus is so low it is undetectable,I go back in March for

retest...But the thing is,I wanted to let you know about Celexa it has

the lowest side effects of all the SSRI...Check it out..It did wonders

for me..I now work,travel and do normal things again...: ) There is an

occasional blue moment but I am able to put a positive with a negative

now!! Where before I was ready to end my life as I knew it!! It was that

bad..

[Guest guest]

Hi Doug

I really hope you can stay away from the EVIL CANDY.

I've been on it since November 2005 (other than a few

weeks break until my last flare-up). I just tapered

down to 10mg today (YEAH!) and I go for my 3rd Xolair

shot next week. I'm on the lowest Xolair being 1 shot

once per month, but I really hope this time next year

I won't be needing the CANDY anymore!!

Pamela

Kingston, Ontario

__________________________________________________

[Guest guest]

>

> Hi Doug

>

> I really hope you can stay away from the EVIL CANDY.

> I've been on it since November 2005 (other than a few

> weeks break until my last flare-up). I just tapered

> down to 10mg today (YEAH!) and I go for my 3rd Xolair

> shot next week. I'm on the lowest Xolair being 1 shot

> once per month, but I really hope this time next year

> I won't be needing the CANDY anymore!!

>

> Pamela

> Kingston, Ontario

>

> __________________________________________________

>

Pamela,

I have been on Xolair since September, 2003. Starting in 2004, I have

only neded the Evil Candy during the hot summer months and then a

small dose.

Finally, I am off the stuff for my asthma, now it seems I will have to

have a more potent steroid for totally different problem.

I see the Neurosurgeon Tuesday and I am going to beg him NOT to make

me take any steriods.

Doug

[Guest guest]

>

> Doug,

>

> I too hope you can get off the stuff also. Just last week I was

> reduced to 5mg down from 7.5mg every other day. This morning, I began

> having a little congestion and some of the coughing has returned. I

> really hope this is not a prelude of things to come. In the past, when

> I managed to taper down from pulse doses of Prednisone the my Asthma

> symptoms always came back. I have been on the 7.5 mg every other day

> for quite a while and only this week was I reduced to the 5 mg. I am

> very hopeful this coughing, etc. is only a temporary thing. We have

> had a lot of storms and wind lately so maybe the allergins are high this

> week and when they go back down this stuff will go away. Guess the only

> thing I can do is keep crossing my fingers.

>

> Steve

> Topeka, Kansas

>

>

Thanks Steve,

Congratulations on your Evil Candy reduction.

I have not been on any since last year and it feels GREAT!

Most of my life, I have been off and on it; sometimes up to 40 mg day at times.

It is so wonderful not to have to take it.I am just worried that I might have to

go back on steroids again, this time for the disks in my neck.

Hey, I thought we were in tornado alley here in NW Arkansas.....living

in Topeka, I am sure you guys have more than we do here. These last

few days have been rough for us.

Doug

[Guest guest]

Steve,

If you feel that you have symptoms at 5mg, please call your physician and ask

if you can do 6mg or 6.5 mg. Some people are reqally sensitive to the 'evil

candy' and need to decrease by 1 mg at a time. Good l uck. We'll pray for

better weather too!

Pat

---------------------------------

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