Re: Re: hip / Peggy

[Guest guest]

Wow! I have been told that same thing over a million times! We know our own bodies and I have found a wonderful neuro surgeon in Austin, Texas....his name is Dr. Webb, at St. s Hospital. Every doctor i have seen in the past had always commented, your hardware looks great....never bothering to measure the curve, cause they knew I had scoliosis so they knew there would be a curve present. Finally after over ten years of trying to get answers....(my initial surgeon died in a head on car accident in 2002)....no doctors want to touch my spine as they are scared as they are not familar with my instrumentation... (moss-miami) only used from 1994-1998, and mine was placed in 1997. They stopped this style because of massive loss of currection approx 10 years after surgery. Just last week, my new neuro doc did find that the left proximal hook has popped off

from then new curve in my thorasic. Man oh man, what we all have to indure! It takes alof of positive thinking to get thru! My heart goes out to each and every one of us! I am always here shoudl you just wanna vent!

Kim McGee

Austin, TX

From: Peggy Greene <jpgunlimited@...>Subject: Re: [ ] Re: hip / Peggy Date: Thursday, December 2, 2010, 6:18 PM

I saw the local orthopedist today and he feels all my hip problems are stemming from the toggling screw in the left iliac. He won't evaluate me any further even though I told him I feel it's the muscles reacting to the movement, like the tighten up, etc. He told me he will let Dr. Hey deal with it. I have a feeling that Dr. Hey will say there is nothing wrong with the hardware and just send me back to the pain clinic. I don't want pain meds because I feel this can be solved with some PT!!! I am going to contact my PT friend and ask him if could somehow evaluate me and I just pay out of pocket for the evaluation. I really feel that he or a massage therapist could figure out exactly what is going on and possibly fix it. Ugh!

Peggy

[ ] Re: hip / groin / ab / glut pain and diagnosis - the LONG version

Hi Kam,I too suffer from hip pain. I had multiple series of xrays done before revision and post revision and nothing has changed. I have DDD, and borderline osteoporosis and my hip "locks up". All I can say to that is thank God for my PT. She works it when I go in. My point is revision did not contribute to my already deteriorated hip situation. Did I have hopes going into revision that it would alleviate the hip pain? sure I did but it only alleviated the pressure caused by my upper torso weight on it. I guess I never talk about it since I already knew the state of my hips and know it hasn't changed. I sincerely hope you find relief. It can be very painful. C> > >> >> > ,> >> > Thank you for your response. I did a quick search to see what your> > history was like and a few things jumped out at me...> >> > In my case, I didn't think to ask Dr. Bridwell what my options were in> > the short time he was in the room, so I turned to Bernie and Jackie in> > desperation and asked what I was supposed to do about my pain. I> > typically, albeit inadvertently, minimize how much my pain affects me,> > but with the leave situation at work and my OB-GYN encouraging me to go> > back to St. Louis, I was sufficiently frustrated to press the issue.> > Have you spoken with

either of them (Bernie/Jackie) about your concerns?> > Have they offered any advice?> >> > I asked Bernie to speculate when I made my appointment and she said she> > had no idea what Dr. B might say, but it wouldn't hurt to ask about pain> > management before you get to St. Louis, especially since you are> > traveling so far.> >> > What I gathered from Dr. Nunley's explanation blended with my> > independent research (of peer-reviewed articles), a lot of people have> > abnormally shaped hip joints, i.e. fat femur necks and/or extra socket> > "overhang" <-- my lay terms, not his - which results in> > femoro-acetabular impingement (FAI). But MOST people are able to> > compensate with pelvic tilt, lordosis, muscle strength, etc. and many> > will never know they have these common abnormalities because of their>

> ability to compensate.> >> > Case in point, my hips have clicked and popped as long as I can> > remember, but I didn't think that was odd since so many other joints do> > this. However, since our pelvises are "fixed" through fusion to the> > sacrum and/or cages, we lose one very noteworthy method of compensation;> > we can't tilt our pelvises when we bend our legs (to go up or down> > stairs, kick a ball, stretch our hamstrings and quads, etc.) so the> > impingement is amplified, or at least more notable to the cartilage it> > encounters (and in my case impinges) when we bend from the hip. Dr.> > Nunley indicated I am not the first post-revision patient he's seen with> > similar problems and I can't remember if I posted this before, but my> > mom overheard a phone conversation in the hall at the hospital and> > thought

the man was talking about me because of the similarities in what> > he described (someone else with harrington rods, revision, etc., who had> > a shredded labrum and would likely need hip replacement later).> >> > I don't want to be an alarmist, and as the posts have clearly> > demonstrated of late, we all have unique experiences, but whether your> > pain is coming from your hip or your neck, a trip to a physical medicine> > and rehab doc at Wash U would be well worth the trip. Since they> > specialize in diagnostics and are far less likely to be blinded by our> > bling, they may be your best bet.> >> > If I had it to do over again, I would have asked Dr. Bridwell directly> > about pain management and who he would recommend. I can't guarantee> > you'll get the same kind of turn-around I did, but it never hurts to> >

ask! The few times I have requested referrals from him over the years,> > he's been very good about giving them.> >> > I pray your trip to STL will be positive and lead to pain relief!> >> > Kam (in OK)> >> > > >>