Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Dear Jackie, I had both these problems so badly before explantation surgery, I thought I was going totally NUTS! The wringing & BONGING in the ears was worse at night after I tried to go to bed & would even wake me numerous times before I ever reached deep sleep. The tremors pretty much hit me when I was in some serious physical pain and was not taking enough pain medication soon enough to keep them from happening. Since explantatation surgery, I have had very few episodes of ear wringing, yet nothing like I ever had before. And I've had very few episodes of tremors, unless I've been on trips to Seminars, to FDA Hearings, where the days are very long with no breaks, etc. and I neglect to take my pain meds. Yes, many have both these problems! Most sincerely, MM / NSIF Martha Murdock, DirectorNational Silicone Implant FoundationDallas, Texas Headquarters -----Original Message-----From: Jackie <poopie@...> egroups < egroups>Date: Thursday, January 04, 2001 11:51 PMSubject: Questions? Has anyone ever experienced ringing in the ears or tremors. I have had ringing in the ears for at least 5 yrs now if not longer and I do know that it is associated with Candida & Hypoglycemia but it was only just recently that I read other woman noticed that symptom as well. Does it go away after explantation? The tremors have been strong for the past year but have been trying to surface for several years now. Anyone else get them? Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hi Girls, Ooohh -- those 'twitches' were so much fun! When I first got involved in this issue in '94, I would go to meetings listening to the women & doctors in the DFW area talking about the " Voo-Doo Twitches " when you went to bed at night, along with the " bonging in the ears " , etc. & realized I was having all the same symptoms as everyone else. 'Made me feel somewhat better to know that I was not simply the only " Nut-Case " out there. Actually the " Voo-Doo Twitches " are referred to in medical language as Katatonic Twitches, and are quite typical for implant women to have. I had them so badly, before I was finally explanted, that I thought the next on would surely send me clear up to the ceiling before I would land back in the bed. I have had some brief periods of all these things with each surgery I've had since explantation, when the inflammation in my body gets stirred up really good. In fact, since my recent leg surgery, I have had a bit of all of this, yet nothing to compare with what I had before explantation! Love to all, MM / NSIF Martha Murdock, Director National Silicone Implant Foundation Dallas, Texas Headquarters -----Original Message----- From: <carina063@...> egroups < egroups> Date: Friday, January 05, 2001 12:14 AM Subject: Re: Questions? >Jackie hey girl it is me again. I never had ringing in the ears but I >did get some twitches in the beginning..these have all resolved. I >also had bad shoulder and neck pain and back pain which are >gone.....what I still have is dizziness, spaceyness, and achy >feet...sometimes my knees too, but that may be something that I had >from years of running obsessivly ! LOL I wouldn't be surprised >though if you have tinitus...has any Dr told you that you might have >that? My dad has it...no implants though. Ha HA......anyway it could >be your implants or maybe not.....I think inside we all have that >voice that tells us when something is wrong...I wish I would have >listened to my inner voice long ago...... > GOOD LUCK GIRL! > > > > > > > > >In egroups, " Jackie " <poopie@t...> wrote: >> Has anyone ever experienced ringing in the ears or tremors. I have >had ringing in the ears for at least 5 yrs now if not longer and I do >know that it is associated with Candida & Hypoglycemia but it was >only just recently that I read other woman noticed that symptom as >well. Does it go away after explantation? >> >> The tremors have been strong for the past year but have been trying >to surface for several years now. Anyone else get them? >> >> Jackie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Jackie hey girl it is me again. I never had ringing in the ears but I did get some twitches in the beginning..these have all resolved. I also had bad shoulder and neck pain and back pain which are gone.....what I still have is dizziness, spaceyness, and achy feet...sometimes my knees too, but that may be something that I had from years of running obsessivly ! LOL I wouldn't be surprised though if you have tinitus...has any Dr told you that you might have that? My dad has it...no implants though. Ha HA......anyway it could be your implants or maybe not.....I think inside we all have that voice that tells us when something is wrong...I wish I would have listened to my inner voice long ago...... GOOD LUCK GIRL! In egroups, " Jackie " <poopie@t...> wrote: > Has anyone ever experienced ringing in the ears or tremors. I have had ringing in the ears for at least 5 yrs now if not longer and I do know that it is associated with Candida & Hypoglycemia but it was only just recently that I read other woman noticed that symptom as well. Does it go away after explantation? > > The tremors have been strong for the past year but have been trying to surface for several years now. Anyone else get them? > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Thanks for the info Martha. I really appreciate it and hope that my symptoms subside when I have the explant done. Jackie ----- Original Message ----- From: MARTHA egroups Sent: Thursday, January 04, 2001 4:09 PM Subject: Re: Questions? Dear Jackie, I had both these problems so badly before explantation surgery, I thought I was going totally NUTS! The wringing & BONGING in the ears was worse at night after I tried to go to bed & would even wake me numerous times before I ever reached deep sleep. The tremors pretty much hit me when I was in some serious physical pain and was not taking enough pain medication soon enough to keep them from happening. Since explantatation surgery, I have had very few episodes of ear wringing, yet nothing like I ever had before. And I've had very few episodes of tremors, unless I've been on trips to Seminars, to FDA Hearings, where the days are very long with no breaks, etc. and I neglect to take my pain meds. Yes, many have both these problems! Most sincerely, MM / NSIF Martha Murdock, DirectorNational Silicone Implant FoundationDallas, Texas Headquarters -----Original Message-----From: Jackie <poopie@...> egroups < egroups>Date: Thursday, January 04, 2001 11:51 PMSubject: Questions? Has anyone ever experienced ringing in the ears or tremors. I have had ringing in the ears for at least 5 yrs now if not longer and I do know that it is associated with Candida & Hypoglycemia but it was only just recently that I read other woman noticed that symptom as well. Does it go away after explantation? The tremors have been strong for the past year but have been trying to surface for several years now. Anyone else get them? Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 I'm so glad you are slowly starting to feel better. The ringing in my ears are constant and definately more noticeable when there is silence like at bedtime. I also get the sore shoulder and neck but I can associate mine to eating sugar. When I veer off my strict Candida diet like I have over Xmas, I get pain in my left shoulder and stiff neck or sore neck. When I lay off the sugar I feel much better. The funny thing is that because I only notice the ringing at quiet times I have never thought to discuss with the doctor. It could very well be tinnitis. Jackie ----- Original Message ----- From: egroups Sent: Thursday, January 04, 2001 9:40 PM Subject: Re: Questions? Jackie hey girl it is me again. I never had ringing in the ears but I did get some twitches in the beginning..these have all resolved. I also had bad shoulder and neck pain and back pain which are gone.....what I still have is dizziness, spaceyness, and achy feet...sometimes my knees too, but that may be something that I had from years of running obsessivly ! LOL I wouldn't be surprised though if you have tinitus...has any Dr told you that you might have that? My dad has it...no implants though. Ha HA......anyway it could be your implants or maybe not.....I think inside we all have that voice that tells us when something is wrong...I wish I would have listened to my inner voice long ago...... GOOD LUCK GIRL!In egroups, "Jackie " <poopie@t...> wrote:> Has anyone ever experienced ringing in the ears or tremors. I have had ringing in the ears for at least 5 yrs now if not longer and I do know that it is associated with Candida & Hypoglycemia but it was only just recently that I read other woman noticed that symptom as well. Does it go away after explantation? > > The tremors have been strong for the past year but have been trying to surface for several years now. Anyone else get them? > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 It sounds to me like your RA is not yet controlled by the medications you are on and you are likely to need either a higher dose of the medicines or a different medicine or both. Here's a link to some general information about medicines for RA. http://www.arthritisinsight.com/medical/meds/ Stress can make RA worse or cause flares but there are a lot of kinds of stress. Loss of income is one form of stress. Stress management classes or medications may be able to help with stress. While Prednisone is good for a short time to permit you to function, you should get off it as soon as you can function without it. That was about a year and a half for me but others take more or less time. I hope you are able to find the right combination of medicines to permit you to feel good again and I hope you are able to have children when you want them. Goiod luck and God bless. ----- Original Message ----- From: jillbean76 Rheumatoid Arthritis Sent: Tuesday, October 21, 2003 11:08 AM Subject: Questions? I was diagnosed with RA about a year ago, at age 26, because of swelling and pain in my hands and knees. At that time, they told me that I probably wouldn't progress too much further in the next 5-10 years as long as I maintained meds, etc. Sunday night I woke up in tears from pain in my neck and back that wouldn't be relieved. I went to the ER and they diagnosed it as part of the RA. They gave me 60mg of Prednisone daily for 5 days and Percocet for the pain. Two days later, I'm much better but still have stiffness in my neck and back. I'm going to my Rheumy today as directed by the ER doc. Is this a flare up? Does this mean I'll have neck and back problems ongoing? The knees and hands weren't that bothersome but this makes me wonder about continuing to work and be in good health in general. I'm still wanting to have children in the near future and being out of commission for 2 days is a little distressing when you are wanting to have a baby?!?!? Wondering if anyone can relate or have any advice for me? I'm thinking about quitting my job due to stress, as I'm wondering if that is why this was brought on so suddenly. Any advice would be appreciated?!?! Quote Link to comment Share on other sites More sharing options...
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