Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Last time this happened to this degree was when I was off my thyroid meds. Since I went to county the first time, I've been back on them but with 3 months between drawing my blood and my next doctors appointment, I have no idea if it's thyroid related or not. And I do believe that there is a neck issue involved. They are always so much worse when I fall asleep in my chair with no neck support...and with the hours I've worked on my temp job the last two weeks, I've been falling asleep in my chair lot. But soon I'll be able to see real doctors again and will get some answers. Tatezi numbness > Hi.I was soo excited with Tat.s news that she got a job that I forgot about the numbness in her hands maby this helps.Alternatively put your hands in very cold and very hot water.It might stimulate the bloodvessels and nerves.I.am sure other people in the group have better advise.Willem. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Last time this happened to this degree was when I was off my thyroid meds. Since I went to county the first time, I've been back on them but with 3 months between drawing my blood and my next doctors appointment, I have no idea if it's thyroid related or not. And I do believe that there is a neck issue involved. They are always so much worse when I fall asleep in my chair with no neck support...and with the hours I've worked on my temp job the last two weeks, I've been falling asleep in my chair lot. But soon I'll be able to see real doctors again and will get some answers. Tatezi numbness > Hi.I was soo excited with Tat.s news that she got a job that I forgot about the numbness in her hands maby this helps.Alternatively put your hands in very cold and very hot water.It might stimulate the bloodvessels and nerves.I.am sure other people in the group have better advise.Willem. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Last time this happened to this degree was when I was off my thyroid meds. Since I went to county the first time, I've been back on them but with 3 months between drawing my blood and my next doctors appointment, I have no idea if it's thyroid related or not. And I do believe that there is a neck issue involved. They are always so much worse when I fall asleep in my chair with no neck support...and with the hours I've worked on my temp job the last two weeks, I've been falling asleep in my chair lot. But soon I'll be able to see real doctors again and will get some answers. Tatezi numbness > Hi.I was soo excited with Tat.s news that she got a job that I forgot about the numbness in her hands maby this helps.Alternatively put your hands in very cold and very hot water.It might stimulate the bloodvessels and nerves.I.am sure other people in the group have better advise.Willem. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Last time this happened to this degree was when I was off my thyroid meds. Since I went to county the first time, I've been back on them but with 3 months between drawing my blood and my next doctors appointment, I have no idea if it's thyroid related or not. And I do believe that there is a neck issue involved. They are always so much worse when I fall asleep in my chair with no neck support...and with the hours I've worked on my temp job the last two weeks, I've been falling asleep in my chair lot. But soon I'll be able to see real doctors again and will get some answers. Tatezi numbness > Hi.I was soo excited with Tat.s news that she got a job that I forgot about the numbness in her hands maby this helps.Alternatively put your hands in very cold and very hot water.It might stimulate the bloodvessels and nerves.I.am sure other people in the group have better advise.Willem. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi , I had some neurological problems with Graves and I don't think it is entirely too uncommen. I had a little numbness and tingling in my feet and lower limbs. However, it is definately something to get checked out soon! I am curious about your blood pressure though, it looks awfully low to me (90/50), not high. Did I misunderstand what you were saying? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Thank you so much for responding, Mona. Can you please tell me more about your numbness? Did it start as pain? Are you sensitive to touch? How were you diagnosed? How do you manage the discomfort? Does pain medicine help you? I started w/ pain on the left side, like a side ache. Over the years it increasingly got worse, lately to a ten on the pain scale-- however medication doesn't do much. It's heating pad city. I had 2 CT scans, a colonoscopy, kidney and gyno tests and a few months ago--when my head and face became numb - a brain MRI. My doc keeps insisting I don't need a full MRI. He ultimately said it's constipation and likely something from my quadriplegia - I broke my neck 18 years ago - but never suggested a neuro or ortho doc. Meanwhile my gyno is giving me Lupron for endometriosis which I doubt I have. Indeed I feel worse ten days after my last injection - which is more frustrating as all get out! The numbness/hypersensitivity started 9 months ago where the pain is and now my entire left side is numb, my arm like carrying around a brick. Being a quadriplegic I was used to not feeling parts of my body, but this is different. The tingling and hypersensitivity are as if my nerves are exposed. And the pain, always the pain. I'd really appreciate any insight you can give me. Hope I didn't ramble too much. I'm just so grateful for the internet right now. I wish I had discovered this 3 years ago. I believe with the help of people who understand the situation, that I may soon have some helpful solutions. Many thanks, Chris a message dated 11/12/2003 8:57:28 PM Central Standard Time, mhs-way@... writes: > > > Hi , > > You definitely sound hyper with weight loss and hot temperature however, > the numbness may be a nerve problem or bone/nerve compression - you should > probably see a neurologist or orthopedic surgeon to get xrays and/or an MRI. > I don't see how numbness could be associated with Graves. Did you mention > the numbness to any of your doctors? Definitely contact a neurosurgeon - I > have numbness and it's nerve compression. Keep in touch, Mona > Anyone > > > >My gyno - after rulking out cancers and kidney problems - recently > >began treating me for endometriosis (even though my periods were > >slight and very regular.) I've had 2 doses Lupron now. However after > >many web searches and visiting the endo site, I'm questioning my > >diagnosis. I'm hoping someone with hyper can tell me if they've ever > >suffered from symptoms of numbness or pain. In all the messages I've > >read, I've seen no one has mentioned either. > > > >My symptoms include: > > > >Numbness on left side from toes to tip of head. > > > >Hypersensitive to touch - hurts to even rub my nose or brush my hair. > >(on the left side.) > > > >Hot when I once dressed warmly even when 70 degrees. > > > >Loss of appetite and weight - when I was 105 to begin with. > > > > >Pain on left side for three years, increasingly worsened. > > > >My blood pressure used to be 60/40 and is now 90/50. Not high enough > >to alarm me or my doc but certainly something I notice. When > >hospialized with chest pain it was 160/80 > > > > > >I don't have the fatigue or heart palpitations as so many have > >referred to so I'm curious if anyone has ever suffered pain and > >numbness before or after diagnosis. > > > >Thanks-- > > > >All the best. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Thank you so much for your response. When were you diagnosed with Graves? Did it take doctors a while to diagnose what was wrong with you? Had you suffered numbness as a symptom? Was it chronic? Mine has been a constant since February. I'm a quadriplegic - 19 years - so it makes for low blood p. I know it would seem that paralyzed=numbness but this hypersensitivity is as if my nerve endings are exposed. The more I look on the internet - what a godsend - the less inclined I am to think I have hyperthyroidism - let alone the endo I'm being treated for. I think the pain has caused my loss of appetite, weight loss, and insomnia. I will know soon though as I had blood test / TSH today. I sure appreciate learning as much as I can though from whoever I can and sympathize with you and all those suffering from diseases I'd never heard of. My sincere thanks for reaching out-- Chris In a message dated 11/12/2003 10:00:40 PM Central Standard Time, Tmmw71@... writes: > > > Hi , I had some neurological problems with Graves and I don't think it > is > entirely too uncommen. I had a little numbness and tingling in my feet and > lower limbs. However, it is definately something to get checked out soon! > > I am curious about your blood pressure though, it looks awfully low to me > (90/50), not high. Did I misunderstand what you were saying? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 Hi , I was easy to diagnose (in 1996) and I'm in remission. My numbness is the result of a compressed nerve (we hope) in my neck. I was in pain and could turn my head - I'm better but still have a little numbness. By the way you're not rambling and you definitely need to find a doctor that will listen to you. Being numb is serious and they should continue to search for the cause instead of medicating. You may need physical therapy or surgery or something very simple. If it is at all possible can you find a different doctor? You need to continue to insist on more tests. What about a neruologist - this doctor can check the nerves in the office and check for compression, tarpal tunnel and anything related to the nerves. I was checked in the docs office with electrodes and a few needles - it's weird but helpful. Do whatever you can to find someone that will listen to you about the numbness....this is not normal. Did you have xrays to check your bones? Do you have compressed vertebraes? Or herniated discs? How in the world can constipation cause numbness? If that were the case there would be a lot of people with numb bodies. Sorry it took me so long to respond - I haven't turned on the computer since I last emailed you. Take care and keep in touch, Mona Anyone > > > > > > >My gyno - after rulking out cancers and kidney problems - recently > > >began treating me for endometriosis (even though my periods were > > >slight and very regular.) I've had 2 doses Lupron now. However after > > >many web searches and visiting the endo site, I'm questioning my > > >diagnosis. I'm hoping someone with hyper can tell me if they've ever > > >suffered from symptoms of numbness or pain. In all the messages I've > > >read, I've seen no one has mentioned either. > > > > > >My symptoms include: > > > > > >Numbness on left side from toes to tip of head. > > > > > >Hypersensitive to touch - hurts to even rub my nose or brush my hair. > > >(on the left side.) > > > > > >Hot when I once dressed warmly even when 70 degrees. > > > > > >Loss of appetite and weight - when I was 105 to begin with. > > > > > > > >Pain on left side for three years, increasingly worsened. > > > > > >My blood pressure used to be 60/40 and is now 90/50. Not high enough > > >to alarm me or my doc but certainly something I notice. When > > >hospialized with chest pain it was 160/80 > > > > > > > > >I don't have the fatigue or heart palpitations as so many have > > >referred to so I'm curious if anyone has ever suffered pain and > > >numbness before or after diagnosis. > > > > > >Thanks-- > > > > > >All the best. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I'm also six weeks post THR. When I shattered my femur almost two years ago, my PT (same one I have now for my THR) told me to rub my incision as hard as I could bear, to break up the scar tissue. That would help regenerate the nerves. I did that, and there is now just a tiny bit in the middle that is still a little numb. Considering it was originally an area a good two inches below, and an inch above a ten inch scar, I's very pleased with the result. So, I have been doing the same thing with the THR scar this time, have been rubbing hard at it, starting at two weeks as soon as the staples were out. At first I could only rub the area around it, but have been working at the scar itself now for the past couple of weeks (starting at four weeks post THR) and there's now only a section the size of a plum in the middle that has no sensation--yet. I do this several times a day, including through clothes--just whenever I think of it. I was sitting ringside at a dogshow after my first THR last spring, and someone I know who'd had a TKR noted that I was rubbing my leg. I wasn't even aware of it--I just rub at my scars automatically now! And always in bed at night I push away at it, before sleep. Also, my PT was surprised that I was sleeping on my newly operated on side, a month after surgery. I wonder if I've helped the healing process by rubbing hard in the area. Gail >> > I'm only 6 weeks out after THR, still mending, but so far, I'm much better with the nerve problems...almost totally numb around the incision, but I expected that. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 My PT says to feel along the hip surgery scar for the most sore/sensitive spot, then to press on the spot in 4 directions (12 o'clock, 3, 6 & 9) and find which is most sore. Then to gently but firmly press on the most sensitive area for a full 90 seconds. Then move on to the next most sensitive spot and keep going as much as you can tolerate. Sounds very similar to your method, Gail, just another approach. They said the point is to break up the scar tissue and help the healthy tissue heal according to proper layers. Moderator ... if you have anything to add or clarify on this subject of scar massage, feel free. Thanks. -September > >> > > I'm only 6 weeks out after THR, still mending, but so far, I'm much better with the nerve problems...almost totally numb around the incision, but I expected that. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Just a general question to throw out. When does the numbness subside where the major incision is made? My tush is non-existent to me cause I can't feel it. Thanks, Tyra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Good question Tyra, as I am in the same boat as you! However, I don't think anyone that give you an accurate and precise answer. I am now 7 weeks post-op (after a 3-stage revision that required surgeries in March, April and May) and I have numbness in my tush too, actually just the left buttock. Unfortunately, it wraps from the left buttock right around to the front of the left thigh as well. I also have neuropathy in my right foot that extends up the leg. This is all nerve stuff, & I think (?) the answer really is: NO ONE knows. Nerves regenerate most times, but it can take a while. Well after the fusion takes hold, I've been told. So I think patience is the key. Let's hope our numbness subsides soon!! D (RI) > > Just a general question to throw out. When does the numbness subside where the major incision is made? My tush is non-existent to me cause I can't feel it. > Thanks, > Tyra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 I'm a little over two months post-op. The numbness patches in my buttocks/lower back area are starting to dissipate. They definitely don't feel as weird as they did when I got home two weeks post-op. I also had a muscle in my right leg that felt like it was " pulled " after surgery. It took several weeks to feel only a little better and over time slowly felt better, but this week it flared up again and feels like a " pulled " muscle. I've done nothing to " pull " it this week so I now think it is nerve damage and not a pulled muscle because a pulled muscle would have recovered fully by now. I also have neurological pain in my foot - it feels like I have a tourniquet on the right three outer toes when I'm up, and like a string is pulling my big toes when I'm lying down. (The numbness started coming back while in the hospital and got worse when I started walking in rehab. It flared up to almost pre-surgery pain levels after I returned home. They put me on Neurontin which isn't doing much for the pain but makes me drowsy/dizzy enough to go to sleep. Dr. Rand said he chose not to remove the pedicle near that nerve because he felt that he'd cleared the space enough otherwise - time will tell whether I need another surgery, or I can have a myleogram right away and another surgery right away, which I can't afford right now - I still haven't received yet alone paid all of the bills from the April surgery.) BTW after my original sugery I had a numbness patch on my right thigh (same side as the hip that donated bone) that took many years to dissipate fully. > > > > Just a general question to throw out. When does the numbness subside where the major incision is made? My tush is non-existent to me cause I can't feel it. > > Thanks, > > Tyra > > > Quote Link to comment Share on other sites More sharing options...
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