Re: Introduction...Going Crazy Itching

[Guest guest]

Dosing tables:

http://www.xolair.com/hcp/dosing.jsp

[Guest guest]

Thanks! Looks like I'm not even on the dosing table and I'm off the

chart here too.

Tawnya

> -----Original Message-----

> From: blondy2061h [mailto:blondy2061h@...]

> Sent: Friday, September 15, 2006 4:46 PM

>

> Subject: [ ] Re: Introduction...Going Crazy Itching

>

>

> Dosing tables:

>

> http://www.xolair.com/hcp/dosing.jsp

>

[Guest guest]

I'm off the chart too (1155). I get 375 mg every two weeks, I believe

that is the maximum.

Ron

On Sep 15, 2006, at 7:30 PM, Tawnya Sutherland wrote:

> Thanks! Looks like I'm not even on the dosing table and I'm off the

> chart here too.

>

> Tawnya

>

> > -----Original Message-----

> > From: blondy2061h [mailto:blondy2061h@...]

> > Sent: Friday, September 15, 2006 4:46 PM

> >

> > Subject: [ ] Re: Introduction...Going Crazy Itching

> >

> >

> > Dosing tables:

> >

> > http://www.xolair.com/hcp/dosing.jsp

> >

>

>

>

[Guest guest]

tawnya,

i too am always itching and scratching. i have mod/severe eczema which is

usually pretty well controlled, but times like now, its flaring (and its been

since july - ARGH!!) do you have hives or eczema?? just wondering. i think

treatments are the same. have you used protopic or atopliclair? did they help? i

tried them, but for me, they just weren't useful.

the only thing that helps the itching for me is atarax. its a scrip (i believe

its an anti-anxiety pill, so no clue why it helps the itching). i've been on it

on/off during flares since i was about 5. it doesn't help minimize the rash,

but helps keep me from itching/scratching. (also keeps me from being tempted to

run my back down my husband's belt sander for relief! LOL). my dermo prescribed

some kind of lidocaine cream to help with the itching too, but i never filled

it ($50 copay -- i figured it was cheaper to use atarax and hope for the best).

i tried solarcaine gel (since it has lido in it) but that didn't help.

the good news -- after a few months on xolair, my eczema really calmed down.

the flares i get now are less intense than before, and i actually have days and

weeks where i have no outward signs of eczema.

=o)

heather

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[Guest guest]

Hi,

I have terrible allergic asthma and allergic rhinitis which is well

controlled with Xolair. I started on Xolair about 3 months after it

was approved, and there was not enough info for my doc to know if it

would help my poor, constantly inflamed allergic sinuses. It's been

a huge help in all my allergic areas, including allergic skin

reactions following exposure to plants. Before, I could not even

garden in long sleeves and jeans - one scratch from a plant from any

of the plant families that I'm allergic to and I would have weird

rashes crawling all over me, resulting in prednisone and antibiotics

treatments. Those are also a thing of the past now, thanks to

Xolair.

Take care, and good luck,

Addy

Group co-owner

>

> Just wanted to introduce myself here. My doctor is considering

Xolair

> for me but still has to make a few calls to some colleagues as he

is not

> familiar with it. I had my IEg tested and it was 968 ug/l and I

weigh

> 138 lbs. My doctor said I was way off the chart and that is why

he will

> get back to me with his recommendations. Is there a chart online I

> could look at to see what amount of Xolair I would require?

>

> A bit about me (besides the fact I am going mad itching all the

time)...

> my family has a history of asthma and allergies (well my brother

only

> and since my mother was adopted, we know no medical history on her

side

> but my dad had none that he is aware of). I don't have asthma at

all

> but have been diagnosed with extreme air polluntant allergies. I

have

> minor food allergies but test off the chart of air things like

pollens,

> etc.

> My symptom are hives all over my body. This all hit me when I

turned 40

> having nothing before then. I have started a website to keep a

diary of

> my illness and you can read about it here and see pics of how bad

my

> face will get. www.theitchingwall.com

>

> Glad to find a group and hope that Xolair may be my itching answer.

>

> Warmly,

> Tawnya

>

> -------------------------------------------------------------

> Tawnya Sutherland, CIMBS, CCVA ~ www.mediamage.com 604-542-9664

> Founder of The Virtual Assistant Networking (VAN) ~

www.vanetworking.com

> ~ 2900+ Members

> Dr. Phil Show even recommends us: www.VAnetworking.com/news.htm

> Author of VAS - The Virtual Assistant Start-up System

> Subscribe to Tawnya's TNTs ~ Tips N' Tactics

> www.virtualassistantshop.com/newsletter.htm

>

[Guest guest]

A virtual friend did a bit of research on my high IEg levels and

concluded the following: " OK, I've been doing a little research. I

think we are talking about 2 completely different units of measure here.

Your IgE level is given in ug/l. Xolair measures it using IU/ml. Not

only are the liters and milliliters different, but the ug and IU are

different. I found this conversion factor online:

IgE (Immunoglobin E)

To convert ìg/L IgE to IU/mL, multiply ìg/L by 0.417. To convert IU/mL

IgE to ìg/L, multiply IU/mL by 2.4. IgE of 300 ìg/L = 125 IU/mL.

Here's the website where I found this:

http://www.editorialmanager.com/adaj/account/style.pdf#search=%22convert

%20iu%2Fml%20ige%22

It appears that ug/l and ìg/L both stand for micrograms per liter. If

the above conversion factor is correct, your IgE level would be 403

IU/ml. It's still quite high, but it's on the Xolair chart! If I'm

reading the Xolair chart correctly, you would need 2 shots every 2

weeks. "

So maybe I am not as high as I originally thought although still high.

Do Canadian companies test Ieg in different measurements I wonder??

Tawnya

www.theitchingwall.com

www.mediamage.com

www.vanetworking.com

[Guest guest]

Welcome Tawnya! Fancy meeting you here! ;-)

This group is full of so many wonderful Xolair success stories! Glad

you decided to join us!