An Introduction

[Guest guest]

Welcome , and I am sorry to hear about your mother . With each person the side effects can vary .......from flu like symptoms to hair loss . But almost all of the side effects can be treated .

an introduction

hello everybody...I would have said hello earlier but my mother passed away suddenlyjust after I registered for membership with this group and I have beenin grief for her passing. She was chronically disabled and I was hercarer since 1992. She is at peace now and it is time for me to seekkindred souls regarding my own health issues.I am HepC+. I have type 1 and 3. Right now it is managed by diet but Iexpect to start antiviral treatment in the next few weeks. Can anybodytell me what I should expect? cheersSydney Australia

[Guest guest]

Hi Danny Welcome back hon,, and Im sure sorry you are having such a bad time of things lately,, and Im hoping that once you get your angio and stents that you will start to feel a lot better.. let us know when you are home and feeling better,, we will keep you in our prayers for a fast recovery. hugs, jaxDT <dannytodd@...> wrote: Hello everyone.I'm a newbie too although I'm sure that I was here a few years ago. I didn't think that I would be posting

this soon as I was scheduled for a triple coronary artery by-pass operation yesterday. I made it as far as the operating table. All hooked up 5 minutes from the anaesthetic when they cancelled due to an emergency case. They could have operated on me but there wasn't another Intensive Care bed available. All open heart ops go to ICU for 24 to 48 hours post op here.I am 53 years old. I live in Canberra Australia and have been HCV pos since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of treatment but unfortunately the virus returned 3 months post treatment. I contracted hepatitis when I had a blood transfusion whilst undergoing renal dialysis in the Royal Newcastle Hospital.Of course then I was diagnosed with non A - non B hepatitis. I found out it was HCV about 12 years ago after a life insurance examination. My LFT's have always been pretty good and it hasn't really affected my life too much but I do

think it has contributed to my cardiac problems. For the last 4 years the doctors have been treating me for suspected ulcer and gall bladder pain and I think the fact I was HCV pos made this a easy diagnosis. During this time I have had colonoscopys, gastroscopys, ultra scans of everything in my abdomen (all normal) unbelievable amounts of anti gastric type medications but no heart type investigations which didn't bother me because I believed I had a strong heart although I have become increasingly tired and weak which I attributed to my HCV and age..I now know that I do not have ulcers or gall bladder problems. I didn't get to have a ECG until 6 days after I suffered a heart attack. I had been in agony for 16 days but the doctors kept telling me that it was gastrointestinal pain and that they were doing all that they could I didn't even realise that I had suffered the heart attack until after the ECG. I was admitted

to the coronary care unit had a angiogram and told that I had 3 blocked arteries all too blocked for stents.Anyway now I am re booked for Thursday the 23rd of August for the bypass so good luck to me for then.DannyJackie

[Guest guest]

Welcome to the group , I will be keeping you in my prayers for your surgery . Please let us know how it goes ? Allot of doctors get tunnel vision when they treat someone with hep c . They tend to think all our problems arise from the hep and so they miss important elements when they care for us .

An introduction

Hello everyone.I'm a newbie too although I'm sure that I was here a few years ago. I didn't think that I would be posting this soon as I was scheduled for a triple coronary artery by-pass operation yesterday. I made it as far as the operating table. All hooked up 5 minutes from the anaesthetic when they cancelled due to an emergency case. They could have operated on me but there wasn't another Intensive Care bed available. All open heart ops go to ICU for 24 to 48 hours post op here.I am 53 years old. I live in Canberra Australia and have been HCV pos since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of treatment but unfortunately the virus returned 3 months post treatment. I contracted hepatitis when I had a blood transfusion whilst undergoing renal dialysis in the Royal Newcastle Hospital.Of course then I was diagnosed with non A - non B hepatitis. I found out it was HCV about 12 years ago after a life insurance examination. My LFT's have always been pretty good and it hasn't really affected my life too much but I do think it has contributed to my cardiac problems. For the last 4 years the doctors have been treating me for suspected ulcer and gall bladder pain and I think the fact I was HCV pos made this a easy diagnosis. During this time I have had colonoscopys, gastroscopys, ultra scans of everything in my abdomen (all normal) unbelievable amounts of anti gastric type medications but no heart type investigations which didn't bother me because I believed I had a strong heart although I have become increasingly tired and weak which I attributed to my HCV and age..I now know that I do not have ulcers or gall bladder problems. I didn't get to have a ECG until 6 days after I suffered a heart attack. I had been in agony for 16 days but the doctors kept telling me that it was gastrointestinal pain and that they were doing all that they could I didn't even realise that I had suffered the heart attack until after the ECG. I was admitted to the coronary care unit had a angiogram and told that I had 3 blocked arteries all too blocked for stents.Anyway now I am re booked for Thursday the 23rd of August for the bypass so good luck to me for then.Danny

[Guest guest]

I have made it home but I'm still feeling sore and sorry for myself but

relieved to have made it out the other end. My brother took this

picture approx 4 hours after surgery. They operated at 8am

Tuesday,finished approx 12pm, extubated me at 7pm. I stayed in ICU

until 12.30pm Wednesday when I was transferred to the post surgery

ward. Stayed there until Sunday 2pm when I was discharged. I would have

made it home a couple of days earlier only I had a episode of Atrial

Fibrillation (200 beats per minute for 7 hours) My liver performed

exceptionally well throughout my ordeal. It must still love me even

after the way I have treated it.

Thank you for your prayers.

Danny

elizabethnv1 wrote:

Welcome to the group , I will be

keeping you in my prayers for your surgery . Please let us know how it

goes ? Allot of doctors get tunnel vision when they treat someone with

hep c . They tend to think all our problems arise from the hep and so

they miss important elements when they care for us .

-----

Original Message -----

From:

DT

To:

undisclosed-recipients:

Sent:

Tuesday, August 14, 2007 11:03 PM

Subject:

An introduction

Hello everyone.

I'm a newbie too although I'm sure that I was here a few years ago. I

didn't think that I would be posting this soon as I was scheduled for a

triple coronary artery by-pass operation yesterday. I made it as far as

the operating table. All hooked up 5 minutes from the anaesthetic when

they cancelled due to an emergency case. They could have operated on me

but there wasn't another Intensive Care bed available. All open heart

ops go to ICU for 24 to 48 hours post op here.

I am 53 years old. I live in Canberra Australia and have been HCV pos

since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of

treatment but unfortunately the virus returned 3 months post treatment.

I contracted hepatitis when I had a blood transfusion whilst undergoing

renal dialysis in the Royal Newcastle Hospital.Of course then I was

diagnosed with non A - non B hepatitis. I found out it was HCV about 12

years ago after a life insurance examination. My LFT's have always been

pretty good and it hasn't really affected my life too much but I do

think it has contributed to my cardiac problems. For the last 4 years

the doctors have been treating me for suspected ulcer and gall bladder

pain and I think the fact I was HCV pos made this a easy diagnosis.

During this time I have had colonoscopys, gastroscopys, ultra scans of

everything in my abdomen (all normal) unbelievable amounts of anti

gastric type medications but no heart type investigations which didn't

bother me because I believed I had a strong heart although I have

become

increasingly tired and weak which I attributed to my HCV and age..I now

know that I do not have ulcers or gall bladder problems. I didn't get

to

have a ECG until 6 days after I suffered a heart attack. I had been in

agony for 16 days but the doctors kept telling me that it was

gastrointestinal pain and that they were doing all that they could I

didn't even realise that I had suffered the heart attack until after

the

ECG. I was admitted to the coronary care unit had a angiogram and told

that I had 3 blocked arteries all too blocked for stents.

Anyway now I am re booked for Thursday the 23rd of August for the

bypass

so good luck to me for then.

Danny

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/973 - Release Date: 8/25/2007 5:00 PM

[Guest guest]

I am happy to hear you came through the surgery with no problems . Glad to see you back !

Re: An introduction

..

[Guest guest]

Hi DT Glad to hear the surgery went well. I too am a 50+ HCV-1A sufferer. I agree with you 100% that HCV can affect the heart. I too had a very strong healthy heart. I never had high blood pressure until I got or found out I had HCV. I had a CAT Scan and they found a 4.0cm dilation in the wall of the ascending Aorta. I eat better now and last check it was 3.6cm. HCV makes us less active because we are tired more often. I try to walk, but if I over do it I pay for it. I also suffer from severe depression, so I've tryed everything else first for HCV before I gave in to Interf/Rib treatments. I have no choice, I am at least 443. I am still hoping for a miracle before I start treatment. I feel your pain brother. Take care!! DT <dannytodd@...> wrote: I have made it home but I'm still feeling sore and sorry for myself but relieved to have made it out the other end. My brother took this picture approx 4 hours after surgery. They operated at 8am Tuesday,finished approx 12pm, extubated me at 7pm. I stayed in ICU until 12.30pm Wednesday when I was transferred to the post surgery ward. Stayed there until Sunday 2pm when I was discharged. I would have made it home a couple of days earlier only I had a episode of Atrial Fibrillation (200 beats per minute for 7 hours) My liver performed exceptionally well throughout my ordeal. It must still love me even after the way I have treated it.Thank you for your

prayers.Dannyelizabethnv1 wrote: Welcome to the group , I will be keeping you in my prayers for your surgery . Please let us know how it goes ? Allot of doctors get tunnel vision when they treat someone with hep c . They tend to think all our problems arise from the hep and so they miss important elements when they care for us . An introduction Hello everyone.I'm a newbie too although I'm

sure that I was here a few years ago. I didn't think that I would be posting this soon as I was scheduled for a triple coronary artery by-pass operation yesterday. I made it as far as the operating table. All hooked up 5 minutes from the anaesthetic when they cancelled due to an emergency case. They could have operated on me but there wasn't another Intensive Care bed available. All open heart ops go to ICU for 24 to 48 hours post op here.I am 53 years old. I live in Canberra Australia and have been HCV pos since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of treatment but unfortunately the virus returned 3 months post treatment. I contracted hepatitis when I had a blood transfusion whilst undergoing renal dialysis in the Royal Newcastle Hospital.Of course then I was diagnosed with non A - non B hepatitis. I found out it was HCV about 12 years ago after a life insurance examination. My LFT's have

always been pretty good and it hasn't really affected my life too much but I do think it has contributed to my cardiac problems. For the last 4 years the doctors have been treating me for suspected ulcer and gall bladder pain and I think the fact I was HCV pos made this a easy diagnosis. During this time I have had colonoscopys, gastroscopys, ultra scans of everything in my abdomen (all normal) unbelievable amounts of anti gastric type medications but no heart type investigations which didn't bother me because I believed I had a strong heart although I have become increasingly tired and weak which I attributed to my HCV and age..I now know that I do not have ulcers or gall bladder problems. I didn't get to have a ECG until 6 days after I suffered a heart attack. I had been in agony for 16 days but the doctors kept telling me that it was gastrointestinal pain and that they were doing all that they could I didn't even

realise that I had suffered the heart attack until after the ECG. I was admitted to the coronary care unit had a angiogram and told that I had 3 blocked arteries all too blocked for stents.Anyway now I am re booked for Thursday the 23rd of August for the bypass so good luck to me for then.Danny No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/973 - Release Date: 8/25/2007 5:00 PM

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

[Guest guest]

Welcome back Danny! Looks like you are doing well post surgery and thats great!DT <dannytodd@...> wrote: I have made it home but I'm still feeling sore and sorry for myself but relieved to have made it out the other end. My brother took this picture approx 4 hours after surgery. They operated at 8am Tuesday,finished approx 12pm, extubated me at 7pm. I stayed in ICU until 12.30pm Wednesday when I was transferred to the post surgery ward. Stayed there until Sunday 2pm when I was discharged. I would have made it home a couple of days

earlier only I had a episode of Atrial Fibrillation (200 beats per minute for 7 hours) My liver performed exceptionally well throughout my ordeal. It must still love me even after the way I have treated it.Thank you for your prayers.Dannyelizabethnv1 wrote: Welcome to the group , I will be keeping you in my prayers for your surgery . Please let us know how it goes ? Allot of doctors get tunnel vision when they treat someone with hep c . They tend to think all our problems arise from the hep and so they miss important elements when they care for us . An introduction Hello everyone.I'm a newbie too although I'm sure that I was here a few years ago. I didn't think that I would be posting this soon as I was scheduled for a triple coronary artery by-pass operation yesterday. I made it as far as the operating table. All hooked up 5 minutes from the anaesthetic when they cancelled due to an emergency case. They could have operated on me but there wasn't another Intensive Care bed available. All open heart ops go to ICU for 24 to 48 hours post op here.I am 53 years old. I live in Canberra Australia and have been HCV pos since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of treatment but unfortunately the virus returned 3 months post treatment. I contracted hepatitis when I had a blood transfusion

whilst undergoing renal dialysis in the Royal Newcastle Hospital.Of course then I was diagnosed with non A - non B hepatitis. I found out it was HCV about 12 years ago after a life insurance examination. My LFT's have always been pretty good and it hasn't really affected my life too much but I do think it has contributed to my cardiac problems. For the last 4 years the doctors have been treating me for suspected ulcer and gall bladder pain and I think the fact I was HCV pos made this a easy diagnosis. During this time I have had colonoscopys, gastroscopys, ultra scans of everything in my abdomen (all normal) unbelievable amounts of anti gastric type medications but no heart type investigations which didn't bother me because I believed I had a strong heart although I have become increasingly tired and weak which I attributed to my HCV and age..I now know that I do not have ulcers or gall bladder problems. I didn't get to

have a ECG until 6 days after I suffered a heart attack. I had been in agony for 16 days but the doctors kept telling me that it was gastrointestinal pain and that they were doing all that they could I didn't even realise that I had suffered the heart attack until after the ECG. I was admitted to the coronary care unit had a angiogram and told that I had 3 blocked arteries all too blocked for stents.Anyway now I am re booked for Thursday the 23rd of August for the bypass so good luck to me for then.Danny No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/973 - Release Date: 8/25/2007 5:00 PM Jackie

[Guest guest]

Good on you buddy. Thank you very much.

Danny

Gray wrote:

Hi DT

Glad to hear the surgery went well. I too am a 50+ HCV-1A

sufferer. I agree with you 100% that HCV can affect the heart. I too

had a very strong healthy heart. I never had high blood pressure until

I got or found out I had HCV. I had a CAT Scan and they found a 4.0cm

dilation in the wall of the ascending Aorta. I eat better now and last

check it was 3.6cm.

HCV makes us less active because we are tired more often. I try

to walk, but if I over do it I pay for it. I also suffer from severe

depression, so I've tryed everything else first for HCV before I gave

in to Interf/Rib treatments. I have no choice, I am at least 443. I am

still hoping for a miracle before I start treatment. I feel your pain

brother. Take care!!

DT <dannytoddiinet (DOT) net.au> wrote:

I have made it home but I'm still feeling sore and sorry for

myself but relieved to have made it out the other end. My brother took

this picture approx 4 hours after surgery. They operated at 8am

Tuesday,finished approx 12pm, extubated me at 7pm. I stayed in ICU

until 12.30pm Wednesday when I was transferred to the post surgery

ward. Stayed there until Sunday 2pm when I was discharged. I would have

made it home a couple of days earlier only I had a episode of Atrial

Fibrillation (200 beats per minute for 7 hours) My liver performed

exceptionally well throughout my ordeal. It must still love me even

after the way I have treated it.

Thank you for your prayers.

Danny

elizabethnv1 wrote:

Welcome to the group , I will be

keeping you in my prayers for your surgery . Please let us know how it

goes ? Allot of doctors get tunnel vision when they treat someone with

hep c . They tend to think all our problems arise from the hep and so

they miss important elements when they care for us .

-----

Original Message -----

From:

DT

To:

undisclosed-recipients:

Sent:

Tuesday, August 14, 2007 11:03 PM

Subject:

An introduction

Hello everyone.

I'm a newbie too although I'm sure that I was here a few years ago. I

didn't think that I would be posting this soon as I was scheduled for a

triple coronary artery by-pass operation yesterday. I made it as far as

the operating table. All hooked up 5 minutes from the anaesthetic when

they cancelled due to an emergency case. They could have operated on me

but there wasn't another Intensive Care bed available. All open heart

ops go to ICU for 24 to 48 hours post op here.

I am 53 years old. I live in Canberra Australia and have been HCV pos

since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of

treatment but unfortunately the virus returned 3 months post treatment.

I contracted hepatitis when I had a blood transfusion whilst undergoing

renal dialysis in the Royal Newcastle Hospital.Of course then I was

diagnosed with non A - non B hepatitis. I found out it was HCV about 12

years ago after a life insurance examination. My LFT's have always been

pretty good and it hasn't really affected my life too much but I do

think it has contributed to my cardiac problems. For the last 4 years

the doctors have been treating me for suspected ulcer and gall bladder

pain and I think the fact I was HCV pos made this a easy diagnosis.

During this time I have had colonoscopys, gastroscopys, ultra scans of

everything in my abdomen (all normal) unbelievable amounts of anti

gastric type medications but no heart type investigations which didn't

bother me because I believed I had a strong heart although I have

become

increasingly tired and weak which I attributed to my HCV and age..I now

know that I do not have ulcers or gall bladder problems. I didn't get

to

have a ECG until 6 days after I suffered a heart attack. I had been in

agony for 16 days but the doctors kept telling me that it was

gastrointestinal pain and that they were doing all that they could I

didn't even realise that I had suffered the heart attack until after

the

ECG. I was admitted to the coronary care unit had a angiogram and told

that I had 3 blocked arteries all too blocked for stents.

Anyway now I am re booked for Thursday the 23rd of August for the

bypass

so good luck to me for then.

Danny

No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/973 - Release Date: 8/25/2007 5:00 PM

Sick sense of humor? Visit TV's Comedy

with an Edge to see what's on, when.

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/974 - Release Date: 8/26/2007 4:34 PM

[Guest guest]

I am Jackie. What a relief to walk out of the hospital. My father once

told me not to walk into hospitals or police stations because you might

not walk out again!

Danny

Jackie on wrote:

Welcome back Danny! Looks like you are doing well post surgery

and thats great!

DT <dannytoddiinet (DOT) net.au> wrote:

I have made it home but I'm still feeling sore and sorry for

myself but relieved to have made it out the other end. My brother took

this picture approx 4 hours after surgery. They operated at 8am

Tuesday,finished approx 12pm, extubated me at 7pm. I stayed in ICU

until 12.30pm Wednesday when I was transferred to the post surgery

ward. Stayed there until Sunday 2pm when I was discharged. I would have

made it home a couple of days earlier only I had a episode of Atrial

Fibrillation (200 beats per minute for 7 hours) My liver performed

exceptionally well throughout my ordeal. It must still love me even

after the way I have treated it.

Thank you for your prayers.

Danny

elizabethnv1 wrote:

Welcome to the group , I will be

keeping you in my prayers for your surgery . Please let us know how it

goes ? Allot of doctors get tunnel vision when they treat someone with

hep c . They tend to think all our problems arise from the hep and so

they miss important elements when they care for us .

-----

Original Message -----

From:

DT

To:

undisclosed-recipients:

Sent:

Tuesday, August 14, 2007 11:03 PM

Subject:

[Hepatitis_C

Central] An introduction

Hello everyone.

I'm a newbie too although I'm sure that I was here a few years ago. I

didn't think that I would be posting this soon as I was scheduled for a

triple coronary artery by-pass operation yesterday. I made it as far as

the operating table. All hooked up 5 minutes from the anaesthetic when

they cancelled due to an emergency case. They could have operated on me

but there wasn't another Intensive Care bed available. All open heart

ops go to ICU for 24 to 48 hours post op here.

I am 53 years old. I live in Canberra Australia and have been HCV pos

since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of

treatment but unfortunately the virus returned 3 months post treatment.

I contracted hepatitis when I had a blood transfusion whilst undergoing

renal dialysis in the Royal Newcastle Hospital.Of course then I was

diagnosed with non A - non B hepatitis. I found out it was HCV about 12

years ago after a life insurance examination. My LFT's have always been

pretty good and it hasn't really affected my life too much but I do

think it has contributed to my cardiac problems. For the last 4 years

the doctors have been treating me for suspected ulcer and gall bladder

pain and I think the fact I was HCV pos made this a easy diagnosis.

During this time I have had colonoscopys, gastroscopys, ultra scans of

everything in my abdomen (all normal) unbelievable amounts of anti

gastric type medications but no heart type investigations which didn't

bother me because I believed I had a strong heart although I have

become

increasingly tired and weak which I attributed to my HCV and age..I now

know that I do not have ulcers or gall bladder problems. I didn't get

to

have a ECG until 6 days after I suffered a heart attack. I had been in

agony for 16 days but the doctors kept telling me that it was

gastrointestinal pain and that they were doing all that they could I

didn't even realise that I had suffered the heart attack until after

the

ECG. I was admitted to the coronary care unit had a angiogram and told

that I had 3 blocked arteries all too blocked for stents.

Anyway now I am re booked for Thursday the 23rd of August for the

bypass

so good luck to me for then.

Danny

No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/973 - Release Date: 8/25/2007 5:00 PM

Jackie

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/974 - Release Date: 8/26/2007 4:34 PM

[Guest guest]

Thats great Danny.. Your father sounds like my father he hates hosp or dentists,, lol, DT <dannytodd@...> wrote: I am Jackie. What a relief to walk out of the hospital. My father once told me not to walk into hospitals or police stations because you might not walk out again!DannyJackie on wrote: Welcome back Danny! Looks like you are doing well post surgery and thats great!DT

<dannytoddiinet (DOT) net.au> wrote: I have made it home but I'm still feeling sore and sorry for myself but relieved to have made it out the other end. My brother took this picture approx 4 hours after surgery. They operated at 8am Tuesday,finished approx 12pm, extubated me at 7pm. I stayed in ICU until 12.30pm Wednesday when I was transferred to the post surgery ward. Stayed there until Sunday 2pm when I was discharged. I would have made it home a couple of days earlier only I had a episode of Atrial Fibrillation (200 beats per minute for 7 hours) My liver performed exceptionally well throughout my ordeal. It must still love me even after the way I have treated it.Thank you for your prayers.Dannyelizabethnv1 wrote: Welcome to the group , I will be keeping you in my prayers for your surgery . Please let us know how it goes ? Allot of doctors get tunnel vision when they treat someone with hep c . They tend to think all our problems arise from the hep and so they miss important elements when they care for us . [Hepatitis_CCentral] An introduction Hello everyone.I'm a newbie too although I'm sure that I was here a few years ago. I didn't think that I would be posting this soon as I was scheduled for a triple coronary artery by-pass operation yesterday. I made it as far as the

operating table. All hooked up 5 minutes from the anaesthetic when they cancelled due to an emergency case. They could have operated on me but there wasn't another Intensive Care bed available. All open heart ops go to ICU for 24 to 48 hours post op here.I am 53 years old. I live in Canberra Australia and have been HCV pos since 1982 or so. I am genotype 1a - 1b. In 2004 I endured 48 weeks of treatment but unfortunately the virus returned 3 months post treatment. I contracted hepatitis when I had a blood transfusion whilst undergoing renal dialysis in the Royal Newcastle Hospital.Of course then I was diagnosed with non A - non B hepatitis. I found out it was HCV about 12 years ago after a life insurance examination. My LFT's have always been pretty good and it hasn't really affected my life too much but I do think it has contributed to my cardiac problems. For the last 4 years the doctors have been treating me for

suspected ulcer and gall bladder pain and I think the fact I was HCV pos made this a easy diagnosis. During this time I have had colonoscopys, gastroscopys, ultra scans of everything in my abdomen (all normal) unbelievable amounts of anti gastric type medications but no heart type investigations which didn't bother me because I believed I had a strong heart although I have become increasingly tired and weak which I attributed to my HCV and age..I now know that I do not have ulcers or gall bladder problems. I didn't get to have a ECG until 6 days after I suffered a heart attack. I had been in agony for 16 days but the doctors kept telling me that it was gastrointestinal pain and that they were doing all that they could I didn't even realise that I had suffered the heart attack until after the ECG. I was admitted to the coronary care unit had a angiogram and told that I had 3 blocked arteries all too blocked for

stents.Anyway now I am re booked for Thursday the 23rd of August for the bypass so good luck to me for then.Danny No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/973 - Release Date: 8/25/2007 5:00 PM Jackie No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.8/974 - Release Date: 8/26/2007 4:34 PM Jackie

[Guest guest]

Hi Jenni

My name is Jim O'

I founded S.I.N.B.A.D shots in baby's are deadly.

I am your neighbor here in Valparaiso In.

For more solid info on vaccines you might want to contact

Barbra Mullarkey in Chicago.708-848-0116 or 847-836-0488 Vaccine Awareness

Coalition of Ill.

or/and you can call me at 219-462-1976

Good luck, Jim

An introduction

Hi everyone,

My name is Jenni and I joined last night. I live in the south

burbs of Chicago. I am a mother of a 10 month old son and was really

starting to get worried about the MMR vaccine that is coming up at his

12 month checkup. I started doing research on the subject, and

realized there is no way I want any more vaccines for him. Of course

in everything I had read up until that point, it was telling me

vaccinations were mandatory in Illinois for children to attend school.

That got me really worried, but then I spoke to Sheri and she assured

me that they weren't and that I would have to get an exemption when he

reaches school age (it would be great if when he reached school age

that they didn't even RECOMMEND vaccines anymore)! Anyways, I just

wanted to introduce myself. Thanks for all of the information I am

getting here!

Jen Malewski

State of Illinois

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals./tc/blockbuster/text5.com

[Guest guest]

Thank you so much. I will definitely do that. Ummm..not too sound dumb here..

but S.I.N.B.A.D. shots? What does that stand for?

Jen

Jim O <jimokelly@...> wrote:

Hi Jenni

My name is Jim O'

I founded S.I.N.B.A.D shots in baby's are deadly.

I am your neighbor here in Valparaiso In.

For more solid info on vaccines you might want to contact

Barbra Mullarkey in Chicago.708-848-0116 or 847-836-0488 Vaccine Awareness

Coalition of Ill.

or/and you can call me at 219-462-1976

Good luck, Jim

An introduction

Hi everyone,

My name is Jenni and I joined last night. I live in the south

burbs of Chicago. I am a mother of a 10 month old son and was really

starting to get worried about the MMR vaccine that is coming up at his

12 month checkup. I started doing research on the subject, and

realized there is no way I want any more vaccines for him. Of course

in everything I had read up until that point, it was telling me

vaccinations were mandatory in Illinois for children to attend school.

That got me really worried, but then I spoke to Sheri and she assured

me that they weren't and that I would have to get an exemption when he

reaches school age (it would be great if when he reached school age

that they didn't even RECOMMEND vaccines anymore)! Anyways, I just

wanted to introduce myself. Thanks for all of the information I am

getting here!

Jen Malewski

State of Illinois

__________________________________________________________

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals./tc/blockbuster/text5.com

[Guest guest]

SINBAD stands for. Shots In Baby's Are Deadly.

_____

From: Vaccinations [mailto:Vaccinations ] On

Behalf Of Malewski

Sent: Friday, April 04, 2008 9:48 AM

Vaccinations

Subject: Re: An introduction

Thank you so much. I will definitely do that. Ummm..not too sound dumb

here.. but S.I.N.B.A.D. shots? What does that stand for?

Jen

Jim O <jimokelly (DOT) <mailto:jimokelly%40> com> wrote:

Hi Jenni

My name is Jim O'

I founded S.I.N.B.A.D shots in baby's are deadly.

I am your neighbor here in Valparaiso In.

For more solid info on vaccines you might want to contact

Barbra Mullarkey in Chicago.708-848-0116 or 847-836-0488 Vaccine Awareness

Coalition of Ill.

or/and you can call me at 219-462-1976

Good luck, Jim

An introduction

Hi everyone,

My name is Jenni and I joined last night. I live in the south

burbs of Chicago. I am a mother of a 10 month old son and was really

starting to get worried about the MMR vaccine that is coming up at his

12 month checkup. I started doing research on the subject, and

realized there is no way I want any more vaccines for him. Of course

in everything I had read up until that point, it was telling me

vaccinations were mandatory in Illinois for children to attend school.

That got me really worried, but then I spoke to Sheri and she assured

me that they weren't and that I would have to get an exemption when he

reaches school age (it would be great if when he reached school age

that they didn't even RECOMMEND vaccines anymore)! Anyways, I just

wanted to introduce myself. Thanks for all of the information I am

getting here!

Jen Malewski

State of Illinois

__________________________________________________________

You rock. That's why Blockbuster's offering you one month of Blockbuster

Total Access, No Cost.

http://tc.deals. <http://tc.deals./tc/blockbuster/text5.com>

/tc/blockbuster/text5.com

[Guest guest]

Ahhh..gotcha. Thanks.

le Hunt <daniellehunt@...> wrote: SINBAD stands for.

Shots In Baby's Are Deadly.

_____

From: Vaccinations [mailto:Vaccinations ] On

Behalf Of Malewski

Sent: Friday, April 04, 2008 9:48 AM

Vaccinations

Subject: Re: An introduction

Thank you so much. I will definitely do that. Ummm..not too sound dumb

here.. but S.I.N.B.A.D. shots? What does that stand for?

Jen

Jim O <jimokelly (DOT) <mailto:jimokelly%40> com> wrote:

Hi Jenni

My name is Jim O'

I founded S.I.N.B.A.D shots in baby's are deadly.

I am your neighbor here in Valparaiso In.

For more solid info on vaccines you might want to contact

Barbra Mullarkey in Chicago.708-848-0116 or 847-836-0488 Vaccine Awareness

Coalition of Ill.

or/and you can call me at 219-462-1976

Good luck, Jim

An introduction

Hi everyone,

My name is Jenni and I joined last night. I live in the south

burbs of Chicago. I am a mother of a 10 month old son and was really

starting to get worried about the MMR vaccine that is coming up at his

12 month checkup. I started doing research on the subject, and

realized there is no way I want any more vaccines for him. Of course

in everything I had read up until that point, it was telling me

vaccinations were mandatory in Illinois for children to attend school.

That got me really worried, but then I spoke to Sheri and she assured

me that they weren't and that I would have to get an exemption when he

reaches school age (it would be great if when he reached school age

that they didn't even RECOMMEND vaccines anymore)! Anyways, I just

wanted to introduce myself. Thanks for all of the information I am

getting here!

Jen Malewski

State of Illinois

__________________________________________________________

You rock. That's why Blockbuster's offering you one month of Blockbuster

Total Access, No Cost.

http://tc.deals. <http://tc.deals./tc/blockbuster/text5.com>

/tc/blockbuster/text5.com

[Guest guest]

I love the grindstone saying.

Jim

________________________________

From: Anjelina <anjelinac26@...>

Vaccinations

Sent: Tuesday, August 25, 2009 2:50:30 AM

Subject: An introduction

 

Hi there group,

What a great resource. I heard about the group from an attachment parenting

group.

I'm a first time mom. My daughter is six months. I never thought about

vaccinations until I had my daughter. I assumed so many things, but once I

started reading more about what goes into the shots I really started to worry.

She did have the first round of shots. I feel so intimidated by doctors and

family members about not wanting to vaccinate. I am so glad to find this group.

A & K

" Life is a grindstone. Whether it grinds you down or polishes you up is up to

you. "

~ L. Holdcroft

[Guest guest]

Hello. My name is Deborah and i Have just joined your group. I had my

scoliosis surgery about twenty years ago. I was hoping in joining this group

that I might be able to find some answers. Unlike many in this group i have not

consulted with a doctor regarding my back problems in about ten years. I

finally got tired of hearing that I had to lose weight. I understand that

weight may be relative to pain, but Ive had pain since day one of surgery. ive

had stiffness all over my body, headaches, seizures, muscle spasms, ive shrunk

about 3 inches in the last several years and recently terrible lower back and

stomach pain has started. From the reading ive done I know that maintaing my

weight is important. Has anyone else struggled with this? I have had so many

health problems over the last so many years and Im relatively sure that most is

probably attributed to my back surgery in one form or another.

[Guest guest]

Hey ,I'm originally from ville Alabama. I had my scoli surgery in '78. My parents took me to The Dr.s at Scotish Rite in Atlanta. I started having similar issues last year. lower back pain, down the legs. I live in Roswell GA now. I found a Doctor from some of the women on this forum. His name is Dr. Horton and he is pretty familiar with our problems. He is based out of Emory in Atlanta. He's is one of the more knowledgeable orthos for people in our condition. I know it's a long drive, but it might be worth it to see a specialist.Let me know if you want to know more.-DyannFrom: Sims <karensims1971@...>Subject: Re: [ ] Re: An Introduction Date: Wednesday, September 30, 2009, 2:55 PM

to Debora and who ever eles  wants to read, kinda a introduction aswell

This is only the second time I have posted but wanted to let you know how my story is going along.My name is and Im 38yrs old, I had my rod implanted in 1984. I live in Mobile Alabama.The Dr whom did the implant died a few years after my surgery so I have followed up with his understudy Dr  Dempcey. Dr Dempcey has been good to me over the years and have had to start seeming him on the regular bassis again.About 5 years ago I started having bad pain at the bottom hook area.He says I have so much bone groath around it that he doesnt want to remove it,he just gives me meds to deal with it.Back in May I had hurt my self pulling on a jammed door at work and was forced to see a workmans comp Dr.

This Dr is a spine surgen but I dont think he knows much about scoli and the rod from what I could tell.He finaly sent me to get a ct/meylogam ,everything seemed to be ok,he says they did not see anything that could be causing me so much pain.I allready hurt very bad around the lower hook and had now strated with pain in hip area ,low back and shooting,burning ,stabbing pains down both legs in to the foot. I also started having groin pain and at the time thought some thing was going on with my neck because I was even having pains down both arms.At times after standing and walking for a short time my legs start shaking and act like they are gonna give out.So I took the ct/meylogram back to my regular Dr and asked him to please look at it,he pretty much glanced at the first pic the nurse had pulled up and than read the  report from the workmans

comp Dr.He said well I dont see anthing that jumps out at me but lets try a epadural.So I had my epadural yesterday,The Dr who performed it said my pain is coming from my sciatic nerve,bone harvest site and because of my body alignment that the hook area stays agrivated.I dont feel any releif yet but they say it can take several days for the epadural to kick in.By the way it cost around 800.00 dollars...To get to my point ,I hurt all over and there are so many small things going on no one wants to fix any of it.I do and have had lots of bowl and bladder problems over the years and I do blame my scoli for this,I went to g/p Dr and had lots of test and all comes out ok,so has to be coming from the back.I even had a hystorectoy because I just couldnt handle the additional pain at that time of the month.I guess I will let you all know If the epadural works in a few days.Befor I forget the pain management Dr told me yesterday that he has found that

taking  150mb multi b neurpathy support formula will help with nerve pain,corse all b vitamins are needed but he said B1 has just been found to releave nerve pain for about 80% of paitents,he said you will know within two weeks of taking it.start out 3x daily for 2wks and than 2x daily for2 weeks than if its working maintain on 1x daily from then out.Im trying to get the name brand he told me about its Benfo,looks like it cost about 25.00 to order off the internet.His wife and daughter both have implants and he says it works for them.Well every one, if you have any advise for me or any questions that may help you,please feel free.I read messages almost every day.Sorry this was so long and if i missspelled something I blame it on the meds lol.

om: deborahm03 <deborahm03@...> Sent: Wednesday, September 30, 2009 11:41:16 AMSubject: [ ] Re: An Introduction

 

Thanks for your response and yes that approach makes sense, unfortunately right now I cant afford to follow up with a doctor. Im a single mom on a fixed income with no insurance and I cannot afford to pay out of pocket to follow up with doctors right now. I live in tampa. My surgery was done in 1989 in Tampa by Dr. Castellvi. To be honest Im not real sure where I was fused at, as I said Ive just dealt with the pain for most of my adult life. I wasnt given a whole lot of info when my surgery was done. I was sixteen and basically was told okay u need surgery there you go. My surgery was done over christmas break and my mother had me back in school within two weeks. The doctor said he didnt believe in pain meds and the sooner i get used to that the better, so I did what I had to do. When I had my surgery I weighed about 115 lbs, within a few years my metabolism did a nosedive and next thing I know Ive gained 60 lbs and the doctors couldnt

explain why. That has basically how the last twenty years have gone. After three pregnancies and my weight yo yoing and at my highest during my second pregnancy to 240. Im on a program right now and Ive lost 40 lbs so far, but Im scared to death that one day I will wake up and not be able to move. Thats not an option. I have one child with cerebral palsy, another with hearing loss, and my youngest is two years old. Im just trying to gather as much info as I can so I can have the best quality of life that is possible with this condition.>> Deborah,> > While none of us are doctors just patients like you, this journey begins with the realization that things are falling apart, and there is a

struggle with pain. Next step is to seek out a doc and see what is going on with you personally.Weight is an issue, a challenge for me too, and there is hope for dealing with that too. I'd say first, get to a doc who deals with long fusion patients first, and see whats going on in your case, and proceed from there.> > Where was your fusion surgery done and where and by who? Where are you located now? What levels are fused on you? > > We don't suggest doc's for surgery , just opinions, so let us know where you are, and we can give some ideas. Also the Scoliosis Research Society page, just google them, has a terrific physician list by state, and even city. SRS members go to conferences, do research, and keep abreast of the newest progresses in our care. In looking at the list, look for, adult, aging, as key words in their description. As with any major conditions it's good to get at least two opinions.> > Just how

many of your symptoms are related to your scoliosis, I don't know, but getting to a good doc is key for you. So please tell us a bit more about yourself, where you are located, and we will support you on your quest to getting some answers. Know most of us have been in your shoes, and the first step is hardest, but eventually most get to the point, where they hurt, and are falling apart, and just need to find out why, and what can be done to help..> > I'm sorry you are struggling, but now you get to be in control and seek out your answers, and make your decisions. We look forward to hearing more from you.> > > Colorado Springs> [ ] An Introduction> > > Hello. My name is Deborah and i Have just joined your group. I had my scoliosis surgery about twenty years ago. I was hoping in joining this group that I might be able to find some answers. Unlike many in this group i have not consulted with a doctor regarding my back problems in about ten years. I finally got tired of hearing that I had to lose weight. I understand that weight may be relative to pain, but Ive had pain since day one of surgery. ive had stiffness all over my body, headaches, seizures, muscle spasms, ive shrunk about 3 inches in the last several years and recently terrible lower back and stomach pain has started. From the reading ive done I know that maintaing my weight is important. Has anyone else struggled with this? I have had so many health problems over the last so many years and Im relatively sure that most is probably attributed to my back surgery in

one form or another.>

[Guest guest]

You probably need to see a Flatback specialist.

From: Sims <karensims1971@...>Subject: Re: [ ] Re: An Introduction Date: Wednesday, September 30, 2009, 1:55 PM

to Debora and who ever eles wants to read, kinda a introduction aswell

This is only the second time I have posted but wanted to let you know how my story is going along.My name is and Im 38yrs old, I had my rod implanted in 1984. I live in Mobile Alabama.The Dr whom did the implant died a few years after my surgery so I have followed up with his understudy Dr Dempcey. Dr Dempcey has been good to me over the years and have had to start seeming him on the regular bassis again.About 5 years ago I started having bad pain at the bottom hook area.He says I have so much bone groath around it that he doesnt want to remove it,he just gives me meds to deal with it.Back in May I had hurt my self pulling on a jammed door at work and was forced to see a workmans comp Dr.

This Dr is a spine surgen but I dont think he knows much about scoli and the rod from what I could tell.He finaly sent me to get a ct/meylogam ,everything seemed to be ok,he says they did not see anything that could be causing me so much pain.I allready hurt very bad around the lower hook and had now strated with pain in hip area ,low back and shooting,burning ,stabbing pains down both legs in to the foot. I also started having groin pain and at the time thought some thing was going on with my neck because I was even having pains down both arms.At times after standing and walking for a short time my legs start shaking and act like they are gonna give out.So I took the ct/meylogram back to my regular Dr and asked him to please look at it,he pretty much glanced at the first pic the nurse had pulled up and than read the report from the workmans

comp Dr.He said well I dont see anthing that jumps out at me but lets try a epadural.So I had my epadural yesterday,The Dr who performed it said my pain is coming from my sciatic nerve,bone harvest site and because of my body alignment that the hook area stays agrivated.I dont feel any releif yet but they say it can take several days for the epadural to kick in.By the way it cost around 800.00 dollars...To get to my point ,I hurt all over and there are so many small things going on no one wants to fix any of it.I do and have had lots of bowl and bladder problems over the years and I do blame my scoli for this,I went to g/p Dr and had lots of test and all comes out ok,so has to be coming from the back.I even had a hystorectoy because I just couldnt handle the additional pain at that time of the month.I guess I will let you all know If the epadural works in a few days.Befor I forget the pain management Dr told me yesterday that he has found that

taking 150mb multi b neurpathy support formula will help with nerve pain,corse all b vitamins are needed but he said B1 has just been found to releave nerve pain for about 80% of paitents,he said you will know within two weeks of taking it.start out 3x daily for 2wks and than 2x daily for2 weeks than if its working maintain on 1x daily from then out.Im trying to get the name brand he told me about its Benfo,looks like it cost about 25.00 to order off the internet.His wife and daughter both have implants and he says it works for them.Well every one, if you have any advise for me or any questions that may help you,please feel free.I read messages almost every day.Sorry this was so long and if i missspelled something I blame it on the meds lol.

om: deborahm03 <deborahm03 (DOT) com> Sent: Wednesday, September 30, 2009 11:41:16 AMSubject: [ ] Re: An Introduction

Thanks for your response and yes that approach makes sense, unfortunately right now I cant afford to follow up with a doctor. Im a single mom on a fixed income with no insurance and I cannot afford to pay out of pocket to follow up with doctors right now. I live in tampa. My surgery was done in 1989 in Tampa by Dr. Castellvi. To be honest Im not real sure where I was fused at, as I said Ive just dealt with the pain for most of my adult life. I wasnt given a whole lot of info when my surgery was done. I was sixteen and basically was told okay u need surgery there you go. My surgery was done over christmas break and my mother had me back in school within two weeks. The doctor said he didnt believe in pain meds and the sooner i get used to that the better, so I did what I had to do. When I had my surgery I weighed about 115 lbs, within a few years my metabolism did a nosedive and next thing I know Ive gained 60 lbs and the doctors couldnt

explain why. That has basically how the last twenty years have gone. After three pregnancies and my weight yo yoing and at my highest during my second pregnancy to 240. Im on a program right now and Ive lost 40 lbs so far, but Im scared to death that one day I will wake up and not be able to move. Thats not an option. I have one child with cerebral palsy, another with hearing loss, and my youngest is two years old. Im just trying to gather as much info as I can so I can have the best quality of life that is possible with this condition.>> Deborah,> > While none of us are doctors just patients like you, this journey begins with the realization that things

are falling apart, and there is a struggle with pain. Next step is to seek out a doc and see what is going on with you personally.Weight is an issue, a challenge for me too, and there is hope for dealing with that too. I'd say first, get to a doc who deals with long fusion patients first, and see whats going on in your case, and proceed from there.> > Where was your fusion surgery done and where and by who? Where are you located now? What levels are fused on you? > > We don't suggest doc's for surgery , just opinions, so let us know where you are, and we can give some ideas. Also the Scoliosis Research Society page, just google them, has a terrific physician list by state, and even city. SRS members go to conferences, do research, and keep abreast of the newest progresses in our care. In looking at the list, look for, adult, aging, as key words in their description. As with any major conditions it's good to get at least two

opinions.> > Just how many of your symptoms are related to your scoliosis, I don't know, but getting to a good doc is key for you. So please tell us a bit more about yourself, where you are located, and we will support you on your quest to getting some answers. Know most of us have been in your shoes, and the first step is hardest, but eventually most get to the point, where they hurt, and are falling apart, and just need to find out why, and what can be done to help..> > I'm sorry you are struggling, but now you get to be in control and seek out your answers, and make your decisions. We look forward to hearing more from you.> > > Colorado Springs> [ ] An Introduction> > > Hello. My name is Deborah and i Have just joined your group. I had my scoliosis surgery about twenty years ago. I was hoping in joining this group that I might be able to find some answers. Unlike many in this group i have not consulted with a doctor regarding my back problems in about ten years. I finally got tired of hearing that I had to lose weight. I understand that weight may be relative to pain, but Ive had pain since day one of surgery. ive had stiffness all over my body, headaches, seizures, muscle spasms, ive shrunk about 3 inches in the last several years and recently terrible lower back and stomach pain has started. From the reading ive done I know that maintaing my weight is important. Has anyone else struggled with this? I

have had so many health problems over the last so many years and Im relatively sure that most is probably attributed to my back surgery in one form or another.>

[Guest guest]

thanks dyann,yes i would love more info on the Dr as i feel like at the end of my rope.Thanks again

From: Dyann Diamond <dyanndiamond@...> Sent: Wednesday, September 30, 2009 7:34:25 PMSubject: Re: [ ] Re: An Introduction

Hey ,

I'm originally from ville Alabama. I had my scoli surgery in '78. My parents took me to The Dr.s at Scotish Rite in Atlanta. I started having similar issues last year. lower back pain, down the legs. I live in Roswell GA now.

I found a Doctor from some of the women on this forum. His name is Dr. Horton and he is pretty familiar with our problems. He is based out of Emory in Atlanta. He's is one of the more knowledgeable orthos for people in our condition.

I know it's a long drive, but it might be worth it to see a specialist.

Let me know if you want to know more.

-Dyann

From: Sims <karensims1971>Subject: Re: [ ] Re: An Introduction Date: Wednesday, September 30, 2009, 2:55 PM

to Debora and who ever eles wants to read, kinda a introduction aswell

This is only the second time I have posted but wanted to let you know how my story is going along.My name is and Im 38yrs old, I had my rod implanted in 1984. I live in Mobile Alabama.The Dr whom did the implant died a few years after my surgery so I have followed up with his understudy Dr Dempcey. Dr Dempcey has been good to me over the years and have had to start seeming him on the regular bassis again.About 5 years ago I started having bad pain at the bottom hook area.He says I have so much bone groath around it that he doesnt want to remove it,he just gives me meds to deal with it.Back in May I had hurt my self pulling on a jammed door at work and was forced to see a workmans comp Dr.

This Dr is a spine surgen but I dont think he knows much about scoli and the rod from what I could tell.He finaly sent me to get a ct/meylogam ,everything seemed to be ok,he says they did not see anything that could be causing me so much pain.I allready hurt very bad around the lower hook and had now strated with pain in hip area ,low back and shooting,burning ,stabbing pains down both legs in to the foot. I also started having groin pain and at the time thought some thing was going on with my neck because I was even having pains down both arms.At times after standing and walking for a short time my legs start shaking and act like they are gonna give out.So I took the ct/meylogram back to my regular Dr and asked him to please look at it,he pretty much glanced at the first pic the nurse had pulled up and than read the report from the workmans

comp Dr.He said well I dont see anthing that jumps out at me but lets try a epadural.So I had my epadural yesterday,The Dr who performed it said my pain is coming from my sciatic nerve,bone harvest site and because of my body alignment that the hook area stays agrivated.I dont feel any releif yet but they say it can take several days for the epadural to kick in.By the way it cost around 800.00 dollars...To get to my point ,I hurt all over and there are so many small things going on no one wants to fix any of it.I do and have had lots of bowl and bladder problems over the years and I do blame my scoli for this,I went to g/p Dr and had lots of test and all comes out ok,so has to be coming from the back.I even had a hystorectoy because I just couldnt handle the additional pain at that time of the month.I guess I will let you all know If the epadural works in a few days.Befor I forget the pain management Dr told me yesterday that he has found that

taking 150mb multi b neurpathy support formula will help with nerve pain,corse all b vitamins are needed but he said B1 has just been found to releave nerve pain for about 80% of paitents,he said you will know within two weeks of taking it.start out 3x daily for 2wks and than 2x daily for2 weeks than if its working maintain on 1x daily from then out.Im trying to get the name brand he told me about its Benfo,looks like it cost about 25.00 to order off the internet.His wife and daughter both have implants and he says it works for them.Well every one, if you have any advise for me or any questions that may help you,please feel free.I read messages almost every day.Sorry this was so long and if i missspelled something I blame it on the meds lol.

om: deborahm03 <deborahm03 (DOT) com> Sent: Wednesday, September 30, 2009 11:41:16 AMSubject: [ ] Re: An Introduction

Thanks for your response and yes that approach makes sense, unfortunately right now I cant afford to follow up with a doctor. Im a single mom on a fixed income with no insurance and I cannot afford to pay out of pocket to follow up with doctors right now. I live in tampa. My surgery was done in 1989 in Tampa by Dr. Castellvi. To be honest Im not real sure where I was fused at, as I said Ive just dealt with the pain for most of my adult life. I wasnt given a whole lot of info when my surgery was done. I was sixteen and basically was told okay u need surgery there you go. My surgery was done over christmas break and my mother had me back in school within two weeks. The doctor said he didnt believe in pain meds and the sooner i get used to that the better, so I did what I had to do. When I had my surgery I weighed about 115 lbs, within a few years my metabolism did a nosedive and next thing I know Ive gained 60 lbs and the doctors couldnt

explain why. That has basically how the last twenty years have gone. After three pregnancies and my weight yo yoing and at my highest during my second pregnancy to 240. Im on a program right now and Ive lost 40 lbs so far, but Im scared to death that one day I will wake up and not be able to move. Thats not an option. I have one child with cerebral palsy, another with hearing loss, and my youngest is two years old. Im just trying to gather as much info as I can so I can have the best quality of life that is possible with this condition.>> Deborah,> > While none of us are doctors just patients like you, this journey begins with the realization that things are falling apart, and there is a struggle with pain. Next step is to seek out a doc and see what is going on with you personally.Weight is an issue, a

challenge for me too, and there is hope for dealing with that too. I'd say first, get to a doc who deals with long fusion patients first, and see whats going on in your case, and proceed from there.> > Where was your fusion surgery done and where and by who? Where are you located now? What levels are fused on you? > > We don't suggest doc's for surgery , just opinions, so let us know where you are, and we can give some ideas. Also the Scoliosis Research Society page, just google them, has a terrific physician list by state, and even city. SRS members go to conferences, do research, and keep abreast of the newest progresses in our care. In looking at the list, look for, adult, aging, as key words in their description. As with any major conditions it's good to get at least two opinions.> > Just how many of your symptoms are related to your scoliosis, I don't know, but getting to a good doc is key for you. So

please tell us a bit more about yourself, where you are located, and we will support you on your quest to getting some answers. Know most of us have been in your shoes, and the first step is hardest, but eventually most get to the point, where they hurt, and are falling apart, and just need to find out why, and what can be done to help..> > I'm sorry you are struggling, but now you get to be in control and seek out your answers, and make your decisions. We look forward to hearing more from you.> > > Colorado Springs> [ ] An Introduction> > > Hello. My name is Deborah and i Have just joined your group. I had my scoliosis surgery about twenty years ago. I was hoping in joining this

group that I might be able to find some answers. Unlike many in this group i have not consulted with a doctor regarding my back problems in about ten years. I finally got tired of hearing that I had to lose weight. I understand that weight may be relative to pain, but Ive had pain since day one of surgery. ive had stiffness all over my body, headaches, seizures, muscle spasms, ive shrunk about 3 inches in the last several years and recently terrible lower back and stomach pain has started. From the reading ive done I know that maintaing my weight is important. Has anyone else struggled with this? I have had so many health problems over the last so many years and Im relatively sure that most is probably attributed to my back surgery in one form or another.>

[Guest guest]

Hi kristen! First WELCOME so glad you found us. I would also like to commend your ortho for recommending casting and not the wait and see game. We live in Roanoke Va and travel to Greenville Sc Shriners, where are you going? Each child responds to casting differently. I will say that casting is definitly the slow and steady way to win the race. You do have your sons age in your favor! My daughter is 4 and past the rapid growth stage. Allie started casting a year ago. She started out at 56* and now with our 7th cast is down to 17* in cast. Please take heart that although this path is slow it is the best direction and be confident in your decision. Sounds like you are a pro active mama and that will take your son far. I'm sure others will chime in soon with there warm welcomes!!! Hope this helps.Amy J mom to Allie(4) in 7th cast down to 17* from 56* Greenville ShrinersSent from my Verizon Wireless BlackBerryFrom: kristen.m.dalton@...Sender: infantile scoliosis treatment Date: Thu, 23 Dec 2010 02:28:12 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: An Introduction Hi all! I'm from Northern Virginia. My " almost one-year-old " son, (or Jack), has infantile scoliosis.Jack was diagnosed with idiopathic infantile scoliosis at about 7 months of age. At our first appointment with the pediatric orthopedic surgeon, we learned Jack had a 36 degree curve, and the doctor recommended we go ahead and schedule a Risser casting immediately. Jack just completed his 6 weeks of casting, and had his cast taken off on Monday, 12/20. I had high hopes that the casting would provide the ideal results, and that Jack would only have to have two or three casts before having to wear a brace, but the results from his x-ray after the cast was taken off say otherwise. His curve had only improved by about 2 degrees.I realized that I have a handful of expectations that are probably too high, and even more unanswered questions about this whole process. I'm hoping to get a more realistic sense of what I should expect during Jack's course of treatment.I'm excited to get to know all of you, learn of your experiences with your own children and scoliosis, and hopefully provide you with advice and support as well.

[Guest guest]

Welcome! Where are you receiving treatment?? In our experience Risser casting

will only hold the curve but will generally not correct. A Mehta cast, properly

applied with the correct cutouts and the correct table will not only help to

correct the Cobb angle but rotation as well. You definately have time on your

side as Jack is young and has a lot of growing to do. If I were you I would

find the closest dr or shriners hospital to you that does Mehta casting as

oppossed to Risser casting. My son went from 50 plus degrees and severe

rotation and after 14 mos of casting with Mehta method is now at 9 degrees with

mild rotation and is currently cast/brace free. Early treatment does work if

properly applied!

You are a very proactive parent and I know will do the right thing for your son.

Please email me privately or feel free to ask any questions of this great group!

mom to Isaiah

kristen.m.dalton@... wrote:

>Hi all!

>

>I'm from Northern Virginia. My " almost one-year-old " son, (or

Jack), has infantile scoliosis.

>

>Jack was diagnosed with idiopathic infantile scoliosis at about 7 months of

age. At our first appointment with the pediatric orthopedic surgeon, we learned

Jack had a 36 degree curve, and the doctor recommended we go ahead and schedule

a Risser casting immediately.

>

>Jack just completed his 6 weeks of casting, and had his cast taken off on

Monday, 12/20. I had high hopes that the casting would provide the ideal

results, and that Jack would only have to have two or three casts before having

to wear a brace, but the results from his x-ray after the cast was taken off say

otherwise. His curve had only improved by about 2 degrees.

>

>I realized that I have a handful of expectations that are probably too high,

and even more unanswered questions about this whole process. I'm hoping to get a

more realistic sense of what I should expect during Jack's course of treatment.

>

>I'm excited to get to know all of you, learn of your experiences with your own

children and scoliosis, and hopefully provide you with advice and support as

well.

>

>

>

[Guest guest]

Hi ! Welcome to CAST!I second what has written. The Mehta Method or EDF casting (elongation, derotation, flexion) addresses spinal rotation, which is key to a potential cure for the scoliosis, versus possibly just holding the curve. The younger you start with proper casting the better, especially under age 2, which is not to say you haven't already done the right thing, just that there may be a better path for long term results for your precious child. We wish we had just begun younger than we did (19 months).My son Bex's story is on my blog/website below and we are all here for you. This is a wonderful group. Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can

read Bexon's Story on www.GirltoMom.com)From: <missikay10@...>infantile scoliosis treatment Sent: Wed, December 22, 2010 8:11:29 PMSubject: Re: An Introduction

Welcome! Where are you receiving treatment?? In our experience Risser casting will only hold the curve but will generally not correct. A Mehta cast, properly applied with the correct cutouts and the correct table will not only help to correct the Cobb angle but rotation as well. You definately have time on your side as Jack is young and has a lot of growing to do. If I were you I would find the closest dr or shriners hospital to you that does Mehta casting as oppossed to Risser casting. My son went from 50 plus degrees and severe rotation and after 14 mos of casting with Mehta method is now at 9 degrees with mild rotation and is currently cast/brace free. Early treatment does work if properly applied!

You are a very proactive parent and I know will do the right thing for your son. Please email me privately or feel free to ask any questions of this great group!

mom to Isaiah

kristen.m.dalton@... wrote:

>Hi all!

>

>I'm from Northern Virginia. My "almost one-year-old" son, (or Jack), has infantile scoliosis.

>

>Jack was diagnosed with idiopathic infantile scoliosis at about 7 months of age. At our first appointment with the pediatric orthopedic surgeon, we learned Jack had a 36 degree curve, and the doctor recommended we go ahead and schedule a Risser casting immediately.

>

>Jack just completed his 6 weeks of casting, and had his cast taken off on Monday, 12/20. I had high hopes that the casting would provide the ideal results, and that Jack would only have to have two or three casts before having to wear a brace, but the results from his x-ray after the cast was taken off say otherwise. His curve had only improved by about 2 degrees.

>

>I realized that I have a handful of expectations that are probably too high, and even more unanswered questions about this whole process. I'm hoping to get a more realistic sense of what I should expect during Jack's course of treatment.

>

>I'm excited to get to know all of you, learn of your experiences with your own children and scoliosis, and hopefully provide you with advice and support as well.

>

>

>

[Guest guest]

,I know it's hard when you're filled with so much hope but hang in there. Everyone has a different experience with casting and the results every cast change but you started at a young age so that is great and gives you a better chance. We didn't get casted until almost 2 and we had great results at first and then stalled. I know people say I'm a pessimist, but I go to every appointment expecting nothing so if something good happens, it's that much better. Try to stay positive... as hard as that may be! Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to (9) & Evan(6)From: "kristen.m.dalton@..." <kristen.m.dalton@...>infantile scoliosis treatment Sent: Wed, December 22, 2010 9:28:12 PMSubject: An Introduction

Hi all!

I'm from Northern Virginia. My "almost one-year-old" son, (or Jack), has infantile scoliosis.

Jack was diagnosed with idiopathic infantile scoliosis at about 7 months of age. At our first appointment with the pediatric orthopedic surgeon, we learned Jack had a 36 degree curve, and the doctor recommended we go ahead and schedule a Risser casting immediately.

Jack just completed his 6 weeks of casting, and had his cast taken off on Monday, 12/20. I had high hopes that the casting would provide the ideal results, and that Jack would only have to have two or three casts before having to wear a brace, but the results from his x-ray after the cast was taken off say otherwise. His curve had only improved by about 2 degrees.

I realized that I have a handful of expectations that are probably too high, and even more unanswered questions about this whole process. I'm hoping to get a more realistic sense of what I should expect during Jack's course of treatment.

I'm excited to get to know all of you, learn of your experiences with your own children and scoliosis, and hopefully provide you with advice and support as well.

[Guest guest]

Thanks so much everyone.

Jack is being treated at Children's National Medical Center in Washington, DC.

After hearing everyone's thoughts, I'm researching more about the Mehta casting

and will speak to our ortho doc about it. I think it's also safe to say we'll be

seeking a second opinion from other docs in the area that are more familiar with

the different methods of casting.

>

> ,

>

> I know it's hard when you're filled with so much hope but hang in there.

> Everyone has a different experience with casting and the results every cast

> change but you started at a young age so that is great and gives you a better

> chance. We didn't get casted until almost 2 and we had great results at first

> and then stalled. I know people say I'm a pessimist, but I go to every

> appointment expecting nothing so if something good happens, it's that much

> better. Try to stay positive... as hard as that may be!

> Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to

> (9) & Evan(6)

>

>

>

>

> ________________________________

> From: " kristen.m.dalton@... " <kristen.m.dalton@...>

> infantile scoliosis treatment

> Sent: Wed, December 22, 2010 9:28:12 PM

> Subject: An Introduction

>

>

> Hi all!

>

> I'm from Northern Virginia. My " almost one-year-old " son, (or

> Jack), has infantile scoliosis.

>

> Jack was diagnosed with idiopathic infantile scoliosis at about 7 months of

age.

> At our first appointment with the pediatric orthopedic surgeon, we learned

Jack

> had a 36 degree curve, and the doctor recommended we go ahead and schedule a

> Risser casting immediately.

>

>

> Jack just completed his 6 weeks of casting, and had his cast taken off on

> Monday, 12/20. I had high hopes that the casting would provide the ideal

> results, and that Jack would only have to have two or three casts before

having

> to wear a brace, but the results from his x-ray after the cast was taken off

say

> otherwise. His curve had only improved by about 2 degrees.

>

> I realized that I have a handful of expectations that are probably too high,

and

> even more unanswered questions about this whole process. I'm hoping to get a

> more realistic sense of what I should expect during Jack's course of

treatment.

>

> I'm excited to get to know all of you, learn of your experiences with your own

> children and scoliosis, and hopefully provide you with advice and support as

> well.

>

[Guest guest]

I think the closest doctors to you that do Mehta casting as Greenville SC and

Pennsylvania. Most parents have to travel outside their city and even state to

find a properly trained doctor. Good luck finding a doctor and getting casted.

Jen

Mommy to Cole

> >

> > ,

> >

> > I know it's hard when you're filled with so much hope but hang in there.

> > Everyone has a different experience with casting and the results every cast

> > change but you started at a young age so that is great and gives you a

better

> > chance. We didn't get casted until almost 2 and we had great results at

first

> > and then stalled. I know people say I'm a pessimist, but I go to every

> > appointment expecting nothing so if something good happens, it's that much

> > better. Try to stay positive... as hard as that may be!

> > Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to

> > (9) & Evan(6)

> >

> >

> >

> >

> > ________________________________

> > From: " kristen.m.dalton@ " <kristen.m.dalton@>

> > infantile scoliosis treatment

> > Sent: Wed, December 22, 2010 9:28:12 PM

> > Subject: An Introduction

> >

> >

> > Hi all!

> >

> > I'm from Northern Virginia. My " almost one-year-old " son,

(or

> > Jack), has infantile scoliosis.

> >

> > Jack was diagnosed with idiopathic infantile scoliosis at about 7 months of

age.

> > At our first appointment with the pediatric orthopedic surgeon, we learned

Jack

> > had a 36 degree curve, and the doctor recommended we go ahead and schedule a

> > Risser casting immediately.

> >

> >

> > Jack just completed his 6 weeks of casting, and had his cast taken off on

> > Monday, 12/20. I had high hopes that the casting would provide the ideal

> > results, and that Jack would only have to have two or three casts before

having

> > to wear a brace, but the results from his x-ray after the cast was taken off

say

> > otherwise. His curve had only improved by about 2 degrees.

> >

> > I realized that I have a handful of expectations that are probably too high,

and

> > even more unanswered questions about this whole process. I'm hoping to get a

> > more realistic sense of what I should expect during Jack's course of

treatment.

> >

> > I'm excited to get to know all of you, learn of your experiences with your

own

> > children and scoliosis, and hopefully provide you with advice and support as

> > well.

> >

>