Hello I am New

[Guest guest]

Dear Jenna, (sorry this posting ended up being so long...but Jenna

needs our help...)

Welcome to our little cyber-family of Flatbackers and chronic pain

folks! There are many of us out here, myself included, who can not

only understand your husband's reluctance to face his condition but

have walked in his shoes. He is SO fortunate that he has you to not

only research this problem for him but to be there for him when he

wants to talk. Support from family and frineds is absolutly vital when

dealing with all the different aspects of Flataback and the

chronic,debilitating pain that accompanies it before any revision

procedure.

Barbara's note is dead-on when she says that acceptance and

understanding of this condition is very important. Fear of the unknown

when dealing with any medical condition can emotionally cripple you

long before it physically cripples you!! In my case, I delayed having

the revision surgery that I so desperately needed because I was

terrified of having a surgical procedure of this magnitude at my age

(my Flatback started progressing when I was 42 yrs/o) and with a

family to care for (I have now been married for 20 yrs. and I have an

18 y/o son). The Flatback robbed me of my 27 year career as a Forensic

Histotechnologist(big title for someone who does autopsies); I was in

complete denial that something was really wrong with me until I woke

up one morning and had no feeling in my left leg! Even then, I would

not consider another surgical procedure. The whole idea of someone

removing my Harrington rod (that I'd lived with since I was 16 years

old)and " reconfiguring " my spine using rods and screws was a

nightmare. You actually go through all the stages of grieving in a

way...you have to go from denial to accpetance; and everyone goes

through those stages for different lenghts of time. Unfortunately, the

longer you deny that you have a problem and get medical and

psychological help, the longer you are robbed of a healthy and happy

life. AND YOU AND YOUR HUSBAND AND YOUR FAMILY CAN HAVE A WONDERFUL,

HAPPY AND PRODUCTIVE LIFE!! THERE IS LIFE AFTER FLATBACK!! I am

living, walking proof of that!

Finding the right Orthopedic revision surgeon and Pain Management

physician are the first steps (after you accept the fact that you need

help!) Your are doing a great thing by researching Flatback and

finding people like us you can truely say, " been there...done that!! "

ly, in my humble opinion, if your looking for " experts " , you've

come to the right place!! I wish I had found this support group in

1994. I probably would have had my revision surgery a lot sooner and

would have had a better surgical outcome. Don't misunderstand, I am

thrilled with how my surgery changed and enhanced my life! But because

I delayed doing it, the surgeons were unable to reverse all of the

neurological damage I had.

I sufferd with Flatback for over 5 years; in desperation, I tried

all sorts of band-aid procedures...physical therapy, intra-dural

spinal injections of steroids, oral pain meds..you name it, I probably

tried it! Some of the therapies helped for a while. But eventually I

got no relief from the ever increasing and debilitating pain. By the

time I finally found an Orthopedic surgeon who specialized in

Flatback, I was a physical and emotional cripple. Like your husband, I

started shrinking little by little; by the time I had my surgery I had

lost close to 4 " of height. I could not stand up straight no matter

how hard I tried to force it; there were days when the pain in my back

and legs was so severe that I could not get out of bed without help;

my husband and son felt so totally helpless that there were times when

we all just sat together and cried; it even got the point where my

husband locked up my pain meds ( at various times I was on Vicoden ES,

Demoral, Dilaudid, Oxycontin and a few other I can't even remember)

and administered them to me because he feared I would overdose in

desperation.

This might all sound really " over the top " but believe me when I

tell you...I am not exagerating nor am I the only one out here who has

been through this Flatback hell!! What saved me from self-destruction

was the love and support of my husband and son...and a fabulous,

skilled and understanding Orthopedic surgeon!!! Your husband is

blessed to have you for support; and your children are old enough that

they should be involved in all aspects of this condition. Kids can be

amazing medicine!! Oh, the stories I could tell you about all the

antics my son and husband pulled while I was recovering from my

surgery. I guess this would be a good time to tell you that I had my

revision procedure in 2000; they removed my Harrington rod, did

osteotomies at several levels to reconfigure my spine; then placed 2

rods, 9 screws and 4 hooks to hold me all together and fused me from

T10 to the sacrum. Sounds scarely, I know...but it has all been worth

it!! Because of my age and the extent of my revision, I was on

complete bedrest for the first 3 months. Talk about deja'vu...when I

had my original Harrington rod surgery, I was in a Riser body cast

from my neck to my knees for 4 months and stuck in bed!! Thank God

they've improved the recovery process. This time I only had a plastic

body brace that we could remove for showers...and scratching!!!

I am now 3 years post-revision and I can not tell you how my life

has changed...FOR THE BETTER!! I am going to be 49 years old and I

feel better now than when I was 39!! I am riding with my husband on

our motorcycle...I threw a huge graduation party for our son a few

weeks ago...I can take my dog for walks in the woods around our

home... hell, I can get out of bed all by myself!!! LIFE IS GOOD!!

Please, have your husband read this posting...I'll bet he can relate

to a lot of what I've said. And Jenna, keep up the good work!! You are

SO important to your husband's health right now. With your love and

suport and his desire to have a more fulfilling, pain free life,

you're both going to do O.K.!!

Best of luck and many blessing to you, your husband and your

children. Keep us all posted on his progress!

All the best,

Beth

Hello I am New

> Hello my name is Jenna

>

> I am 37 and my husband is 44. We live in Oregon right now.

> I

> have 3 kids from a previous marriage ages 19 (female), 17 (female)

> and a 14 year old son.

>

> My husband has scoliosis. He had his first surgery in 1979. 1

> long

> Harrington Rod was placed in his back. When he came out of the

> hospital he was 4 and a 1/2 inches taller.

>

> He then broke his back in 1991 and had a second surgery. The

> doctor

> fused the broken H.R, together and his spinal column.

>

> Now he is curving again. he was 6 ft 1 1/2. He is now 5 ft 9 1/2.

>

> His rod is not fused to his spine and is broke at the top. He has

> flatback and is in pain mostly all the time.

>

> I have been looking for Revision specialists as well as info and

> support from communities like this to get the most accurate

> information on Scoliosis and find the best doctor possible.

>

> I am the one doing the leg work and research as he does not want

> to

> face this right now. He has prided himself on working despite his

> condition and providing for us. Now that things are shifting he

> is

> very depressed and despondant. We do talk about it though. I try

> to provide him positive information on the new techniques ect.

>

> Thanks for beign here

>

> Jenn

>

>

>

[Guest guest]

,

All I have to offer you is my story; I had an non-medicated external

version (didn't work) and a c-section 19 months ago. My 100% NON-

vaccinated daughter is healthy and developing normally.

Best wishes,

Heidi

>

> I was wondering how many of you ladies have been through this

testing with your children? If anyone really knows what causes it? Or

what may cause it?

>

coming up.

>

>

> Mommy to Isaiah and

>

[Guest guest]

HI Sherry,

You came to a great place. Are you interested in getting a Cochlear

Implant? Sounds to me like you would be a candidate for this. I have

been on the same boat you are on with my difficulties hearing and

losing more as I grew. If you are wondering if getting a Cochlear

Implant will help you... I say yes it will. I just got my implant

this last month and I am doing much better than before. I'm

understanding people on the radio talking and people I talk to are

much clearer to me now. It's the best thing I ever did as far as

improving my hearing. You will find many people will have wonderful

things to say here. Ask away with any questions. It's truly a

wonderful place to learn. Cochlear.com has a great forum you can

share your feelings with too. Good luck

Tad

> Hello,

> My name is Sherry and I heard about your group from another group

> whom I belong to with. I have hearing loss I am deaf in one and

have

> a hearing aid in the other ear. I am interested in learning more

> about the cochlear implants. I have been deaf in my left ear as

far

> back as I can remember and at the age of 35 lost my hearing in my

> good ear. OH what horrible year that was! I wear now the

hightest

> powered hearing aid available and I work and talk on the phone, I

> hear oh pretty good except for at ballgames, resturants, well just

> anywhere with loud noises. The television and I are not friends

> anymore as I can't hear them good I do use the closed captions but

it

> makes the rest of my family upset so I just come play on the

computer

> or read a book. I hope you will let me join your group.

> Thanks a bunch,

> Sherry

[Guest guest]

Welcome Sherry.. How did you lose your hearing?

I think you will find many friendly people here on this list!

Pam

In a message dated 8/15/2004 7:11:15 PM Alaskan Daylight Time,

phillipssl@... writes:

>

> Hello,

> My name is Sherry and I heard about your group from another group

> whom I belong to with. I have hearing loss I am deaf in one and have

> a hearing aid in the other ear. I am interested in learning more

> about the cochlear implants. I have been deaf in my left ear as far

> back as I can remember and at the age of 35 lost my hearing in my

> good ear. OH what horrible year that was! I wear now the hightest

> powered hearing aid available and I work and talk on the phone, I

> hear oh pretty good except for at ballgames, resturants, well just

> anywhere with loud noises. The television and I are not friends

> anymore as I can't hear them good I do use the closed captions but it

> makes the rest of my family upset so I just come play on the computer

> or read a book. I hope you will let me join your group.

> Thanks a bunch,

> Sherry

>

[Guest guest]

Hi Sherry!!!

Welcome and enjoy. Glad you could make it.

You already know me but I will sign my name anyway.!

Phyllis

> In a message dated 8/15/2004 7:11:15 PM Alaskan Daylight Time,

> phillipssl@... writes:

>

> >

> > Hello,

> > My name is Sherry and I heard about your group from another group

> > whom I belong to with. I have hearing loss I am deaf in one and have

> > a hearing aid in the other ear. I am interested in learning more

> > about the cochlear implants. I have been deaf in my left ear as far

> > back as I can remember and at the age of 35 lost my hearing in my

> > good ear. OH what horrible year that was! I wear now the hightest

> > powered hearing aid available and I work and talk on the phone, I

> > hear oh pretty good except for at ballgames, resturants, well just

> > anywhere with loud noises. The television and I are not friends

> > anymore as I can't hear them good I do use the closed captions but it

> > makes the rest of my family upset so I just come play on the computer

> > or read a book. I hope you will let me join your group.

> > Thanks a bunch,

> > Sherry

> >

>

>

>

>

[Guest guest]

Hi Sherry,

We are very glad to see that you have joined us at CI Hear. You will find a lot

of friends here who understand exactly what you have been dealing with. This

group is very supportive and ready to answer questions when you have them. We

will do our best to give you as much personal information as we can but please

be sure to write questions down as they come to your head and discuss them with

your CI Team as well. They are your real authorities.

We'll look forward to hearing more from you about your adventure to sound. Have

you gone to a CI Center to be evaluated yet?

Alice

[Guest guest]

In a message dated 8/16/2004 11:21:14 AM Central Daylight Time,

justagram14@... writes:

Hi Sherry,

We are very glad to see that you have joined us at CI Hear. You will find a

lot of friends here who understand exactly what you have been dealing with.

This group is very supportive and ready to answer questions when you have them.

We will do our best to give you as much personal information as we can but

please be sure to write questions down as they come to your head and discuss

them with your CI Team as well. They are your real authorities.

We'll look forward to hearing more from you about your adventure to sound.

Have you gone to a CI Center to be evaluated yet?

Alice

Yes I have and I am not a candidate yet for a CI I am deaf in my left ear I

guess maybe since birth we are really not sure about that. I don't really ever

remember hearing in that ear. I used to hear bone tone when they put a deal

behind my ear and bang thing I could hear it. But that was a long time ago.

The doctors won't touch me with any kind of surgery to the ears for fear of

losing what little hearing I have in the right ear. They said since I don't

remember hearing in the left ear and my right ear witha high power hearing aid

helps me pretty good they say its a waste of money and my time to try a

cochlear at this time. Now if my hearing goes out completely in my right ear

they

say they will put one in that ear. I have long to be able to hear everything

again but looks like I will never hear on my own again.

Sherry

[Guest guest]

In a message dated 8/16/2004 3:45:00 AM Central Daylight Time,

plsav42@... writes:

Welcome Sherry.. How did you lose your hearing?

I think you will find many friendly people here on this list!

Pam

Hi Pam,

Thanks for asking well I am not really sure all I know is I woke up about 3

am one morning to this feeling that I thought a bug had crawled up my ear.

Well after many test no bug but they think the value in the inner ear collasped

thus causing a fullness feeling and itch oh my and within 2 months my hearing

in my only good ear hit rock bottom. I wear a high powered hearing it works

pretty good most of the time. I am working part time at our church as a

secretary. I answer the phone and do all kinds thing like that with a regular

phone

but sometimes I have to refer the call to someone else. If you have more

questions or knowledge let me know.

Sherry

[Guest guest]

In a message dated 8/16/2004 6:28:01 AM Central Daylight Time,

pmiller@... writes:

Hi Sherry!!!

Welcome and enjoy. Glad you could make it.

You already know me but I will sign my name anyway.!

Phyllis

LOL Thanks UM Phyllis@!

Sherry

[Guest guest]

,

If you cannot hear at all in your left ear I think getting the CI

would be one of the most wonderful things you could do. Getting back

your hearing in your left ear will just make things that much

better. I wear a hearing aid in my left ear and have a CI in my

right. I had my ci turned on two weeks ago and I'm absolutly amazed

with how well I can do with them. It gets better all the time and

I'm so glad I did it. You should do what you wish to do. If you want

it, go get one. But if you prefer to wait that's fine. I'm just a

big supporter here for CIs. Good luck to you.

Tad

> In a message dated 8/16/2004 11:21:14 AM Central Daylight Time,

> justagram14@m... writes:

> Hi Sherry,

>

> We are very glad to see that you have joined us at CI Hear. You

will find a

> lot of friends here who understand exactly what you have been

dealing with.

> This group is very supportive and ready to answer questions when

you have them.

> We will do our best to give you as much personal information as

we can but

> please be sure to write questions down as they come to your head

and discuss

> them with your CI Team as well. They are your real authorities.

>

> We'll look forward to hearing more from you about your adventure

to sound.

> Have you gone to a CI Center to be evaluated yet?

>

> Alice

> Yes I have and I am not a candidate yet for a CI I am deaf in my

left ear I

> guess maybe since birth we are really not sure about that. I

don't really ever

> remember hearing in that ear. I used to hear bone tone when they

put a deal

> behind my ear and bang thing I could hear it. But that was a long

time ago.

> The doctors won't touch me with any kind of surgery to the ears

for fear of

> losing what little hearing I have in the right ear. They said

since I don't

> remember hearing in the left ear and my right ear witha high power

hearing aid

> helps me pretty good they say its a waste of money and my time to

try a

> cochlear at this time. Now if my hearing goes out completely in

my right ear they

> say they will put one in that ear. I have long to be able to hear

everything

> again but looks like I will never hear on my own again.

> Sherry

>

>

>

[Guest guest]

In a message dated 8/16/2004 10:47:37 PM Central Daylight Time,

tadxl@... writes:

,

If you cannot hear at all in your left ear I think getting the CI

would be one of the most wonderful things you could do. Getting back

your hearing in your left ear will just make things that much

better. I wear a hearing aid in my left ear and have a CI in my

right. I had my ci turned on two weeks ago and I'm absolutly amazed

with how well I can do with them. It gets better all the time and

I'm so glad I did it. You should do what you wish to do. If you want

it, go get one. But if you prefer to wait that's fine. I'm just a

big supporter here for CIs. Good luck to you.

Tad

Well I would love to but my doctor says to me that I don't qualify for a CI

because as far I know I have never had any hearing in that ear so it might not

work I guess is what they are thinking. I would love to hear in that ear and

If they would do I really think I would do it in a heart beat! I go to the

doc again in Oct. so I will see what they say again.

Thanks for you encouragement I would like to know more about your hearing

loss in the CI ear and as well in the hearing aid ear.

Sherry

[Guest guest]

In a message dated 8/17/2004 3:14:55 PM Pacific Daylight Time,

phillipssl@... writes:

Well I would love to but my doctor says to me that I don't qualify for a CI

because as far I know I have never had any hearing in that ear so it might

not

work I guess is what they are thinking.

::::::::::::;; dropping jaw::::::::::::::

you got to be kidding! I was told 2 years ago that I couldn't get CI cuz I w

as deaf too long........ guess what,,, I rebelled, went to another

clinic,,,,, now I can discriminate about 35% of speeches in sound booth........

any

sound,, known and unknown are gifts to me.

If they still say NO in October, go to another doctor.

Lee

[Guest guest]

HI ...No don't worry,,,,I have the same problem with my metabolism! I am 37

I also gained weight even though my tsh level was .01 hyperthyroid, To this day

I am trying to lose this weight and it is in places on my body that I never ever

was big there before, I weigh what I did when I was pregnant with my kids! I

always was 140-145. Now I am 160!

So I hope you don't feel alone, I am there with you! Good luck to you! Faye

Ford <shopmeforless@...> wrote:

Hello,

My Name is and I am 44.I just found out a few weeks ago I have

hyperthyroidism thru several blood tests. I went to have a health

apprasial and this is how I found out. I was shocked because all my

other tests were great. above average blood pressure and great

colesteral etc. I went to endocrinology today and it was alot to

digest! I just dont have any of the symtoms, at least I dont think

so. My husband thinks I have some of them!!! ha ha. I will go to

nuclear medicine next week before I take any medications. Now what I

dont get is isnt this a overactive thyroid? Your metabolism should

be high? thats not me. It takes alot of work for me to lose weight.

Infact I have gained 8 pounds in the past 6 weeks! and I exercise 3

to 4 times a week. I am just lost on what to think of this? any

advise would be great on the medicine etc... the prescription says

something like Met... cant read it well, Its 1 tablet twice daily.

200 in a bottle.

thanks

[Guest guest]

Hi

I gained a lot of weight while hyperthyroid. Then I went for RAI and gained

more. Now I have to be extremely careful not to get hyper - my appetite soars

and so does my weight! I have gone from a normal weight for me all my adult

life of 100 lbs to 150 lbs. I watch every bite I eat but it seems I slowly get

heavier. The only time I was able to lose any weight was when I was so hypo I

would forget what I was doing, or where I was going.

Kate

Re: Hello I am NEW

HI ...No don't worry,,,,I have the same problem with my metabolism! I am

37 I also gained weight even though my tsh level was .01 hyperthyroid, To this

day I am trying to lose this weight and it is in places on my body that I never

ever was big there before, I weigh what I did when I was pregnant with my kids!

I always was 140-145. Now I am 160!

So I hope you don't feel alone, I am there with you! Good luck to you! Faye

Ford <shopmeforless@...> wrote:

Hello,

My Name is and I am 44.I just found out a few weeks ago I have

hyperthyroidism thru several blood tests. I went to have a health

apprasial and this is how I found out. I was shocked because all my

other tests were great. above average blood pressure and great

colesteral etc. I went to endocrinology today and it was alot to

digest! I just dont have any of the symtoms, at least I dont think

so. My husband thinks I have some of them!!! ha ha. I will go to

nuclear medicine next week before I take any medications. Now what I

dont get is isnt this a overactive thyroid? Your metabolism should

be high? thats not me. It takes alot of work for me to lose weight.

Infact I have gained 8 pounds in the past 6 weeks! and I exercise 3

to 4 times a week. I am just lost on what to think of this? any

advise would be great on the medicine etc... the prescription says

something like Met... cant read it well, Its 1 tablet twice daily.

200 in a bottle.

thanks

[Guest guest]

, thanks what is RAI? Is that a test? I forgot if they told me

what is was. It was so much to digest.

Thanks,

> Hello,

> My Name is and I am 44.I just found out a few weeks ago I

have

> hyperthyroidism thru several blood tests. I went to have a

health

> apprasial and this is how I found out. I was shocked because all

my

> other tests were great. above average blood pressure and great

> colesteral etc. I went to endocrinology today and it was alot to

> digest! I just dont have any of the symtoms, at least I dont

think

> so. My husband thinks I have some of them!!! ha ha. I will go to

> nuclear medicine next week before I take any medications. Now

what I

> dont get is isnt this a overactive thyroid? Your metabolism

should

> be high? thats not me. It takes alot of work for me to lose

weight.

> Infact I have gained 8 pounds in the past 6 weeks! and I

exercise 3

> to 4 times a week. I am just lost on what to think of this? any

> advise would be great on the medicine etc... the prescription

says

> something like Met... cant read it well, Its 1 tablet twice

daily.

> 200 in a bottle.

> thanks

>

>

>

[Guest guest]

> ,

> Here are links to RAI Uptake and other information you

> may want to know. I hope these help in informing you to

> make the right decisions for you.

> Take care.

> Top 20 Reasons Why I'll Never Have RAI

> http://valkyrie.aarg.net/top20.html

> http://webhome.idirect.com/~wolfnowl/thyroid23.htm

> Thyroid Disorders

> http://thyroid.about.com/cs/newsinfo/l/bltest_values.htm

> http://www.thyroid-info.com/articles/hyperthyroidism-faq.htm#3

> http://www.umm.edu/altmed/ConsConditions/Thyroiditiscc.html

joey

> > Hello,

> > My Name is and I am 44.I just found out a few weeks ago I

> have

> > hyperthyroidism thru several blood tests. I went to have a

> health

> > apprasial and this is how I found out. I was shocked because all

> my

> > other tests were great. above average blood pressure and great

> > colesteral etc. I went to endocrinology today and it was alot to

> > digest! I just dont have any of the symtoms, at least I dont

> think

> > so. My husband thinks I have some of them!!! ha ha. I will go to

> > nuclear medicine next week before I take any medications. Now

> what I

> > dont get is isnt this a overactive thyroid? Your metabolism

> should

> > be high? thats not me. It takes alot of work for me to lose

> weight.

> > Infact I have gained 8 pounds in the past 6 weeks! and I

> exercise 3

> > to 4 times a week. I am just lost on what to think of this? any

> > advise would be great on the medicine etc... the prescription

> says

> > something like Met... cant read it well, Its 1 tablet twice

> daily.

> > 200 in a bottle.

> > thanks

> >

> >

> >

[Guest guest]

In a message dated 9/14/2004 12:30:14 PM Eastern Daylight Time,

shopmeforless@... writes:

, thanks what is RAI?

Dear ,

RAI is radioactive iodine, the so-called " treatment " for hyperthyroidism,

which usually causes one to be hypothyroid for life, along with a host of other

side effects and symptoms. It is better to go on meds, and then use

supplements and nutrition, as well as lifestyle changes to heal the underlying

imbalances that cause thyroid disorders Information on how to do this can be

found at ithyroid.com.

I had Graves disease, went on Tapezole and Atenenol for a few months, made

some modifications to my diet and to the supplements I was taking, and was fine

in a few months. I have been off meds for over 6 years now, and am fine.

Your case might not be as simple as mine, but it is worth using the meds and

working with your health to preserve your thyroid, rather then destroying it

with RAI, after which there is no way back.

Best of luck and health,

AntJoan

[Guest guest]

Although I did take RAI, or maybe because I did take it, I have to agree with

being better off not taking it.

Kate

Re: Re: Hello I am NEW

In a message dated 9/14/2004 12:30:14 PM Eastern Daylight Time,

shopmeforless@... writes:

, thanks what is RAI?

Dear ,

RAI is radioactive iodine, the so-called " treatment " for hyperthyroidism,

which usually causes one to be hypothyroid for life, along with a host of

other

side effects and symptoms. It is better to go on meds, and then use

supplements and nutrition, as well as lifestyle changes to heal the underlying

imbalances that cause thyroid disorders Information on how to do this can be

found at ithyroid.com.

I had Graves disease, went on Tapezole and Atenenol for a few months, made

some modifications to my diet and to the supplements I was taking, and was

fine

in a few months. I have been off meds for over 6 years now, and am fine.

Your case might not be as simple as mine, but it is worth using the meds and

working with your health to preserve your thyroid, rather then destroying it

with RAI, after which there is no way back.

Best of luck and health,

AntJoan

[Guest guest]

Hi Everyone,

I am new to the group as well, when I get a chance I will read some of the

previous posts. Thanks for letting me join also.

Cheers

Sharon in Australia

Hello I am New

Hi:)

I am I am New. Thanks so much for letting me join.

I look forward to this group

[Guest guest]

>

> my 3 year old son ben has had sometimes severe digestive problems for

> nearly a year now. i've been giving him probiotics for probably a

month

> now with little change. i suspect he has a candida overgrowth and it

is

> verified he has c. diff. today i have started him on florastor

> (saccharomyces boulardii lyo) has anyone ever tried this? i've done

> quite a bit of research over the last two weeks; it sounds promising.

> for those who may not be familiar with the stuff it is supposed to be

a

> noncolonizing good yeast that eats candida for breakfast and destroys

> other anarobic harmful bacteria. i would be very thankful if someone

> could get back to me on this or recommend something they have tried.

==>Hi there. Welcome to our group. What is your name please?

Please do not give your son saccharomyces boulardii. Saccharomyces

Boulardii could take advantage of an immune deficiency and cause a

systemic infection because it is a form of yeast, therefore it isn't

worth taking the chance and causing more health problems.

Besides the fact that C. difficle is treated the same way as candida

overgrowth is treated, mainly by building up the immune system so it

becomes strong enough to " make " such organisms " change back " to what

they were before. Unfortunately there are no quick fixes. We must

follow Nature's Laws by providing our bodies with proper nutrients it

requires so our bodies can heal themselves naturally. Anything short

of that is a waste of time, effort and money, and it doesn't improve

health.

Probiotics are so very unimportant when it comes to becoming healthy.

Organism in the gut will normalize as a person progresses on my

program. Probiotics is the last step in the program for very good

reasons as written in my article " How to Successfully Overcome

Candida " ; http://www.healingnaturallybybee.com/articles/menu2_8.php

Also please read the article " Candida Treatments for Babies & Children "

on that same menu. Once you've read those 2 articles please get back

to us with questions and concerns. We have many mothers on this group

who are very knowledgeable about treating children since they are doing

it successfully.

The best in health, Bee

[Guest guest]

bee thank you for the reply and the advice. my name is chad

[Guest guest]

>

> bee thank you for the reply and the advice. my name is chad

==>You are welcome Chad. It's good to know your name. Let me know

how things go with your son. I wanted to add that " killing off " bugs

like the medical industry thinks, isn't the answer. Those bugs are

there for a good reason, because they are created within the body

itself mainly to clean it up, so they are like a " survival mechanism. "

The example I use is the manure pile and the flies, with the manure

pile representing the condition of the body. You can't get rid of

the manure pile by killing the flies. You need to build up the

body's immune system and strength so it does the job it was intended

to do, and so the body doesn't " have to " create bugs to clean it up.

To understand more read articles on the germ theory of disease on my

website.

Cheers, Bee

[Guest guest]

>hi, i'm a relative newbie here also, i have a SCS and a morphine pump. i have

taken myself off of all oral opiates, as they almost killed me. i know they

work for some folks, but i'm just not one of them. through the pump, i get what

my body can tolerate, and on the recommendation of a hospice nurse, i smoke

cannabis. honestly, its the only reason i alive and kicking today writing

letters. since i have recovered, i have been advocating legalization of

medicinal cannabis. every time i see someone is from cali, i have to ask them

questions, on how things work. we would like to put together a system that

works for everyone, not just a selected few that are profiteering off of

patients. anything that can help, just hooler--thanks, mike from illinois

> Hello and thank you for accepting me in your group. My name is carol. I live

> in San Francisco in a high rise for the elderly and disabled in HUD housing

> I

> am 66 years young..lol I live with my Romeo, he is a Maltese dog 10 years

> old. I thought I would have to give him up when I got to where I couldn't

> walk

> but I am so lucky I was given in home support.

>

> I had a hip replacement the first of this year. While in the hospital the

> doctor

> in charge of my pain meds came every evening to check in with me. One

> evening

> he told me that he could help me with my pain I have associated with my

> neuropathy.

> He told me that he felt I would be a good candidate for a spinal column

> stimulator.

> I had never heard of such a thing but I felt he was throwing me a life line.

> Telling

> me I could " test drive " it first, I feel like I have nothing to lose.

>

> I had a perfect surgery with the hip replacement. Had no pain at all when I

> got home.

> A month later I fell due to my feet being in bad shape that day and I

> dislocated my

> hip replacement. Ended up back in the hospital.

>

> A month ago I finally went to Dr. Hattori's for a consultation. I now am

> required to

> see a pain psychologist and if she gives the go ahead then this will happen.

> Dr. Hattori said that all we need is her okay for medicare approval.

>

> I was diagnosed with Idopathic Distal Symmetric Axonal Polyneuropathy about

> five

> years ago. At that time the Neurologists best guess for the cause is the

> Pravachol

> I took for years as a cholesterol blocker. Best guess but cannot be an

> absolute.

> Even though my Neuropathy is severe, I do still have my good days when I can

> walk.

> I celebrate my good days. I don't take them for granted, that is for sure.

>

> I wanted to come to this group to learn about this spinal column stimulator

> from those of you who have been there and done that. As I go through this,

> if it happens I am

> sure I will need your support and I want to be able to reach out and give my

> support

> to others. Reaching out and getting out of the me is a good way to put the

> pain on

> ignore. I am co owner in a very active chronic pain group but I promise I

> will also

> give my time and attention right here.

>

> I know I wrote a lot here..just wanted to let you know who I am and why I am

> here.

>

>

[Guest guest]

You have such a positive attitude. This is so  important in pain control. Our

attitude has as affect on our pain level. A positive attititude helps lower our

pain level. A negative attitude helps increase our pain level.

You can never write too much, that's what we are here for.

I hope you get your approval quickly.

Sue C

 

________________________________

From: momC <onemomc1@...>

Stimulator

Sent: Friday, July 10, 2009 2:13:38 PM

Subject: Hello I am new

Hello and thank you for accepting me in your group. My name is carol. I live

in San Francisco in a high rise for the elderly and disabled in HUD housing

I

am 66 years young..lol I live with my Romeo, he is a Maltese dog 10 years

old. I thought I would have to give him up when I got to where I couldn't

walk

but I am so lucky I was given in home support.

I had a hip replacement the first of this year. While in the hospital the

doctor

in charge of my pain meds came every evening to check in with me. One

evening

he told me that he could help me with my pain I have associated with my

neuropathy.

He told me that he felt I would be a good candidate for a spinal column

stimulator.

I had never heard of such a thing but I felt he was throwing me a life line.

Telling

me I could " test drive " it first, I feel like I have nothing to lose.

I had a perfect surgery with the hip replacement. Had no pain at all when I

got home.

A month later I fell due to my feet being in bad shape that day and I

dislocated my

hip replacement. Ended up back in the hospital.

A month ago I finally went to Dr. Hattori's for a consultation. I now am

required to

see a pain psychologist and if she gives the go ahead then this will happen.

Dr. Hattori said that all we need is her okay for medicare approval.

I was diagnosed with Idopathic Distal Symmetric Axonal Polyneuropathy about

five

years ago. At that time the Neurologists best guess for the cause is the

Pravachol

I took for years as a cholesterol blocker. Best guess but cannot be an

absolute.

Even though my Neuropathy is severe, I do still have my good days when I can

walk.

I celebrate my good days. I don't take them for granted, that is for sure.

I wanted to come to this group to learn about this spinal column stimulator

from those of you who have been there and done that.. As I go through this,

if it happens I am

sure I will need your support and I want to be able to reach out and give my

support

to others. Reaching out and getting out of the me is a good way to put the

pain on

ignore. I am co owner in a very active chronic pain group but I promise I

will also

give my time and attention right here.

I know I wrote a lot here..just wanted to let you know who I am and why I am

here.

[Guest guest]

that's what i was thinking!!

From: Corn <butterfliesrfree309@...>

Subject: Re: Hello I am new

Stimulator

Date: Saturday, July 11, 2009, 10:25 AM

You have such a positive attitude. This is so  important in pain control.

Our attitude has as affect on our pain level. A positive attititude helps lower

our pain level. A negative attitude helps increase our pain level.

You can never write too much, that's what we are here for.

I hope you get your approval quickly.

Sue C

 

____________ _________ _________ __

From: momC <onemomc1att (DOT) net>

Stimulator@gro ups.com

Sent: Friday, July 10, 2009 2:13:38 PM

Subject: Hello I am new

Hello and thank you for accepting me in your group. My name is carol. I live

in San Francisco in a high rise for the elderly and disabled in HUD housing

I

am 66 years young..lol I live with my Romeo, he is a Maltese dog 10 years

old. I thought I would have to give him up when I got to where I couldn't

walk

but I am so lucky I was given in home support.

I had a hip replacement the first of this year. While in the hospital the

doctor

in charge of my pain meds came every evening to check in with me. One

evening

he told me that he could help me with my pain I have associated with my

neuropathy.

He told me that he felt I would be a good candidate for a spinal column

stimulator.

I had never heard of such a thing but I felt he was throwing me a life line.

Telling

me I could " test drive " it first, I feel like I have nothing to lose.

I had a perfect surgery with the hip replacement. Had no pain at all when I

got home.

A month later I fell due to my feet being in bad shape that day and I

dislocated my

hip replacement. Ended up back in the hospital.

A month ago I finally went to Dr. Hattori's for a consultation. I now am

required to

see a pain psychologist and if she gives the go ahead then this will happen.

Dr. Hattori said that all we need is her okay for medicare approval.

I was diagnosed with Idopathic Distal Symmetric Axonal Polyneuropathy about

five

years ago. At that time the Neurologists best guess for the cause is the

Pravachol

I took for years as a cholesterol blocker. Best guess but cannot be an

absolute.

Even though my Neuropathy is severe, I do still have my good days when I can

walk.

I celebrate my good days. I don't take them for granted, that is for sure.

I wanted to come to this group to learn about this spinal column stimulator

from those of you who have been there and done that.. As I go through this,

if it happens I am

sure I will need your support and I want to be able to reach out and give my

support

to others. Reaching out and getting out of the me is a good way to put the

pain on

ignore. I am co owner in a very active chronic pain group but I promise I

will also

give my time and attention right here.

I know I wrote a lot here..just wanted to let you know who I am and why I am

here.