Just Curious

[Guest guest]

>

> What is the difference between the GAPS diet and this one. I was

> considering GAPS, but was told that this program might fit better for

> me. Both programs deal with candida, but I can only detect some food

> differences. Is there another reason that GAPS might be less helpful

> that this one?

+++Hi Kathy. The GAPS diet allows many foods that feed candida, i.e.

cheese and other dairy, fruits, high carb veggies (bean and peas from

pods), peanuts which are mycotoxic (contain fungal-type toxins),

alcohol such as Scotch, Wine, Gin, etc. (all alcohol is mycotoxic),

etc., etc.

+++Also GAPS recommend taking high doses of probiotics at the

beginning, but that's way too soon, for 3 reasons: 1) probiotics

cannot be implanted in the gut until candida numbers are low, 2)

probiotics kill off candida causing more die-off symptoms, but they are

a waste until other antifungals have done their job, i.e. unrefined

coconut oil, and 3) the body will create proper probiotics at the right

time, so in the long-run probiotics aren't necessary. That's why people

who have candida don't get well on GAPS, so many of them come here for

help.

> I haven't started the plan here yet as I am getting my unsalted

sauerkraut ready for it, but I have been omitting all grains

> for the last 2 weeks.

+++That's a good start Kathy. Good for you!

>> I have also taken your advice and am including my salted sauerkraut

with each meal. This has already started to help. Is there a reason

why it should be unsalted though?

+++Sauerkraut can be salted, if it is a good ocean sea salt. It is

cabbage rejuvelac that shouldn't be salted.

Bee

[Guest guest]

>As a retired Nurse, I can spot a person in pain also.

Your question regarding change in the way I live, I have found new

hobbies...including art, watercolors, and a good cyberfriend taught me the in's

and out's of winning sweepstakes! This is a hobby I can do while sitting down,

and can do it for minutes to hours depending on how I feel. Sweepstakes has been

FUN! I have won enough prizes to cover my last three Christmases... But, you

have to be careful, there are many scams out there! I had a great teacher!

I also have developed a wonderful group of friends at Church.

Congratulations on your oil painting and and decoupage storage boxes,

it sounds as if you have found your niche'!

Donna-57 DDD, Lupus, Bleeding D/O

> I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What

type of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to

be patient. Tomorrow will be different, maybe not better, but definitely

different. I have learned a lot. I can spot a person in pain much more

quickly. How about you?

>

[Guest guest]

What is Bleeding D/O mean?  I am not familiar with that.  Your hobby sounds

interesting.  If you would like to share the info, I would love to learn.

From: oklamom23 <okmom23@...>

Subject: Re: Just curious

spinal problems

Date: Sunday, July 19, 2009, 5:43 AM

 

>As a retired Nurse, I can spot a person in pain also.

Your question regarding change in the way I live, I have found new

hobbies...including art, watercolors, and a good cyberfriend taught me the in's

and out's of winning sweepstakes! This is a hobby I can do while sitting down,

and can do it for minutes to hours depending on how I feel. Sweepstakes has been

FUN! I have won enough prizes to cover my last three Christmases. .. But, you

have to be careful, there are many scams out there! I had a great teacher!

I also have developed a wonderful group of friends at Church.

Congratulations on your oil painting and and decoupage storage boxes,

it sounds as if you have found your niche'!

Donna-57 DDD, Lupus, Bleeding D/O

> I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What

type of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to

be patient. Tomorrow will be different, maybe not better, but definitely

different. I have learned a lot. I can spot a person in pain much more

quickly. How about you?

>

[Guest guest]

My favorite outdoor hobbly is fly fishing, which I have been able to do with my

wife. After I take a pain med, I can fish for about 45 minutes and then its find

the nearest rock to rest from back spasms. After that its in the car and on my

way home. Not much time but 45 minutes is 45 minutes! I also like to paint and

have an expensive stereo hobby. What has channged is that I no longer have a

large window for lovemaking, iuf I can be honest. Its a small window of feeling

good enough. No dual bathtubs staring off into the sunset. dk

!

I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to be

patient. Tomorrow will be different, maybe not better, but definitely different.

I have learned a lot. I can spot a person in pain much more quickly. How about

you?

>

[Guest guest]

I have trouble walking on uneven ground these days.  So until they pave the

world around a lake, fishing is not fun for me anymore.  I know what you mean

about the small window of feeling good.  But we have to learn to adjust to our

worlds   It is what it is.

From: Kurek <dknde@...>

Subject: RE: Re: Just curious

" david kurek " <spinal problems >

Date: Monday, July 20, 2009, 10:14 AM

My favorite outdoor hobbly is fly fishing, which I have been able to do with my

wife. After I take a pain med, I can fish for about 45 minutes and then its find

the nearest rock to rest from back spasms. After that its in the car and on my

way home.  Not much time but 45 minutes is 45 minutes!  I also like to paint

and have an expensive stereo hobby. What has channged is that I no longer have a

large window for lovemaking, iuf I can be honest. Its a small window of feeling

good enough. No dual bathtubs staring off into the sunset. dk

 

!

I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to be

patient. Tomorrow will be different, maybe not better, but definitely different.

I have learned a lot. I can spot a person in pain much more quickly. How about

you?

>

[Guest guest]

hi , and all,

You mention fly fishing.  I just love to fish although I have never

tried fly fishing.  Is that hard on your back?  I am right handed and maybe

if I tried fly fishing or just casting my line out differently it wouldn't

bother

me so much.

oh, I have a purple fishing pole, I fish on the Elk

River on the Oregon Coast.  I sure do miss it too! I really miss outdoor

stuff. 

 I LOVE to FISH, CAMP, etc.

I am so afraid of throwing my back out casting out my line that I am scared

to fish till I see a back

specialist and talk with them about doing something like that.  Gosh I hope I

get fixed enough

to go fishing again. Man I miss it, I look at my fishing pole every day!  BUT

I won't hook a

worm on the line though lol, don't want to hurt the worm so when I was fishing

alone I just use

that puddy stuff in a jar or salmon eggs.  It is so exciting me.  I love

campfires and all that

stuff.  Right now I can hardly get around.  I better get somewhat fixed or I

will freak.  I can't

live like this the rest of my life, I am only 46 yo and time is flying by too

darn fast.

Every time I over extend myself at doing something I seem to go

further down hill even after I recover a bit from that incident.

I can't wait to fish again.  I even caught a small rock once!  LOL!

I took the rock, put that day's date on it and put it in my purse! :-)

I thought it was pretty cool :-)   I laughed so  hard,  that was Definitely

a keeper, hahahaha!

Did you mention lovemaking?   I really have a hard time with that also.

My guy is big (heavy) guy, and he also had hernia surgery last Super Bowl

Sunday, but anyways, he is always on the bottom and I just sit there on top

(sorry to get so graphic lol) because the more I rock my pelvis back and forth

the worse shape I will be for days.   So while he is laying there he has to do

what he can which isn't much either (because of his surgery).  At least we get

a little pleasure...I better

get off this topic or I will have to go and wake him up lol

I have some news for everyone that I am typing out and will send out later,

hopefully today.

gentle hugs to all,

Coleen

 

________________________________

From: Kurek <dknde@...>

david kurek <spinal problems >

Sent: Monday, July 20, 2009 8:14:13 AM

Subject: RE: Re: Just curious

My favorite outdoor hobbly is fly fishing, which I have been able to do with my

wife. After I take a pain med, I can fish for about 45 minutes and then its find

the nearest rock to rest from back spasms. After that its in the car and on my

way home.  Not much time but 45 minutes is 45 minutes!  I also like to paint

and have an expensive stereo hobby. What has channged is that I no longer have a

large window for lovemaking, iuf I can be honest. Its a small window of feeling

good enough. No dual bathtubs staring off into the sunset. dk

 

!

I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to be

patient. Tomorrow will be different, maybe not better, but definitely different.

I have learned a lot. I can spot a person in pain much more quickly. How about

you?

>

[Guest guest]

Hi,

I am new to the group. I had back pain 15 years ago that got better over time

with changes in how I handle chores.

Now, I am in pretty bad shape--5 herniated discs and two tears and they want to

do a fusion, which i refuse...

So--my world is Reallly upside down this time. I've moved in with someone who

has MS that I was supposed to help and now he is having to help me more. He has

two little kids--8 and 9. So, I pop into their world, watch their shows and ask

about their activities.

I've always colored to ward off depression. I talk on the phone more. The most

difficult thing for me is to decide how to dump assets to get out of as much

debt as possible. I'm debating hand controls for the car...it takes two feet to

hold the brake at red lights.

I've offered to work from bed to my employer to avoid short term disability at

50% pay. They are considering it if I provide more specifics about my

limitations. They have said it will only apply during my short term disability

period. I haven't a clue what happens after long term kicks in.

I'm considering building a 'wee' house or 'tumbleweed' house. These are modular

homes (not trailers,) built on a slab. I want to pay cash out of my 401k so

that I can be self sufficient and not worry about my bills.

I'm originally from New Orleans and returned after Katrina. I've moved away as

to never get in the way of a hurricane again. I'm worried that I'll never be

able to stand the ride to go back to see my dad...even a plane ride is over an

hour. Wheelchair won't help, because it's the sitting that hurts...I worry what

will I do to attend family functions---be on a gurney?

I use my DVR to record my favorite shows. So, I always have something to watch.

I use that a lot to escape. I spend a lot of time on the net finding recipes to

cook in 20 minutes that are new and different. I hang out on Craigslist a lot,

searching for bargains. I am on realtor.com a lot to see if there are any homes

I can afford.

I can no longer attend church services in person--I'dd have to lie down on the

pew and the car ride would hurt too much to get there. So, I watch my former

church from New Orleans-- Duplantis..he's like Christian comedian.

Ellen

> I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

>

[Guest guest]

Thanks Coleen,

Lots fo fun. I wish I could tell you that fly fishing is relaxing but there is

really a bit of constant work to it, like lovemaking. No worms to hook but one

has a tendancy to snag flies in the local trees. With such a short peroid of

time available to fish, there is less emphasis on catching stuff, just being out

there in nature for a short time is reward enough. Hope you get to fish again

soon. dk

spinal problems

From: foxycol63@...

Date: Tue, 21 Jul 2009 05:02:10 -0700

Subject: Re: Re: Just curious

hi , and all,

You mention fly fishing. I just love to fish although I have never

tried fly fishing. Is that hard on your back? I am right handed and maybe

if I tried fly fishing or just casting my line out differently it wouldn't

bother

me so much.

oh, I have a purple fishing pole, I fish on the Elk

River on the Oregon Coast. I sure do miss it too! I really miss outdoor stuff.

I LOVE to FISH, CAMP, etc.

I am so afraid of throwing my back out casting out my line that I am scared to

fish till I see a back

specialist and talk with them about doing something like that. Gosh I hope I

get fixed enough

to go fishing again. Man I miss it, I look at my fishing pole every day! BUT I

won't hook a

worm on the line though lol, don't want to hurt the worm so when I was fishing

alone I just use

that puddy stuff in a jar or salmon eggs. It is so exciting me. I love

campfires and all that

stuff. Right now I can hardly get around. I better get somewhat fixed or I

will freak. I can't

live like this the rest of my life, I am only 46 yo and time is flying by too

darn fast.

Every time I over extend myself at doing something I seem to go

further down hill even after I recover a bit from that incident.

I can't wait to fish again. I even caught a small rock once! LOL!

I took the rock, put that day's date on it and put it in my purse! :-)

I thought it was pretty cool :-) I laughed so hard, that was Definitely

a keeper, hahahaha!

Did you mention lovemaking? I really have a hard time with that also.

My guy is big (heavy) guy, and he also had hernia surgery last Super Bowl

Sunday, but anyways, he is always on the bottom and I just sit there on top

(sorry to get so graphic lol) because the more I rock my pelvis back and forth

the worse shape I will be for days. So while he is laying there he has to do

what he can which isn't much either (because of his surgery). At least we get a

little pleasure...I better

get off this topic or I will have to go and wake him up lol

I have some news for everyone that I am typing out and will send out later,

hopefully today.

gentle hugs to all,

Coleen

________________________________

From: Kurek <dknde@...>

david kurek <spinal problems >

Sent: Monday, July 20, 2009 8:14:13 AM

Subject: RE: Re: Just curious

My favorite outdoor hobbly is fly fishing, which I have been able to do with my

wife. After I take a pain med, I can fish for about 45 minutes and then its find

the nearest rock to rest from back spasms. After that its in the car and on my

way home. Not much time but 45 minutes is 45 minutes! I also like to paint and

have an expensive stereo hobby. What has channged is that I no longer have a

large window for lovemaking, iuf I can be honest. Its a small window of feeling

good enough. No dual bathtubs staring off into the sunset. dk

!

I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to be

patient. Tomorrow will be different, maybe not better, but definitely different.

I have learned a lot. I can spot a person in pain much more quickly. How about

you?

>

[Guest guest]

LMAO  TY  Lori

'aquila no capit muscas'  < My signature in english is 'an eagle doesn't catch

worms'

From: Kurek <dknde@...>

Subject: RE: Re: Just curious

" david kurek " <spinal problems >

Date: Tuesday, July 21, 2009, 12:52 PM

Thanks Coleen,

Lots fo fun. I wish I could tell you that fly fishing is relaxing but there is

really a bit of constant work to it, like lovemaking. No worms to hook but one

has a tendancy to snag flies in the local trees. With such a short peroid of

time available to fish, there is less emphasis on catching stuff, just being out

there in nature for a short time is reward enough. Hope you get to fish again

soon.   dk

spinal problems

From: foxycol63@...

Date: Tue, 21 Jul 2009 05:02:10 -0700

Subject: Re: Re: Just curious

 

hi , and all,

You mention fly fishing.  I just love to fish although I have never

tried fly fishing.  Is that hard on your back?  I am right handed and maybe

if I tried fly fishing or just casting my line out differently it wouldn't

bother

me so much.

oh, I have a purple fishing pole, I fish on the Elk

River on the Oregon Coast.  I sure do miss it too! I really miss outdoor stuff.

I LOVE to FISH, CAMP, etc.

I am so afraid of throwing my back out casting out my line that I am scared to

fish till I see a back

specialist and talk with them about doing something like that.  Gosh I hope I

get fixed enough

to go fishing again. Man I miss it, I look at my fishing pole every day!  BUT I

won't hook a

worm on the line though lol, don't want to hurt the worm so when I was fishing

alone I just use

that puddy stuff in a jar or salmon eggs.  It is so exciting me.  I love

campfires and all that

stuff.  Right now I can hardly get around.  I better get somewhat fixed or I

will freak.  I can't

live like this the rest of my life, I am only 46 yo and time is flying by too

darn fast.

Every time I over extend myself at doing something I seem to go

further down hill even after I recover a bit from that incident.

I can't wait to fish again.  I even caught a small rock once!  LOL!

I took the rock, put that day's date on it and put it in my purse! :-)

I thought it was pretty cool :-)   I laughed so  hard,  that was Definitely

a keeper, hahahaha!

Did you mention lovemaking?   I really have a hard time with that also.

My guy is big (heavy) guy, and he also had hernia surgery last Super Bowl

Sunday, but anyways, he is always on the bottom and I just sit there on top

(sorry to get so graphic lol) because the more I rock my pelvis back and forth

the worse shape I will be for days.   So while he is laying there he has to

do

what he can which isn't much either (because of his surgery).  At least we get

a little pleasure...I better

get off this topic or I will have to go and wake him up lol

I have some news for everyone that I am typing out and will send out later,

hopefully today.

gentle hugs to all,

Coleen

________________________________

From: Kurek <dknde@...>

david kurek <spinal problems >

Sent: Monday, July 20, 2009 8:14:13 AM

Subject: RE: Re: Just curious

My favorite outdoor hobbly is fly fishing, which I have been able to do with my

wife. After I take a pain med, I can fish for about 45 minutes and then its find

the nearest rock to rest from back spasms. After that its in the car and on my

way home.  Not much time but 45 minutes is 45 minutes!  I also like to paint

and have an expensive stereo hobby. What has channged is that I no longer have a

large window for lovemaking, iuf I can be honest. Its a small window of feeling

good enough. No dual bathtubs staring off into the sunset. dk

 

!

I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to be

patient. Tomorrow will be different, maybe not better, but definitely different.

I have learned a lot. I can spot a person in pain much more quickly. How about

you?

>

[Guest guest]

'aquila no capit muscas'-=  'an eagle doesn't catch flies   rofl

From: Kurek <dknde@...>

Subject: RE: Re: Just curious

" david kurek " <spinal problems >

Date: Tuesday, July 21, 2009, 12:52 PM

Thanks Coleen,

Lots fo fun. I wish I could tell you that fly fishing is relaxing but there is

really a bit of constant work to it, like lovemaking. No worms to hook but one

has a tendancy to snag flies in the local trees. With such a short peroid of

time available to fish, there is less emphasis on catching stuff, just being out

there in nature for a short time is reward enough. Hope you get to fish again

soon.   dk

spinal problems

From: foxycol63@...

Date: Tue, 21 Jul 2009 05:02:10 -0700

Subject: Re: Re: Just curious

 

hi , and all,

You mention fly fishing.  I just love to fish although I have never

tried fly fishing.  Is that hard on your back?  I am right handed and maybe

if I tried fly fishing or just casting my line out differently it wouldn't

bother

me so much.

oh, I have a purple fishing pole, I fish on the Elk

River on the Oregon Coast.  I sure do miss it too! I really miss outdoor stuff.

I LOVE to FISH, CAMP, etc.

I am so afraid of throwing my back out casting out my line that I am scared to

fish till I see a back

specialist and talk with them about doing something like that.  Gosh I hope I

get fixed enough

to go fishing again. Man I miss it, I look at my fishing pole every day!  BUT I

won't hook a

worm on the line though lol, don't want to hurt the worm so when I was fishing

alone I just use

that puddy stuff in a jar or salmon eggs.  It is so exciting me.  I love

campfires and all that

stuff.  Right now I can hardly get around.  I better get somewhat fixed or I

will freak.  I can't

live like this the rest of my life, I am only 46 yo and time is flying by too

darn fast.

Every time I over extend myself at doing something I seem to go

further down hill even after I recover a bit from that incident.

I can't wait to fish again.  I even caught a small rock once!  LOL!

I took the rock, put that day's date on it and put it in my purse! :-)

I thought it was pretty cool :-)   I laughed so  hard,  that was Definitely

a keeper, hahahaha!

Did you mention lovemaking?   I really have a hard time with that also.

My guy is big (heavy) guy, and he also had hernia surgery last Super Bowl

Sunday, but anyways, he is always on the bottom and I just sit there on top

(sorry to get so graphic lol) because the more I rock my pelvis back and forth

the worse shape I will be for days.   So while he is laying there he has to

do

what he can which isn't much either (because of his surgery).  At least we get

a little pleasure...I better

get off this topic or I will have to go and wake him up lol

I have some news for everyone that I am typing out and will send out later,

hopefully today.

gentle hugs to all,

Coleen

________________________________

From: Kurek <dknde@...>

david kurek <spinal problems >

Sent: Monday, July 20, 2009 8:14:13 AM

Subject: RE: Re: Just curious

My favorite outdoor hobbly is fly fishing, which I have been able to do with my

wife. After I take a pain med, I can fish for about 45 minutes and then its find

the nearest rock to rest from back spasms. After that its in the car and on my

way home.  Not much time but 45 minutes is 45 minutes!  I also like to paint

and have an expensive stereo hobby. What has channged is that I no longer have a

large window for lovemaking, iuf I can be honest. Its a small window of feeling

good enough. No dual bathtubs staring off into the sunset. dk

 

!

I I have to ask a question to all back pain sufferers in this group. What has

changed in the way you live? Have you changed your choice of hobbies. What type

of lifestyle changes? How have you grown?

> For me, I have learned to oil paint, decoupage, make very colorful storage

boxes. I now play in water every chance I get. I changed the bottom cabinets in

my kitchen to drawers. I am learning to listen to my body. I have learned to be

patient. Tomorrow will be different, maybe not better, but definitely different.

I have learned a lot. I can spot a person in pain much more quickly. How about

you?

>

[Guest guest]

Deborah,

I too have a child with scoliosis. My daughters scoliosis struck at age 9, I found it rubbing her back, and was heartbroken, cried for about three days, as I was mid way through my own surgical battle with Flatback at the time. Her curve fluctuated up and down in size for years till she needed to be braced at 13 for a year, and she stopped growing, and her curve progression stopped at 28 degrees( a long C type curve). It was hard, knowing I had passed it along. I have two other children, a boy and a girl, both unaffected.

As to family history, I'm adopted, and come from a sealed records state for the decade I was born, so there is no history given to me, either medical or ancestry. My doc believes that if I found my birth family, given my daughters and my history, the family would be riddled with it.

This discussion has come up through our years here. Many have kids with it in varying degrees from mild, to surgical. Bonnie's son even has Harrington rod/ rods too. One gal, I believe maybe it was Dyann, has four children affected. Peggy too has a daughter with it. To see our past conversations on this, go to the site, click messages, go to the search box, type in "Children with scoliosis" and see our past conversations on this.

Do you have a child affected?

I and others here have participated in studies looking at the genetics of scoliosis, in hopes someday it will be better understood, and maybe a prevention or cure can be found.

Colorado Springs

[ ] Just Curious Date: Saturday, October 3, 2009, 9:47 PM

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah

[Guest guest]

Deborah,

Like many here, my scoliosis seems to have come out of nowhere...although on my

maternal side there have been a number of " hip " issues. Since the question has

never been resolved about whether or not I have a leg length

discrepancy....which could have been a factor in my developing scoliosis...I am

the only family member that I know of that ever reached as significant a curve

as I.Interestingly, one brother had mild kypohois.

On researching conditions related to idiopathic scoliosis (no known reason for

onset-the type I had) I did read about Marfans syndrome and conditions related

to it. It is not uncommon to find it amongst those with scoliosis...and the

concern is sudden aortic rupture. If there is any chance that this is the

history your grandmother may have had (any even some vague references to heart

problems) you might want to explore this a little more

(http://www.marfan.org/marfan/.

Take Care, Cam

[Guest guest]

Oops...that last post about 3 daughters inheriting my scoliosis got sent before I signed off...

Diane VDW

Michigan

[Guest guest]

I am curious-there was no scoliosis in my family whatsoever. Where did you learn that it was heriditary. My doctor back in 1966 told me that your spine grows to fast for you and it curves more than the natural curve we all have. That makes sense to me as most pre teens have the growth spurt around that time.

From: S. Sogg <RSSSCOLIOSIS@...>Subject: Re: [ ] Just Curious Received: Sunday, October 4, 2009, 10:24 PM

I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks).

S.

************ ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ***

In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03 (DOT) com writes:

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah

__________________________________________________

[Guest guest]

I inherited my scoliosis from my father, who inherited it from his mother. We don't know about her mother, as she died when my grandmother was a teen. My brother also has mild scoliosis. My father's scoliosis is mild enough that at 85 he still walks over 2 mile per day, and has a slight stoop forward, with occasional mild pain associated.

Carol

"No storm can shake my inmost calm, when to that Rock I'm clinging........ "

Re: [ ] Just Curious Received: Sunday, October 4, 2009, 10:24 PM

I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks).

S.

************ ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ***

In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03 (DOT) com writes:

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah

__________________________________________________

[Guest guest]

I, too was told that scoliosis is always hereditary when I was diagnosed at age 41 with "severe adult-onset scoliosis". (I have an X-ray of my normal spine at age 40) No one on either side of my family remembered anyone having it, but my surgeon insisted that someone had to have had it, Five years later my mother, at age 72, developed the exact same lumbar curve on the same side as mine with compensating lower lumbar curve. The surgeons said she was too old to put her through surgery. She lived another 10 years.

None of my other relatives to this day have it

Dorcas

Re: [ ] Just Curious Received: Sunday, October 4, 2009, 10:24 PM

I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks).

S.

************ ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ***

In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03 (DOT) com writes:

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah

__________________________________________________

[Guest guest]

I was told in 1967 by Dr. Harrington it is not hereditary. However, 5

years later, my sister developed scoliosis. My 2 grown daughters do not

have it, my sister has 4 young daughters, too early to tell. My older

daughter has 2 little girls. I do remember out of 4 teenagers having

scoliosis, only 1 will be a boy.

Debra

cosby@...

Houston, Texas

Durand wrote:

>

>

> I am curious-there was no scoliosis in my family whatsoever. Where

> did you learn that it was heriditary. My doctor back in 1966 told me

> that your spine grows to fast for you and it curves more than the

> natural curve we all have. That makes sense to me as most pre teens

> have the growth spurt around that time.

>

>

>

>

> From: S. Sogg <RSSSCOLIOSIS@...>

> Subject: Re: [ ] Just Curious

>

> Received: Sunday, October 4, 2009, 10:24 PM

>

>

> I think I'm a very unusual case. In general, scoliosis is passed

> down from mothers to daughters. Neither my mother or my sister

> have scoliosis. My father has scoliosis; however, I do not know to

> what degree. He has never been treated for scoliosis (I wore both

> a Milwaukee and a TLSO Brace while a teenager, and had surgeries

> in 1996. A second surgery was done six weeks after the first due

> to loose hooks).

>

> S.

>

> ************ ********* ********* ********* ********* *********

> ********* ********* ********* ********* ********* *********

> ********* ********* ***

>

>

>

> In a message dated 10/03/09 17:51:18 Eastern Daylight Time,

> deborahm03 (DOT) com writes:

>

>

> Does anyone have a family history of scoliosis in their family?

>

> I have an uncle that I think had a minor form of it and Im not

> sure but my grandmother may have had it. My mother's side of

> the family has all kinds of history so she never talked about

> it much, but I do know that she had a lot of health problems

> and maybe back then it wasnt properly diagnosed. She died when

> my mother was five, so its hard to say exactly what was going

> on. Just wondering... ..

>

> -Deborah

>

>

>

>

> __________________________________________________

>

[Guest guest]

I was told it could be either hereditary or not.. I have idiopathic scoliosis which means no known cause. (Although, I suspect being a Love Canal baby has something to do with some of my medical issues)But it does tend to be hereditary, mostly through the females, but not always. It's probably like cancer. Some people can smoke a pack a day and live to be 90, while others can contract it without having smoked a single cigarette. -Dyann>>>     From: S. Sogg <RSSSCOLIOSIS@...>>     Subject: Re: [ ] Just Curious>      >     Received: Sunday, October 4, 2009, 10:24 PM>>      >     I think I'm a very unusual case. In general, scoliosis is passed>     down from mothers to daughters. Neither my mother or my sister>     have scoliosis. My father has scoliosis; however, I do not know to>     what degree. He has never been treated for scoliosis (I wore both>     a Milwaukee and a TLSO Brace while a teenager, and had surgeries>     in 1996. A second surgery was

done six weeks after the first due>     to loose hooks).>      >                                                        S.>      >     ************ ********* ********* ********* ********* *********>     ********* ********* ********* ********* ********* *********>     ********* ********* ***>      >      >      >     In a message dated 10/03/09 17:51:18 Eastern Daylight Time,>     deborahm03 (DOT) com writes:>>          >         Does anyone have a family history of scoliosis in their family?>>         I have an uncle that I think had a minor form of it and Im not>         sure but my grandmother may have had it. My mother's side of>         the family has all kinds of history so she never talked about>         it much, but I do know that she had a lot of health

problems>         and maybe back then it wasnt properly diagnosed. She died when>         my mother was five, so its hard to say exactly what was going>         on. Just wondering... ..>>         -Deborah>>      >>> __________________________________________________>

[Guest guest]

My dad has scoliosis too, tho it has never been treated other than at a

chiropractor. It has become more noticeable in the last 10 years or so. My

maternal grandmother had a pretty decent hump on her back late in life, but I

believe that was age-related and not due to scoliosis (she died at 97 a couple

of years ago), as I don't recall her ever looking crooked.

My 5yr old looks like she may develop it. When she went thru a growth spurt

earlier this year, her spine looked like it was curving just slightly. My

husband noticed it too, otherwise I'd just chalk it up to me being overly

paranoid. It seemed to straighten itself out by the time her summer physical

appt came around, but I will definately be keeping an eye on her and her sister.

>

> I think I'm a very unusual case. In general, scoliosis is passed down from

mothers to daughters. Neither my mother or my sister have scoliosis. My father

has scoliosis; however, I do not know to what degree. He has never been treated

for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and

had surgeries in 1996. A second surgery was done six weeks after the first due

to loose hooks).

>

> S.

>

>

********************************************************************************\

****************************************************

>

>

>

> In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03@...

writes:

> Does anyone have a family history of scoliosis in their family?

>

> I have an uncle that I think had a minor form of it and Im not sure but my

grandmother may have had it. My mother's side of the family has all kinds of

history so she never talked about it much, but I do know that she had a lot of

health problems and maybe back then it wasnt properly diagnosed. She died when

my mother was five, so its hard to say exactly what was going on. Just

wondering.....

>

> -Deborah

>

[Guest guest]

,

From what I have read, they are not certain what the cause is of scoliosis and there are many theories out there right now being researched. I don't think a genetic link has been ruled out. I know polio can cause scoliosis and that malformation in ones vertebrae can cause it. Many children are born with it, so growth spurts cannot be the answer for them. It is still a mystery and I hope they figure it out soon!

Jeanne

Re: [ ] Just Curious Received: Sunday, October 4, 2009, 10:24 PM

I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks).

S.

************ ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ***

In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03 (DOT) com writes:

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah

__________________________________________________

[Guest guest]

Diane,

From what I understand, it can either hit out of the blue, or be passed along in a family( my case), or can result from birth defects or disease( a lot of people with Muscular distrophy, or cerebral palsy have it) or injury in the case of some adults. It also can hit at various times during childhood to adulthood. Both mine and my daughters hit before puberity, juvenile onset. I watched a surgery saved my life episode where a young girl of 6 had huge curves, where surgery was necessary right then, and she had to have yearly surgeries to extend her rod length while she grew.

Truth be told, they are still learning. I've read a ton, and there are many ideas as to why it happens, thats why research is so important, so they can take these ideas and study them.

Those of us that know it runs in our families have the benefit of knowing, and thus can get our kids watched like a hawk, and treated quickly, maybe to avoid surgery if possible. I have it, my daughter has it, and we are watching my Granddaughter( her Mom is not affected), and hope it doesn't rear it's ugly head in her. I tease Dr. Kumar that my family alone will put his girls through college, between my three surgeries, and Ceili's bracing and treatment. I knock on wood often that it will pass by my granddaughter like it did her Mom. I have three kids, two unaffected, and my Ceili has a long C type curve at 28 degrees.

I also think sometimes if you go back in families, sometimes there are clues to illnesses there undiagnosised. Could be somebody described as having a tricky hip, or a too long leg, all clues that scoliosis might have been there. You also see that back in the day people where very private about health, so it just wasn't widely known what someone had.

I guess if it's only you affected, thats something with this whole mess to be thankful for, if you can be thankful for any of it.

Re: [ ] Just Curious Received: Sunday, October 4, 2009, 10:24 PM

I think I'm a very unusual case. In general, scoliosis is passed down from mothers to daughters. Neither my mother or my sister have scoliosis. My father has scoliosis; however, I do not know to what degree. He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a teenager, and had surgeries in 1996. A second surgery was done six weeks after the first due to loose hooks).

S.

************ ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ********* ***

In a message dated 10/03/09 17:51:18 Eastern Daylight Time, deborahm03 (DOT) com writes:

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering... ..-Deborah

__________________________________________________

[Guest guest]

I have scoliosis and my youngest daughter has it. She also required surgery. I have one or two first cousins that have it but didn't need surgery or any corrective measures. My mom and her mother had severe kyphosis. I'm not sure if they had the side to side curve but definitely have the severe kyphosis.

Peggy

[ ] Just Curious

Does anyone have a family history of scoliosis in their family?I have an uncle that I think had a minor form of it and Im not sure but my grandmother may have had it. My mother's side of the family has all kinds of history so she never talked about it much, but I do know that she had a lot of health problems and maybe back then it wasnt properly diagnosed. She died when my mother was five, so its hard to say exactly what was going on. Just wondering.....-Deborah

[Guest guest]

Hi...

Most often, " adult onset " scoliosis is caused by degeneration of the bones from

osteoporosis (which I believe to be hereditary).

There's been a huge amount of genetic research in scoliosis going on for the

last 10-12 years. I think what they'll eventually find is that scoliosis can be

caused by multiple things, some of which is hereditary.

I have 7 siblings, none of which have scoliosis.

Regards,

>

>

> From: S. Sogg <RSSSCOLIOSIS@...>

> Subject: Re: [ ] Just Curious

>

> Received: Sunday, October 4, 2009, 10:24 PM

>

>

>

> I think I'm a very unusual case. In general, scoliosis is passed

> down from mothers to daughters. Neither my mother or my sister have

> scoliosis. My father has scoliosis; however, I do not know to what degree.

> He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO

> Brace while a teenager, and had surgeries in 1996. A second surgery was done

> six weeks after the first due to loose hooks).

>

> S.

>

> ************ ********* ********* ********* ********* *********

> ********* ********* ********* ********* ********* ********* *********

> ********* ***

>

>

>

> In a message dated 10/03/09 17:51:18 Eastern Daylight Time,

> deborahm03 (DOT) com writes:

>

> Does anyone have a family history of scoliosis in their

> family?

>

> I have an uncle that I think had a minor form of it and Im not

> sure but my grandmother may have had it. My mother's side of the family has

> all kinds of history so she never talked about it much, but I do know that

> she had a lot of health problems and maybe back then it wasnt properly

> diagnosed. She died when my mother was five, so its hard to say exactly what

> was going on. Just wondering... ..

>

> -Deborah

>

>

>

>

> __________________________________________________

>

[Guest guest]

When researchers talk about the genetics of scoliosis, they are referring only

to idiopathic scoliosis. Polio, and other neuromuscular conditions can result

in scoliosis. However, the scoliosis would never be hereditary in a

neuromuscular syndrome.

--

>

>

> From: S. Sogg <RSSSCOLIOSIS@...>

> Subject: Re: [ ] Just Curious

>

> Received: Sunday, October 4, 2009, 10:24 PM

>

>

>

> I think I'm a very unusual case. In general, scoliosis is passed

down from mothers to daughters. Neither my mother or my sister have scoliosis.

My father has scoliosis; however, I do not know to what degree. He has never

been treated for scoliosis (I wore both a Milwaukee and a TLSO Brace while a

teenager, and had surgeries in 1996. A second surgery was done six weeks after

the first due to loose hooks).

>

> S.

>

> ************ ********* ********* ********* ********* *********

********* ********* ********* ********* ********* ********* ********* *********

***

>

>

>

> In a message dated 10/03/09 17:51:18 Eastern Daylight Time,

deborahm03 (DOT) com writes:

>

> Does anyone have a family history of scoliosis in their family?

>

> I have an uncle that I think had a minor form of it and Im not

sure but my grandmother may have had it. My mother's side of the family has all

kinds of history so she never talked about it much, but I do know that she had a

lot of health problems and maybe back then it wasnt properly diagnosed. She died

when my mother was five, so its hard to say exactly what was going on. Just

wondering... ..

>

> -Deborah

>

>

>

>

> __________________________________________________

>

[Guest guest]

,

I've been tested for osteoporosis every year or 2 for the last 18 and so far have no signs of it. I certainly hope that continues!

Thanks

Dorcas

St. Louis

Re: [ ] Just Curious> > Received: Sunday, October 4, 2009, 10:24 PM> > > > I think I'm a very unusual case. In general, scoliosis is passed> down from mothers to daughters. Neither my mother or my sister have> scoliosis. My father has scoliosis; however, I do not know to what degree.> He has never been treated for scoliosis (I wore both a Milwaukee and a TLSO> Brace while a teenager, and had surgeries in 1996. A second surgery was done> six weeks after the first due to loose hooks).> > S.> > ************ ********* ********* ********* ********* *********> ********* ********* ********* ********* ********* ********* *********> ********* ***> > > > In a message dated 10/03/09 17:51:18 Eastern Daylight Time,> deborahm03 (DOT) com writes:> > Does anyone have a family history of scoliosis in their> family?> > I have an uncle that I think had a minor form of it and Im not> sure but my grandmother may have had it. My mother's side of the family has> all kinds of history so she never talked about it much, but I do know that> she had a lot of health problems and maybe back then it wasnt properly> diagnosed. She died when my mother was five, so its hard to say exactly what> was going on. Just wondering... ..> > -Deborah> > > > > __________________________________________________>