RE: National Jewish Hospital

[Guest guest]

I have heard fabulous things about NJH. They have a great website for

patients. Call them and ask them if they can network with your doctor

without you going there first. Like if your doc can send all your

records and you can have someone there review them.

If your asthma is even partially caused by allergy, Xolair will help

you. If your triggers are other than allergy, Xolair might not be

helpful.

I was at the point of going to NJH and Xolair was approved. It was

my " all right, I'll try one more thing but if it doesn't work.... "

Xolair has changed my life. I used to have 9-10 upper resp infections

a year. Now I have three at the most. I couldn't live without pred.

Now I need it maybe 2-3 times a year in short bursts. I hardly take

any meds on a daily basis when before I took a minimum of 5 meds every

day.

Good luck with Xolair. Please let us know what you decide.

Addy

>

> From reading past posts it sounds like several people have severe

> uncontrollable asthma. My pulmo is really pushing for me to go to

> National Jewish Hospital in Denver to see if they have any ideas on

> how to help me. He says I am maxed out on treatments and doesn't

know

> what to do about my very frequent, severe attacks. I have not been

on

> Xolair long, but he doesn't think it will help. It is just kind of a

> last resort effort.

>

> Has anyone here been to NJH? I am in Salt Lake City, Utah so it is

> quite a trip to go. I am also not sure if my insurance will cover

any

> of it. I am just trying to decide if it is going to be worth the

> expense and time off work. TIA

>

[Guest guest]

,

If you are interested, here is the NJH website:

http://www.nationaljewish.org/index.aspx

Check it out.

~STEVE ZIMMERMAN, CPM, CVOM~

________________________________

From: [mailto: ]

On Behalf Of

Sent: Saturday, May 20, 2006 6:10 PM

Subject: [ ] National Jewish Hospital

From reading past posts it sounds like several people have severe

uncontrollable asthma. My pulmo is really pushing for me to go to

National Jewish Hospital in Denver to see if they have any ideas on

how to help me. He says I am maxed out on treatments and doesn't know

what to do about my very frequent, severe attacks. I have not been on

Xolair long, but he doesn't think it will help. It is just kind of a

last resort effort.

Has anyone here been to NJH? I am in Salt Lake City, Utah so it is

quite a trip to go. I am also not sure if my insurance will cover any

of it. I am just trying to decide if it is going to be worth the

expense and time off work. TIA

[Guest guest]

Thanks so much for the link and your experiences with NJH. I am looking forward

to looking into this more to see if it is an option for me. My dr. said he had a

few drs. there that he was going to call to consult with about me. I see him

again June 12th so hopefully he will have some answers then.

Steve Zimmerman <steve@...> wrote: ,

If you are interested, here is the NJH website:

http://www.nationaljewish.org/index.aspx

Check it out.

~STEVE ZIMMERMAN, CPM, CVOM~

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

If you are thinking about going to National Jewish, get the process

started WHILE you think about it.

I am on absolutely everything and self-inject epi to stop attacks. My

doctor wanted me to go to NJH and I thought about it and looked into

it. I finally agreed that it was a good idea even though I live in

another state and can ill afford the travel, hotel, and child care.

Silly me. I am now approved to go to NJH and can look forward to an

appointment in August or September. Meanwhile I have deteriorated to

the point that I have absolutely no life and will be on minimum 20 mg

daily of evil candy until that appointment.

The wait is long, even with a physician's referral. Get the process

started. If you want to cancel later, you have that option. But if

you wait until you are really desperate, you may have some really ugly

scary months ahead of you while you wait for your turn.

[Guest guest]

hades no. unless you see a good doctor forget it. my doctor and i had a

shouting match the first day.. i wanted them to run complex immune studies and i

was so right and they were only wrong; all they do is repeat very basic

tests--it is a total waste and an unfunny waste.

Little Bee Eater <merops.pusillus@...> wrote: On 5/30/07,

SGordon262@... <SGordon262@...> wrote:

*snip!*

> My pulmonologist suggested I go to National Jewish

> hospital & I was wondering if others have find that beneficiall?

>

I've been wondering that too. I've been on Xolair for 1 1/2 years.

In truth, I don't know if it has helped that much. I'm on

Theophylline, Pulmicort, Intal, Nascalcrom, albuterol via nebulizer as

needed, Allegra 240mgs. Pathetic, eh?

I had a really rough weekend. Wheeze, wheeze, wheeze, and my allergies

are out of control. Saw my allergist today, and we are adding

Singulair to the mix. I guess more to feel that we are doing

something.

All my other doctors are pushing NJH, but I'm wondering what else

could they offer? My insurance won't pay for it willingly, and I do

not live in Colorado. Their site says expect to stay one week.

That's an awlful lot of cash for me, have them say, " There isn't a

much we can offer " .

My only blessing is I'm not on Pred for the moment. But I was never

on a ton of it to begin with. I have type 2 diabetes, and Pred plays

hell with my blood sugar control.

Blah..............

Nan-->having a pity party for self at the moment....

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