Re: New member with question

[Guest guest]

Dear Kalzangluv,

We started our son, now 6, on the HP Zyme Prime, working from 1/3 cap per

meal up to 3/4 of a cap per meal in about a week.

tonight I gave him AFP Peptidyze (about 1/4 cap) and will work that up to a

full cap/meal over the next 2 weeks (I hope.)

I would order DeFelice's book, Autism and Enzymes.... which you can do

at Amazon and other places. You don't really have to wait to start the

enzymes. You could give the Zyme Prime, which is very general, even now

regardless if you have him on or off the gfcf diet.

People here are very knowleagable (not me, but others!) and will help you,

Marti

[Guest guest]

I think Marti is doing an excellent job! See how quickly you can

move up to 'expert'? LOL.

Kalzangluv: you can start enzymes any time and now sounds as good as

any. Even babies are put on digestive enzymes when they are weeks

old if they have Gaucher's disease or cystic fibrosis (born with

enzyme deficiencies). And they stay on them for life. So much for

the enzyme safety question.

And since our bodies are supposed to be making enzymes every single

day of our life, you are just replacing what should be there anyway.

If he responded with any improvement to the GFCF diet then consider

the Peptizyde because usually that will attack the same things as

the diet is supposed to address, only the enzymes as a bit more

thorough about it.

And consider one of the generall all-purpose broad spectrum

products, like the four I listed previously. That can help with

overall digestion which may help him feel much better. Those product

break down all the carbohydrates. There has been some research

showing that many people with autism have damaged guts due to

several different factors. A damaged gut lining means that the

enzymes produced by the lining won't be there, or won't be

functioning well. These include the disaccarhides (certain complex

sugar/carb breaking enzymes), lactase (breaks down milk sugar), and

DPP IV (breaks down milk proteins).

Most people who would like to leave a GFCF diet can with Peptizyde.

That is the one being used for nearly two years now instead of the

diet.

>>> My condition is that I have food allergies to wheat and dairy

and food additives like msg. Possible corn too. It seems never

ending. I frequent constipation.

If you have a true allergy (break out in hives, anaphylactic

reaction, swelling) do not count on enzymes to help this. This

reflects a histamine reaction which is different than a food

breakdown issue. I don't know of anyone successfully using enzymes

for msg either.

But the others sound like enzymes may help. I would suggest the

Peptizyde at least for the GFCF issues. That one will also help some

of the corn too. Then see how that goes and afterwards you might

have more information before you try something else.

Best wishes on this,

.

[Guest guest]

> If you have a true allergy (break out in hives, anaphylactic

> reaction, swelling) do not count on enzymes to help this. This

> reflects a histamine reaction which is different than a food

> breakdown issue.

I have an adverse reaction to wheat and dairy. I have never been

tested for food allergies but I assumed thats what it was. (I

assumed because I wont go to a doctor). I will try enzymes. It may

be a 'leaky gut'. I will look up the symptoms for leaky gut and see

if mine correlate. I know our autistic boy does get constipated and

impacted when he eats wheat and dairy (I dont know which is the worst

offender as I took him off both at once). But he doesnt get bloated

like I do. We both suffer from constipation. He also has 'bad

bacteria' in his intestines as evidenced by the horrendous smell.

Sorry for all the graphics ....

Im going to the health food store today to look for these products.

Kalzangluv

[Guest guest]

Welcome!

Xolair works by binding to the IgE cells to prevent the IgE from

binding to the mast cell (and thus starting the allergic process)

upon the introduction of an allergen. Xolair has been very

effective with my mold allergy, so I can't imagine it would not be

helpful in preventing an allergic reaction to a fungus. Pat, a

Xolair nurse who reads and posts on our board, may have more

information.

Good luck to you. Xolair has vastly improved my life; I've been on

it about 2 and a half years.

Addy

Group co-owner

>

> Hi All,

>

> I am brand new to this board. In fact, I just heard of Xolair

todasy

> for the first time. My pulmonologist is considering adding it to

my

> regimen of drugs since nothing else besides high dose steroids is

> working to treat my problem.

>

> My question is: Does anyone here on this board have ABPA

(Allergic

> Bronchopulmonary Aspergillosis)? My doctor says that there's a

doctor

> at NYU that's using Xolair to treat ABPA. Does anyone have any

> information on this subject?

>

> Thank you!

>

>

>

[Guest guest]

>

> Hi All,

>

> I am brand new to this board. In fact, I just heard of Xolair todasy

> for the first time. My pulmonologist is considering adding it to my

> regimen of drugs since nothing else besides high dose steroids is

> working to treat my problem.

>

> My question is: Does anyone here on this board have ABPA (Allergic

> Bronchopulmonary Aspergillosis)? My doctor says that there's a doctor

> at NYU that's using Xolair to treat ABPA. Does anyone have any

> information on this subject?

>

> Thank you!

>

>

Welcome ,

In 2 months, I will be on Xolair for 3 years. I have had NO side

effects and I have been able to completely get off Prednisone (we call

it " evil candy " on this board)

I hope it works as well for you as it has for me.

Doug

Group founder

Co-owner-moderator

[Guest guest]

,

I had to look up ABPA because I've never heard of it but I see it is a

condition where IgE and IgG antibodies are present. Since Xolair binds to IgE

you may find it useful. You may have a problem getting it approved by your

insurance company because Xolair is designed to specifically treat Allergic

Asthma. I don't know enough about ABPA though. Have you had your IgE levels

tested? If your IgE levels are above 30 then you would qualify on that basis

but there are other requirements.

kmik617 <kelly@...> wrote:

Hi All,

I am brand new to this board. In fact, I just heard of Xolair todasy

for the first time. My pulmonologist is considering adding it to my

regimen of drugs since nothing else besides high dose steroids is

working to treat my problem.

My question is: Does anyone here on this board have ABPA (Allergic

Bronchopulmonary Aspergillosis)? My doctor says that there's a doctor

at NYU that's using Xolair to treat ABPA. Does anyone have any

information on this subject?

Thank you!

[Guest guest]

I had Allergic Sinus Aspergillosis (ASA) some years ago, though not

ABPA. I was very ill and was treated with prednisone, which improved

the sinuses situation dramatically but made me quite ill systemically,

including profound muscle weakness (steroid myopathy) that put me in a

wheelchair for months until I had enough physical therapy (and dropped

the steroids)to recover enough that I could return to my normal

working and private life. Looking back at that, I would jump at the

chance to try Xolair as an alternative to the Evil Candy i had to

take. I suggest contacting the doctore at NYU who is using Xolair for

ABPA and find out how it's been working out. Seems like it should be

better that going on the Evil Candy.

Fran

> >

> > Hi All,

> >

> > I am brand new to this board. In fact, I just heard of Xolair

> todasy

> > for the first time. My pulmonologist is considering adding it to

> my

> > regimen of drugs since nothing else besides high dose steroids is

> > working to treat my problem.

> >

> > My question is: Does anyone here on this board have ABPA

> (Allergic

> > Bronchopulmonary Aspergillosis)? My doctor says that there's a

> doctor

> > at NYU that's using Xolair to treat ABPA. Does anyone have any

> > information on this subject?

> >

> > Thank you!

> >

> >

> >

>

[Guest guest]

Hi All,

Thanks so much for your responses to my question. I apologize for

not responding sooner. I spent another week in the hospital and

just have generally not felt well. I currently am on anti-fungal

medication (itraconozole)as well as 'evil candy'. My latest IgE

level was 900. I also have allergic asthma so my doctor was able to

get the Xolair approved through my insurance company. I only have

to pay a $35 per month co-pay.

I started the Xolair injections yesterday. I was VERY greatful that

I didn't have a bad reaction to the injections. I'm on 375mg every

two weeks. I'll be self-administering the injections. Does anyone

else here do that? I did one of them yesterday and although I

didn't enjoy the experience I think I'll get used to it.

Thanks again everyone for being so helpful.

> > >

> > > Hi All,

> > >

> > > I am brand new to this board. In fact, I just heard of Xolair

> > todasy

> > > for the first time. My pulmonologist is considering adding it

to

> > my

> > > regimen of drugs since nothing else besides high dose steroids

is

> > > working to treat my problem.

> > >

> > > My question is: Does anyone here on this board have ABPA

> > (Allergic

> > > Bronchopulmonary Aspergillosis)? My doctor says that there's

a

> > doctor

> > > at NYU that's using Xolair to treat ABPA. Does anyone have

any

> > > information on this subject?

> > >

> > > Thank you!

> > >

> > >

> > >

> >

>

[Guest guest]

Wow! You pay only $35.00. That is great! A few of us pay

a considerable amount to get the benefits of Xolair ($380-biweekly

$200-monthly).

kmik617 <kelly@...> wrote:

Hi All,

Thanks so much for your responses to my question. I apologize for

not responding sooner. I spent another week in the hospital and

just have generally not felt well. I currently am on anti-fungal

medication (itraconozole)as well as 'evil candy'. My latest IgE

level was 900. I also have allergic asthma so my doctor was able to

get the Xolair approved through my insurance company. I only have

to pay a $35 per month co-pay.

I started the Xolair injections yesterday. I was VERY greatful that

I didn't have a bad reaction to the injections. I'm on 375mg every

two weeks. I'll be self-administering the injections. Does anyone

else here do that? I did one of them yesterday and although I

didn't enjoy the experience I think I'll get used to it.

Thanks again everyone for being so helpful.

> > >

> > > Hi All,

> > >

> > > I am brand new to this board. In fact, I just heard of Xolair

> > todasy

> > > for the first time. My pulmonologist is considering adding it

to

> > my

> > > regimen of drugs since nothing else besides high dose steroids

is

> > > working to treat my problem.

> > >

> > > My question is: Does anyone here on this board have ABPA

> > (Allergic

> > > Bronchopulmonary Aspergillosis)? My doctor says that there's

a

> > doctor

> > > at NYU that's using Xolair to treat ABPA. Does anyone have

any

> > > information on this subject?

> > >

> > > Thank you!

> > >

> > >

> > >

> >

>

---------------------------------

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[Guest guest]

,

I was really suprised that I only had to pay $35. I was very happy

when I found out. I was even more excited when I got the first

injections and didn't have a bad reaction to them. I am really

hopeful that this medication will work for me so I can get off the

steroids (evil candy).

Thanks!

> > > >

> > > > Hi All,

> > > >

> > > > I am brand new to this board. In fact, I just heard of

Xolair

> > > todasy

> > > > for the first time. My pulmonologist is considering adding

it

> to

> > > my

> > > > regimen of drugs since nothing else besides high dose

steroids

> is

> > > > working to treat my problem.

> > > >

> > > > My question is: Does anyone here on this board have ABPA

> > > (Allergic

> > > > Bronchopulmonary Aspergillosis)? My doctor says that there's

> a

> > > doctor

> > > > at NYU that's using Xolair to treat ABPA. Does anyone have

> any

> > > > information on this subject?

> > > >

> > > > Thank you!

> > > >

> > > >

> > > >

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

>

[Guest guest]

That is wonderful that you don't have to pay anymore than $35!

The doctor was really afraid that we were going to lose my son,

and we would have paid any amount!!! Yes! The evil candy does

have it bad side effects. I truly believe that is why my son now

has Type I diabetes. Like the others have said, it may take

some longer to respond to Xolair and see great benefits but

just being able to stop some of the medications is worth it.

That first shot is a real stressful moment! I remember asking

all kinds of questions about the first and only patient that

had received Xolair. That was Doug!

kmik617 <kelly@...> wrote:

,

I was really suprised that I only had to pay $35. I was very happy

when I found out. I was even more excited when I got the first

injections and didn't have a bad reaction to them. I am really

hopeful that this medication will work for me so I can get off the

steroids (evil candy).

Thanks!

> > > >

> > > > Hi All,

> > > >

> > > > I am brand new to this board. In fact, I just heard of

Xolair

> > > todasy

> > > > for the first time. My pulmonologist is considering adding

it

> to

> > > my

> > > > regimen of drugs since nothing else besides high dose

steroids

> is

> > > > working to treat my problem.

> > > >

> > > > My question is: Does anyone here on this board have ABPA

> > > (Allergic

> > > > Bronchopulmonary Aspergillosis)? My doctor says that there's

> a

> > > doctor

> > > > at NYU that's using Xolair to treat ABPA. Does anyone have

> any

> > > > information on this subject?

> > > >

> > > > Thank you!

> > > >

> > > >

> > > >

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

>

[Guest guest]

I'll check my settings.. but they don't show that way on mine.. wierd..

Suzi

List Owner

health/

http://360./suziesgoats

What is a weed? A plant whose virtues have not yet been discovered.

From: SV <shavig@...>Subject: Re: New member with questionhealth Date: Tuesday, September 30, 2008, 6:09 AM

Nope, it's generally not the articles it's replies to other messages when it gets lost.

Shari