Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Hi, ! Great to see you, but sorry you got laid off. You're right about the volume of messages. Business is booming here! Sharon Racine wrote: Hello all.... I know it's been a long time, but thought I'd stop by and say howdy. I read a few hundred posts, and realized it would take a year to catch up on everything, so think I'll just start with May. I'm going to try and get more involved again. I was laid off in April, so I have time now to update my website. I'm also going to start volunteering in the spine clinic at UCSF this week. I hope that all the "old" buddies are doing well. I see that you're doing a great job taking care of the new folks. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 That's not good! By the way, I saw your post about Dr. Shelokov (re ie), and it reminded me of something from earlier today. Someone on the National Scoliosis Foundation forums is telling people how great he is, having done all 7 of her surgeries. Yikes! There's a person who is going to go to him based on that information. (It would scare the crap out of me to have to go to someone who had done 7 surgeries on one patient.) It was relatively common, about 15-20 years ago, to find people who had undergone that many procedures. It's not something, thankfully, that we hear about now. -- > Business is booming here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Seven surgeries? Yikes indeed. Sounds like Dr. Shelokov likes to PRACTICE medicine. Racine wrote: That's not good! By the way, I saw your post about Dr. Shelokov (re ie), and it reminded me of something from earlier today. Someone on the National Scoliosis Foundation forums is telling people how great he is, having done all 7 of her surgeries. Yikes! There's a person who is going to go to him based on that information. (It would scare the crap out of me to have to go to someone who had done 7 surgeries on one patient.) It was relatively common, about 15-20 years ago, to find people who had undergone that many procedures. It's not something, thankfully, that we hear about now. -- > Business is booming here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Nice to see you back, . I, for one, have missed you. You were a great support when I first started the Scoliosis Association Chapter in British Columbia. If you haven't heard, I was able to get it as a Registered Charity with the Canadian federal government. Which reminds me that I owe a story to Scoliosis, Inc. on that subject, but that's another story. Glad to see you back. Llweyn From: [mailto: ] On Behalf Of RacineSent: May 4, 2009 9:42 PM Subject: [ ] Checking In Hello all....I know it's been a long time, but thought I'd stop by and say howdy. I read a few hundred posts, and realized it would take a year to catch up on everything, so think I'll just start with May. I'm going to try and get more involved again. I was laid off in April, so I have time now to update my website. I'm also going to start volunteering in the spine clinic at UCSF this week. I hope that all the "old" buddies are doing well. I see that you're doing a great job taking care of the new folks.Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 , A huge hello! I am very sorry that you were laid off...but if we get to enjoy your company a bit more, then thats a good thing. Yes, the group does put up a lot of messages...kind of a good news/bad news kind of thing. I am glad we can be a place for information and support..just sorry that its necessary. The format hasn't gotten any easier to track back, but I understand there is some kind of upgrade coming out in the search feature, so if you need to refresh your memory hopefully this will help. To those of you that don't know she was one of our founding members and is also the author/owner of a website we have linked for all things " scoliosis " , bioth primary and revision. Her wealth of knowledge has been a tremendous resource for many a searching patient. She is also a co-moderator on the National Scoliosis Foundations web board and often refers folks over here for our particular brand of discussion/information. So , how is your back doing...are you still in the waiting mode? I hope you are not too uncomfortable most days. Its great that you will be able to help out at UCSF. If you get any inside scoop on upcoming interventions for us revisees, be sure to give us the dirt! Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Hi , Welcome back!! How nice that you're here again (though I'm sorry you got laid off). I've missed you. How's your back feeling these days? Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 That's great news Llweyn... sorry to hear that you're still suffering hwoever. -- > > Nice to see you back, . I, for one, have missed you. You were a great > support when I first started the Scoliosis Association Chapter in British > Columbia. If you haven't heard, I was able to get it as a Registered Charity > with the Canadian federal government. Which reminds me that I owe a story to > Scoliosis, Inc. on that subject, but that's another story. > > Glad to see you back. > > Llweyn > > _____ > > From: > [mailto: ] On Behalf Of Racine > Sent: May 4, 2009 9:42 PM > > Subject: [ ] Checking In > > > > > > Hello all.... > > I know it's been a long time, but thought I'd stop by and say howdy. I read > a few hundred posts, and realized it would take a year to catch up on > everything, so think I'll just start with May. > > I'm going to try and get more involved again. I was laid off in April, so I > have time now to update my website. I'm also going to start volunteering in > the spine clinic at UCSF this week. > > I hope that all the " old " buddies are doing well. I see that you're doing a > great job taking care of the new folks. > > Regards, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Cam.... You are FAR too kind. Thanks. My back is about the same. I know I need more surgery, but just can't imagine myself laid up for any length of time. I actually think I should take advantage of being out of work, but I can come up with dozens of excuses why I'm not getting it done. In the meantime, I'm trying to take lots of long walks. I was so busy with work for the last few years, that I got almost no exercise. Hope you have a fabulous time at the retreat. One of these days, I swear I " ll make it. Best, > > , > > A huge hello! I am very sorry that you were laid off...but if we get to enjoy your company a bit more, then thats a good thing. > > Yes, the group does put up a lot of messages...kind of a good news/bad news kind of thing. I am glad we can be a place for information and support..just sorry that its necessary. The format hasn't gotten any easier to track back, but I understand there is some kind of upgrade coming out in the search feature, so if you need to refresh your memory hopefully this will help. > > To those of you that don't know she was one of our founding members and is also the author/owner of a website we have linked for all things " scoliosis " , bioth primary and revision. Her wealth of knowledge has been a tremendous resource for many a searching patient. She is also a co-moderator on the National Scoliosis Foundations web board and often refers folks over here for our particular brand of discussion/information. > > So , how is your back doing...are you still in the waiting mode? I hope you are not too uncomfortable most days. Its great that you will be able to help out at UCSF. If you get any inside scoop on upcoming interventions for us revisees, be sure to give us the dirt! > > Take Care, Cam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 , I totally relate to the "no time to get laid up"! Somehow I got through it, though. Good for you on getting back to exercising. Whether or not this is your surgery year, exercise can only do you good. Sharon Racine wrote: Cam.... You are FAR too kind. Thanks. My back is about the same. I know I need more surgery, but just can't imagine myself laid up for any length of time. I actually think I should take advantage of being out of work, but I can come up with dozens of excuses why I'm not getting it done. In the meantime, I'm trying to take lots of long walks. I was so busy with work for the last few years, that I got almost no exercise. Hope you have a fabulous time at the retreat. One of these days, I swear I"ll make it. Best, > > , > > A huge hello! I am very sorry that you were laid off...but if we get to enjoy your company a bit more, then thats a good thing. > > Yes, the group does put up a lot of messages...kind of a good news/bad news kind of thing. I am glad we can be a place for information and support..just sorry that its necessary. The format hasn't gotten any easier to track back, but I understand there is some kind of upgrade coming out in the search feature, so if you need to refresh your memory hopefully this will help. > > To those of you that don't know she was one of our founding members and is also the author/owner of a website we have linked for all things "scoliosis", bioth primary and revision. Her wealth of knowledge has been a tremendous resource for many a searching patient. She is also a co-moderator on the National Scoliosis Foundations web board and often refers folks over here for our particular brand of discussion/informat ion. > > So , how is your back doing...are you still in the waiting mode? I hope you are not too uncomfortable most days. Its great that you will be able to help out at UCSF. If you get any inside scoop on upcoming interventions for us revisees, be sure to give us the dirt! > > Take Care, Cam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Hi , I'm so sorry you were laid off. That being said, I've missed your presence here. Glad to know you'll be here. > > Hello all.... > > I know it's been a long time, but thought I'd stop by and say howdy. I read a few hundred posts, and realized it would take a year to catch up on everything, so think I'll just start with May. > > I'm going to try and get more involved again. I was laid off in April, so I have time now to update my website. I'm also going to start volunteering in the spine clinic at UCSF this week. > > I hope that all the " old " buddies are doing well. I see that you're doing a great job taking care of the new folks. > > Regards, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 , Bonnie, et. al.... Thanks for the warm welcome back! -- > > > > Hello all.... > > > > I know it's been a long time, but thought I'd stop by and say howdy. I read a few hundred posts, and realized it would take a year to catch up on everything, so think I'll just start with May. > > > > I'm going to try and get more involved again. I was laid off in April, so I have time now to update my website. I'm also going to start volunteering in the spine clinic at UCSF this week. > > > > I hope that all the " old " buddies are doing well. I see that you're doing a great job taking care of the new folks. > > > > Regards, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Hi there, I just wanted to check in since I haven't written in a while. (though i have been reading posts) My revision surgeries were June 2 and June 19. At 3 1/2 months post op, I guess I'm where I should be. I am walking 3 miles six days a week. (gotta take a break once in a while!. My pre surgery leg pain is still gone, which I'm so happy about. The pain I have now is more surgical stuff. I feel aches & pains in my lower back that come and go. I can tell that the numbness in that area is gradually lessening and as a result I'm having more sensation there. I'm not driving too much, I find it extremely uncomfortable to look left or back out. When my boys are with me, it's much easier, they like to look out the car window for me! My mother in law has been a tremendous help with lots of things including food shopping. (she leaves for the winter this weekend:( Up until recently we've had friends bringing dinners every night, that helping hands website is awesome!! Thankfully I'm able to stand in the kitchen and make snacks & help with homework afterschool, before my surgery I'd be in agony during all that. Eventhough I have aches in my lower back, I feel they're a good reminder to step back and rest. This surgery has really given me my life back, a little more each day. Without this website I wouldn't know of all the other people in similar situations, nor would I have learned of my surgeon, Dr.Bridwell. This group continues to be so helpful and supportive, and I'm so thankful to have found it! My next post op visit is October 26th. I'm hoping to find out if I'll need an anterior surgery to insert cages. This is something I was told I'd need down the road before my decompression surgery took place in June. Anyway, I just wanted to check in and to also say thank you to all of you! Warmly, Pa Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 , Great update! You sound like you are slowly making progress...and that's the way it is for most of us....at least after the first month or so is over. Early on you see progress almost daily....but then it slows down so much that you cant rally mark the progress and it can get a little tedious. Its really why we are here....the group was started by a bunch of us that were mostly post-op that felt there was not enough information on the long timeframe recovery really is and we had all felt a little blind sided by that (on top of the recurring scoliosis issues). For me, eventually, it all got a lot easier...and I cant say exactly when, but I can say confidently that it was well after the 1 year mark. Not to say that things didnt get better from the time of surgery onward....but the moment that I realized that I could back out of a long narrow driveway by using new techniques so that I didnt have to stop and think about it was probably closer to the 2-3 year mark. Its like retraining your whole body about what the new way is...and if you have been twisting in you seat for 25 years that can take a little while! I put your checkup on the calendar so we can get your update. I know we are all hoping that you wont need the anterior surgery as you will no doubt have some trouble " rallying up " again....but if you have to, we are here to help you. Take Care, Cam > > Hi there, > I just wanted to check in since I haven't written in a while. (though i have been reading posts) My revision surgeries were June 2 and June 19. At 3 1/2 months post op, I guess I'm where I should be. I am walking 3 miles six days a week. (gotta take a break once in a while!. My pre surgery leg pain is still gone, which I'm so happy about. The pain I have now is more surgical stuff. I feel aches & pains in my lower back that come and go. I can tell that the numbness in that area is gradually lessening and as a result I'm having more sensation there. I'm not driving too much, I find it extremely uncomfortable to look left or back out. When my boys are with me, it's much easier, they like to look out the car window for me! My mother in law has been a tremendous help with lots of things including food shopping. (she leaves for the winter this weekend:( > Up until recently we've had friends bringing dinners every night, that helping hands website is awesome!! > Thankfully I'm able to stand in the kitchen and make snacks & help with homework afterschool, before my surgery I'd be in agony during all that. > Eventhough I have aches in my lower back, I feel they're a good reminder to step back and rest. This surgery has really given me my life back, a little more each day. Without this website I wouldn't know of all the other people in similar situations, nor would I have learned of my surgeon, Dr.Bridwell. This group continues to be so helpful and supportive, and I'm so thankful to have found it! > My next post op visit is October 26th. I'm hoping to find out if I'll need an anterior surgery to insert cages. This is something I was told I'd need down the road before my decompression surgery took place in June. > Anyway, I just wanted to check in and to also say thank you to all of you! > Warmly, > > Pa > Sent from my iPhone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2009 Report Share Posted October 10, 2009 Hi I wish you the best outcome from your surgeries. They'll be here before you know it. Do you live near St. Louis? You are in good hands with Dr. Bridwell. Please check back in when you're up to it. Take good care,PaSent from my iPhoneOn Oct 10, 2009, at 12:48 AM, "coyk76" <mlcoykendall@...> wrote: Hi , So good to hear that your recovery is moving along well. I saw that you will be at Dr. Bridwell's for a post-op visit on the 26th....I will be there on the 26th too but mine is for pre-op. My surgery is the 27th and 29th! Best of luck as you continue to recover- I am sooooo looking forward to that point. > > Hi there, > I just wanted to check in since I haven't written in a while. (though i have been reading posts) My revision surgeries were June 2 and June 19. At 3 1/2 months post op, I guess I'm where I should be. I am walking 3 miles six days a week. (gotta take a break once in a while!. My pre surgery leg pain is still gone, which I'm so happy about. The pain I have now is more surgical stuff. I feel aches & pains in my lower back that come and go. I can tell that the numbness in that area is gradually lessening and as a result I'm having more sensation there. I'm not driving too much, I find it extremely uncomfortable to look left or back out. When my boys are with me, it's much easier, they like to look out the car window for me! My mother in law has been a tremendous help with lots of things including food shopping. (she leaves for the winter this weekend:( > Up until recently we've had friends bringing dinners every night, that helping hands website is awesome!! > Thankfully I'm able to stand in the kitchen and make snacks & help with homework afterschool, before my surgery I'd be in agony during all that. > Eventhough I have aches in my lower back, I feel they're a good reminder to step back and rest. This surgery has really given me my life back, a little more each day. Without this website I wouldn't know of all the other people in similar situations, nor would I have learned of my surgeon, Dr.Bridwell. This group continues to be so helpful and supportive, and I'm so thankful to have found it! > My next post op visit is October 26th. I'm hoping to find out if I'll need an anterior surgery to insert cages. This is something I was told I'd need down the road before my decompression surgery took place in June. > Anyway, I just wanted to check in and to also say thank you to all of you! > Warmly, > > Pa > Sent from my iPhone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 No, I don't live in St. Louis, I live in Michigan (7-8 hr drive) so that has made things a bit more difficult as we have 6 young kids at home that we have to juggle around a bit. Things seem to be falling into place though...finally. We leave for STL two weeks from today <gulp> > > > > Hi there, > > I just wanted to check in since I haven't written in a while. (though i have been reading posts) My revision surgeries were June 2 and June 19. At 3 1/2 months post op, I guess I'm where I should be. I am walking 3 miles six days a week. (gotta take a break once in a while!. My pre surgery leg pain is still gone, which I'm so happy about. The pain I have now is more surgical stuff. I feel aches & pains in my lower back that come and go. I can tell that the numbness in that area is gradually lessening and as a result I'm having more sensation there. I'm not driving too much, I find it extremely uncomfortable to look left or back out. When my boys are with me, it's much easier, they like to look out the car window for me! My mother in law has been a tremendous help with lots of things including food shopping. (she leaves for the winter this weekend:( > > Up until recently we've had friends bringing dinners every night, that helping hands website is awesome!! > > Thankfully I'm able to stand in the kitchen and make snacks & help with homework afterschool, before my surgery I'd be in agony during all that. > > Eventhough I have aches in my lower back, I feel they're a good reminder to step back and rest. This surgery has really given me my life back, a little more each day. Without this website I wouldn't know of all the other people in similar situations, nor would I have learned of my surgeon, Dr.Bridwell. This group continues to be so helpful and supportive, and I'm so thankful to have found it! > > My next post op visit is October 26th. I'm hoping to find out if I'll need an anterior surgery to insert cages. This is something I was told I'd need down the road before my decompression surgery took place in June. > > Anyway, I just wanted to check in and to also say thank you to all of you! > > Warmly, > > > > Pa > > Sent from my iPhone > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Oh boy, you sure do have a lot going on, huh! And I thought I was busy getting my two boys ready for my 6 week absence. Somehow it all works out. I'll be thinking about you. Sent from my iPhoneOn Oct 11, 2009, at 11:06 PM, "coyk76" <mlcoykendall@...> wrote: No, I don't live in St. Louis, I live in Michigan (7-8 hr drive) so that has made things a bit more difficult as we have 6 young kids at home that we have to juggle around a bit. Things seem to be falling into place though...finally. We leave for STL two weeks from today <gulp> > > > > Hi there, > > I just wanted to check in since I haven't written in a while. (though i have been reading posts) My revision surgeries were June 2 and June 19. At 3 1/2 months post op, I guess I'm where I should be. I am walking 3 miles six days a week. (gotta take a break once in a while!. My pre surgery leg pain is still gone, which I'm so happy about. The pain I have now is more surgical stuff. I feel aches & pains in my lower back that come and go. I can tell that the numbness in that area is gradually lessening and as a result I'm having more sensation there. I'm not driving too much, I find it extremely uncomfortable to look left or back out. When my boys are with me, it's much easier, they like to look out the car window for me! My mother in law has been a tremendous help with lots of things including food shopping. (she leaves for the winter this weekend:( > > Up until recently we've had friends bringing dinners every night, that helping hands website is awesome!! > > Thankfully I'm able to stand in the kitchen and make snacks & help with homework afterschool, before my surgery I'd be in agony during all that. > > Eventhough I have aches in my lower back, I feel they're a good reminder to step back and rest. This surgery has really given me my life back, a little more each day. Without this website I wouldn't know of all the other people in similar situations, nor would I have learned of my surgeon, Dr.Bridwell. This group continues to be so helpful and supportive, and I'm so thankful to have found it! > > My next post op visit is October 26th. I'm hoping to find out if I'll need an anterior surgery to insert cages. This is something I was told I'd need down the road before my decompression surgery took place in June. > > Anyway, I just wanted to check in and to also say thank you to all of you! > > Warmly, > > > > Pa > > Sent from my iPhone > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 Hi , You sound wonderful and positive! I'm happy to hear that you are healing well. It doesn't seem possible that it has been 7 months. I remember when you posted last year and your revision was suddenly be planned and I thought, " OMG! I've been in the " planning " stage for 5 years and she's boom, boom DONE! " . Good for you. Keep us updated. (RI) > > Hi there, > I haven't been on the site for awhile, but you have all continued to be in my prayers. > Right now I'm about seven months post-op from my revision with Dr.Bridwell. My next visit will be my nine month check up in March, when I'll hopefully find out if I'll need an anterior surgery to put cages in. My only physical therapy for now has been walking. So, 6 days a week I walk 2 1/2-3 miles per day. We ended up getting a treadmill since the weather doesn't always cooperate with our needs! > The leg pain I had prior to revision is mostly gone!! yay! I sometimes get little pangs of leg pain that come & go, but not often. Before revision I couldn't even stand at the bus stop, now I'm walking & standing more than ever, (without pain!) If I've had a busy day, I feel pressure in my lower back that is a good reminder that I'm still healing. It's easy to keep going when your pain level is so low, but not always a good thing! > My biggest complaint right now is Restless Leg Syndrome. It is a classic case, according to any description I've read on line. It starts acting up at night while watching t.v. or reading and continues into the night. It also has woken me up and made it difficult to fall right back to sleep. I'm working with my doctor to find the right medicine for this, so hopefully we'll have a solution soon. > I'm so thankful to be an active mom/wife for my family again, keeping them organized and taking the boys where they need to be. oh, and most importantly... keeping my family fed!!! > I hope this finds you all doing as well as possible. > > I pray for a happy, healthy new year to all! > with love, > lauren > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 Hi , Glad to hear that you are doing well in your recovery. As for Restless Leg Syndrome, try having a banana just before bed, since sometimes it is a lack of magnesium in our body. If it is still causing you problems, then check with your doctor as there are medications to help calm the nerves down, though even that doesn’t work for everyone. I still get it but not as bad as I used to since I’ve been taking some medication (Clonazepam). Also, try some relaxation/meditation techniques to help calm the mind. By calming the mind, it might help in calming the nerves that trigger the Restless Leg Syndrome. I’m no doctor (or in any other medical profession), just a fellow sufferer who is offering some suggestions and thoughts. Llweyn BC, Canada From: [mailto: ] On Behalf Of Luff Sent: January-23-10 10:39 AM Subject: [ ] checking in Hi there, I haven't been on the site for awhile, but you have all continued to be in my prayers. Right now I'm about seven months post-op from my revision with Dr.Bridwell. My next visit will be my nine month check up in March, when I'll hopefully find out if I'll need an anterior surgery to put cages in. My only physical therapy for now has been walking. So, 6 days a week I walk 2 1/2-3 miles per day. We ended up getting a treadmill since the weather doesn't always cooperate with our needs! The leg pain I had prior to revision is mostly gone!! yay! I sometimes get little pangs of leg pain that come & go, but not often. Before revision I couldn't even stand at the bus stop, now I'm walking & standing more than ever, (without pain!) If I've had a busy day, I feel pressure in my lower back that is a good reminder that I'm still healing. It's easy to keep going when your pain level is so low, but not always a good thing! My biggest complaint right now is Restless Leg Syndrome. It is a classic case, according to any description I've read on line. It starts acting up at night while watching t.v. or reading and continues into the night. It also has woken me up and made it difficult to fall right back to sleep. I'm working with my doctor to find the right medicine for this, so hopefully we'll have a solution soon. I'm so thankful to be an active mom/wife for my family again, keeping them organized and taking the boys where they need to be. oh, and most importantly... keeping my family fed!!! I hope this finds you all doing as well as possible. I pray for a happy, healthy new year to all! with love, lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 , So glad to hear you are doing well. I too am waiting to hear if I will need surgery. As to restless leg, my daughter had it, and 2 or 3 visits with a cranio sacral therapists cured it. Might work for you too. Carol "No storm can shake my inmost calm, when to that Rock I'm clinging........ " -----Original Message-----From: [mailto: ] On Behalf Of Llweyn FriarsSent: Saturday, January 23, 2010 6:23 PM Subject: RE: [ ] checking in Hi , Glad to hear that you are doing well in your recovery. As for Restless Leg Syndrome, try having a banana just before bed, since sometimes it is a lack of magnesium in our body. If it is still causing you problems, then check with your doctor as there are medications to help calm the nerves down, though even that doesn’t work for everyone. I still get it but not as bad as I used to since I’ve been taking some medication (Clonazepam). Also, try some relaxation/meditation techniques to help calm the mind. By calming the mind, it might help in calming the nerves that trigger the Restless Leg Syndrome. I’m no doctor (or in any other medical profession), just a fellow sufferer who is offering some suggestions and thoughts. Llweyn BC, Canada From: [mailto: ] On Behalf Of LuffSent: January-23-10 10:39 AM Subject: [ ] checking in Hi there, I haven't been on the site for awhile, but you have all continued to be in my prayers. Right now I'm about seven months post-op from my revision with Dr.Bridwell. My next visit will be my nine month check up in March, when I'll hopefully find out if I'll need an anterior surgery to put cages in. My only physical therapy for now has been walking. So, 6 days a week I walk 2 1/2-3 miles per day. We ended up getting a treadmill since the weather doesn't always cooperate with our needs! The leg pain I had prior to revision is mostly gone!! yay! I sometimes get little pangs of leg pain that come & go, but not often. Before revision I couldn't even stand at the bus stop, now I'm walking & standing more than ever, (without pain!) If I've had a busy day, I feel pressure in my lower back that is a good reminder that I'm still healing. It's easy to keep going when your pain level is so low, but not always a good thing! My biggest complaint right now is Restless Leg Syndrome. It is a classic case, according to any description I've read on line. It starts acting up at night while watching t.v. or reading and continues into the night. It also has woken me up and made it difficult to fall right back to sleep. I'm working with my doctor to find the right medicine for this, so hopefully we'll have a solution soon. I'm so thankful to be an active mom/wife for my family again, keeping them organized and taking the boys where they need to be. oh, and most importantly... keeping my family fed!!! I hope this finds you all doing as well as possible. I pray for a happy, healthy new year to all! with love, lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Thanks Carol!Hope you're doing well. When will you find out about another surgery?Take care,Sent from my iPhoneOn Jan 23, 2010, at 6:28 PM, <c-e-cole@...> wrote: , So glad to hear you are doing well. I too am waiting to hear if I will need surgery. As to restless leg, my daughter had it, and 2 or 3 visits with a cranio sacral therapists cured it. Might work for you too. Carol "No storm can shake my inmost calm, when to that Rock I'm clinging........ " -----Original Message-----From: [mailto: ] On Behalf Of Llweyn FriarsSent: Saturday, January 23, 2010 6:23 PM Subject: RE: [ ] checking in Hi , Glad to hear that you are doing well in your recovery. As for Restless Leg Syndrome, try having a banana just before bed, since sometimes it is a lack of magnesium in our body. If it is still causing you problems, then check with your doctor as there are medications to help calm the nerves down, though even that doesn’t work for everyone. I still get it but not as bad as I used to since I’ve been taking some medication (Clonazepam). Also, try some relaxation/meditation techniques to help calm the mind. By calming the mind, it might help in calming the nerves that trigger the Restless Leg Syndrome. I’m no doctor (or in any other medical profession), just a fellow sufferer who is offering some suggestions and thoughts. Llweyn BC, Canada From: [mailto: ] On Behalf Of LuffSent: January-23-10 10:39 AM Subject: [ ] checking in Hi there, I haven't been on the site for awhile, but you have all continued to be in my prayers. Right now I'm about seven months post-op from my revision with Dr.Bridwell. My next visit will be my nine month check up in March, when I'll hopefully find out if I'll need an anterior surgery to put cages in. My only physical therapy for now has been walking. So, 6 days a week I walk 2 1/2-3 miles per day. We ended up getting a treadmill since the weather doesn't always cooperate with our needs! The leg pain I had prior to revision is mostly gone!! yay! I sometimes get little pangs of leg pain that come & go, but not often. Before revision I couldn't even stand at the bus stop, now I'm walking & standing more than ever, (without pain!) If I've had a busy day, I feel pressure in my lower back that is a good reminder that I'm still healing. It's easy to keep going when your pain level is so low, but not always a good thing! My biggest complaint right now is Restless Leg Syndrome. It is a classic case, according to any description I've read on line. It starts acting up at night while watching t.v. or reading and continues into the night. It also has woken me up and made it difficult to fall right back to sleep. I'm working with my doctor to find the right medicine for this, so hopefully we'll have a solution soon. I'm so thankful to be an active mom/wife for my family again, keeping them organized and taking the boys where they need to be. oh, and most importantly... keeping my family fed!!! I hope this finds you all doing as well as possible. I pray for a happy, healthy new year to all! with love, lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 P.s.My doc has also prescribed klonopin, last night was second night and I didn't get much relief. I may just give mirapex another try. I had tried it once before and it kept me awake. Sent from my iPhoneOn Jan 23, 2010, at 6:23 PM, "Llweyn Friars" <mad.monk@...> wrote: Hi , Glad to hear that you are doing well in your recovery. As for Restless Leg Syndrome, try having a banana just before bed, since sometimes it is a lack of magnesium in our body. If it is still causing you problems, then check with your doctor as there are medications to help calm the nerves down, though even that doesn’t work for everyone. I still get it but not as bad as I used to since I’ve been taking some medication (Clonazepam). Also, try some relaxation/meditation techniques to help calm the mind. By calming the mind, it might help in calming the nerves that trigger the Restless Leg Syndrome. I’m no doctor (or in any other medical profession), just a fellow sufferer who is offering some suggestions and thoughts. Llweyn BC, Canada From: [mailto: ] On Behalf Of Luff Sent: January-23-10 10:39 AM Subject: [ ] checking in Hi there, I haven't been on the site for awhile, but you have all continued to be in my prayers. Right now I'm about seven months post-op from my revision with Dr.Bridwell. My next visit will be my nine month check up in March, when I'll hopefully find out if I'll need an anterior surgery to put cages in. My only physical therapy for now has been walking. So, 6 days a week I walk 2 1/2-3 miles per day. We ended up getting a treadmill since the weather doesn't always cooperate with our needs! The leg pain I had prior to revision is mostly gone!! yay! I sometimes get little pangs of leg pain that come & go, but not often. Before revision I couldn't even stand at the bus stop, now I'm walking & standing more than ever, (without pain!) If I've had a busy day, I feel pressure in my lower back that is a good reminder that I'm still healing. It's easy to keep going when your pain level is so low, but not always a good thing! My biggest complaint right now is Restless Leg Syndrome. It is a classic case, according to any description I've read on line. It starts acting up at night while watching t.v. or reading and continues into the night. It also has woken me up and made it difficult to fall right back to sleep. I'm working with my doctor to find the right medicine for this, so hopefully we'll have a solution soon. I'm so thankful to be an active mom/wife for my family again, keeping them organized and taking the boys where they need to be. oh, and most importantly... keeping my family fed!!! I hope this finds you all doing as well as possible. I pray for a happy, healthy new year to all! with love, lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Thanks !It does go fast, doesn't it! I hope you're doing well. Take care,Sent from my iPhoneOn Jan 23, 2010, at 4:30 PM, "valerie_delaney" <vad61@...> wrote: Hi , You sound wonderful and positive! I'm happy to hear that you are healing well. It doesn't seem possible that it has been 7 months. I remember when you posted last year and your revision was suddenly be planned and I thought, "OMG! I've been in the "planning" stage for 5 years and she's boom, boom DONE!". Good for you. Keep us updated. (RI) > > Hi there, > I haven't been on the site for awhile, but you have all continued to be in my prayers. > Right now I'm about seven months post-op from my revision with Dr.Bridwell. My next visit will be my nine month check up in March, when I'll hopefully find out if I'll need an anterior surgery to put cages in. My only physical therapy for now has been walking. So, 6 days a week I walk 2 1/2-3 miles per day. We ended up getting a treadmill since the weather doesn't always cooperate with our needs! > The leg pain I had prior to revision is mostly gone!! yay! I sometimes get little pangs of leg pain that come & go, but not often. Before revision I couldn't even stand at the bus stop, now I'm walking & standing more than ever, (without pain!) If I've had a busy day, I feel pressure in my lower back that is a good reminder that I'm still healing. It's easy to keep going when your pain level is so low, but not always a good thing! > My biggest complaint right now is Restless Leg Syndrome. It is a classic case, according to any description I've read on line. It starts acting up at night while watching t.v. or reading and continues into the night. It also has woken me up and made it difficult to fall right back to sleep. I'm working with my doctor to find the right medicine for this, so hopefully we'll have a solution soon. > I'm so thankful to be an active mom/wife for my family again, keeping them organized and taking the boys where they need to be. oh, and most importantly... keeping my family fed!!! > I hope this finds you all doing as well as possible. > > I pray for a happy, healthy new year to all! > with love, > lauren > Quote Link to comment Share on other sites More sharing options...
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